New restrictions on puberty blockers

The UK Government has introduced regulations to restrict the prescribing and supply of puberty-suppressing hormones, known as ‘puberty blockers’, to children and young people under 18 in England, Wales and Scotland.

The emergency ban will last from 3 June to 3 September. It will apply to prescriptions written by UK private prescribers and prescribers registered in the European Economic Area (EEA) or Switzerland.

During this period no new patients under 18 will be prescribed these medicines for the purposes of puberty suppression in those experiencing gender dysphoria/incongruence under the care of these prescribers.

The NHS stopped the routine prescription of puberty blocker treatments to under-18s following the Dr Cass Review into gender identity services.

In addition, the government has also introduced indefinite restrictions to the prescribing of these medicines within NHS primary care in England, in line with NHS guidelines.

The new arrangements apply to gonadotropin-releasing hormone analogues – medicines that consist of, or contain, buserelin, gonadorelin, goserelin, leuprorelin acetate, nafarelin, or triptorelin.

This action has been taken to address risks to patient safety.

Patients already established on these medicines by a UK prescriber for these purposes can continue to access them. They will also remain available for patients receiving the drugs for other uses, from a UK-registered prescriber.

Patients seeking more information should speak to their clinician.

Edinburgh Children’s Hospital Charity: ‘No Time To Wait’

Charity head: New children’s mental health service has “the potential to be transformational”

  • ECHC reports promising data showing children and families benefiting from ‘The Haven’ 
  • No Time To Wait pilot service attracts almost 1,300 visits in first six months  

A new pilot service set up to tackle the mental health crisis facing children and young people in Scotland has released promising data showing the numbers benefitting from its service in the first six months of operating. 

Developed by Edinburgh Children’s Hospital Charity (ECHC), ‘The Haven’ wellbeing and resilience service opened at The Fraser Centre in Tranent in September 2023. It is the first centre to open under the Charity’s ‘No Time To Wait’ strategy.

The Haven aims to support families with children struggling with their mental health and prevent problems escalating to the point where professional intervention is needed.

It is open for three afternoons a week and has attracted 1,264 visits in the first six months. 

Roslyn Neely, CEO of ECHC said: “Children and young people in Scotland are in the midst of a mental health crisis, a crisis which doesn’t just impact the child, but the whole family who feel they have nowhere to turn. 

“We are staggered by the number of people we have been able to support through The Haven, and the impact the service has had on young people and their families. It really does have the potential to be transformational.

“We truly believe there is no time to wait. Allowing the mental health crisis to escalate just wasn’t an option.”

The service was developed in response to ECHC’s research which found that over half (59%) of Scottish families have a child who has experienced a mental health concern. It is hoped the service will be scaled and delivered in community settings and available to all children struggling with their mental health, and their families, across Scotland.

The Haven is open to any child or young person with a mental health concern, and any member of their family, including parents, carers, siblings and grandparents. It offers support in a relaxed and informal setting and provides interventions including family support groups, signposting, fun activities and a drop-in service for those who may just need a cup of tea and a listening ear.

Roslyn Neely added: “While we are humbled by the results of the first six months, this is just one pilot service in one small town. We want to see a Haven available for every child who needs it, in every community.”

The Haven is being piloted in Tranent for two years to ascertain the scale of demand. It is modelled on the charity’s existing Hospital Hub, which delivers very similar interventions to children and families visiting Edinburgh’s Royal Hospital for Children and Young People (RHCYP).

At its best, The Haven may negate a family’s need for future access to medical support, alleviating the pressures on Scotland’s CAMHS.

Fiona O’Sullivan, Director of Children’s Wellbeing at ECHC, said: “The Haven exists to support the whole family; the child, the parent, the grandparent, the auntie, the carer, whomever is closest to the child in need. 

“We have supported people suffering from a range of issues including anxiety, depression, self-harming, challenges with education and school attendance, and eating disorders. Without any medical intervention we have provided young people and their families coping mechanisms to deal with these issues, and crucially, we are seeing positive results.”

‘SEAS’ THE OPPORTUNITY!

RNLI & SCOTMID LAUNCH ART COMPETITION TO CELEBRATE 200 YEARS OF THE RNLI

Scotmid and RNLI are inviting young artists across Edinburgh to let their imaginations set sail ahead of the RNLI’s 200th anniversary.

Scotmid, in partnership with RNLI, has launched a nationwide competition for U18s to design the front cover of its magazine, Jigsaw, and asking them to create an image which they feel encapsulates the RNLI’s legacy, as it celebrates two centuries of heroic rescues and dedicated volunteering.

The competition launch is celebrating Scotmid’s charity partnership with RNLI, which got underway last year and will run until August 2024.

Budding artists are invited to design a front cover that highlights the spirit of the RNLI’s work over the years within its communities, emphasising elements of inspiration, courage, and community spirit. The winning design will reach thousands of Scotmid members. In addition, the winner will receive an exclusive package of RNLI prizes.

Entry details are as follows:

  • Who Can Enter: Anyone aged 18 years and under.
  • The Theme: Artwork that embodies the spirit of the RNLI and its 200 years of brave, life-saving endeavours. The RNLI values are selflessness, courage, dependability and trustworthiness
  • Deadline for Entries: Make sure your masterpieces are submitted to Scotmid by 19 April 2024.
  • Submission Guidelines: Send your artwork to competition@scotmid.co.uk or by post to the Scotmid Membership Team, Hillwood House, Harvest Drive, Newbridge, EH28 8QJ. If you email a submission, keep the original in a safe place in case you win!
  • Find out morehttps://scotmid.coop/design-jigsaw-magazine-cover/

Kirsty Connell, Membership and Community Manager at Scotmid, said: “This competition is a wonderful way to commemorate such a huge milestone for the RNLI and our shared commitment to our communities.

“Partnering with the RNLI has been a privilege, as their tireless efforts serve as a lifeline. We’re excited to provide young artists a platform to express their creativity and honour the invaluable work of RNLI volunteers.”

Paul McKeown, Fundraising and Partnership Lead for the RNLI in Scotland, said: “What a fantastic way for young people to showcase their creativity and join us in celebrating this significant milestone.

“We eagerly anticipate seeing the entries and appreciate Scotmid’s support and dedication to our cause.”

Funds raised over the course of the charity partnership will enable the RNLI to purchase a new Atlantic 85 lifeboat, which will form part of its relief fleet and will be used by stations to assist in critical rescues during times when vessels are undergoing repairs or maintenance. 

Letters: RNIB invites youngsters with a vision impairment to enter writing competition

Dear Editor,

Gearing up for the celebrations of this year’s World Book Day on 7 March 2024, the Royal National Institute of Blind People (RNIB) is inviting children with a vision impairment to submit a piece of creative writing for its World Book Day writing competition.

The final competition winners will be judged by multi- award-winning children’s writer Sir Michael Morpurgo – author of books including War Horse and Private Peaceful. The overall winner will receive ten signed copies of Michael Morpurgo’s books.

Writing submissions must be on the theme of ‘adventure’. Taking the lead from RNIB’s motto, ‘See differently’, the charity wants to celebrate different ways of seeing, sensing and taking part in an adventure that children have been on, or that they can imagine.

No previous experience of creative writing is required and RNIB is keen to receive submissions from as many young people aged 5-12 as possible.

Writing and being creative is hugely beneficial and enjoyable for everyone, especially when going through big life-changes such as growing up.

Hearing the unique perspectives of young writers who have a vision impairment will be a real privilege and I can’t wait to read the fabulous work that I’m sure will be created. We are delighted that Michael Morpurgo has agreed to pick the winner for us as part of his support for RNIB’s World Book Day celebrations.

Competition Rules

  • The competition is open to any child or young person between the ages of 5-12 years with a vision impairment in the UK. 
  • The competition runs from 9am on 1 January 2024, to midnight 18 February 2024. 
  • Send in an original piece of writing up to 500 words in a Word document, MP3 audio or MP4 video, via email. 
  • The piece of writing must be based on the theme ‘Adventure’. 
  • Submissions must be in English. 
  • The use of AI, such as ChatGPT is not permitted. 
  • One submission per author: this will be the first entry emailed to us. 
  • Email all entries with the subject of “WBD competition” to lara.marshall@rnib.org.uk. 
  • The top three entries will be sent to award-winning author Michael Morpurgo for him to choose the final winner. 
  • All entries submitted will be read and shortlisted by RNIB’s library team.

Prizes

  • The winner will receive a signed set of ten of Michael Morpurgo’s books, in their preferred format.

Some suggestions to inspire you, but please feel free to come up with your own ideas too:

  • Travelling somewhere new on holiday.
  • Having a crazy dream.
  • Encountering a strange individual.
  • Finding an interesting artefact. Going on a quest to find mysterious treasure.
  • Finding yourself lost in a place you’ve never been before.
  • Having to save a friend in peril.

Good luck!

Lara Marshall,

Library Engagement Manager, RNIB

Creating a National Care Service

Community engagement funding to ensure groups are heard

Third sector organisations are being awarded new funding to help ensure as many voices as possible are contributing to the design of the National Care Service.

The funding will facilitate contributions from minority ethnic communities, LGBTI people, children and young people and those with experience of homelessness or the justice system.

Organisations will each receive £5,000 to encourage the communities they work with to have their say on how future community healthcare and social work services should look.

Social Care Minister Maree Todd said: “As we build a National Care Service that best fits the needs of everyone in Scotland, we need to hear from people directly.

“The new National Care Service will set the standards and guidance to support the design and delivery of community healthcare and social work services locally.

“The complexities of getting this right should not be underestimated. People with experience of the current system, whether receiving health and care support or delivering it, are the experts. We need to hear those voices – and those of groups who are often overlooked.

“We know that minority ethnic communities, LGBTI people, children and young people and those with experience of homelessness or the justice system are under-represented in our co-design work to date. We also know that people affected by dementia are a key group we want to hear more from and we will benefit from partnering with an organisation with expertise in this area.

“I am confident the funding to support co-design activity with seldom heard communities will help us shape a system we can all benefit from and be proud of.”

The partner organisations are:

  • LGBT Health and Wellbeing
  • Minority Ethnic Carers of People Project (MECOPP)
  • The Simon Community
  • Scottish Association for the Care and Resettlement of offenders (SACRO) 
  • Alzheimer Scotland

Protecting children’s rights in Scots law

Holyrood to reconsider UN Convention on the Rights of the Child Bill

The Scottish Parliament has agreed to consider amendments to the legislation that will incorporate the UN Convention on the Rights of the Child into Scots law.

The UNCRC (Incorporation) (Scotland) Bill requires Scotland’s public authorities to protect children’s rights in their decision-making. It also allows for children, young people and their representatives to use the courts to enforce their rights.

The Bill was passed unanimously in 2021 but certain provisions within it were later ruled outwith the Scottish Parliament’s legislative competence at the Supreme Court.

Proposed changes will mean that public authorities will be required to comply with the UNCRC requirements only when delivering devolved functions conferred by or under Acts of the Scottish Parliament or under common law powers.

Social Justice Secretary Shirley-Anne Somerville said: “Our priority is to provide the greatest protection that we can to children’s rights.

“The amendments that will now be considered will ensure that the Bill protects children’s rights in the most effective way within our devolved powers.

“This is an important milestone in ensuring that we are a country that fully respects, protects and fulfils children’s rights. However, without the political commitment of the UK Government to legislate for children’s rights we are limited in what we can achieve.

“The simplest way to secure the greatest protection for children’s rights would be for our counterparts in Westminster to incorporate the UNCRC into UK law.”

Letter to committee and amendments

Concern over rise in number of young people with mental illness being treated in adult wards

The Scottish Children’s Services Coalition (SCSC), an alliance of leading providers of specialist children’s services, is urging the Scottish Government to up its game in response to figures from the Mental Welfare Commission noting an increase in the number of young people under 18 being admitted to non-specialist hospital wards for the treatment of mental illness.

In 2021/22 there were 90 admissions involving 80 young people to mainly adult wards, an increase on 2021-21 when there were 86 admissions involving 62 young people.

Admission of a young person to an adult ward should only be acceptable in rare situations.

However, despite a greatly increased demand on mental health services, there are currently only 48 specialist hospital beds provided by the NHS in Scotland for children and young people (aged 12 to 18) with mental health problems. 

Given the lack of provision, many children and young people with severe mental health problems are therefore being admitted to non-specialist adult and paediatric hospital wards, settings which are in many cases inappropriate to their needs.

The coalition has urged the Scottish Government to ensure that there are adequate specialist bed numbers that can address need, including provision north of Dundee. It has also called on it to refocus its efforts on prevention and early intervention, ensuring that issues do not escalate so that they require the provision of these specialist services.

Under the Mental Health (Care and Treatment (Scotland) Act 2003 Health Boards are required to provide appropriate services and accommodation for young people admitted to hospital for treatment of their mental disorder.

Given admissions to non-specialist mental health wards, it is clearly arguable whether appropriate services are being provided.

There are a number of differences between specialist units and wards designed to treat the needs of adults with serious mental illness, both in terms of staff training and the overall ward environment.

Given this, there is a clear concern that the needs of a young person may not be met in a comparable way when admitted to an adult mental health ward as opposed to a specialist CAMHS inpatient unit.

A spokesperson for the Scottish Children’s Services Coalition commented: “We are clearly concerned about the increasing number of those being admitted to adult mental health wards, often inappropriate to their needs, both in terms of staff training and the ward environment.

“The Scottish Government needs to up its game on this and provide adequate facilities, ensuring that there are sufficient specialist bed numbers for those requiring them. There is also currently no provision north of Dundee and this requires to be urgently addressed.

“For children and young people who require inpatient mental health care, a lack of such services means that they frequently remain at home, often until the family reaches crisis point, leaving them feeling isolated and delaying recovery.

“These are among the most vulnerable members of our society and we owe it to them to give them the adequate care and support that they need.”

UK Government accepts JCVI advice on COVID-19 paediatric vaccination programme

Health and Social Care Secretary Sajid Javid yesterday accepted advice from the Joint Committee on Vaccination and Immunisation.

Health and Social Care Secretary Sajid Javid said: “Our independent medicines regulator, the MHRA, has approved Pfizer’s paediatric vaccine for children aged 5 to 11 following a thorough review of the safety and effectiveness.

“I have accepted the advice from the Joint Committee on Vaccination and Immunisation to offer vaccines to at-risk 5-11 year old children and extend the booster programme to at-risk 12-15s and all 16-17s.

“While our current and unrelenting focus is ensuring all eligible adults are offered a COVID-19 booster vaccine by the end of December because two doses do not provide enough protection against the Omicron variant, the NHS will prepare to offer vaccines to at-risk 5-11 year old children.

“We have secured supplies of the Pfizer/BioNTech paediatric vaccine which will start to arrive in the UK from mid-January.

“Vaccines are our best defence against this virus and our booster programme has accelerated rapidly, with almost 30 million doses administered and more than half of adults jabbed, securing vital protection.

“This is a national mission and we urge everybody to play their part by getting their vaccines and booster doses as soon as possible.”

Deepfakes: What you should know

What parents need to know about Deepfakes

Edinburgh Police Scotland and The City of Edinburgh Council’s Christmas wish is to #KeepXmasSafe for young people whilst online & keep parents & carers more informed.

@Edinburgh_CC

@natonlinesafety