Latest Accident & Emergency Activity report highlights scale of health inequalities

The latest Hospital Episodic Statistics (HES): Hospital Accident and Emergency Activity 2020-21 published by NHS Digital and NHS England show that attendance rates in the most deprived areas of England were almost double the attendance rates in the least deprived areas.

The data show in 2020-21 in the most deprived areas of England there were 39,161 attendances per 100,000, while in the least deprived areas this figure is almost halved to 20,784.

Dr Katherine Henderson, President of the Royal College of Emergency Medicine, said: “The pandemic has highlighted the scale of health inequalities across the country. The data show that those from the most deprived area are almost twice as likely to visit their Emergency Department than those from the least deprived area.

“We welcome NHS England’s willingness to engage on the issue and address health inequalities, but we must see real action taken. We also look forward to the formation of the Office for Health Improvement and Disparities (OHID) and would welcome the opportunity to input into their agenda.

“The health inequalities are clear and tackling them will be a serious challenge. On a fundamental level, if the government is serious about levelling up and tackling these inequalities, the first steps must be to fund and support local authorities and Integrated Care Systems and invest in preventative health.

“The scale of health inequalities means tackling homelessness; immigrant health; domestic violence; and youth violence. While supporting those with; mental health illnesses; learning disabilities; and both drug and alcohol addiction.”

There were also 1.39 million reattendances in 2020/21 which is equal to 10.4% of all unplanned attendances. This is the highest figure on record and up 1.7 percentage points when compared to the previous year 2019/20.

Dr Henderson continued: “It is also deeply concerning that one in ten patients reattended the Emergency Department (ED), it is vital that patients have the appropriate information and support available to manage their condition following their visit to the ED. We need better data on this issue to understand what is driving people to reattend.”

In 2020/21 302,784 patients stayed in an Emergency Department for 12-hours or more from time of arrival, this is 21 times higher than the 12-hour figure from decision to admit, which is 14,150.

Dr Henderson concluded: “Utilising the right metrics in Emergency Departments is crucial to improving patient safety. It is vital that we measure health equalities, reattendances, and 12-hour stays from time of arrival across the country.

“Analysing these metrics will help us, NHS England and the government to take effective action to support the patients, communities and areas that need it most. That means fewer reattendances, closing the gap on health inequalities, reducing long stays, and improving the patient experience.

“This data paints a very real picture of the state of health and the state of healthcare in this country. We welcome the engagement of NHS England and the government’s agenda on these matters, but we must now see the tangible actions taken to tackle these issues.”

Leading with Kindness: Carnegie UK urges organisations to put kindness at their heart

Nearly two years ago, Carnegie UK first convened a Kindness Leadership Network (KiLN), made up of members from different sectors spread across England, Scotland and Wales, with the stated aim of supporting and challenging organisations to move kindness ‘off the page’ and into practice.

As with many things, COVID-19 changed the nature and timetable of this programme of work, but it also presented opportunities for embedding kindness in organisational responses to the pandemic.

Today, we are delighted to launch a set of materials that tells the story of KiLN which we hope will inspire and support other organisations to join this growing movement in seeking to put kindness at the heart of their practice.

1.       Our main report, Leading with kindness, narrates the journey we’ve been on since 2019: how KiLN members adapted to COVID-19, and what we learnt about what is possible when kindness becomes an operating principle.

2.       The report culminates with a Commitment to Kindness, which distils the collective experience of KiLN members into six goals designed to enable organisations of all kinds and in all places to sustain and deepen their focus on kindness.

3.      Alongside this, we worked with Simon Anderson and Julie Brownlie to produce Getting the measure of kindness – a guide that aims to support organisations to develop their approach to the persistent challenge of measurement.

4.      Finally, over the next week we’ll be releasing a number of digital stories that aim to communicate the value and importance of kindness in a new way for people within organisations, and people interacting with organisations (look out for these on social media).

However, we don’t just want to share this learning; we want it to lead to action that improves wellbeing.

Therefore, if these reports resonate with the journey that you and your organisation are on, we invite you to endorse the Commitment to Kindness, to use it as a framework to enhance your organisation’s approach to implementing kindness, and to join a growing movement of ‘kind organisations’.

Finally, we would love to hear your thoughts and reactions, which you can share with the team via ben.thurman@carnegieuk.org and with others at @CarnegieUKTrust

#CommitmentToKindness.

With best wishes

SARAH DAVIDSON

Chief Executive, Carnegie UK

Twitter: @CarnegieUKTrust

www.carnegieuk.org

New report calls for ‘revolution’ in Scottish land use

– Findings based on expert analysis and public consultation events.

– Launch of new body to monitor progress on “urgent and combined actions.”

The Scottish Government, councils and landowners need to take “urgent and combined actions” to tackle the climate emergency and biodiversity crisis, according to a new report.

The report, published by the Scottish Ecological Design Association (SEDA), sets out eight recommendations to tackle the challenges facing biodiversity, food production, renewable energy, health and well-being.

The co-ordinated approach calls for the rapid development of new strategies and plans alongside reforms to existing regulations and continued investment in innovative businesses, public services and infrastructure.

If implemented, new Healthy Food, Agroecology and Sustainable Place strategies would be combined with strengthened requirements under the Land Rights and Responsibilities Statement as well as Climate Impact Certificates detailing land use impacts.

The New Vision for Land Use in Scotland report also calls for continued investment in transport, renewable energy and communications infrastructure across Scotland along with seed funding for innovative new businesses.

The integrated approach would be underpinned by support for secondary and tertiary education in creating a climate conscious, motivated and skilled workforce.

In developing the recommendations, SEDA hosted events with nearly 50 of the best-informed speakers on all aspects of rural land use. The experts participated in 6 Conversations with designers, architects, businesses, campaigners and the general public. In all, over 1,250 people took part in the Conversations.

Experts believe that little additional government expenditure is required to deliver such a framework, which would encourage and allow the private and third sectors to invest.

However, delivering the recommendations requires significant and rapid changes in processes and greater integration of existing and new policies and procedures.

Gail Halvorsen, Event Organiser for the SEDA 6 Conversations, said: “I felt there was a need for a broad-ranging event on the future of Scotland’s land use in view of the climate emergency and COP26.

“The recommendations that have come from this well-attended series of conversations will cause the greatest change in Scottish land use since the agrarian revolution.

“Crucially, each part of the recommended eight-point programme is dependent on the others to deliver a sustained improvement in climate change mitigation, biodiversity enhancement, health & wellbeing, and economic activity across Scotland.”

An immediate result of the report’s findings will be the launch of SEDA Land, a new forum for SEDA members and experts in land use to continue the discussion, seek to influence land use change and monitor progress made by the Scottish Government, local authorities, land owners and businesses in implementing the changes needed.

SEDA Land will be launched formally alongside a discussion about the report at an event on 6 September.

Catherine Cosgrove, Chair of SEDA, commented: “Our Land Conversations series provided a platform for ideas and experiences to be discussed. This report provides a flavour of the rich debate sparked during these events and eight recommendations we believe the Scottish Government needs to implement rapidly.

“We hope this will be the start of a wider public debate that could revitalise our relationship with the land.”

Deborah Roberts, Deputy Chief Executive at the James Hutton Institute, added: “The need for land use reform has captured people’s imaginations and we particularly welcome the interdisciplinary and science-led approach in this report’s findings.

“As this report makes clear, a sustainable future for Scotland’s land can only be built on a cross-sectoral and multidisciplinary basis, and through the use of principles which take into account people’s needs, sense of community, place and tradition – all of which vary from one region to the next.”

Professor Davy McCracken, Head of Integrated Land Management at Scotland’s Rural College (SRUC) and one of the authors of the report, said: “It is clear that a ‘single policy, single outcome’ approach does not address the needs of rural areas. What is needed urgently is cross-sector policies which are integrated and can deliver across a broad set of issues.

“The Deputy First Minister’s additional role as Cabinet Secretary for Covid Recovery – and especially the responsibility for the coordination of delivery and outcomes across portfolios – will be fundamental to achieving this.”

For more information, visit https://www.seda.uk.net/resources

Climate Change: World must act now to prevent global catastrophe

Climate change widespread, rapid ... and intensifying IPCC

Scientists are observing changes in the Earth’s climate in every region and across the whole climate system, according to the latest Intergovernmental Panel on Climate Change (IPCC) Report, released today.

Many of the changes observed in the climate are unprecedented in thousands, if not hundreds of thousands of years, and some of the changes already set in motion—such as continued sea level rise—are irreversible over hundreds to thousands of years.

However, strong and sustained reductions in emissions of carbon dioxide (CO2) and other greenhouse gases would limit climate change. While benefits for air quality would come quickly, it could take 20-30 years to see global temperatures stabilize, according to the IPCC Working Group I report, Climate Change 2021: the Physical Science Basis, approved on Friday by 195 member governments of the IPCC, through a virtual approval session that was held over two weeks starting on July 26.

The Working Group I report is the first instalment of the IPCC’s Sixth Assessment Report (AR6), which will be completed in 2022.

“This report reflects extraordinary efforts under exceptional circumstances,” said Hoesung Lee, Chair of the IPCC. “The innovations in this report, and advances in climate science that it reflects, provide an invaluable input into climate negotiations and decision-making.”

Faster warming

The report provides new estimates of the chances of crossing the global warming level of 1.5°C in the next decades, and finds that unless there are immediate, rapid and large-scale reductions in greenhouse gas emissions, limiting warming to close to 1.5°C or even 2°C will be beyond reach.

The report shows that emissions of greenhouse gases from human activities are responsible for approximately 1.1°C of warming since 1850-1900, and finds that averaged over the next 20 years, global temperature is expected to reach or exceed 1.5°C of warming. This assessment is based on improved observational datasets to assess historical warming, as well progress in scientific understanding of the response of the climate system to human-caused greenhouse gas emissions.

“This report is a reality check,” said IPCC Working Group I Co-Chair Valérie Masson-Delmotte. “We now have a much clearer picture of the past, present and future climate, which is essential for understanding where we are headed, what can be done, and how we can prepare.”

Every region facing increasing changes

Many characteristics of climate change directly depend on the level of global warming, but what people experience is often very different to the global average. For example, warming over land is larger than the global average, and it is more than twice as high in the Arctic.

“Climate change is already affecting every region on Earth, in multiple ways. The changes we experience will increase with additional warming,” said IPCC Working Group I Co-Chair Panmao Zhai.

The report projects that in the coming decades climate changes will increase in all regions. For 1.5°C of global warming, there will be increasing heat waves, longer warm seasons and shorter cold seasons. At 2°C of global warming, heat extremes would more often reach critical tolerance thresholds for agriculture and health, the report shows.

But it is not just about temperature. Climate change is bringing multiple different changes in different regions – which will all increase with further warming. These include changes to wetness and dryness, to winds, snow and ice, coastal areas and oceans.

For example:

● Climate change is intensifying the water cycle. This brings more intense rainfall and associated flooding, as well as more intense drought in many regions.

● Climate change is affecting rainfall patterns. In high latitudes, precipitation is likely to increase, while it is projected to decrease over large parts of the subtropics. Changes to monsoon precipitation are expected, which will vary by region.

● Coastal areas will see continued sea level rise throughout the 21st century, contributing to more frequent and severe coastal flooding in low-lying areas and coastal erosion. Extreme sea level events that previously occurred once in 100 years could happen every year by the end of this century.

● Further warming will amplify permafrost thawing, and the loss of seasonal snow cover, melting of glaciers and ice sheets, and loss of summer Arctic sea ice.

● Changes to the ocean, including warming, more frequent marine heatwaves, ocean acidification, and reduced oxygen levels have been clearly linked to human influence. These changes affect both ocean ecosystems and the people that rely on them, and they will continue throughout at least the rest of this century.

● For cities, some aspects of climate change may be amplified, including heat (since urban areas are usually warmer than their surroundings), flooding from heavy precipitation events and sea level rise in coastal cities.

For the first time, the Sixth Assessment Report provides a more detailed regional assessment of climate change, including a focus on useful information that can inform risk assessment, adaptation, and other decision-making, and a new framework that helps translate physical changes in the climate – heat, cold, rain, drought, snow, wind, coastal flooding and more – into what they mean for society and ecosystems.

This regional information can be explored in detail in the newly developed Interactive Atlas interactive-atlas.ipcc.ch as well as regional fact sheets, the technical summary, and underlying report.

Human influence on the past and future climate

“It has been clear for decades that the Earth’s climate is changing, and the role of human influence on the climate system is undisputed,” said Masson-Delmotte.

Yet the new report also reflects major advances in the science of attribution – understanding the role of climate change in intensifying specific weather and climate events such as extreme heat waves and heavy rainfall events.

The report also shows that human actions still have the potential to determine the future course of climate. The evidence is clear that carbon dioxide (CO2) is the main driver of climate change, even as other greenhouse gases and air pollutants also affect the climate.

“Stabilizing the climate will require strong, rapid, and sustained reductions in greenhouse gas emissions, and reaching net zero CO2 emissions. Limiting other greenhouse gases and air pollutants, especially methane, could have benefits both for health and the climate,” said Zhai.

Lockdown Lowdown: Job satisfaction soars amongst young Scots – but two fifths worry about future prospects

A new study examining the impact of lockdowns on Scotland’s young people has revealed that over two-thirds (67%) feel positive about their current employment situation as lockdown eases, but only two-fifths of Scottish students are confident about securing future employment. 

Commissioned by the Scottish Government and delivered by the Scottish Youth Parliament, YouthLink Scotland and Young Scot, the study of nearly 2,500 young people serves as a follow-up to previous surveys that explored young people’s concerns in response to the pandemic.

The latest LockdownLowdown research examines the lasting impact of lockdowns and comes as many young people return to in-person education and work as lockdown restrictions ease.

The results revealed that job satisfaction among young people has risen since last year, with 67% of young people feeling good about their current job situation – a 12% increase from the previous LockdownLowdown report in the winter.

However, positive sentiment waned when young people were asked about their confidence in finding a job in the future – with 2 in 5 (37%) of those currently in higher education concerned about securing graduate employment.

In general, employment and finances were leading worries among young people, with more than a third (36%) admitting that their work hours had been cut, while a fifth (22%) were placed on furlough, and 18% lost their job entirely. This comes when over a third (36%) don’t know where to access information on financial support.

The Lockdown Lowdown survey identified mental health as a further concern among young people, with over a third (35%) worried about their mental wellbeing and two fifths (40%) not confident about accessing information on mental health and wellbeing.

Following the reopening of schools and learning environments, over three quarters (76%) of young people have returned to in-person education – with 85% happy to be back. However, nearly half of respondents (44%) felt unprepared in the run-up to this year’s assessments, and only 2 in 5 (38%) were confident that the grades determined by their teachers would be delivered fairly.

Nearly 2,500 young people from across Scotland took part in the research that will be used by the Scottish Government and shared with stakeholders, including the NHS and local authorities.

Josh Kennedy MSYP, Chair of the Scottish Youth Parliament, said:Meaningfully engaging with the views of young people is the only way to ensure that decisions are made with their views and needs at the centre.

“The latest LockdownLowdown report makes it very easy for decision-makers to find out what young people think about restrictions easing. Young people have had an incredibly challenging time over the last year and a half.

“I would encourage every decision-maker in Scotland to look at the views presented in this report and consider them when making decisions about how Scotland comes out of the Pandemic.”

Tim Frew, CEO of YouthLink Scotland, said: “As we strive to return our lives to normal after this really challenging period, it’s vital that government and other decision makers know where young people are at, and their thinking on the pandemic.

“In this latest survey there are very clear messages from young people around anxiety about future employment prospects, mental health remains a significant concern and there are clearly issues about the impact lockdown has had on assessments and results.

“As we continue to come through the pandemic, the voices of young people need to be listened to as we shape the way forward. The findings also show the importance of youth work to many young people, and demonstrates the incredible support youth workers have continued to offer in extremely difficult circumstances.”

Kirsten Urquhart, Interim CEO of Young Scot said: “Given the immense challenges young people have faced throughout the pandemic, it’s no surprise to see rising concern over future employment.

“While a surge in job satisfaction is cause for cautious optimism – we want to reassure young people that Young Scot is here to support every young person with their next steps as we begin to recover from the pandemic.”

TUC survey: 7 in 10 disabled women say they’ve been sexually harassed at work

  • TUC publishes first UK major report into sexual harassment of disabled women at work 
  • Most disabled women surveyed told the TUC they have been sexually harassed at work – and 1 in 8 of those say they left their jobs because of this 
  • TUC calls for a new duty on employers to protect all their staff from sexual harassment at work 

Around 7 in 10 (68%) disabled women surveyed about sexual harassment say they have been sexually harassed at work, according to a new poll published by the TUC. 

And younger disabled women aged 18 to 34 are even more likely to have experienced sexual harassment, with almost 8 out of 10 (78%) reporting being harassed at work. 

Sexual harassment 

A ground-breaking TUC study on sexual harassment published in 2016 found that more than half (52%) of women had experienced sexual harassment in the workplace. And in a further TUC survey in 2019, nearly 7 in 10 (68%) lesbian, gay, bisexual and trans people reported being sexually harassed at work 

Sexual harassment at work can take many forms, from suggestive remarks, jokes about a colleague’s sex life, circulating pornography, to inappropriate touching, hugging or kissing, demands for sexual favours, and even assault and rape. 

This new TUC survey – which is the first major study into the sexual harassment of disabled women at work in Great Britain, and was carried out by YouGov – found that of those surveyed: 

  • Around 2 in 5 (38%) have experienced unwelcome sexual advances at work. 
  • More than 1 in 3 (36%) say they have experienced unwanted touching. 
  • Almost 1 in 5 (18%) experienced sexual assault, such as unwanted sexual touching. 
  • And 1 in 25 (4%) have experienced a serious sexual assault or rape at work. 

Reporting 

Two-thirds (67%) of disabled women who experienced sexual harassment at work told the TUC that they did not report the harassment to their boss the most recent time it happened. Of these, the most common reason was that they did not believe they would be taken seriously (39%). 

Some said they were worried it would have a negative impact on their career or work relationships (30%). Other reasons included not thinking they would be believed (13%) or thinking they would be blamed if they reported the incident (11%). 

And unfortunately, of those who did report the most recent instance of sexual harassment, more than half (53%) said it was not dealt with satisfactorily. 

Impact 

Disabled women told the TUC that sexual harassment had a big effect on their lives. 

Around 1 in 3 (34%) said their experiences had a negative impact on their mental health. More than 1 in 5 (21%) said it negatively affected their relationships with colleagues. And it caused 1 in 8 (12%) to leave their job or employer entirely.  

Disabled women face significant barriers getting into work and to getting paid the same as non-disabled workers, says the TUC. 

TUC research in October 2020 found that disabled women earned 36% less than non-disabled men. And the analysis found that the unemployment gap for disabled women, when compared to non-disabled men was 32.6 percentage points. 

TUC General Secretary Frances O’Grady said: “No one should face sexual harassment at work. But seven in ten disabled women say they have been sexually harassed by a colleague or a customer while at work.  

“Four years on from the explosion of #MeToo on a global scale, employers still aren’t doing enough to make sure women are safe at work. It’s time for every employer to take responsibility for protecting their staff from sexual harassment.  

“Ministers must change the law to make employers protect workers from sexual harassment specifically, and from all forms of harassment by customers and clients.  

“Anyone worried about sexual harassment at work should get in touch with their union.” 

Ministers must act 

The TUC is calling on the government to take a range of actions including: 

  • Introduce a new duty to prevent sexual harassment, putting an enforceable legal requirement on all employers to protect their workers from harassment. 
  • Strengthen legislation to tackle third-party harassment in the upcoming employment bill. 
  • Increase funding for the Equality and Human Rights Commission so it can enforce the new duty to prevent sexual harassment. 
  • Introduce a statutory code of practice on sexual harassment and harassment at work, setting out the steps that employers should take to prevent and respond to sexual harassment, and what can be considered in evidence when determining whether the duty has been breached. 

Research highlights challenges for Scotland’s unpaid carers and carer support workers during pandemic

.

Carers Trust Scotland today is releasing research about the experiences of the pandemic among unpaid carers and carer service support workers across Scotland. More than 500 participants shared the challenges of caring, and supporting unpaid carers, throughout the pandemic.

The pandemic has been difficult for unpaid carers, with 90% of respondents stating they are spending more time caring and 82% saying they have had no respite since the beginning of the pandemic.

With lockdowns and restrictions, many unpaid carers have been unable to share the responsibilities with family and friends and many services have had to pause or reduce their input.

These challenges also impact those carer service workers supporting unpaid carers. As other services paused, 76% of carer support workers that participated found their workload increased. 65% say that their job role has changed, as delivery of support moved online.

Carer support workers highlighted the emotionally demanding calls from unpaid carers, and the challenges of taking these calls in a home working environment without the support of colleagues that you would have in an office.

Hannah Martin, Research and Engagement Officer for Carers Trust Scotland, said:The pandemic has been a very challenging time for both unpaid carers and carer support workers.

“The challenges unpaid carers have faced, have directly impacted those supporting them. Through the lived experience of unpaid carers and carer support workers, this research illuminates those challenges throughout this unprecedented time.”

In addition to providing an evidence base of experiences, the research puts forward recommendations and suggestions to support carer services and staff as they move out of the crisis phase of the pandemic. This includes recognising and valuing the incredible contribution of unpaid carers, and carer support workers over the pandemic period.

World-leading researcher on unpaid carers’ rights and Carers Trust Ambassador, Professor Saul Becker, said: “During the pandemic, unpaid carers of all ages, have been spending more time caring and more people than ever before have taken on unpaid caring responsibilities while statutory and other support services have been reduced or not available.

“This has also added additional pressures on carer support services that have had to adapt their practices quickly and provide holistic support to unpaid carers during very challenging circumstances.

“I welcome this COVID-19 in Scotland impact report on unpaid carers and carer service workers and believe every effort should be made to support the implementation of the report recommendations and suggestions, which could further improve the lives of unpaid carers and recognise and value the vital role of carer support services.”

Mental Wellbeing and Social Care Minister Kevin Stewart, said: “Carers, and the services that support them have done a remarkable job in very difficult circumstances over this past year during the pandemic. I want to thank them for all their hard work and effort.

“During the pandemic, we have invested an additional £1.9 million in extra carer support via carer organisations. The Scottish Government continues to work closely with the Carers Trust and national care organisations to ensure that carers continue to receive the support and the services they rely on. We will continue to do so as we move into a new phase of the pandemic and society starts to open up.

“The Scottish Government is committed to establishing a National Care Service by the end of this parliament to oversee the delivery care, invest in better terms and conditions for the workforce and provide better support for unpaid carers.”

Young Scot Youth Loneliness Panel calls for action in new report

The Youth Loneliness Panel has worked in collaboration with Young Scot, funded by the Co-op Foundation, as part of a two-year project focused on raising awareness of and tackling Youth Loneliness.

The Panel focused on developing a set of recommendations and actions of what needs to happen to ensure youth loneliness is being addressed in Scotland at a strategic level, ensuring consistency and sustainability locally and nationally.

They developed a survey to gather insights and experiences from young people on what the main issues are around loneliness and what needs to be implemented to support any young people who are experiencing loneliness.

This report details the findings of the survey and the recommendations made by the Youth Loneliness Panel based on these results:

People with lived experience have their say on stroke research

The Stroke Association, the UK’s leading stroke charity, is announcing the top 10 priorities for stroke research, uncovered by a study involving stroke survivors, carers and health and social care professionals in stroke.

The charity’s new report – the first UK-wide project to map research priorities across the entire stroke care and treatment pathway – reveals where research can address the issues holding Stroke Association survivors back from rebuilding their lives after a devastating stroke.    

John Watson, Director Scotland of the Stroke Association said: “One in five people will have a stroke in their lifetime. Stroke happens in the brain, the control centre for who we are and what we can do. 

“Every stroke is unique because the brain is so complex and stroke can happen in any part of it. This means there are as many different impacts of stroke as there are stroke survivors, posing a huge challenge for research. 

“According to the most recent figures from the UK Medical Research Council, only £30m of public and charity health research spending goes on stroke. This equates to less than £25 per stroke survivor per year compared to £161 per person living with cancer. 

“Despite major breakthroughs over the last 10 years, we now know where there are significant blind spots in treatment and care. These are holding people back from rebuilding their lives. With the number of people having strokes set to rise – it’s estimated that the number of stroke survivors in Scotland could rise to almost 175,000 by 2035, [3].  We must act now and invest in the research that will make the biggest difference to the lives of people affected by stroke.”  

Keen endurance athlete, Andrew (Andy) aged 48 from Perthshire had a stroke in 2019 – he knows only too well the burden of stroke and gaps in stroke research that matter to people affected by stroke.

Andy said: “Stroke research is important to me.  There are many effects of stroke including fatigue and the psychological consequences of stroke that we should know more about. 

“We need to involve people with lived experience of stroke in decisions around stroke priorities to inform researchers and funders about what really matters to us. We know what our difficulties are, and I believe further understanding of those difficulties is a good step towards finding treatments and solutions to enable people to live the best possible life they can.”

Over 1,400 people affected by stroke and professionals in stroke took part in the project, which was carried out in partnership with the James Lind Alliance (JLA), as well as individuals and organisations representing stroke patients, carers and professionals in stroke. 

The Stroke Association is sharing the findings as part of its new reportShaping Stroke Research to Rebuild Lives: The Stroke Priority Setting Partnership results for investment.” 

The report sets the agenda for stroke research and identifies the areas that most urgently need investment.  There are two lists of 10 priority areas: the first in stroke prevention and acute care, and the second in rehabilitation and long-term care, ranked in order of importance.  

The top priorities in each list are: 

  • Interventions to stop stroke. Stroke strikes every 5 minutes in the UK, but we know that most (80-90%) strokes are preventable [4]. We need increased investment in research so people can avoid the devastating effects of stroke in the first place. 
  • Understanding of, and treatment for mental and emotional problems. Three quarters of stroke survivors experience a change in their mental health [5], we need research so that people can overcome significant effects such as anxiety and depression after stroke.  

Dr Rubina Ahmed, Director of Research and Policy at the Stroke Association, said: “Charities like ours need to look for new ways to help stroke survivors with emotional, mental and communication problems. 

“Establishing what research will make the biggest difference to stroke survivors and those caring for them is just the first step. Stroke research is severely underfunded.  Just £1 in every £100 of public and charity spend in health research is on stroke and this just isn’t enough to solve the big and complex issues caused by stroke. 

“The stroke funding crisis has been worsened by the coronavirus (Covid 19) pandemic, which has had a devastating impact on our income, halving the charity’s research budget.  Stroke research is at risk, which means recoveries of people like Andy are at risk too. Your support can fund the research that will lead to breakthroughs in treatment and care. If you can, please donate so that we can make sure more stroke survivors can rebuild their lives after stroke.  

“We would like to thank everyone who took part in this project: stroke survivors, their carers, professionals in stroke, the James Lind Alliance, the Steering Group members and our partners. By having your say for stroke, you have helped to shape stroke research to rebuild lives.” 

Over the past 30 years the Stroke Association has played a crucial role in supporting stroke research in the UK. By establishing these priorities our charity can support the research that can make the biggest difference to the lives of people affected by stroke.  

Find out how stroke research helps rebuild lives at stroke.org.uk/rebuildinglives or to donate, please visit: stroke.org.uk/saveresearch 

To read the full list of priorities and the report visit: www.stroke.org.uk/psp  

One in Six: Working family poverty hits record high

  • Billions spent on state support enrich private landlords, while one in six working households face poverty 
  • Action needed to bring down housing and childcare costs, and make work pay, to prevent further increases in poverty  
  • Stark new figures show the need to rethink economy and end constant house price spiral, report says 

The UK’s relative poverty rate among working households has hit a record high this century of 17.4 per cent, according to the first comprehensive analysis of official data released last month. 

Working poverty rates among families with three or more children have reached 42 per cent, up more than two thirds over the past decade. 

The figures, reflecting the position just before the pandemic struck, show that working poverty rates have risen across the entire country but are highest in London, Wales and the north of England. Families of all sizes have been affected, with single parents, couples with a single earner and large families affected worst. 

The sharp rise in working poverty (poverty faced by anyone living in a household where someone is in work) is revealed in a newreport by the IPPR think tank.

The report, No Longer Managing, lists four factors behind the growth in poverty: spiralling housing costs among low-income households; low wages; a social security system that has failed to keep up with rental costs; and a lack of flexible and affordable childcare.  

It identifies the economy’s over-dependance on house price growth as a key factor in driving poverty higher, as more families have to rely on renting privately and housing costs for private tenants have risen by almost half (48 per cent) in real terms over 25 years. One in four households is projected to be renting from private landlords by 2025. 

As a result, it says, much of the multi-billion pound benefits bill supports housing costs in the private sector, with any increase effectively channelled into the pockets of private landlords. IPPR estimates that £11.1 billion of housing support spending went to private landlords last year. 

Detailed IPPR analysis of DWP survey data also found that: 

  • Two-earner families where one partner works full-time and one works part-time are increasingly being pulled into poverty, a significant shift. For people in this group, the chances of being pulled into poverty have doubled over the past two decades, from one in 20 to one in 10.
  • Even for households with two people in full-time work, the chances of being pulled into poverty have more than doubled over the same period, rising from 1.4 per cent to 3.9 per cent.
  • Couple households with one full-time earner now have a poverty rate of 31 per cent, almost as high as working households where nobody works full time.
  • London has the highest rate of in-work poverty – 22 per cent – with Wales, the Midlands and the north of England next highest on 18 per cent. The rate is lowest in Northern Ireland (13 per cent). 

The IPPR report argues for new and different long-term targets for welfare, economic and housing policy, which reflect housing, childcare and travel-to-work costs as a percentage of families’ income. 

It says that the government’s current ‘levelling-up’ agenda is “unlikely to benefit working families if it remains largely focused on physical infrastructure” and fails to address growing inequalities. These include rapidly rising house prices and the growing gulf between property owners and renters – often in the most affluent parts of the country. 

Instead it urges developing wider objectives to bear down on some of the highest costs faced by working families – housing and childcare – and to ‘make work pay’. 

The report calls for long-term reforms to: 

  • Contain housing costs as a share of household income. This could include setting a house price inflation target as part of the Bank of England’s remit; greater taxation of property wealth; and investing at least £15 billion in capital grants to help vastly increase the rate of new housebuilding. 
  • Contain childcare costs as a proportion of household income, and make it more flexible. Measures to achieve this would include higher state subsidies for children under five and wraparound care for school-age children, with funding going directly to childcare providers.
  • Make work pay, through labour market reforms, skills policy and higher income support. Greater collective bargaining and unionisation, bearing down on insecure work and increased access to training and skills would all help to raise incomes; but greater support through the social security system, eroded during the transition to universal credit, is also needed so that people are better off in work. 

It also proposes measures to alleviate the problem in the short term, ranging from increases in local housing allowance to changes in childcare payments made through Universal Credit, and a 20 per cent higher minimum wage for zero hours contracts

But it warns that without underlying long-term reforms, government will face a perpetual choice between paying constantly rising social security bills to offset growing in-work poverty – or allowing the number of working families in poverty to increase unchecked, as is currently the case. 

Clare McNeil, IPPR associate director and head of its Future Welfare State programme, said: “These shocking new figures should be a wake-up call for everyone concerned about our future.

“The UK economy’s dependence on ever-rising house prices, and the lack of affordable housing, have trapped us in a vicious circle which, unless broken, will condemn us either to a constantly rising social security bill, or to ever-increasing poverty among working households. 

“A growing private rented sector coupled with high rents enriches property owners at the expense of renters, and represents a transfer of wealth away from people who already have very little, into the hands of others who are steadily accumulating more.  

“We need an alternative to what the government calls ‘levelling up’. That should look beyond headline incomes to the true costs and obstacles people face when struggling to make work pay. Otherwise more and more families who were once ‘just about managing’ will join the growing number who are ‘no longer managing’. 

“Short-term fixes are needed to alleviate the immediate crisis, but to solve the underlying problem we need a far deeper rethink of housing, childcare, social security and work.” 

The Bishop of Dover, the Rt Revd Rose Hudson-Wilkin, who is a member of IPPR’s welfare state advisory panel, said: “The system is broken and it is our responsibility to see that it is changed. 

“Providing a home and building a future for your family is something we all strive for and this report shows that one in six households are trying as hard as they can but still finding it impossible to feed their families and provide a safe roof over their heads. 

The gulf between the rich and the poor is growing, as the pandemic showed us all too clearly. We must do more as a country to ensure that the resources we have been blessed with are shared more equally – now, and in the future.”