Lothians families given world-first hospital navigation solution

An Edinburgh children’s hospital has become the first in the world to introduce pioneering new personal navigation technology from Waymap, helping families to travel more easily from home to specific consulting rooms and wards.

The Royal Hospital for Children and Young People (RHCYP) at Little France is the first hospital globally to go live with Waymap – a ground-breaking app that guides visitors from their front door directly to the correct hospital department.

Made possible thanks to a partnership between Edinburgh Children’s Hospital Charity (ECHC), NHS Lothian, and personal navigation specialist Waymap, the app gives families step-by-step directions both inside and outside the hospital, making visits more accessible and less stressful.

Families like Gilly Bain’s, whose daughters Finty (3) and Mackenzie (6) have been admitted to the RHCYP numerous times with recurrent respiratory syncytial virus (RSV) and other ailments, have already described the app as a gamechanger for navigating hospital visits.

Gilly, Founder & CEO of YOURGB, Edinburgh, said: “Making your way to hospital with a very unwell child is one of the most high-stress moments in any parent’s life. In that moment, the absolute last thing you need is to panic about which building is the right one, or which of the many car parks it is that you’re meant to use.

“This app takes away that added pressure, and it is going to make a world of difference to so, so many families.”

Already in use at major transport hubs, shopping centres and sports stadiums in the UK and around the world, Waymap works indoors, outdoors and underground. It helps people move confidently through unfamiliar spaces, regardless of vision, mobility, or language skills.

Roslyn Neely, CEO of ECHC, said: “Hospital visits can already be a daunting experience, especially for children and families with additional needs. This ground-breaking technology removes one of the biggest sources of anxiety – finding your way.

“Not only will it make journeys to the hospital much simpler by guiding people directly to where they need to be, it will also help to ease anxiety, break down language barriers, and reduce missed appointments.”

The Waymap team carefully mapped the hospital’s indoor physical space using a LIDAR scanner, which uses lasers to map spaces in 3D. The app guides families along clear routes displayed on a smartphone screen or via audio instructions. It is available in multiple languages and integrates with bus and train timetables.

Celso Zuccollo, CEO of Waymap, said: “We are really excited to be making wayfinding easier for children and families visiting the hospital.

“Waymap’s precise personal navigation technology works indoors and outdoors, making it ideal for helping patients, staff and visitors find their way to and around a busy hospital.”

Aris Tyrothoulakis, Service Director, Women’s and Children’s, NHS Lothian, said: “We are proud to be the first hospital in the world to introduce this technology to support our young patients and their families.

“It is about making the journey to and from hospital easier, reducing stress, and helping families to feel more confident and independent from the moment they arrive.”

Dr Olivia Swann, Paediatric Infectious Diseases Consultant, NHS Lothian, said: “My colleagues and I realised we were spending a lot of time helping anxious families find their way around the hospital.

“I was sure we could do this better. My research led me to Waymap and their innovative way of helping people navigate complex indoor settings.

“Working with Waymap and ECHC, we managed to secure funding to bring this amazing app to the families at RHCYP and hope it helps make hospital visits simpler and less stressful for everyone.”

Charity calls on policy makers to address the financial cost of having a child in inpatient or outpatient care

Edinburgh Children’s Hospital Charity says the Young Patients Family Fund is failing the families who need it most

Edinburgh Children’s Hospital Charity (ECHC) has launched its manifesto – Families on the brink – ahead of the Scottish Parliament Elections calling for an overhaul of the Young Patients Family Fund. 

Roslyn Neely, CEO of ECHC said: “The current system, while well intentioned, is failing the families who need it most. Parents already stretched to the limit are being pushed into a deeper financial crisis by reimbursement policies that ignore the realities of everyday life.”

The charity has outlined measures in its manifesto to change the system to a cash-first approach over reimbursement as well as expanding the criteria to cover families attending regular outpatient appointments, rather than just inpatient care. 

ECHC provides seriously ill children and their families with the extra support they need when facing a potentially life-changing hospital visit. It sees first hand the number of families who  simply can’t afford to pay upfront for travel, food, or accommodation – let alone wait weeks to be reimbursed. 

For some families, even when they have been reimbursed the money doesn’t reach them as it can be swallowed by overdrafts or used to repay public debts the moment it hits their account. The fund also doesn’t support families who don’t have a bank account or are unable to navigate the complex claims process. 

ECHC believes the eligibility criteria should be expanded beyond inpatient appointments as outpatient appointments can be just as costly for families. Children who need frequent outpatient care – like chemotherapy or treatments for chronic conditions such as Crohn’s – often attend more than five appointments a year.  That results in five days of missed work. Five days of travel costs. And, five days of disruption to school, siblings, and family life.

Roslyn Neely added: “Ahead of the Scottish Parliament Elections we want policymakers to show families who have a young person regularly visiting or staying in hospital that they understand their reality. They understand that families who are already exhausted and stretched to their limits, feeling unsupported by the system, don’t have to be financially drained as well. 

“Simple changes to the Young Patients Family Fund would ease the pressure on families who are struggling, and make what could be a potentially life changing or life threatening experience, just a little bit more manageable.” 

The Scottish Government budget for 2026/27 has allocated £3.2 million to the fund, a reduction from £5 million from when it was introduced in 2021. 

Young people share creative perspectives on life’s in-between spaces in new Edinburgh exhibition

LIMINAL: OUT OF THE DRILL HALL until 6 NOVEMBER – FREE EXHIBITION

Liminal, a new exhibition showcasing artwork created by young people who are treated at the city’s Royal Hospital for Children and Young People, is open for one week in Edinburgh.

Running until Thursday 6 November, the exhibition has been developed through a collaboration between the Mental Health Foundation, Edinburgh Children’s Hospital Charity (ECHC), and artist Louise Fraser, as part of the Scottish Mental Health Arts Festival. Liminal explores the emotional and physical “in-between” spaces that young people often navigate between childhood and adulthood, wellness and illness, comfort and unease.

The exhibition features imaginative and deeply personal work created by young people who have spent time in hospital settings. They participated in a series of workshops to create their artwork and co-produce the exhibition.

Through drawing, painting, and mixed media, they reflect on identity, transition, and the complexity of growing up while managing health challenges.

Poppy Porteous, age 13 from Linlithgow, is one of the young artists whose work is on display.  She was diagnosed with Crohn’s Disease when she was 7 years old and has been attending medical appointments at the hospital since. 

Poppy said: “Living with a long-term health condition can be scary and frustrating sometimes, so doing art like this really helped me feel better. I got involved in the Liminal project after taking part in a teddy photography activity through the hospital and ECHC.

“I loved being part of Liminal. It was so much fun and everyone was really kind. My artwork shows the creative and messy side of me, especially the wooden block paintings. It felt great to be allowed to try everything and I love seeing my artwork on display”.

Ilayda Balkan, age 15 from Edinburgh, was diagnosed with Polyarthritic Juvenile Idiopathic Arthritis (JIA)in April 2024. Her rheumatology nurse at the hospital introduced her to the arts project.

Ilayda said: “My nurse told me about the Liminal project before she retired, it felt like a gift she left me. Taking part was a lovely experience. I met kind, creative people and felt a real sense of empathy, even though we didn’t know each other’s stories.

“The project gave me space to express myself freely, and my artwork reflects that – especially my sunset paintings, which remind me of my family’s home in Turkey. Living with a long-term health condition can be really tough, but projects like this show that your illness doesn’t define you. It’s your kindness and strength that truly shine.”

The Scottish Mental Health Arts Festival, led by the Mental Health Foundation, is one of Scotland’s most diverse cultural festivals, and the biggest festival of its kind in the world. It celebrates and encourages using the arts to explore mental health, challenge stigma, and promote wellbeing.

Gill Means, Project Manager at Mental Health Foundation said: “Liminal has been a powerful and moving project to be part of.

“The young people involved have shared their experiences with honesty, creativity and courage, and their artwork speaks volumes about what it means to live with a long-term health condition.

“This exhibition is a celebration of their voices, their imagination, and the strength they’ve shown in expressing themselves through art.”

Edinburgh Children’s Hospital Charity (ECHC) works to transform the hospital experience for children and young people by supporting their health and wellbeing through creativity, play and connection.

Creative projects offer a vital outlet for imagination and emotional resilience and help make hospital a place where children can still be children.

ECHC works in partnership with NHS Lothian to help seriously ill children and their families have a positive hospital experience.

Tonya McMullan, Arts Officer at ECHC, said: “We see firsthand, every day, how creativity gives children in hospital a way to express themselves, have fun and just be children again.

“Art can help them cope with tough days and give them some choice and control at a time when they have very little. “We’re so inspired by all the young people who took part in Liminal. Their artwork is powerful, moving and so inspiring.”

Liminal is on display at Out of the Blue Drill Hall, 36 Dalmeny Street, Edinburgh EH6 8RG until Thursday 6 November 2025.  The gallery is open daily, 10am–5pm

For more information, visit www.mhfestival.com

ECHC Halloween Stall at Gyle Shopping Centre

Join us on Saturday, 25th October, 10 AM–4 PM for the ECHC Halloween Stall – a spooktacular day of games, glitter tattoos, and a chance to meet your favourite Star Wars characters!

Plus, don’t miss the tombola packed with fang-tastic prizes!

All in support of Edinburgh Children’s Hospital Charity 💜

#GyleHalloween

#ECHC

Edinburgh Children’s Hospital Charity: ‘No Time To Wait’

Charity head: New children’s mental health service has “the potential to be transformational”

  • ECHC reports promising data showing children and families benefiting from ‘The Haven’ 
  • No Time To Wait pilot service attracts almost 1,300 visits in first six months  

A new pilot service set up to tackle the mental health crisis facing children and young people in Scotland has released promising data showing the numbers benefitting from its service in the first six months of operating. 

Developed by Edinburgh Children’s Hospital Charity (ECHC), ‘The Haven’ wellbeing and resilience service opened at The Fraser Centre in Tranent in September 2023. It is the first centre to open under the Charity’s ‘No Time To Wait’ strategy.

The Haven aims to support families with children struggling with their mental health and prevent problems escalating to the point where professional intervention is needed.

It is open for three afternoons a week and has attracted 1,264 visits in the first six months. 

Roslyn Neely, CEO of ECHC said: “Children and young people in Scotland are in the midst of a mental health crisis, a crisis which doesn’t just impact the child, but the whole family who feel they have nowhere to turn. 

“We are staggered by the number of people we have been able to support through The Haven, and the impact the service has had on young people and their families. It really does have the potential to be transformational.

“We truly believe there is no time to wait. Allowing the mental health crisis to escalate just wasn’t an option.”

The service was developed in response to ECHC’s research which found that over half (59%) of Scottish families have a child who has experienced a mental health concern. It is hoped the service will be scaled and delivered in community settings and available to all children struggling with their mental health, and their families, across Scotland.

The Haven is open to any child or young person with a mental health concern, and any member of their family, including parents, carers, siblings and grandparents. It offers support in a relaxed and informal setting and provides interventions including family support groups, signposting, fun activities and a drop-in service for those who may just need a cup of tea and a listening ear.

Roslyn Neely added: “While we are humbled by the results of the first six months, this is just one pilot service in one small town. We want to see a Haven available for every child who needs it, in every community.”

The Haven is being piloted in Tranent for two years to ascertain the scale of demand. It is modelled on the charity’s existing Hospital Hub, which delivers very similar interventions to children and families visiting Edinburgh’s Royal Hospital for Children and Young People (RHCYP).

At its best, The Haven may negate a family’s need for future access to medical support, alleviating the pressures on Scotland’s CAMHS.

Fiona O’Sullivan, Director of Children’s Wellbeing at ECHC, said: “The Haven exists to support the whole family; the child, the parent, the grandparent, the auntie, the carer, whomever is closest to the child in need. 

“We have supported people suffering from a range of issues including anxiety, depression, self-harming, challenges with education and school attendance, and eating disorders. Without any medical intervention we have provided young people and their families coping mechanisms to deal with these issues, and crucially, we are seeing positive results.”

Fundraiser Tom Gilzean remembered with Royal Mile sculpture 


A sculpture of legendary Edinburgh fundraiser Tom Gilzean has been unveiled on the Royal Mile to pay tribute to his extraordinary life and continue his legacy. 

Tom Gilzean was a decorated war veteran and charity stalwart who sadly died in November 2019 aged 99, having raised over £1million for good causes during his lifetime. 

Now, Tom’s charity Edinburgh Children’s Hospital Charity (ECHC) and Central Taxis have teamed up to celebrate his memory with a dedicated statue, ‘Oor Tom’, displayed in his favourite city fundraising spot. 

Tom became an iconic figure to both locals and tourists alike. Come rain or shine, he could be found on the Royal Mile or Princes Street, wearing his trademark tartan trews and shaking his collection cans to raise funds for the charity.

ECHC supports the Royal Hospital for Children and Young People (RHCYP). When asked why he fundraised 365 days a year in all weathers, Tom would simply say, “I just want to help the children.” 

Fiona Brian, fundraiser at ECHC, said: “Tom was an exceptional and inspirational ambassador of ECHC and we are immensely proud and privileged to have been his chosen charity.

“It is wonderful to be able to bring his sculpture to the streets of Edinburgh so all those who knew and were inspired by him can remember him and ensure his legacy lives on.

“We are enormously grateful to Central Taxis, the Lord Provost and Belhaven School Pipes and Drums for helping to make the day so special.”

Oor Tom was created by local artist Chris Rutterford to honour Tom and the thousands of children and their families who have been cared for by Edinburgh’s children’s hospital. Central Taxis funded the sculpture to raise further funds for seriously ill children and donated it to the city for everyone to enjoy. 

Murray Fleming from Central Taxis said: “We at Central Taxis are deeply honoured to have had the opportunity to collaborate with ECHC in commemorating the extraordinary contributions of Tom Gilzean.

“His selfless dedication to charitable causes is a testament to the spirit of community and giving that we hold dear. 

“This sculpture is not just a monument; it is a call to action for all of us to continue Tom’s incredible legacy of helping those in need. We hope that his presence on the Royal Mile serves as a lasting inspiration to both residents and visitors alike.” 

Oor Tom was originally on display on Princes Street as part of Oor Wullie’s BIG Bucket Trail – a nationwide art trail which raised money for Scotland’s children’s hospital charities, including ECHC.

To donate in Tom’s memory, visit: www.echcharity.org/oor-tom 

Gillespie Macandrew donates record £48,000 to its charity partners

Scottish law firm Gillespie Macandrew has donated a record £48,000 to the Edinburgh Children’s Hospital Charity (ECHC) and Alzheimer Scotland as part of its annual commitment to its charity partners. 

The firm donates 1% of its pre-tax profits each year and this year announced double digit income growth for the second consecutive year with turnover reaching £16.8m.

These donations are part of a wider programme of engagement with the charities, which includes volunteering and fundraising activities.

The firm began its partnership with ECHC and Alzheimer Scotland in 2021 after both charities were nominated and chosen by staff.  The firm’s overall financial contributions now total over £126,000, shared between the two charities during this period.

Gillespie Macandrew’s commitment to supporting charitable causes is a key element of its overall ESG programme, having donated more than £250,000 to Scottish charities over the past eight years.  

Robert Graham-Campbell, Chief Executive Officer at Gillespie Macandrew commented: “We are delighted to be able to share the firm’s success with these two very important charities who provide invaluable support to families in Scotland. 

“We continue to offer practical support to our charity partners and our staff regularly take part in volunteer days with both ECHC and Alzheimer Scotland, from working in the hospital garden to setting up fundraising events. 

“This year Gillespie Macandrew staff also had the opportunity to join Dementia Friends training sessions to learn more about dementia and the small ways in which people can help.”

Roslyn Neely, Chief Executive Officer at Edinburgh Children’s Hospital Charity, commented: “We are so pleased to be the recipients of this incredible support from Gillespie Macandrew which will help provide our life changing work in The Royal Hospital for Children and Young People. 

“No child wants to be in hospital, but for those who must be, ECHC is there to make that experience as positive as possible. Thank you to everyone in Gillespie Macandrew for their kindness and for choosing to help babies, children, and young people with this generous gift.”

Jonathan Mitchell, Head of Stakeholder Engagement at Alzheimer Scotland, commented: “We are delighted to receive this very generous donation of £24,000.

“Alzheimer Scotland depends on fundraising and every penny raised will help us to continue to fund our vital network of Dementia Advisors, Dementia Centres and 24-hour Freephone Dementia Helpline (0808 808 3000), that provide critical support for people living with dementia and those who care for them.

“Without the amazing efforts of our supporters, we would not be able to deliver this vital help. This donation from Gillespie Macandrew helps us to Prevent Today, Care Now and Cure Tomorrow.”

Gillespie Macandrew has offices in Edinburgh, Glasgow and Perth, advising clients on all areas of land and rural business, private client, commercial real estate, renewable energy, tax and disputes, combining a personal approach with industry-leading expertise. 

New mental health service for families to open in East Lothian

A new pilot service which aims to tackle the mental health crisis facing children and young people in Scotland is to be launched from September in East Lothian.

Developed by Edinburgh Children’s Hospital Charity (ECHC), ‘The Haven’ wellbeing and resilience service will open tomorrow (Monday 18 September) at The Fraser Centre in Tranent and is open to families living within the catchment area of Ross High School.

It aims to support families with children struggling with their mental health and prevent problems escalating to the point where professional intervention is needed.

The Haven will be open to any child or young person with a mental health concern, and any member of their family, including parents, carers, siblings and grandparents. It will offer support in a relaxed and informal setting and provide interventions including family support groups, signposting, fun activities and a drop-in service for those who may just need a cup of tea and a listening ear.

Every family will have their own ‘Pal’; a trained team member who can support them along their child’s mental health journey. At its best, The Haven may negate a family’s need for future access to medical support, alleviating the pressures on Scotland’s CAMHS.

Sara Fairgrieve from East Lothian is the parent of a child who is currently receiving mental health support. She is backing ECHC’s new service and will attend The Haven with her child once it is open.

Sara said: “This new service is definitely needed and will be very welcome in the community. For any parent who has children struggling with their mental health, just having somewhere to go where you can relax, escape for a little while and meet like-minded parents with similar issues who understand will be so beneficial.

“We’re lucky in that we’re managing for now, but I know there are parents out there who are despairing, stuck on a waiting list and feel they have nowhere to turn to get the help they need now.

“Being able to speak to non-judgmental professionals who can provide the right support and guidance – as families will be able to do at The Haven – will really help to take the stress and strain off parents, and the kids themselves.”

The Haven will be piloted in Tranent for two years to ascertain the scale of demand. It is modelled on the charity’s existing Hospital Hub, which delivers very similar interventions to children and families visiting Edinburgh’s Royal Hospital for Children and Young People (RHCYP).

The service is a response to ECHC’s research which found that over half (59%) of Scottish families have a child who has experienced a mental health concern. Once proven, it will be scaled and delivered in community settings and available to all children struggling with their mental health, and their families, across Scotland.

Roslyn Neely, CEO of ECHC, said: “When it comes to tackling the mental health crisis facing children and young people in Scotland, there is no time to wait.

“In developing this service, we spoke to many families who feel they just don’t know where to get the support and advice that they so desperately need. We asked them what was missing, and overwhelmingly we found families just needed somewhere to go for a bit of help while they’re waiting, or if they know professional help isn’t an option for them.

“The development of The Haven has been led completely by children, young people and families.  What they asked for was a wellbeing service like that already provided at the children’s hospital. Somewhere the whole family can go and do everything from take part in fun activities, to having a complementary therapy or just a hot cup of tea and the chance to offload.

“Together we have an opportunity to help our children with earlier support for good mental health to improve their wellbeing and avert a potential mental health crisis. We hope The Haven will be part of the solution.”

Paul McLennan, MSP for East Lothian added: “I’m delighted to see Edinburgh Children’s Hospital Charity launch their new mental health pilot in Tranent. 

“I’ve met the team on a number of occasions – this is a groundbreaking initiative and I look forward to working with them closely in the months ahead.” 

If you live within the catchment area of Ross High School and/or are registered with Tranent Medical Practice and need support, please get in touch at thehaven@echcharity.org or call 0131 202 9212.

Amazon Goes Gold for Kids with Cancer in September

The team at Amazon’s fulfilment centre in Dunfermline made a £3,000 donation to Children’s Hospices Across Scotland and a £1,000 donation to Edinburgh Children’s Hospital Charity as part of the company’s global Amazon Goes Gold for Kids with Cancer campaign during September’s Childhood Cancer Awareness Month. 

Now in its sixth year, Amazon Goes Gold for Kids with Cancer raises funds and awareness for organisations working to increase survival rates for those with childhood cancer through life-saving treatments and research.

A gold ribbon is the universal symbol for childhood cancer, so this year, Amazon employees from Dunfermline held a month-long series of gold-themed events in recognition of the international emblem. 

The team also showed solidarity to children with cancer by donating £3,000 to Kinross-based charity Children’s Hospices Across Scotland and £1,000 to Edinburgh-based charity Edinburgh Children’s Hospital Charity.

One of the events this year at Amazon in Dunfermline was a Pyjama Day, which saw the fulfilment centre team join with colleagues across the UK to wear pyjamas to work in honour of children who spend every day in their pyjamas during treatment. 

Amazon Dunfermline General Manager, Jamie Strain, said: “We are proud to support CHAS and Edinburgh Children’s Hospital Charity in honour of Childhood Cancer Awareness Month and this year’s Amazon Goes Gold for Kids with Cancer campaign.

“We look forward to doing our bit for children with cancer every year, and hope that this donation offers encouragement to the charity’s brilliant team and the families it supports.”

One of the Amazon employees who took part in Amazon Goes Gold for Kids with Cancer is Aoife Considine. She added: “It was great to take part in Amazon in Dunfermline’s Pyjama Day and help spread awareness of the realities of childhood cancer. I’m so pleased that we could offer support to such an excellent charity.”

This year, Amazon employees in the UK also had the opportunity to support children and families affected by childhood cancer by volunteering with childhood cancer charities and organisations, or by putting together activity packs for children facing cancer, which were distributed to nearby hospitals and hospices.

Amazon Goes Gold for Kids with Cancer takes place annually as part of Amazon’s programme to support the communities in and around its operating locations across the UK.

Gillespie Macandrew donates £38,000 to its partner charities

Edinburgh Children’s Hospital Charity (ECHC) and Alzheimer Scotland are to share a donation of £38,000 from law firm Gillespie Macandrew. 

Partners at the firm commit to donating 1% of the firm’s pre-tax profits each year to its partner charities.  Earlier this year Gillespie Macandrew began a three-year partnership with ECHC and Alzheimer Scotland, after the charities were nominated and voted for by staff.

Gillespie Macandrew’s support for its partner charities is both financial and practical. Through the Corporate Social Responsibility (CSR) committee, staff are encouraged to participate in a broad range of additional fundraising activities, and are also given a day off each year to take part in charitable activities.

Chief Executive Officer Robert Graham-Campbell commented: “We are pleased to be able to share the success of our day-to-day business activities in support of these two important charities, particularly at time when their services are under increased pressure.

As well as our donation, we continue to offer practical support however we can. Members of our CSR committee visited the new Royal Hospital for Children and Young People where they saw first-hand the amazing work ECHC does and the real difference it makes to the children, young people, their families, and staff. 

Our private client practitioners know all too well the effects of Alzheimer’s disease on individuals and their families and we are proud to support their important work.  In the coming months staff will help to create dementia gardens in Dundee and Glasgow.”

Olivia Penn, Corporate Partnerships Fundraiser at Edinburgh Children’s Hospital Charity, commented: ‘’We are absolutely delighted to be working in partnership with Gillespie Macandrew who have already shown incredible commitment to our cause through fundraising and volunteering.

“The vital funds raised through the partnership will go towards transforming the lives of seriously ill babies, children and young people by supporting their medical care, mental health and family’s wellbeing. Together, we will make sure children treated in hospital and healthcare settings across Scotland will always be children first and patients second.’’

Caroline Miller, Lead for Stakeholder Engagement at Alzheimer Scotland, commented: “The pandemic has had a devastating effect on the dementia community – the loss of formal and informal supports and the rapid progression of the illness are strongly correlated.

“This donation from Gillespie Macandrew will help us to rebuild our frontline services such as day care, gardening and other therapeutic groups, and will make sure that our Dementia Advisors can continue to be a lifeline to people with dementia and their carers in communities across Scotland. 

“The pandemic has shed light on some complex legal issues for people we support in areas like Powers of Attorney and Guardianships, and we are especially grateful for the support that Gillespie Macandrew has provided in the form of training for our colleagues and information sessions for our carers.”

Gillespie Macandrew has a long and proud history of supporting not for profit organisations and staff are given a paid day off each year to participate in charitable or corporate and social responsibility events.

The firm has offices in Edinburgh, Glasgow and Perth and advises on all areas of land and rural business, private client, commercial real estate, energy, tax and disputes.