MSPs are asking for the public to share their views on the support that is currently available for disabled children and young people as they grow into adulthood.
The findings will be considered by the Scottish Parliament’s Education, Children and Young People Committee as part of their scrutiny of a Bill which seeks to introduce more structured support for disabled children and young people in their transition to adulthood.
The Bill has been proposed by Pam Duncan-Glancy MSP, following on from work started by Johann Lamont in the last session of Parliament.
If passed, the Bill would make three main changes to the law:
the Scottish Government would need to have a strategy explaining how they are going to improve opportunities for disabled children and young people
a Scottish Government minister would be placed in charge of improving opportunities for disabled children and young people moving into adulthood
local authorities would need to have plans for each disabled child and young person as they move into adulthood
Sue Webber MSP, Convener of the Education, Children and Young People Committee said: “A young person’s transition to adulthood is a critical stage in their lives and our Committee wants to be sure that the right kind of support is available to help disabled children and young people as they embark on the next chapter of their lives.
“We want to hear the views of disabled children and young people, their parents and their carers on these proposals.
“We’re particularly keen to understand more about the how the support that is currently available is viewed.”
The Committee’s call for views and survey on the Bill opened on 1 September and people can share their views until 27 October 2022.
An inspirational design competition has a new cheerleader after a charity expert was appointed to help drive as many entries as possible.
Highly experienced Marie McQuade will now devote herself to raising awareness of the Blackwood Design Awards, which aim to transform the lives of those who need support to live independently.
The Dragon’s Den style competition has helped uncover a host of innovations to help people with disabilities or age-related conditions – but was put on hold for two years during the pandemic.
Now it is hoped Marie’s appointment will help relaunch the refreshed competition which typically attracts innovation and design breakthroughs from all over the world.
She said: “In Blackwood’s 50th year, it is more important than ever to celebrate and showcase the amazing inventions that have the potential to accelerate the industry and provide significant benefits to peoples’ lives.
“Every year individuals and organisations from around the world send in their thoughtful designs and we are really looking forward to seeing who will submit what and from where.
“This opportunity is hugely exciting and I am really looking forward to organising this unique and highly impactful competition that will see new designs, technologies and adaptations come to life.”
Marie joins Blackwood with over 25 years’ experience in the charity sector, having worked in diverse roles, supporting causes including Victim Support Scotland and the Scottish International Development Alliance.
She previously held a senior role at THINK Consulting Solutions, an International fundraising specialist which has worked with charities all over the world, developing fresh, innovative solutions to boost not for profit funds in a competitive landscape.
She has also supported Third Sector Organisations to grow their insights, income and impact at charities such as Changing Faces UK, Maggie’s Cancer Caring Centres and Mencap, where she gained a wealth of knowledge in fundraising, events and communications.
Colin Foskett, Blackwood’s Head of Innovation, who kickstarted the Design Awards, said: “Marie comes with a tremendous amount of experience and knowledge in the charity and fundraising sector and is perfectly equipped to deliver the Design Awards to the highest standard.
“She has already thrown herself into the jobs at hand and we are both really looking forward to welcoming this year’s wonderful selection of up-and-coming innovators.”
Marie’s work will see her approaching universities, innovation hubs, tech incubators and other organisations with a stake in design, engineering and technology to encourage them to enter the awards.
She will also play an instrumental role in organising the event, including attracting sponsorship and recruiting members of the judging panel for the Dragon’s Den style competition, which will see entries evaluated on their ability transform lives.
Previous winners have included an app that helps make living spaces safer for people with dementia and inventor Grant Douglas’ “spill proof” spoon – the S’up Spoon – designed for those affected by conditions which cause them to shake.
Key categories include Best Collaborative Project, Best New Concept and Best New Aids, Equipment or Accessible Technology.
Groups or individuals can apply for the Blackwood Design Awards which are open to both seasoned professionals and gifted amateurs, meaning that both technologically advanced and those simpler, yet often most successful designs, are equally welcome.
The awards will mark Blackwood’s 50th Anniversary, since the it was founded by Dr Margaret Blackwood, a respected campaigner for improvement to help people with disabilities to live more independently.
Blackwood now operates more than 1500 properties across 29 local authorities, and invests in innovation and technology to help people live life to the full.
The charity has already built two developments of tech-smart ‘Blackwood Homes’ in Glasgow and Dundee which use a “CleverCogs” digital system to make life easier for older people and people with disabilities.
The joy of owning dogs has remained for Lorraine, 61 from Livingston, thanks to a disability beating off-road TGA Breeze mobility scooter nicknamed ‘Daisy’.
Living near Edinburgh, Lorraine is a former support worker for those with additional needs, who owns two characterful Goldendoodles Katie and Sophie. Walking her dogs is a massive part of her life so when she started to have mobility difficulties following cancer treatment side effects, Lorraine worried how Katie and Sophie would get the exercise they needed.
The answer appeared to be a mobility scooter however Lorraine needed one that could cope with going off road in the countryside, especially in the winter. The Murieston Trail right next to her home was a favourite walk that was now not possible especially as severe fatigue was a problem. She was having to conserve energy and couldn’t risk not being able to get home. The search for a scooter with high ground clearance and good suspension led to the TGA Breeze.
Lorraine spent months shielding at home. She lost her freedom which was hard to cope with as she explains: “In 2020 my back garden becomes my world. Not anymore, I have my freedom back and I don’t feel disabled. Why should I? Cancer was a setback, but I’d say not being able to go out is a bigger set back.
“A scooter gives you your life back. With Daisy I can go anywhere, she often comes back covered in mud when we’ve been out. The Scottish term is bogging. It is so important to be able to escape from whatever is in your head. Going out and seeing things around you takes your mind off worrying.
“Being outside, hearing the birds singing, breathing fresh air, it all takes you to a positive place. My scooter makes me feel alive again.
“Before I had to choose whether I went for short walks with my husband around the shops or to take the dogs out. I didn’t have the energy to do both. Now I can save energy on my scooter and still do other things.
“I have more energy reserves. I can go out in the car knowing the dogs have had a good walk. Katie and Sophie got used to walking next to me on my Breeze really quickly, they weren’t bothered at all as it is quiet.
“What does it feel like to drive a Breeze? Well, it’s stress-free independence, accessibility and not getting tired. I can get home without worrying I won’t make it. I couldn’t do this without my scooter. If you also look at it from a safety point of view, I can get back home quickly if needed.”
The TGA Breeze is an 8mph scooter that has been involved with world record attempts and appeared on BBC Top Gear.
It is popular with ramblers who need power and stability to tackle mud, puddles and uneven ground.
This performance gives Lorraine confidence around the shops or in the countryside and tends to surprise most people as she adds: “I see people’s reaction when I’m coming along a woodland trail and they think they’ll need to get out of the way but no, no, no, I can drive around them on the grass no bother.
“Time and again they have been so surprised thinking that I’m going to get stuck, no chance with my Breeze. I love seeing their faces when I do a sharp turn into the undergrowth. They have no idea what this baby can do!
“I think the design of the Breeze is spot on, it ticks so many boxes that other scooters do not. I would add Harry from TGA who supplied the scooter was so good, no hard sell at all. He just left me to make my own decisions, there was never any chasing on the phone.
“So many companies harangue you these days and won’t leave you alone. This always makes me think they know their product is not good. It’s clear TGA have confidence in their products. When buying a scooter, it can be an emotional time for people. Often, they are vulnerable and the last thing they want is a salesman on their back with a high-pressure pitch. I had no phone calls chasing me, TGA have been brilliant.”
The future for Lorraine is looking bright as she is keen to ‘extend her horizons’. She is hoping to get a trailer for her Breeze so she can tow it to their caravan on the coast at Dunbar.
Lorraine is also pro-actively getting barriers and gates adjusted by her local council so fellow scooter owners can access the many picturesque walks around Livingston. This reflects many other initiatives across the UK including Miles with Stiles and Access the Dales – both supported by TGA.
Lorraine concludes: “Getting fresh air is so important. You can do it on a car boot scooter and that’s ok, but with dogs and wanting to go off road you need something more substantial.
“People should never look at having a scooter as a negative, there is no loss of dignity, not at all. Exactly the opposite. It’s all about finding new capabilities and opportunities.”
New report examines ways of strengthening support mechanisms
Researchers have called for Ukraine’s organisations of persons with disabilities (OPD) to have a bigger role in the country’s decision-making processes.
The Edinburgh Napier-led team were finalising their report on the impact of Covid-19 on the country’s almost three million persons with disabilities just as Russia launched its first attacks on its eastern European neighbour.
Their investigation, carried out with partners in Ukraine, documents how the pandemic created many new barriers while also amplifying existing ones.
Covid-19 limited persons with disabilities’ access to healthcare, social services and transport, increased their social isolation and undermined their economic security.
Digital poverty meant many could not access online portals for government departments or online learning, and the study also highlighted concerns about decreasing levels of cooperation from public bodies.
Now war with Russia – in which 15 per cent of the civilian population caught up in the conflict will have a disability – is presenting new and even more complex challenges.
Initial reports suggest persons with disabilities are struggling to access safe zones, medical services or reliable information on top of the other challenges faced by a population under attack.
Principal Investigator Dr Kiril Sharapov, from Edinburgh Napier’s School of Applied Sciences, said: “Organisations of Persons with Disabilities remain one of the last remaining systems of support for the people they have been taking care of within the context of the pandemic and now within the context of this catastrophic war.
“They continue, where and when they can, to provide support to the most vulnerable individuals and their families. Their knowledge and expertise must inform all current and future relief efforts provided by the Government of Ukraine and by the international donors and humanitarian agencies.”
The research report calls for organisations of persons with disabilities to have their unique roles recognised at legislative level within Ukraine, and for the Government to support their activities.
It also recommends that public bodies consult with and give OPDs a say in decision making, and that OPDs should be actively involved in monitoring the quality of social services delivery.
There are almost three million people registered as having a disability in Ukraine, with actual numbers likely to be higher due to the lack of reliable statistics.
Dr Sharapov researched the impact of the pandemic on them in partnership with the National Assembly of People with Disabilities of Ukraine umbrella group and local organisations. The study was funded by the Global Challenges Research Fund and the UK’s Arts and Humanities Research Council.
A total of 108 organisations responded to a survey co-designed by the National Assembly of People with Disabilities of Ukraine, making it the largest to explore the views of the disability movement on the effects of the pandemic. The findings were presented to disability experts and activists who were asked to comment and make recommendations.
The research report says it is “essential” that public authorities in Ukraine at all levels recognise and support OPDs as key actors in ensuring and protecting the rights of people they are caring for.
It also recommends that an up-to-date register of all OPDs is kept, and that the Government cooperate with them in developing a rapid response protocol for circulating information during any future public health emergencies.
New package of support to help thousands of disabled people into work asUK Government ‘builds back fairer’.
15 Jobcentre Plus sites to trial framework to become more autism-friendly.
26,000 work coaches are undergoing accessibility training to improve jobcentre services for disabled people.
Thousands more disabled people are set to benefit from a new package of support designed to help them into the work they want.
Minister for Disabled People, Chloe Smith, has today announced that 15 Jobcentre Plus sites will be testing an autism framework, designed with the National Autistic Society (NAS), to transform the service available to jobseekers on the autism spectrum. The framework pilot will aim to help people with autism find, retain and progress in fulfilling jobs.
This comes as 26,000 work coaches in jobcentres across the country are undergoing specialist accessibility training, delivered in partnership with Microsoft, in a further effort to help more disabled jobseekers secure employment.
The work coaches will look at how they can support disabled jobseekers with tools including immersive readers, magnifiers and automated captions, which will not only improve their daily work but will also help with the completion of job applications and interviews.
One in 100 people are autistic and there are around 700,000 autistic people in the UK, according to the National Autistic Society. Not all autistic people will be able to work, but the charity’s research found that the vast majority want to.
Working age autistic people are often locked out of employment due to a lack of understanding and knowledge from employers and colleagues, and anxiety-inducing environments that can be distressing. It is hoped that the framework will help to break down these barriers and see more autistic people in jobs they love.
The Minister for Disabled People Chloe Smith said: “Everyone deserves an equal opportunity to find a job they love and to progress in their career, but we know we must do more to help people with autism.
“By testing this autism framework and offering new specialist training to our jobcentre staff we are helping to deliver more employment opportunities for those who would otherwise feel locked out, as we work towards seeing one million more disabled people in work by 2027.”
The framework explores how best to support autistic people into employment, including ensuring jobcentre appointments with autistic ‘customers’ take place in the right environment and educating local employers in the additional requirements of autistic workers.
For example, many autistic people become distressed in busy, bright or noisy environments. As part of the pilot, jobcentre staff will therefore be asked to carry out appointments with customers triggered in this way in quieter rooms, with more appropriate lighting.
Work coaches will also be able to help providers and employers in the local communities understand the additional needs required by autistic employees, which should in turn create more opportunities for autistic jobseekers in settings where they can thrive.
If successful, the framework could be rolled out to more jobcentres in England, Scotland and Wales, benefitting thousands of people with autism.
Christine Flintoft-Smith, Head of Autism Accreditation at the National Autistic Society, said: “We are pleased to be working in partnership with the DWP to make sure autistic people get the support they need delivered in the way they need it, when they visit Jobcentres. We both want to work to close the autism employment gap and make sure autistic people are getting the help they need to get jobs.
“Our framework of best practice has been developed with input from autistic people, specifically for Jobcentres. We want all Jobcentre staff to understand autism, be able to think about their practice and make the necessary changes to the support and environment that autistic people need.
“We look forward to our continued work with the team at DWP to get jobcentres working better for autistic people, and to get more autistic people in the jobs that they want and deserve.”
Hector Minto, Lead Accessibility Evangelist (Eh? – Ed.) at Microsoft, said: “Technology has the potential to greatly empower disabled people in the workplace, but awareness is often low, people don’t know that there is support built into modern digital experiences.
“In creating this training with DWP, built on our own internal training, we found there is terrific passion and energy in this workforce to share their knowledge with jobseekers. I am confident that it will drive real impact and help us tackle a real challenge in society.”
Funding from Swim England has enabled Edinburgh Leisure’s Royal Commonwealth Pool to install ‘a Poolpod’, a submersible lift, creating inclusive swimming environments for people with long-term health conditions, disabilities and rehabilitation needs.
The London Marathon Charitable Trust (LMCT) provided a £750,000 grant in 2020 to allow Swim England and its partners, the Activity Alliance, Community Leisure UK and GLL – to enhance swimming provisions at selected venues across the UK. The Royal Commonwealth Pool in Edinburgh is the only Scottish recipient, out of 20 sites across the UK, to receive the funding.
With one in five people in our population disabled or living with a long-term health condition, ‘the Poolpod’ gives dignified and independent access to the water for swimmers.
Lynne Bauba, Manager at Edinburgh Leisure explained: “The Poolpod was installed just before the lockdown in March 2020, and with the reduced capacity in our pool when we reopened due to the pandemic, we haven’t been able to shout about the Poolpod until now.
“However, regular customers with long-term health conditions, disabilities and rehabilitation needs, have been delighted with this new facility.”
One such customer, Alison Malcolm, who became paralysed from the waist down aged 50, explains how she has benefitted from using the new Poolpod and why she loves swimming.
“When I got back in the pool for the first time, my body confidence was low, and I was concerned I wouldn’t float. It sounds daft but after five months in bed, it took a long time for my body to reset.
“However, the staff were great about encouraging me to swim. I’ve never met a member of staff who didn’t want to help.
“Swimming is one of the most accessible ways for people with disabilities to incorporate physical activity into their lives. One of the things I like most about it is that once you’re in the water, you’re the same as everyone else. It has been a great way for me to get active again and using the Poolpod to get in and out of the pool has made the whole experience more enjoyable.
“Now I tend to swim 24 lengths at the Commie three mornings a week. I enjoy the 50m lengths because I can get in the zone and give myself a cardio workout without putting too much strain on my body.”
Edinburgh Leisure boasts 18 swimming pools across the city, including their stunning Victorian swimming baths and pools within the secondary schools.
They offer a variety of pool-based activities to suit all abilities and while the Royal Commonwealth Pool is the only one to boast a Poolpod, most of them have hoists, which the leisure attendants are trained on, to assist people less able to access the pools.
Sir Rodney Walker, Chairperson of The London Marathon Charitable Trust, said: “The Trust funds work which challenges inequality of access to physical activity. We want to help create a society in which everyone is physically active, contributing to their health and wellbeing.
“We know that people who benefit most from aquatic activity – including disabled people, people with long-term health conditions, older people, people with mobility issues and pregnant women – often face the biggest barriers to accessing a swimming pool.”
This exciting initiative is making swimming pools across the UK more accessible and ensuring a more inclusive customer experience for all.
The substantial grant from the LMCT has boosted Swim England’s Water Wellbeing model, which aims to help leisure centres remove barriers to accessing the water.
Water Wellbeing’s ‘whole facility’ approach encourages centres to understand and improve the customer experience, through a wide range of resources available on the Swim England website.
A new, pilot mechanical thrombectomy service for stroke patients in the East of Scotland has been launched today.
The pilot will be based at the Royal Infirmary of Edinburgh and will help pave the way for an eventual national service set to benefit hundreds of people who have been struck with a life-threatening stroke.
John Watson, Associate Director of the Stroke Association in Scotland said: “This service is long awaited, overdue, but very welcome indeed.
“Thrombectomy is a remarkable procedure. It involves inserting a long tube into an artery in the leg, which is then fed through the body to reach the blood clot in the brain. The blood clot is then captured in a mesh and pulled out.
“The removal of the clot allows blood flow to resume and oxygen to reach the brain, halting the damaging effects of the stroke. These are blood clots which are too big to be broken down by clot-busting drugs and are usually associated with severe strokes and the worst outcomes for patients.
“Around one in every three people who receive a thrombectomy following their stroke will be less disabled as a result. Around one in five will be able to function completely independently afterwards.
“Thrombectomy has the power to save lives and reduce disability for around one in every ten people who have a stroke.
“The Edinburgh-based pilot is an important milestone on the road to a national 24/7 thrombectomy service for Scotland. A pilot service for the North of Scotland based in Dundee, has been underway since November last year, and we look forward to a third thrombectomy centre in Glasgow coming online next year.”
In addition to improving quality of life, thrombectomy generates substantial savings for the NHS by reducing the need for other interventions or care in the future. Research indicates that, on average, every thrombectomy procedure saves the NHS £47, 000 over a 5-year period.
A stroke is a brain attack. The effects can be devastating. Stroke is a leading cause of severe adult disability. Almost two thirds of survivors leave hospital with a disability. Many have problems with speech and communication, thinking and vision. It can also affect peoples’ emotions and personality.
Alison Maclean, 72, from Dundee had her stroke just before lockdown in January 2020. It was a massive stroke that could have taken away her independence, but following a thrombectomy, she regained full function and has gone back to the life she had before her stroke, almost unchanged.
Angela said: “I am back to doing all the things I did before my stroke: seeing friends and family, reading, watching telly, going on my exercise bike and for walks.”
See foot of article for Angela’s story
John continued: “We want all eligible patients to have access to this game-changing treatment, as quickly as possible. But thrombectomy cannot deliver in isolation. It needs to be part of a new, re-shaped service covering the whole pathway from 999 call, to hospital treatment, recovery and rehabilitation.
“The Scottish Government recognises the need for stroke improvements, which is extremely encouraging. It already has a draft framework of what its own advisors, stroke clinicians and the wider stroke community including the Stroke Association want to see. This is the result of good work by all involved.
“We look forward to seeing the final report and recommendations at the end of the year. But of course, it is the delivery of change and improvement that really matters so we look forward even more, to a commitment early next year to publish a plan to deliver on it.”
Alison Maclean’s stroke story of receiving a thrombectomy
Alison Maclean, 72, from Dundee had her stroke during lockdown in January 2021. It was a massive stroke and she received a thrombectomy resulting in enormous success. The stroke could otherwise have left Alison unable to talk or walk.
I had an accidental fall on 21 Jan 2021. I rang NHS24 in complete agony. Two dayslater I was in hospital getting it checked out.
I had a fractured femur which was put in a plaster-cast and an operation was planned on 26th Jan 2021. On the morning of my operation, I suddenly developed left sided weakness, vision difficulties and problems speaking.
The doctor in the orthopaedic ward called for help. I don’t remember very much other than being asked to lift my arm and lift my leg and answer questions.
I thought I was ok, but the next thing I remember is the doctor telling me that he thought I might have had a stroke. I believe I was rushed in to a room to get a brain scan following which I underwent a thrombectomy. Apparently some blood had leaked from my femur bone causing a clot thereafter the stroke.
The next thing I remember was being in ICU. A nurse came up to me and told me that I’d had a stroke and had just received a procedure to remove a blood clot to help with my recovery.
I was quite relaxed about being told about the fact that I’d had a stroke, but my son called me and he was very distressed about it. I guess he had had to deal with the stress of seeing his Mum in a life-threatening situation making decisions on my behalf. I was unaware of how ill I was at the time, so there are big gaps in my recollection of what happened.
I felt fine following the procedure and apart from my hand shaking uncontrollably for the first day, everything else seemed normal. I was discharged on 2 February 2021. I feel great, just the same and I am back to doing all the things I did before my stroke: seeing friends and family, reading, watching telly, going on my exercise bike and for walks.
Lockdown has been absolutely fine. I’ve been in a bubble, so have had some company and when lockdown eased briefly last summer, I met a few friends and we’d have a cup of tea and biscuit together.
I am very positive about thrombectomy and the fact it probably saved my life. It should be available to everyone who needs it. My life is back to normal and that may never have happened if I had not received a thrombectomy.
Free and informative event available online for a limited time
The first ever online version of The Big Event saw 3,200 disabled people, carers and their friends and families tune in to learn about worry-free motoring with the Motability Scheme. The online event, which took place on 6-7 August 2021, was free to join and welcomed everyone from the comfort of their own homes.
For anyone who missed the live days, The Big Event content is still available online until 30 September 2021, simply visit: thebigevent.motability.co.uk.
The online event included a packed agenda of expert Speaker Sessions, providing helpful information and answering questions live on air. Hosted by Scheme customer and transport and travel consultant Helen Dolphin, these sessions proved extremely popular with over 5,500 views.
Topics discussed included electric vehicles, adaptations, Blue Badge fraud, challenges in the UK car market, WAVs, powered wheelchairs and scooters and the launch of the 2021 Euan’s Guide Access Survey. These informative and fun Speaker Sessions are available to watch on demand and can be found in the virtual Auditorium at The Big Event online.
The event also showcased the UK’s largest online display of vehicles available on the Motability Scheme. Visitors were able to interact with exhibitors including Scheme partners such as Kwik Fit, RSA and RAC, as well as manufacturers who displayed popular makes and models available to lease through the Scheme.
This included 27 car manufacturers, 24 Wheelchair Accessible Vehicles and adaptation suppliers and 12 powered wheelchair and scooter manufacturers. Visitors were able to browse plenty of useful documents and videos, as well as connect with exhibitors through live chat. All this valuable information (apart from the live chat function) is still available to explore until the event officially closes at the end of September.
Louise Vranic, The Big Event organiser, Motability Operations Ltd, said:“It was great that so many visitors found The Big Event online useful and informative, and we were so pleased by the amount of content and support provided by exhibitors and Scheme partners.
“We knew it would be hard to replace our physical events, where visitors can explore vehicles first-hand and test drive them, but we hope this online event has helped to bridge the gap, as well as attracting visitors who have previously been unable to attend our physical events.
“We are looking forward to 2022, where we will be back with a mixture of physical and online events, so we can continue to bring our One Big Day programme to as many people as possible.”
TUC publishes first UK major report into sexual harassment of disabled women at work
Most disabled women surveyed told the TUC they have been sexually harassed at work – and 1 in 8 of those say they left their jobs because of this
TUC calls for a new duty on employers to protect all their staff from sexual harassment at work
Around 7 in 10 (68%) disabled women surveyed about sexual harassment say they have been sexually harassed at work, according to a new poll published by the TUC.
And younger disabled women aged 18 to 34 are even more likely to have experienced sexual harassment, with almost 8 out of 10 (78%) reporting being harassed at work.
Sexual harassment
A ground-breaking TUC study on sexual harassment published in 2016 found that more than half (52%) of women had experienced sexual harassment in the workplace. And in a further TUC survey in 2019, nearly 7 in 10 (68%) lesbian, gay, bisexual and trans people reported being sexually harassed at work
Sexual harassment at work can take many forms, from suggestive remarks, jokes about a colleague’s sex life, circulating pornography, to inappropriate touching, hugging or kissing, demands for sexual favours, and even assault and rape.
This new TUC survey – which is the first major study into the sexual harassment of disabled women at work in Great Britain, and was carried out by YouGov – found that of those surveyed:
Around 2 in 5 (38%) have experienced unwelcome sexual advances at work.
More than 1 in 3 (36%) say they have experienced unwanted touching.
Almost 1 in 5 (18%) experienced sexual assault, such as unwanted sexual touching.
And 1 in 25 (4%) have experienced a serious sexual assault or rape at work.
Reporting
Two-thirds (67%) of disabled women who experienced sexual harassment at work told the TUC that they did not report the harassment to their boss the most recent time it happened. Of these, the most common reason was that they did not believe they would be taken seriously (39%).
Some said they were worried it would have a negative impact on their career or work relationships (30%). Other reasons included not thinking they would be believed (13%) or thinking they would be blamed if they reported the incident (11%).
And unfortunately, of those who did report the most recent instance of sexual harassment, more than half (53%) said it was not dealt with satisfactorily.
Impact
Disabled women told the TUC that sexual harassment had a big effect on their lives.
Around 1 in 3 (34%) said their experiences had a negative impact on their mental health. More than 1 in 5 (21%) said it negatively affected their relationships with colleagues. And it caused 1 in 8 (12%) to leave their job or employer entirely.
Disabled women face significant barriers getting into work and to getting paid the same as non-disabled workers, says the TUC.
TUC research in October 2020 found that disabled women earned 36% less than non-disabled men. And the analysis found that the unemployment gap for disabled women, when compared to non-disabled men was 32.6 percentage points.
TUC General Secretary Frances O’Grady said: “No one should face sexual harassment at work. But seven in ten disabled women say they have been sexually harassed by a colleague or a customer while at work.
“Four years on from the explosion of #MeToo on a global scale, employers still aren’t doing enough to make sure women are safe at work. It’s time for every employer to take responsibility for protecting their staff from sexual harassment.
“Ministers must change the law to make employers protect workers from sexual harassment specifically, and from all forms of harassment by customers and clients.
“Anyone worried about sexual harassment at work should get in touch with their union.”
Ministers must act
The TUC is calling on the government to take a range of actions including:
Introduce a new duty to prevent sexual harassment, putting an enforceable legal requirement on all employers to protect their workers from harassment.
Strengthen legislation to tackle third-party harassment in the upcoming employment bill.
Increase funding for the Equality and Human Rights Commission so it can enforce the new duty to prevent sexual harassment.
Introduce a statutory code of practice on sexual harassment and harassment at work, setting out the steps that employers should take to prevent and respond to sexual harassment, and what can be considered in evidence when determining whether the duty has been breached.
The TUC has called for long Covid to be urgently recognised as a disability and Covid-19 as an occupational disease, to give workers access to legal protections and compensation.
The call comes as the TUC publishes an in-depth report on workers’ experiences of long Covid during the pandemic.
More than 3,500 workers responded to a TUC survey on the impact of long Covid on people’s daily working lives.
The survey reveals that, of those surveyed:
Nearly 3 in 10 (29 per cent) have experienced symptoms lasting longer than a year.
More than 9 in 10 (95 per cent) have been left with ongoing symptoms.
A clear majority had experienced side effects including brain fog (72 per cent), shortness of breath (70 per cent), difficulty concentrating (62 per cent) and memory problems (54 per cent).
Over half (52 per cent) had experienced some form of discrimination or disadvantage due to their condition.
The report highlights how frontline workers have been disproportionately affected by long Covid.
Over three-quarters (79 per cent) of those who responded to the TUC’s survey identify themselves as key workers, with the majority working in either education or health and social care.
More than two-thirds (68 per cent) of respondents were women.
Long Covid in the workplace
The report reveals the extent of discrimination in the workplace towards those with long Covid.
Over half (52 per cent) of respondents said they had experienced some form of discrimination or disadvantage due to their condition.
Workers told the TUC how they were faced with disbelief and suspicion when they disclosed their symptoms:
Around a fifth (19 per cent) said their employer had questioned the impact of their symptoms.
One in eight (13 per cent) faced questions from their employer about whether they had long Covid at all.
One in 20 respondents (5 per cent) said they had been forced out of their jobs altogether because they had long Covid.
Respondents described the difficulties that they faced trying to work while experiencing a range of long Covid symptoms.
One person – who contracted Covid-19 at work – said that when their employer went ahead with an international event in the first wave of the pandemic: “I was still expected to work long hours, handle stressful situations in impossible timeframes, find and fill in forms (which I struggled to do because of cognitive issues), and spend hours on Zoom calls when I struggled to talk and breathe, resulting in extreme chest pain, shortness of breath, exhaustion and severe symptom relapses.”
Respondents were also concerned about what the future might hold for them at work given the amount of sick leave they had been forced to take due to their long Covid symptoms.
Around one in six respondents (18 per cent) said the amount of sick leave they had taken had triggered absence management or HR processes.
New rights and protections for those with long Covid
The TUC is calling for the government to urgently recognise long Covid as a disability under the Equality Act.
The Equality Act 2010 defines disability as a “physical or mental impairment…[that] has a substantial and long-term adverse effect on [their] ability to carry out normal day-to-day activities”. Government guidance makes clear that ‘long-term’ means 12 months or more.
The TUC says that many who have long Covid already meet this criteria and should therefore be protected under the law rather than forced to go through the stress of employment tribunals.
Extending Equality Act 2010 protections so they cover workers with long Covid would ensure employers cannot legally discriminate against them. It would also put a duty on employers to make reasonable adjustments that remove, reduce or prevent any disadvantages workers with long Covid face, as for any other enduring condition or disability.
In addition, the union body is calling on ministers to recognise Covid-19 as an occupational disease – entitling employees and their dependents to protection and compensation if they contracted the virus while working.
TUC General Secretary Frances O’Grady said: “Many of the workers who have carried us through the pandemic are now living with debilitating symptoms of long Covid. And we’re beginning to hear troubling stories of a massive wave of discrimination against people with long Covid.
“It’s time to recognise this condition properly – and make sure workers who are living with long Covid get the support they need to do their jobs.
“Long Covid must be recognised as a disability. That would mean workers are protected by the Equality Act, and would have a right to get reasonable adjustments at work.
“And Covid-19 should be designated as an occupational disease. That would allow workers who contracted Covid-19 at work and are living with the consequences to claim the compensation they are due.
“Employers must also act. They should make sure they make reasonable adjustments for workers with long Covid, and complete specific risk assessments to make sure workers with long Covid are safe at work.”
Lesley Macniven, Chair of the Long Covid Support Group, who worked with the TUC on its report, said: “Even those with ‘mild’ Covid can suffer daily with fluctuating symptoms, exhausted and alone. Promises we’ll ‘just get better’ have been proved otherwise.
“A year on we need legally enforceable guidance for employers and government – informed by unions, occupational health and patient groups with significant lived experience managing long Covid.
“Patients need time to convalesce, then recuperate through a very gradual, flexible phased return to work, over months, to achieve a sustainable return.
“Long Covid is disabling young, previously healthy workers. This key step is needed to take the effects of long Covid seriously, enable rehabilitation and protect dedicated workers from discrimination due to poor understanding of the condition.”
