InnoScot Health’s last ‘lunch & learn’ session for the first half of 2024 is entitled Engaging students in healthcare innovation for an improved NHS and will provide interesting perspectives on this key facet of turning ideas into health service improvements.
Hosted on Microsoft Teams on Wednesday 26 June from 12 until 12.45pm, the free to join webinar will be introduced by Innovation Manager, Fiona Schaefer.
She will discuss InnoScot Health’s work over the past two years in providing more than 10 teams of students from Heriot-Watt University Engineering Design and Manufacture and Glasgow School of Art’s product design manufacture students with real world project briefs from NHS innovators.
Fiona will be joined by two guest speakers:
Dr Faezeh Shalchy, Assistant Professor at Heriot-Watt University’s School of Engineering and Physical Sciences who has been providing academic support to engineering design and manufacturing students working on healthcare projects
Lorraine Thomson, Business Engagement Manager at Interface who works with organisations to match them to Scotland’s world-leading academic expertise, helping to turn innovative ideas into reality
Fiona said: “Over the past couple of years, InnoScot Health has successfully engaged with students at Heriot-Watt University and Glasgow School of Art. This has resulted in enduring collaborative relationships and this webinar will provide a showcase of successes to date.
“We’re also delighted to have great guest speakers – Dr Shalchy who is a forward-thinking engineer specialising in projects which aim to enhance lives.
“Interface will also provide engaging views which draw on its role as a central hub connecting industry and academia, often leading to enhanced healthcare innovation.
“A Q&A section will round off the webinar, allowing attendees to probe and receive guidance on their own particular areas of interest.”
“While InnoScot Health is pausing its webinar series for the summer holiday season and recommencing in late August, we’re already looking to the autumn for innovation challenges which could suit engagement with engineering students to explore a new concept, test ideas, or explore solutions to a pressing problem.”
This week is Deafblind Awareness Week. However, did you know that Scotland does not formally recognise Deafblindness as a distinct disability?
Deafblind Scotland, with the support of the Cross Party group on Deafness, have been calling on the Scottish Government to formally recognise deafblindness as a distinct disability in Scotland.
The ALLIANCE supports the definition of Deafblindness – can you?
As part of Deafblind Awareness Week, Deafblind Scotland will be recognised for the work they have been doing at a parliamentary reception at the Scottish Parliament on 26th June.
MND Scotland has launched a network of events to bring together researchers and people with, and affected by, motor neuron disease (MND) to help drive research through shared knowledge, ideas and lived experience.
Following a series of successful pilot events in 2023, the Lived Experience and Researcher Network (LEARN) aims to connect MND researchers and people with MND. In the pilot, seven people supported by MND Scotland were invited to take tours of researcher’s labs, allowing researchers and people with MND to connect, while also giving researchers the opportunity to directly hear the opinions of people affected by MND on research.
This year, LEARN will invite people affected by MND to meet with researchers in Aberdeen, Dundee, Edinburgh and Glasgow during September and October, and culminate with a whole day event in March 2025.
Dr Jane Haley, Director of Research at MND Scotland, said: “We know that people with MND are eager to learn more about research happening here in Scotland. MND Scotland’s dual role, delivering support and funding research, means we can provide opportunities for people to learn about research directly from the researchers themselves.
“Building relationships between people with lived experience and researchers introduces real world perspective which helps ensure that research reflects the needs of people with, or affected by, MND.
A better understanding of the condition and the needs of people affected by MND will also help researchers better communicate their work in a manner, and using language, that is accessible to everyone, no matter what their level of scientific knowledge.
Dr Christopher Henstridge, a Principle Investigator who runs his own lab in Dundee, participated in the LEARN pilot. He said: “As a lab-based research team, we rarely get the opportunity to hear directly from people affected by MND about their experiences of the very condition we are trying to understand and treat.
“Last year, we hosted three people in Tayside affected by MND for an afternoon of lab tours and research discussions. For us, this was a great opportunity to practise talking about our work in a language that can be easily understood.
However, talking about our research is what we do every day, so the most impactful conversations were the personal stories so honestly and openly shared by people with lived experience.
“The strength and courage they show every day is inspirational and we really appreciated the interest and insight they showed in our research. I hope that the experience gave everyone that came along insight into the scientific process and instilled real hope that there are a lot of researchers like us pushing hard to find effective treatments and a cure.
“When I come into work and discuss the research projects with lab members, I no longer think of “MND”, I think of the individuals affected by it and this emotional connection really drives me to ensure we are doing rigorous and impactful research.
“I believe these interactions are extremely important and I’m delighted to hear that MND Scotland plans to expand the LEARN scheme and develop new ways of bringing even greater numbers of researchers and people with lived experience together.”
LEARN is a three-stage initiative that will conclude with an event in Edinburgh in March 2025, hosted in partnership with fellow MND charity, My Name’5 Doddie Foundation:
Stage 1
MND Scotland will host drop-in sessions in Glasgow, Edinburgh, Dundee and Aberdeen between September and October 2024. These sessions aim to form relationships between people with lived experience of MND and researchers.
The drop-in sessions will be held at the following locations –
Aberdeen Science Centre, Aberdeen – Monday 9 September 2024
Bonnie and Wild, St James’ Quarter, Edinburgh – Thursday 26 September 2024
MND Scotland Office, Glasgow – Thursday 3 October 2024
Dundee Science Centre, Dundee – Thursday 24 October 2024
Stage 2
Stage 2 will involve laboratory tours, much like the pilot, allowing people affected by MND to get a first-hand view of MND research. This will give people a behind-the-scenes look at how MND research is carried out and provide an opportunity for those affected by MND to share their thoughts on research and how to make MND research more accessible.
Stage 3
LEARN will conclude, in March 2025, with a day-long event at Dynamic Earth, Edinburgh, where My Name’5 Doddie Foundation will be joining MND Scotland to work in partnership to deliver the event.
The day will offer information for researchers and training opportunities for ECRs, along with sessions involving people with lived experience of MND.
The collaboration between MND Scotland and My Name’5 Doddie Foundation reflects the shared commitment between MND charities to push for a world without MND.
More information about the events will be available on our website, via our newsletters and social media channels. www.mndscotland.org.uk
To provide more details on the events and the aims of LEARN, the MND Scotland research team will host a webinar at 12.30 pm on Friday, 26 July 2024.
To sign up for the webinar, please complete this form:
More than 100,000 people in Scotland have benefited from a technology tool which allows them to monitor and manage their blood pressure remotely – saving the NHS an estimated 400,000 plus face-to-face appointments since 2019.
Connect Me allows patients to share their blood pressure readings with their GP through a digital platform to encourage better hypertension health.
With an estimated 1.3 million Scots impacted by high blood pressure, it is the leading preventable risk factor for heart and circulatory disease, associated with around half of all strokes and heart attacks. Research has shown that patients using remote monitoring achieve and maintain optimal blood pressure levels much faster compared to those seeing doctors just once or twice yearly.
The programme allows clinicians to monitor patient trends and change medication as required, whether levels improve from healthy habits or start deteriorating over time. Around 99% of users found the platform easy to use and 94% said they would use it again. It also offers patients choices for sharing readings, including via mobile app, web browser, text message, or automated call.
Health Secretary Neil Gray said: “Connect Me is another example of how we’re embracing technology to help tackle the challenges facing health and social care. It’s extremely encouraging to see that over 100,000 patients have benefitted from the platform to date saving an estimated 400,000 appointments.
“I would encourage health boards to increase the roll out of Connect Me and for people who have hypertension to ask their GPs if they might be eligible for the programme. By empowering patients to take control of their wellbeing we are not only improving health outcomes but also significantly reducing pressure on primary care services.”
Heart Research UK Healthy Heart Tip, written by the Health Promotion and Education Team at Heart Research UK
Healthy Heart Tip: How to adapt your recipes to benefit your heart
If you’re trying to eat healthier and live a healthy lifestyle, then some of the recipes that you enjoy cooking may not fit into your new way of life. By adapting your less healthy recipes to make them more nutritious, you can still enjoy these meals and look after your health.
This could be either swapping ingredients to healthier ones, removing some unhealthy ingredients or adapting the quantities of ingredients within the dish. These changes can help to reduce your blood pressure, LDL (bad) cholesterol levels and give you more energy.
Less than 50% of adults in the UK try to eat healthy most of the time, if you aren’t one of these then now is the time to change your unhealthy eating habits. Here are some tips to help you adapt your recipes.
Reduce your portion size
Overconsumption is an issue across the world, with many people not paying attention to their bodies showing signs of feeling full. Regularly people serve and consume large portions, as it is believed that you should finish your plate of food to avoid food waste.
However, if you reduce your portion size and freeze any leftovers for another day, then you can benefit your health by avoiding overeating. If you’re concerned that this might not be enough food, then reduce it gradually or add a side of vegetables to your meal.
Swap your protein
Swapping your processed or fatty protein source to a leaner version such as chicken, turkey or fish will help to reduce the amount of saturated fats you’re consuming and lower your LDL (bad) cholesterol, which is great for your heart.
You could also reduce the quantity of meat in your recipe and add in some lentils, this works great if you’re making a bolognaise or chilli con carne.
If you follow a plant-based diet or want to consume more plant-based protein, then use quinoa, tofu, pulses, nuts and seeds as your main sources. Try not to consume many plant-based meat alternatives, as these processed foods are often high in salt and saturated fats.
Add more fibre
Fibre is a great way to lower your blood pressure and cholesterol levels. Try swapping your chips for sweet potato wedges and bulk out your meals by adding fruit and vegetables. This will also help you to reach your five a day.
Another way to increase your fibre intake is by swapping your white carbohydrates, such as bread, pasta, rice and cereal for wholegrain varieties.
Don’t add salt and sugar
You could remove the addition of salt and sugar in your recipes and be aware of any that are already hidden in the foods that you buy. When cooking, try using herbs and spices such as garlic, coriander, and chilli to add extra flavour without increasing your blood pressure.
If you’re cooking with sauces, gravies or stocks, then opting for low-salt and sugar versions is much better for your heart.
Always check the food labels before you buy and choose the ones with the most amount of green on their traffic light labels.
A new digital pathway aimed at supporting stroke survivors has launched today (Friday 21 June) in Lothian.
The ‘Life After Stroke’ Pathway has been developed by a partnership comprising health charity Chest Heart & Stroke Scotland, NHS Lothian and Pogo Digital Healthcare.
The pathway provides stroke survivors tailored information based on their personal experiences, symptoms, and concerns in order to better manage their condition, alongside support from the Chest Heart & Stroke Scotland stroke nursing team who provide follow up support in the community.
When onboarded to the pathway, patients receive a self-assessment questionnaire to inform the health information they will receive. These questionnaires will be sent out bi-monthly to track changes in symptoms over time. Information will be sent to patients in the form of short slide presentations, which provide medical & health information, guidance, and signposting to further resources.
The Chest Heart & Stroke Scotland nursing team will be able to utilise the outcomes of the self-assessment questionnaires to better inform and tailor the support, education and advice that patients receive to support recovery.
Patients will only receive talks that are relevant to them, to avoid information overload and only focus on what matters to each patient. These tailored talks will be stored in the patient’s personal online portal, which can be easily accessed and referred to at any time.
Stroke survivor Jeremy Dearling, 67, was involved in the creation of the pathway as a public contributor.
Speaking about the launch, he said: “I have been delighted to have been part of the team developing this pathway with Chest Heart and Stroke Scotland, a much-needed resource for survivors of stroke.
“As a public contributor, I have not only been heard and listened to, but as someone with lived experience of a brain injury and who was a staff nurse on a stroke ward, I have found a generous welcome to the team.
“There is a huge amount of support on offer using the newly launched Life After Stroke programme that is in addition to the existing resources available on the CHSS website. A stroke can be an isolating experience, unnecessarily so, so if you have had a stroke or care for someone with one, make use of the help available”.
Joanne Graham, Director of Service Delivery, at Chest Heart & Stroke Scotland said:“We are delighted to be able to build on our existing relationship with NHS Lothian to support individuals post stroke through this digital pathway.
“Providing tailored health Information as early as possible is critical to support people to self manage their condition. This pathway will further support our charity’s mission to ensure every person with one of our conditions has access to quality supported self management and community recovery as part of our community health care support service.”
Jack Francis, CEO of Pogo Digital Healthcare, said: “I am delighted to be extending our digital self-management tool into a new Stroke pathway.
“As someone whose family was negatively impacted by a stroke, it is brilliant to be involved in a project that will give people and their families the support and information they need.”
Dr Charlie Chung, AHP Stroke Strategic Lead and Consultant Occupation Therapist at NHS Lothian said: “I am excited that the Life After Stroke digital pathway will commence testing with the staff and patients of the stroke unit in the Royal Infirmary.
“Stroke survivors consistently report that targeted and relevant information about their stroke would have been valuable at the time of their admission to hospital but provision was inconsistent.
“A key objective is that information provision will not happen by chance, but will be a routine part of service delivery which will ultimately support the self-management of stroke survivors.”
Building on Scottish Opera’s ground breaking Breath Cycle project, Chest Heart & Stroke Scotland is collaborating with the country’s largest performing arts organisation to improve the lives of those living with aphasia, a communication difficulty that is a common effect of strokes
A new research report launched earlier this month by CHSS revealed that poor mental health and loneliness are severely impacting people in Scotland living with aphasia
Chest Heart & Stroke Scotland (CHSS) and Scottish Opera have joined forces to develop online singing classes for people living with aphasia, which is caused by damage to the part of the brain that controls language, and in some cases leaves some unable to speak at all.
These new CHSS and Scottish Opera sessions coincide with Aphasia Awareness Month, which runs throughout June. This year’s theme is #AphasiaTogether, emphasising that those with the condition do not need to deal with this on their own.
This new strand of creative music making with CHSS — Scotland’s largest health charity working to help people with chest, heart and stroke conditions live life to the full — expands upon Scottish Opera’s pioneering Breath Cycle project, designed to support those with a range of conditions affecting lung health.
Following research and development sessions with medical educators, CHSS staff and people living with aphasia are working with Scottish Opera to provide supported communication and aphasia training, and help deliver the therapeutic singing, song-writing and breath control sessions.
The aim of these workshops is to improve the mental wellbeing and confidence in communication of those with aphasia and respiratory issues including COPD (Chronic obstructive pulmonary disease), across the country.
Earlier this month, CHSS launched a report about the impact of aphasia on those living with the condition which revealed that:
More than half (52 per cent) of people with aphasia say their condition affects their mental health
Nearly half (48 per cent) with aphasia said they experienced loneliness as a result of their condition.
43 per cent of people with aphasia said it impacted on their ability to work as before
A third (34 per cent) of people with aphasia reported being treated negatively due to their condition.
CEO of Chest Heart & Stroke Scotland, Jane-Claire Judson, commented: “Working with Scottish Opera to unlock the therapeutic benefits of singing and song-writing to people living with aphasia is a fantastic opportunity to tackle real issues facing people across the country.
“We regularly hear from the people we support that living with a communication difficulty following stroke can lead to feelings of isolation and loneliness and have a negative impact on mental health.
“We look forward to bringing people together to experience the joy of singing with others whilst exploring the benefits of singing and song writing to their communication skills.”
Jane Davidson MBE, Director of Outreach & Education at Scottish Opera, said: “Following on from the increased awareness of our Breath Cycle II programme in 2020, which was designed for people living with Long COVID and other respiratory conditions, Scottish Opera is excited to partner with CHSS to support people with aphasia.
“The work that CHSS undertakes each year with hundreds of thousands of Scots has set really high standards in the positive integration of mental health and well-being initiatives with clinical intervention.
“As Scotland’s largest performing arts company, we feel that the values of both our organisations are beautifully aligned in this new collaboration that seeks to enhance the quality of people’s lives across the country.”
Composer Gareth Williams, who along with writer Martin O’Connor, mentored the most recent online song writing Breath Cycle sessions said: “Our encounters with the Chest Heart & Stroke Scotland team, and our first conversations with our participants who have aphasia have been so inspiring.
“Our challenge is to help people find and connect with their voices again, both their physical voices and their creative voices. There are incredible stories to tell in this community, and together we will find them and share them through song.”
Cyrenians, NHS Lothians LEAP, and Edinburgh Alcohol and Drug Partnership have been successful in a recent Corra Foundation grant bid to develop and implement a Women’s Recovery House in Edinburgh.
The House, for patients moving on from residential recovery in the LEAP program, offers women who do not have a safe home to return to the opportunity to continue their recovery supported by their peers.
The first of its kind in Edinburgh, the house creates a level playing field for women, who until this point have had limited options available upon completing the 12 week LEAP programme.
Amy Hutton, Director of Services at Cyrenians said, “This is a fantastic step forward in supporting the recovery community, particularly women who have been underserved in this area for quite some time.
‘We know, from experience, that highly traumatised women don’t fare well in standard service delivery environments, so to be able to offer a bespoke, safe home, truly is groundbreaking.
‘Men in Edinburgh completing the LEAP programme have benefited from a similar model for many years, so this new Women’s House really levels the playing field and helps us continue providing peer support to women who otherwise would be isolated in their recovery.”
This new funding not only allows the partnership to provide accommodation beyond the LEAP programme, but will also support the development of a Wellbeing Coordinator, providing assistance to patients throughout the LEAP programme and during their stay at the Recovery House.
Viki Fox, LEAP Manager for Cyrenians added: “The number of women attending our LEAP programme has been increasing year on year. To have this move on option available for those who would otherwise be discharged into an unsafe home, or indeed, homelessness, is a fantastic step forward to improving their quality of life and ability to stay in recovery.
‘By providing additional support through our wellbeing coordinator we will be able to offer practical and emotional support that will help build self-esteem and independence.
‘Recovery is only the first step – learning to live again beyond addiction takes time, and without support can feel overwhelming and thankless. The support from Corra Foundation allows us to address this need directly, and ultimately will provide women in Edinburgh the chance to rebuild their lives on their own terms.”
Ian and Poppy experienced improved physical and mental health due to Frame Running
A new study found that Frame Running has the potential to positively affect health and wellbeing of young people with limited mobility.
Frame Running (formerly known as RaceRunning) is an adapted sport for children, young people and adults who cannot run and who rely on aids for mobility and balance.
A Frame Runner is a three wheeled frame where the individual is supported by a saddle and body plate. The athlete propels against the frame using their feet, and steers using handlebars like those on a bike.
Researchers observed a trend towards improved muscle strength after 12 weeks of Frame Running training and many participants noticed an improvement in their performance of activities including being able to walk for longer and walking uphill. Action Medical Research and the Chartered Society of Physiotherapy Charitable Trust jointly funded the study.
Poppy’s story
One of the study participants, 13-year-old Poppy, has paralysis and weakness in her upper body and core due to a rare neuromuscular condition called acute flaccid myelitis (AFM) which she developed at age six.
“For Poppy, Frame Running and participating in the study has been life transforming. As a result of developing acute flaccid myelitis, Poppy had to learn to sit, stand and walk again and uses a wheelchair,” says Laura, Poppy’s mother.
“She also has a gastrostomy (feeding tube) to help her get the nutrition she needs and uses a ventilator at night to help her breathe. Before the illness, Poppy was a very sporty child and loved running, but as a result of the illness, she could no longer run or take part in any sport safely – until she discovered Frame Running.
“The opportunity to try Frame Running was a positive turning point in Poppy’s life. She left one of her early sessions with a massive smile on her face and said ‘Mummy, I am so happy that there is a sport that I can do.’ She felt strong and accomplished and it gave her a huge confidence boost.”
The results of the study are significant as people with cerebral palsy and conditions such as AFM may be at increased risk of heart disease and type 2 diabetes due to reduced mobility.
Children with cerebral palsy may have difficulties walking and can find it challenging to take part in physical activities. This can lead to a lack of exercise that often starts early on in childhood and persists throughout their lives.
Dr Marietta van der Linden from the Centre for Health, Activity and Rehabilitation Research, Queen Margaret University, Edinburgh says: “Our research showed that Frame Running can have a wide range of benefits, not only on outcomes of fitness and physical fitness but it also allows young people to feel part of a club, make friends, compete and go fast.”
In the pilot study, 15 children and young people with cerebral palsy or acquired brain injury affecting coordination took part in a one-hour weekly Frame Running training sessions for 12 weeks.
Results show that Frame Running is a feasible, enjoyable and safe activity for children and young people with severe walking difficulties.
In the study interviews, children said that they enjoyed the sense of freedom and speed of Frame Running and that it provides them with opportunities to be active and competitive.
Parents liked that Frame Running could also serve as physiotherapy or as part of their rehabilitation strategy. The data collected before and after the study showed positive trends indicating improvements in resting heart rate, muscle strength, and self-reported performance of activities such as being able to walk for longer and walking uphill.
However, further studies with more participants are needed to verify this.
Action Medical Research are pioneers in funding innovative early research which paves the way for new treatments and management of medical conditions.
Dr Caroline Johnston, Senior Research Manager at Action Medical Research, said: .“The success of this research in demonstrating the health benefits of Frame Running is significant as it could result in people with mobility problems and cerebral palsy participating in physical activity and reducing their risk of heart disease and diabetes,”
The research has stimulated additional research funded by the MS Society investigating the feasibility of Frame Running for people with Multiple Sclerosis.
“We found very similar themes in our study involving people with MS, but there were some interesting differences as well, which highlights the importance to regard each health condition and each person individually,” says Dr Marietta van der Linden.
Ian’s story
Participating in an innovative Frame Running study has transformed the life of thirteen-year-old Ian from Edinburgh who lives with cerebral palsy. Ian’s mother Sheena came across RaceRunning, now known as Frame Running, in 2019. In Frame Running people use a Frame Runner, a three wheeled frame where the athlete is supported by a saddle and body plate.
The athlete propels against the frame using their feet, and steers using handlebars like on a bike. Ian, even though he was only eight at the time, really took to the sport and has been Frame Running ever since. Hi – hi
The study that Ian took part in 2019 was funded by Action Medical Research and the Chartered Society of Physiotherapy Charitable Trust. The pilot study, led by researchers Dr Marietta van der Linden at Queen Margaret University in Edinburgh and Dr Jennifer Ryan of Brunel University in London, aimed to investigate the potential benefits of regular exercise on the health and mobility of young people with moderate-to-severe cerebral palsy and acquired brain injury affecting coordination.
Ian was one of 15 young people who took part in the study, which found that Frame Running had the potential to positively affect health and wellbeing: Researchers observed a trend towards improved muscle strength and many participants observed an improvement in their performance of activities including being able to walk for longer and walking uphill.
The results of the study will inform the design of future larger studies involving participants from both the UK and abroad.
Dr van der Linden comments: “These results are promising and we hope that these custom-built running frames can enable children with cerebral palsy to take part in aerobic activities that can help improve their overall fitness.
“We are delighted that Ian has really taken to Frame Running and hope that this example will inspire other young people who have mobility issues to benefit from the exercise and freedom that comes with Frame Running.”
Ian’s mum, Sheena, comments: “Ian really enjoyed being part of the study and trains twice a week. Frame Running has given Ian a sense of physical independence and made him realise that he can achieve great things.
“Ian challenged himself to climb 8,810 steps which is equal to the height of Scotland’s highest mountain, Ben Nevis, and he did it! I am thrilled at what Ian has achieved including winning the Rotary Young Citizen Sporting Hero award.
“I really hope that he has shown what is possible with Frame Running.”
Chief Executive at the Chartered Society of Physiotherapy, John Cowman, said: “It is so brilliant to see the results for this study which clearly show that frame running has a very positive impact on the health and wellbeing of young people with limited mobility.
“Hopefully, this research will pave the way for it to become more widely available for children, young people and adults who rely on aids such as this to take part in sports and to be able to enjoy all that it has to offer.”
