Tag: disability

First comprehensive review into PIP finds it is “not fit for purpose”

Personal Independence Payment is no longer fit for purpose and is failing to keep pace with how disability, health and work have changed over the past decade, the Timms Review has found

  • Millions of disabled people are being failed by a benefit that is no longer working, the first ever full review into Personal Independence Payment has found.
  • The largest co-produced review ever undertaken by government at a national level has heard from nearly 40,000 people and organisations across the country.
  • Publication of interim report finds that while PIP is a lifeline for many claimants, it can create barriers to work, physical activity and community life.
  • Report also reveals deep-rooted problems in the design and delivery of PIP with the assessment described as dehumanising and stressful.

Personal Independence Payment is no longer fit for purpose and is failing to keep pace with how disability, health and work have changed over the past decade, the Timms Review has found.

The interim report published today (Thursday 9 July 2026) comes as part of the first comprehensive review of PIP since the benefit was introduced in 2013 and sets out the evidence gathered so far to inform recommendations for reform due this autumn.

Drawing on findings from more than 38,000 responses to the Review’s Call for Evidence, alongside workshops and engagement with disabled people, their organisations and experts, it is one of the largest co-produced reviews delivered by the government.

The report has revealed that while PIP is widely valued as a cash benefit, it is not working as intended for disabled people or wider society.

While many disabled people say that PIP is vital in helping them meet the extra costs of disability and participate in everyday life, others stated PIP creates barriers to participating fully in work, social and community life. This is particularly true for people with fluctuating conditions, less visible conditions or multiple conditions.

The process of claiming, under assessment criteria designed more than a decade ago, was viewed negatively by 90% of respondents, and described as at times “dehumanising”, “degrading” and “stressful” and the use of supporting evidence too often inconsistent. Only 5% of responses about the process were positive.

The Report also reports low levels of trust in the system and the need for it to be built back both for disabled people and those with long-term conditions, as well as for the taxpayer.

PIP was introduced in 2013 to contribute towards the extra costs of disability and support independent living but has never been fully reviewed despite shifting trends in health and disability, and changes in wider society and the workplace.

The Review launched last October with the aim of making sure PIP is fair and fit for the future in a changing world and helps support disabled people to achieve better health, higher living standards and greater independence including through employment.

It will also take account of related work underway across the wider health and social care system, including the Milburn Review into the increase in the number of young people who are not in education, employment or training (NEET). Both reviews are due to conclude later this year, providing a foundation for effective and sustainable reform.

The steering group will now continue to gather evidence through evidence sessions with experts and workshops around the country, while moving into the next phase: designing and testing recommendations for change, with the final recommendations due to be published this autumn.

Around 10 million working-age people report living with a disability – equivalent to 24% of the working-age population, compared with under 17% in 2013/14. There have been greater increases in the prevalence of disability among young people and a rise in mental health conditions. The Review must consider how PIP can remain sustainable within fixed financial limits and support future generations.

The report draws on findings from over 38,000 responses to a Call for Evidence, which describe an assessment process that fails to reflect real-life impacts, particularly for those with multiple or fluctuating conditions.

Yet the report also found that disabled people consistently describe PIP as a vital lifeline, allowing independence. Without it, many say they would become housebound, dependent on family, or in need of residential care.

Sharon Brennan, co-chair of the Review, said: “Improving trust in the system – both from the public and those going through the system – is vital if PIP is to be fit and fair for the future.

“Of those that responded to the steering group’s Call for Evidence, over 90% described negative experiences of the process of claiming PIP, with concerns raised around all aspects of the process from application through to assessment and appeals.

“We are immensely grateful to the tens of thousands of people who have taken the time to share their lived experience and make a valuable contribution to this Review.

“We’ve heard loud and clear: PIP is highly valued as a benefit but is not fit for purpose. We are committed to making changes so that PIP can fulfil its purpose.”

Dr Clenton Farquharson CBE, co-chair of the Review, said: “PIP should contribute to disabled people meeting the extra costs of disability and participate in everyday life. What we have heard through this Review is that, while PIP is a lifeline for many people, the system too often fails to understand the reality of people’s lives.

“Disabled people have told us about a process that can feel stressful, dehumanising and hard to navigate, especially for people with fluctuating conditions, less visible or multiple conditions. That matters, because a system that does not feel fair or humane will not command trust from disabled people or from the wider public.

“This Review is significant because disabled people, Disabled People’s Organisations and experts are helping and supporting to shape the work from the inside, not simply being consulted from the outside. As we move towards final recommendations, we need to be bold in our ambition, practical in our proposals, and focused on making PIP fair, trusted and fit for the future.”

Sir Stephen Timms, Minister for Social Security and Disability and co-chair of the Review, said: “This interim report delivers a clear message: while PIP is widely valued as a benefit, it is not working as intended and needs fundamental change.

“Our work so far has been informed by a wide range of evidence, expertise, and insight to ensure we hear from as many disabled people as possible across the country, including through workshops, engagement and a call for evidence which attracted more than 38,000 responses.

“I’m grateful to my fellow co-chairs and the steering group for their intensive work and look forward to the Review’s final report being delivered in the autumn.”

Charlotte Gill, Head of Campaigns at the MS Society, says: “Today’s interim report confirms what disabled people have been saying for many years – that the current PIP system is stressful and exhausting.

“We’ve been supporting people with MS to share their experiences as part of the Review, and they are clear in their call for a new approach based on fairness, dignity and respect.

“Over 150,000 people live with MS in the UK, with most diagnosed in their 30s and 40s. This is our chance to build a PIP system that acknowledges invisible and fluctuating symptoms, ends unnecessary reassessments, and works for everyone.

“But the next steps are crucial – and must continue involving and listening to disabled people. That’s the only way to make PIP fair and fit for the future.”

Sarah Hughes, CEO of Mind, says: “The report echoes what we hear every day: that the PIP system is dehumanising, stressful and damages trust.

“PIP is a lifeline for people who, through no fault of their own, live with the additional costs of mental illness.

“So as this work progresses, it’s vital that, alongside improving the process, we also recognise that in a decent society we must support those facing additional need. This is a line-in-the sand moment for how we treat people, that improves lives for those who are unwell and reduces the impacts on families and communities.”

Jon Sparkes, OBE, Chief Executive of learning disability Mencap, said: “It’s groundbreaking to see proper co-production in action. Disabled people are shaping the way that PIP works, and their lived experience is essential to making the right decisions on its future.

“This report shows clearly that that the current claims process is not fit for purpose and places an unfair administrative and emotional burden on people with a learning disability and their families. This chimes with our experience: the application process is not accessible, assessments end up being a needless fight and unnecessary re-assessments create distrust in the decision-making process.

“This approach should continue so that future recommendations are practical, deliverable and do not harm disabled people. I hope that the process of co-production will help to restore trust in the welfare systems that many of us rely on.”

The Call for Evidence forms just one part of a wider programme of engagement and evidence gathering. Last month, the group launched a toolkit to gather organisations’ insights on people’s experiences of PIP. Feedback from these sessions, combined with existing research, has helped ensure the report reflects a broad range of views and evidence.

The steering group is clear that co-production is central to the Review, putting disabled people at its heart. Co-production is a new undertaking for the UK government, and this is the first time it has been used on this scale.

It includes disabled people, representatives from Disabled People’s Organisations and experts – bringing together lived experience, policy knowledge and practical expertise to develop recommendations based on real lives.

Harriet Edwards, Director of Influencing, Sense: “Too many disabled people are being failed by the current benefits system, and we welcome the Timms Review’s acknowledgment of this.

“Sense research found that nearly half of disabled people with complex needs on benefits said that the application process made their conditions worse; this is clearly a system that needs to urgently change.

“We are also pleased to see the review’s commitment to co-production with disabled people, and look forward to being further involved in this process.

“Benefits like PIP are a vital lifeline for disabled people. They are the difference between people being part of their communities, seeing people they love, being able to stay active and getting to work.

“As the Timms review moves into its next phase, we urge the review team to ensure its recommendations are driven by the goal of improving disabled people’s lives, not reducing public spending.

“Changes to welfare must remove barriers, strengthen support and build a system that treats disabled people with dignity, respect and trust.”

David Newbold, Director of Community, Parkinson’s UK: “We welcome the Timms Review’s recognition that the current PIP system is not working for many disabled people and that it can be particularly difficult for those with fluctuating conditions such as Parkinson’s.

“It is encouraging to see acknowledgement that assessments do not always capture the full impact of a condition, can be subjective, and that assessor training needs to improve.

“As the Review develops its recommendations, it will be important to ensure that support remains based on the impact a condition has on someone’s daily life. People with Parkinson’s should be able to access the support they need regardless of whether they are able to work, volunteer or take part in other activities.

“It is also vital for the Review to ensure that unnecessary reassessments for people with progressive conditions such as Parkinson’s are stopped. A fair system should not require people to repeatedly prove the impact of a condition that will not improve.

“We will continue to work with the Timms Review to help ensure any future changes to PIP work for people with Parkinson’s and lead to a fairer, more consistent system that provides the support people need.”

James Taylor, Director of Strategy, Scope: “Co-producing with disabled people is the right thing to do. We’re pleased lived experience is at the centre of the Review.

“This report reflects what Scope hears day in, day out, from disabled people. PIP isn’t working.

“The assessment process is complex and dehumanising. The system does not reflect the reality of disabled people’s lives, especially people with fluctuating conditions.

“Life costs more if you are disabled. And PIP exists to help with the extra costs disabled people face, whether they are in work, out of work, or unable to work.

“The government has started to listen. Now it must build a person-centred system that is easier to deal with and fit for disabled people’s lives.”

Stewart McCulloch, Chief Executive Officer, Christians Against Poverty: “We welcome that the Timms Review has listened to the voices of people living with disabilities, including a visit to meet with some of our clients at CAP’s support hub in Bradford.

“As rightly highlighted by the review, the current application process for PIP is complicated and adds additional stress and anxiety onto people already facing vulnerable circumstances. CAP’s debt coaches and local church teams frequently see this reality when working with clients in their communities.

“Many people with disabilities come to us for free debt advice because they have had to take out credit as a result of not being able to afford their basic needs.

“This report is a positive step on the journey of reviewing PIP. But, from this review, steps need to be taken to ensure that the social security system supports and empowers disabled people into good, quality employment, whilst also providing a livable income for those unable to work to live a life with dignity.”

Thousands more out-of-work benefit claimants to get personalised support

Up to 40,000 disabled people and people with health conditions will benefit from expanded access to personalised support, as the government rolls out Support Conversations across a further 27 Jobcentres taking the total number of sites to 33

  • Support Conversations expanding to a further 27 Jobcentres across Great Britain, bringing the total to 33 sites.
  • Disabled people and those with health conditions on out of work benefits are being offered a one-to-one, voluntary, hour-long conversation to discuss their support needs and identify extra help. This support is personalised and could link people to help with their health, debt, skills, employment and housing.
  • Part of the government’s wider £3.5 billion investment to help disabled people and those with health conditions into work over the Parliament.

Support Conversations are voluntary, hour-long sessions designed to help people identify and overcome the barriers stopping them from moving into work or into meaningful activity (such as volunteering) and is part of the commitment the Government made in last year’s Pathways to Work Green Paper

Unlike standard Jobcentre appointments, Support Conversations take a holistic approach, covering not just employment, but housing, debt, skills, and drug and alcohol rehabilitation services. Support Conversations are delivered by Healthcare Professionals, Pathways to Work Advisers, and Disability Employment Advisers, and are available face to face, by video, or by telephone.

They are open to those who are awaiting a Work Capability Assessment and people furthest away from the labour market – assessed as having Limited Capability for Work and Work-Related Activity (LCWRA). 

These are people who for too long were written off and denied support. But the government’s expansion of Support Conversations is giving people they help they need and builds on the landmark deployment of 1,000 Pathways to Work Advisers, who have already helped more than 65,000 sick and disabled people get one step closer to work.

Minister for Employment Dame Diana Johnson said: “Too many disabled people and people with health conditions face barriers that stop them from accessing the support and opportunities they deserve. 

“That is why we are expanding the number of sites delivering Support Conversations from 6 to 33 Jobcentres across Great Britain, giving up to 40,000 people personalised help tailored to their circumstances. 

“Getting more people into good work is central to our Plan for Change and Support Conversations will help us do exactly this.”

This expansion builds on testing already live in six sites where support conversations are being delivered by healthcare professionals and disability employment advisers. Early testing indicates customers feeling “listened to” and “supported.”

Neil, a Disability Employment Adviser in Bournemouth said:  “Support Conversations are a great opportunity to spend an hour focused on the claimant and their needs. 

“We all know that many people face a whole range of challenges which need to be overcome as part of their individual journey back to work and talking through those challenges with a DEA is an important first step.

“Support Conversations confirm that the most valuable resource we have is the time that we spend with our claimants.”

Saimha, a Healthcare Professional in Preston said: “Support Conversation is about providing compassionate, informed, holistic, person-centred support to disabled people and those with health conditions. Every interaction is an opportunity to make someone feel heard, safe, and supported.

“Every person’s health journey is unique and support conversation is an opportunity to identify the range of barriers people are facing in their day to day life and signposting them to the relevant services that can help, encouraging people to take positive steps towards improving their lives.”

This expansion forms part of the UK government’s Pathways to Work offer and its broader £3.5 billion employment support package, which includes:

  • Connect to Work, which delivers tailored, personalised, local support that will help 300,000 people into work by the end of this parliament.
  • The national expansion of WorkWell, backed by £259mn, helping up to 250,000 people with health conditions to stay in or return to work.
  • Allowing sick or disabled people to try work without the immediate fear of reassessment through the Right to Try.
  • The deployment of 1,000 Pathways to Work advisers who’ve already helped tens of thousands of people the previous Government wrote off.

The government will continue to test the success of Support Conversations through healthcare professionals and disability employment advisors as part of this expansion, with Pathways to Work Advisers also carrying out these Support Conversations for the first time. 27 sites have been confirmed so far, with a further six sites to be confirmed shortly.

The expansion directly supports the government’s Plan for Change and its mission to raise living standards across the UK by helping more people into work and ensuring everyone has the opportunity to thrive.

Additional Information:

  • Support Conversations are currently offered to people awaiting a Work Capability Assessment (WCA) who have registered a health condition or disability that impacts their ability to work and those assessed as having Limited Capability for Work and Work-Related Activity (LCWRA).
  • The conversations are entirely voluntary.
  • List of confirmed sites (note 6 further sites to be confirmed shortly):
SiteModel
AberdarePtWA
Berwick Upon TweedPtWA
BlaydonDEA
BournemouthDEA
DidsburyPtWA
GlenrothesDEA
GrimsbyPtWA
HoxtonPtWA
LancasterHCP
Leeds Park PlacePtWA
Leicester Charles StreetDEA
Leicester Wellington StreetDEA
North ShieldsDEA
NorthwichPtWA
PrestonHCP
RusholmePtWA
SaltcoatsPtWA
ShettlestonDEA
South ShieldsDEA
SouthendDEA
SparkhillDEA
SpringburnDEA
SunderlandDEA
ThornabyHCP
WesterHailesPtWA
WhitehavenDEA
WorkingtonPtWA

QMU launches first Anti-Ableism Challenge Badge for Girlguiding UK

Thousands of young people across the UK are set to learn about disability, inclusion and equality through a new Anti-Ableism Challenge Badge launched by Queen Margaret University (QMU) for Girlguiding UK members. 

Co-created with disabled people, the badge introduces simple, engaging activities that help young members understand disability, challenge stereotypes and take practical steps to make their communities more inclusive. Designed for Rainbows, Brownies, Guides, Rangers and volunteers, the badge syllabus also builds awareness of disability history, rights and equity. 

Developed by the Toy Box Diversity Lab at Queen Margaret University, the badge has already been successfully piloted in Girlguiding Scotland units in East Lothian. It will now be available as an optional activity alongside the core Girlguiding programme, offering flexible, low-cost or free ways for young people across the UK to explore inclusion and accessibility. 

Dr Siân Jones, Senior Lecturer in Psychology at Queen Margaret University and co-founder of the Toy Box Diversity Lab, said: “As a disabled person myself, this new badge represents a really positive step forward in the growing momentum around anti-ableism work with young people.

“Too often, disability is left out of early learning, but this badge helps change that by creating space for reflection, discussion and action. 

“Disabled children and young people often encounter barriers that non-disabled people don’t notice, from inaccessible environments to assumptions about what they can and cannot do.

“Ableism can be subtle, but its impact is significant. By introducing conversations about disability, fairness and accessibility at an early age, we can help create more inclusive communities where disabled people are valued, respected and included. We hope this badge will give girls and leaders the confidence to recognise barriers, challenge them, and become advocates for positive change.” 

Activities that can be completed to gain the Anti-Ableism Challenge Badge include adapting games to make them more inclusive, redesigning spaces to improve accessibility, learning the Braille alphabet, and exploring disabled role models and representation. Girlguiding UK leaders are supported with practical guidance, discussion prompts and information-based resources. 

One of the Anti-Ableism Badge co-creators said: “It has been really affirming to me as a disabled person to be part of the development of these resources. 

“I think it is really important to have these resources for young people to bring it to the forefront of their awareness at a young age. As a former Rainbow and Brownie, I would have appreciated this in my unit.” 

Developed through QMU’s Toy Box Diversity Lab, the Anti-Ableism Challenge Badge builds on the Lab’s wider work addressing inequality, representation and social justice in educational and youth settings. The Lab works collaboratively with communities to ensure disabled people’s voices are at the heart of developing training, resources and inclusive practice. 

Dr Clare Uytman, Senior Lecturer in Psychology at Queen Margaret University and co-founder of the Toy Box Diversity Lab, said: “At the Toy Box Diversity Lab, we aim to directly tackle representation and understanding of disability through play, imagination and discovery.

“The introduction of anti-ableism into Girlguiding’s suite of challenge badges is an example of how collaborative work can translate research into tools that support real change in educational and youth settings.” 

More information about the Toy Box Diversity Lab can be found at: 

https://qmutoyboxdiversitylab.com/anti-ableism-challenge-badge/  

To sign up for the Anti-Ableism Challenge Badge, visit: 

https://www.facebook.com/groups/GuideAndScoutChallengeBadges

Decline in remote jobs could undermine Government plans to get Britain working, research warns

  • Findings from the UK’s largest mixed‑methods study of disabled remote and hybrid workers show that 85% of respondents say access to homeworking is essential or very important when looking for a new job
  • Nearly half (46%) of the participants in the Inclusive Remote and Hybrid Working Study want to work remotely all the time, with disabled women and disabled carers more likely to want to work fully from home 
  • However, analysis of Adzuna job vacancy data shows declining levels of remote job opportunities. In 2024/25, only one in 23 job adverts on Adzuna (4.3%) were fully remote – half the level seen during the pandemic peak of 8.7% in 2020/21
  • Growth in the availability of hybrid jobs appears to have stalled, with only one in seven (13.5%) job vacancies offering hybrid work in 2024/25
  • Researchers warn a shortage of suitable jobs could undermine the Government’s ambition to get Britain working, and echo a recent House of Lords call for Ministers to ensure remote and hybrid working is being prioritised to boost disabled people’s employment.

The Government’s plan to get people working could face a significant challenge as remote-only job opportunities decline, warn researchers behind the largest study of disabled workers experiences of remote and hybrid working in the UK.

Research shows that almost half (46%) of 1,221 survey participants wanted to work remotely all the time, yet the numbers of remote jobs in the UK have decreased drastically since the peak of the Covid-19 pandemic, with 50% fewer remote only roles advertised compared to 2020/21.

As part of the largest study of disabled workers’ experiences of remote and hybrid work in the UK – conducted by researchers from Lancaster University, the Work Foundation at Lancaster University, Manchester Metropolitan University, and Universal Inclusion, and funded by the Nuffield Foundation – researchers studied job vacancy data from global job platform, Adzuna.

Remote and hybrid working remain more common than before the pandemic, but growth is slowing. In the year to April 2025, 17.8% of UK vacancies offered either fully remote (4.3%) or hybrid roles (13.5%), up from 3.1% pre-pandemic. However, fully remote jobs have fallen sharply since their peak, and growth in hybrid roles has stalled.

Dr Paula Holland from Lancaster University, who led the research, said: “The increased availability of remote and hybrid working since before the pandemic has improved many disabled people’s experience of work.

“Our findings indicate disabled employees gain significant benefits including improved mental and physical health, better work-life balance and increased productivity.

“However, companies mandating returns to the office have seen remote-only opportunities plummet. This could prevent some disabled workers from returning and staying in work. At a time when the Government wants to get people working, access to suitable homeworking roles can be the difference between working or not working.”

At a time when the Government wants to get people working, disabled workers report that access to suitable homeworking roles can be the difference between working or not working.”

Homeworking can support disabled workers, but only if done well

The UK Government has committed to supporting more disabled people to remain in or return to work as part of its wider efforts to boost employment by two million people to an 80% employment rate.

Disabled people currently represent one in four workers in the workforce, but the disability employment gap – the difference between the employment rates of disabled and non-disabled people  – remains at 29.8 percentage points.

A UK Government study indicates remote work could support people out of work claiming health and disability benefits. One in four respondents (25%) who said they are currently unable to work stated that they could do so if they worked remotely.

The recent House of Lords Home-based Working Inquiry called on the Government to set out whether remote and hybrid working are being considered as part of existing initiatives to support people who are disabled or have long-term health conditions back into work.

The final report of the Inclusive Remote and Hybrid Working Study highlights remote and hybrid working as a key part of the solution to improving employment outcomes for disabled people. Key findings include:

·        64% of fully remote disabled workers said their work pattern positively affected their physical health, compared to 31% of those working remotely less than half the time

·        46% of participants wanted to work remotely all the time. There was also demand for hybrid working: 25% wanted to work from home four days a week and 27% for three days or less. Only 1.6% wanted to stop working from home

·        Women, carers and people with multiple or severely limiting impairments/health conditions were particularly likely to report they only wanted to work from home

·        85% of participants said that having access to remote/hybrid working would be essential or very important if looking for a new job. 79% would not apply for a job without remote options

·        Black and ethnic minority workers and less affluent workers were significantly less likely than white or more affluent workers to report remote/hybrid working had positive outcomes for their health and employment.

Dr Paula Holland continues, “Remote and hybrid working can benefit both employees and employers. The organisations we interviewed reported improved staff retention and recruitment as a result of implementing remote working policies including reduced sick leave and improved wellbeing.

“However, employers must ensure disabled workers have the resources and support they need. Over half of survey participants reported reasonable adjustments to support working from home had not been implemented, and black and ethnic minority workers reported significantly less positive outcomes.”

Rebecca Florisson, Principal Analyst, from the Work Foundation at Lancaster University commented: “For many disabled workers, homeworking isn’t a ‘nice to have’ – it’s essential to be able to enter into, and remain in work.

“Our research shows strong demand for remote and hybrid work among disabled people, yet fully remote job vacancies have halved since the pandemic and growth in hybrid jobs has stalled.

“If the Government is serious about getting Britain working, it must make sure the right jobs are available by expanding access to flexible work. Threats to cut disabled people’s welfare will not support them into work if the jobs they need simply aren’t there.”

Amongst its recommendations, the study calls on the UK Government to:

1.     Expand access to remote and hybrid jobs by making these and other forms of flexible working a core part of efforts to increase disabled people’s employment, including through clearing Access to Work backlogs

2.     Encourage employers to advertise flexibility upfront, including remote and hybrid options, particularly on the DWP’s Find a Job portal.

3.     Address regional inequalities in access to hybrid work through the Government’s Industrial Strategy.

4.     Strengthen reasonable adjustments, ensuring employers properly consider remote and hybrid working and meet their duties under the Equality Act 2010.

5.     Improve accountability, including requiring large employers to report on outcomes for disabled workers.

Simon, a graphic designer from Derby who has Long Covid, works in a fully remote job for a design agency. He said, “Remote work lets me work. I have chronic fatigue, post-exertional malaise (PEM), and postural orthostatic tachycardia syndrome (PoTS).

“Walking a short distance or going up the stairs can really exhaust me. Because I’m energy-limited, I need to budget my energy, pace myself and regularly lie down to rest.

“The adaptations I need are not so much equipment, but the ability to be able to take regular breaks throughout the day, where I can rest and recharge. Homeworking is much more tailored to my needs than being in the office.

“I can make the most of my working hours without a commute, so that means I have much more energy available to use for work itself. I’d find the commute to the office exhausting.

“Remote work has been a lifeline and my employer has been very supportive. Despite my health challenges, I’m just as productive working from home as I was at the office.”

Rebecca from Merseyside is a business manager in the public sector on a temporary fixed-term contract. She is autistic and has ADHD with comorbid anxiety and depression, she said, “I’ve been remote-only since 2020.

“I got an occupational health recommendation for permanent homeworking. The lack of external disruption allows me to better manage my condition.”

She has been looking for a new job for over 20 months, as she is on a temporary fixed-term contract. Rebecca continues: “I would be waiting forever if I only searched for homeworking roles.

In the last year, I’ve been offered four jobs but three have been withdrawn upon receipt of my occupational health recommendation.”

She has now accepted a new permanent full-time home-working contract at a lower salary than her current role, as she doesn’t believe she’ll find another homeworking job at her existing level that meets her needs.

Vera, from London, is in her twenties and works remotely for a healthcare company. Following stem cell treatment for her multiple sclerosis (MS), she was unable to return to a frontline role.

A recent study by the Work Foundation and the MS Society found that nearly half of people with MS (47%) look for job locations that require little or no travel.

“Remote work has made it possible for me to stay in employment — without it I couldn’t work,” she says. “While I’ve reduced my hours to four days a week, working from home means I can manage cognitive fatigue and rest during lunch breaks so I can stay productive.

“But I feel stuck, as there are so few remote-only roles. These are realistically the only roles I can apply for if I want to keep working and progress in my career.”

The report ‘Breaking down barriers: How remote and hybrid work can support disabled workers’ is published at: 

https://wp.lancs.ac.uk/inclusive-working/ 

and 

https://www.lancaster.ac.uk/work-foundation/breaking-down-barriers.

Disabled people to shape review into Personal Independence Payment

Disabled people will be at the heart of the first ever full review of Personal Independence Payment (PIP) following the appointment of two co-chairs, and the launch of a recruitment process for its wider steering group, says DWP

  • First ever full review of Personal Independence Payment to be led by disabled people with appointment of two co-chairs.
  • Recruitment for steering group launched to lead co-production and provide strategic direction.
  • UK Government to partner with disabled people to make sure their views and voices are at the heart of policy making.

Disabled people will be at the heart of the first ever full review of Personal Independence Payment (PIP) following the appointment of two co-chairs, and the launch of a recruitment process for its wider steering group. 

Dr Clenton Farquharson CBE and Sharon Brennan have been appointed as co-chairs of the Timms Review, alongside the Minister for Social Security and Disability, Sir Stephen Timms. 

Dr Clenton Farquharson CBE brings more than 25 years’ experience as a national advocate for disability rights, co-production and social justice. He is Associate Director at Think Local Act Personal, a Trustee of Disability Rights UK, and National Development Team for Inclusion. 

Sharon Brennan brings expertise from previous roles including as Director of Policy and External Affairs at National Voices, a coalition of health and care charities, and advising the Department for Transport on accessibility as a member of the Disabled Person’s Transport Advisory Committee. 

Since PIP was introduced over a decade ago, there have been shifting trends in long-term health conditions and disability, plus changes in wider society and the workplace. 

Close to 10 million working age people are disabled, and this number has grown by nearly 3 million since 2013/14. There have been greater increases in the prevalence of disability among young people and a rise in mental health conditions. 

However, despite these shifts, PIP has never been fully reviewed until now. 

The aim of this review is to make sure PIP fairly reflects the reality of the impact of people’s conditions in the modern world, as well as considering the needs of disabled people more widely. It will look at the role of PIP in enabling disabled people to live independently and fully participate in society, as well as the role of the assessment in unlocking wider support.   

Minister for Social Security and Disability, Stephen Timms said:  “We’re ensuring disabled people and those with long-term health conditions can access the same opportunities, choices, and chances as everyone else.   

“That’s why we’re putting them at the heart of the first ever full review of PIP – making sure it is fair and fit for the future. 

“I’m delighted to welcome Dr Clenton Farquharson CBE and Sharon Brennan as the Review’s co-chairs and encourage people with lived experience to apply to be part of this important work.”

The Review will be co-produced with disabled people, the organisations that represent them and other experts, and will explore how PIP helps people manage and adapt to their long-term condition or disability in ways that expand their functioning and improve their independence. 

An Expression of Interest has launched today to recruit 12 members for the Review’s steering group – the majority of whom will be disabled people or representatives of Disabled People’s Organisations – and will lead the co-production and strategic direction of the Review. 

The steering group will not work alone: it will oversee a programme of participation that brings together the full range of views and voices. It will also draw on a broad range of evidence, sources and co-production methodologies to develop its recommendations. 

Dr Clenton Farquharson CBE said: “We have an opportunity to ensure PIP reflects the everyday realities of disabled people’s lives. 

“I’m committed to working with my fellow co-chairs and the steering group so this benefit becomes something that empowers rather than frustrates: a system built on dignity, fairness, and trust.”

Sharon Brennan said: “As a disabled person myself, I know from experience that disabled people are often disregarded on issues that affect them, so I am delighted that with this Review we will see them leading the conversation.   

“The Government’s commitment to co-production of the Review will put the expertise and experience of disabled people at the heart of the important change we’re determined deliver.”

The Review’s Terms of Reference have also been updated following changes made to the Universal Credit Act, and to provide further clarity on the Review’s scope. 

The Review is expected to report to the Secretary of State for Work and Pensions by Autumn 2026, with an interim update expected ahead of that. 

Today’s announcement follows extensive engagement that the Minister for Social Security and Disability undertook over the summer, meeting with representatives from over 50 organisations across the disability, welfare and co-production sectors, to discuss how co-production should be approached. 

Alongside today’s announcement, as previously outlined in the Pathways to Work Green Paper, we will also continue to consider ways of using evidence from eligibility for other services to reduce the need for some people with very severe health conditions and disabilities to undergo a full PIP functional assessment. 

We have also begun to explore how the process of transferring supporting medical evidence from the NHS to the department could be digitalised, where people have already consented to the NHS sharing that with us. This could reduce the administrative burden on both PIP applicants and the NHS as well as speed up the overall claim journey.  

  • The Expression of Interest is available on GOV.UK and will run for four weeks.  Alternative formats (including BSL, Easy Read and audio) are available on request via GOV.UK. 
  • The Timms Review will report to the Secretary of State for Work and Pensions by autumn 2026.

Welfare bill ‘will protect the most vulnerable and help households with income boost’

TRUSSELL: The new Universal Credit and PIP bill will push nearly HALF A MILLION more people into severe hardship and towards the doors of food banks

Additional protections for millions of vulnerable people on benefits are set to be written into law, under new measures being introduced to Parliament yesterday [18 June 2025].

  • New welfare legislation to ensure there are robust protections in place to support the most vulnerable and severely disabled.
  • Nearly 4 million households to benefit from uprating of Universal Credit standard rate, the largest, permanent real-terms increase to basic out of work support since 1980, according to the IFS.
  • More than 200,000 people with most severe, lifelong conditions to be protected from future reassessment for Universal Credit entitlement.
  • 13-week period of financial support for those affected by PIP changes as part of upcoming welfare reforms.
  • Comes alongside £1 billion employment support package that will unlock opportunity and grow the economy as part of the Plan for Change.

The Universal Credit and Personal Independence Payment Bill will provide 13-weeks of additional financial security to existing claimants affected by changes to the PIP daily living component, including those who their lose eligibility to Carers Allowance and the carer’s element of Universal Credit, according to the UK government – but charity Trussell says the bill will push nearly HALF A MILLION more people into severe hardship.

The 13-week additional protection will give people who will be affected by the changes time to adapt, access new, tailored employment support, and plan for their future once they are reassessed and their entitlement ends.

This transitional cover is one of the most generous ever and more than three times the length of protection provided for the transition from DLA to PIP.

The Labour government says it inherited a broken social security system, with costs spiralling at an unsustainable rate and millions of people trapped out of work. The case for change is stark:

  • Since the pandemic, the number of PIP awards has more than doubled – up from 13,000 a month to 34,000 a month. That is around 1,000 people signing on to PIP every day – that is roughly the size of Leicester signing up every year.
  • The surge has been largely by driven by a substantial increase in the number of people who report anxiety and depression as their main condition. Before the pandemic (in 2019), 2,500 people a month were awarded PIP for these conditions, this has more than tripled to 8,200 a month in 2023.
  • Almost 1 million young people – 1 in 8 – are not in education, employment or training.
  • 1-in-10 people of working age are now claiming a sickness or disability benefit.
  • Without reform, the number of working age people on disability benefits is set to more than double this decade to 4.3 million.
  • Spending on working age disability and incapacity benefits is up £20 billion since the pandemic and is set to increase by almost that much again by the end of this Parliament, to a staggering £70 billion a year.

Labour says that’s why, through the introduction of this Bill; the government is fixing our broken social security system so it supports those who can work to do so while protecting those who cannot – putting welfare spending on a more sustainable path to unlock growth as part of our Plan for Change.

Work and Pensions Secretary Liz Kendall said: “Our social security system is at a crossroads. Unless we reform it, more people will be denied opportunities, and it may not be there for those who need it.

“This legislation represents a new social contract and marks the moment we take the road of compassion, opportunity and dignity.

“This will give people peace of mind, while also fixing our broken social security system so it supports those who can work to do so while protecting those who cannot – putting welfare spending on a more sustainable path to unlock growth as part of our Plan for Change.”

As part of our (i.e. the Westminster govertnment’s) commitment to protect the most vulnerable and severely disabled, peace of mind will also be given to 200,000 individuals in the Severe Conditions Criteria group – individuals with the most severe and permanently disabling conditions who will never be able to work – as they will not be called for reassessed for Universal Credit (UC) under new legislation.

Those protected from reassessment will also be paid the higher rate of UC health top up of £97 per week, so they can live with dignity and security, knowing the reforms to the welfare system mean it will always be there to support them.

In the coming weeks, legislation will also be drafted for a Right to Try Guarantee. This will ensure that trying work will not, in and of itself, lead to a reassessment or award review, breaking down barriers to employment.

Reforms being delivered by the legislation introduced today go hand in hand with a £1 billion employment support package to support more people with health conditions back into work, unlocking opportunity and growing the economy as part of the Plan for Change.

Funding will offer personalised employment and health support for individuals on out of work benefits, with 500,000 people having already been supported into employment. This is a quadrupling the level of annual spend on supporting sick and disabled people into work, from the £275m in 2024/25 we inherited, to over £1bn in 2029/30.

Nearly 4 million households will also receive an income boost with the main rate of Universal Credit set to increase above inflation every year for the next four years – estimated to be worth £725 by 2029/30 for a single household 25 or over. This is around £250 higher than an inflation only increases.

The Bill will also rebalance Universal Credit rates by reducing the health element for new UC claims to £50 from April 2026, fixing a system which encourages sickness by paying health element recipients more than double the standard amount.

To open up opportunities to work, everyone affected by changes to the UC health element from April 2026 will be offered support from a dedicated Pathways to Work adviser, with 1,000 advisers in place across Britain.

All of those affected by reforms will be actively contacted and given the offer of a conversation about their support needs, goals and aspirations; offered one-to-one follow-on support, and given help to access additional work, health and skills support that can meet their needs.

The reforms build on the Get Britain Working White Paper that will overhaul Jobcentres, empower Mayors and local leaders to tackle inactivity, and deliver a Youth Guarantee so every young person is either earning or learning, as part of the Government’s ambition to deliver an 80% employment rate.

Additional information

  • The Bill will introduce a new additional eligibility requirement for the daily living component of PIP so that a minimum of 4 points must be scored on at least one daily living activity to be eligible for the daily living component. It will also rebalance Universal Credit.
  • The Work and Pensions Secretary gave a speech at the IPPR on setting out the case for reforming the welfare system: Welfare reform: Speech to the IPPR by Work and Pensions Secretary – GOV.UK
  • Based on current forecasts, the rebalancing mean single households 25 or over, will see their standard allowance rise to around £106pw by the end of this parliament.
  • Current UC health top up is more than double the UC standard allowance for a single claimant.

There are 4 criteria for the healthcare professional to consider, all of which must apply for the claimant to meet the SCC, namely whether:

  • The individual’s level of function will always meet LCWRA
  • The individual’s condition will last for the rest of their life
  • There is no realistic prospect of recovery of function, and
  • The condition has been diagnosed by an appropriately qualified healthcare professional in the course of the provision of NHS services.

Scotland’s Social Justice Secretary: “Scrap damaging welfare reforms”

Social Justice Secretary Shirley-Anne Somerville has urged the UK Government to protect and enhance social security rather than making cuts.

The UK Government’s Universal Credit and Personal Independence Payment Bill has been published today, which includes the details of the first set of changes to ill-health and disability benefits. The Scottish Government will not mirror the Personal Independence Payment (PIP) changes in Adult Disability Payment in Scotland.

Social Justice Secretary Shirley-Anne Somerville said: “The UK Government’s proposed reforms will be hugely damaging to those who rely on social security support, particularly during the ongoing cost of living crisis.

“These plans have yet to be passed at Westminster, so there is still time for the UK Government to step back from this damaging policy and I strongly urge them to scrap their harmful proposals.

“The UK Government’s own analysis highlights how the proposals will push 250,000 more people across the UK into poverty – including 50,000 children. With around half of all children in poverty in Scotland living in a household with a disabled person, the changes threaten to undermine the progress that we are making to reduce child poverty, and the work of the UK Government’s Child Poverty Taskforce.

“That the UK Government is prioritising deep cuts to disabled people’s support is made even worse by their failure to abolish the two-child limit, which is estimated to have pushed more than 35,000 children into poverty since July last year.

“The reforms do not reflect the Scottish Government’s values. We will not let disabled people down or cast them aside as the UK Government has done. We will not cut Scotland’s Adult Disability Payment.

“The UK Government should follow our lead and protect the social security safety system, rather than dismantling it. If they do not, then disabled people can draw no other conclusion than the UK Government remain content to balance the books on the backs of the most vulnerable.”

Responding to the publication of the bill, Helen Barnard, Director of policy at Trussell said: “The UK government’s new Universal Credit and PIP bill, put before Parliament today, does almost nothing to ease the concerns of hundreds of the thousands of disabled people who fear that their social security support will be ripped from them.

“In fact, this bill will push nearly half a million more people into severe hardship and towards the doors of food banks.

“It is easy to see why so many MPs have voiced concerns about the damage this bill will do. What has been published today offers little for MPs deeply concerned about the impact of these cuts on their constituents.

“The last minute details on protections offer something for a small proportion of people, but even they will still see a real-terms cut. The reality of this bill is still record cuts in support for disabled people, and the biggest cuts to social security since 2015.

“It is shocking that MPs are being asked to vote through cuts without a full assessment of their impact, and especially worrying as we know that already three in four people referred to the Trussell community are disabled or live with someone who is.

“We know hunger and hardship already pushes up public service costs alone by £13.7 billion. MPs are being asked to vote for a Bill that will drive up hunger and hardship and undermine the UK government’s promises on economic growth and ending the need for emergency food.”

Today, the UK government published a bill, aimed at reforming the benefits system. Unfortunately, as it stands, this will be a disaster for disabled people – and is likely to worsen people’s living conditions, undermine their mental health, and increase the risk of suicide, says Mental Health Foundation.

These plans will not help reduce the number of disabled people out of work. Instead, they are counterproductive and cruel.

A more effective alternative for the government would be to move forward with its progressive policies that encourage people to return to work, such as the Right to Try scheme and improvements to support in job centres, and look at how well those work, without cutting support for disabled people.

‘Cruel Cuts’: Trussell urges UK government to think again

15,000 people in disabled households in Scotland will be forced into severe hardship if the UK government goes ahead with cuts to social security, warns Trussell

  • New report reveals hundreds of thousands of people will be pushed into severe hardship if government goes ahead with ‘cruel’ cuts to disability payments
  • 15,000 more people in disabled households will be at risk of needing to use a food bank

New analysis from anti-poverty charity Trussell has found that 15,000 people in disabled households across Scotland will be forced into severe hardship and at risk of needing a food bank in 2029/30, if the UK government goes ahead with planned cuts to social security.

The report – produced by economic and public policy experts WPI Economics for Trussell – models the projected impact of proposed changes to social security for disabled people on the number of people facing hunger and hardship in Scotland, a measure of deep poverty which captures people at risk of needing to use a food bank now or in the future.

This new analysis comes just weeks after it was revealed that almost 240,000 emergency food parcels were distributed by the Trussell community across Scotland during the past year. This is equivalent to one parcel every two minutes and a 101% increase compared to a decade ago.

Across the UK, it is projected that 440,000 people in disabled households will be forced into severe hardship. It also shows that the UK government’s planned increase to the basic rate of Universal Credit will move 95,000 people out of severe hardship – which Trussell says is clear evidence this welcome step cannot possibly make up for the sheer scale of the damage of cuts. The net impact of reforms will still be around 340,000 more people in disabled households facing hunger and hardship.

Trussell warns that UK government’s proposed £7 billion cuts to support for disabled people are likely to undermine its goal of increasing employment and will drive higher costs for public services.

Trussell and WPI Economics have shown that even before these cuts, the ongoing failure to tackle hunger and hardship leads to the Scottish government spending an additional £860m a year on public services alone, like the NHS, schools and children’s social care.

As MPs prepare to vote on legislation to introduce the cuts, Trussell is urging the UK government to think again and halt these damaging cuts to support for disabled people. They will be condemning hundreds of thousands of people to severe hardship and piling the pressure on food banks across the country, which are already stretched to breaking point.

As well as axing the proposed cuts, Trussell is calling on the UK government to bring forward the planned increase to the basic rate of Universal Credit so it comes into full effect from April 2026, rather than April 2029.

Cara Hilton, senior policy manager for Scotland at Trussell, said: “This UK government was elected on a promise of change, and with a commitment to end the need for food banks. If the government goes ahead with these ill-considered and cruel cuts to social security, this promise will not be kept – and instead, they will risk leaving behind a legacy of rising poverty and hunger.

“Tackling fiscal challenges should not be done at the expense of people already facing hunger and hardship. These cuts will force 440,000 people in disabled households into severe hardship and leave them at risk of needing a food bank. We urge the government not to continue down this damaging path.

“We support the plan to reform employment support and help more people into work, where their health allows this and accessible jobs are available, but these proposed cuts will utterly undermine this goal. Slashing support will damage people’s health and reduce their ability to engage in training and work.”

Craig Crosthwaite, manager at North Ayrshire Foodbank, said: “Most days we see people coming to the food bank who have a disability or are caring for someone with a disability in their household.

“Social security payments do not allow people to afford the essentials, and this is amplified when you are also dealing with the extra costs of managing a disability. Life simply costs more for disabled people.  We fear that should these cuts be forced through Parliament, we will see many more people being forced to access our help.”

You can find out how many emergency food parcels were distributed in your area, and write to your MP to express your concerns at these cruel cuts, on the Trussell website: https://campaign.trussell.org.uk/parcels-by-postcode

hunger_and_hardship_final_report (1)Download

UK Government urged to abandon ‘immoral’ disability benefit cuts

Social Justice Secretary Shirley-Anne Somerville has written to UK Work and Pensions Secretary Liz Kendall, calling for an urgent change to the UK Government’s “immoral and reckless” social security reforms.

Ms Somerville welcomed the suggestion by Prime Minister Keir Starmer that cuts to winter fuel payment could be eased, but said this was not enough.

In the letter the Social Justice Secretary said: ‘I was pleased to hear the Prime Minister announce plans to ease the Winter Fuel Payment cuts in Parliament last week.

‘I am also aware of various media reports suggesting that a change in the UK Government’s two-child limit may be announced shortly. I welcome these developments and recognise that it is a step in the right direction to delivering a more robust Social Security system.

‘However, deep concerns remain around the UK government’s damaging social security reforms, including those announced in the ‘Pathways to Work’ Green Paper.

‘Given the speculation on the reversal or partial reversal of policies on Winter Fuel Payment and Two Child Cap, I call on you to urgently scrap these immoral proposals on disabled benefits.

‘These plans will only push more into poverty. It is therefore reckless and totally unacceptable for the UK Government to press ahead, not least due to the expected severity of the impact they will have on all our efforts to end child poverty – completely undermining the work of the UK Child Poverty Taskforce.’ 

Charity welcomes launch of Scottish Pension Age Disability Payment

A Scottish charity has welcomed the launch of the Pension Age Disability Payment. From today, the payment is available across all of Scotland for older people living with a disability or health condition.

Debbie Horne, Scotland Policy and Public Affairs Manager at Independent Age, said: “With the national rollout of the new Pension Age Disability Payment which replaces Attendance Allowance in Scotland, it’s really important that eligible older people receive this support, and everything else, that they’re entitled to.

“Our Older People’s Economic Wellbeing Index Scotland found that one in four (24%) people in later life with a health condition are not aware of disability related social security payments.  

“This is money for people of State Pension age who are disabled, have a long-term health condition, or are terminally ill. It is not means tested.  

“For older people who think they might be eligible, they can find out more from Independent Age’s new Pension Age Disability Payment guide. This is free and has up to date advice on what the entitlement is and how to claim.

“It is available through the Independent Age website or by calling our free helpline on 0800 319 6789 to request a copy. Our helpline and advice team can also advise any older people who is unsure whether or not they could be eligible for the payment. 

“People currently receiving Attendance Allowance do not need to do anything and will be automatically transferred onto Pension Age Disability Payment by Social Security Scotland. They will continue to receive their payment uninterrupted”  

The payment replaces Attendance Allowance in Scotland.

The 150,000 older people in Scotland who receive Attendance Allowance will be automatically transferred onto Pension Age Disability Payment in a phased process.