Tag: Health and wellbeing

Generations must work together to tackle loneliness, says Esther Rantzen

  • Almost a third of Scots feel lonely at least once a week, with just under half never telling anyone about it, according to research commissioned by People’s Postcode Lottery
  • Nine out of ten Scots are unaware of services operating in their area that can provide support for those affected by loneliness
  • Charities Childline and The Silver Line share their tips, and encourage Scots to get in touch if they are suffering in silence

Campaigner and broadcaster Dame Esther Rantzen has urged Scots of every generation to work together to fight loneliness, as the nation slowly begins to emerge from lockdown.

She suffered from loneliness herself after the death of her husband, and says “It was very difficult for me to admit, because there is a real stigma which prevents people from talking about it. Since the pandemic loneliness has affected more and more people, so now we all need to reach out to each other to make sure everyone knows they are cared about and valued.”

As founder of Childline and The Silver Line, Dame Esther’s call comes as newly published research shows how loneliness affects different generations. It also reveals that many of those who regularly suffer from loneliness are reluctant to talk about it.

The data from People’s Postcode Lottery, which was compiled pre lockdown, found that loneliness is a cross-generational issue.

Almost a third of Scots (32%) feel lonely at least once a week and almost half (47%) at least once a month. Just under half (43%) of the those that experienced loneliness in the past year hadn’t told anyone about it because they didn’t want to burden others, while almost a quarter (24%) didn’t think it was a serious problem.

More than a quarter (28%) of Scots admit they have not met a new person in the last six to twelve months, with over two fifths (41%) saying this was down to lack of confidence or being too shy.

Worryingly, more than nine out of 10 Scots (91%) say they are not aware of support services in their area aimed at helping those who experience loneliness. This is slightly above the UK’s average of 87%.

The data also reveals a similar picture of loneliness across the UK. More than a third (39%) of 16-24-year-olds in the UK who had experienced loneliness have not told anyone about it because they didn’t want to burden others. A similar number (38%) said they were too embarrassed to speak about it.

When it comes to older generations in the UK, the research found that a fifth (20%) of 65-74-year-olds, and one in eight (15%) of over 75-year-olds, experience feelings of loneliness at least once a week.

Since lockdown began in mid-March more people are expected to be experiencing feelings of isolation, a result of the safety measures in place that limit contact with friends, family and work colleagues.

The charity The Silver Line, which operates a 24/7 helpline and telephone friendship services for lonely older people, has seen demand for its helpline increase by up to 31% since the pandemic began.

Similarly, The NSPCC’s Childline service has also counselled nearly 7,000 young people and children struggling during the pandemic, as many report how lonely they feel despite everyone being at home and households feeling chaotic.

Dame Esther Rantzen, founder of The Silver Line and Childline, said: “Loneliness doesn’t discriminate and can happen to anyone, at any age. We want to end social isolation and provide the emotional support and social opportunities that can help lift the spirits during what is a hugely challenging time for many.

“For older people loneliness can be a downside of living for a long time, as you might outlive many of the people who have mattered most to you, and it is almost impossible to replace such special relationships.

“Illness and disability might also make it harder to get out and about to see family and friends, meaning older people might feel they are on their own more than they used to be.

“Thanks to the support from players of People’s Postcode Lottery, both The Silver Line and Childline can continue to support those that need advice or support when they’re feeling lonely, whether it’s during this crisis or in their daily lives.

“From one-on-one phone calls, to tips on how to stay active during lockdown, we want to help people of all ages feel better. We’re also encouraging young people looking after their elders, and vice versa. The Silver Line and Childline will provide the tools needed to identify the signs of loneliness as we work within our communities to provide cross-generational support and beat loneliness together.”

The players of People’s Postcode Lottery have raised £5.5million over the past year for 32 charities working to tackle loneliness – including the national galleries of Scotland, national museums Scotland, V&A Dundee (above), Sistema Scotland, Children 1st and Edinburgh International Book Festival – and is working with The Silver Line and Childline to support everyone experiencing isolating feelings during this challenging time.

Clara Govier, managing director and chair of People’s Postcode Lottery, said: “Feelings of loneliness can impact anyone, no matter your age. The surge in demand reported by charities over the past three months highlights how vital it is that we address this cross-generational problem.  

“Thanks to players of People’s Postcode Lottery, we are able to provide the essential funding required to support charities as we all continue working together to eradicate loneliness.”

If you are experiencing loneliness, or are concerned for someone else, please contact The Silver Line’s helpline on 0800 470 80 90 to access support. Young people can contact Childline on 0800 11 11 or visit childline.org.uk.

For more information on People’s Postcode Lottery, please visit www.postcodelottery.co.uk or Facebook and Twitter.

Tips to help people with loneliness

Childline: Ways to help a child or a young person who’s struggling include:

  1. Letting them know you’re there for them and are on their side by talking to them over text or on the phone if they don’t feel able to talk in person
  2. Being patient and staying calm and approachable, even if their behaviour upsets you. Do this by recognising that their feelings are valid and letting them know it’s okay for them to be honest about what it’s like for them to feel this way
  3. Thinking of healthy ways to cope you could do together, like yoga, breathing exercises or mindfulness
  4. Encouraging them to talk to their GP, someone at their school or Childline, especially if they’re finding it hard to talk at home
  5. Take care of yourself and get support if you need to. Try not to blame yourself for what’s happening and stay hopeful about your child’s recovery

The Silver Line – Ways to help an older people who’s struggling include:

  1. Keep in touch: phone your older relatives and friends to ask how they are – set up a rota with family and friends to make sure someone is regularly checking on them. Talking to others is a great way to relive old memories and remind everyone of the positive things in life.
  1. Show you care: by writing letters, sending postcards, or checking if someone needs any shopping or errands run. Simply being there for someone can be a great comfort and reassurance.
  1. Help family and friends get online: if older friends and family aren’t connected to the internet you may want to speak to them about getting an internet-enabled device so you can chat more easily and they might enjoy online classes or groups. It’s important to think about what your friend or relative might want to use their device for and how confident they feel with technology. Be aware of the signs of loneliness: the lockdown has brought changes to everyone’s normal activities and routines but there are some clues that could indicate a person is feeling lonely, such as someone neglecting their appearance or personal hygiene, not eating properly or putting themselves down.
  1. Share The Silver Line Helpline number: For a cheerful chat, day or night, older people can call The Silver Line: 0800 470 80 90. The Charity also offers telephone friendship with weekly chats with a friendly and supportive volunteer.

Botanics to reopen on 1st July

A warm and safe welcome back is imminent for visitors to the Royal Botanic Garden Edinburgh when it reopens to the public on Wednesday 1st July.

As the country emerges from lockdown, teams across the organisation are gearing-up for opening the public gates on Wednesday, 1st July.

In line with First Minister Nicola Sturgeon’s Phase 2 announcement yesterday, well-considered strategies have been adopted to create a safe environment for visitors and staff at Inverleith, in Edinburgh; Benmore, in Argyll; Logan, in Galloway and Dawyck, in the Scottish Borders.

New, temporary, measures include a one-way system on a number of Garden paths and some restrictions to access of other confined areas such as shops and toilets. Staff will be using PPE.

Regius Keeper Simon Milne MBE explained: “We look forward to welcoming back visitors to all four Gardens. This connection with the environment is vital for the well-being of all.

“With the safety of our staff and visitors remaining our prime concern, we have amended operations on all sites to introduce measures that should build trust and confidence. Lockdown has been a difficult time for everyone, caution is widespread and life will remain away from what we regard as normal for some time.

“Travel restrictions remain in place and, for the immediate future, all four Gardens will be restricted to welcoming their local communities. However, this is a first hugely important step in our return to extended outreach.”

A new and important measure for the reopening of the Edinburgh flagship Garden is the introduction of time slots tickets, to be booked in advance by visitors. Time slots can be booked on-line from Wednesday, June 24. 

While admission to the Garden remains free of charge, this temporary method of entry will enable staff to limit the number of visitors accessing the Garden at any one time, gradually building capacity when all are comfortable the operational guidelines work.

The Glasshouses will remain closed, initially. The Garden will initially be open from 10am-5pm and capacity will be limited to 2,000 visitors a day.

To ensure personal distancing, entry will be through the Emergency Vehicle Access (EVA) Gate at Arboretum Place, to the south of the John Hope Gateway visitor centre, and the East Gate on Inverleith Row. Any queues will be managed to ensure a smooth flow into the Garden.

Simon Milne concluded: “It is heartening visitors enjoyed following us online while the gates were closed and we hope they will continue to do so. However, the benefits of real time interaction with the natural environment are unsurpassable. We ask for everyone’s patience, understanding and support as we resume operations steadily and in a way that works for everyone.”

Visitors returning to the four Gardens will be invited to make a donation or support the organisation by becoming a member and providing crucial support for this world-leading charity in plant science and conservation horticulture.

Looking forward, its research and conservation initiatives at home and around the world have never been more important. By supporting the organisation, supporters can make real change in tackling the challenges of the climate emergency and habitat crisis.

Pedalling towards healthier lungs

  • A recent survey by Asthma UK and British Lung Foundation Scotland found that almost 70% of Scots are looking to do more active travelling in a post covid-19 world.
  • Another study by Asthma UK and British Lung Foundation shows that 1 in 6 have noticed improvements to their lung health with the decrease in air pollution.  

The coronavirus outbreak has had unexpected effect of lowering air pollution levels across Scotland’s towns and cities. A recent survey by Asthma UK and British Lung Foundation Scotland found that 1 in 7 (14%) people with a respiratory condition are reporting they have felt the benefit of cleaner air. 

As we look towards life after lockdown, Asthma UK and British Lung Foundation Scotland are calling for the Scottish Government to make active travel and public transport options safe and accessible to ensure we continue to see the benefits of cleaner air. 

The recent announcement that Transport Scotland are increasing their Spaces for People fund to £30 million to support active travel infrastructure is extremely encouraging, given that almost 70% (69.4%) of Scots are looking to using more active methods of travel in a post-Covid world. However, without the continued progression of the Low Emission Zones in Aberdeen, Dundee, Edinburgh and Glasgow the impact will be limited. 

Joseph Carter, Head of Asthma UK and British Lung Foundation Scotland, said: “It’s been very reassuring to see such high levels of support for active travel.

“As lockdown restrictions are lifted and we start to venture further from our homes, we hope that people will continue to walk and cycle wherever possible. Not only will it bring benefits to our physical health through exercise, but we will all benefit from the long-term benefits of reduced air pollution.”

Karen McGregor, Director of Sustrans Scotland, said: “Our recovery from the pandemic can be a catalyst for positive, long-lasting change in the way we live and move around.

“Cleaner modes of travel and fewer cars should be at the heart of our recovery plans. What we have seen during lockdown, with less cars on the road, is that people will change their behaviour if they feel their streets are safer.

“Failure to make is it easier and safer for people to travel more actively and sustainably will increase our car dependency, which is a major source of air pollution and greenhouse emissions in this country.” 

Michael Matheson, Cabinet Secretary for Transport, Infrastructure and Connectivity, said: “Walking and cycling brings huge benefits to our physical and mental wellbeing, while at the same time protecting our air quality, our climate and helping to manage demand on our public transport network.

“I have reallocated £30 million in order to put forward a package of support for our local authorities to implement temporary active travel measures. This is already helping to ensure that people can walk, wheel and cycle during this public health emergency whilst physically distancing and protecting them from traffic and it will continue to help as our recovery progresses.

“To improve air quality, to respond to the climate emergency and to protect public health I am committed to introducing Low Emission Zones in Scotland’s four largest cities as quickly as possible.

“Local authorities share this ambition and Scotland’s first LEZ in Glasgow has been in place since 2018. Reviews will be undertaken across 2020 and 2021 to determine the earliest date when LEZs could realistically be introduced using the powers of the Transport (Scotland) Act.”

BREAKTHROUGH: World first coronavirus treatment approved for NHS use

  • Ground-breaking coronavirus treatment approved for use across the NHS from today
  • Government-funded UK trial showed drug saved lives by significantly reducing risk of death in hospitalised patients who require oxygen
  • Government ensures drug is available across all NHS healthcare settings and across the whole of the UK with immediate effect

Thousands of lives could be saved in the UK as the government immediately authorises the NHS to use the world’s first coronavirus treatment proven to reduce the risk of death.

Dexamethasone, an anti-inflammatory steriod drug, has been immediately approved to treat all UK hospitalised COVID-19 patients requiring oxygen, including those on ventilators, from today.

The drug has been proven to reduce the risk of death significantly in COVID-19 patients on ventilation by as much as 35% and patients on oxygen by 20%, reducing the total 28-day mortality rate by 17%.

Funded by the UK government, via the National Institute for Health Research (NIHR) and UK Research and Innovation (UKRI), the Oxford University UK RECOVERY trial is the first clinical trial anywhere in the world to show a treatment provides significant impact in reducing patient mortality.

The government has taken action to secure supplies of dexamethasone in the UK, buying additional stocks ahead of time in the event of a positive trial outcome. This means there is already enough treatment for over 200,000 people from stockpiles alone.

Health Secretary Matt Hancock said: “I’m absolutely delighted that today we can announce the world’s first successful clinical trial for a treatment for COVID-19. This astounding breakthrough is testament to the incredible work being done by our scientists behind the scenes.

“From today the standard treatment for COVID-19 will include dexamethasone, helping save thousands of lives while we deal with this terrible virus.

“Guided by the science, the UK is leading the way in the global fight against coronavirus – with the best clinical trials, the best vaccine development and the best immunology research in the world.

“I want to thank the brilliant scientists at Oxford University, the thousands of patients who took part in the study, and my own team, led by Professor Jonathan Van-Tam, who has done such a brilliant job driving this work.”

The drug has also been added to the government’s parallel export list, which bans companies from buying medicines meant for UK patients and selling them on for a higher price in another country. This will protect supply for UK patients by enforcing regulatory action on those who flout the restrictions.

Throughout the pandemic, the government has supported British research with millions of pounds of funding for clinical trials into the most promising and innovative medicines in our fight against this new virus, including £2.1 million for the RECOVERY trial.

This clinical trial is testament to the success we see when government, scientists and the NHS – including 175 NHS trusts across the whole of the UK – work together. With over 177,000 patients enrolled, it’s the largest randomised clinical trial anywhere in the world and will continue to trial other medicines, such as azithromycin and lopinavir-ritonavir.

Deputy Chief Medical Officer, Professor Jonathan Van-Tam, said: “The RECOVERY trial is an outstanding example of the UK leading the world with an impressive study capable of delivering robust answers to critical questions. Although these data have not yet been peer-reviewed.

“The positive findings on dexamethasone follow the disappointing findings on hydroxychloroquine. Together these 2 results illustrate the power of properly conducted clinical trials and the inherent danger of assuming things work without robust data.

“Whilst tempting to do otherwise, it is always better to wait for the evidence. On the dexamethasone findings, this is very encouraging because the signal on reduced mortality applies to many of the patients admitted to hospitals and the drug is comparatively low priced and available worldwide.”

The UK is a world leader in global science and medicine industries. This British trial will now affect the global response to this pandemic.

This breakthrough has only been made possible through the rigour of world-class and world-leading British life-sciences. The government backed British science from the very beginning of this pandemic and today has proven that this was the right call.

The vital information collected by UK researchers will also be used by other countries to reduce mortality rates worldwide.

Prime Minister Boris Johnson welcomed the news at yesterday’s daily press briefing. He said: “I am delighted that the biggest breakthrough yet has been made by a fantastic team of scientists right here in the UK.

“I am not really qualified to announce on this drug and its effects but I will ask Sir Patrick and Professor Horby to say more in a moment.

“But I am so proud of these British scientists, backed by UK Government funding, who have led the first robust clinical trial anywhere in the world to find a coronavirus treatment proven to reduce the risk of death.

“And I am very grateful to the thousands of patients in this country who volunteered for the trials – thank you.

“This drug – dexamethasone – can now be made available across the NHS. And we have taken steps to ensure we have enough supplies, even in the event of a second peak.

“Of course, while the chances of dying from Covid-19 have been significantly reduced by this treatment, they are still far too high. So we must redouble our research efforts and we certainly will.

“But today, there is genuine cause to celebrate a great, British achievement and the benefits it will bring not just in this country but around the world.”

Heart Research UK Healthy tip – Takeaways

Heart Research UK Healthy Heart Tip, written by Dr Helen Flaherty, Head of Health Promotion at Heart Research UK

Healthier Takeaways

The number of takeaway food outlets has risen in recent years and this may have contributed to the rise in rates of obesity in the UK. Takeaway food is often cheap, convenient and tasty, but it also tends to be high in fat, salt and sugar.

Regularly consuming takeaways can have a negative impact on your heart health as well as your waistline. Swapping your usual takeaway for a healthier option may be a good way to cut down on fat, salt and sugar. We have some tips to guide you on choosing healthier takeaways.

Choose a food outlet that has healthy options on the menu

Compare the menus for takeaway food outlets and try to choose one that provides some healthier options. Some takeaway food outlets list calories on their menus and this can help you to make a healthier choice.

Choose wisely from the menu

Try to avoid foods that are deep fried, such as fish in batter, chips and fried chicken. Swap large deep-pan pizzas and pizzas with stuffed crusts for smaller pizzas. Select lower fat pizza toppings, such as mushrooms, peppers, sweetcorn, chicken and ham, rather than pepperoni or extra cheese which are both high in fat.

Keep an eye on portion size

Be careful not to buy too much food when ordering your takeaway. Instead of ordering starters, mains, sides and desserts, why not just have a main course and finish off with some fruit and yoghurt. You could share a dish or freeze a portion of your takeaway for another time to avoid eating too much.

Make your own ‘Fakeaway’ at home

Try making healthier versions of your favourite takeaway dishes at home by finding healthy recipes online. If you can’t live without your favourite takeaway dish, you could try swapping side dishes, such as chips, garlic bread, fried rice or naan bread for brown rice or wholemeal pitta bread that you prepare at home.

Think about what you drink

Rather than buying sugary drinks with your takeaway, try drinking tap water or low calorie drinks instead. If you usually have alcoholic drinks with your takeaway, try to reduce the amount you consume by having a glass of water in between each alcoholic drink and try to choose drinks that have a lower alcohol content. Not only will this reduce your calorie intake, but it may also reduce the cost.

You can find plenty more healthy tips and recipes at heartresearch.org.uk

Men’s Health Week – “I never thought I would get breast cancer”

What better time for 14 men to get together with one voice to highlight that Men can get breast cancer too – than Men’s Health Week (15th – 21st June).

“I never thought that I would get breast cancer” – for many men it is a complete shock, as often they don’t even know that men can get breast cancer too!

Although the number of men affected by breast cancer is much lower than for women, the mortality rate for primary breast cancer in men is high in comparison, due to lack of awareness and late detection. Every year, 370* men are diagnosed with breast cancer in the UK and 81* men die of the disease.

Two years ago, six men who had all had the disease, joined forces with breast cancer charity Walk the Walk and created the Men get breast cancer too! campaign, determined to raise awareness and to hopefully save lives. When they all met each other, it was the first time that such a number had ever been together in the UK.

As a result, they have worked together on several campaigns and have all been busy putting up posters (until Covid-19), advising men how to Check their Chests.

Now more men have joined the original six, all united in sharing their experiences. Their aim is that eventually everybody will know that men get breast cancer:

Andy Manson – Reading (Stage four breast cancer, which had spread to lymph nodes)

“I’d been experiencing a stabbing pain in my left nipple for months but ignored it – it was my wife Michelle who forced me to go to the doctor.

The speed with which the GP referred me to the breast clinic at the Royal Berkshire Hospital was my first inkling that something was wrong. I was aware at the time that men could get breast cancer – I knew it existed, but I didn’t know what to check for. I had no lump which I could feel – so at the time, I ruled it out. I thought there always had to be a lump.

When I got my diagnosis – it’s like the cliché́ – you never expect it to be you.”

Amrik Rhall – Leeds (Diagnosed with a 2.5 cm tumour, in the early stages of breast cancer)

“My girlfriend Shirelle had pointed out a lump on my chest, I was able to feel it myself, but I decided it was probably nothing to worry about.
Shirelle wasn’t happy to just forget about it. Undeterred, she wasted no time in booking a doctor’s appointment for me. Despite my objections to going, I eventually relented.

A short consultation and check-over later, the doctor had come to a similar conclusion as me. He told me he was 90% sure that there were no problems and that the lump would simply be a cyst, but sent me for a mammogram, ultrasound and biopsy.

I was 100% not expecting the result I received one week later, I nearly fainted!”

Dave Gill – Blandford Forum, Dorset (15 mm tumour in left breast. Diagnosed with Grade 2, ER Positive, Her2 negative carcinoma)

“My wife Kalaya and I were in Thailand checking out hotels for our daughter’s wedding. I spent a lot of time driving around and found that the car seat belt was rubbing on my chest and making it sore. I found a small lump next to my left nipple and we assumed that it was probably a blocked cyst.

On my return to the UK, both my GP and the consultant at Poole General Hospital thought it was a cyst too, but arranged for me to have a minor operation to remove it. I was wheeled out of the theatre and the surgeon told me she had found a small tumour and had just sewn me back up again.

Surprised is an understatement. I didn’t have a clue that men could get breast cancer and it hadn’t even been mentioned to me at all as being a possibility before this point.

I had been treated for minor skin cancers for years, so I wasn’t frightened by the concept of having cancer – it was breast cancer that scrambled my mind, how could I have it?”

Bryan Thorn – Baglan, Port Talbot (Diagnosed with a grade 2, 3cm invasive ductal carcinoma in right breast, with malignant tissue in the lymph nodes)

“I noticed a lump in my right breast when I was showering. I wasn’t checking myself, I didn’t even know men were supposed to check their chest area. I wasn’t naive enough to think men couldn’t get breast cancer, but it wasn’t something you heard much about.

“I made an appointment with my GP straight away, who checked the lump and the area around it, and referred me to the breast clinic. The consultant I saw had a prod around the lump area, told me it was fatty tissue and that there was nothing to worry about.

“12-14 months later, I noticed the lump was getting bigger, the nipple became inverted, and I started to get discharge from it and it also became painful to touch.

“I went back to my GP who quickly referred me back to the breast clinic. Within 10 minutes of my breast clinic appointment, I was going for a biopsy and a mammogram, and I was told it was likely to be breast cancer. It was.

“It was very surreal and a bit of a whirlwind. I think my first reaction was relief at being told the cancer was treatable”.

Dave Talbot – Olveston, Bristol (Had a lump the size of a golf ball – diagnosed with hormone receptive breast cancer)

“I found a lump between my nipple and armpit, it wasn’t sore and it wasn’t hard, I just thought it was a boil. I didn’t tell anyone about the lump – not even my partner.

I wasn’t aware that men should check their breasts, but I was acutely aware that if your body changes, you shouldn’t leave it.

I went to see my GP, who checked the area and said it was quite common for men to get fatty deposits, but she referred me to a specialist. It was at this point that I told my partner about the lump.

When I saw the consultant he took a biopsy there and then, and it went straight to the lab as a matter of urgency.

I wasn’t shocked to hear I had cancer, but my first instinct was ‘how long have I got? Is it going to kill me?’ I defy anybody who receives a cancer diagnosis not to be a bit scared.”

Richard Galloway – Wirral, Merseyside (Diagnosed with an 8mm ductal carcinoma)

“Initially, when I was getting irritation in the area around my nipple, I thought I had jogger’s nipple. Then, in the shower, I noticed a lump just below my left nipple – something to be more concerned about.

A week or so later at the doctors. I was told it was probably a cyst, and to come back in a couple of weeks if it was still there.

I waited five weeks before going back for a follow-up as I felt there was a lack of urgency. I was referred to the breast clinic for a biopsy.

I didn’t even know that men could get breast cancer, mainly because I’d just never had to think about it. When I was diagnosed, I must admit I thought “why me? what’s wrong with me?”

David Aggett from Henstridge, Somerset (Diagnosed with breast cancer, which has spread to his lungs)

“I’m a vet and found a tiny lump smaller than a pea under my right nipple after I got crushed and bruised by a cow. I gave it a couple of weeks to go away – then went to the GP.

It took a second biopsy to make the diagnosis, which sent alarm bells ringing, plus during that time my nipple started to invert. So when I got to the surgeon’s office, I would have been surprised to be told it wasn’t breast cancer.

As a very practical person and as the diagnosis wasn’t a surprise, I had prepared for the news.

After maybe 20 seconds of silence and numbness, I just wanted to get on and sort it out. What are we going to do? When’s surgery? What about chemo? When will I return to work? Etc.!!”

Alan Herbert – Scharnegoutum, The Netherlands (Diagnosed with invasive ductal carcinoma Stage 3 cancer with lymph-gland involvement).

“Cancer? That diagnosis hadn’t even crossed my mind!

I was strong and healthy, I was a long distance runner and I am also a registered nurse and sport masseuse.

I knew men could get breast cancer – in fact, I had worked on a breast surgery ward and had run an oncology clinic.

After finding a lump beside my nipple, which I thought was probably a cyst, I made an appointment with my doctor. She examined me and said, “Well I don’t think it’s cancer as it’s smooth, but I’ll send you for a mammogram just to be safe.

I also had a biopsy taken from the lump and a sample from the lymph gland. This hadn’t been planned so I asked the technician “off the record” how it looked. He said “50/50,” but he lied.

I wasn’t surprised at the diagnosis, but disappointed that the cancer had spread to the lymph nodes”.

Glenn Cooper – Fareham, Hampshire (Diagnosed with breast cancer which has since spread)

“I had a persistent cough that had lasted a few weeks before I visited the doctor. My wife Marguerite insisted that I go and get something to fix it.

As the doctor was writing out my prescription, I asked him to check a lump that I had felt on my chest behind my nipple a few weeks earlier.

After a quick examination, the doctor concluded the lump was probably nothing serious, but referred me for more checks. A mammogram, ultrasound and biopsy came next. Each doctor that I saw was confident that the lump was nothing to worry about as there was no history of cancer within the family, yet just one week after my first appointment, I was given the news that the lump was, in fact, breast cancer.

My diagnosis of breast cancer came as a huge shock; I had heard somewhere that men could get breast cancer, but had never even thought about getting it myself. However, I remained calm and pragmatic about the diagnosis, quickly focussing on what steps I needed to take for treatment”.

Mark James – Porthcawl (Diagnosed with Stage 2 breast cancer)

“I noticed one day that my left nipple didn’t look quite the same as my right nipple; it was slightly wonky in comparison. It looked as though the nipple was folded over, but it wasn’t really a bother; I was more concerned with a hernia I had at the time.

When I had a pre-op for my hernia I took my top off in front of the nurse who told me that I should get the nipple looked at. I went straight to the surgery and saw the next available doctor who wanted to refer me. Less than a week later I was having a mastectomy to remove my breast cancer.

It didn’t surprise me – it just made me more curious. After my wife’s own diagnosis with breast cancer, I’d done some reading on the subject so I knew men could be affected.”

Mark O’Connor – Cork, Ireland (Diagnosed after finding a 2 inch lump on his nipple)

“I was in bed, on holiday when I found a lump on my left nipple. At first I just thought I had knocked it, as I was working as a builder at the time so was used to getting bashed about a bit. The lump started changing shape so I spoke to my wife, Tina, and arranged an appointment with my doctor. He didn’t give me any indication that I could have breast cancer, but I was referred to the Breast Clinic straight away.

About a week later, I had a mammogram and a biopsy that same day at Cork University Hospital (CUH). The lump was rock hard and two inches in size, so the specialist I saw was alarmed.

I received my results the following week – I had breast cancer. I remember my consultant looking shocked, but we both wanted to get on with the treatment. I needed a mastectomy of the left breast, and the operation was booked in for a week later.

When I was given the diagnosis, I was taken aback, I didn’t know men could get breast cancer, nor did my wife. “

Giles Cooper – Conderton, Gloucestershire (Diagnosed with cancer in his right breast)

“Because of my family history, I’d started checking my chest. My father was 77 when he died from breast cancer, he was from the generation of men who never really discussed medical issues. Until my father was diagnosed, I didn’t have any idea that men could get breast cancer.

I discovered a lump in my right breast, hidden right behind the nipple. I ignored it to start with, but eventually had it checked out by my doctor, having been encouraged by my wife, who’s a nurse.

Although I was expecting the worst, the news that I did have breast cancer was still an immense shock.”

Roy Collins – Bexhill-on-Sea (Diagnosed with a 6cm tumour, which had spread to his lymph nodes)

“My wife caught me getting out of the shower one day. She is a nurse and noticed that my nipple was inverted. I hadn’t been conscious of it and it certainly didn’t hurt.

She sent me packing to the doctor’s and from there I was sent to the hospital for tests including a biopsy.

My inverted right nipple had been caused by a lump behind the nipple, which my surgeon told me had been growing for probably six months.

I didn’t know that men could get breast cancer and certainly didn’t check myself.

When I was diagnosed, I just turned to the consultant and said ‘if you need to take my breast off, give me radiotherapy, chemo – just do it. Just get rid of it!’ “

Mike Greenhalgh (Diagnosed with bilateral breast cancer and is BRCA2 positive)

“I discovered two lumps in my breasts – one on each side, a small lump near my left nipple and a smaller swelling on my right breast, whilst I was in the shower. I hadn’t been checking myself, so it was completely by accident. After a couple of months my wife, both of us were GPs, prompted me to speak to my own doctor. I have Parkinson’s and we thought it might be a side effect of my medication.

My GP referred me to a consultant and I had a biopsy – a few days later, my consultant said he wanted to see me. He told me that I had breast cancer, I was very surprised, I hadn’t even contemplated that it might be breast cancer. I had been a GP for 27 years, but had never seen a case of breast cancer in men at my surgery, nor had my own GP. I felt the need to be strong to reassure those close to me, but also to remain positive about the outcome of my disease.

I’m one of five children and have an identical twin, Bill. After my diagnosis, I and all my siblings were tested for BRCA. Myself, my older brother and twin brother tested positive for BRCA2 as did one of my sisters. My other sister tested negative”.

*Breast Cancer Now, June 2020

Annie Lennox backs call to reopen chronic pain clinics

Annie Lennox has called for action over the “intolerable” suffering of chronic pain patients during lockdown. Annie said it’s “indecent and inhumane to leave people to suffer”.   

She was referring to the continuing closure of NHS specialist pain clinics.  While many patients get by on medication, some depend on regular treatment at NHS specialist clinics. These closed almost three months ago, with some staff diverted to Covid-19 duties, now lessening.

She personally suffers from “excruciating” neuralgic pain. This comes in occasional agonising bouts – but Annie highlighted the plight of other sufferers needing clinics frequently.

The international star, originally from Aberdeen, responded to patient concerns from Scotland where some patients -whose NHS treatments ran out during lockdown-were in such desperate agony that a few have been driven by relatives to England for infusions.

They paid around £800 for private infusions they couldn’t afford normally and the 500 mile return journeys were “torture” for their conditions. Private as well as NHS pain clinics stopped services in Scotland.

Annie wrote: “As a long-term chronic pain sufferer, I understand only too well what it feels like to go through hours or days with extreme physical discomfort.  

‘Without medication or clinical treatment, life becomes torturous and untenable.

In the U.K, millions of people suffer.  

Some rely on having regular access to pain reduction treatment, but due to the Covid 19 lockdown situation, NHS chronic pain clinics have been closed for months with no word yet on when they will re-open, which is sought urgently In Scotland in particular.

Will years of complaints over waiting times and underfunding continue to be ignored?

Unlike the barbarism of the Middle Ages – in the 21st century, it should be considered indecent and inhumane to leave people to suffer intolerable pain without their usual relief, while we actually do have the means to treat it. 

I very much hope this situation can be taken seriously and responded to as soon as possible.”

Annie Lennox OBE. 

Normally, returning patients visit Scotland’s NHS pain clinics over 40,000 times a year. Some need treatments every five to six weeks, others require different help and specialist advice.

Injections are currently barred if they contain steroids which could be harmful if a patient later develops Covid-19.

But infusion drips of the pain drug Lignocaine are free of steroids – and patients have appealed for these to be resumed urgently and a date set  for re-opening.  Other types of infusions have happened in Scotland during lockdown – but not for chronic pain.

Apart from around 40,000 visits by return patients to NHS Scottish pain clinics, there are over 20,000 new chronic pain patients in Scotland annually. That’s a fraction of the 800,000 suffering  (40,000 visits does not mean entirely 40,000 patients as some need treatment several times)

Annie sent support to the Scottish Parliament’s patient-run Cross-Party Group  on chronic and two charities also run by patients, Affa Sair in Moray and Grampian and Action on Pain UK.

All three groups have been outspoken critics of long-term lack of help for pain sufferers and thanked Annie for her “compassionate and uplifting outreach to patients” whose suffering was often overlooked.

Christopher Bridgeford, the voluntary chair of the 550 patient charity Affa Sair said: “I very much welcome and applaud Annie’s statement. It has been an agonising situation  since the decision to halt pain clinic treatments for those who depend on them.

“Medication doesn’t work for all.  For some, only those clinic visits tackle really terrible levels of pain through infusions.  Many  find it very hard to speak about their plight. For this international star and much respected activist to make her struggles with pain so public speaks of a very courageous and inspiring lady.

“I hope her words encourage the Scottish Government to ensure that full Pain Clinic services are restarted soon and staffing given proper funding in future”

Ian Semmons, patient chair of Action on Pain UK said: “Annie has given a strong and powerful message that cannot be ignored. She has spoken for those who suffer too much in silence.  Chronic pain patients have for years been overlooked by Governments everywhere. 

“But Action on Pain has long been very worried about Scotland and the shortage of funding for NHS chronic pain clinics and their hard-worked staff. They are funded  like a Cinderella service when they can even save some from suicide.

“Waiting times for new patients have soared from almost 90% being seen on time nine years ago to only 60.5% in 2019, before the virus emergency. The Scottish Government has dealt with chronic pain by setting up ineffective talking shops, meeting behind closed doors, not open to the public. Urgent action is needed”

Last year, Annie wrote of suffering excruciating pain for over ten years. It comes in bouts – not involved with regular treatment:

“Over a decade ago, I had to have a back operation and a lot of things changed after that. Long story.. but I occasionally suffer from excruciating nerve pain, which comes in with a vengeance when I least expect it.  It has given me an insight as to what others have to deal with … far more or less than this. My gratitude when it dies down is immeasurable.”

Miles Briggs, Scottish Conservative shadow health secretary and co-chair of the Cross Party Group on Chronic Pain said: “I totally agree with Annie Lennox and welcome her intervention around the negative impact the lockdown has had on chronic pain patients across Scotland.  

“For chronic pain patients across Scotland every week the lockdown continues is yet more time that chronic pain patients suffer unbelievable agony and distress.

“Over the last thirteen years SNP Ministers haven’t taken chronic pain patients’ seriously – ignoring their concerns and needs and failing to improve access to pain management clinics and treatments.

“It is clear we need to see SNP Ministers restart services for chronic pain sufferers as soon as possible but we also need to see an acknowledgment from SNP Ministers that even before this public health emergency chronic pain patients across Scotland were being failed.

“As we come out of lockdown it presents an opportunity for us to radically reform the way services are run and accessed by chronic pain patient.

“Chronic pain patients’ want to see a step change in Scotland to help deliver for chronic pain patients and their families.”

Find out more https://www.affasair.org & http://www.action-on-pain.co.uk

Social Distancing and Sight Loss

Guide Dogs Scotland calls for public to ‘keep two meters distance but don’t disappear’ – to help those trying to social distance without sight 

  • Just 22% of the public ‘completely comfortable’ offering to help someone with sight loss while social distancing is in place.

As lockdown starts to ease and Scotland anticipates fewer restrictions around travel and socialising, the charity Guide Dogs Scotland reports that lockdown being lifted doesn’t mean greater freedom for everyone.  

Guide Dogs Scotland has highlighted a new set of challenges for people with sight loss to overcome – with social distancing measures limiting independence and increasing isolation.

Guide dog owner Jonathan Attenborough (above) from Perth explains: “Social distancing is the most challenging aspect for me in the whole Covid-19 situation. Not being able to socially distance is a major challenge to my independence and keeping myself safe. 

“I’m less confident getting out and about than I was. Now that lockdown is lifting, other people are trying to get their life back to what it was, but it’s a whole new world for people with sight loss. It’s a lot for us to adjust to and it would really help if people have an awareness of how they can play their part.” 

Research conducted by the charity in the first week of June found that just 22% of the UK general public would feel ‘completely comfortable’ offering to help someone with sight loss while social distancing measure were in place.

Reasons for a lack of comfort amongst this group included not knowing how to help from two meters away (50%) and being concerned about making physical contact (37%). 

These concerns are valid – the support people with sight loss have previously relied on, such as sighted guiding which can involve taking someone’s elbow, is not compatible with social distancing. This has left people with sight loss concerned about accessing essential services such as supermarkets and public transport. 

The research also found that although 78% of GB adults understood that those with sight loss would face additional challenges while social distancing, 65% hadn’t considered this prior to taking the survey.  

https://youtu.be/Nb0HTtBo0UU

To help combat the increasing isolation felt by those with sight loss during lockdown, Guide Dogs is launching a campaign called ‘Be There’, which gives guidance to encourage the public to feel confident in their ability to offer support whilst maintaining social distancing: 

1 – Keep your distance, but don’t disappear – People with sight loss may find it challenging to social distance, so if you see someone with a guide dog or a long cane then you can help them by making sure you keep 2m away, but that doesn’t mean you can’t also offer your help.  

East Dunbartonshire guide dog owner Deborah Roberston said when other people have said hello or offered support, it’s been helpful to her and guide dog Rye.

 “I do feel more vulnerable going out with it being so much quieter around me, it can be disorientating and I am less confident getting out and about than I was,” said Deborah. “I’m a confident person but I feel more vulnerable out now – when I do hear footsteps I get worried that the person might be coming too close to me, or I might be going too near them. 

“People in the neighbourhood who know me, know it’s okay if they let me know they are there and that they’re stepping out of the way.” 

2 – Say hello and offer your help – Simply by letting someone with sight loss know you are nearby; you are giving them the opportunity to ask for any help if they need it. People often feel unsure about their ability to help someone with sight loss, but their request could be a simple as finding out where a shopping queue starts, or if there is a safer place to cross a road. 

West-Lothian guide dog owner Monica McGill said social distancing measures is making the prospect of shopping a daunting one for her and guide dog Sadie. 

“The thought of going out shopping is very challenging,” said Monica. “I’m told that every shop has put visual signs on the floor – I would have a very hard job following that and where I am in the shop in terms of finding specific things. 

“If staff were on hand to provide verbal assistance, and feel confident in speaking to someone with sight loss, it would be a great help.” 

3 – Describe the scene – We’ve all had to adapt to unusual sights during lockdown – people standing apart in long lines outside of supermarkets for example. But those with sight loss haven’t always witnessed this to the same extent, which can be isolating and confusing.

By describing what you can see to someone with sight loss, you can help them to understand the environment and navigate accordingly. 

Guide dog owner Jonathan Attenborough explains: “I don’t always know there is a queue because my dog Sammy takes me to the door of the shop, not the end of the queue. Shops have introduced visual indicators and one-way systems and if you can’t see they’re a major challenge.” 

As part of a separate survey, people with sight loss had previously told Guide Dogs that concerns about travelling once lockdown restrictions begin to be lifted included their ability to social distance whilst using transport (84%) and access to support whilst using transport (61%). 

Guide Dogs Regional Head of Operation for Scotland, Wendy Rankin said: “Lockdown being lifted isn’t the start of greater freedoms for everyone. In the past couple of months, we have consistently heard that people with sight loss are concerned about social distancing – even the most confident are lacking confidence in the new environment.

They are concerned that people will avoid them and be less willing to help and have told us that not knowing what the new environment looks like is making even doing normal routes a stressful experience. 

“In addition to informing the general public how they can help, we’re also asking the Scottish government, transport operators and business leaders to work with us and the wider sight loss community to ensure that the communities we’re creating in the “new normal” are inclusive communities for everyone, including people with sight loss.” 

For support or further information, please visit www.guidedogs.org.uk.

First Test and Protect data published

Breaking the chain of virus transmission

The first set of data from week one of the coronavirus (COVID-19) Test and Protect system has been published.

The data, which will be published weekly, shows:

  • the number of positive index cases from 28 May to 7 June
  • the number of index cases where contact tracing has been completed
  • the number of contact traces

Since Test and Protect was launched, 681 cases have tested positive with 741 contacts traced.

The level of data published will continue to improve once the data is robust and validated.

Cabinet Secretary for Health Jeane Freeman said: “Since 28 May, contact tracers across the country have followed up each new positive test to ensure those who may have come into contact with the virus take steps to isolate. By doing so, we can break the chains of transmission while slowly changing lockdown measures.

“The average number of people traced for each positive case reflects that we are still in phase 1 of lifting lockdown restrictions and people should not be mixing with large numbers of people outside of their own household.

“I would encourage anyone who has symptoms of COVID-19 to come forward as early as possible and get a test immediately to help us supress the spread of the virus.

“Contact tracing is one part of our work to tackle the COVID-19 pandemic. Physical distancing and good hand and cough hygiene continues to play a vital role in helping to minimise the spread of infection.”

20-06-10-covid19-publication_summary

Test and Protect was rolled out across Scotland on 28 May 2020.

The Test and Protect data is published on Public Health Scotland’s website.