Tag: Health and wellbeing

Men’s Health Week – “I never thought I would get breast cancer”

What better time for 14 men to get together with one voice to highlight that Men can get breast cancer too – than Men’s Health Week (15th – 21st June).

“I never thought that I would get breast cancer” – for many men it is a complete shock, as often they don’t even know that men can get breast cancer too!

Although the number of men affected by breast cancer is much lower than for women, the mortality rate for primary breast cancer in men is high in comparison, due to lack of awareness and late detection. Every year, 370* men are diagnosed with breast cancer in the UK and 81* men die of the disease.

Two years ago, six men who had all had the disease, joined forces with breast cancer charity Walk the Walk and created the Men get breast cancer too! campaign, determined to raise awareness and to hopefully save lives. When they all met each other, it was the first time that such a number had ever been together in the UK.

As a result, they have worked together on several campaigns and have all been busy putting up posters (until Covid-19), advising men how to Check their Chests.

Now more men have joined the original six, all united in sharing their experiences. Their aim is that eventually everybody will know that men get breast cancer:

Andy Manson – Reading (Stage four breast cancer, which had spread to lymph nodes)

“I’d been experiencing a stabbing pain in my left nipple for months but ignored it – it was my wife Michelle who forced me to go to the doctor.

The speed with which the GP referred me to the breast clinic at the Royal Berkshire Hospital was my first inkling that something was wrong. I was aware at the time that men could get breast cancer – I knew it existed, but I didn’t know what to check for. I had no lump which I could feel – so at the time, I ruled it out. I thought there always had to be a lump.

When I got my diagnosis – it’s like the cliché́ – you never expect it to be you.”

Amrik Rhall – Leeds (Diagnosed with a 2.5 cm tumour, in the early stages of breast cancer)

“My girlfriend Shirelle had pointed out a lump on my chest, I was able to feel it myself, but I decided it was probably nothing to worry about.
Shirelle wasn’t happy to just forget about it. Undeterred, she wasted no time in booking a doctor’s appointment for me. Despite my objections to going, I eventually relented.

A short consultation and check-over later, the doctor had come to a similar conclusion as me. He told me he was 90% sure that there were no problems and that the lump would simply be a cyst, but sent me for a mammogram, ultrasound and biopsy.

I was 100% not expecting the result I received one week later, I nearly fainted!”

Dave Gill – Blandford Forum, Dorset (15 mm tumour in left breast. Diagnosed with Grade 2, ER Positive, Her2 negative carcinoma)

“My wife Kalaya and I were in Thailand checking out hotels for our daughter’s wedding. I spent a lot of time driving around and found that the car seat belt was rubbing on my chest and making it sore. I found a small lump next to my left nipple and we assumed that it was probably a blocked cyst.

On my return to the UK, both my GP and the consultant at Poole General Hospital thought it was a cyst too, but arranged for me to have a minor operation to remove it. I was wheeled out of the theatre and the surgeon told me she had found a small tumour and had just sewn me back up again.

Surprised is an understatement. I didn’t have a clue that men could get breast cancer and it hadn’t even been mentioned to me at all as being a possibility before this point.

I had been treated for minor skin cancers for years, so I wasn’t frightened by the concept of having cancer – it was breast cancer that scrambled my mind, how could I have it?”

Bryan Thorn – Baglan, Port Talbot (Diagnosed with a grade 2, 3cm invasive ductal carcinoma in right breast, with malignant tissue in the lymph nodes)

“I noticed a lump in my right breast when I was showering. I wasn’t checking myself, I didn’t even know men were supposed to check their chest area. I wasn’t naive enough to think men couldn’t get breast cancer, but it wasn’t something you heard much about.

“I made an appointment with my GP straight away, who checked the lump and the area around it, and referred me to the breast clinic. The consultant I saw had a prod around the lump area, told me it was fatty tissue and that there was nothing to worry about.

“12-14 months later, I noticed the lump was getting bigger, the nipple became inverted, and I started to get discharge from it and it also became painful to touch.

“I went back to my GP who quickly referred me back to the breast clinic. Within 10 minutes of my breast clinic appointment, I was going for a biopsy and a mammogram, and I was told it was likely to be breast cancer. It was.

“It was very surreal and a bit of a whirlwind. I think my first reaction was relief at being told the cancer was treatable”.

Dave Talbot – Olveston, Bristol (Had a lump the size of a golf ball – diagnosed with hormone receptive breast cancer)

“I found a lump between my nipple and armpit, it wasn’t sore and it wasn’t hard, I just thought it was a boil. I didn’t tell anyone about the lump – not even my partner.

I wasn’t aware that men should check their breasts, but I was acutely aware that if your body changes, you shouldn’t leave it.

I went to see my GP, who checked the area and said it was quite common for men to get fatty deposits, but she referred me to a specialist. It was at this point that I told my partner about the lump.

When I saw the consultant he took a biopsy there and then, and it went straight to the lab as a matter of urgency.

I wasn’t shocked to hear I had cancer, but my first instinct was ‘how long have I got? Is it going to kill me?’ I defy anybody who receives a cancer diagnosis not to be a bit scared.”

Richard Galloway – Wirral, Merseyside (Diagnosed with an 8mm ductal carcinoma)

“Initially, when I was getting irritation in the area around my nipple, I thought I had jogger’s nipple. Then, in the shower, I noticed a lump just below my left nipple – something to be more concerned about.

A week or so later at the doctors. I was told it was probably a cyst, and to come back in a couple of weeks if it was still there.

I waited five weeks before going back for a follow-up as I felt there was a lack of urgency. I was referred to the breast clinic for a biopsy.

I didn’t even know that men could get breast cancer, mainly because I’d just never had to think about it. When I was diagnosed, I must admit I thought “why me? what’s wrong with me?”

David Aggett from Henstridge, Somerset (Diagnosed with breast cancer, which has spread to his lungs)

“I’m a vet and found a tiny lump smaller than a pea under my right nipple after I got crushed and bruised by a cow. I gave it a couple of weeks to go away – then went to the GP.

It took a second biopsy to make the diagnosis, which sent alarm bells ringing, plus during that time my nipple started to invert. So when I got to the surgeon’s office, I would have been surprised to be told it wasn’t breast cancer.

As a very practical person and as the diagnosis wasn’t a surprise, I had prepared for the news.

After maybe 20 seconds of silence and numbness, I just wanted to get on and sort it out. What are we going to do? When’s surgery? What about chemo? When will I return to work? Etc.!!”

Alan Herbert – Scharnegoutum, The Netherlands (Diagnosed with invasive ductal carcinoma Stage 3 cancer with lymph-gland involvement).

“Cancer? That diagnosis hadn’t even crossed my mind!

I was strong and healthy, I was a long distance runner and I am also a registered nurse and sport masseuse.

I knew men could get breast cancer – in fact, I had worked on a breast surgery ward and had run an oncology clinic.

After finding a lump beside my nipple, which I thought was probably a cyst, I made an appointment with my doctor. She examined me and said, “Well I don’t think it’s cancer as it’s smooth, but I’ll send you for a mammogram just to be safe.

I also had a biopsy taken from the lump and a sample from the lymph gland. This hadn’t been planned so I asked the technician “off the record” how it looked. He said “50/50,” but he lied.

I wasn’t surprised at the diagnosis, but disappointed that the cancer had spread to the lymph nodes”.

Glenn Cooper – Fareham, Hampshire (Diagnosed with breast cancer which has since spread)

“I had a persistent cough that had lasted a few weeks before I visited the doctor. My wife Marguerite insisted that I go and get something to fix it.

As the doctor was writing out my prescription, I asked him to check a lump that I had felt on my chest behind my nipple a few weeks earlier.

After a quick examination, the doctor concluded the lump was probably nothing serious, but referred me for more checks. A mammogram, ultrasound and biopsy came next. Each doctor that I saw was confident that the lump was nothing to worry about as there was no history of cancer within the family, yet just one week after my first appointment, I was given the news that the lump was, in fact, breast cancer.

My diagnosis of breast cancer came as a huge shock; I had heard somewhere that men could get breast cancer, but had never even thought about getting it myself. However, I remained calm and pragmatic about the diagnosis, quickly focussing on what steps I needed to take for treatment”.

Mark James – Porthcawl (Diagnosed with Stage 2 breast cancer)

“I noticed one day that my left nipple didn’t look quite the same as my right nipple; it was slightly wonky in comparison. It looked as though the nipple was folded over, but it wasn’t really a bother; I was more concerned with a hernia I had at the time.

When I had a pre-op for my hernia I took my top off in front of the nurse who told me that I should get the nipple looked at. I went straight to the surgery and saw the next available doctor who wanted to refer me. Less than a week later I was having a mastectomy to remove my breast cancer.

It didn’t surprise me – it just made me more curious. After my wife’s own diagnosis with breast cancer, I’d done some reading on the subject so I knew men could be affected.”

Mark O’Connor – Cork, Ireland (Diagnosed after finding a 2 inch lump on his nipple)

“I was in bed, on holiday when I found a lump on my left nipple. At first I just thought I had knocked it, as I was working as a builder at the time so was used to getting bashed about a bit. The lump started changing shape so I spoke to my wife, Tina, and arranged an appointment with my doctor. He didn’t give me any indication that I could have breast cancer, but I was referred to the Breast Clinic straight away.

About a week later, I had a mammogram and a biopsy that same day at Cork University Hospital (CUH). The lump was rock hard and two inches in size, so the specialist I saw was alarmed.

I received my results the following week – I had breast cancer. I remember my consultant looking shocked, but we both wanted to get on with the treatment. I needed a mastectomy of the left breast, and the operation was booked in for a week later.

When I was given the diagnosis, I was taken aback, I didn’t know men could get breast cancer, nor did my wife. “

Giles Cooper – Conderton, Gloucestershire (Diagnosed with cancer in his right breast)

“Because of my family history, I’d started checking my chest. My father was 77 when he died from breast cancer, he was from the generation of men who never really discussed medical issues. Until my father was diagnosed, I didn’t have any idea that men could get breast cancer.

I discovered a lump in my right breast, hidden right behind the nipple. I ignored it to start with, but eventually had it checked out by my doctor, having been encouraged by my wife, who’s a nurse.

Although I was expecting the worst, the news that I did have breast cancer was still an immense shock.”

Roy Collins – Bexhill-on-Sea (Diagnosed with a 6cm tumour, which had spread to his lymph nodes)

“My wife caught me getting out of the shower one day. She is a nurse and noticed that my nipple was inverted. I hadn’t been conscious of it and it certainly didn’t hurt.

She sent me packing to the doctor’s and from there I was sent to the hospital for tests including a biopsy.

My inverted right nipple had been caused by a lump behind the nipple, which my surgeon told me had been growing for probably six months.

I didn’t know that men could get breast cancer and certainly didn’t check myself.

When I was diagnosed, I just turned to the consultant and said ‘if you need to take my breast off, give me radiotherapy, chemo – just do it. Just get rid of it!’ “

Mike Greenhalgh (Diagnosed with bilateral breast cancer and is BRCA2 positive)

“I discovered two lumps in my breasts – one on each side, a small lump near my left nipple and a smaller swelling on my right breast, whilst I was in the shower. I hadn’t been checking myself, so it was completely by accident. After a couple of months my wife, both of us were GPs, prompted me to speak to my own doctor. I have Parkinson’s and we thought it might be a side effect of my medication.

My GP referred me to a consultant and I had a biopsy – a few days later, my consultant said he wanted to see me. He told me that I had breast cancer, I was very surprised, I hadn’t even contemplated that it might be breast cancer. I had been a GP for 27 years, but had never seen a case of breast cancer in men at my surgery, nor had my own GP. I felt the need to be strong to reassure those close to me, but also to remain positive about the outcome of my disease.

I’m one of five children and have an identical twin, Bill. After my diagnosis, I and all my siblings were tested for BRCA. Myself, my older brother and twin brother tested positive for BRCA2 as did one of my sisters. My other sister tested negative”.

*Breast Cancer Now, June 2020

Annie Lennox backs call to reopen chronic pain clinics

Annie Lennox has called for action over the “intolerable” suffering of chronic pain patients during lockdown. Annie said it’s “indecent and inhumane to leave people to suffer”.   

She was referring to the continuing closure of NHS specialist pain clinics.  While many patients get by on medication, some depend on regular treatment at NHS specialist clinics. These closed almost three months ago, with some staff diverted to Covid-19 duties, now lessening.

She personally suffers from “excruciating” neuralgic pain. This comes in occasional agonising bouts – but Annie highlighted the plight of other sufferers needing clinics frequently.

The international star, originally from Aberdeen, responded to patient concerns from Scotland where some patients -whose NHS treatments ran out during lockdown-were in such desperate agony that a few have been driven by relatives to England for infusions.

They paid around £800 for private infusions they couldn’t afford normally and the 500 mile return journeys were “torture” for their conditions. Private as well as NHS pain clinics stopped services in Scotland.

Annie wrote: “As a long-term chronic pain sufferer, I understand only too well what it feels like to go through hours or days with extreme physical discomfort.  

‘Without medication or clinical treatment, life becomes torturous and untenable.

In the U.K, millions of people suffer.  

Some rely on having regular access to pain reduction treatment, but due to the Covid 19 lockdown situation, NHS chronic pain clinics have been closed for months with no word yet on when they will re-open, which is sought urgently In Scotland in particular.

Will years of complaints over waiting times and underfunding continue to be ignored?

Unlike the barbarism of the Middle Ages – in the 21st century, it should be considered indecent and inhumane to leave people to suffer intolerable pain without their usual relief, while we actually do have the means to treat it. 

I very much hope this situation can be taken seriously and responded to as soon as possible.”

Annie Lennox OBE. 

Normally, returning patients visit Scotland’s NHS pain clinics over 40,000 times a year. Some need treatments every five to six weeks, others require different help and specialist advice.

Injections are currently barred if they contain steroids which could be harmful if a patient later develops Covid-19.

But infusion drips of the pain drug Lignocaine are free of steroids – and patients have appealed for these to be resumed urgently and a date set  for re-opening.  Other types of infusions have happened in Scotland during lockdown – but not for chronic pain.

Apart from around 40,000 visits by return patients to NHS Scottish pain clinics, there are over 20,000 new chronic pain patients in Scotland annually. That’s a fraction of the 800,000 suffering  (40,000 visits does not mean entirely 40,000 patients as some need treatment several times)

Annie sent support to the Scottish Parliament’s patient-run Cross-Party Group  on chronic and two charities also run by patients, Affa Sair in Moray and Grampian and Action on Pain UK.

All three groups have been outspoken critics of long-term lack of help for pain sufferers and thanked Annie for her “compassionate and uplifting outreach to patients” whose suffering was often overlooked.

Christopher Bridgeford, the voluntary chair of the 550 patient charity Affa Sair said: “I very much welcome and applaud Annie’s statement. It has been an agonising situation  since the decision to halt pain clinic treatments for those who depend on them.

“Medication doesn’t work for all.  For some, only those clinic visits tackle really terrible levels of pain through infusions.  Many  find it very hard to speak about their plight. For this international star and much respected activist to make her struggles with pain so public speaks of a very courageous and inspiring lady.

“I hope her words encourage the Scottish Government to ensure that full Pain Clinic services are restarted soon and staffing given proper funding in future”

Ian Semmons, patient chair of Action on Pain UK said: “Annie has given a strong and powerful message that cannot be ignored. She has spoken for those who suffer too much in silence.  Chronic pain patients have for years been overlooked by Governments everywhere. 

“But Action on Pain has long been very worried about Scotland and the shortage of funding for NHS chronic pain clinics and their hard-worked staff. They are funded  like a Cinderella service when they can even save some from suicide.

“Waiting times for new patients have soared from almost 90% being seen on time nine years ago to only 60.5% in 2019, before the virus emergency. The Scottish Government has dealt with chronic pain by setting up ineffective talking shops, meeting behind closed doors, not open to the public. Urgent action is needed”

Last year, Annie wrote of suffering excruciating pain for over ten years. It comes in bouts – not involved with regular treatment:

“Over a decade ago, I had to have a back operation and a lot of things changed after that. Long story.. but I occasionally suffer from excruciating nerve pain, which comes in with a vengeance when I least expect it.  It has given me an insight as to what others have to deal with … far more or less than this. My gratitude when it dies down is immeasurable.”

Miles Briggs, Scottish Conservative shadow health secretary and co-chair of the Cross Party Group on Chronic Pain said: “I totally agree with Annie Lennox and welcome her intervention around the negative impact the lockdown has had on chronic pain patients across Scotland.  

“For chronic pain patients across Scotland every week the lockdown continues is yet more time that chronic pain patients suffer unbelievable agony and distress.

“Over the last thirteen years SNP Ministers haven’t taken chronic pain patients’ seriously – ignoring their concerns and needs and failing to improve access to pain management clinics and treatments.

“It is clear we need to see SNP Ministers restart services for chronic pain sufferers as soon as possible but we also need to see an acknowledgment from SNP Ministers that even before this public health emergency chronic pain patients across Scotland were being failed.

“As we come out of lockdown it presents an opportunity for us to radically reform the way services are run and accessed by chronic pain patient.

“Chronic pain patients’ want to see a step change in Scotland to help deliver for chronic pain patients and their families.”

Find out more https://www.affasair.org & http://www.action-on-pain.co.uk

Social Distancing and Sight Loss

Guide Dogs Scotland calls for public to ‘keep two meters distance but don’t disappear’ – to help those trying to social distance without sight 

  • Just 22% of the public ‘completely comfortable’ offering to help someone with sight loss while social distancing is in place.

As lockdown starts to ease and Scotland anticipates fewer restrictions around travel and socialising, the charity Guide Dogs Scotland reports that lockdown being lifted doesn’t mean greater freedom for everyone.  

Guide Dogs Scotland has highlighted a new set of challenges for people with sight loss to overcome – with social distancing measures limiting independence and increasing isolation.

Guide dog owner Jonathan Attenborough (above) from Perth explains: “Social distancing is the most challenging aspect for me in the whole Covid-19 situation. Not being able to socially distance is a major challenge to my independence and keeping myself safe. 

“I’m less confident getting out and about than I was. Now that lockdown is lifting, other people are trying to get their life back to what it was, but it’s a whole new world for people with sight loss. It’s a lot for us to adjust to and it would really help if people have an awareness of how they can play their part.” 

Research conducted by the charity in the first week of June found that just 22% of the UK general public would feel ‘completely comfortable’ offering to help someone with sight loss while social distancing measure were in place.

Reasons for a lack of comfort amongst this group included not knowing how to help from two meters away (50%) and being concerned about making physical contact (37%). 

These concerns are valid – the support people with sight loss have previously relied on, such as sighted guiding which can involve taking someone’s elbow, is not compatible with social distancing. This has left people with sight loss concerned about accessing essential services such as supermarkets and public transport. 

The research also found that although 78% of GB adults understood that those with sight loss would face additional challenges while social distancing, 65% hadn’t considered this prior to taking the survey.  

https://youtu.be/Nb0HTtBo0UU

To help combat the increasing isolation felt by those with sight loss during lockdown, Guide Dogs is launching a campaign called ‘Be There’, which gives guidance to encourage the public to feel confident in their ability to offer support whilst maintaining social distancing: 

1 – Keep your distance, but don’t disappear – People with sight loss may find it challenging to social distance, so if you see someone with a guide dog or a long cane then you can help them by making sure you keep 2m away, but that doesn’t mean you can’t also offer your help.  

East Dunbartonshire guide dog owner Deborah Roberston said when other people have said hello or offered support, it’s been helpful to her and guide dog Rye.

 “I do feel more vulnerable going out with it being so much quieter around me, it can be disorientating and I am less confident getting out and about than I was,” said Deborah. “I’m a confident person but I feel more vulnerable out now – when I do hear footsteps I get worried that the person might be coming too close to me, or I might be going too near them. 

“People in the neighbourhood who know me, know it’s okay if they let me know they are there and that they’re stepping out of the way.” 

2 – Say hello and offer your help – Simply by letting someone with sight loss know you are nearby; you are giving them the opportunity to ask for any help if they need it. People often feel unsure about their ability to help someone with sight loss, but their request could be a simple as finding out where a shopping queue starts, or if there is a safer place to cross a road. 

West-Lothian guide dog owner Monica McGill said social distancing measures is making the prospect of shopping a daunting one for her and guide dog Sadie. 

“The thought of going out shopping is very challenging,” said Monica. “I’m told that every shop has put visual signs on the floor – I would have a very hard job following that and where I am in the shop in terms of finding specific things. 

“If staff were on hand to provide verbal assistance, and feel confident in speaking to someone with sight loss, it would be a great help.” 

3 – Describe the scene – We’ve all had to adapt to unusual sights during lockdown – people standing apart in long lines outside of supermarkets for example. But those with sight loss haven’t always witnessed this to the same extent, which can be isolating and confusing.

By describing what you can see to someone with sight loss, you can help them to understand the environment and navigate accordingly. 

Guide dog owner Jonathan Attenborough explains: “I don’t always know there is a queue because my dog Sammy takes me to the door of the shop, not the end of the queue. Shops have introduced visual indicators and one-way systems and if you can’t see they’re a major challenge.” 

As part of a separate survey, people with sight loss had previously told Guide Dogs that concerns about travelling once lockdown restrictions begin to be lifted included their ability to social distance whilst using transport (84%) and access to support whilst using transport (61%). 

Guide Dogs Regional Head of Operation for Scotland, Wendy Rankin said: “Lockdown being lifted isn’t the start of greater freedoms for everyone. In the past couple of months, we have consistently heard that people with sight loss are concerned about social distancing – even the most confident are lacking confidence in the new environment.

They are concerned that people will avoid them and be less willing to help and have told us that not knowing what the new environment looks like is making even doing normal routes a stressful experience. 

“In addition to informing the general public how they can help, we’re also asking the Scottish government, transport operators and business leaders to work with us and the wider sight loss community to ensure that the communities we’re creating in the “new normal” are inclusive communities for everyone, including people with sight loss.” 

For support or further information, please visit www.guidedogs.org.uk.

First Test and Protect data published

Breaking the chain of virus transmission

The first set of data from week one of the coronavirus (COVID-19) Test and Protect system has been published.

The data, which will be published weekly, shows:

  • the number of positive index cases from 28 May to 7 June
  • the number of index cases where contact tracing has been completed
  • the number of contact traces

Since Test and Protect was launched, 681 cases have tested positive with 741 contacts traced.

The level of data published will continue to improve once the data is robust and validated.

Cabinet Secretary for Health Jeane Freeman said: “Since 28 May, contact tracers across the country have followed up each new positive test to ensure those who may have come into contact with the virus take steps to isolate. By doing so, we can break the chains of transmission while slowly changing lockdown measures.

“The average number of people traced for each positive case reflects that we are still in phase 1 of lifting lockdown restrictions and people should not be mixing with large numbers of people outside of their own household.

“I would encourage anyone who has symptoms of COVID-19 to come forward as early as possible and get a test immediately to help us supress the spread of the virus.

“Contact tracing is one part of our work to tackle the COVID-19 pandemic. Physical distancing and good hand and cough hygiene continues to play a vital role in helping to minimise the spread of infection.”

20-06-10-covid19-publication_summary

Test and Protect was rolled out across Scotland on 28 May 2020.

The Test and Protect data is published on Public Health Scotland’s website.

Lucky for some! Cash for 13 swimming clubs

The Swimathon Foundation is delighted to announce the award of grant funding to 13 Scottish swimming clubs, swimming schools and independent aquatic organisations, through its Covid-19 Relief Fund. 

The Foundation has been overwhelmed by the number of applications received and has taken the decision to boost its original commitment of £30,000 to £50,000 to cover these grants across the United Kingdom for small swimming and aquatic organisations who have suffered short-term financial hardship due to Covid-19 pandemic.

Long time Swimathon supporter and former Commonwealth and World champion, Mark Foster, said: “It is fantastic to see the Swimathon Foundation support the swimming community at this difficult time.

“These grants will be a lifeline to many people and will play a crucial role in helping to support local clubs and individuals who do so much to keep swimming communities active. Swimathon has been a force for good in swimming communities all across the UK for over 30 years and it is fantastic to see the Swimathon Foundation support people in their time of need.”

Anthony Kendall OBE, Chair of the Swimathon Foundation echoed these sentiments: “In these difficult times for all swimming organisations, the Swimathon Foundation has been determined to play its part in supporting those smaller, local groups that are the foundation of swimming participation throughout the UK.

“We have been taken aback by the number of people who need help during these unprecedented times and that is why we have increased our overall donation to £50,000. Swimming is a vital community activity and we are proud to play our part.”

Sharon Macdonald, Director of Development for Scottish Swimming said: “We are delighted that 13 clubs in Scotland have benefitted from the Swimathon Foundation COVID-19 Relief Fund.

“The fund will help many clubs during this challenging time to make up for losses incurred due to clubs not operating normally. It is an essential fund to support clubs to get through this difficult time and be ready to meet their members needs when pools re-open.”

The Swimathon Foundation has awarded 101 grants across the United Kingdom to small swimming and aquatic organisations at the heart of the swimming community.

One of the organisations that the Swimathon Foundation is supporting include the Carnoustie Claymores based in Angus, who have been keeping members active by running regular quizzes, land training and challenges via Zoom.

Without additional funding, they have been left unable to pay their coaches and having subsidised the membership fees of some of their members due to the impact of coronavirus on many families, are running at a serious loss.

The Swimathon Foundation is a remarkable ‘force for good’ in communities all across the UK. Its main pool-based ‘Swimathon’ has raised over £50 million for charities since it was started some 33 years ago.

‘Swimathon’ is the UK’s biggest pool-based recreational swimming event. It takes place annually at some 600 pools across the UK and some 750,000 people have taken part since the first event in 1986. As a result of coronavirus, this year’s event is now scheduled to take place later in the year.

For more information about The Swimathon Foundation, visit www.swimathonfoundation.org. 

People at risk of losing sight due to fear of hospital during coronavirus pandemic

Up to 50 per cent of people with acute or urgent eye conditions may not have been attending scheduled eye-healthcare appointments because of concerns over coronavirus.

The Royal National Institute of Blind People Scotland is urging people to continue treatment which, in some cases, may be vital to prevent permanent sight loss.

According to the UK Ophthalmology Alliance, ophthalmic professionals across the UK have found that up to 30 to 50 per cent of people with acute or urgent eye conditions, including age-related macular degeneration, the most common cause of sight loss, have missed appointments during the peak of lockdown.

James Adams, director of RNIB Scotland, said: “It is very concerning if people are not attending appointments or seeking advice for any sudden changes in their vision. Some treatments being missed can stabilise conditions and keep people from losing their sight unnecessarily.

“The precautions currently put in place by NHS Scotland are there to help patients and medical staff keep safe during the ongoing pandemic. We strongly advise people to attend their appointments or to discuss any concerns they have with hospital eyecare staff.”

RNIB Scotland is highlighting the provisions in place to reduce the spread of coronavirus.

Some of the precautions include having fewer people attending at one time in order to adhere to social distancing guidelines, reducing the amount of time patients and consultants spend together, and reducing waiting times.

Andrew Ferguson, chair of Eye Health Scotland and a consultant ophthalmologist in NHS Forth Valley, said: “Hospital Eye Services in Scotland are re-starting clinical work, albeit in a limited way due to distancing and safety requirements in order to keep the risk of Covid transmission at very low levels.

“Where possible we are using alternative methods of communicating remotely, but in many cases a face-to face visit to the eye clinic remains essential to avoid sight loss; and in that regard I would empathise the importance of attending if a hospital appointment is offered.

“However, I want to reassure patients that eye units are taking every possible precaution and the risk of catching Covid-19 in an hospital eye clinic is extremely low.”

For more information on what to do if you have concerns about your sight during the coronavirus pandemic, call the RNIB Helpline on 0303 123 9999 or visit rnib.org.uk/eyehealth.

BAME community and coronavirus: we need answers

A recent publication released by the government states that BAME communities – including the Bangladeshi community – are disproportionality impacted by COVID-19 (writes Foysol Choudhury). 

My community would like to know: how many Bangladeshi people have actually died from Covid-19? Where is the evidence regarding why they died?

We are asking for factual information to relay back to the communities as misinformation has a detrimental impact on people’s mental wellbeing, which has become clearly apparent from speaking to the local BAME community members.

As an organisation and as community activists, it is our job to ensure our communities are given the current and correct information in a manner they understand. Failing this causes paranoia, worry and stress. This is very detrimental for those people who already have underlying health issues and mental condition such as depression and anxiety.

Public Health Scotland published some interim data about two weeks ago that suggested that there was no evidence of disproportionate impact on BAME communities in Scotland. A few weeks ago it was mentioned that Black people are at higher risk of dying from Covid-19. Why?

Information given in the media relating to BAME people should be based on science facts and provide clear explanations to why BAME people are at higher risk of Covid deaths.

Is it due to the lack of PPE provided for front line workers, or poorer working conditions and poor health? Why are certain ethnicities more at risk? In particularly, those who are working as carer, patient handlers, porters, cleaners etc.

“An analysis of survival among confirmed COVID-19 cases and using more detailed ethnic groups, shows that after accounting for the effect of sex, age, deprivation and region, people of Bangladeshi ethnicity had about twice the risk of death than people of White British ethnicity.

People of Chinese, Indian, Pakistani, Other Asian, Caribbean and Other Black ethnicity had between 10 and 50% higher risk of death when compared to White British.”

If this is the case, where are the UK statistics? What is the government proposing to do to eliminate such disparities? I am keen to get Scottish Covid 19 related data on BAME communities; test results, hospital admission, death and suspected infected.

It is the responsibility of the government to release true, reliable statistics – not to create fear and division in the community by releasing data that has no scientific evidence.

As a member of the Bangladeshi community, I am fully aware of community members going through many difficulties during this pandemic. I am also fully aware of only a few Covid-19 related deaths in Scotland.

It is shocking to hear that Bangladeshis are apparently at a higher risk of this disease. Please provide the data requested so that the community can protect themselves.

Foysol Choudhury MBE

Chairman, Edinburgh & Lothians Regional Equality Council

Action Against Inequality

A new expert group will work with the Scottish Government to provide a clearer picture of the impact on minority ethnic communities of coronavirus (COVID-19).

Following indications that minority ethnic communities may face higher risks from COVID-19, the group will consider evidence and data being gathered by the Scottish Government, Public Health Scotland, National Records of Scotland and the NHS, and advise on policy actions to mitigate any disproportionate effects.

As part of its immediate response to the pandemic, the Scottish Government has provided more than £500,000 to organisations working specifically with minority ethnic communities across Scotland.

Equalities Minister Christina McKelvie said: “The Scottish Government is deeply concerned by reports that suggest people from ethnic minorities have been disproportionately affected by COVID-19 both in terms of health and wider social and economic impacts.

“Although the current analysis in Scotland appears to show that there is not a higher level of COVID-19 cases than would be expected, I understand that many people will be anxious about protecting themselves and their families. I want to reassure them that we are taking this issue extremely seriously.

“We are working to better understand the data on how the pandemic is impacting on our minority ethnic communities in Scotland so we can take the appropriate action and this new group will use their expertise to challenge, inform and shape future work.

“Equality and human rights issues such as this are at the heart of our policy response to the impacts of COVID-19, and in particular in our recovery and renewal work. This is part of our wider work to advance race equality, backed by over £2.6 million in the last year.”

Angela Leitch, Chief Executive, Public Health Scotland said:  “Understanding whether minority ethnic communities are at greater risk from COVID-19 is a crucial part of our response to the virus, particularly in light of reports from other parts of the UK and across the world.

“Public Health Scotland is undertaking work to review the available evidence understand emerging patterns including comparisons between the situation in Scotland and other parts of the UK.

“We are also working with National Records of Scotland and the Scottish Government to analyse and report on the impact of COVID-19 by ethnicity. Working with other members of the expert group, our evidence and data will enable the development of an effective evidence-based response and ensure the health of all of Scotland’s communities is protected.”

Heart Research UK Healthy Tip – Bike Week

Heart Research UK Healthy Heart Tip, written by Dr Helen Flaherty, Head of Health Promotion at Heart Research UK

Bike Week 6th – 14th June – https://www.cyclinguk.org/bikeweek

Get cycling this Summer

Regular physical activity will help you to maintain a healthy weight and keep your heart healthy. Cycling is a fun way to improve your overall health and wellbeing as well as enabling you to get out and explore your local area. We have some tips to get you started with cycling this summer.

If you currently don’t own a bike …

You can check whether your employer offers a Cycle to Work scheme as this can make buying a bike more affordable. Travelling around by bike may help you to make savings on travel costs.

If you don’t have access to a cycle to work scheme, you could check out the deals available from your local bike shop or look out for a cheap second hand bike. You can get advice online or at your local bike shop about which bike is most suitable for you and what extra equipment you might need.

If you are unsure whether cycling is for you, why not find out whether you can hire a bike in your local area to try it out first.

Start off small

Don’t try to do too much too soon. If you try to cycle for too long the first time you go out, you may get fatigued or injured and this may put you off continuing. Build up gradually, starting with a short cycle on fairly flat ground, building up to longer and more challenging cycles slowly. Make sure you allow yourself adequate recovery time in between cycles.

Fuel and fluid

As you build up to longer rides as you get fitter, you should always remember to take food and a drink on your bike rides. A snack, such as a banana or a cereal bar, and a bottle of water strapped to your bike frame will help to keep you going for longer.

You can find plenty more healthy tips and recipes at heartresearch.org.uk

 

‘Perfect COVID storm’ for children’s mental health

  • The NHS in Scotland failed to meet a maximum 18-week waiting time target for children and young people to receive treatment from mental health services
  • More than a third are waiting more than 18 weeks for treatment.
  • All health boards bar the Island health boards failed to meet this target
  • Danger of ‘perfect storm’ of pent-up demand as lockdown eases overwhelming services

The Scottish Children’s Services Coalition (SCSC), an alliance of leading independent and third sector providers of children’s services, has warned of a “perfect storm” of a mental health crisis coupled with further cuts to some services following the Coronavirus pandemic.

It has urged the Scottish Government to invest significantly in mental health services to address this, warning of an overwhelming demand on services, and urged parents and young people to seek support if they need it.

The call comes as latest waiting time figures from Public Health Scotland, covering the period January to March 2020 (just as the lockdown came into force), show that 4,093 children and young people started treatment at specialist child and adolescent mental health services (CAMHS) in this period.

Of this number under two-thirds (65.1 per cent) received this treatment within the Scottish Government’s 18-week waiting time target from referral to treatment.

This was lower than the previous quarter (66.4 per cent) and significantly lower than the same period last year (73.6 per cent), meaning that just over a third are not being seen within the waiting time target.

All bar the island health boards failed to meet the Scottish Government 18-week waiting time target for children and young people to receive treatment from CAMHS. This target should be delivered for at least 90 per cent of patients.

Individual health boards failing to meet this target are: NHS Borders (89.8 per cent), NHS Fife (76.0 per cent), NHS Ayrshire & Arran (71.4 per cent), NHS Grampian (86.0 per cent), NHS Greater Glasgow & Clyde (58.8 per cent), NHS Highland (84.8 per cent), NHS Lanarkshire (57.7 per cent), NHS Lothian (54.6 per cent), NHS Tayside (65.0 per cent), NHS Dumfries & Galloway (87.2 per cent) and NHS Forth Valley (54.2 per cent).

The coalition has warned of a significant demand on services once the lockdown ends as subsequent to these figures there has been a fall in the number of children being referred for specialist help during lockdown, which could have a devastating impact on their mental health.

It warned that the absence of support from teachers and other care professionals could result in early warning signs being missed and lead to a surge in demand for services once the lockdown ends. Self-isolation and social distancing are already having an impact on young people struggling with issues such as anxiety and depression.

A recent report by Young Scot and the Scottish Youth Parliament, called Lockdown Lowdown, found almost two-fifths of young people felt moderately or extremely concerned about their own mental wellbeing: –

  https://youngscot.net/news-database/lockdownlowdown-results

And a separate report from YouthLink Scotland showed the youth-work sector was facing a mental health crisis due to projected budget cut of £20.5 million this year – https://www.youthlinkscotland.org/news/may-2020/survey-report-reveals-20m-funding-hit-for-sector-as-youth-mental-health-crisis-looms/

Although the coalition welcomes the announcement made  by the First Minister (27 February) to invest £3.8 million in developing mental health services to cope with the coronavirus pandemic, it fears that not enough will be done to safeguard the mental health of our vulnerable children.

A spokesperson of the SCSC commented: “These latest waiting time figures highlight that nearly all of Scotland’s health boards are failing to meet the Scottish Government waiting time target for treatment.

“Along with cuts in services this points to a ‘perfect storm’ of a mental health crisis as we come out of lockdown, coupled with further cuts in services.

“While referrals have dropped during lockdown and children are not accessing support, we are storing up immense problems for the future as these same under-pressure services face being overwhelmed due to a greatly increased demand.

“Children are not currently getting access to social services and are not going to school or reporting their experiences. Taking them to see the GP may currently be considered low priority.

“It is important to stress that these services are still available and the Scottish Government must look to support these young people as we come out of lockdown by investing significantly in services.”