Charity to host free Scottish Disability Sports Event for children living with muscle wasting conditions

Muscular Dystrophy UK and Scottish Disability Sport join forces to host a free Scottish sporting event on Saturday 24 August 2024.

The leading charity for more than 110,000 children and adults in the UK living with one of over 60 muscle wasting and weakening conditions is calling on people in Scotland to join the free session.

The event will give children aged under 18 living with muscle wasting and weakening conditions the opportunity to try different sporting activities, such as curling, powerchair football, boccia and swimming.

Children will be fully supported with adaptations, so they can enjoy playing sports, learning new skills, and meeting other children living with a muscle wasting and weakening condition.

There will be an opportunity for people to speak with Scottish Boccia, Powerchair Football Players and representative from Scottish Swimming on the day. Special thanks to Scottish Curling and SPFA for providing equipment.

Paralympian Stephen McGuire, 40, from Hamilton, Glasgow, lives with merosin-deficient congenital muscular dystrophy. From the age of 14 Stephen has used a power wheelchair and has been part of the GB squad for 20 years. He is due to compete in his fourth Paralympian games in Paris (28 Aug – 8 Sept) following his appearances at London, Rio and Tokyo.

He said: “It has always been a dream of mine to compete at the Paralympics, so to be able to compete at my fourth one is incredible. I love competing in sport – sport is my passion. I’ve been hooked ever since, as it’s given me a purpose.

“The sport is really inclusive, you can play Boccia from school level to regional or national level, so I would encourage everyone to give it a try.

“That’s why the Scottish Disability Sport Event is important to help children explore different sports to build up their confidence and abilities. I had the opportunity to speak and demonstrate at some of the events. It’s joyous to see the younger generation getting involved and potentially witness upcoming future Paralympians.”

Jacqueline Munro, Head of Regional Support, Outreach, and Information said: “We’re delighted to have partnered with Scottish Disability Sport once again to offer children aged under 18 the opportunity to try different sporting activities.

“It’s a great opportunity for families to meet others in the muscle wasting and weakening community in Scotland to engage in a fun filled day and find out how Muscular Dystrophy UK can offer support.”

Scottish Disability Sport is the Scottish governing and co-coordinating body of all sports for people of all ages and abilities with a physical, sensory or learning disability.

Joshua Thomson, Events Manager for Scottish Disability Sport said: “Scottish Disability Sport is delighted to be working in partnership with Muscular Dystrophy UK to provide a unique opportunity for children and young people living with muscle wasting conditions.  

“All of the sports are being delivered by coaches from Scottish Governing Bodies with expertise and knowledge in working with people with muscular dystrophy and similar conditions.”

The event will take place between 12.45pm– 4.30pm at Grangemouth Sports Complex, Abbots Road, Grangemouth, Falkirk, FK3 8JB. Accessible toilets and changing areas will be available including a Changing Places toilet.  

Find out more and register your interest musculardystrophyuk.org/Scottish-disability-sports-event

M-Club on Monday

🌿Did you know that you can manage menopause symptoms through food?🌿

Are you navigating through menopause and looking for natural ways to ease the journey? the right Foods can be powerful allies in managing symptoms like hot flashes, mood swings, and bone health.

📆When: Monday 19th of August

📍Where: Pilton Community Health Project

⏱What time: 18:30 – 20:30

Join us in exploring how simple dietary changes can support your body during this transition. Let’s embrace this stage of life with nourishing meals that help us feel our best.

#communitywellbeingprogramme

#FiveWaysToWellbeing

#pchp40

#menopause

#menopausesupport

The NEN North Edinburgh News

Royston Wardieburn Community Centre

Granton Library

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R2

Cancer patients urged to apply for disability benefits

Charity joins Scottish Government to raise awareness of support

A cancer charity has joined forces with the Scottish Government to urge people with cancer to check if they could be eligible for disability benefits.  

Cancer Card Scotland founder Jen Hardy MBE and Cabinet Secretary for Social Justice, Shirley-Anne Somerville, want people with cancer to ensure they’re getting the money they could be entitled to.

Both Adult Disability Payment and Child Disability Payment are available in Scotland to help cover the extra costs of being disabled, having a long-term health condition or being terminally ill.

Importantly, Social Security Scotland fast tracks applications for disability payments from people who are terminally ill. A decision can take as little as 48 hours.

For people with cancer, who are applying under the standard rules, there is a qualifying period before they can be eligible.

Jen, who was diagnosed with breast cancer in 2017, set up Cancer Card Scotland as an online hub where people with cancer could find out about all the support available to them.

Sharing her experience of applying for benefits after her diagnosis, Jen said: “There is a perception that to get disability benefits someone needs to have a physical disability that is there all the time, but that’s not the case. 

“Cancer can have a substantial and long-term effect on someone’s ability to do normal daily activities. It affects you not just physically, but mentally and emotionally as well. For most people, how they feel and the level of help they need changes. 

“For example, every three weeks I have an infusion of life-extending Herceptin, which takes three or four hours. It’s exhausting and I get so tired I can’t move.  

“Without my Blue Badge and my Adult Disability Payment I couldn’t do half the things I do. I want people with cancer to know that it’s okay to get financial support and it’s okay to apply for Child Disability Payment or Adult Disability Payment. 

“Everyone needs help at some point in their life.”

Shirley-Anne Somerville, Cabinet Secretary for Social Justice, said: “Adult Disability Payment and Child Disability Payment are there to help cover the extra costs that come with being disabled or having a long-term health condition such as cancer.

“Getting a cancer diagnosis is difficult enough without worrying about bills. This is money people are entitled to and I urge everyone who is eligible to apply for support.

“Many people with cancer have spoken about how attending appointments and getting treatment can be a full-time job. That’s why we fast track applications from people diagnosed with terminal cancer so that they can get the support they need as quickly as possible.

“Social Security Scotland can help people apply for these payments either over the phone or face-to-face in a location that suits them.

“We also fund independent advocacy service Voiceability to provide help to disabled people applying for Scottish benefits.”

More information on eligibility and how to apply is available via the MyGov.scot website.

Made to be Measured: Scotch Whisky industry launches second year of responsible consumption campaign

The Scotch Whisky Association (SWA) has kickstarted the second year of the Made to be Measured campaign, as part of its ongoing efforts to promote responsible consumption and tackle harmful drinking.  

Following on from a successful first year, in which the campaign reached nearly 600,000 people and achieved 5.5 million impressions, the campaign will continue to target adults in Scotland and communicate the importance of measuring your drinks at home, to understand where they sit in relation to the Chief Medical Officer’s low risk drinking guidelines.  

 The SWA is taking an active role in ensuring the Made to Be Measured campaign supports industry professionals in communicating the importance of responsible drinking effectively with their audience, through a series of online and in-person workshops. 

The collaborative nature of the events allows members the opportunity to share unique insight into the challenges faced by industry while SWA can help equip them with campaign tools and assets.

Working closely in this manner to ensure the campaign meets the needs of those working at the forefront is essential to the ongoing success of Made to Be Measured. 

Initially launched in 2023, Made to be Measured is a responsible consumption campaign with Scotch Whisky at its heart.

The campaign aims to raise awareness of the alcohol content of drinks and the recommended weekly guidelines (units).  As Scotland’s national drink, carefully crafted and only released after many years of maturation in warehouses across the country, Scotch Whisky is there to be savoured and enjoyed responsibly.

The campaign, aimed at adults in Scotland, will continue to run across a range of digital and consumer platforms, all using creative advertising to help convey and clarify the units within Scotch Whisky and other alcoholic drinks. 

One single 25ml measure of whisky (at 40% abv) comes in at one unit, with guidelines from Scotland’s Chief Medical Officer recommending consumers do not regularly drink more than 14 units of alcohol per week.

Fourteen units of alcohol equate to approximately 14 single measures (25ml) of spirits, one and a half bottles of wine or five pints of lager at average strength. 

Mark Kent, Chief Executive of the Scotch Whisky Association,said: We’re pleased to bring the second year of the campaign to audiences in Scotland.

“In order to make responsible choices about alcohol consumption it is important people understand what the unit guidelines are and how this equates to what they are drinking. Made to be Measured strives to inform people in Scotland about the guidelines and encourage them to track what they drink, particularly when consuming alcohol at home.   

“The Scotch Whisky industry takes responsible consumption of its products extremely seriously and wants consumers to understand that it is a product that is meant to be sipped and savoured.

“Distillers take pride in producing each dram, and whether you enjoy it neat or in a cocktail, it should be consumed in a responsible manner.”  

The Poverty Alliance: Experiences of poverty stigma and mental health in the UK

More than 14 million people in the United Kingdom (UK) are currently living in poverty, and the number of people experiencing deep poverty is increasing (Joseph Rowntree Foundation, 2024).

We worked with the Mental Health Foundation and researchers from the University of Strathclyde on this report, where we examine how experiences of poverty stigma are related to mental health outcomes in the UK.

Our aim was to understand the impact of poverty stigma and who is most affected in order to inform solutions.

You read it below, or download it from here.

Suicide in Scotland: Minister responds to ‘distressing’ report

Mental Wellbeing Minster Maree Todd has described a rise in the number of probable suicides last year as “distressing”, saying the increase is driving a determination to deliver change.

National Records of Scotland figures show there were 792 probable suicides in 2023 – an increase of 30 on the previous year.

The Scottish Government is taking action jointly with COSLA to reduce the number of deaths by suicide. This ensures government and local services work together to support anyone at risk of suicide or affected by it, while tackling underlying factors that can lead to suicide, such as inequalities, stigma and discrimination, which have been exacerbated by the pandemic and cost of living crisis.

Self-harm is also a risk factor for suicide and last year saw the launch of the world’s first action plan focussed solely on tackling the issue. This includes funding for a new service where anyone affected by self-harm can get compassionate support, without fear of stigma or discrimination. 

Mental Wellbeing Minister Maree Todd said: “This report makes for distressing reading and my sincere condolences go out to all those who have been affected by the loss of a loved one by suicide.

“I am determined that together with COSLA and other partners we reduce the number of deaths by suicide and improve the nation’s mental health as a whole.

“The ambition and innovation in Scotland’s suicide prevention approach is widely recognised. However, we know there is always more to do.

“We are working hard with communities and services to help people talk more openly about suicide and offer compassionate support. We are prioritising reaching more people at higher risk of suicide, including those living in poverty, middle aged men, and LGBT communities. 

“We are launching an online portal to ensure people feeling suicidal know where to go for help. The introduction of suicide reviews this year will also help us spot missed opportunities to support people and importantly use that learning to redesign services.

“Our wider actions around Mental Health are also helping to prevent suicide. They include funding more than 800 additional mental health workers in A&E departments, GP practices, police custody suites and prisons, and investing in our Communities Mental Health and Wellbeing Fund which prioritises suicide prevention and social isolation projects.”

Chair of the Scottish Government’s Suicide Prevention Academic Advisory Group Professor Rory O’Connor said: “Similar to other countries, sadly an increase is not unexpected given the challenges of recent years, including the cost of living crisis and the economic downturn which have led to financial and social hardship for so many.

“Every single death is heartbreaking, leaving behind devastated families, friends and communities.  We need to continue to do everything we can to ensure that those at risk of suicide receive the care and support that they need when they need it.” 

COSLA President, Councillor Shona Morrison said: “As the voice of Local Government in Scotland, COSLA has taken a strong position on the importance of the mental health and wellbeing of our communities and the need to tackle inequalities that contribute to suicide risk.

“There is a considerable amount of work taking place across local areas in Scotland which supports delivery of the Suicide Prevention Strategy.

“We firmly believe that no death by suicide is acceptable, and we remain committed to working in partnership with Scottish Government to realise the ambitions of our joint strategy ‘Creating Hope Together’ to reduce deaths by suicide, whilst tackling the inequalities which contribute to suicide.”

Anyone affected by these issues can access support from the following services:

Suicide Prevention Scotland responds to 2023 death by suicide data

Suicide Prevention Scotland has responded to today’s release of data from National Records of Scotland (NRS) for 2022  which shows a small year on year increase in deaths by probable suicide.

Statistics released by NRS show that there were 792 suicides registered in 2023, a 3.9% increase on 2022 (which was up 1.2% on 2021’s data). 

It’s the highest number of deaths by suicide since 2020 (805).

To understand how this increase fits into the broader trend, it is essential to consider not just year-to-year changes but also the five-year average, which provides a more stable and reliable measure of trends over time. 

The number of deaths by suicide in 2023 at 792 is very slightly above the previous five-year average (787 for 2018-2022).

Compared to the previous female five-year average (208 for 2018-2022), 2023 shows a decrease of six deaths. Compared to the previous male five-year average (579 for 2018-2022), 2023 shows an increase of 11 probable suicides.

The average age of death by suicide has fallen from the previous year. In 2022 this was 48.2 years; in 2023 it was 46.6 years.

The overall increase in the past year can be attributed to an increase in male suicides by 34 (590). There was a reduction in female suicides by four (202). The rate for men remains three times that of women. 

Looking back over the previous few years, there was a long downward trend in suicide rates from 2011-2017. 

This was followed by an increase in 2018 and 2019, then by a decrease in 2020 and 2021, with the lowest numbers seen since 2017 (680) in 2021 (753). 

The numbers released for 2022 increased very slightly (762). 

The further increase in numbers for 2023 suggest that the downward trend may have stalled, however it is too early to say as several years’ data are needed to confirm an overall trend.

Over the last five years, Scotland’s suicide rates have shown fluctuations, with some years experiencing notable increases. 

For example, in 2018, there were 784 deaths by suicide, a sharp rise from previous years, particularly among young people aged 15-24. The numbers slightly decreased in 2021 to 753 but rose again to 762 in 2022.

Probable suicides in the 15–24-year-old group have increased by ten to 79 in 2023, from 69 in 2022. 

However, the category with the highest increase was the 35-44-year-olds (up 22 to 175), repeating a pattern seen for the previous year’s data, where this age-group also had one of the highest increases in suicide numbers for 2022 (up 22).

In contrast, the biggest reduction seen is in the 65-74-year-old group, which has fallen by 28 to 63 in 2023 from 91 in 2022. 

There has also been a slight decrease over the last year in the 75-84-year-old group, with numbers staying the same in the 55-64-year-old age group.

The decrease in these older age groups was driven mostly by male suicides, which decreased by 22 to 99 in the 55-64-year-olds, and by 12 in the 65-74-year-olds. 

In contrast, the increase seen for 2023 was driven mostly by male suicides in the 35-44-year-old group, which were up 23 to 144, and the highest number in this age category since 2011.

Although 792 people died by suicide in 2023, this number does not consider changes in the population size or how the number of people in different age groups change as time goes by. 

Therefore, suicide rates corrected for these changes give more meaningful comparisons. 

When we use these corrected suicide rates, the highest rates seen in 2023 was among 35-39-year-old males (44.3 per 100,000), an increase of 9.8 from 34.5 in 2022. 

The next highest rate was for 40-44-year-old males (42.1 per 100,000), an increase of 5.4 from 36.7 in 2022. 

In comparison, the highest rate for female suicide rate increased by 7.0 to 14.9 in the 50-54-year-old group.

In 2023, the suicide rate in the most deprived areas was 20.9 per 100,000, compared with least deprived areas of 8.6 per 100,000. 

This means that deaths by suicides in 2023 occurred 2.4 times more in our most deprived communities, an improvement on inequality seen in previous years e.g., 2022 which was 2.6 times more and the previous five-year average 2018-2022, which was 3.1 times more.

In September 2022, the Scottish Government and COSLA (Convention of Scottish Local Authorities) launched the country’s new long-term suicide prevention strategy and action plan, Creating Hope Together

To deliver the new strategy, a new community of organisations and people, Suicide Prevention Scotland, has been established.

Last week it reported on progress made during its first full year in operation

Creating Hope Together sets out four key outcomes. Partnership is at the heart of the approach, with a range of strategic partner(s) appointed to drive delivery. They are:

  • Creating a safer environment that protects against suicide across the whole of Government and society – Samaritans
  • Improving understanding of suicide and tackling stigma – SAMH
  • Providing compassionate support for anyone affected by suicide – Penumbra & Change Mental Health
  • Working in a connected way, that always draws on evidence and lived experience – Public Health Scotland 

A new National Suicide Prevention Advisory Group (NSPAG) has also been established. 

Led by Rose Fitzpatrick CBE QPM, its members represent many of the sectors leading work on the social determinants of suicide. This includes poverty, as well as partners who are working in key sectors affected by suicide — such as the criminal justice sector.

Their role is to provide advice to Suicide Prevention Scotland, Scottish Government and COSLA which helps us focus on the complexity, intersectionality and inequality of suicide. 

NSPAG recently published its first year report and recommendations.

Suicide Prevention Scotland’s National Delivery Lead Haylis Smith comments: “The fact that 792 people died by suicide is a stark reminder we still have so much more to do – and we are determined to keep working together do it. 

“We don’t just think about the number of people who die by suicide on this day in August, they are in our thoughts every day – they help drive us to do this work – to try to help prevent future deaths.

“Every death by suicide is one too many and we need to continue to build our understanding of what we need to do and how we need to do it by listening to the experts, those who study and research suicide and people who have lived and living experience. 

“We’ll use that understanding to help us develop and deliver more action that will save lives.

Ross Cunningham is part of Suicide Prevention Scotland’s Lived Experience Panel. Ross, who lives in Orkney, has suffered from depression and suicidal thoughts and is an advocate for social prescribing. He said:

“The grief experienced by so many people across Scotland who have had to bear the death of a loved one to suicide in 2023, or any year, is a heartbreak beyond words. The loss is something family and friends will tragically have to live with for the rest of their lives.

“Those we have lost aren’t just a statistic, they were people living in Scotland who had a name, had parents, had friends and family who loved them very much, had hobbies, had dreams and ambitions, and had a life of their own – one which cruelly came to an end when they believed that suicide was their only option.

“We must not let the immense loss of life to suicide that these figures represent, and those before it, be in vain. This should be a wake up call to governments, policy makers, employers and wider society that more must be done in all parts of Scotland – in every village, town, city and island community – to take preventative actions and to further support those suffering from depression and suicidal thoughts.

“Everyone can take little steps each day, recognising that you may need to talk to someone or seek support about your own mental health, or even if it’s just checking in with a friend on WhatsApp or phoning a loved one you know who might be going through a difficult time.

“Please don’t suffer in silence, don’t bottle things up. If you are going through something, know that support is out there – and the first step to getting that support is speaking to someone about how you’re feeling.”

Nadine Dougall, Professor of Mental Health & Data Science at Edinburgh Napier University and a member of the Suicide Prevention Scotland Academic Advisory Group comments: “Each death by suicide is an enormous tragedy, leaving devastating and lasting impacts on families, friends, and communities. 

“Suicide is complex and rarely caused by a single factor, needing a whole-population approach to prevention.

“While reducing deaths by suicide is essential, it is also crucial to understand long-term trends and the influence of various factors to guide effective suicide prevention efforts. 

“Notably, deaths by suicide among men aged 35-44 have increased, with the suicide rate reaching 44.3 per 100,000 people – the highest since 2011. This calls for further investigation to focus suicide prevention activities. Although there have been some gains in reducing inequality in suicide rates, much more needs to be done to sustain and improve these efforts.”

If you or someone you know is struggling with their mental health or feeling suicidal, please don’t hesitate to ask for help by contacting your GP, NHS24 on 111, Samaritans on 116 123 or Breathing Space on 0800 83 58 87.

Respiratory Syncytial Virus (RSV) vaccination programme begins

With Scotland’s new Respiratory Syncytial Virus (RSV) vaccine programme having begun, Public Health Scotland (PHS) is encouraging those eligible to get vaccinated.

PHS’s Head of Immunisation and Vaccination, Dr Sam Ghebrehewet, joined the First Minister, John Swinney, in a visit to the vaccination clinic in the Hub Community Centre in Clydebank today.

During the visit to the clinic in NHS Greater Glasgow and Clyde, Dr Ghebrehewet and the First Minister were delighted to meet with pregnant women and older adults who are among the first to have come forward for their RSV vaccine.   

RSV is a common and highly infectious respiratory virus that affects the breathing system. It is the leading cause of emergency respiratory admissions to hospital in Scotland in infants, with 1,516 children aged under one hospitalised with the virus last year. 

To help protect newborns and infants, pregnant women are being offered the vaccine during antenatal appointments with their midwife from 28 weeks into their pregnancy.

There were also over 1,000 cases of RSV recorded in adults aged 75 and over in Scotland between October 2022 and September 2023, with more than half (535) having to spend time in hospital as a result.

Local health boards in Scotland have been inviting all those currently eligible by letter to come forward for their free RSV vaccine including:

  • Those turning 75 years old on and between 1 August 2024 and 31 July 2025.
  • Anyone who is aged 75 to 79 years old on 1 August 2024.

Highlighting the importance of pregnant women and older adults coming forward for the RSV vaccine, Dr Sam Ghebrehewet, Head of Immunisation and Vaccination at PHS, said: “I’m pleased to join the First Minister and NHS Greater Glasgow and Clyde’s vaccination team at Clydebank Community Centre today and see people coming forward for the RSV vaccine.

“Vaccinations have played a major role in protecting the health of people across the globe over the last 50 years. Today’s launch of the new RSV vaccination programme marks another significant step in protecting the population of Scotland against preventable diseases.

“RSV can be very serious for those who are more vulnerable, such as newborns, infants and older adults. If you’re eligible, getting vaccinated is the best and simplest thing you can do to protect yourself or your newborn baby from RSV.

“Public Health Scotland continues to work closely with all health boards to ensure as many people as possible receive their vaccine and protect themselves against the more serious complications of an RSV infection.” 

Sara, a pregnant woman who received her vaccine at the clinic today, said: “I’d heard of RSV before and how serious it can be for babies.

“After I saw there was going to be a vaccine, I read up about it and decided it was the obvious thing to do to protect my baby when they are born.”

The First Minister said: “I encourage pregnant women to take up their vaccination appointments to protect their babies against the leading cause of hospitalisation in infants during the first weeks and months of life. 

“Ensuring a healthy childhood is every parent’s first priority, however, it is equally important that those aged 75-79 take up their offer of this vaccine.

“We have acted quickly with partners to introduce this vaccine in time to maximise the benefit to the more vulnerable ahead of winter. This programme will reduce the numbers seriously ill or hospitalised, helping to manage the significant winter pressures on our NHS.”

View information on the RSV vaccine for babies on NHS inform

View information on the RSV vaccine for adults on NHS inform

NHS 24 healthy lifestyle: 12 Week Weight Management Programme

If you’re looking to make positive changes and achieve a healthier lifestyle this summer, this comprehensive programme is designed just for you.

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Whether you want to boost your energy levels, improve fitness, or maintain a healthy weight, this programme offers the support you need. 🌟🌼

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Visit – https://nhs24.info/12-week-weight-management