The Circuit: Charities and health organisations urge people to registertheir defibrillators on database to help save lives
A new campaign has been launched across Scotland to urge defibrillator owners to register their devices on a national database to help save more lives from cardiac arrests.
Leading charities and health organisations have come together calling for defibrillators to be registered on The Circuit – The national defibrillator network, which connects defibrillators to NHS ambulance services across the UK, so that in those crucial moments after a cardiac arrest they can be accessed quickly to help save lives.
There are around 3,200 out-of-hospital cardiac arrests every year in Scotland, but only one in ten people survive.
Every minute that passes without CPR or defibrillation reduces the chances of survival by up to 10 per cent in some instances, but immediate CPR and defibrillation can more than double the chances of survival.
It’s estimated that public-access defibrillators (PADs) are used in less than one in ten out-of-hospital cardiac arrests across the UK – often because 999 call handlers aren’t always aware that a defibrillator is available nearby because the ambulance service hasn’t been told about it. If they don’t know it is there, they can’t direct someone at the scene to retrieve it while waiting for the ambulance to arrive.
To help save more lives, The British Heart Foundation (BHF), Resuscitation Council UK (RCUK) St John Ambulance and Association of Ambulance Chief Executives (AACE), are urging people who look after defibrillators in places such as offices, communities, shopping centres and leisure centres, as well as in public places, to register them on The Circuit.
James Jopling, Head of BHF Scotland, said: ““Every second counts when someone has a cardiac arrest and, alongside CPR, prompt use of a defibrillator is critical in giving them the best chance of survival.
“To put it simply, knowing where the nearest defibrillator is could be the difference between life and death.
“The Circuit is pioneering technology which will help emergency services direct bystanders more quickly to a defibrillator when someone collapses with a cardiac arrest. But for The Circuit to save lives, it is vital that unregistered defibrillators are put on the system. If you, or somebody you know is a defibrillator guardian, then we urge you to register your device on The Circuit. You could help save a life.”
Pauline Howie, Chief Executive of the Scottish Ambulance Service, said: “When someone calls 999 to report a cardiac arrest, the call handlers in our control rooms are trained to provide the location of the nearest registered defibrillator within 500m of the call.
“Studies show that using a defibrillator within three minutes of collapse, along with starting CPR, can greatly increase chances of survival.
“This swift action can make a real difference, and The Circuit is a vital tool in helping increase bystander action to help someone in cardiac arrest. Over the last five years, the Save a Life for Scotland (SALFS) partnership which includes SAS, the Scottish Government and the Scottish Fire and Rescue Service has equipped over 640,000 people with CPR skills, and the survival rate after an out-of-hospital cardiac arrest has doubled to one in ten people.
“However, there’s more we can do, and to help save even more lives, we would urge everyone to register the defibrillators that they are responsible for on The Circuit, so that they can be easily located and accessed when needed.”
Dr James Cant, Chief Executive Officer at Resuscitation Council UK, said: “A cardiac arrest can happen to anyone, anywhere, at any time. Not only is defibrillator use a crucial step in the Chain of Survival, the presence of defibrillators in public places can help raise awareness and stimulate people to think about what they would do in an emergency.
“Survival depends on all links in the Chain of Survival being carried out quickly. This means early recognition and calling for help, early CPR, early defibrillation and post resuscitation care – and The Circuit plays a vital role in giving people their best chance of surviving a sudden cardiac arrest.”
While the 14 UK ambulance services have previously had their own regional databases, The Circuit will eventually replace these with a new national database that lets the ambulance services see defibrillators across the UK once it has been rolled out. This will allow them to direct people to the nearest defibrillator when somebody is having a cardiac arrest, wherever they are.
The Circuit, which is already live in 12 of the 14 ambulance service regions across the UK[1] and will become nationwide soon, could help to save thousands of lives – but it is vital that as many defibrillators as possible are registered on the database for it to work effectively.
It’s free to register your defibrillator onto The Circuit, and you only have to do it once. You can also register multiple defibrillators if you are the guardian to more than one.
Visit TheCircuit.UK for more information or to register your defibrillator.
A new Scotland-wide fund supports charitable organisations providing social, emotional and practical help within their communities with grants up to £10,000.
Scotland is one of two pilot regions in the UK to offer the new PHP Community Impact Fund thanks to Primary Health Properties PLC (PHP). PHP is a Real Estate Investment Trust supporting the NHS in the delivery of primary care buildings, which positively impact the health and wellbeing of the communities they are located in.
Grants are available to charities and community groups that deliver social prescribing and community wellbeing initiatives to the communities served by the primary care centres owned by PHP.
Social prescribing enables a holistic approach to people’s health and wellbeing. It allows GPs and other frontline healthcare professionals to refer patients to a link worker to explore ‘social prescription’ options. Many services provided by the voluntary and community sector can offer solutions to improve patients health and wellbeing.
Examples of services activities that can be included in social prescribing schemes include healthy eating advice and cooking classes, mindfulness activities, music classes, sports and exercise groups, gardening, therapeutic art activities, book clubs, and Men’s Sheds.
Social prescribing is an innovative and growing movement with the potential to reduce the financial burden on the NHS and particularly on primary care. Social prescribing also plays a vital role in helping communities recover and rebuild after the coronavirus pandemic, particularly given the increased demand for services to support mental health and combat loneliness.
Grants are available for social and charitable activities and services that aim to improve the health and wellbeing of patients and communities surrounding the 38 different PHP locations across Scotland. The fund also looks to support the education, promotion and protection of good health within these communities.
Helen Wray, Head of Programmes at Foundation Scotland, said: “We’re delighted to partner with PHP to establish this new fund in Scotland. The new Community Impact Fund has launched at a critical time following the height of the pandemic.
“As our NHS continues to be under immense pressure, this is a fantastic initiative from PHP to help improve patient wellbeing outcomes, quality of life and emotional wellbeing.”
The fund is open until 25th October, offering grants up to £10,000 to charitable organisations within a 10-mile radius of PHP’s 38 locations across Scotland.
Their locations range from Dingwall in the Highlands down to Gretna Green in Dumfriesshire.
EVOC is inviting Edinburgh-based charities and local good causes of all sizes, to attend the Good Cause Launch Event on Thursday 9th September at 2pm, where you will get a chance to find out more and sign up.
How the Lottery Works:
Tickets for the Edinburgh Community Lottery will cost £1. A whopping 60p (compared to just 25p from tickets by the National Lottery) from every ticket goes towards local good causes.
There will be a weekly draw with a jackpot of £25,000 for a matching sequence of six numbers. The other prizes on offer include: £2500, £250, £25, or three free tickets!
There are two parts to the Edinburgh Community Lottery scheme:
Good causes across Edinburgh will be able to set up their own lottery page, receiving 50p from every £1 spent by players. A further 10p from every £1 will go into an EVOC good causes fund, with the remainder being put towards prizes, operating costs, and VAT.
Players who do not wish to support a specific cause can still take part in the Edinburgh Community Lottery, with 60p from their ticket going into the general EVOC good causes fund, which will then be distributed by the organsation.
EVOC’s Deputy Chief Executive, Ian Brooke, said: “We’re really excited to be launching the Edinburgh Community Lottery, a new way to support communities and good causes in Edinburgh.
“While the past eighteen months have thrown a spotlight on the amazing work of community groups and voluntary organisations everywhere, it has also stretched staff, volunteers, and resources up to and beyond breaking point.
“That, combined with the loss of fundraising activities in light of Covid restrictions, means that the Lottery is a really important new opportunity for good causes to raise money, making sure they can continue to support citizens and communities across our city.”
If you would like to find out more, get in touch with the Edinburgh Community Lottery team at EVOC: communitylottery@evoc.org.uk
More than 120 organisations from across Scotland are urging First Minister Nicola Sturgeon to double the Scottish Child Payment in this year’s Programme for Government.
The campaigners say the 1 in 4 children living in poverty in Scotland cannot wait.
In an open letter the End Child Poverty coalition is calling on The First Minister to “do the right thing” to help thousands of poverty-stricken children and families.
The letter in full:
Dear First Minister,
As a broad coalition of national organisations, community groups, academics, trade unions and faith groups, we are writing to you to urge you to use the upcoming Programme for Government to commit to doubling the Scottish Child Payment in this year’s budget.
We welcome the Scottish Government’s commitment to tackling child poverty, evidenced in the setting of statutory child poverty targets, introducing the Scottish Child Payment and the upcoming incorporation of the United Nations Convention on the Rights of the Child. These steps have laid the foundation for tackling child poverty in Scotland and we have been delighted that they have been supported across Scotland’s political spectrum.
This cross-party agreement was also evident in May’s Holyrood elections, when all Scotland’s five main political parties committed to doubling the Scottish Child Payment. Such political consensus is welcome, and provides the opportunity for your government to act quickly and decisively in doubling the payment now.
To do so would provide a lifeline to families who are struggling to stay afloat. Even before Covid-19, people across Scotland were being swept up in a rising tide of poverty, with child poverty rising in every Scottish local authority. And the pandemic has exacerbated existing inequalities in Scotland and pulled many more people – particularly women, disabled people, and Black and minority ethnic people – into hardship.
With women’s poverty being inextricably linked to child poverty, the pandemic’s impact has pulled children across Scotland ever deeper into poverty. It has hit lone parents – the overwhelming majority of whom are women – particularly hard, a group already disproportionately affected by years of social security cuts.
Unlocking people from this poverty requires long-term work to tackle the structural inequalities around the labour market – particularly for women, disabled people and Black and minority ethnic people – and it will also require action like further expanding childcare provision. But we also need action now to boost incomes in the short term.
Every level of government has a duty to boost incomes where it can, and we are clear that the UK Government must scrap its planned and unjust £20 Universal Credit cut. But just as the UK Government has a moral responsibility to do the right thing, so too does the Scottish Government have a moral responsibility to use all of the powers at its disposal to loosen the grip of poverty on people’s lives.
We have the powers, we have the urgent need, and we have the cross-party consensus to double the Scottish Child Payment. If your government is to truly make ending child poverty a ‘national mission’, and if we are to ensure that a more just Scotland emerges from the pandemic, then we must not delay. Children growing up in the grip of poverty right now – as well as their parents and care-givers – simply cannot endure until the end of this Parliament to be unlocked from poverty. Their lives and life chances are too important for this action to wait.
The evidence is clear that if it is doubled now, it will represent the single most impactful action that could be taken to help meet the interim child poverty targets in 2023, and would signal that ending child poverty will be a defining priority for this Scottish Government and Scottish Parliament. If it is not, more and more children will be pulled into poverty and the opportunity to meet the interim child poverty targets will be missed. Under the current roll out plan and value, the Scottish Child Payment will reduce poverty in Scotland by between 2 and 3 percentage points. This could leave child poverty rates as high as 26% in 2023/24, when the interim target in legislation for that year is 18%. We cannot allow that to happen.
We therefore urge your government to do the right thing, to capitalise on the cross-party consensus that already exists, and to commit to doubling the Scottish Child Payment in this year’s budget. We look forward to your response.
Kind regards,
Peter Kelly, Director, Poverty Alliance
Claire Telfer, Head of Scotland, Save the Children
Paul Carberry, Director for Scotland, Action for Children
SallyAnn Kelly, Chief Executive Officer, Aberlour
John Dickie, Director, CPAG Scotland
Martin Crewe, Director, Barnardo’s Scotland
Jamie Livingstone, Head of Oxfam Scotland
Satwat Rehman, Director, One Parent Families Scotland (OPFS)
Amy Woodhouse, Joint Interim CEO, Children in Scotland
Christine Carlin, Scotland Director, Home-Start UK
Clare Simpson, Manager, Parenting Across Scotland
Anna Ritchie Allan, Executive Director, Close the Gap
Polly Jones, Head of Scotland, The Trussell Trust
Mary Glasgow, Chief Executive, Children 1st
Eilidh Dickson, Policy and Parliamentary Manager, Engender
Hugh Foy, Director, Xaverians UK Region
Russell Gunson, Director, IPPR Scotland
Dr Patrycja Kupiec, CEO, YWCA Scotland – The Young Women’s Movement
The Rt Hon Lord Wallace of Tankerness QC (Jim Wallace), Moderator of the General Assembly, The Church of Scotland
Emma Cormack, Chief Executive Officer, The Health Agency
Gillian Kirkwood, Chief Executive, Y sort it Youth Centre
Agnes Tolmie, Chair, Scottish Women’s Convention
Linda Tuthill, CEO, The Action Group
Steven McCluskey, CEO, Bikes for Refugees
Trishna Singh OBE, Director, Sikh Sanjog
Professor Adrian Sinfield, Emeritus Professor of Social Policy, University of Edinburgh
Jimmy Wilson, CEO, FARE Scotland
Ian Bruce, Chief Executive, Glasgow CVS
Revd Gary Noonan, Minister, Houston and Killellan Kirk
Jacqui Reid, Project Lead, EBI Unites
Innes McMinn, Manager, Independent Living Support
Suzanne Slavin, CEO, Ayr Housing Aid Centre
Fiona Rae, Interim Chief Executive, Community Food Initiatives North East
Mhairi Snowden, Director, Human Rights Consortium Scotland
Juliet Harris, Director, Together (Scottish Alliance for Children’s Rights
Tressa Burke, CEO, Glasgow Disability Alliance
Martin Wilkie-McFarlane, Director, Wellhouse Housing Association
Morna Simpkins, Scotland Director, MS Society
Kara Batchelor, Operations Manager, Alexander’s Community Development
Murray Dawson, Chief Executive, Station House Media Unit
Ashli Mullen, Creative Director, Friends of Romano Lav
Professor John McKendrick, Co-Director of the Scottish Poverty and Inequality Research Unit, Glasgow Caledonian University
Justina Murray, Chief Executive Officer, Scottish Families Affected by Drugs and Alcohol
The online lessons are available to everyone, and will build a wide range of skills, from improving confidence online to developing a website for your business, managing your money and staying connected with friends and family. The academy also provides access to online events for small businesses and charities to network virtually and hear from expert speakers.
Bank of Scotland’s latest research revealed that 67% of people said they would improve their digital skills if they knew support was available.
The new data also found that almost two-thirds (63%) of people across Scotland are spending more time online. People are not only spending more time online but are also doing more online. For those who have tried new things for the first time during lockdown, more than nine in ten (94%) expect this to continue in the long-term and almost a fifth (17%) are concerned that their digital skills still aren’t good enough.
More than half (53%) of Scots rely on the internet for day-to-day life and 49% agreed being online helped them to find and get a job.
Philip Grant, chair of Lloyds Banking Group’s Scottish Executive Committee, said: “During the pandemic, digital skills have been a lifeline for many, helping people stay in touch with friends and access services like banking and online shopping.
“Being online has become part of everyday life for many more people and creating the Bank of Scotland Academy is all about helping people build the right digital skills.
“For small businesses digital confidence and capability have been crucially important. In the last year, 44% of small Scottish businesses wouldn’t have continued trading without digital facilities.[1]
“Having the right digital skills means that people can stay connected with loved ones, businesses can run more efficiently, and charities can raise more funds by reaching more people.
“The lessons are open to everyone, easy to follow and completely free, so my message is: get involved.”
Kate Forbes MSP, Cabinet Secretary for Finance and the Economy, added: “Digital technology plays a key role in a great many aspects of our lives and is essential to our economic recovery. As many people also choose the convenience of digital banking services, industry led initiatives such as the Bank of Scotland Academy will ensure that our financial system remains inclusive and accessible.
“If people have access to devices and the skills and confidence to use them, it will have significant benefits in economic growth and ensuring services work for us all. I would encourage anyone who thinks they would benefit to make use of this excellent new resource.”
The live lessons and resources have been created by Bank of Scotland with the help of expert learning and technology partners. The number of lessons available will evolve over time to reflect changing needs.
Sessions can be booked through Eventbrite[2] and more bespoke sessions will also be available, built around the specific needs and objectives of organisations.
FACE (Fighting Against Cancer Edinburgh) and Goodtrees Neighbourhood Centre have each received a £1,000 donation inaugurating Barratt Developments East Scotland’s Community Fund giveaway for 2021.
Barratt Developments, which includes both Barratt Homes and David Wilson Homes, celebrated a record-breaking 2020 after its charitable efforts topped more than £46,000 in donations across Scotland, including £14,000 in the east of Scotland.
Each year, the five-star housebuilder works with a wide range of local causes and has continued to step up its efforts through the Barratt and David Wilson Community Fund, which donates £1,000 to a deserving local cause in each of its three Scottish divisions every month.
FACE is a charity based at Western General Hospital that supports patients and families who have been affected by cancer.
The housebuilder’s donation will go towards making hospital stays more comfortable and welcoming, such as camp beds for a relative to stay close to a loved one, refurbishment of wards and complementary therapies to promote wellbeing for those who are unwell.
Goodtrees Neighbourhood Centre, based in Moredun, has worked throughout the pandemic to provide a ‘one-stop-shop’ for food and other essentials for local people in need.
To date the youth volunteers have delivered over 50,000 packed lunches, tens of thousands of hot meals and food parcels to families affected by poverty and the elderly and shielding across Liberton and Gilmerton.
Alison Condie, managing director at Barratt East Scotland, said: “FACE and Goodtrees carry out incredible work supporting those affected by cancer and those in need.
“We’re pleased to be able to help them and hope that our donation will allow them to continue to provide these crucial and important services through what continues to be difficult times for us all.”
Welcoming the donation John Macaulay, Convener at FACE added:“Through our fund raising we aim to provide ‘the little things’ that make a difference for patients and families affected by cancer.
“The donation from Barratt has gone towards a special shower reclining chair at the Western General Hospital, enabling us to shower patients with multiple care needs who otherwise may only be able to be washed in bed.
“The staff are delighted, and it is already making a difference for the ward and patients they care for, including those receiving treatment for cancer.”
John Beatson, Project Manager at Goodtrees Neighbourhood Centre said: “Goodtrees Neighbourhood Centre were delighted to be chosen for Barratt Homes’ £1,000 donation. It came as a surprise and is particularly special to us, as being put forward for the fund by a Barratt employee shows that the work that our young people and staff carry out is valued within the wider community.
“We plan to use part of the donation to fund a treat to the elderly community we support with the rest of the donation giving us the opportunity to give back to our incredible youth volunteers, the key driving force behind our service, when guidance allows.”
As part of the housebuilder’s ongoing charitable activities, Barratt East Scotland also took part in a virtual 500k challenge, raising over £16,000 for The Prince’s Trust, and walking a total combined distance of 1,721km over the three-week competition period.
The division’s Land team is also providing in-kind support to Empty Kitchens Full Hearts, a foodbank based in Leith which turns surplus food into free meals for those in need.
Now in its third year, the Barratt Homes Community Fund pledges to donate £1,000 each month to a charity or organisation in the east of Scotland. Charities are nominated by and voted for by employees of Barratt Homes and the focus for the fund continues to be on organisations that improve the quality of life for those living in the area.
Interested charities can enquire about donation opportunities at
A group of charities is urging for the approval of a drug that can treat an underlying genetic cause of a life-limiting muscle-wasting condition.
Duchenne muscular dystrophy (DMD) primarily affects boys and causes muscles to weaken and waste over time, with most of those affected needing to use a wheelchair by the age of 12. The life-limiting condition also causes other severe health problems to the heart and breathing muscles.
The drug Translarna, however, can help treat cases of a version of Duchenne that is caused by nonsense mutations.
Today, Muscular Dystrophy UK, Action Duchenne, Duchenne Family Support Group and Duchenne UK are appearing before the Scottish Medicines Consortium (SMC) to represent patients who could benefit from Translarna and to seek its approval for use on the NHS in Scotland.
In its joint submission to the SMC ahead of today’s meeting, the charities outlined evidence from a survey conducted earlier this year.
They provided evidence that highlights clear improvements to quality of life reported by those receiving the drug. Significantly, many families of children receiving Translarna say they retained the ability to walk for longer than expected, and that this gave their child greater independence to complete daily tasks and take part in activities with friends.
Families also reported huge behaviour improvements at school and home, as well as positive mental health outcomes.
If SMC approves the submission, Translarna would be the first treatment routinely available through the NHS in Scotland that addresses an underlying genetic cause of Duchenne muscular dystrophy.
One parent who took part in the survey, and whose thoughts were included as evidence in the submission, explained: “For our son knowing that he has a medication to help his muscles is a massive boost to him.
“We believe that every time we receive our Translarna it lifts his spirits in this fight. We never for a moment take for granted how lucky we are to be receiving this drug and feel it’s something in our corner as we face this battle head on.”
If approved, Translarna would be given in addition to the current standard treatments on the NHS in Scotland.
A spokesperson for the four charities said: “Every day is a race against time to slow down Duchenne muscular dystrophy, a progressive condition that robs children of their ability to walk and their independence.
“Muscular Dystrophy UK, Action Duchenne, Duchenne Family Support Group and Duchenne UK are pleased to have represented the voices of patients in our joint submission to the SMC.
“We believe our submission highlights both the physical and mental health benefits of Translarna, a drug that has the potential to improve lives for so many families living with Duchenne. We very much look forward to hearing the SMC committee’s thoughts on our submission.”
Sixteen frontline charities have formed a new partnership to encourage those with long-term health conditions and their carers to get the COVID-19 vaccine.
Sixteen charities will work together to help save lives through the vaccine roll out
Those with underlying health conditions and adult carers in cohort 6 encouraged to take up the jab
Organisations will help promote access to important advice and information on vaccines
Organisations including The British Heart Foundation, Macmillan Cancer Support and Mencap are joining with the government and NHS to promote vaccine uptake among those the charities support every day.
Since 15 February those in cohort 6 – people with certain underlying health conditions and their carers – have been receiving invites from their GP practice to come forward for life saving vaccinations to protect them from COVID-19.
Working with the government on the UK’s largest ever medical deployment, the charities will use the combined strength of their networks to reassure people with long-term health conditions about the safety and effectiveness of the vaccine.
Health and Social Care Secretary Matt Hancock said: “The incredible success of our vaccination programme has only been possible by working in partnership with the NHS, health and care professionals, local partners and our volunteers.
“Having the support of the charities who work every day to support the very people we are reaching out to in cohort 6 is a great boost for the rollout which continues to show what we can achieve when we pull together as one.
“Their help, encouragement and links with communities next in line for the jab will help make sure everyone can get access to the life-saving protection the vaccine provides and help protect those with underlying conditions and their carers.”
The organisations which have signed up so far to become members of the coalition are:
African Caribbean Leukaemia Trust (ACLT)
Asthma UK
British Heart Foundation
British Liver Trust
British Lung Foundation
Cancer Research UK
Carers UK
Diabetes UK
Epilepsy Action
Kidney Care UK
Lupus UK
MacMillan Cancer Support
Mencap
MS Society
Sickle Cell Society
Terrence Higgins Trust
These charities support those included in priority vaccination categories, including cohort 6 which covers individuals aged 16 to 64 with certain long-term conditions identified by the Joint Committee on Vaccination and Immunisation as being at higher clinical risk from COVID-19.
These conditions include chronic respiratory, heart, kidney, liver disease and neurological conditions, including MS and epilepsy, vascular disease, diabetes mellitus, immunosuppression, asplenia or dysfunction of the spleen, morbid obesity, severe mental illness, as well as sickle cell, lupus and those on GP learning disability registers.
Following the government meeting its target of offering a first dose vaccine to the top four priority groups by 15 February, all those in cohort 6 are now eligible to get the jab and should be receiving their invitation for their first dose.
Minister for Vaccines, Nadhim Zahawi, said: “The vaccine is our way out of this pandemic and offers the chance to protect yourself and others – that’s why it’s vital that people get their jab when called to come forward.
“The rollout is a truly UK wide effort which is why having the support of these fantastic and trusted charities as we work to ensure everyone eligible gets their vaccine is so important.
“I would like to thank them all for backing this life-saving campaign and offering their expertise and assistance to support the largest medical deployment in British history.”
Cohort 6 also includes carers who are eligible for a carer’s allowance, or those who are the sole or primary carer of an elderly or disabled person who is at increased risk of COVID-19 mortality and therefore clinically vulnerable.
The charities will support the campaign by sharing content across their channels, including a new campaign video featuring people in cohort 6 getting their jab, and putting forward both those who represent the charities and those the charities work with to encourage others to take up the vaccine.
Chris Askew OBE, Chief Executive of Diabetes UK, said: “We are incredibly proud to be working with other leading voices in the charity sector to encourage people to get their COVID-19 vaccine.
“People with diabetes have been disproportionately affected by the pandemic and have a higher risk of becoming seriously ill if they develop coronavirus.
“For people living with diabetes, the best protection against coronavirus is to get the vaccine and take whichever vaccine you are offered.”
People in group 6 who are at higher clinical risk from coronavirus and have not already been contacted will be invited for a vaccine by their local GP team.
Co-Founder and Chief Executive of ACLT, Orin Lewis, said: “The ACLT feels compelled to ensure we do all we can to guarantee any decisions made regarding the COVID-19 vaccine, is done with knowledge of the verified facts and the science behind the vaccine.
“Far too many lives have already been lost, however now there is a real opportunity for positive change especially on behalf of patients with immunosuppression systems linked to stem cell, blood and organ related disorders.
“We feel extremely passionately people should seriously consider protecting themselves, their loved ones and society at large.
When they do make that decision, they need to ensure it’s an informed one based upon verified facts and not myths, fears and taboos.”
Sixteen charities have already joined the campaign and more are welcome to help boost the vaccine drive and save lives.
ENABLE Scotland, National Autistic Society Scotland and Scottish Autism have today launched the ‘Our Voice Our Rights’ Campaign calling on the major political parties to commit to a Commissioner for autistic people and people with a learning disability at the forthcoming Holyrood election.
The ‘Our Voice Our Rights’ campaign aims to make Scotland the best country in the world for the 56,000 autistic people, the 120,000 people with a learning disability and their families in Scotland. A country where human rights are respected and upheld; everyone has equal access to the services and support they need throughout their lives; and where autistic people and people with a learning disability are active citizens and fully supported to fulfil their potential.
While there have been many ambitious and well-intentioned strategies over the years from Government and partners, and an extensive regulatory framework, the charities hear day in day out how too many people are struggling to access their human rights to education, work, a family life, healthcare, to high quality social care services, and to be free from discrimination in their communities.
Many individuals and their families are exhausted from fighting tooth and nail to get the much-needed support and status as equal citizens. A fight that sadly, they often lose, leaving many in crisis, something brought into sharp focus by the pandemic and the pressures on the system.
In the lead up to the Scottish Parliamentary Elections in May 2021 the three charities are standing together with autistic people and people who have a learning disability to say ‘enough is enough’ and calling on all the major political parties in Scotland to commit to a Commissioner to ensure real change.
The Commissioner would be the first of its kind in the world, established in law to champion the human rights of autistic people and people with a learning disability.
They would be a powerful voice, improving access to services and advocating on people’s behalf when they cannot and importantly helping people have the choice and control to live a good life, free from discrimination.
They would close the current gap – between what the law says and what actually happens in reality. They would lead improvements and importantly people would also have recourse when the system falls short and fails to deliver for them.
The charities have launched the campaign alongside autistic people, people with a learning disability and families including the broadcaster Stuart Cosgrove.
A website is now live with a series of videos featuring people from across Scotland making the case for change. People are also being encouraged to get involved and to contact the party leaders to call for a Commissioner for autistic people and people with a learning disability to be included in their election manifestos.
Peter McMahon who has a learning disability and is a member of ENABLE Scotland said: “We need a Commissioner for Learning Disability and Autism so that people who have a learning disability like me aren’t put on the back burner or forgotten about.
“With a Commissioner working with us we can improve access to services and speak up for people when they cannot. Most importantly we can help people live good lives with choice and control and free from discrimination. People with learning disabilities feel invisible, we don’t want to be the invisible people any more and feel a Commissioner would help us.”
Broadcaster Stuart Cosgrove who has an autistic son said: “This campaign has the capacity for real positive change – As a family we’ve been lucky in that Jack got his autism diagnosis early on as a child but like all parents I worry about what happens when he grows up and leaves school.
“We of course want him to be independent, have his own place, a relationship, a job, all the usual things that parents hope for, but we also know those are likely to be challenging for him – he’s going to need that bit extra help and support.
“I believe by and large Scotland has a caring culture but establishing a Commissioner at a national level with a legal obligation to look into the different aspects of public life would make a huge difference. It would help Scotland lead the way to creating a society that fully includes and values autistic people.”
Charities working with children and families on low incomes will receive a share of £3.3 million to help meet the needs of those affected by poverty at Christmas and in the new year.
The money forms part of the £100 million winter support package announced by the First Minister last month – of which £22 million is to specifically support low income families. The £3.3 million committed will support those most in need of help, including lone parents, families with a disabled child or young person, kinship carers, care leavers and families with a loved one in prison.
Nine charities will receive funding to support their work, or to distribute to grass-roots organisations. The money will go to help with essential items such as food, warm clothing and nappies, heating, bedding and furniture and white goods, and to support a scheme giving gifts to disadvantaged children who might otherwise go without a present on Christmas Day.
The charities benefiting are the STV Appeal, Cash for Kids, Aberlour, Barnardo’s, Action for Children, Family Fund, Families Outside, Who Cares? Scotland and One Parent Families Scotland.
Communities Secretary Aileen Campbell said: “The Winter Plan for Social Protection, announced by the First Minister on 30 November 2020, already includes a one-off £100 per child payment for those in receipt of Free School Meals who are on low incomes, to be paid by Christmas.
“Whilst this is an important boost to family incomes we also want to help families with children of pre-school age.
“This funding will strengthen the help available to families across Scotland – supporting people during the festive period and throughout the winter months.
“We have taken unprecedented action to support people affected by the impact of COVID, with over £500 million committed for social protection since the onset of the pandemic. This latest investment is part of wider support available to people including increased funding for the Scottish Welfare Fund, Discretionary Housing Payments, and through wider third sector and councils action.”
Margaret Ford, Chair of STV and STV Children’s Appeal, said: “Amidst the seasonal festivities, it’s sometimes easy to lose sight of the fact that winter is one of the most difficult times of the year for so many families across Scotland, and the economic impact of Covid-19 will be an additional issue this year.
“We work closely with dozens of charities and projects across the country to help the most vulnerable in society, and this new support package will go some way in doing that. We’re pleased to be helping to distribute these funds, so that essential food, clothing, shelter and heating can be provided to those who need it most in this particularly challenging period between now and the spring.”
The charities to be supported by this funding include:
