International Long COVID Awareness Day: 15th March

A recent ONS survey showed that an estimated 2.3 million people in the UK suffer from long COVID.  Of these, nearly 10 thousand NHS workers are currently absent because of long COVID, according to a recent BBC panorama documentary (writes FOYSOL CHOUDHURY MSP). 

Sadly, many of these key workers have contracted Covid-19 through their essential work to save lives during the worst of the pandemic, having been put more at risk by working on the frontline, often without adequate PPE.  

Now, a far cry from the weekly applauses and hero’s welcome given during the COVID-19 lockdowns, key workers with long COVID have sadly been seemingly abandoned and forced to face severe financial impact due to contracting COVID-19 in their line of work. 

It is simply unacceptable that these same key workers who risked their lives are now in a position where they are being forced to declare themselves bankrupt or to sell their house, as they face the prospect of halved and altogether stopped standard sick pay. 

This is the situation my constituent Cass Macdonald is in. On Tuesday, I spoke in my colleague, Jackie Baillie’s, debate on long COVID to highlight the impact of long COVID on my constituents like Cass. 

Cass was a full-time NHS nurse who contracted COVID-19 when they were advised it was safe to work in an office nursing role, despite multiple underlying health conditions and advice by the same Government to shield. 

Shockingly, the Keyworker Petition UK team’s recent survey showed that Cass is part of the 20% of key workers with long COVID surveyed who said they were at risk of losing their home due to financial circumstances. The survey also showed that 68.7% of those surveyed said they were struggling financially. This is simply unacceptable. But not only are key workers with long COVID facing unacceptable financial burden-they also have to battle with a health service which does not properly understand the complex nature and consequences of long COVID. 

Another of my constituents, Marie-Claire, who is an NHS doctor with long COVID, told me that there was growing stigma towards long COVID in the medical community and that her colleagues often had little understanding about the severity or specifics of the illness. When key workers are having to battle long COVID and the severe financial impact of contracting this condition, they should not also have to face the frustrating situation of having to educate the public, politicians and medical professionals on this debilitating condition. 

On Wednesday, Cass and other key workers will deliver a petition with over 118, 000 backers to Westminster, urging the UK Government to create a pension and compensation scheme for all keyworkers who have developed long COVID as a result of their frontline, and often not adequately protected, work during the pandemic.  

As noted in my speech on Tuesday, the Scottish Government has a role to play too. Not only must it do more to ensure adequate support and compensation for key workers who are struggling with long COVID, but it has an important role to play in reducing the stigma around long COVID and ensuring that health authorities in Scotland have the tools to adequately identify and treat long COVID in patients. Recent figures suggest that up to 175, 000 people in Scotland have reported suffering from long COVID, which is approximately 3.3% of the population.

The Scottish Government must ensure employers are supported in recognising the importance of flexibility and phased returns to work for employees with long COVID. It must do more to increase public awareness of the dangers of long COVID and highlight how you could be affected by this despite being vaccinated.  

TODAY 15th of March is International Long COVID Awareness Day. I’ve lodged questions to the Scottish Government on support for key workers with long COVID before and now I am imploring the Scottish Government again, in recognition of this day, to act now to help people like Cass, Marie-Claire and the thousands of others suffering from long COVID across Scotland.  

Charities and Scottish Parliament host online event to improve how we prevent child sexual abuse in Scotland

  • Stop It Now! Scotland and NSPCC Scotland are today (Wednesday, March 15, 2023) hosting ‘Public Health Approaches to Preventing Child Sexual Abuse’
  • The online event will look at the evidence on preventing sexual abuse and what could be done in Scotland to better protect children before abuse begins and to help with their recovery

Stop It Now! Scotland and the NSPCC are calling on the Scottish Government to develop a national strategy to tackle child sexual abuse that focuses on prevention to make the country a safer place to grow up.

The two charities, which are today hosting an event in partnership with the Scottish Parliament, say working together to stop the abuse from happening in the first place will prevent the devastating impact it has on the mental health of children and adult survivors.

They are urging the Scottish Government to develop a comprehensive and coordinated national approachto prevent child sexual abuse, which involves health, police, education, community safety, children’s services, social services, housing and the wider community. The child protection charities say it is vital that everyone understands what child sexual abuse is and knows how they can be part of preventing it.

A review of UK data revealed that 15 per cent of females and 5 per cent of males will experience some form of sexual abuse before the age of 16. This means at least 80,000 children in Scotland will have been affected by this issue before they leave high school. Although this is thought to be an under-representation of the scale of the problem and the actual number of children who have experienced sexual abuse in Scotland is not known.

The charities say that to understand the numbers of children in Scotland affected and the scale of the suffering it is crucial that a prevalence survey is conducted.  At the event, leading experts will discuss current evidence on preventing child sexual abuse and explore the next steps needed to make Scotland the safest country for children to grow up.

Joanne Smith, NSPCC Scotland’s Policy and Public Affairs Manager, said: “Child sexual abuse has a devastating impact on people’s lives.

“The response, to date, has focused largely on bringing perpetrators to justice and providing some children with therapy and support. But we believe that as a society our focus should be on preventing child sexual abuse before it occurs, before people at risk of abusing become offenders, and before potential victims become actual victims. Understanding child sexual abuse, and what causes it, is a vital step towards developing effective prevention strategies.”

Stuart Allardyce, Director, Lucy Faithfull Foundation / Stop It Now! Scotland, said: “We are calling on the Scottish Government to carry out a dedicated prevalence survey to identify the levels of sexual offending against children in Scotland, alongside a national strategy for tackling child sexual abuse.

“We know that sexual abuse has an enormous impact on the mental health outcomes for children and adult survivors and the economic costs for the criminal justice system.

“We believe sexual harm towards children and young people could be reduced if we focused more on prevention, including therapy being offered to adults who are worried about their sexual thoughts and feelings towards children.”

Childlight, based at the University of Edinburgh, also launches the first comprehensive global data repository today, which will look at all forms of child sexual exploitation and abuse (CSEA), with the aim of being able to show the scale and nature of this abuse. 

The international team, made up of experienced individuals from academia, the private sector, law enforcement and non-governmental organisations, will produce an annual report, global dashboard and index with the data that can be used by tech companies, law enforcement agencies and those who work in child protection so they can take action to prevent CSEA. 

Speakers at the online event will include:

  • Professor Elizabeth Letourneau, Moore Centre for the Prevention of Child Sexual Abuse, School of Public Health, John Hopkins University
  • Pat Branigan, Assistant Director – Together For Childhood – NSPCC
  • Stuart Allardyce, Director, Lucy Faithfull Foundation / Stop It Now! Scotland
  • MSP Clare Haughey, Minister for Children and Young People

Children and young people can contact Childline for free, confidential support and advice 24 hours a day online at www.childline.org.uk or on the phone on 0800 1111.

Anyone with concerns about a child’s wellbeing can contact the NSPCC Helpline on help@nspcc.org.uk. The NSPCC practitioners provide free and confidential help and advice and can take appropriate steps to help keep children safe. If a child is in immediate danger, please call 999.

Safety withdrawal of pholcodine-containing cough and cold medicines

Following a comprehensive scientific safety review of the latest available data on the safety of pholcodine, together with advice from the independent Commission on Human Medicines, it has been concluded that the potential risks outweigh the benefits for these products.

The Medicines and Healthcare products Regulatory Agency (MHRA) keeps the safety of medicines under review and acts where necessary to protect patients and the public.

Following a comprehensive scientific safety review of the latest available data on the safety of pholcodine, together with advice from the independent Commission on Human Medicines, it has been concluded that the potential risks outweigh the benefits for these products.

There is already a known link between pholcodine and an increased risk of the very rare event of a severe allergic reaction (anaphylaxis) to muscle relaxants (neuromuscular blocking agents) that are used during general anaesthesia in surgery. In September 2022 the findings of a new study further strengthened the evidence of this link, but the overall risk is very small.

The MHRA advises that pholcodine-containing cough and cold medicines are being removed from the UK market as a precautionary measure.

Dr Alison Cave, MHRA Chief Safety Officer said: “Safety is our top priority, and we keep the safety of medicines under continual review.

“Following a thorough scientific safety review of all the available evidence on pholcodine, together with advice from the independent Commission on Human Medicines, it has been recommended, as a precautionary measure, that these products should no longer be used.

“If you are taking a cough or cold medicine, check the packaging, label or patient information leaflet to see if pholcodine is a listed ingredient. If it is, and you have any questions, you can talk to your pharmacist who will suggest an alternative medicine.

“If you have an operation scheduled using general anaesthesia, tell your anaesthetist if you think you have used pholcodine, particularly in the past 12 months. The anaesthetist will be well placed to take this into account. Anaesthetists are highly trained in managing anaphylaxis.

“If you want more information or advice, please speak to your pharmacist.”

See the MHRA Drug Safety Update

Scottish pet owners cutting back on weekly food shop to afford pet’s care

The true cost of loving: 21% of Scottish pet owners cutting back on weekly food shop to afford pet’s care

Figures from leading vet charity PDSA, which provides vital care for pets during the cost of living crisis, have revealed that 32% of owners in Scotland are having to make personal sacrifices to ensure they can continue to provide for their pets.

PDSA provides free and low-cost treatment to pets in need and has released the data to raise awareness of the lengths pet owners are having to resort to while navigating the cost of living crisis.

19% of Scottish pet owners are reducing how much fuel they use so they can pay for their pets care1. This comes as Google searches for ‘save money on heating’ spiked by a shocking 878% in 2022.

Having juggled expensive bills throughout winter, alongside the soaring cost of living, owners may face a further hit this April. While the energy price cap is being reduced, meaning the amount suppliers can charge goes down, government help – in the form of the energy price guarantee – is set to come to an end. This means a household’s energy bills could increase by around £3,000 per year.

The looming spring Budget announcement also isn’t expected to go a long way in easing the strain on UK pet owners’ pockets. The huge hike in everyday living costs means pet owners will continue to struggle with the cost of loving their companions.

Giving up personal luxuries (19%) and cancelling or not going on holidays (9%) are among the other sacrifices owners in Scotland are making to save as much as possible in order to continue caring for their pets.1

39% of Scottish owners are worried about affording the cost of treatment if their pet should fall ill or be injured – making PDSA’s support crucial. Nationally, a quarter of all pet owners (26%) said they’d go into debt3, either with family and friends or via credit and loans, to cover the cost of unexpected veterinary treatment1.

Yet, with 95% of people are determined to do whatever possible in order to avoid having to make the agonizing decision of rehoming them or having them put to sleep – primarily due to the ever-increasing costs to live1.

PDSA Veterinary Surgeon, Lynne James, said: “Everyone wants the best for their pets and hearing the lengths loving owners in Scotland are having to go to so they can continue providing for them is heart-breaking.

“In 2022 we provided veterinary care for over 390,000 pets, whose owners would otherwise have struggled to afford the cost. Now more than ever, the treatment we provide is a lifeline for families who face the horrible decision of eating regular meals or treating their furry family member.

“It’s PDSA’s mission to keep people and pets together. Last year we helped hundreds of thousands of families. With more than half of those who rely on our services aged 55 and over, and 37% disabled or living with a serious health condition, their pet often provides vital companionship. For lots of our clients, their pets are their only companion, and their lives would be unimaginable without them.

“I’d encourage anyone struggling to afford the cost of veterinary treatment to find out if they are entitled to access our services by visiting the eligibility checker on our website. We also have lots of free advice on how to reduce the cost of caring for pets, while ensuring they remain healthy and happy.”

PDSA relies on donations to deliver life-saving treatment to hundreds of thousands of pets across its 48 Pet Hospitals in the UK. To help keep pets and people together, the charity is urgently calling on the public’s support to prevent vulnerable people having to make a truly heart-breaking decision. 

To find out more about PDSA’s vital work during the cost of loving crisis, or to donate, visit www.pdsa.org.uk/costoflovingcrisis.

How the cost of living crisis is affecting pet owners in Scotland:

  • 32% making personal sacrifices
  • 21% are cutting back on their weekly food shop
  • 2% going without necessities, such as skipping meals
  • 19% are reducing how much fuel they use
  • 19% giving up personal luxuries
  • 9% cancelling or not going on holidays
  • 39% worried about the cost of treatment should their pet fall ill or become injured

The charity has warned these unsettling findings reflect the stark reality for pet owners, many of whom are being forced to make drastic cutbacks as they desperately struggle to stay afloat.

A worrying 21% of owners in Scotland are cutting back on their weekly food shop, and 2% even admit to going without necessities, such as skipping meals to afford the costs associated with looking after their beloved companions1.

PDSA provides free and low-cost treatment to pets in need and has released the data to raise awareness of the lengths pet owners are having to resort to while navigating the cost of living crisis.

19%1 of Scottish pet owners are reducing how much fuel they use so they can pay for their pets care1. This comes as Google searches for ‘save money on heating’ spiked by a shocking 878% in 2022[ii].

Having juggled expensive bills throughout winter, alongside the soaring cost of living, owners may face a further hit this April. While the energy price cap is being reduced, meaning the amount suppliers can charge goes down, government help – in the form of the energy price guarantee – is set to come to an end. This means a household’s energy bills could increase by around £3,000 per year.

The looming spring Budget announcement also isn’t expected to go a long way in easing the strain on UK pet owners’ pockets. The huge hike in everyday living costs means pet owners will continue to struggle with the cost of loving their companions.

Giving up personal luxuries (19%) and cancelling or not going on holidays (9%) are among the other sacrifices owners in Scotland are making to save as much as possible in order to continue caring for their pets.1

39%1 of Scottish owners are worried about affording the cost of treatment if their pet should fall ill or be injured – making PDSA’s support crucial1. Nationally, a quarter of all pet owners (26%) said they’d go into debt3, either with family and friends or via credit and loans, to cover the cost of unexpected veterinary treatment1.

Yet, with 95% of people are determined to do whatever possible in order to avoid having to make the agonizing decision of rehoming them or having them put to sleep – primarily due to the ever-increasing costs to live1.

iSIMPATHY: Improved patient care and safety

A cross-border trial has improved care for patients prescribed multiple medicines.

The iSIMPATHY project, funded by the European Union’s INTERREG VA Programme, worked with professionals in Scotland, the Republic of Ireland and Northern Ireland to comprehensively review patient medication.

Taking multiple medicines can be problematic if the increased risk of harm from interactions between drugs, or between drugs and diseases, outweighs the intended benefits.

Interim findings showed these interventions potentially prevented major organ failure, adverse drug reactions, avoided hospital admissions and saw patients moved to more appropriate medication.

Project funding, managed by the Special EU Programmes Body (SEUPB), was match funded by the Northern Ireland Executive, the Irish Government and the Scottish Government.

Scotland’s Public Health Minister Maree Todd said: “This project looked at some of our most vulnerable patients taking more than five medications. The reviews have avoided adverse combinations of drugs and hospitalisations while also reducing prescriptions and drugs costs.

“We will know more when the full evaluation is published in June, we will work with partners to see how we can these improvements can be applied more widely, potentially saving lives and money.”  

Ireland’s Minister for Health, Stephen Donnelly said: “Medicines are the most common healthcare intervention used within the health system, and the use of the right medicine for the right patient at the right time is central to this.

“In the delivery of this project, pharmacists were strategically and ideally placed as medicines experts within a multidisciplinary team framework working to maximise therapeutic outcomes for optimal patient benefit.

“I’d like to thank all the partners involved in the iSIMPATHY project for their work to achieve this.”

Northern Ireland Department of Health Chief Pharmaceutical Officer, Mrs Cathy Harrison said: “I’m pleased to see the impact on patients and service users who have taken part in iSIMPATHY who are at the heart of the project’s aim to ensure the best and most sustainable use of medicines. 

“iSIMPATHY has achieved this through training pharmacists and other healthcare professionals to deliver medicine reviews and embed a shared approach to managing multiple medicines.  Northern Ireland has been delighted to collaborate with our partner regions to build on the success of previous projects dedicated to improving medicine safety.”

Gina McIntyre, SEUPB CEO said: “Thanks to projects such as iSIMPATHY, we can understand the importance of cross-border cooperation, and how they are playing a major role in the efficient delivery of health services, in the border regions, alongside addressing challenges brought about by rising demand within a constrained budget environment.

“Health is an important precondition for economic growth, while also fostering social cohesion. I am delighted to see just how effective this project has been in improving the lives of people in the region.”

Izzy Judd is swept off her feet by charity Mary’s Meals

The celebrity mum is supporting the international aid charity this Mother’s Day 

Musician and celebrity mum Izzy Judd says she has been swept off her feet by international aid charity Mary’s Meals.

The mother-of-three – who is married to McFly star Harry – is encouraging families across the UK to support the charity by giving a Mother’s Day gift that will help to feed children living in the world’s poorest countries.

She says: “As a mother to Lola, Kit and Lockie, I know how important it is for children to be happy, healthy, and well-educated. And that’s what Mary’s Meals is all about. Its life-changing school meals attract little ones into the classroom, where they can learn their way to a better future.

“I have been swept off my feet by this incredible charity – and you should be too!”

Mary’s Meals serves nutritious school meals to children living in some of the world’s poorest countries. The promise of a good meal attracts hungry children into the classroom, where they can gain an education that that can be their ladder out of poverty.

The charity feeds more than 2.4 million children every school day – and it says this simply wouldn’t be possible without the love and dedication of mothers all around the world.

Dan McNally, head of grassroots engagement at Mary’s Meals, explains: “Here in the UK, we are lucky to be supported by amazing women, like Izzy, who fundraise and volunteer so that we can feed desperately hungry children.

“And in the countries where we work, it is most often mothers who volunteer to prepare, cook, and serve the food. They do this so that their children, and the children in their communities, can have the chance of a better life.”

To mark Mother’s Day [Sunday, 19 March], Mary’s Meals is offering a range of beautiful gift cards. Priced from just £19.15, each of these special cards will feed a hungry child with Mary’s Meals every day for a school year.

Izzy continues: “I will be dropping some hints to my children for a Mary’s Meals gift, and I will also be giving one of these lovely cards to my own mum, Gill.

“I think she will be thrilled to know that, together, we are ensuring that a child is in school, with a full belly, ready to learn.”

It costs just £19.15 to feed a child with Mary’s Meals for a full school year.

To find out more and to purchase a Mother’s Day gift card, please visit:

marysmeals.org.uk/shop

Local care home ladies glam it up for International Women’s Day

Residents at Strachan House in Blackhall marked International Women’s Day yesterday by spending the day celebrating the achievements of wonderful trail-blazing women throughout history.

This special day takes place on March 8th every year to celebrate women’s rights and inspire people to fight for gender equality.  A United Nations-sanctioned global holiday, it celebrates women’s contributions to society, raises awareness about the fight for gender parity and inspires support for organisations that support women globally.

Residents afterwards enjoyed complete pamper sessions and makeover to inspire others that you’re never too old to look your best. The afternoon saw many of the home’s women get together over an afternoon tea specially put on to mark the day and their life achievements.

Gordon Philp General Manager at Strachan House said: “We’ve all had a really interesting day thinking about the very many brilliant women who have had such an impact on our lives, whether that was an historic figure or people in our own family. 

“It was good to share our experiences, take stock and reflect on how much society has changed over the years.”

One in seven skipping meals due to rising cost of living, Which? finds

One in seven people have skipped meals due to the rising cost of living, new Which? research finds, as the consumer champion calls on the government and essential businesses – such as energy companies, supermarkets and telecoms firms – to take action to help consumers. 

According to the latest findings from Which?’s Consumer Insight Tracker, a worrying number of households are going without food and sitting in cold homes due to the rising cost of living.

One in seven (15%) said they had skipped meals – compared to one in eight (12%) in November. The new findings also showed nearly one in ten (9%) had prioritised meals for other family members above themselves and 4 per cent had used a food bank.

Jackie Rudd, aged 72 and from West Suffolk, has found that rising energy prices have left less room in her budget for grocery shopping. This has meant she is now skipping meals two to three times per week.

She said: “The last week of the month, meals are missed – if you have no money for a loaf then there’s no lunch and if there’s no milk, then there’s no breakfast. Basic groceries have gone up to stupid levels – the loaf of bread I usually buy has gotten smaller and more expensive.”

People are also looking for ways to save on their energy bills – with seven in ten (72%)  saying they have put the heating on less due to rising prices, four in 10 (39%) using less hot water and one in five (19%) having had fewer cooked meals.

Concerningly, three in ten (29%) respondents who said they had put their heating on less said they have often or always felt physically uncomfortable this winter as a result.

One 85-year-old man said: “The house is cold due to the cost of heating, so I am continually wearing layer upon layer of clothes. Saving money on heating allows more money for food.”

A 30-year-old man said: “Our house is cold a lot of the time because the high costs of gas and electric makes a warm house unaffordable.”

Which?’s Consumer Insight Tracker also found that an estimated 2.3 million households said they missed or defaulted on a vital payment – such as a mortgage, rent, credit card or bill payment – in the last month. This is in line with the number who missed payments in January 2023, demonstrating that financial difficulty has remained high in early 2023.

Six in ten (59%) people made at least one financial adjustment – such as cutting back on essentials, selling items or dipping into savings – in the last month to cover essential spending. This equates to an estimated 16.5 million households.

This is a significant increase from the half (52%) making financial adjustments this time last year, but lower than the peak of two-thirds (65%) making adjustments in September 2022.

Which? is calling on the government and essential businesses to take action to support consumers with the rising cost of living and higher energy bills from next month.

With the main energy bill support scheme coming to an end and the energy price guarantee scheduled to jump to £3,000 for an average household in April, consumers will face higher bills from next month. The government must urgently consider postponing increasing the energy price guarantee to £3,000 to help those struggling to make ends meet.

The consumer champion is also calling on essential businesses – such as supermarkets, energy and telecom providers – to ensure that people have access to the best value products and services across the UK.

For example, supermarkets should increase availability of affordable and healthy own-brand budget ranges throughout their branches. Telecoms providers should cancel 2023 inflationary price hikes for financially vulnerable consumers – and allow all customers to leave without penalty when prices are hiked mid-contract.

Rocio Concha, Which? Director of Policy and Advocacy, said: “It’s hugely worrying that households across the country are forced to go hungry and sit in cold homes as they cannot afford basic essentials this winter.

“Which? is calling on the government and essential businesses to do more to support their customers through this extraordinary cost of living crisis.

“With energy bills due to rise in April, the government must urgently consider postponing its decision to increase the energy price guarantee to £3,000. For some families, who continue to be battered by high inflation, this will offer an important lifeline to stop them falling into financial distress.”

Clinical trial for new endometriosis treatment offers hope to millions of women

UK clinical trial for potential new endometriosis treatment, funded by Wellbeing of Women and the Scottish Government, offers hope to millions of women  

  • Researchers have been awarded nearly £250,000 by Wellbeing of Women and the Scottish Government to investigate if a drug called dichloroacetate is an effective treatment for endometriosis 
  • If successful, the drug could be the first ever non-hormonal and non-surgical treatment for endometriosis – and the first new treatment in 40 years  
  • Endometriosis is a debilitating condition that affects around 1.5 million women in the UK, yet it is chronically under-funded and treatment options are limited 
  • Wellbeing of Women and the Scottish Government are working in partnership to improve endometriosis treatment and care – a key aim of Scotland’s Women’s Health Plan.  

A clinical trial to study a potential new treatment for endometriosis is set to go ahead thanks to funding made possible by a partnership between leading women’s health charity Wellbeing of Women and the Scottish Government. 

Researchers from the Universities of Edinburgh, Aberdeen and Birmingham will set up and run the clinical trial, called EPIC2, which will involve 100 women with endometriosis in Edinburgh and London. They will investigate whether a drug called dichloroacetate is an effective pain management treatment for those with the condition.  

Endometriosis affects 1.5 million women and those assigned female at birth in the UK. It occurs when tissue similar to the lining of the womb grows elsewhere in the body, most commonly in the pelvic area. This tissue (known as endometriosis lesions) bleeds during a period but has nowhere to go – and causes inflammation, pain and the formation of scar tissue.  

Earlier research, funded by Wellbeing of Women, discovered that cells from the pelvic wall of women with endometriosis behave differently compared to those without the condition. Researchers from the University of Edinburgh found that these cells produce higher amounts of lactate, a chemical generated by the body to give us energy when there is a lack of oxygen. This creates an environment that supports the development and growth of endometriosis.   

When these endometriosis cells were treated with dichloroacetate, a drug previously used to treat rare metabolic disorders in children, lactate production decreased to normal levels and the size of the endometriosis lesions were reduced.  

The EPIC2 research team will build on this knowledge with their clinical trial to determine the optimum dose of dichloroacetate that will provide the most benefit, both in terms of tackling painful endometriosis symptoms and limiting side-effects. 

 

Dr Lucy Whitaker, Wellbeing of Women researcher and Clinical Lecturer in Obstetrics and Gynaecology at The MRC Centre for Reproductive Health, University of Edinburgh, is leading the research.

She said: “We’re grateful to Wellbeing of Women and the Scottish Government for giving us the opportunity to progress our research and hopefully move another step closer to the reality of a new, non-hormonal and non-invasive endometriosis treatment.  

“We know women with endometriosis desperately want more treatment options and better ways to manage the often-debilitating pain that it causes. Our research so far shows promising results that dichloroacetate can make a huge difference. I hope our new trial will confirm this and give women hope that new treatments and a better quality of life are on the horizon.” 

In the EPIC2 clinical trial, which will start recruiting this autumn, half of the women will receive dichloroacetate while the other half will be given a placebo. These will be allocated at random and taken for 12 weeks. Every woman will complete a series of questionnaires and give blood samples over the course of two-and-a-half-years. 

In a move towards personalised medicine, the dose of dichloroacetate for each woman will be determined by which version of a gene called GSTZ1 they carry. This gene is responsible for the speed at which dichloroacetate is metabolised by the body. Some variants do this more slowly than others, which could lead to a build-up of the drug in the bloodstream and increase the risk of side effects unless the dosage is tailored appropriately. 

Janet Lindsay, Chief Executive of Wellbeing of Women, said: “It is completely unacceptable that there have been no new treatments for endometriosis in 40 years. Too many women and girls are suffering from debilitating symptoms, such as chronic pelvic pain, fatigue and even fertility problems, and current hormonal and surgical treatments aren’t suitable for everyone. 

“Endometriosis is an extremely under-funded area of women’s health, so we are very pleased to partner with the Scottish Government and invest in medical research that could transform how the condition is treated for millions of women.

“Dichloroacetate has the potential to be the very first non-hormonal and non-invasive treatment for endometriosis, which will be truly ground-breaking.

With limited options currently available and no cure, advances like this are long overdue.” 

Maree Todd, Women’s Health Minister for Scotland, said: “Scotland is the first country in the UK to introduce a Women’s Health Plan, with endometriosis being one of its early priorities.

“The Plan includes several actions to help improve care and support for those with endometriosis, including a vital action to invest in further research to develop much needed improvements into treatment and management options for the condition. 

“I am pleased that we are jointly funding research with Wellbeing of Women into what could be the first non-hormonal treatment for endometriosis. It is a stepping stone to ensuring that those with endometriosis are given treatment choices that suit their needs.” 

Dr Ranee Thakar, President of the Royal College of Obstetricians and Gynaecologists, said: “It is really positive news that funding has been secured to research this potential new drug treatment.

“We know current endometriosis treatment options don’t work well for everyone, leaving many women with symptoms that can have a serious impact on their quality of life, affecting their physical and mental health.   

“We look forward to the results of this trial and its potential to improve the day-to-day lives of women and people living with endometriosis.” 

Physical activity key to social prescribing model approach

New paper calls on leadership and policy to deliver significant change

SIXTY leading health specialists and politicians have joined calls for an overhaul to Scotland’s approach to social prescribing – with an urgent need to step up physical activity interventions.

Movement for Health (MFH) – a coalition of charities that includes SAMH, Age Scotland, and Paths for All – brought together professionals to understand the importance of supporting people to engage in physical activity and interventions through social prescribing models, revealing the findings in a new paper.

Social prescribing which typically sees GP practices and health services connect people to activities, groups and services has been embraced in certain areas of Scotland, with uptake varying considerably by region.

A key MFH recommendation is to create better community links and remove the assumption that social prescribing is a medical approach. This should in turn reduce reliance on other services and people seeing GPs about social issues. However, it’s not a simple change as many people have a trusting relationship with their GPs and is a safe go to when they don’t know where to turn.

Dr Emma Lunan, Chair of Movement for Health, said: “Scotland has a health emergency and our approach needs to change. A social prescribing postcode lottery exists – and it often comes down to the strength of the links between health services and the surrounding community.

“We need to be able to translate policy into actions. Physical activity has huge benefits that go deeper than just physical and mental health. Proactive interventions can help individuals reconnect with their community and grow in confidence but many experience barriers when taking the first step so we need to work collaboratively to overcome these.  

“Once the structure is designed, it will need continual scrutiny to ensure it is working effectively and providing tangible outcomes as society continues to change.”

Maree Todd MSP, Minister for Public Health, Women’s Health and Sport, attended the MFH event as both a keynote speaker and a participant in the panel debate that was chaired by health and care journalist Pennie Taylor and opened by the Chair of Movement for Health, Dr Emma Lunan.

The discussion highlighted a real lack of recognition for this workforce who are often managing people with complex needs. Currently, Scotland’s approach to social prescribing is lagging behind Wales, England, and Northern Ireland although Humza Yousaf, Cabinet Secretary for Health has committed to exploring appointing a lead for social prescribing for Scotland.

The benefits are clear; from supporting patients’ physical and mental health, to reducing health inequalities in local communities, while reducing the workload of frontline health professionals.

Taking part in local activities also helps build the skills and confidence to improve social functioning, leading to the reduction of social isolation and loneliness while creating more connected and resilient communities.

Dr Emma Lunan added: “Community empowerment was a central theme of the debate. It plays a vital role when linking patients to sources of support and networks.

“Greater control needs to be transferred to link workers in order to provide a direct relationship between health care and communities. This would ensure long-term solutions can be implemented rather than quick non sustainable alternatives.”

Currently, social prescribing in Scotland is supported by two networks; Scottish Social Prescribing Network (SSPN) and Scottish Community Link Worker Network (SCLWN). Both networks share learnings, information and good practice across different initiatives while championing the need for a national approach and joined up thinking across all local authority areas.

The approach can fall under several ministerial portfolios which makes the desire for the Scottish Government to identify a lead important to deliver real change for communities and individuals.

Alison Leitch, co-chair of Scottish Social Prescribing Network and Community Link Worker Assistant Service Manager for Edinburgh, said: “The networks build on the strengths, drive and enthusiasm from various social prescribing programmes across the country, with the collective aim to embed the approach in health and social care in Scotland.

“These strengths could assist with ensuring that policy objectives can be measured, evaluated and reported on in a cohesive manner.”

The SSPN and CLW Network are well established networks and the go to body of knowledge in terms of social prescribing and link working in Scotland.

Clare Cook, Project Manager at SPRING Social Prescribing, said: “It is widely recognised that community groups and services can respond more quickly to local needs than statutory services and have less barriers attached to them which encourage engagement. 

“Often a little hand holding in order to build a person’s confidence or provide some reassurance along with good local knowledge goes a long way. Statutory services are under too much pressure to offer this currently yet social prescribing presents a host of benefits to individuals, communities, healthcare and Government.”

The full Movement for Health coalition includes: Age Scotland, Health and Social Care Alliance Scotland, Alzheimer Scotland, Breast Cancer Now, British Lung Asthma and Lung UK, Chest Heart & Stroke Scotland, Diabetes UK, Macmillan Cancer Support, MS Society, Parkinson’s Scotland, Paths for All, RNIB, SAMH, Scotland Versus Arthritis, Stroke Association, VHS, Waverly Care, Scottish Disability Sport and Community Leisure Scotland.  

With four key missions, Movement for Health is working towards raising awareness within health practitioners, physical activity and sport providers, policy makers and the general public, by providing research, resources and political action to support those who are affected to get more active. 

For more information on Movement for Health, visit: https://www.movementforhealth.scot/

Link to report: https://www.movementforhealth.scot/news/social-prescribing-event

For more information on Scottish Social Prescribing Network, visit: https://www.scottishspn.org.uk/

For more information on Scottish Community Link Worker Network, visit: https://vhscotland.org.uk/what-we-do/scottish-community-link-worker-network/