Edinburgh Health and Social Care Partnership – The NEN

Charity warns lives are at risk as specialist funding withdrawn

Deaf Action says EIJB decision has left some people in dire situations

The lives of deaf people have been put at risk by Edinburgh Integration Joint Board’s (EIJB) decision to withdraw specialist social work funding, according to Scotland’s leading deaf-led charity.

Deaf Action is urging Edinburgh’s health and social care body to reinstate the services, including social work support, specialist equipment and preventative, community-based assistance with immediate effect.

The organisation argues that the EIJB’s decision contradicts council leader Jane Meagher’s claim that a four percent rise in Council Tax will see it “protecting frontline services for those most in need of our support”.

Deaf Action has highlighted numerous examples of how the decision has affected the deaf community in the city, including one of a woman who had a ‘Do Not Resuscitate’ (DNR) order added to her medical records after a stroke because staff thought she couldn’t communicate.

In fact, as a British Sign Language (BSL) user she needed an interpreter and it was only an ad hoc welfare visit to the woman in hospital by a BSL-using Community Care Assistant that identified the problem. The woman involved was too unwell to be interviewed for this press release.

Deaf Action’s campaign has won the support of several MPs and MSPs, including the deputy first minister, Kate Forbes.

Philip Gerrard MBE, chief executive of Deaf Action, said: “Edinburgh once had specialist, deaf-led BSL-first services that helped people navigate daily life in their own language. Those services have been dismantled, one after another, and the result is that deaf people are now being pushed into generic systems that are not designed for BSL users.

“When you take away that language provision, you take away accessibility. It increases the risk of people being misunderstood, left isolated or falling through safeguarding gaps. The Council must restore these services as a matter of urgency.”

Jennifer Staples, who was born deaf and has lived in Edinburgh all her life, relied on Deaf Action’s specialist BSL-led support for more than four decades.

Through regular access to a dedicated social worker and later community-based services, she was able to manage everyday tasks, understand important correspondence and live independently with confidence.

Since the withdrawal of these services, Jennifer says she has been left struggling to navigate basic aspects of daily life, facing increasing isolation and uncertainty.

Jennifer said: “Every Thursday I knew that there was a two-hour slot, I could see a social worker, a person I knew, and I would go regularly. They could sign fluently and we communicated directly. But then the contract was changed and I was lost. It’s so different going through an interpreter. There were barriers everywhere.

“For example, I had a problem with my gas meter. The company stopped sending me printed bills and sent emails instead. They put on my account that I was deaf, but they kept trying to call me and I obviously can’t take a phone call.

“Nowadays I have to ask my family for help, but they don’t have any time, so I don’t know what I’m supposed to do. It’s really stressful. I’m worrying about it all the time and I don’t sleep well because of it.

“I really hope that the Council brings something back for deaf people in Edinburgh – we need support.”

Deaf Action points to a further example of a deaf man with special educational needs who went without heating for four months over the winter due to communication failures within generic social care services.

Despite raising concerns, he did not fully understand the advice given by a visiting social worker about arranging an engineer, leaving the problem unresolved from November until February.

Deaf Action argues that the replacement of specialist provision with generic services is a false economy. The charity produced a cost analysis study which concludes that removing specialist deaf-led support does not eliminate need or reduce public spending; instead, it shifts demand into far more expensive crisis services.

Three key services have been cut in sequence over the past 18 months:

Deaf Social Worker (cut September 2024) – specialist, deaf-aware support with cultural understanding and BSL-first assessment and safeguarding
Specialist Equipment (March 2025) – deaf-specific equipment such as alerting systems, with repairs, replacements and specialist advice
Community Care Assistant Service (November 2025) – deaf-led, preventative support helping deaf people navigate health, care and day-to-day life

Philip Gerrard added: “The cuts contradict Scotland’s stated ambition under the British Sign Language (Scotland) Act, passed a decade ago, to be the best place in the world for BSL users to live, work, learn and visit,

“And this all comes just a few months after a UK Government report (link below ^[1] ) called for the reintroduction and strengthening of the role of specialist social workers and sensory teams across local authorities”.

As well as calling for the reintroduction of the specialist services, Deaf Action wants the Edinburgh Health and Social Care Partnership to publish a full equality and social impact assessment that considers the cumulative effect of the cuts.

Philip Gerrard, who has met with the City of Edinburgh’s leader, Jane Meagher, and Connor Savage, the Chair of its Integration Board, said he hopes constructive discussions can continue.

REPORT: Locked out: Exclusion of deaf and deafblind BSL users from health and social care in the UK (full report – BSL and English versions)

Edinburgh Leisure’s ‘Balanced Life’ programme supports older adults to prevent falls

WORLD FALLS DAY – 22nd SEPTEMBER

As the world marks World Falls Day on 22nd September, Edinburgh Leisure is shining a spotlight on its Balanced Life programme – a specialist initiative helping adults reduce their risk of falling and maintain independence.

Falls are one of the leading causes of injury and hospital admissions among older adults. They place a significant burden on the NHS and social care, but many are preventable. It is estimated that falls cost the NHS more than £2.3 billion annually. In 2023, over 15,000 people attended A&E in relations to a fall, 10,000 of which were people over 50 years old. (Lothian Falls Prevention and Management Framework).

Working in collaboration with the Edinburgh Health and Social Care Partnership (EHSCP), Balanced Life is integrated into Edinburgh’s new Falls Prevention and Management Pathway and is already making a difference across Edinburgh.

As well as Balanced Life, working in partnership with EHCP has enabled Edinburgh Leisure to grow their provision from 33 to 73 classes per week creating capacity to support 2,632 adults this year to improve their balance, strength, and confidence – key factors in preventing falls.

Balanced Life is an evidence-based two-tiered falls prevention programme designed for adults who have had or are at risk of having a fall. Offering a range of tailored classes which build strength, balance and mobility, this programme supports people to maintain their independence and enhance their quality of life through targeted exercises delivered by specially qualified instructors.

Level 1 – Active Balance is a weekly class focusing on functional exercises that promote balance, confidence and daily movement
Level 1 – Grounded Balance is a weekly class which teaches participants how to get down to and up from the floor safely using backward training principles to reduce ‘long lies’ following a fall
Level 1 – Dynamic Balance is a weekly circuit-based class which focuses on strength and functional fitness
Level 2 – Balance Plus is designed for people with a higher falls risk of having a fall. People referred to Balance Plus are asked to attend 3 classes per week to build their strength, mobility and balance confidence

Claire Craig, Health and Wellbeing Manager at Edinburgh Leisure, said: “Falls are widely recognised as a significant and costly, yet largely preventable, source of harm within the health and social care system.

“We are excited to be working with Health & Social Care to expand our successful Steady Steps programme, launching a new two-tiered programme to reduce falls and frailty in the city.

“This collaboration is focused on reducing avoidable harm caused by falls and delivering meaningful, city-wide benefits for the people of Edinburgh, improving lives and helping ease pressure on the NHS.”

Hannah Cairns, Chief Allied Health Professional at the Edinburgh Health and Social Care Partnership, said: “We have enjoyed working closely with Edinburgh Leisure on the falls prevention pathway.

“They bring a wealth of experience in the role of physical activity in health and wellbeing, and have a proven track record of delivering groups and services that have a positive impact on people’s lives.

“We are proud to support the development of Balance Life, a key contributor to the integration of physical activity within the newly developed falls prevention and management pathway.

“This collaboration is focused on reducing avoidable harm caused by falls and delivering meaningful, city-wide benefits for the people of Edinburgh.”

By supporting people to stay active and steady on their feet, Balanced Life is helping to reduce avoidable falls and the associated healthcare costs.

Balanced Life is referral-only, ensuring those most at risk are supported. Health and social care professionals can refer eligible individuals.

Edinburgh Leisure remains committed to promoting healthy ageing and tackling health inequalities through inclusive physical activity programmes.

To find out more about Balanced Life or how to refer someone, visit https://www.edinburghleisure.co.uk/activities/balanced-life/ or speak to your local health practitioner.

If you would like to find out more about how people can reduce their risk of falling, visit https://services.nhslothian.scot/fallssupport/i-live-in-edinburgh/

St Columba’s: Immediate action needed on hospice funding

Scottish Government and local partners must act now to protect vital palliative care services

St Columba’s Hospice Care and Marie Curie Edinburgh are warning that essential palliative and end-of-life care services are now at serious risk due to funding decisions made by the Edinburgh Health and Social Care Partnership (HSCP) and inaction by the Scottish Government.

The HSCP has chosen to reverse a 3% inflationary uplift in funding to hospices, which they committed to earlier in the year. This decision was taken in reaction to the Scottish Government announcement of an additional £5 million to help hospices address workforce pressures.

That £5 million was solely intended to support hospices with the recruitment and retention of skilled staff during a time of extreme pressure, not to replace existing funding agreements.

This decision from HSCP undermines the purpose of the allocation and places essential palliative and end-of-life services across the Lothians at risk. To date, St Columba’s Hospice Care has not received its share of the £5 million, which is approximately £496,000. The delay is creating further financial uncertainty and threatening frontline services for patients and families.

We call on the Scottish Government and HSCP to:

Reinstate the 3% inflationary uplift immediately.
Release the national pay parity funding without delay.
Commit to a national review of hospice funding to ensure equity and sustainability across Scotland.

Jackie Stone, CEO, St Columba’s Hospice Care, said: “Hospice’s are being pushed to make very difficult decisions that may impact on our patients and families. This reversal sends a devastating message to our staff and to the families we care for that fair pay and essential services are negotiable. They are not.

“The Scottish Government made a public commitment to fair pay and sustainable services, but we are being left with broken promises and growing deficits.

“We urge the Scottish Government and local partnerships to act now before we are forced to withdraw services that thousands of people across Edinburgh and the Lothians rely on every year.”

Hospices are an integral part of Scotland’s healthcare system and must be treated as such. They need sustainable, equitable funding. The government must act now to ensure a consistent national approach to hospice funding.

Hospices deliver vital, high-quality care that the NHS relies on, and they must be supported, not penalised, for working to achieve fair pay for their staff.

More voices speak out against devastating EIJB funding cuts

EDINBURGH INTEGRATION JOINT BOARD PLANS TO END £4.5 million GRANTS TO 63 COMUNITY PROJECTS

SCOTTISH COUNCIL of VOLUNTARY ORGANIATIONS (SCVO)

SCVO response to proposal by Edinburgh Integrated Joint Board to remove grant-funding from voluntary organisations:

Letter to Councillor Cammy Day, Leader of City of Edinburgh Council,

Professor John Connaghan OBE, Chair of NHS Lothian

cc Pat Togher, Chief Officer EIJB

Proposal by Edinburgh Integrated Joint Board to remove grant-funding from voluntary organisations

I am writing to add SCVO’s voice to the protests regarding the IJB’s proposal to withdraw funding in-year from charities and community groups. 37 of our members are impacted by this decision.

The intention outlined in the board paper to take a more strategic and collaborative approach in the future has been totally undermined by the impact of reneging on this year’s grant funding.

Trust is a fragile thing, and it will take a long time to rebuild any sense that the council and the health board have an understanding of, or respect for, the voluntary organisations that do so much to support our communities.

When you look to build your strategic partnership in 2025, many of them simply won’t be there because they will have gone out of business.

Far from saving money, this will generate significant costs to public services as people fall through the cracks, and the additional millions of pounds voluntary organisations bring in from trusts and foundations or the private sector through match funding and other fundraising activities will disappear. A truly strategic approach would be looking to maximise that income-generation, not cut it off.

It appears that over 100 people who were already in a precarious enough position will lose their jobs. And the discretionary effort of hundreds more volunteers will be lost.

It is evident that when money is tight, which I recognise it is, the council and the health board have retrenched and focused on short-term savings rather than the public good.

The table in the board paper which illustrates where the money could be “better spent” says it all – to the IJB, acute services matter more than prevention or early intervention. As well as being short-sighted ethically and financially, it flies in the face of all the evidence around what communities need and the rhetoric around person-centred services and prevention.

I would urge you to intervene and stop the IJB making a decision everyone involved will regret.

Yours sincerely,

Anna Fowlie
Chief Executive, SCVO

BIG HEARTS: “The value the charity sector brings to our local communities should never be in doubt.”

VOLUNTARY HEALTH SCOTLAND:

VHS Chief Executive @MistryTej has commented on the recent cuts being proposed by Edinburgh IJB.

What will it take for recognition of the crucial work the third sector are doing to reduce health inequalities?

#WEAREVITAL

VOLUNTEER EDINBURGH:

Along with the rest of the sector we are extremely concerned by the proposed early cessation of EIJB grant funding to 64 voluntary sector organisations. As well as the loss of important services and the associated job losses, this will impact volunteering.

Volunteers are at the heart of the affected organisations, contributing 206,000 hours of support to people in the community worth over £2m. These volunteering opportunities are not only a lifeline to people they help support.

They also enable local people to be active in their communities, build confidence, develop skills, reduce isolation – all of which contribute to better health outcomes for volunteers themselves.

The impact of the loss of these volunteering opportunities cannot be understated.

LIVING RENT:

64 charities are at the risk of closure due to £4.5 million worth of proposed cuts. This will have devastating effects for tenants, for workers and for communities across Edinburgh.

Let’s defend our community centres, services & jobs.

Join us to say NO to Labour-led cuts!

SCOTT ARTHUR MP:

I have today (Wednesday) written to the Cheif (sic) Officer of the EIJB opposing the proposed cuts to the third sector in my constituency – I expressed my concerns in the strongest possible terms.

I support @cllrcammyday fully in his call for fair funding for Edinburgh.

Edinburgh Integration Joint Board meets TOMORROW (Friday 1 December) in the Dean of Guilds Room at The City Chambers at 10am.

The following organisations will make their case against the cuts at the meeting:

Papers for the meeting are below:

EIJB-Public reports pack 01112024 Download

Edinburgh’s Social Care Crisis: Conference Agenda announced

SATURDAY 14 SEPTEMBER from 10am – 1pm

AUGUSTINE UNITED CHURCH, GEORGE IV BRIDGE

THE agenda for Saturday’s Edinburgh Social Care Crisis Conference has been announced.

The conference has been convened by Edinburgh Trade Union Council and is sponsored by UNITE Edinburgh Not For Profit Branch, UNITE City of Edinburgh Council Branch, UNITE Lothian Retired Members Branch, Edinburgh EIS Branch and the Scottish Trades Union Congress.

The conference will be attended by three Edinburgh MSPs: Foysol Choudhury, Sarah Boyack and Daniel Johnson.

Des Loughney, Secretary, Edinburgh Trade Union Council says: “”The conference is open to the public, trade union and community health activists and social care users and paid and unpaid carers.

“There will be a discussion of the impact of the Edinburgh Integration Joint Board cuts that are being implemented in this financial year (£55 million).

“We are concerned that prevention services will be cut and that rising demand (mainly due to demographic reasons) will not be met.

“The conference will conclude by a discussion on the way forward in campaigning for more resources for IJBs and how can we lobby for more resources to prevent current damaging cuts.

“We will consider how we can seek to change Scottish Parliament policies in the run up to the 2026 elections.”

Conferenceagenda Download

Keeping Edinburgh Active

Edinburgh Leisure’s Danceability is featured in the new ‘Keeping Edinburgh’ podcast which has recently launched for people across Edinburgh to help boost social connections across Scotland’s Capital.

Danceability, funded by Edinburgh Health and Social Care Partnership (EHSCP), is one of several activities on offer as part of Edinburgh Leisure’s Fit & Active Programme – supporting those with disabilities to access socially connected, wellbeing-boosting fitness activities.

Support to get Fit & Active can be accessed by making a referral to Edinburgh Leisure’s Active Communities team. Everybody who is referred gets an access card that gives them reduced-cost access to activities such as the gym, swimming, or fitness classes for 1 year.

Edinburgh Leisure takes referrals from the Local Area Co-ordination Team supporting young adults, from support providers and social workers or people with a learning disability can also self-refer to request support.

Using their card, participants can attend any of Edinburgh Leisure’s gym, swim or fitness class sessions, as well as their specific Fit & Active activities for adults with learning disabilities that are available at Meadowbank Sports Centre and Leith Victoria Swim Centre.

Sara Kemp, Equalities Community Development Officer for Edinburgh Leisure, explains: “The funding from EHSCP is around supporting people to have more good days and physical activity is key to this.

“There is a lot of data out there that says that people with physical and learning difficulties were among the most affected by services closing and not restarting after the pandemic. They also experienced the most social isolation.

“If you think about lockdown, a lot of people who come to our classes rely on support workers to go out and meet other people so they can have fun in social situations – and all that was taken away.

“A lot of services didn’t restart after COVID-19 and that was due to a lack of funding for some of them, and at the beginning, due to restrictions on space. But Edinburgh Leisure has managed to restart Danceability and customers have started to come back after this period of potentially quite long isolation with the disabled community once again able to get out and socialise, and have a good time.”

The benefits of exercise are well documented. Beyond the physical benefits, keeping active can improve mental health, quality of life and overall well-being. The second episode, Keeping Edinburgh Active, explores how organisations are offering opportunities to improve accessibility for anyone to keep active, and how keeping active is helping build confidence amongst those facing emotional or physical struggles or other disadvantages.

The new ‘Keeping Edinburgh podcast’ launched in late November and is presented by Edinburgh-born singer-songwriter (and keyboardist to Callum Beattie) Gus Harrower. As well as a touring musician, Gus was approached for this project thanks to his ongoing work as an established Community Musician, working with major charities and organisations to empower and improve people’s well-being through music.

The initial six-episode pilot series is an investment by the Edinburgh Health and Social Care Partnership, with the podcast designed and delivered in collaboration with partners across NHS Scotland and the third and independent sectors.

The series aims to highlight just some of the thousands of opportunities across the capital to support people’s well-being and launches at the start of the winter period – a time that sees increased pressure on health and social care services with research showing that those experiencing loneliness are more likely to visit their GP or A&E during this time.

Each half-hour episode provides an immersive audio journey into some of the many free-to-access social-prescribing experiences across the Capital, that are helping individuals and communities to have more good days. The first two episodes are available now to download via Apple and Spotify and feature experiences from several established Edinburgh organisations including Capital Theatres, Edinburgh Leisure, and Volunteer Edinburgh.

Dr Linda Irvine Fitzpatrick, Strategic Programme Manager at the Edinburgh Health and Social Care Partnership is committed to addressing social isolation as it is the number one public health issue globally.

She says, “It’s an issue we all have to try and tackle. Part of that comes from increasing our individual and collective awareness of the breadth and range of opportunities out there that can offer people the opportunity to connect with one another and have more good days.”

“Whether it’s arts initiatives, community meals, physical exercise, mindfulness, or simply getting outdoors, there are many different options to benefit from. We want to showcase a ‘tip of the iceberg’ view of what’s out there, as well as help listeners, get a taste of what it’s like to be part of different groups and activities – experience what it’s like to be in the room or places alongside people already benefitting from these activities.

“We hope to build that shared knowledge as well as that confidence with listeners to take their own first steps by hearing directly from others who are benefitting from these wonderful programmes.”

Launching with an initial two episodes – Keeping People Connected (ep 1) and Keeping People Active (ep 2) – further episodes of the initial six-episode series will be released monthly covering initiatives and spaces across the arts, physical activities, community gardens, volunteering, and more.

The ‘fly on the wall’ audio experience aims to offer an engaging content experience for anyone. For avid podcast listeners, its content and style of storytelling is one that sits within multiple genres, with a strong slant towards society and culture, as well as the podcast’s health and well-being-boosting intentions.

Listen now: www.podfollow.com/keepingedinburgh

Find out more: www.edinburghhsc.scot/moregooddays

More information on Fit & Active: https://www.edinburghleisure.co.uk/fit-and-active

To discuss a referral to Fit & Active get in touch by emailing:

active@edinburghleisure.co.uk

Tackling health inequalities: Edinburgh’s Community Link Workers are finalists in Scottish Health Awards

Edinburgh’s Community Link Worker Network has been recognised for the work they do to tackle health inequalities in this year’s Scottish Health Awards.

The Network has been chosen as one of three finalists for the 2023 Tackling Health Inequalities award, highlighting the impact of the 24 community link workers (CLWs) who are helping improve the lives of people in some of the most deprived areas in the city.

Alison Leitch, Assistant Service Manager for the Network said: “We are delighted that the work of Edinburgh’s Community Link Worker Network has been recognised by this nomination for the Tackling Health Inequalities Award.

“Over the past five years the Community Link Workers havw shown their adaptability and commitment through the pandemic and the cost-of-living crisis.

“They have worked tirelessly to improve the lives of people in the most need, building relationships and trust to focus on what matters to an individual, not what is the matter with them. As they concentrate on the activities that make the most difference to people and communities, both now and looking to the future, they continue to change lives for the better.”

The Network’s recently published annual review for 2022/23 illustrates the increasing impact that they are having in communities across the city and the real difference they are making for people facing a range of health inequalities.

Since 2018, Edinburgh’s CLWs have:

Received 19,220 referrals
Carried out 44,920 engagements
Made 29,425 links to community groups

Last year alone, they also successfully applied for nearly £100,000 of crisis grants on behalf of patients, helping them pay for necessities such as bills, clothes, furniture, equipment and so much more.

Ian Brooke, Deputy Chief Executive of EVOC (Edinburgh Voluntary Organisations Council) said: ‘I am so excited that Edinburgh’s Community Link Worker Network, which is funded by the Edinburgh Health and Social Care Partnership, is one of the finalists for this award.

“It’s a real testament to the Edinburgh model of community link working, where all staff are employed by local voluntary organisations and therefore truly embedded in communities across the city. The 24 CLWs are delivering real, tangible action to reduce health inequalities for people in the city.”

The 24 CLWs cover 45 GP practices in Edinburgh and are employed by ten different voluntary sector organisations – Carr Gomm, Caring In Craigmillar, Community Renewal, Cyrenians, Edinburgh & Lothians Greenspace Trust, Health All Round, Pilton Community Health Project, Penumbra, Space & Broomhouse Hub, The Health Agency.

The 2023 Scottish Health Awards will take place at the O2 Academy in Edinburgh on Thursday 2nd November.