‘World class’ child cancer care strategy launched

A strategy to deliver world class cancer care for children and young people has been published by the Scottish Government.

Collaborative and Compassionate Cancer Care, the Cancer Strategy for Children and Young People in Scotland 2021-2026, was launched by Health Secretary Humza Yousaf during an online event yesterday.

The strategy highlights 10 priorities for the next five years, supported by almost £6 million investment, which include:

  • working towards funding genetic testing to provide personally targeted treatment
  • expanding Chimeric Antigen Receptor T-Cell therapy (CAR-T) to teenagers and young adults
  • setting up a national molecular radiotherapy service for children
  • funding a dedicated health workforce to care for teenagers and young adults 
  • raising the profile of supported care services and holistic care
  • developing a single centre of excellence to provide radiotherapy treatment to improve survival among children with cancer

Mr Yousaf said: “Receiving a cancer diagnosis is never easy, but receiving one at such a young age is especially difficult.

“We know that diagnosis has come a long way, with survival rates remaining stable for children and young people. However there is still more we can do to support this age group to live long, healthy and happy lives.

“This strategy, backed by almost £6 million, marks an exciting time for children and young people’s cancer services as the first strategy for this age group. It outlines our 10 ambitions to build on previous successes so that, by 2026, we will see improved and enhanced outcomes for patients and ensure equal access to care across Scotland.”

Medical Director of NHS Forth Valley Andrew Murray said: “I am delighted to see the launch of Collaborative and Compassionate Cancer Care, after such a challenging period in the NHS Scotland’s history, and I look forward to working with our clinicians and families to deliver its ambitious objectives over the next five years, improving experiences and outcomes.”

The strategy can be read in full here.

The launch was somewhat overshadowed by news that the Scottish Government is calling in the army to help tackle a crisis in the ambulance service – and a Twitter post of a film of Health Minister Humza Yousaf’s unfortunate accident on a scooter.

Scotland to host United Nations Conference of Youth

Scotland will host the 16th Conference of Youth (COY16), the UN’s official youth event for COP26.

The Conference of Youth is an essential part of the COP calendar, helping to prepare young people for their participation in COP. It gives young people a voice in the climate negotiations, while providing delegates from over 140 countries the chance to meet, share experiences and build skills.

The conference will result in the Statement of Youth, which is presented on behalf of young people at every COP, setting out their hopes and expectations for the climate negotiations.

Five young people from Scotland will be selected to represent the country as delegates and contribute to the Statement.

This event, which runs from 28-31 October in Glasgow, will be funded by the Scottish Government and delivered by YOUNGO – the youth constituency of the United Nations Framework Convention on Climate Change (UNFCCC).

The First Minister said: “Young people have been among the strongest voices calling for urgent global action to address climate change. They have been an inspiration and I am proud that we are playing a role in giving them a platform at the heart of COP26 in Glasgow.

“The Conference of Youth will represent young people from 140 countries around the world, including here in Scotland. It is designed by young people, for young people, so they can set out their asks of world leaders ahead of the climate negotiations.

“Through this support we are ensuring that Scotland will play its part in securing an ambitious and deliverable global deal at COP26.

“I look forward to welcoming COY16 to Glasgow and engaging with them on our shared endeavour to tackle the climate crisis, with young people at the heart of our commitment to a just transition.”

Heeta Lakhani, YOUNGO Focal Point (Global South) and Marie-Claire Graf YOUNGO Focal Point (Global North) said: “The support of the Scottish Government is proof of legitimate youth inclusion and participatory governance in the lead up to the 26th UN Climate Conference.

“The official UN Climate Change Youth Constituency, YOUNGO, and the young climate advocates globally welcome this partnership not only to deliver COY16 and our presence in COP, but also as a sign that we are heard and involved.

“The commitment and backing of the Scottish Government will surely be part of the climate movement’s history. In these challenging times, it is important that we work on shared goals together. Let’s unify for change!”

Boys Brigade is back in Muirhouse

66th Muirhouse Boys Brigade started back on Friday 27 August. Here’s some important information for returners and for young people interested in joining the BBs:

We start at 6pm, please do not arrive early. All parents/guardians must come in to the hall to sign the annual consent form. If a young person turns up without a parent or guardian we may have to send them home.

We welcome boys and girls who are in primary one, two and three in our anchor section, primary four, five and six in the junior section and Primary seven and all secondary pupils in our company and senior section.

We finish at 7.45 for all children in Primary one to six. For young people in Primary 7 and secondary school we finish at 8.30. All young people will be in the church at the same time as the government no longer limits numbers for youth groups.

Cost

We do not charge a joining fee. We do charge subs each night. This pays towards capitation fees for Boys’ Brigade locally and Nationally along with insurance. The subs also pay towards resources, equipment and awards for presentation night.

This year we need to increase the subs. This was not a decision taken lightly. For the last 20 years we have had the same fee, however with the capitation fees continuing to rise each year we have made the difficult decision to increase our nightly fee.

This session it will be £3 a night.

Uniform – for the first few weeks we ask that all young people do not wear uniform as we settle back in.

We will post in the future the information for new parents along with information for parents who have existing uniforms that most likely will be too small now.

COVID specific guidance to protect all young people and our volunteer leaders:

We must follow all government guidance for youth work.All adults must wear masks when coming in to the church building. All our leaders will be wearing masks for the full evening.

All young people who are 12 and older must wear a mask at all times inside the church building. Younger members can wear masks of they wish. Anyone with an exception should bring their lanyard along and this should be discussed when the parent fills in the annual consent form.

There are hand gel stations at the doors that should be used at entry and exit. We will also have hand gel available throughout the evening.

Please bring your own pen for filling in the consent form.

Subs will be collected as the young people enter.

Please as much as possible bring the correct change, we do not hold petty cash in the church.

If you have been told to self isolate you must not come along to Boys’ Brigade until the self isolate period is over.

If your young person has any symptoms of COVID you must not send them to Boys’ Brigade.

Any young person who develops symptoms during the night will be isolated and a patent/guardian will be called to collect them immediately.

Parents are asked to maintain distancing when inside the building.

Leaders will be remaining 2m away from young people as much as possible.

Any failure to follow the COVID guidelines could lead to us having to stop meeting face to face for an extended period of time.

We will not be running a tuck shop at this time.

Our first few nights are all about reconnecting and embedding the routines.

We really look forward to seeing all the young people back in the church halls!

Additional anti-racism support package for school staff

A new package of support materials for teachers and staff will embed anti-racism and race equality into all aspects of school life.

Education Scotland’s resource will ensure children and young people see language, content and imagery that reflects the diversity of culture, identities, and experiences, including their own.     

This week saw the publication of guidance from anti-racism charity the Coalition for Racial Equality and Rights and a teacher toolkit published by Scotdec, one of Scotland’s Development Education Centres, both of which will further support teachers in embedding anti-racism across the curriculum.

Education Secretary Shirley-Anne Somerville said: “Racism of any form has no place in Scotland which is why embedding anti-racism into the ethos and practice of our education system is imperative.

“This new Education Scotland guidance builds on existing resources available and was developed in collaboration with a range of young people, education practitioners and organisations with lived experience of racism and expertise in addressing it.

“Our schools and our curriculum seek to promote and inspire a sense of belonging, inclusion and social justice for learners, practitioners and the wider community. Having an education system that provides an opportunity for anti-racism learning, debate and leadership is crucial in our attempt to eradicate racism in wider society.”

Education Scotland Chief Executive and HMI Chief Inspector of Education Gayle Gorman said : “It is essential that all our children and young people develop an understanding of the world around them and how it has been shaped, as well as an appreciation of the contribution made by people from a range of cultures and identities.

“Our new resource will support the profession to teach and build a society which advances equality and actively rejects and challenges racial discrimination. We hope that our whole-school approach to race equality and anti-racism will help children and young people develop as responsible global citizens.”

CALA Homes sponsorship boost for new inclusive Ratho United

A NEWLY founded football club that is bringing the joy of the sport to a part of Edinburgh has been boosted with sponsorship of a popular age group by CALA Homes (East).

Ratho United – which emerged in early 2020 to give local children an opportunity to train and play with their friends – was founded on an ethos of inclusivity, welcoming around 100 children from throughout the local area, with mixed boys and girls teams.

The CALA Homes logo will adorn the strip of its 2014 teams, which consists of six and seven-year-old boys and girls, training once a week and playing friendly matches, ahead of their first tournament in August. 

Mikey Stewart, volunteer coach and committee member, said: “Given how young the club is, having CALA’s backing is a major boost.

“We have a great mix of youngsters, from the new homes here as well as the old – with some members joining from further afield because of the welcoming nature of our club.

“We’re reliant on the support of sponsors – the big next step for us is a more permanent home – as we’re currently moving between various locations.”

Craig Lynes, Managing Director with CALA Homes (East), said: “While we sold our last home in Ratho two years ago, we recognise that our homes have left a big impression on the village.

“It’s really important to us that we get behind groups like Ratho United as their contribution to the community is invaluable. Their ethos of inclusivity is something that we’re delighted to support.”

CALA has played an important role in Ratho’s recent development, selling the final homes at its Craigpark development in 2019.

Prior to this it completed two further developments, The Moorings and The Glebe, while it even created a canal basin with berths for 14 barges, handed over to Scottish Canals.

Ratho United is a community football club for boys and girls aged between five and 10, with a clear vision to promote and develop health in fitness in children.

It also promotes sportsmanship, fair play, respect and self-discipline as well as the wider community spirit and development of friendships.

For more information on Ratho United, please visit: https://www.rathounited.club/

Vaccinations for young people with certain conditions

Children and young people aged 12-17 from key groups to be offered COVID-19 vaccine

Children and young people with certain conditions are to be offered the Pfizer-BioNTech vaccine, in line with the latest advice from the Joint Committee on Vaccination and Immunisation (JCVI), before the majority of schools return on the 16th of August.

The vaccine will be offered to around 4,000 children and young people affected by severe neuro-disabilities, Down’s syndrome, underlying conditions resulting in immunosuppression, and those who have a diagnosis of Learning/Intellectual disability.

In addition, the JCVI recommended vaccinating young people aged 16 to 17 years of age who are at higher risk of serious illness from COVID-19. While the vast majority of this group  were previously invited in an earlier part of the vaccination programme we will be inviting those that are now 16 who were not vaccinated as part of that earlier offer.

Also to be invited are children and young people aged 12-17 who are household contacts of adults or children who are immunosuppressed. This is to provide indirect protection for that member of their household. A household contact is defined as someone living in the same house, or anyone the  adult or child comes in to contact with face-to-face on most days of the week – such as a carer.

NHS Scotland is aiming to vaccinate these children and young people during August alongside those younger household contacts of people with immunosuppression.

Those children and young people with specific conditions and their parents or carers will be contacted directly by their local Health Boards via letter, phone call or by their regular healthcare professional. The household contacts of the wider group of people with immunosuppression will be contacted by a letter from the National Vaccination Programme.

Health Secretary Humza Yousaf said: “In line with the latest JCVI advice we will now be offering COVID-19 vaccinations to children and young people aged between 12 and 17 from key groups.

“The programme has always offered vaccine to groups where the benefits far outweigh the risks. The research and evidence shows that is the case for young people in these groups and they should now be called forward for a COVID-19 vaccine.

“These children and young people will be able to get the vaccine in the most appropriate setting for their situation. This may be in their own home or a care setting, or at a clinic, depending on their care or health needs.

I would urge any parent or carer who has a child or young person eligible for a vaccine to visit NHS Inform where they can find the most up-to-date information; and read the leaflet that they will receive with their letter or from their Health Board. Parents, carers or young people can also speak to their local health professional to discuss this further if they need to.”

Supporting vulnerable young people with complex needs

A national service dedicated to supporting young people with very complex social, emotional and behavioural needs has received £280,000 of Scottish Government funding.

The Interventions for Vulnerable Youth (IVY) project provides psychological and social work support to 12 to 18-year-olds who present a serious risk of harm to themselves or others.

The service, hosted by child and youth care charity Kibble, has supported more than 270 children and young people since it was established in 2013.

Children’s Minister Clare Haughey said: “It is vital that children and young people with such complex needs get the support they need.

“I am pleased that we have committed to funding IVY in 2021-22 so the service can continue to provide expert help.”

Kibble and IVY clinical director Dan Johnson said: “The pandemic has made it harder for services to reach those children and young people who need it most.

“With funding from the Scottish Government, IVY can continue to help young people and families access the right kind of support at the right time.”

Get into Summer programme: holiday fun across the Capital

Children and young people are getting geared up for a summer of fun as an exciting programme of activities is being delivered by over 100 Council services and partner organisations across the Capital.

The Get into Summer initiative is part of a nationwide scheme funded by the Scottish Government to create a variety of opportunities for children and their families to play, socialise and re-connect over the summer.

The activities will build on the regular summer programmes put on by the City of Edinburgh Council and partners and are taking place in communities across the city. They will help children and young people to get healthy, creative and most importantly, re-connect with each other after a disrupted school year caused by the pandemic.

A key focus of the programme will be activities targeted to those families from low income households who may otherwise struggle to access such experiences during the holidays. The overall programme has a focus on opportunities for youth and children’s work, very young children and their families, with opportunities for sport, outdoor, art and cultural activities.

Some of the partner organisations putting on events and providing support include: 6VT Edinburgh City Youth Café, Disability Services, Intercultural Youth Scotland, Edinburgh Young Carers, Lochend Football Academy, National Galleries of Scotland, Play2Learn Sports Coaching and Shakti Women’s Aid.

Fet Lor Summer Programme

Councillor Ian Perry, Convener for Education, Children and Families at the City of Edinburgh Council, said: “We know how much our children and young people have had their year disrupted by the pandemic and our ‘Get into Summer’ programme aims to bring as many of them together as possible to play and socialise over the holidays.

“There really is something for everyone with activities ranging from sports coaching to museum trips and music workshops with many additional activities on top of what we usually offer during the summer. We want to do all we can to support our children, young people, their families and carers so they can enjoy the summer.

“This programme is a great way to do that. Thanks must go to the different Council teams and partner organisations across the city who have pulled together to put on such a great programme of activities.”

MYDG Summer Programme

Councillor Alison Dickie, Vice Convener for Education, Children and Families at the City of Edinburgh Council, said: “We have listened to our young people who have told us about the impact of lockdown on their mental health and wellbeing as a result of the pandemic so these activities are a first step to help them re-connect with their friends and interests over the summer.

“They and their families are showing great resilience but no one should underestimate the huge impact the pandemic is having with many of the activities and support usually open to them not yet available. This must change.

“Many families on low income struggle during the summer holidays so this targeted offer is a positive step forward and will boost opportunities for those who have faced the greatest challenges in the past 15 months. This programme has children’s rights and needs at its heart.”

Dot Horne, Director of 6VT Edinburgh City Youth Café, said: “Get into Summer is a much-needed support for children and young people. During this pandemic so many young people have been adversely affected, isolated and missed out on essential life skills they would have learnt as they progressed through “normal” experiences.

“We’ve seen an increasing number of young people coming forward who are lacking things like self-confidence, coping skills, feeling socially anxious , lonely or unhappy. At 6VT we are offering teenagers a dynamic and active programme of activities where they will be supported to  improve their wellbeing, experience new activities and learn how to build respectful relationships with others.

“We are striving for a lot of fun and laughter with the overall impact of improving happiness. We encourage parents to support their children and young people to engage into Get into Summer activities.”

Find out more about the full Get into Summer programme.