Brain tumour patients and bereaved families call on Scottish Government to increase innovation investment and access to clinical trials 

Brain tumour patients and family members who have lost loved ones gathered at the Scottish Brain Tumour Research Centre of Excellence, a game-changing collaboration with Beatson Cancer Charity, in Edinburgh to learn more about the world-class research taking place there and call on the Scottish Government to increase investment in and widen access to clinical trials.  

This urgent call comes ahead of the Scottish Parliament Cross Party Group (CPG) on Brain Tumours meeting today (Tuesday 25 November), convened by Brain Tumour Research. Attendees, including Convener Beatrice Wishart MSP and MSP Finlay Carson, will hear about the latest clinical innovations in the field, and about inequitable access to genomic testing. 

Whole genome sequencing (WGS) of brain tumour tissue reveals powerful information about the underlying biology driving tumour growth and helps to inform what drugs could be used to target specific cancer-causing pathways. This information unlocks access to clinical trials based on cancer biology rather than location in the body. Without it, the pool of trials that patients can be part of shrinks.  

In Scotland, WGS is not routinely offered through the NHS and access is largely limited to research studies. The lack of routine testing means patients are not accessing treatment options based on the biology of their individual tumour when needed. It also means that patients won’t be eligible for more personalised treatments such as immunotherapy that may become available in the coming years.  

Among the families calling for more action is Nadia Majid, from Airdrie, who lost her four-year-old son Rayhan to a brain tumour. On 13 December 2017, an MRI scan revealed that little Rayhan had a high-grade medulloblastoma brain tumour.  

Two days later, Rayhan underwent a 10-hour operation. Surgeons removed most of the tumour, but not all, as it was touching his brainstem. Despite three further surgeries and six weeks of radiotherapy, Rayhan tragically died just four months after diagnosis, shortly after starting chemotherapy.   

“You think that with medicine today, there would be effective treatments and even a cure,” Nadia said. “But shockingly, brain tumours kill more children and adults under the age of 40 than any other cancer.

“Added to this, just 1% of the national spend on cancer research has been allocated to this devastating disease since records began in 2002. It shouldn’t be left to charities to fund research.

“We can’t allow Scottish families to be left behind in the search for more effective, kinder treatments and ultimately a cure.”

Brain Tumour Research Patron Theo Burrell will join supporters at the CPG this week. Theo is supporting our active campaigning on the need for greater access to, and patient-led uptake in clinical trials.  

Theo Burrell, Brain Tumour Research Patron and glioblastoma patient, said: “Being diagnosed with a brain tumour is devastating enough, without finding out that patients in Scotland are being left behind in the hunt for new treatments due to a lack of routine testing.

“I am working with Brain Tumour Research – the Secretariat of the Brain Tumours Cross Party Group in the Scottish Parliament – to make it clear to the Scottish Government that 100% of brain tumour patients should be offered genome sequencing. The technology is there – let’s use it to stop this injustice.” 

Two thirds of Scottish hospices making cuts within the next year

New figures from Hospice UK reveal that two thirds of Scottish hospices either have already made cuts or are planning to make cuts within the next year. 

Hospice UK says this reflects severe and unsustainable financial pressures across the hospice sector in Scotland at a time when demand for palliative care is at an all-time high. Hospices have had to make redundancies to both clinical and back-office staff, cut beds and reduce vital community services.

They are struggling to keep pace with rising costs, leaving people at risk of missing out on vital care at the end of life. 

Helen Malo, Senior Policy and Public Affairs Manager for Scotland at Hospice UK said: “Hospices are an essential part of Scotland’s health and care system, easing pressure on the NHS by helping people stay out of hospital and receive expert care in their own communities. These are the services that should be growing to meet rising demand. 

“But years of underfunding have left them stretched to breaking point, with many now being forced to cut services at a time when they’re needed more than ever. Without urgent action, more families will face the end of life without the expert care and compassion they deserve.” 

The figures come as MPs debate amendments to the assisted dying bill today (Tuesday 25 November) including Jackie Baillie’s amendments to assess and mitigate the impact of the Bill on palliative care and create a code of practice for palliative care providers.

These amendments are vital to support hospices and the palliative care sector to be robustly prepared should the Bill become law and to ensure assisted dying is not introduced at the expense of existing palliative and end of life care services. 

Helen Malo said: “Hospice UK has no collective view on whether the law should change on assisted dying, yet we feel it would be a moral and practical failure if a single person in future felt compelled to seek an assisted death due to a lack of available palliative care. Every person in Scotland should be able to access high-quality care and support at the end of life, wherever they live.” 

With the Scottish Budget approaching, Hospice UK is urging the Scottish Government to include dedicated funding for hospices in the 2026/27 budget to protect vital care and support. 

Looking ahead to the Holyrood elections, we’re also calling on the next Scottish Government to make palliative and hospice care a national priority and commit to a long-term plan to reform and invest in palliative and end of life care. 

Jackie Stone, CEO, St Columba’s Hospice Care, said: “Demand for hospice care is rising year after year, yet the funding we rely on continues to fall behind. Hospices are being asked to deliver more complex care for more people, but with resources that are already stretched to breaking point. That gap is simply not sustainable. 

 “Hospice care is not optional; it is a vital part of Scotland’s healthcare system. We need the Scottish Government to recognise the essential role hospices play and to commit to fair, sustainable funding, so that every family can rely on the care and compassion they deserve when it matters most.” 

Jacki Smart, Chair of the Scottish Hospice Leadership Group, said: “Without secure, long-term funding, hospices across Scotland are facing devastating choices – cutting back services, reducing staff, or even turning patients away for the first time. These hospices care for thousands of people every year, offering comfort and dignity at life’s most difficult moments. 

“If funding falls short, families will lose vital support, and pressure on the NHS will grow. Hospices are a lifeline for communities, and we need urgent action to protect them.” 

Hospice UK says that with the right investment, hospices stand ready to help the Scottish Government deliver its long-term ambition to shift more care into communities, providing expert, person-centred care closer to home. 

Police E-Bike crackdown sees bikes seized and 13 men charged

POLICE Officers in Edinburgh have seized 13 e-bikes following complaints from residents about anti-social behaviour.

The South West Community Policing Team carried out the initiative between 20th and 23rd November in the areas of Fountain Park, Dundee Street and Morrison Road.

Thirteen males aged between 18 and 45 were charged with road traffic offences, with offences including no insurance, no licence and no helmets. Reports will be submitted to the Procurator Fiscal.

PC Bob Galbraith said: “We are committed to ensuring public safety following the concerns raised by residents regarding anti-social behaviour involving e-bike riders, particularity incidents of riding in pavements, travelling at excessive speed and causing alarm or inconvenience.

“We continue to encourage residents to report any incidents so we can respond. Anyone with any concerns should contact Police Scotland on 101. We worked closely with HM Immigration officers during the initiative.”

#SWCPT

#CommunityPolicing

RESISTANCE: North Edinburgh Fights Back

NORTH EDINBURGH ACTIVISTS GO TO TOWN

NORTH Edinburgh community activists are taking their message to town this afternoon with two events taking place at art galleries in the city centre.

The events have been built around artist and filmmaker Steve McQueen’s RESISTANCE photo exhibition, which runs at the Modern 2 gallery on Belford Road until 4th January.

First up, community stalwarts Anna Hutchison and Willie Black will reflect on campaigns past and present in a panel discussion in the National Gallery at 12.45.

With so many years of campaigning experience Anna and Willie have a host of stories to share and, having known the pair for the best part of thirty years, I’ll be there to try to keep the event running to time!

The free event is sold out, but you can still register to watch online.

Later in the afternoon, two North Edinburgh groups have been working together on an ambitious project that encapsulates North Edinburgh’s spirit of resistance.

The result of the collaboration is the Solidarity Wins: Creative Resistance in North Edinburgh exhibition, which opens at The Portrait Gallery on Queen Street from 2pm today (details below).

It promises to be very good and it’s free – don’t miss it!

The details of today’s events:

RESISTANCE|NORTH EDINBURGH PANEL DISCUSSION

Free – Booking essential SOLD OUT

Book tickets

PICTURE: Craig McLean, Outside Drylaw Police station, community campaign GRASP protesting against Police harassment and violence, 2001

The Resistance exhibition chronicles 100 years of protest across Britain from 1903–2003. Using the exhibition as a starting point, activists Willie Black and Anna Hutchison alongside chair Dave Pickering, editor of the North Edinburgh News and Information Worker at Granton Information Centre, discuss North Edinburgh community activism, campaigns and actions, and their relationship and solidarity with local, national and international protests and change.

All tickets for the live event have been snapped up, but you can watch the discussion online in a streamed version of the live event.

Ticketholders will be sent a joining link before the event to either watch live or view the recording later. 

SOLIDARITY WINS: CREATIVE RESISTANCE in NORTH EDINBURGH

Solidarity Wins: Creative Resistance in North Edinburgh Exhibition Launch

2pm – 4pm

National Galleries of Scotland, The Portrait Gallery, 1 Queen Street, EH2 1J

Celebration with food, song and creative activities in the Contemporary Space of the Portrait Gallery. Art works, archive films and research material gathered by Art for Grown Ups and Royston Wardieburn Arts & Culture Group.

Join us for an afternoon of creativity, community and conversation celebrating North Edinburgh’s spirit of resistance.

As part of the Resistance exhibition, the National Galleries of Scotland’s Community Development programme has been working with North Edinburgh groups to create responsive work inspired by the area’s long history of community resistance.

Workshops have included song writing, poetry, photo-montage and exploring photographer Craig MacLean’s back catalogue of North Edinburgh activism, all of which will result in an riso-graph exhibition at the Portrait gallery in November.

As well as this North Edinburgh Arts worked with Local Cinema to programme films as part of their ‘Local Resistance’ programme.

Each screening event included a creative element, one of which included the Resistance choir performing their collaboratively penned song ‘Solidarity Wins: A Song for Greater Pilton‘, along with some well known songs on power of solidarity and friendship.

Thanks to song writing facilitator and choir leader Penny Stone and Tinderbox Jed Milroy and artists Sam Rutherford, Jj Fadaka and Megan Rudden, and all those involved so far!

The programme is a partnership with North Edinburgh Arts Art 4 Grown Ups and Royston Wardieburn Community Centre’s Arts and Culture Group.

IMAGE (above): Collaborative piece by Art 4 Grown Ups members, framed by Muirhouse anti-racism campaign image, 1991.

If anyone is free 2 – 4pm today, it’s the launch of ‘Solidarity Wins: Creative Resistance in North Edinburgh‘ exhibition at the Portrait Gallery, which has been a collaboration between North Edinburgh Arts’ Art 4 Grown Ups project and Royston Wardieburn Community Centre’s Arts and Culture Group (writes HOLLY YEOMAN).

Together they have reflected and responded to North Edinburgh activism and campaigns over the years. There is a community lunch catered by Empty Kitchens, Full Hearts and we will be singing our anthem ‘Solidarity Wins: A Song for Greater Pilton‘ at around 3pm-ish(!)

The exhibition will run till April, and we welcome community groups who might want to visit. If interested please email hyeoman@nationalgalleries.org

Holly Yeoman

Theatre in Schools Scotland welcomes local MP to performance at James Gillespie’s Primary School

Theatre in Schools Scotland (TiSS), National Theatre of Scotland and Imaginate’s schools touring project, was delighted to welcome Ian Murray, MP for Edinburgh South, to its final school performance of 2025, at James Gillespie’s Primary School in Edinburgh.

TiSS was at James Gillepsie’s Primary School with three performances of A Home for Hamish, by Just Us, presented by Scottish Theatre Producers.

Created and performed by Deaf Dance Artist, Clare Adam and Autistic Dance Artist, Lesley Howard (Just Us), A Home for Hamish is a colourful, immersive, interactive adventure playfully merging dance and British Sign Language and is made for younger audiences. 

Across a two day visit to James Gillespie’s Primary School over 170 pupils from Nursery through to P3 enjoyed the performances in the school hall.

Following the final performance Ian Murray MP was joined by performers Clare Adam and Lesley Howard, representatives from National Theatre of Scotland, Imaginate and Scottish Theatre Producers along with pupils from the school to fly paper aeroplanes in the school hall.

Ian Murray MP for Edinburgh South said: “It was delightful to see the young people completely captivated by, and participating in, the performance.

“The performers were utterly superb. The impact of the school’s programme was encapsulated in the questions from their audience at the end.

“The interest in British Sign Language, the challenge of the story, and the “can we play more with you” were all testament to the power of the show. Well done to all involved.”

Ben Horsburgh, Head Teacher, James Gillespie’s Primary School said: “We were delighted to welcome Theatre in Schools Scotland to James Gillespie’s Primary School. A Home for Hamish was a truly memorable experience for our younger learners.

“It brought theatre right into the heart of the school and gave the children a chance to engage with themes of belonging and community in a fun, imaginative way.

“Opportunities like this enrich our curriculum and inspire our young people to see themselves as part of Scotland’s vibrant cultural story.”

Belinda McElhinney, Chief Executive, Imaginate said: “It was lovely to watch the children fully absorbed into the world of Hamish. The performers beautifully integrated British Sign Language into the work and kept the children focused on their every move. 

“The excited response from the children encapsulates for me the importance of bringing performance into schools as a key step to ensuring every child accesses their right to culture.”

Liam Sinclair, Executive Director and Joint CEO, National Theatre of Scotland, said: “It was a delightful experience watching the inspiring A Home for Hamish at James Gillespie’s Primary School, Edinburgh and being part of such an engaged and enthused audience. We appreciated Ian Murray MP attending and sharing this occasion with us.

“TiSS is a vital project for National Theatre of Scotland, enabling children across Scotland to benefit from the joy and enrichment that live performance can bring, and we are looking forward to celebrating the Theatre in Schools Scotland 10th year anniversary in 2026”

The performances at James Gillespie’s Primary School concluded a busy autumn term for the Theatre in Schools Scotland project which tours inspiring, live theatre and dance performances to primary schools across Scotland. A Home for Hamish toured to schools from Shetland to Slamannan and will be back on the road with TiSS in March 2026.

Next year will mark ten years of touring world class theatre and dance directly into schools across the country. To celebrate a decade of creativity every Theatre in Schools Scotland performance will be free of charge for participating schools from August 2026 to June 2027, as part of a special TiSS at 10 anniversary programme. Visit the Theatre in Schools Scotland website for more info.

The Botanist is Gifting Gig Tickets, Bar Tabs, Unlimited Kebabs, Champagne and even a Getaway

Move over Mariah, The Botanist has rewritten the soundtrack to Christmas with its own take on 12 Days of Christmas!

Think glasses clinking, ladies dancing, kebabs swinging, bands playing and cocktails shaking – it’s the ultimate Christmas packed with the gifts you actually want.

But the fun doesn’t stop at the music – to celebrate the season of giving, The Botanist is launching a huge social media giveaway in a countdown to Christmas, with prizes themed to each of the 12 days.  

Guests can expect everything from gig tickets and champagne to big bar tabs, date nights, a year’s worth of hanging kebabs (yes, really) and even a mini break up for grabs. The giveaways will start from Wednesday 19th November and happen every few days in the lead up to Christmas, with all 12 prizes being won by Christmas Eve.

Those feeling lucky should keep an eye on The Botanist’s Instagram page, where the remixed 12 Days of Christmas song and video will launch, each day to find out what’s up for grabs and how they can enter. 

And of course, it wouldn’t be winter at The Botanist without their Famous Hanging Kebabs and there’s a new festive addition to the line-up, the Christmas Dinner Hanging Kebab, stacked with roast turkey, pork and sage stuffing and pigs in blankets in a cranberry glaze, served with all the trimmings including maple roasted carrots, braised red cabbage, garlic & herb roast potatoes and Brussels sprouts, and finished with a jug of rich gravy to pour over. 

We all know Christmas is the time to treat ourselves, and The Botanist’s festive take on its signature sharing cookie dough is the ultimate indulgence. Those with a sweet tooth can savour a giant chocolate orange cookie dough served with honeycomb pieces, mini mince pies, ice cream coconut snowmen and Cointreau chocolate orange sauce (plus two spoons to dig in!) 

Behind the bar, the team has been busy working on this year’s limited-edition Christmas cocktails. Let nostalgia take over with the “It’s Mine” Old Fashioned – Maker’s Mark Bourbon infused with orange and stirred down with indulgent chocolate – it’s a boozy tribute to a festive favourite.

The Partridge in a Pear Tree, a nod to The Botanist’s 12 Days of Christmas campaign, featuring Absolut Vanilia Vodka shaken with pear, cinnamon, and a splash of lemon juice and topped with prosecco, is set to be your new favourite festive tipple! 

With imaginative and festive twists on The Botanist’s well-loved signature dishes, all created in house from scratch, this is the food and drink to celebrate over as party season gets underway! 

And that’s not all, the halls are being decked with larger-than-life Christmas trees, giant Christmas presents and golden pears for a photo backdrop worthy of a Christmas card!

The Botanist’s homegrown live musicians are ready to keep the festive cheer wild, playing live throughout the November and December as guests drinks and dine.  

The Botanist’s Christmas menu is available now. To find your nearest restaurant and book your table visit https://thebotanist.uk.com. 

Arabic – English language exchange cafe at Muirhouse Library

STARTS SATURDAY 13 DECEMBER from 11am – 12.30pm

We’re starting an Arabic/English language exchange cafe at Muirhouse Library!

Every other Saturday, starting on Saturday 13th December.

We will provide tea, coffee and cake.

Come down whether you’re learning Arabic or learning English, let’s chat! 🙂


Bravo, Blackhall Brownies!

RAINBOWS AND BROWNIES RAISE £3600 FOR MISSION CHRISTMAS

Huge well done to the Blackhall Rainbows and Brownies who raised more than £3,600 for Mission Christmas by ‘growing £1’.

This meant each girl was given £1 and had to come up with a fundraising idea to help “grow” it. They then took the money they had fundraised to B&M and spent it on gifts for children living in poverty, which they then donated to Mission Christmas with Cash for Kids.

Thanks to a 10% discount from B&M Edinburgh, the group was able to donate more than £4,500 worth of gifts – which equated to four jam-packed car loads!

One in five adults in Scotland say they are concerned about sexual harassment in the workplace

One year on from the introduction of the Worker Protection Act, new research from online training provider High Speed Training has revealed that about one in five UK adults in Scotland say they are concerned about sexual harassment in the workplace, with about one in 12 (8%) reporting they had witnessed behaviour they considered to be sexual harassment in a workplace.

The Worker Protection Act (2023) which came into force in October 2024, introduced a legal duty for employers to take “reasonable steps” to prevent the sexual harassment of their employees.

The legislation put the onus on the employer – rather than the employee – to take action against inappropriate conduct which would fall under the category of sexual harassment in the workplace. It also gives workers more protection, rights and support should they experience any kind of sexual harassment when at work.

However, a YouGov survey from High Speed Training found that only 61% of workers in Scotland are confident that employers have taken these reasonable steps.

The survey also found that 8% of workers across Scotland say they have witnessed behaviour at workplaces in the last 12 months that they would consider to be sexual harassment, as well as finding that only 65% of workers feel confident that workplaces would handle a report of sexual harassment effectively.

Dr Richard Anderson, Head of Learning and Development at High Speed Training, said: “The term ‘sexual harassment’ refers to any sort of unwanted conduct of a sexual nature that has this effect.

“Anybody who experiences unwanted sexual behaviour, whether this be verbal, physical or digital, is a victim of sexual harassment.”

Examples of this behaviour are:

  • Comments, ‘jokes’, inappropriate remarks, emails, messages or questions of a sexual nature.
  • Sexual propositions or bribes, such as offering to help a colleague at work in return for going out for a drink or on a date.
  • Posting inappropriate comments on social media, such as commenting about a person’s appearance in a picture they’ve shared.
  • Inappropriate hand gestures or facial expressions.
  • Unwanted physical contact, including touching, hugging, unwelcome sexual advances and all forms of sexual assault.

High Speed Training’s research also found stark differences across generational demographics when looking at the nation as a whole.

Respondents currently working fromacross the UK aged 18-24 were more than three times as likely to say they have witnessed behaviour they considered to be sexual harassment at a workplace as those aged 45+ (24% vs 7%).

The figures suggest that younger employees are either being disproportionately exposed to or witnessing sexual harassment, or, as employees joining the workforce in a post #MeToo era, are more adept at recognising inappropriate behaviour.

Younger workers may also be more likely to occupy more junior or entry-level positions, which could make them more vulnerable to inappropriate conduct, and feel less empowered to challenge it.

Dr Anderson said: “A year on from the introduction of the new Worker Protection Act, our research has shown that there is still lots of work to be done.

“If we expand our findings to the whole of the UK workforce, which the ONS estimated to be 36.9 million people in December 2024, these findings would suggest that nearly 3 million people have witnessed sexual harassment in the workplace in the last 12 months, underlining the need for the new legislation, and showing just how much work employers need to do to ensure that everyone feels safe and supported at work.

“A strong workplace culture, one that promotes transparency, trust and inclusivity, is built by visible and consistent action and investment.

“For organisations looking to demonstrate their commitment, comprehensive sexual harassment training training is a great place to start.”

Thousands of UK businesses are already recognising this. Since the WPA came into force 12 months ago, High Speed Training has seen more than a 1,500% increase in companies enrolling teams on its Sexual Harassment Training for employees course, with a 2,234% increase in uptake of their Sexual Harassment Training for managers course.

To find out more, visit High Speed Training to read the whole report.

Local Community Council reboot?

We should decide what happens in West Pilton/West Granton 🫡 come along to learn more.

This event is being put on by myself (Jessica Fenn) and Chris Cullen – we live here, we aren’t an outside organisation, and we want other locals to join us 🫡