Tag: disability

Charity urges more families to apply for support for disabled young adults

A forward thinking national charity scheme which aims to improve quality of life and independence for young disabled adults aged 18-24, is calling for families to apply for the much-needed support.

Faced with three times higher costs to raise a disabled child or young adult, the current cost-of-living crisis is deeply challenging for families – now finding it even harder to afford the things their disabled young person needs to transition to adulthood- including technology, training and leisure activities.

National charity Family Fund is urging families with an 18-24 year old young adult to apply for wide-ranging grants through its Your Opportunity scheme, set up three years ago to help young disabled adults lead more fulfilling lives and realise ambitions.

The scheme has so far supported over 2,000 families and funds are available to help over 1,000 more young adults by next spring.

Family Fund, is the UK’s largest grant-making charity for families living on a low income, raising disabled and seriously ill children and young people.

Cheryl Ward, Family Fund’s Chief Executive Officer, said: “Raising a disabled or seriously ill child is three times more expensive than raising other children .When a child reaches 18, we know they lose an average of 57% of the support and benefits they had before they reached adulthood so costs are even higher for families.

“This financial cliff-edge can be very tough for parents and carers of young adults, but when the cost of living is rising ever higher, and families are having to cut down on essentials like food and heating, there is little room for the extras which improve a young person’s quality of life.”

Your Opportunity grants include:

·       computer or tablet grants to support young people with further education, online hobbies and the overall building of independence;

·       transport costs for bus fares for appointments, or to support independent travel to clubs or hobbies;

·       help with the cost of membership fees, season tickets, computer games, and music systems to promote recreation and days out;

·       help with the costs of buying a provisional driving licence, and other learning materials to support driving ambitions;

·       white goods to help with independence, or help make mealtimes easier for carers;

·       sports, or lightweight, wheelchair to enable participation in sport activities, or access to activities that would not be possible with a day-to-day wheelchair.

The Your Opportunity scheme was initially set up in 2019 by Family Fund with a donation of £500,000 over five years from the Edward Gostling Foundation.  The Foundation has committed to continue the funding for the next ten years.

The success of the scheme has also led to the Pears Foundation providing grants of £600,000 over two years.

Cheryl Ward added: “We are extremely grateful to The Edward Gostling Foundation and the Pears Foundation for recognising the need to plug the gap in support and we are proud to be working with them to improve the lives of so many young people.

“We are committed to continue to grow this income further.”

Families are eligible to apply if the young person lives at home with their parent or main carer.

Families interested in making an application for a young person should go to:

Your Opportunity: Help for 18-24 year-olds | Family Fund

Dyslexia Awareness Week: How to support your child if they have a learning difficulty

This week is Dyslexia Awareness Week (4th– 10th October) and an education expert has shared five pieces of advice on how to support children if they have learning disabilities.

Interestingly, research conducted by Oxford Home Schooling revealed that while overseeing their children’s learning during lockdown, many parents spotted potential signs of a learning difficulty.

Nearly half (47%) identified symptoms of dyslexia (difficulty reading, writing and spelling), whilst more than one in four (29%) observed possible indicators of dysgraphia (impaired handwriting or spelling).

To help parents who now think their child may have a learning difficulty, Greg Smith, Head of Operations at Oxford Home Schooling, has put together a guide on how best to support your child and what your next steps should be.

1. Get your child diagnosed

If your child’s difficulties are having a significant impact on their learning, it’s a good idea to have them tested for a condition and diagnosed.

A diagnosis can open the door for your child to receive appropriate learning support in school. This includes allowing them extra time in exams and being supported by a teaching assistant, so it’s a good idea to look into this as early as possible.

If you’ve observed signs that your child may have a learning difficulty, you should speak to your GP, who can either make the diagnosis themselves, or refer the child for the appropriate tests.

2. Speak to your GP

Once a child is diagnosed with a learning difficulty, you should consult your GP. They will then be able to recommend and refer you to an appropriate specialist for support1.

Specialists can include speech and language therapists, educational and clinical psychologists and paediatricians, among others.

3. Make the school aware

Once you have an idea of the areas where your child is struggling, you will need to make their school and teachers aware of the situation.

This will allow the school to put extra support in place should your child require it. They will need time to consider how the condition might affect the child’s learning and work out how best to adapt their teaching.

4. Talk to others

Many parents find it difficult to process the diagnosis of a learning difficulty and it can be a challenge to adapt to your child’s new needs.

Don’t be afraid to seek out the support of other parents who have experienced similar situations. There are many support groups and forums out there for advice, and you and your child can even build new friendships.

5. Support your child

The important thing to remember is that you need to support your child, whether this is with their learning, or any other aspects of life that they struggle with.

Being diagnosed with a learning difficulty is by no means the end of the world and children with such conditions go on to enjoy rich and fulfilling lives.

You will need to be patient, and it may be challenging at times, but with the correct support system in place your child will be fine.

For information on the benefits of homeschooling for children with learning disabilities and special educational needs, head to this page: 

https://www.oxfordhomeschooling.co.uk/special-situations/

£150 Disability Cost of Living Payments begin this month

From today (20 September) around six million disabled people in the UK will start to receive their one-off £150 Disability Cost of Living payment

  • Six million people who are paid certain disability benefits will begin to receive a one-off payment of £150 from today
  • Payments are part of the government’s wider £37 billion support package, including the Energy Price Guarantee and cost of living payments totalling £650

Those who had confirmed payment of their disability benefit for 25 May will receive the £150 automatically, with the vast majority to be paid by early October.

The payment will help disabled people with the rising cost of living, acknowledging the higher disability-related costs they often face, such as for care and mobility needs.

The cost of living payments from the government are part of a £37 billion package of support, which will see millions of households receive at least £1,200 this year to help cover rising costs, and follows the Prime Minister’s announcement of a new Energy Price Guarantee for the next two winters saving households on average £1,000 a year on their energy bills.

Work and Pensions Secretary Chloe Smith said: “We know disabled people face additional costs and this government is listening and taking decisive action to protect the most vulnerable in our society.

“In addition to the £150 Disability Cost of Living payment, households will save an average of £1,000 a year through our new Energy Price Guarantee and the lowest-income households will receive at least £1,200 to help with the rising cost of living this year.

“This multi-billion-pound package of support reinforces our commitment to help UK households, particularly those with disability challenges, through the tough times ahead.”

UK Chancellor of the Exchequer Kwasi Kwarteng said: “The government is providing vital support to shield the most vulnerable from rising prices caused by global economic challenges.

“From today, a one-off £150 payment will automatically land in over six million disabled peoples’ accounts. This is in addition to the decisive action we took last week to hold down energy bills over the next two years, saving the average household £1,000 a year.

“The government is standing behind people this winter, and in the longer term we are focusing on driving economic growth – the only way to permanently boost everyone’s living standards.”

MSPs investigate support for disabled people’s transition to adulthood

SHARE YOUR VIEWS WITH HOLYROOD COMMITTEE

MSPs are asking for the public to share their views on the support that is currently available for disabled children and young people as they grow into adulthood.

The findings will be considered by the Scottish Parliament’s Education, Children and Young People Committee as part of their scrutiny of a Bill which seeks to introduce more structured support for disabled children and young people in their transition to adulthood.

The Bill has been proposed by Pam Duncan-Glancy MSP, following on from work started by Johann Lamont in the last session of Parliament.

If passed, the Bill would make three main changes to the law:

  • the Scottish Government would need to have a strategy explaining how they are going to improve opportunities for disabled children and young people
  • a Scottish Government minister would be placed in charge of improving opportunities for disabled children and young people moving into adulthood
  • local authorities would need to have plans for each disabled child and young person as they move into adulthood

Sue Webber MSP, Convener of the Education, Children and Young People Committee said: “A young person’s transition to adulthood is a critical stage in their lives and our Committee wants to be sure that the right kind of support is available to help disabled children and young people as they embark on the next chapter of their lives.

“We want to hear the views of disabled children and young people, their parents and their carers on these proposals.

“We’re particularly keen to understand more about the how the support that is currently available is viewed.”

The Committee’s call for views and survey on the Bill opened on 1 September and people can share their views until 27 October 2022.

Charity expert Marie to lead inspirational innovator awards

An inspirational design competition has a new cheerleader after a charity expert was appointed to help drive as many entries as possible.

Highly experienced Marie McQuade will now devote herself to raising awareness of the Blackwood Design Awards, which aim to transform the lives of those who need support to live independently.

The Dragon’s Den style competition has helped uncover a host of innovations to help people with disabilities or age-related conditions – but was put on hold for two years during the pandemic.

Now it is hoped Marie’s appointment will help relaunch the refreshed competition which typically attracts innovation and design breakthroughs from all over the world.

She said: “In Blackwood’s 50th year, it is more important than ever to celebrate and showcase the amazing inventions that have the potential to accelerate the industry and provide significant benefits to peoples’ lives.

“Every year individuals and organisations from around the world send in their thoughtful designs and we are really looking forward to seeing who will submit what and from where.

“This opportunity is hugely exciting and I am really looking forward to organising this unique and highly impactful competition that will see new designs, technologies and adaptations come to life.”

Marie joins Blackwood with over 25 years’ experience in the charity sector, having worked in diverse roles, supporting causes including Victim Support Scotland and the Scottish International Development Alliance. 

She previously held a senior role at THINK Consulting Solutions, an International fundraising specialist which has worked with charities all over the world, developing fresh, innovative solutions to boost not for profit funds in a competitive landscape.

She has also supported Third Sector Organisations to grow their insights, income and impact at charities such as Changing Faces UK, Maggie’s Cancer Caring Centres and Mencap, where she gained a wealth of knowledge in fundraising, events and communications.

Colin Foskett, Blackwood’s Head of Innovation, who kickstarted the Design Awards, said: “Marie comes with a tremendous amount of experience and knowledge in the charity and fundraising sector and is perfectly equipped to deliver the Design Awards to the highest standard.

“She has already thrown herself into the jobs at hand and we are both really looking forward to welcoming this year’s wonderful selection of up-and-coming innovators.”

Marie’s work will see her approaching universities, innovation hubs, tech incubators and other organisations with a stake in design, engineering and technology to encourage them to enter the awards.

She will also play an instrumental role in organising the event, including attracting sponsorship and recruiting members of the judging panel for the Dragon’s Den style competition, which will see entries evaluated on their ability transform lives.

Previous winners have included an app that helps make living spaces safer for people with dementia and inventor Grant Douglas’ “spill proof” spoon – the S’up Spoon – designed for those affected by conditions which cause them to shake. 

Key categories include Best Collaborative Project, Best New Concept and Best New Aids, Equipment or Accessible Technology. 

Groups or individuals can apply for the Blackwood Design Awards which are open to both seasoned professionals and gifted amateurs, meaning that both technologically advanced and those simpler, yet often most successful designs, are equally welcome.

The awards will mark Blackwood’s 50th Anniversary, since the it was founded by Dr Margaret Blackwood, a respected campaigner for improvement to help people with disabilities to live more independently.

Blackwood now operates more than 1500 properties across 29 local authorities, and invests in innovation and technology to help people live life to the full.

The charity has already built two developments of tech-smart ‘Blackwood Homes’ in Glasgow and Dundee which use a “CleverCogs” digital system to make life easier for older people and people with disabilities.

For more information or to enter the awards, please visit www.bespoken.me or e-mail bespoken@blackwoodgroup.org.uk. 

People looking to join can find more information at:

www.blackwoodgroup.org.uk/peoplehood 

or by messaging: getinvolved@blackwoodgroup.org.uk

For more information, please visit: https://www.blackwoodgroup.org.uk

Disabled Livingston support worker ‘feels alive again’ thanks to dog walking mobility scooter

The joy of owning dogs has remained for Lorraine, 61 from Livingston, thanks to a disability beating off-road TGA Breeze mobility scooter nicknamed ‘Daisy’.

Living near Edinburgh, Lorraine is a former support worker for those with additional needs, who owns two characterful Goldendoodles Katie and Sophie. Walking her dogs is a massive part of her life so when she started to have mobility difficulties following cancer treatment side effects, Lorraine worried how Katie and Sophie would get the exercise they needed.

The answer appeared to be a mobility scooter however Lorraine needed one that could cope with going off road in the countryside, especially in the winter. The Murieston Trail right next to her home was a favourite walk that was now not possible especially as severe fatigue was a problem. She was having to conserve energy and couldn’t risk not being able to get home. The search for a scooter with high ground clearance and good suspension led to the TGA Breeze.

Lorraine spent months shielding at home. She lost her freedom which was hard to cope with as she explains: “In 2020 my back garden becomes my world. Not anymore, I have my freedom back and I don’t feel disabled. Why should I? Cancer was a setback, but I’d say not being able to go out is a bigger set back.

“A scooter gives you your life back. With Daisy I can go anywhere, she often comes back covered in mud when we’ve been out. The Scottish term is bogging. It is so important to be able to escape from whatever is in your head. Going out and seeing things around you takes your mind off worrying.

“Being outside, hearing the birds singing, breathing fresh air, it all takes you to a positive place. My scooter makes me feel alive again.

“Before I had to choose whether I went for short walks with my husband around the shops or to take the dogs out. I didn’t have the energy to do both. Now I can save energy on my scooter and still do other things.

“I have more energy reserves. I can go out in the car knowing the dogs have had a good walk. Katie and Sophie got used to walking next to me on my Breeze really quickly, they weren’t bothered at all as it is quiet.

“What does it feel like to drive a Breeze? Well, it’s stress-free independence, accessibility and not getting tired. I can get home without worrying I won’t make it. I couldn’t do this without my scooter. If you also look at it from a safety point of view, I can get back home quickly if needed.”

The TGA Breeze is an 8mph scooter that has been involved with world record attempts and appeared on BBC Top Gear.

It is popular with ramblers who need power and stability to tackle mud, puddles and uneven ground.

This performance gives Lorraine confidence around the shops or in the countryside and tends to surprise most people as she adds: “I see people’s reaction when I’m coming along a woodland trail and they think they’ll need to get out of the way but no, no, no, I can drive around them on the grass no bother.

“Time and again they have been so surprised thinking that I’m going to get stuck, no chance with my Breeze. I love seeing their faces when I do a sharp turn into the undergrowth. They have no idea what this baby can do!

“I think the design of the Breeze is spot on, it ticks so many boxes that other scooters do not. I would add Harry from TGA who supplied the scooter was so good, no hard sell at all. He just left me to make my own decisions, there was never any chasing on the phone.

“So many companies harangue you these days and won’t leave you alone. This always makes me think they know their product is not good. It’s clear TGA have confidence in their products. When buying a scooter, it can be an emotional time for people. Often, they are vulnerable and the last thing they want is a salesman on their back with a high-pressure pitch. I had no phone calls chasing me, TGA have been brilliant.”

The future for Lorraine is looking bright as she is keen to ‘extend her horizons’. She is hoping to get a trailer for her Breeze so she can tow it to their caravan on the coast at Dunbar.

Lorraine is also pro-actively getting barriers and gates adjusted by her local council so fellow scooter owners can access the many picturesque walks around Livingston. This reflects many other initiatives across the UK including Miles with Stiles and Access the Dales – both supported by TGA.

Lorraine concludes: “Getting fresh air is so important. You can do it on a car boot scooter and that’s ok, but with dogs and wanting to go off road you need something more substantial. 

“People should never look at having a scooter as a negative, there is no loss of dignity, not at all. Exactly the opposite. It’s all about finding new capabilities and opportunities.”

Researchers reveal the impact of Covid-19 and war on Ukraine’s persons with disabilities

New report examines ways of strengthening support mechanisms

Researchers have called for Ukraine’s organisations of persons with disabilities (OPD) to have a bigger role in the country’s decision-making processes.

The Edinburgh Napier-led team were finalising their report on the impact of Covid-19 on the country’s almost three million persons with disabilities just as Russia launched its first attacks on its eastern European neighbour.

Their investigation, carried out with partners in Ukraine, documents how the pandemic created many new barriers while also amplifying existing ones.

Covid-19 limited persons with disabilities’ access to healthcare, social services and transport, increased their social isolation and undermined their economic security. 

Digital poverty meant many could not access online portals for government departments or online learning, and the study also highlighted concerns about decreasing levels of cooperation from public bodies.

Now war with Russia – in which 15 per cent of the civilian population caught up in the conflict will have a disability – is presenting new and even more complex challenges.

Initial reports suggest persons with disabilities are struggling to access safe zones, medical services or reliable information on top of the other challenges faced by a population under attack. 

Principal Investigator Dr Kiril Sharapov, from Edinburgh Napier’s School of Applied Sciences, said: “Organisations of Persons with Disabilities remain one of the last remaining systems of support for the people they have been taking care of within the context of the pandemic and now within the context of this catastrophic war.

“They continue, where and when they can, to provide support to the most vulnerable individuals and their families. Their knowledge and expertise must inform all current and future relief efforts provided by the Government of Ukraine and by the international donors and humanitarian agencies.”

The research report calls for organisations of persons with disabilities to have their unique roles recognised at legislative level within Ukraine, and for the Government to support their activities.

It also recommends that public bodies consult with and give OPDs a say in decision making, and that OPDs should be actively involved in monitoring the quality of social services delivery.

There are almost three million people registered as having a disability in Ukraine, with actual numbers likely to be higher due to the lack of reliable statistics. 

Dr Sharapov researched the impact of the pandemic on them in partnership with the National Assembly of People with Disabilities of Ukraine umbrella group and local organisations. The study was funded by the Global Challenges Research Fund and the UK’s Arts and Humanities Research Council.

A total of 108 organisations responded to a survey co-designed by the National Assembly of People with Disabilities of Ukraine, making it the largest to explore the views of the disability movement on the effects of the pandemic. The findings were presented to disability experts and activists who were asked to comment and make recommendations.

The research report says it is “essential” that public authorities in Ukraine at all levels recognise and support OPDs as key actors in ensuring and protecting the rights of people they are caring for. 

It also recommends that an up-to-date register of all OPDs is kept, and that the Government cooperate with them in developing a rapid response protocol for circulating information during any future public health emergencies.

Working-paper-COVID19-and-Disability-UKR-ORG-ENGDownload

Support package to help more disabled people into work

  • New package of support to help thousands of disabled people into work asUK Government ‘builds back fairer’.
  • 15 Jobcentre Plus sites to trial framework to become more autism-friendly.
  • 26,000 work coaches are undergoing accessibility training to improve jobcentre services for disabled people.

Thousands more disabled people are set to benefit from a new package of support designed to help them into the work they want.

Minister for Disabled People, Chloe Smith, has today announced that 15 Jobcentre Plus sites will be testing an autism framework, designed with the National Autistic Society (NAS), to transform the service available to jobseekers on the autism spectrum. The framework pilot will aim to help people with autism find, retain and progress in fulfilling jobs.

This comes as 26,000 work coaches in jobcentres across the country are undergoing specialist accessibility training, delivered in partnership with Microsoft, in a further effort to help more disabled jobseekers secure employment.

The work coaches will look at how they can support disabled jobseekers with tools including immersive readers, magnifiers and automated captions, which will not only improve their daily work but will also help with the completion of job applications and interviews.

One in 100 people are autistic and there are around 700,000 autistic people in the UK, according to the National Autistic Society. Not all autistic people will be able to work, but the charity’s research found that the vast majority want to.

Working age autistic people are often locked out of employment due to a lack of understanding and knowledge from employers and colleagues, and anxiety-inducing environments that can be distressing. It is hoped that the framework will help to break down these barriers and see more autistic people in jobs they love.

The Minister for Disabled People Chloe Smith said: “Everyone deserves an equal opportunity to find a job they love and to progress in their career, but we know we must do more to help people with autism.

“By testing this autism framework and offering new specialist training to our jobcentre staff we are helping to deliver more employment opportunities for those who would otherwise feel locked out, as we work towards seeing one million more disabled people in work by 2027.”

The framework explores how best to support autistic people into employment, including ensuring jobcentre appointments with autistic ‘customers’ take place in the right environment and educating local employers in the additional requirements of autistic workers.

For example, many autistic people become distressed in busy, bright or noisy environments. As part of the pilot, jobcentre staff will therefore be asked to carry out appointments with customers triggered in this way in quieter rooms, with more appropriate lighting.

Work coaches will also be able to help providers and employers in the local communities understand the additional needs required by autistic employees, which should in turn create more opportunities for autistic jobseekers in settings where they can thrive.

If successful, the framework could be rolled out to more jobcentres in England, Scotland and Wales, benefitting thousands of people with autism.

Christine Flintoft-Smith, Head of Autism Accreditation at the National Autistic Society, said: “We are pleased to be working in partnership with the DWP to make sure autistic people get the support they need delivered in the way they need it, when they visit Jobcentres. We both want to work to close the autism employment gap and make sure autistic people are getting the help they need to get jobs.

“Our framework of best practice has been developed with input from autistic people, specifically for Jobcentres. We want all Jobcentre staff to understand autism, be able to think about their practice and make the necessary changes to the support and environment that autistic people need.

“We look forward to our continued work with the team at DWP to get jobcentres working better for autistic people, and to get more autistic people in the jobs that they want and deserve.”

Hector Minto, Lead Accessibility Evangelist (Eh? – Ed.) at Microsoft, said: “Technology has the potential to greatly empower disabled people in the workplace, but awareness is often low, people don’t know that there is support built into modern digital experiences.

“In creating this training with DWP, built on our own internal training, we found there is terrific passion and energy in this workforce to share their knowledge with jobseekers. I am confident that it will drive real impact and help us tackle a real challenge in society.”

Edinburgh Leisure making aquatic activity more accessible

Funding from Swim England has enabled Edinburgh Leisure’s Royal Commonwealth Pool to install ‘a Poolpod’, a submersible lift, creating inclusive swimming environments for people with long-term health conditions, disabilities and rehabilitation needs.

The London Marathon Charitable Trust (LMCT) provided a £750,000 grant in 2020 to allow Swim England and its partners, the Activity Alliance, Community Leisure UK and GLL – to enhance swimming provisions at selected venues across the UK. The Royal Commonwealth Pool in Edinburgh is the only Scottish recipient, out of 20 sites across the UK, to receive the funding.

With one in five people in our population disabled or living with a long-term health condition, ‘the Poolpod’ gives dignified and independent access to the water for swimmers.

Lynne Bauba, Manager at Edinburgh Leisure explained: “The Poolpod was installed just before the lockdown in March 2020, and with the reduced capacity in our pool when we reopened due to the pandemic, we haven’t been able to shout about the Poolpod until now.

“However, regular customers with long-term health conditions, disabilities and rehabilitation needs, have been delighted with this new facility.”

One such customer, Alison Malcolm, who became paralysed from the waist down aged 50, explains how she has benefitted from using the new Poolpod and why she loves swimming.

“When I got back in the pool for the first time, my body confidence was low, and I was concerned I wouldn’t float. It sounds daft but after five months in bed, it took a long time for my body to reset.

“However, the staff were great about encouraging me to swim.  I’ve never met a member of staff who didn’t want to help.

“Swimming is one of the most accessible ways for people with disabilities to incorporate physical activity into their lives. One of the things I like most about it is that once you’re in the water, you’re the same as everyone else.  It has been a great way for me to get active again and using the Poolpod to get in and out of the pool has made the whole experience more enjoyable.

“Now I tend to swim 24 lengths at the Commie three mornings a week. I enjoy the 50m lengths because I can get in the zone and give myself a cardio workout without putting too much strain on my body.”

Edinburgh Leisure boasts 18 swimming pools across the city, including their stunning Victorian swimming baths and pools within the secondary schools.

They offer a variety of pool-based activities to suit all abilities and while the Royal Commonwealth Pool is the only one to boast a Poolpod, most of them have hoists, which the leisure attendants are trained on, to assist people less able to access the pools.

Sir Rodney Walker, Chairperson of The London Marathon Charitable Trust, said: “The Trust funds work which challenges inequality of access to physical activity. We want to help create a society in which everyone is physically active, contributing to their health and wellbeing.

“We know that people who benefit most from aquatic activity – including disabled people, people with long-term health conditions, older people, people with mobility issues and pregnant women – often face the biggest barriers to accessing a swimming pool.”

This exciting initiative is making swimming pools across the UK more accessible and ensuring a more inclusive customer experience for all.

The substantial grant from the LMCT has boosted Swim England’s Water Wellbeing model, which aims to help leisure centres remove barriers to accessing the water.

Water Wellbeing’s ‘whole facility’ approach encourages centres to understand and improve the customer experience, through a wide range of resources available on the Swim England website.

‘Game-changing’ Stroke pilot procedure launched at RIE

A new, pilot mechanical thrombectomy service for stroke patients in the East of Scotland has been launched today.

The pilot will be based at the Royal Infirmary of Edinburgh and will help pave the way for an eventual national service set to benefit hundreds of people who have been struck with a life-threatening stroke.

John Watson, Associate Director of the Stroke Association in Scotland said: “This service is long awaited, overdue, but very welcome indeed.

“Thrombectomy is a remarkable procedure.  It involves inserting a long tube into an artery in the leg, which is then fed through the body to reach the blood clot in the brain. The blood clot is then captured in a mesh and pulled out.

“The removal of the clot allows blood flow to resume and oxygen to reach the brain, halting the damaging effects of the stroke. These are blood clots which are too big to be broken down by clot-busting drugs and are usually associated with severe strokes and the worst outcomes for patients.

“Around one in every three people who receive a thrombectomy following their stroke will be less disabled as a result. Around one in five will be able to function completely independently afterwards.

“Thrombectomy has the power to save lives and reduce disability for around one in every ten people who have a stroke.

“The Edinburgh-based pilot is an important milestone on the road to a national 24/7 thrombectomy service for Scotland.  A pilot service for the North of Scotland based in Dundee, has been underway since November last year, and we look forward to a third thrombectomy centre in Glasgow coming online next year.”

In addition to improving quality of life, thrombectomy generates substantial savings for the NHS by reducing the need for other interventions or care in the future. Research indicates that, on average, every thrombectomy procedure saves the NHS £47, 000 over a 5-year period.

A stroke is a brain attack. The effects can be devastating. Stroke is a leading cause of severe adult disability. Almost two thirds of survivors leave hospital with a disability. Many have problems with speech and communication, thinking and vision. It can also affect peoples’ emotions and personality.

Alison Maclean, 72, from Dundee had her stroke just before lockdown in January 2020. It was a massive stroke that could have taken away her independence, but following a thrombectomy, she regained full function and has gone back to the life she had before her stroke, almost unchanged.

Angela said: “I am back to doing all the things I did before my stroke: seeing friends and family, reading, watching telly, going on my exercise bike and for walks.” 

See foot of article for Angela’s story

John continued: “We want all eligible patients to have access to this game-changing treatment, as quickly as possible. But thrombectomy cannot deliver in isolation. It needs to be part of a new, re-shaped service covering the whole pathway from 999 call, to hospital treatment, recovery and rehabilitation. 

“The Scottish Government recognises the need for stroke improvements, which is extremely encouraging. It already has a draft framework of what its own advisors, stroke clinicians and the wider stroke community including the Stroke Association want to see. This is the result of good work by all involved.

“We look forward to seeing the final report and recommendations at the end of the year. But of course, it is the delivery of change and improvement that really matters so we look forward even more, to a commitment early next year to publish a plan to deliver on it.”

Alison Maclean’s stroke story of receiving a thrombectomy

Alison Maclean, 72, from Dundee had her stroke during lockdown in January 2021. It was a massive stroke and she received a thrombectomy resulting in enormous success. The stroke could otherwise have left Alison unable to talk or walk.  

I had an accidental fall on 21 Jan 2021. I rang NHS24 in complete agony. Two days later I was in hospital getting it checked out. 

I had a fractured femur which was put in a plaster-cast and an operation was planned on 26th Jan 2021. On the morning of my operation, I suddenly developed left sided weakness, vision difficulties and problems speaking.

The doctor in the orthopaedic ward called for help. I don’t remember very much other than being asked to lift my arm and lift my leg and answer questions. 

I thought I was ok, but the next thing I remember is the doctor telling me that he thought I might have had a stroke. I believe I was rushed in to a room to get a brain scan following which I underwent a thrombectomy.  Apparently some blood had leaked from my femur bone causing a clot thereafter the stroke.

The next thing I remember was being in ICU.  A nurse came up to me and told me that I’d had a stroke and had just received a procedure to remove a blood clot to help with my recovery. 

I was quite relaxed about being told about the fact that I’d had a stroke, but my son called me and he was very distressed about it.   I guess he had had to deal with the stress of seeing his Mum in a life-threatening situation making decisions on my behalf. I was unaware of how ill I was at the time, so there are big gaps in my recollection of what happened.

I felt fine following the procedure and apart from my hand shaking uncontrollably for the first day, everything else seemed normal.  I was discharged on 2 February 2021. I feel great, just the same and I am back to doing all the things I did before my stroke: seeing friends and family, reading, watching telly, going on my exercise bike and for walks.

Lockdown has been absolutely fine.  I’ve been in a bubble, so have had some company and when lockdown eased briefly last summer, I met a few friends and we’d have a cup of tea and biscuit together.

I am very positive about thrombectomy and the fact it probably saved my life. It should be available to everyone who needs it.  My life is back to normal and that may never have happened if I had not received a thrombectomy.