Survey from The Gym Group identifies supporting mental health as one of top reasons for gym visits for young people
In a recent survey* from nationwide gym chain The Gym Group, young people (aged 16-34 years) said their mental health is an important motivation for going to the gym.
When asked for their top three reasons for going to the gym, those in the 25 – 34 age group were most likely to put mental health as being their number one motivation, with those aged 16-24 most likely to put it as one of their top three.
This year the theme for Mental Health Awareness Week (13th – 19th May) is “Movement: Moving more for our mental health”.
The Gym Group has 236 gyms around the country and is offering free day passes throughout the week, inviting more people to visit their local gym to experience the mental health benefits of exercise.
The Gym Group is also supporting Better Health-Every Mind Mattersfor Mental Health Awareness Week to help more people make healthy changes with exercise.
Every Mind Matters is a campaign and digital resource, delivered by the Department of Health and Social Care (DHSC) which aims to equip people to protect and improve their mental wellbeing.
Their resources provide a range of simple, NHS-approved self-care tips and tools that help people make self-care a priority within their daily life.
Better Health programmes focus on driving long-lasting behaviour change, and The Gym Group has always been committed to helping people to build lasting habits of regular gym visits.
In 2023, average member visits per month increased by 10% compared to 2022, showing that more people choose to prioritise their gym routines. 1 in 4 adults experience at least one diagnosable mental health concern every year.
Whilst regular exercise and movement can support with more positive mental wellbeing, it is reported that 4 out of 10adults are not currently meeting NHS recommended physical activity guidelines.
Health Minister, Maria Caulfieldsaid: “Exercise is incredibly important to help maintain good mental health.
“Our Every Mind Matters tool offers fantastic self-help advice including exercise tips, and tailored Minds Plans that build resilience and help people cope with life’s challenges. I encourage everyone to use it, whether it be to boost your mood, improve your sleep or deal more easily with mild stress or anxiety.”
Martin Scholes, Head of Operations, The Gym Group said: “It is our founding mission to break down barriers to fitness so that more people can reap the mental and physical benefits of regular exercise.
“We know that a lot of our members rely on our gyms to support and protect their mental wellbeing and it’s great to support campaigns like Every Mind Matters to inspire even more people to do the same.’
Muscular Dystrophy UK voices concerns from the muscle wasting and weakening community in Scotland.
Study reveals possible signs of rare and progressive conditions are often missed and not investigated.
Speedy referral is essential due to complex diagnosis process and the urgent need to access vital healthcare and treatments as quickly as possible.
A recent study by Muscular Dystrophy UK reveals that people living with a muscle wasting or weakening condition are often misunderstood by healthcare professionals and are not referred at the earliest opportunity to specialist services.
The leading charity for more than 110,000 children and adults in the UK living with one of over 60 muscle wasting and weakening conditions, carried out a survey revealing key insights from the muscle wasting and weakening community.
Just under half of respondents (47%) faced being misdiagnosed at some point, with it taking four or more meetings with healthcare professionals for the majority (55%) of respondents to get a diagnosis. A significant majority of respondents (69%) waited in excess of a year to receive a diagnosis.
The findings highlight the need to improve knowledge and understanding of neuromuscular conditions to ensure people are referred, as early as possible to a specialist neuromuscular team, to receive the right diagnosis and start on an appropriate care pathway to get the support and any available treatment required.
Muscle wasting and weakening conditions are progressive which means they will worsen over time and lead to an increasing level of disability. Care and treatments available will slow progression but there is currently no cure.
The symptoms of muscular dystrophy, and the age at which onset occurs, will be different in each person.
Common symptoms could include muscle stiffness or pain, changes in mobility, such as difficulty walking, difficulty in lifting things and increased number of falls. Some muscle wasting and weakening conditions can affect the heart or the muscles used for breathing and in some severe cases, the condition may have life-threatening complications, and shortened life expectancy.
84% of respondents to the survey highlighted the need to increase understanding and awareness of muscle wasting and weakening conditions among non-specialist neuromuscular healthcare professionals as a key priority. With 56% of respondents highlighting that access to healthcare should be a further area of focus.
Respondents shared some of their diagnosis journey highlighting: “I was 14 when I knew something was wrong.
“At age 35 I was diagnosed. I was told I was lying and making things up.”
Another respondent said: “My first reported symptoms to my GP I was aged 35, then onwards from that, on a regular basis until eventual diagnosis at 65.
“I had in-patient assessments over those years, and no-one thought to look for Facioscapulohumeral muscular dystrophy (FSHD) even though my sister has it and I always disclosed this in my medical history.”
The findings show a lack of understanding of muscle wasting and weakening conditions within non-specialist neuromuscular healthcare professionals, either at the initial stages of a diagnosis or at different touch points throughout the management of the condition.
Muscular Dystrophy UK works with the NHS and the muscle wasting and weakening community to broaden knowledge and understanding of the different conditions and improve access to treatments.
The charity is calling for improvements to be made, so people get a faster diagnosis and are better equipped to access appropriate healthcare sooner.
Catherine Woodhead, Chief Executive of Muscular Dystrophy UK said: “When you are living with a progressive condition that can affect vital muscles such as the heart and lungs, it is essential that you get a diagnosis quickly.
“We know that neuromuscular conditions cover an incredibly wide range of rare and progressive conditions. The diagnosis journey is complex and it can take multiple appointments. It’s therefore crucial that we improve the understanding and knowledge of non-specialist neuromuscular healthcare professionals to ensure the referral process is quick and efficient to reduce the number of people being misdiagnosed.
People must be able to access the right support, management – and where available, treatment. Allowing people to remain independent, doing the things they enjoy for longer and more easily.”
David Hick was diagnosed with Becker muscular dystrophy in July 2023. Photo credit: Muscular Dystrophy UK
His symptoms progressed, following Covid, and the realisation came when he wasn’t able to continue with his motor trade job, that he had been doing for two decades. He got professional help and was diagnosed. A month after diagnosis, David joined the North Star Programme and is part of a clinical drug trial. David is now looking to move to closer to a specialist neuromuscular centre in Newcastle to ensure he can receive the best possible care.
He said: “Looking back it was apparent that something was wrong, but it was never properly investigated. I was told you’re a fit and healthy person. You’ve got nothing wrong with you. You’re just tall and skinny.
“It affected my mental health when I was in my early twenties, as I questioned why I couldn’t do certain things. Difficulties would come up in everyday life, but I just brushed it off.
“We were renovating our house and I lifted something heavy. As a result, I pulled several muscles, so went to a physio. This was the start of the diagnosis journey. I ended up being diagnosed with a rare and progressive condition. It was like a grenade going off – I’d never heard of muscular dystrophy before.”
Muscular Dystrophy UK provides a range of resources and awareness raising opportunities for non-specialist neuromuscular healthcare professionals, including an e-learning resource for General Practitioners, events, webinars and conferences and connections to local specialist services through its Regional Neuromuscular Networks.
Healthcare professionals who wish to access this support can email:
Veronica Murphy, 70, from Wishaw in North Lanarkshire, is calling for every stroke survivor to get the chance of recovery that she did. Veronica received life-changing rehabilitation treatment after a serious brain haemorrhage in December last year.
Veronica’s call for action comes as the Stroke Association’s ‘Thriving after stroke’ report, published today, urges Health Boards to urgently deliver on government plans to enhance recovery after stroke.
Veronica said: “It was my birthday party on the day I had my stroke. My daughter noticed that there was something wrong with my speech so dialled 999, whereupon I was taken to the Queen Elizabeth hospital in Glasgow.
“At this point, I couldn’t swallow or move the right side of my body. I was very poorly, and don’t remember much. The doctors couldn’t say what kind of recovery I was going to make, and it must have been hard for my family.”
Veronica was transferred to University Hospital Wishaw, where she was put on a clinical trial and spent 10 weeks undergoing intensive physiotherapy.
She continued: “At first my family couldn’t see any improvement. But then one of my fingers moved, and it gave them a glimmer of hope.
“From then on there was no stopping me. I learnt how to stand, took my first step then gradually more with the support of a rail. My physios were amazing and put so much work into helping me.
“On leaving hospital I was given a plan detailing my goals for returning home. I was assigned a community nurse who checked up on me, noted my progress, and left her phone number asking me to call with any questions, at any time. I continued to get regular home visits from the physiotherapist and occupational therapist, and have achieved my goals of climbing the stairs, making a meal, and walking outside with help from my physio if needed.”
John Watson, Associate Director for Scotland the Stroke Associationsaid: “Life after stroke support is a crucial, but under-provided, part of a stroke survivor’s recovery, helping them to regain independence, communicate, return to work, and deal with the emotional trauma that comes from stroke.
“Core rehabilitation therapies, such as physiotherapy, occupational therapy and speech and language therapy, are complemented by other forms of support to address longer-term practical, social and emotional needs that many stroke survivors have.
“Veronica’s experience shows how access to good stroke rehabilitation can be life changing. Unfortunately, we hear too many stories of stroke survivors leaving hospital not knowing what happens next, or where to turn.
Stroke is a leading cause of disability in Scotland, and there are over 130,000 stroke survivors living with the effects of stroke, many with ongoing support needs.
John continued: “Crucially this investment in people’s recovery saves money by helping stroke survivors regain their independence and reducing ongoing support needs.
“It has never been more important than now, to get life after stroke support right.”
The Stroke Association want to ensure every stroke survivor should:
Leave hospital with a personalised rehabilitation plan.
To maximise the benefit of post-hospital support, every stroke survivor should have their own rehabilitation plan. This should be agreed with the patient and their family or carers and issued before leaving hospital.
Have contact information for ongoing support from stroke services.
Every stroke survivor should have continuity of contact for their recovery from an experienced stroke professional who is familiar with them.
Receive a review of their progress and needs six months after their stroke.
Almost two thirds of stroke survivors leave hospital with a disability, with their needs evolving throughout their recovery. It is therefore vital they receive post-stroke reviews to identify these changes and plan further support or intervention.
Scotland’s Stroke Improvement Plan (2023)points to key pillars of holistic rehabilitation incorporating life after stroke support, including:
Personalised care and support
Patients and practitioners work jointly towards agreed goals
Support to overcome communication and other difficulties affecting patient capacity for decision-making
Psychological and emotional support
Six-month reviews carried out by a healthcare professional knowledgeable and experienced in stroke and familiar with the patient
Consideration of those with caring responsibilities.
Dr Matt Lambert, National Clinical Lead for Stroke and Specialty Advisor to the Chief Medical Officer:“What distinguishes stroke from other neurological conditions is the capacity for recovery. We know that getting the right support, in the right amounts, for as long as it is needed, makes all the difference.
“I want to see every stroke survivor resume their life with enhanced capacity, and with reduced need for ongoing support.
“This clearly benefits those who have had a stroke but also reduces their longer-term dependency on relatives, carers and health and social care services which benefits society more widely.”
Veronica concluded:“More recently, I am thrilled to report that I am now able to walk and pick up my four-year-old grandson, Nathan, from nursery!
“My family means everything to me. Without their support, and the specialist support from NHS Lanarkshire, I don’t know if I would be as well as I am today.
“If there was more investment in stroke rehabilitation, there would be less people requiring support, enabling them to work and be part of their community. It’s a win-win situation. I hope health boards can get on with meeting the commitments in the stroke plan and look forward to seeing Scotland leading in this area.”
HEALTH experts are highlighting the importance of looking after your hearing and vision to help reduce the risk of developing dementia.
Due to the similarity of their symptoms, hearing loss can, on occasions, be mistaken for early signs of dementia, particularly when someone is struggling to communicate.
However, leading research also reveals that untreated hearing loss is one of the biggest risk factors when it comes to developing dementia, and that risk increases further if you have a visual impairment too.
That is why this Dementia Action Week (May 13-19), Specsavers Home Visits team in Edinburgh is highlighting the importance of regular hearing and eye tests. The home visits team in Edinburgh provides at-home eye tests and hearing tests to people who are unable to leave their home unaccompanied due to a physical or mental illness, or disability.
Lynne Phillips, audiology partner for the Specsavers Homes Visits team in South and East Scotland, says: ‘Leading research has shown that hearing loss can cause cognitive decline which can lead to dementia[1] – with people with moderate to severe hearing loss up to five times more likely to develop the condition[2].
“For those who also have a visual impairment as well as hearing loss, studies show they are nearly twice as likely to develop dementia than those without[3], as the decline in senses could increase social isolation and place strain on the parts of the brain which are required for good cognitive function[4].
‘This is why regular sight and hearing tests are so important in helping to reduce the risk. The earlier any problems are identified, the sooner protective measures like hearing aids can be introduced.’
Specsavers also provides comprehensive training to ensure that colleagues are equipped and confident to support any customers who may have dementia.
As part of the initiative, run by the Alzheimer’s Society, colleagues who have completed the training are recognised as Dementia Friends, with a badge to wear on their uniforms to indicate their increased level of dementia awareness.
For more information about the Home Visits service visit:
Charity head: New children’s mental health service has “the potential to be transformational”
ECHC reports promising data showing children and families benefiting from ‘The Haven’
No Time To Wait pilot service attracts almost 1,300 visits in first six months
A new pilot service set up to tackle the mental health crisis facing children and young people in Scotland has released promising data showing the numbers benefitting from its service in the first six months of operating.
Developed by Edinburgh Children’s Hospital Charity (ECHC), ‘The Haven’ wellbeing and resilience service opened at The Fraser Centre in Tranent in September 2023. It is the first centre to open under the Charity’s ‘No Time To Wait’ strategy.
The Haven aims to support families with children struggling with their mental health and prevent problems escalating to the point where professional intervention is needed.
It is open for three afternoons a week and has attracted 1,264 visits in the first six months.
Roslyn Neely, CEO of ECHC said: “Children and young people in Scotland are in the midst of a mental health crisis, a crisis which doesn’t just impact the child, but the whole family who feel they have nowhere to turn.
“We are staggered by the number of people we have been able to support through The Haven, and the impact the service has had on young people and their families. It really does have the potential to be transformational.
“We truly believe there is no time to wait. Allowing the mental health crisis to escalate just wasn’t an option.”
The service was developed in response to ECHC’s research which found that over half (59%) of Scottish families have a child who has experienced a mental health concern. It is hoped the service will be scaled and delivered in community settings and available to all children struggling with their mental health, and their families, across Scotland.
The Haven is open to any child or young person with a mental health concern, and any member of their family, including parents, carers, siblings and grandparents. It offers support in a relaxed and informal setting and provides interventions including family support groups, signposting, fun activities and a drop-in service for those who may just need a cup of tea and a listening ear.
Roslyn Neelyadded:“While we are humbled by the results of the first six months, this is just one pilot service in one small town. We want to see a Haven available for every child who needs it, in every community.”
The Haven is being piloted in Tranent for two years to ascertain the scale of demand. It is modelled on the charity’s existing Hospital Hub, which delivers very similar interventions to children and families visiting Edinburgh’s Royal Hospital for Children and Young People (RHCYP).
At its best, The Haven may negate a family’s need for future access to medical support, alleviating the pressures on Scotland’s CAMHS.
Fiona O’Sullivan, Director of Children’s Wellbeing at ECHC, said: “The Haven exists to support the whole family; the child, the parent, the grandparent, the auntie, the carer, whomever is closest to the child in need.
“We have supported people suffering from a range of issues including anxiety, depression, self-harming, challenges with education and school attendance, and eating disorders. Without any medical intervention we have provided young people and their families coping mechanisms to deal with these issues, and crucially, we are seeing positive results.”
QUEEN Margaret University (QMU), Edinburgh, has developed a series of resources for use in educational settings to help enhance disability literacy.
The University will launch its new Toy Box Diversity Lab website of resources on 9th May 2024, which will help guide discussions between educators and their primary school learners about disability equality and representation in the school curriculum, as well as encouraging them to think about accessibility in their own environments.
Funded by the QMU Innovation Fellowship, the educational assets include an activities pack, instructional videos and a directory of other resources to encourage positive discussions in schools.
The University will also be launching an online short course on Disability Confidence for Educational Practitioners, running from September 2024.
Dr Clare Uytman and Dr Siân Jones, senior lecturers in the Division of Psychology, Sociology and Education at QMU, have led the three-year long project, establishing their own research group to do so.
The lecturers have tested their resources with almost 550 children in England and Scotland, as well as running focus groups to create the final products in collaboration with teachers, disabled adults and parents of disabled children.
Dr. Uytman, said: “Positive understanding, representation and discussion around disability is so important for achieving a more inclusive learning environment through imagination and play, which will help children understand the importance of these topics from an early age.
“It is so rewarding to see three years of hard work and thorough research come together with the creation of these highly beneficial resources which we hope will be of real value to the teaching profession and enhance disability literacy.”
As well as the website, the QMU lecturers have also been working in collaboration with activist not-for-profit organisation, ToyLikeMe, to ensure better representation of disabilities in children’s media, including toys, books and television programmes.
Dr. Jones, said: “There is growing evidence that toys representing disability give non-disabled children windows into the worlds of disabled children.
“We are building on this evidence base, using images of adapted toy prototypes, such as Barbie with a missing limb, or Olaf the snowman from Disney’s Frozen with a cochlear implant, and showcasing these to children through pop-up exhibitions and activities we have been trialing at schools to help them think and speak positively about disability.”
Scottish primary school teacher, Mhairi Ritchie, welcomed one of these pop-up exhibitions so that she, and her pupils, could sample the resources. She said: “Involvement in the project was a fantastic way to explore disability. The children learned new vocabulary and developed a new perspective around what it means to be disabled.
“The accompanying resources were highly engaging and thoughtfully designed, enabling an interdisciplinary approach to the learning. The great thing is that we can use the resources again in the future and we look forward to doing so!”
An event will be taking place both online and in the Halle Lecture Theatre on campus at QMU to coincide with the official launch of the website on 9th May.
The launch event will take place between 4pm and 5.30pm at which attendees can learn more about the evidence-based research that has been conducted for this project, as well as more details on the resources on offer.
Scottish Recovery Network has launched their new online resource full of free tools, events, and opportunities to inspire you to develop and champion peer support for mental health recovery.
It’s a space where they’ll be shining a spotlight on your fantastic peer support projects, services, and organisations and a place to share ideas and learning from people planning and delivering peer support activities, to help you do the same.
National Galleries of Scotland has been shortlisted for Community Engagement Programme of the Year by the prestigious Museum + Heritage Awards for its work with Rowan Alba.
The nomination recognises an incredible collaborative initiative that supports people with alcohol addiction. The winners will be announced at a glittering live ceremony on Wednesday 15 May.
Beginning as a one-off photography project in 2013, the much-needed programme has since delivered 42 sessions in the last year in Edinburgh.
Developed in partnership with Rowan Alba as part of its befriending scheme, CARDS, it recognises the wellbeing benefits that art brings. Participants are welcomed into the gallery where they take part in creative activities, designed by the National Galleries of Scotland, Rowan Alba and artist Sam Rutherford.
The artist hosted sessions help people whose long-term alcohol addiction has led to poor health and social isolation, to feel more connected. Each month a different topic is discussed and participants are able to explore the collection and exhibitions of the galleries, as well as make their own art using photography, painting, collage, poetry and more.
The gatherings also support with emotional wellbeing, building friendships and assisting in recovery.
98% of participants reported anxiety, depression and low self-esteem while 25% have long-term mental health issues. However, after participating in the project 83% reported feeling less isolated, 95% felt less anxious and an amazing 95% felt their opinion mattered where they hadn’t before.
National Galleries of Scotland had the exciting opportunity to work with CARDS participants on exhibitions including co-creating audio content for Making Space | Photographs of Architecture and the current exhibition Conversations with the Collection in Modern One.
With one participant, sharing that this allowed them to feel a sense of pride and boost their self-esteem, saying: ‘I can’t believe the National Galleries asked for my opinion on the pictures, I took my grandchildren to hear the audio on the headphones.’
Creating the audio guide was an opportunity for National Galleries of Scotland to work in collaboration with participants to re-look at artworks in the collection and rethink their interpretation.
Following the spectacular success of CARDS, a new group and weekly programme ‘The Guided Self Discovery Group’ was also established after networking sessions for health and social care organisations, run by Rowan Alba at the Portrait.
Led by an NHS Occupational therapist, small groups meet at the Portrait gallery for 8 weeks. This supports people to transition from in-patient rehabilitation hospital, Milestone, back into the community. The sessions aim to ease the process, which can be stressful and isolating.
Both initiatives explore themes around identity and connectedness and the creative activities encourage reflection and self-expression. The groups have also come together for a joint session, helping participants connect with the longer-term support that is available.
The sessions are integral to supporting client’s mental health as they provide new ways to express issues they are facing. Shifting focus to artistic activity enables participants to converse freely, informally, and openly.
Siobhan McConnachie, National Galleries of Scotland Head of Learning and Engagement, said: “The feedback we get from participants is overwhelmingly positive, and we are thrilled that this has been recognised by the awards. The programmes create environments where individuals feel safe and encouraged to participate – something they do not always feel elsewhere.
“Through Rowan Alba. we have succeeded in welcoming isolated people with addiction issues to the gallery and revisit. In 2023 we delivered 42 sessions with 517 attendances overall. Many are individuals who might not otherwise leave their homes, and have no other support or access to help.
“Being able to work hand in hand with Rowan Alba to accomplish this and highlight the importance art has in helping people is something we are incredibly proud of.”
A CARDS service user said: “I thought it was about art. It is in a way, but not in the way you would think. At first it was the only reason to turn over the months in the calendar other than to remember what day the blue bucket goes out.
“The best part for me is my own visits to the galleries, the solitary ones, where I can be around people and still be by myself. That bit creeped up on me and all of a sudden when things got bad at home, I thought, I’m going to the gallery.
“There is an art to that. Whether its deliberate or not. That is an art!”
LOCAL PARENTS LAUNCH DAMNING REPORT ON HOUSING CRISIS
North Edinburgh Parents Action Group has launched an exhibition and publication highlighting the horrific housing conditions local people are being forced to live in.
The group also screened a new film about the lived experience of a local woman’s heart-breaking attempts to secure a decent home for her children.
North Edinburgh Parents Group hope that the event held at Royston Wardieburn Community Centre yesterday will draw attention to the significant impact that poor housing is having on local families’ physical and mental health and will send a clear message to politicians at all levels of government that urgent action is required to tackle North Edinburgh’s housing crisis.
Guests were welcomed by Royston Wardieburn Community Centre chairperson Billy Fitzpatrick and the event was launched by Forth SNP councillor Stuart Dobbin, who has been taking a particular interest and holding surgeries on the issue:
“Living in a home safe from Damp and Mould should be a basic right that all Council and Private tenants should enjoy.
“This important event was made all the more powerful and moving by hearing the testimony of women who, with their families, have to live with Damp and Mould and the exhibition showing pictures from inside their homes.
“Dampness creates a risk to our physical health and our mental health. It impacts on the future life chances of our children. And if not addressed, it places additional burdens on our doctors and the wider NHS services.
“This is the issue that I am most passionate about addressing as a Councillor. By my estimate about one quarter of all Council dampness cases in Edinburgh are in North Edinburgh.
“I have been raising cases and campaigning within the Council for faster action to be taken to eradicate damp from tenants homes, and as a result, the Council has now set up a dedicated, skilled team to do just that. Early days and a lot to do.
“I want to hear from residents who have damp and mould, or are having difficulty getting the problems addressed.
“I will be at Pilton Community Health Project tomorrow morning (Friday) from 09.15-11.00 if anyone needs to discuss this or any other matter that I can help with. Or you can email me – cllr.stuart.dobbin@edinburgh.gov.uk”
Few who attended the event could fail to have been moved by the heart-rending stories of local woman struggling to be heard. The women, for many of whom English is not their first language, bravely shared their dreadful experiences to a packed room.
As one said after the event: “Speaking to a big crowd made me very nervous and I wasn’t sure that I would be able to do it.
“But we all did do it – we had to do it. We want people to hear how we are living.”
A spokesperson for the group said: “We understand that there are no simple solutions or easy fixes to Edinburgh’s current housing emergency.
“However, Edinburgh is one of the richest cities in the country and it is time that all levels of government – Edinburgh Council, the Scottish Government and the UK government – come together and prioritise spending on improving housing conditions in this city.
“We are serious about our demands and we are prepared to do whatever it takes to secure a decent place to live. We hope that we do not have to resort to a class action which is the route that over 50 tenants from various local authorities have taken in order to secure a warm, safe home.
“However, nothing is off the table. Enough is enough!”
Sara, who spoke at the event, said: “We welcomed the opportunity to tell our stories and have our voices heard.
“We’re fed up of nobody listening to us and being blamed for causing the problem. It’s not our fault. It’s well documented that people have been having problems with dampness and mould down here for decades and its time that something was done about it for once and for all”.
Susan, another member of the group, added: “We are really disappointed that the ‘high heid yins’ didn’t come to our event to hear our stories and see for themselves the conditions that people are having to put up with.
“We will be making sure that they all get a copy of our report and we will be expecting to hear from them soon about how they are going to respond to our demands. They need to understand that we’re not going away.”
Dr Olivia Swann, Clinical Lecturer in Paediatric Infectious Disease at Edinburgh University, also spoke at the event.
Thanking the women for their moving testimonies, Olivia’s presentation explained how homes are much more than just physical structures and made clear that “strong scientific evidence has shown that poor housing can affect someone’s physical and mental health throughout their life”.
Sara says this is an extremely worrying fact for those of us with young children who have been living in mouldy homes for most of their young lives.
Dawn Anderson, Director of Pilton Community Health Project (PCHP), who attended the event along with members of her Board, including former Leith MP/MSP and Holyrood Health Secretary Malcolm Chisholm, said: “We are very concerned about the problems the parents group has raised.
“PCHP has been supporting people to get help for some time. One parent has been working with Media Education on a new film featuring the nine year battle of Anita, a local women, desperately trying to escape her damp house”.
Dawn explained how it was fitting that the parents action group had called their exhibition ‘Home Sweet Home’: “It’s 40 years since PCHP was established in North Edinburgh and dampness and ill-health was one of the first issues the campaigners worked on. Meetings with local parents led to a womens’ group forming.
“They produced a slide show called “Home Sweet Home” and presented it to health professionals in the area. This resulted in The Scottish Executive backing a research project conducted by the University of Edinburgh who established a direct link between dampness and ill-health all those years ago.
“There have been countless studies on this issue over the years which have drawn the same conclusions. Sadly, we can see from Anita’s film and from the parents stories and photographs, little has changed and family’s in the area are still faced with health threatening living conditions.”
The Group is already planning a follow-up event to build on the momentum created by yesterday’s launch.
HOME
A poem by members of North Edinburgh Parents Action Group
Edinburgh Leisure, the city’s leading sports and leisure provider, has received a significant grant from the Encouraging and Supporting Grassroots Activity Fund to support their dementia programme.
Funded by Age Scotland’s About Dementia project in partnership with the Scottish Government, Edinburgh Leisure has received £19,800 to support their Movement for Memories programme.
Sam Scott, Development Officer at Edinburgh Leisure, welcomed the support saying: “We’re delighted and thankful to receive the grant.
“The funding will enable us to continue offering people with dementia in Edinburgh a range of opportunities to keep active, from 1:1 support from buddy volunteers to enjoy activities of their choice, to dementia friendly activities within our sports and leisure facilities, to our physical activity outreach service with community groups across the city.
“Edinburgh Leisure is always looking for volunteers to support people living with dementia. Our volunteers make a real difference by accompanying and supporting individuals with dementia to take part in a physical activity of their choice, like gym, golf, fitness classes, tennis, or swimming.
“Whatever the participant enjoys, your support will play a vital role in helping them enjoy their activity and improve their wellbeing. So, if you have an interest in health and physical activity, we’d love to hear from you.”
The funding will support people like 79-year-old David, who plays badminton with his buddy volunteer at Craiglockhart Leisure and Tennis Centre.
His sister and carer Julie said: “David used to play football professionally, so physical activity has always been a big part of his life. He wanted to keep active, but his dementia meant that he could no longer do it without extra support.
“The change in him since he started playing badminton has been enormous. His short-term memory is poor, but he remembers how to play, and he hasn’t lost his competitive spirit. He comes out of the session like a new man – his spirits are lifted, he’s chattier, and often his memory seems to improve for a while. He’s almost like ‘enhanced David’ when I pick him up.”
Movement for Memories offers people at all stages of their dementia journey with a range of options to be active, from personalised one-to-one support to enjoy activities they previously enjoyed independently but need a helping hand with now, to a physical activity outreach service for local support groups to enable people to get active in familiar community settings like church halls or community centres.
All participants referred to Movement for Memories receive an Edinburgh Leisure card providing 12-weeks free access to gym, swim, golf, tennis, and fitness classes followed by 9 months of subsidised access.
Not only does getting active help participants to maintain or improve their physical health, but it also helps them to improve their mental wellbeing, build social connections, remain integrated in their community and maintain independence for longer.
Dementia affects an estimated 8,000 people in Edinburgh and 90,000 people in Scotland, an estimated 3,000 of whom are under 65.
Dementia is not an inevitable part of ageing. It is an umbrella term that can be caused by a number of diseases which, over time, damage the brain, typically leading to deterioration in both brain and bodily health.
The most common types of dementia are Alzheimer’s disease, vascular dementia, mixed dementia, dementia with Lewy bodies, and frontotemporal dementia.
