People living across Scotland are being invited to lace up their trainers and get walking this summer in aid of people living with a chronic, life-limiting autoimmune condition called scleroderma.
The charity Scleroderma and Raynaud’s UK (SRUK) is asking people to get involved with its nationwide walking challenge and raise money for vital research and support. Participants have the option of making their walk physical or virtual and as long or as short as they need.
The fundraiser – called The SRUK Walk – aims to raise at least £19,000 to represent the 19,000 people in the UK living with scleroderma. The money will be used to support people affected by the condition and fund research to improve diagnosis, treatment and quality of life.
Sue Farrington, SRUK Chief Executive, said:“Scleroderma affects thousands of people and there is currently no cure. Through our research, information and support services we’re taking steps to improve the lives of everyone affected by scleroderma. And now we’re asking the public to quite literally do the same.
“The past year has taken a toll on many people with scleroderma who have been forced to shield and, in some cases, have their treatments put on hold. We want to make sure we can be there for everyone who needs us, which is why we’re asking people to put their best foot forward – a simple act that will help make a world of difference.
We know how supportive people in Scotland can be, so we’re hoping as many people as possible get involved.”
Scleroderma occurs when the body’s immune system becomes overactive and begins to attack healthy tissue, causing hardening of the skin and, in some cases, other organs. It is most common in adults over the age of 40 and can also affect teenagers and young adults, although this is much rarer.
SRUK is the only charity solely focused on improving the lives of people with scleroderma and Raynaud’s in the UK through information, support and ground-breaking research.
To get involved with The SRUK Walk or to find out more, visit www.sruk.co.uk/walk
AlexCole-Hamilton challenges First Minister over disparity in Covid response
Liberal Democrat Heath Spokesperson Alex Cole-Hamilton has challenged the First Minister as to why Edinburgh residents have not been offered the same access to surge testing that Glasgow residents were, despite the rise in cases.
Edinburgh now has more cases per 100,000 of the population than Glasgow and several schools within the city have reported outbreaks.
Despite confirming yesterday that walk-in clinics will be provided for over 40s who have yet to receive their first dose of the Covid-19 vaccine or anyone of any age waiting more than 10 weeks for their second astrazeneca dose, door to door surge testing, which has been available in areas of Glasgow for weeks is still not available in Edinburgh.
The First Minister was clearly dissatisfied with Mr Cole-Hamilton’s question, failing to answer and accusing him of “trying to divide and set people against each other.”
Mr Cole Hamilton commented:“It is really disappointing to see the First Minister refuse to engage constructively on such a vital issue. The Health Secretary used the exact words ‘Edinburgh is the new Glasgow’ in a discussion I had with him last week. On that basis it is not unreasonable that I would seek the same level of action for my constituents as people in Glasgow saw.
“I have welcomed the announcement that walk-in vaccination centres will now be available to those over 40 but it is not enough. As well as surge testing, we need to provide walk in centres for those aged 18 and over who are yet to receive their first dose of this vaccine.
“My first responsibility is to my constituents, and I will never apologise for using my place in Parliament to fight for their best interests.”
CARE HOME residents have been able to instantly share important information about their health and wellbeing with loved ones throughout the pandemic, thanks to a bespoke digital care system.
When Cramond Residence closed its doors to visitors back in March 2020, its tailored technology-enabled care system showed its true value by providing real-time updates on residents’ health and wellbeing with family, through an app called Access Care planning.
The care plans are developed with the residents and their family, as well as key workers and named nursing staff. Plans are individually adapted for each resident on their arrival to ensure it reflects their healthcare history and care needs.
It covers everything from the food they eat and exercise or physiotherapy they take, through to any prescribed medication and palliative care they may require.
The technology has been in use since the care home opened in 2018, but became indispensable during the pandemic. Throughout lockdown, families were able to log on and view their loved one’s information at the click of a button, giving them peace of mind and reassurance wherever they are in the world.
Ross Bijak, Clinical Care Manager, said: “Our online healthcare system has received a lot of positive feedback from resident’s families in recent months – it means they have access to real-time information around the clock.
“Lockdown was extremely tough for families who weren’t able to visit, and for our residents themselves. I think one saving grace has been this technology which is able to provide some comfort and reassurance to families.
“We’ve had families calling us just to chat about something they’ve read on the app, or to share their delight in seeing a specific item like physiotherapy or certain exercise in the plan.
“Although the plans are created when residents first enter the home, they are regularly updated and reassessed as people’s health and care needs change.
“For example, we have built specific care plans focused around visiting requirements and Covid-19.”
The digital care plans take into account a whole range of factors, including a resident’s skills, strengths and experiences to create the best, bespoke care plan for them which puts their needs first.
Cramond Residence provides a combination of luxury accommodation and the highest quality of care. Set in a leafy location, it offers small group-living in nine houses, with all residents enjoying a wide range of amenities and activities, delicious food and bespoke care.
The coronavirus crisis has had a huge impact on the nation’s activity levels, with 1.2 million more adults now classed as ‘inactive’ (up 2.6% to 27.1%) and less than half (44.9%) of children and young people meeting the Chief Medical Officer’s guidelines of 60 minutes a day.
The pandemic has also impacted the nation’s mental well-being, with new data from UK Coaching showing that nearly 9 in 10 coaches (87%) are concerned about the poor mental and physical health of participants. Additionally, nearly half of all coaches (47%) said one of the biggest challenges currently facing them is motivating people to return to sport and physical activity.
Coaches will be central to the nation’s restart, with research conducted by YouGov on behalf of UK Coaching revealing that 7 in 10 adults (70%) believe grassroots coaches and instructors are important in helping Britain become a fitter and more active society.
And the vital work that coaches deliver is being understood and appreciated more than ever, with over two thirds (69%) of the nation believing it is important for society to value the role that coaches and instructors play in keeping local communities active.
Yet concerns amongst coaches remain and UK Coaching, the lead charity for coaches in Britain, fear that coaches aren’t receiving the support they need in order to continue playing this vital role in communities.
With the Covid-19 pandemic causing many people to consider the need to be fitter and more active, nearly 6 in 10 (57%) of coaches surveyed are concerned about the increased cost of facilities and almost half (48%) said they needed to offer lower priced activities to enable wider access.
Access to funding and facilities also remains a barrier, with 40% of those surveyed raising concerns about the need for updated facilities in encouraging their local community to return, as well as increased access to funding for equipment (34%) and to reopen local facilities (31%).
Mark Gannon, Chief Executive at UK Coaching, said: “It is clear that the British public see coaches as fundamental to driving a more active society and value the important role they play in creating healthier and happier communities.
“The Covid-19 pandemic has revealed many of the vulnerabilities in the health of the nation and it is now more important than ever to support people to achieve healthier lives.
“Coaches will be vital as we transition through the pandemic but in order to continue delivering great coaching, we must ensure they have all the support and tools they need. From our research we know that three areas of concern remain – the cost of entry, access to and out-of-date facilities and cost of equipment.”
The research has been released during UK Coaching Week – a national awareness week to celebrate great coaching and help the nation’s coaches to share their voice, be heard and generate the investment they need to reinvent, recover and return.
Emma Hayes, Chelsea Women’s Head Coach, is supportive of the campaign. She said: “Coaches play a fundamental role in driving people to be more active and to reap all of the positive physical and mental health benefits that this brings.
“Elite coaches get a lot of attention, but really, it’s the army of grassroots coaches in communities who are making the biggest difference. That’s why I am happy to show my support for UK Coaching Week and recognise coaching’s importance in helping Britain become a more active nation.”
Tracey Neville, Performance Operations Director at Manchester Thunder Netball and former Head Coach of England Netball, said: “It’s fantastic to read that the majority of people back grassroots coaches to get the nation back to activity, fitness and good well-being as restrictions ease.
“I know first-hand the influence that great coaches can have on your life. My own coaches instilled principles in me that have driven me to be where I am now. They are at the centre of communities and bring people together in a welcoming environment to support them to enjoy sport and physical activity. That’s why I’m supporting UK Coaching Week.”
To find out more about UK Coaching and the activity taking place this UK Coaching Week, visit www.ukcoaching.org.
For every pair of booties received, the charity will donate one pair to families it works with in Glasgow and the other it will use to raise awareness with MSPs about the importance of investing in early childhood.
Through its Fight for a Fair Start campaign, NSPCC Scotland is urging the Scottish Government to provide support for all families who need it, so that every child is given the chance to thrive.
The charity says substantial investment is needed in specialist services that support the parent-infant relationship, which in turn help a child’s healthy development and prevent future problems in its life.
Evelyn Hart, a volunteer counsellor at the Aberdeen Childline base, has already been busy with her knitting needles and has completed her first pair of booties.
She said: “I want to help the NSPCC in this campaign because I know that it is so important that families receive all the support they need, so children can grow up feeling safe and nurtured.
“If we can prevent some of the trauma and hardship that some children face by giving them a better start in life, then I want to do what I can to help – and knitting a couple of pairs of booties is a small task!”
NSPCC Scotland research shows that despite overwhelming evidence that people’s experiences in early childhood lay the foundations for their future health and wellbeing, there is still very little support available in the country for families with young children.
In studies carried out before the pandemic hit, the charity found that very few services across Scotland specifically addressed the emotional and developmental needs of children under the age of two. Last year, around half of the children on the child protection register and over a third coming into the care system in Scotland were younger than five years old.
Joanne Smith, Policy and Public Affairs Manager for NSPCC Scotland, said: “A baby’s experiences can have a profound impact on the rest of their life. Yet, this is a stage of life that is too often overlooked and under-supported.
“We recognise that advances in early years policy have been made in the last decade in Scotland but this needs to be matched with funding. Providing early support to families can help build positive relationships that prevent harm and, in turn, change life trajectories. This is fundamental to transforming childhood and creating equality in Scotland.
“People don’t need to be seasoned knitters to support our campaign, in fact they could even sew or crochet the booties. And we will appreciate all the support we can get to help us fight for a fair start for every child.”
To support the Fight for a Fair Start campaign by creating two or more pairs of baby booties sign up here. People will then receive an email, which includes patterns and a postal address to send the booties to by August 31.
People can also support our Fight for a Fair Start campaign by signing our petition here.
Our new research finds that 72% of carers have not had any breaks from their caring role during the pandemic
Our report Breaks or breakdown, released for Carers Week, found that the COVID-19 pandemic has had a significant impact on carers’ ability to access breaks. More than a third (35%) of people caring unpaid for family members or friends feel unable to manage their caring role, and three quarters (74%) reported being exhausted as a result of caring during the pandemic.
The report also found that carers lost, on average, 25 hours of support a month they previously had from services or family and friends before the pandemic and that fewer than one in five (14%) are confident that the support they relied on before the pandemic will continue in the future.
This Carers Week, we’re campaigning to increase funding for carers’ breaks. Nearly 900 people have now written to their MP asking them to raise the need for better breaks support in Parliament.
If you’ve not yet joined our campaign, click the button below:
People across Scotland are being reminded about the information and support available to carers from NHS 24.
As part of 2021’s Carers Week, the national health board is highlighting its online service ‘Care Information Scotland’ to help people with caring responsibilities find what they need in one handy place.
NHS 24’s Associate Medical Director, Dr Paul Perry said carers play an important role so it’s vital we support them: “Looking after a loved one, a friend or neighbour can be rewarding but it can also be demanding, physically and emotionally.
“Carers need support too and our service, Care Information Scotland, offers a wide range of advice and information. Bringing all the different resources together in one place makes it easier for people to find what they need and helps us to care for our carers.”
Local organisation Capital Carers (formerly Nort West Carers) has organised a full programme of events and activities for Carers Week:
Heart Research UK Healthy Heart Tip, written by Dr Helen Flaherty, Head of Health Promotion and Education at Heart Research UK
Improving Your Cholesterol Profile
There are two main types of cholesterol, LDL, sometimes termed ‘bad’ cholesterol, and HDL, sometimes termed as ‘good cholesterol’.
The reality is that we do need some of both types of cholesterol, but the incorrect balance can be harmful. When LDL cholesterol builds up in the arteries, it can contribute to plaque formation, whilst HDL cholesterol removes harmful cholesterol from the bloodstream.
With this in mind, here are some tips for creating a healthy cholesterol profile:
Increase Fibre Intake
Fibre, particularly the type found in porridge oats and wholegrains, known as beta-glucan, helps to reduce LDL cholesterol levels.
Go Plant-Based
Diets higher in vegetables, fruits, nuts, beans, and pulses are healthier for the heart than animal-derived alternatives that are high in saturated fats such as meats, cheeses and processed snacks such as biscuits.
Eat Good Fats
Unsaturated fats, particularly when swapped for saturated fats, can help to increase your HDL cholesterol levels. Excellent sources of good fats include oily fish such as salmon and mackerel, extra virgin olive oil and avocados.
Exercise Regularly
Aerobic exercise such as running or cycling will help to increase levels of HDL in the blood, especially when performed for more than 150 minutes each week.
Avoid high Alcohol Consumption
Alcohol can increase the amount of fat in the blood and lower HDL cholesterol, therefore drinking less than 14 units per week is recommended.
A Queen’s University Belfast research team is leading an international study on COVID-19 Antibody Response in Cystic Fibrosis (CAR-CF).
The study is to be carried out by a team of researchers from the university’s Wellcome-Wolfson Institute for Experimental Medicine (WWIEM). It will measure COVID-19 antibody levels in thousands of people with cystic fibrosis across 17 European countries and is funded by a $1.5m grant from the CF Foundation (US) over a two-year period.
The project will also run in Canada and the US, making the research the largest prospective study in cystic fibrosis (CF) to have been carried out to date.
The coronavirus pandemic has been a worrying time, but it has been particularly stressful for people with long-term conditions such as CF.
CF is a chronic condition that damages the lungs and leaves patients vulnerable to chest infections. There is currently little information about how COVID-19 has impacted people living with CF, however, they may be at particular risk from this new respiratory virus and the various strains.
Dr Damian Downey, Clinical Senior Lecturer in Respiratory Medicine from the WWIEM at Queen’s, and Director of the Northern Ireland Regional Adult CF Centre, who is leading the project, said: “Viral respiratory tract infections can be more severe in people with CF than the general population, with an increased risk of complications and a negative impact on lung function.
“This new research project will explore infection and vaccination rates in those with CF and link to important clinical information over time. We can then understand how COVID-19 has impacted this vulnerable population, how long the antibodies last and the risk of future infections.”
Dr Downey is the Director of the European CF Society Clinical Trials Network which involves 58 research centres in 17 countries. This network will oversee the project and the WWIEM at Queen’s University will be the central European laboratory that will analyse the research results.
