Tag: Carers Trust

Biggest shake up to welfare system in a generation ‘to get Britain working’

UNIVERSAL CONDEMNATION OF LABOUR PLANS

Largest welfare reforms for a generation to help sick and disabled people who can and have the potential to work into jobs – backed by a £1 billion investment, unveiled by the Work & Pensions Secretary today

  • Work Capability Assessment to be scrapped and “right to try” work guarantee to be introduced in drive to tear down barriers to work
  • Changes will unlock work, boost employment, and tackle the broken benefits system to unlock growth as part of the government’s Plan for Change

Record £1 billion employment support measures have been announced ‘to help disabled and long-term sick people back into work’.

The new measures are designed to ensure a welfare system that is fit for purpose and available for future generations – opening up employment opportunities, boosting economic growth and tackling the spiralling benefits bill, while also ensuring those who cannot work get the support they need as part of the government’s Plan for Change.

This will end years of inaction, which has led to one in eight young people not currently in work, education or training and 2.8 million people economically inactive due to long term sickness – one of the highest rates in the G7. 

The number of people receiving one of the main types of health and disability benefit, Personal Independence Payments (PIP), has also risen rapidly and is becoming unsustainable. 

Since the pandemic, the number of working-age people receiving PIP has more than doubled from 15,300 to 35,100 a month. The number of young people (16-24) receiving PIP per month has also skyrocketed from 2,967 to 7,857 a month. Over the next five years, if no action is taken, the number of working age people claiming PIP is expected to increase from 2 million in 2021 to 4.3 million, costing £34.1 billion annually. 

All this has driven the spiralling health and disability benefits bill, forecast to reach £70 billion a year by the end of the decade, or more than £1 billion a week. This is equivalent to more than a third of the NHS budget, and more than three times as much as is spent on policing and keeping communities safe.

Speaking in Parliament today, Liz Kendall announced a sweeping package of reforms to overhaul the system, so it better supports those who need it while tearing down barriers to work including:

Ending reassessments for disabled people who will never be able to work and people with lifelong conditions to ensure they can live with dignity and security

Scrapping the controversial Work Capability Assessment to end the dysfunctional process that drives people into dependency – delivering on the government’s manifesto commitment to reform or replace it

Providing improved employment support backed by £1 billion – one of the biggest packages of employment support for sick and disabled people ever – including new tailored support conversations for people on health and disability benefits to break down barriers and unlock work

Legislating to protect those on health and disability benefits from reassessment or losing their payments if they take a chance on work. 

To ensure the welfare system is available for those with the greatest needs now and long into the future, the government has made bold decisions to improve its sustainability and protect those who need it most, including:

  • Reintroducing reassessments for people on incapacity benefits who have the capability to work to ensure they have the right support and aren’t indefinitely written off.
  • Targeting Personal Independence Payments for those with higher needs by changing the eligibility requirement to a minimum score of four on at least one of the daily living activities to receive the daily living element of the benefit, in addition to the existing eligibility criteria.
  • Rebalancing payment levels in Universal Credit to improve the Standard Allowance. Raising it above inflation by 2029/30, adding £775 annually in cash terms.
  • Consulting on delaying access to the health element of Universal Credit until someone is aged 22 and reinvesting savings into work support and training opportunities through the Youth Guarantee.

Prime Minister Keir Starmer said: “We inherited a fundamentally broken welfare system from the previous government. It does not work for the people it is supposed to support, businesses who need workers or taxpayers who foot the bill.

“This government will always protect the most severely disabled people to live with dignity. But we’re not prepared to stand back and do nothing while millions of people – especially young people – who have potential to work and live independent lives, instead become trapped out of work and abandoned by the system. It would be morally bankrupt to let their life chances waste away. 

“When I talk about opportunity for all, I mean it. That’s why we are bringing forward the biggest changes to the welfare system in a generation and improving support for those who need it. Ensuring those who can work do work is not only right, but it will also improve living standards and drive growth, the number one priority in our Plan for Change.”

Work and Pensions Secretary Liz Kendall said: “Our social security system must be there for all of us when we need it, now and into the future. That means helping people who can work to do so, protecting those most in need, and delivering respect and dignity for all. 

“Millions of people have been locked out of work, and we can do better for them. Disabled people and those with health conditions who can work deserve the same choices and chances as everyone else.

“That’s why we’re introducing the most far-reaching reforms in a generation, with £1 billion a year being invested in tailored support that can be adapted to meet their changing circumstances – including their changing health – while also scrapping the failed Work Capability Assessment.

“This will mean fairness for disabled people and those with long term health conditions, but also for the taxpayers who fund it as these measures bring down the benefits bill. 

“At the same time, we will ensure that our welfare system protects people. There will always be some people who cannot work because of their disability or health condition. Protecting people in need is a principle we will never compromise on.”

In her statement to Parliament, the Work and Pensions Secretary outlined the clear case for change to the welfare system and set out her commitment to ensuring that disabled people and those with a health condition have the same opportunities to work as anyone else.

In particular, she highlighted that the UK has one of the highest reported rates of working-age people out of work due to ill health in Western Europe and the UK is the only major economy whose employment rate hasn’t recovered since the pandemic – exacerbated by a broken NHS with millions of people on waiting lists. 

The government has already made huge progress to fix the NHS, including by hitting the manifesto commitment to deliver over two million extra elective care appointments seven months early, and bringing forward a wider programme for NHS reform through the rollout of community diagnostic centres and 10-year plan. The Health Secretary has also sent crack teams spearheaded by top clinicians into areas of high economic inactivity, and the latest data shows waiting lists in these areas have reduced at almost double the rate of the rest of the country. 

The reformed system will be built on a straightforward guarantee: any disabled person or person with a long-term health condition who is claiming out of work benefits will be able to access high quality, tailored help into a job. It will also mean that those who cannot work will always get the support they need. In Scotland and Wales, we will work closely with the devolved governments as we develop this package of support.

The reforms are based on five key principles:

Protecting disabled people who can’t and won’t ever be able to work and supporting them to live with dignity by:

  • Income Protection: Those currently in receipt of UC health will benefit from the increased standard allowance and will not be affected by plans to reduce UC health in future. 
  • Extra Financial Support: For people who receive the new rate of UC health in the future system, we are proposing a new premium for individuals with severe, life-long health conditions who will never be able to work. The details, eligibility criteria and rate of this premium will be set out in due course.
  • Ending Reassessments: Reassessments for disabled people and people with life-long conditions who will never be able to work will be scrapped.
  • Improving Safeguarding Practices: The government will look at how safeguarding practices for the most vulnerable can be improved and improve experiences with the system, working with stakeholders to identify areas for improvement. 

Delivering better and more tailored employment support to get more people off welfare and into work. This includes: 

  • £1 Billion employment package to deliver tailored support for disabled people and those with long-term conditions.
  • New Support Conversations to provide earlier opportunities for people with health conditions to discuss work goals and available help.
  • Investing in the Youth Guarantee by delaying access to UC health element until age 22 and reinvesting savings into work support and training for young people.

Stopping people from falling into long-term economic inactivity through early intervention and support by:

  • Access to Work Scheme: We will consult on improvements to help people start and stay in work with reasonable adjustments including aids, appliances and assistive technology. These would be the first substantive changes to Access to Work since its introduction in 1994
  • Unemployment Insurance: We will reform contributory benefits (ESA and JSA) into a single, non-means tested, time-limited benefit for those who have paid into the system to ensure people get the support they need to find a new job that makes the most of their skills, contributing to a dynamic and productive economy.

Restoring trust and fairness in the system by fixing the broken assessment process that drives people into dependency on welfare by:

  • Scrapping the WCA to end the labelling of people as either ‘can or can’t work’ and consulting on a new single assessment. Under the new system, any extra financial support for health conditions (including PIP, ESA or UC health) will be assessed via a new single assessment which will be based on the PIP assessment – considering on the impact of disability on daily living, not on capacity to work.
  • Increasing Face-to-Face Assessments for PIP and the WCA to improve the quality of assessment decision while ensuring we continue to meet the needs of those with who may require a different method of assessment.
  • Longer term reform of the PIP Assessment – In the long term we will set out broader reforms to the PIP assessment, and intend first to carry out a review involving experts and stakeholders to adapt and improve it.
  • Right to Try Guarantee: which will ensure someone trying work or on a pathway towards employment will never lead to an immediate reassessment or award review.
  • Restarting Mandatory Reassessments: We will reintroduce reassessments for incapacity benefits, with exceptions for those who will never work and those under special rules for end-of-life care. Reassessments have largely been switched off since 2021, leaving people stuck on benefits when they could be helped into work and to improve their quality of life.

Ensuring the system is financially sustainable to keep providing for those who need it most by:

  • Changing PIP Eligibility:  PIP will be targeted more on those with higher needs by requiring a minimum of four points on one daily living activity, in addition to the existing eligibility criteria.. DWP will work with DHSC to ensure that existing people who claim PIP who may no longer be entitled to the benefit following an award review under new eligibility rules have their health and eligible care needs met. The government is consulting on how best to achieve this.
  • Rebalancing Universal Credit: by improving the Standard Allowance to provide more adequate support. The government plans to raise the Standard Allowance above inflation by 2029/30, adding £775 in cash terms annually. This aims to avoid people having to choose between employment or adequate financial support. This change addresses the current issue where the health element rate is double that of the standard allowance, creating an incentive for people to prove they are unfit to work to claim the health element and access greater financial support.

Helen Barnard, director of policy at Trussell, said: “We’re deeply concerned by the cuts announced to disability payments today.

People at food banks have told us they are terrified of how they might survive. We welcome the positive proposals from the Department for Work and Pensions to boost the basic rate to Universal Credit and invest in employment support. However, we fear these steps will be undermined by a Treasury drive to make short-term savings.

“Huge cuts risk pushing more disabled people to the doors of food banks, and will have devastating consequences for us all. The UK government was elected on manifesto pledges to end the need for emergency food parcels. This isn’t what people voted for. 

“Disabled people are already three times more likely to face hunger, and three quarters of people at food banks are disabled or live with someone who is. Our social security system should be rooted in justice and compassion, able to be there for us all, especially when we need it most. 

“This isn’t a done deal. With at least a year before any cuts come into force, there’s still time for the Prime Minister and Chancellor to rethink and make good on today’s promise to restore trust and fairness in the social security system.”

The TUC said: ’11 General Secretaries of our trade union affiliates have written to the government to raise “profound concerns” about today’s welfare cuts targeted at disabled people. The labour movement must stand together with campaigners, charities & carers to resist”

#disabilitybenefit

Responding to today’s statement by Liz Kendall MP, Poverty Alliance policy & campaigns manager Ruth Boyle said: “People in the UK are desperate for a government that delivers a just and compassionate country.

“They want to see an end to deepening poverty, debt, destitution, and hunger in their communities. Many will be distressed, disappointed, scared, and angry at today’s announcements.

“The plans to cut the health element of Universal Credit are wrong and unjust. Cutting vital financial support to disabled people won’t help them into paid work – but it is likely to move them towards poverty.

“Equally unjust is the idea of making it virtually impossible for under-23s to get Universal Credit health support. The Government is punishing young people who aren’t fit for work simply because of their age.

“These changes are driven by a desire for financial cost savings, rather than helping people access the support they need. Positive proposals like personalised support to help people into work and a Right-to-Try will be undermined by cuts which force people into further and deeper poverty.

“Personal Independence Payments are a vital part of the social security system, and even though we have a replacement Adult Disability Payment in Scotland, there are still many people here who are on PIP.

“These social security benefits support people’s basic freedom – whether they are in work or not. They help cover some of the extra living costs that are forced on disabled people. The Government now plans to make it harder for them to get that vital support, denying them a full place in society, and undoubtedly pushing many towards debt and destitution.

“We urge the Scottish Government to maintain its commitment to justice and compassion, and to make sure the Adult Disability Payment still supports the freedom and rights of disabled people.

“It is shameful to try to balance the books on the backs of disabled people and households that are already struggling to keep their heads above water. Instead, the Government should do the responsible thing and use their tax powers to unlock our country’s wealth for investment in a strong social foundation.

“And they can scrap their self-imposed fiscal rules with a plan to help everyone build a better life for their households, and a better future for our country.”

Commenting on the Green Paper’s plans for social security reform announced by the government today (Tuesday), TUC General Secretary Paul Nowak said: “During 14 years of Tory failure, too many people were written off. Millions of workers have been left without proper support to move into work or progress in good jobs, and too many people with disabilities or ill health have not had access to the support they need. 

“But change must be done in the right way. While we welcome the decision not to freeze PIP, this package will still lead to significant cuts in entitlements for some disabled people. 

“As well as ensuring that those with the most severe disabilities are protected, we urge ministers to reconsider the scale of proposed cuts in disabled people’s incomes. 

“Disabled people who are unable to work must not be pushed further into hardship.”

Commenting on the Green Paper’s wider proposals, Paul added: “Action to boost access to quality employment programmes and ensure that Jobcentre work coaches can provide quality and meaningful support is welcome. As too are proposals to strengthen contributory benefits. 

“This needs to be accompanied by ongoing investment in the NHS, including mental health services. Better healthcare can transform lives. 

“The government’s plan to Make Work Pay is also crucial to driving up the quality of jobs in Britain and ensuring more people have access to decent work.”

Transport union, RMT has criticised Labour’s decision to cut welfare spending by up to £5bn by 2030.

Eddie Dempsey RMT general secretary said: “Welfare cuts target people who rely on support to survive, including disabled people, carers, the unemployed, and those in insecure work.

“For the past 40 years our economy has been marked by low investment, wage suppression and super-high profits.

“Our economy needs to be fundamentally restructured so we can invest in housing, infrastructure and services to create well paid jobs and provide an adequate safety net for those who fall on hard times.

“There is an enormous amount of wealth in this country and the Labour government should be using the economic levers at their disposal to capture it from the rich.

“Billions could be recouped by the treasury through levies on wealth, the closure of tax loopholes, and extracting excess corporate profits.

“RMT stands with all in our working-class communities, including the disabled and unemployed.”

OXFAM Scotland tweeted: ‘Just a reminder there’s no shortage of money in the UK, just a shortage of political will to go out & tax it.

‘While more people risk being locked into hardship/deeper poverty, the ballooning bank balances of the UK’s richest millionaires/billionaires get off virtually scot-free’

The Disability Policy Centre’s Interim Director of Research, Arun Veerappan, response to the Government’s release of the Green Paper this afternoon.

Green MSP slams Labour betrayal of disabled people and calls on MPs to fight back 

Scottish Green’s co-leader and MSP for Lothian region Lorna Slater is calling on Labour MPs to fight back on the inhumane cuts that the UK government are proposing to hit their fiscal targets. 

In the Westminster government’s latest controversial move, it has announced a package of changes expected to affect some of the UK’s most severely disabled people. The measures will deny benefits for thousands of people across the country. 

Lorna Slater MSP for Lothian region said:  “These cuts will make a cruel and dehumanising system even more brutal than it already is. They will spread pain and misery across every community.

“ This decision is immoral. You can’t cut £5 billion of support without causing real harm to disabled people.  

“ None of this is inevitable. Labour could choose to bring in a wealth tax that collects a fair and justified share from the richest people to invest in the services we all rely on.

“Labour are doubling down on the Tory idea that you can work your way out of disability. They are sending a cruel and dangerous message that only people who can boost our economy are worth supporting. They promised an end to austerity, but this goes even further than anything that the Tories ever dared.” 

“The fact that they are choosing to punish the people with the least tells us everything we need to know about Labour’s values. The millions of people who waited 14 long years to get rid of the Tories deserve so much better than this.” 

‘Cuts to benefits announced today have clearly been motivated by a desire to make short-term savings to meet arbitrary fiscal rules, says New Economics Foundation’s Head of Social Polict Tom Pollard.

‘They’re not going to help ill and disabled people, they’re only going to create more problems.’

Former Labour Party leader and now Independent MP Jeremy Corbyn said: “This is a seminal moment: a Labour government cutting disability benefits. Not just continuing Tory levels. Cutting.

“This comes after a week of speculation, itself an act of cruelty by a government toying with people’s dignity. These cuts are disgraceful – and will cost lives.”

Scope charity commented: “These plans will be catastrophic for disabled people’s living standards. Nearly half of families living in poverty already include someone who is disabled. Now the government is choosing to penalise some of the poorest people in our society.

“We welcome the investment in tailored, non-compulsory employment support. But ripping £5 billion out of the benefits system by 2030 will completely undermine this positive step.

“Countless disabled people, charities, MPs, and experts are urging the government to think again. And we’re not backing down. The consultation is likely to receive an overwhelming response. We urge the government to listen to disabled people and think again.

“Over the coming days, we’ll analyse all the details in the government’s plans. We’ll then share more information about what these changes mean and who could be affected as soon as we can. We’ll also share ways you can have your say in the consultation.

‘This is an especially worrying time for many disabled people. If you’re concerned about these changes, you can contact our helpline for advice and support.

Call us free on 0808 800 3333, or visit our website for more ways to get in touch:

https://scope.org.uk/helpline

‘If you need to talk to someone about how you’re feeling, day or night, Samaritans are here to help. Call 116 123 for free, or visit their website https://samaritans.org “

Money and Mental Health response to government welfare green paper

Today the government has published its welfare green paper, which outlines its proposals to reform the welfare system.

In particular, the green paper sets out plans to make it harder for people to qualify for Personal Independence Payments (PIP) — a benefit which people with disabilities and long-term ill-health can claim to help cover the extra costs associated with their disability, and which is not connected to work. In addition, people aged under 22 will not be able to qualify for the health top-up element of Universal Credit.

The government has also announced £1bn additional funding for personalised employment support to help people with disabilities move into work, and that people receiving benefits will be given a “right to try” work without losing their benefits entitlement.

Commenting on the proposals, Helen Undy, Chief Executive of the Money and Mental Health Policy Institute, said: “PIP is an absolute lifeline for thousands of people with mental health problems.

“It can be the difference between being able to afford basic things like a phone to call your crisis team or help to clean your home, or living in disarray and increasing isolation. Making it harder to access will jeopardise people’s financial security and cause serious distress, which won’t set up people to go back into work and to thrive. 

“These changes will mean that needing help to wash or get dressed because of your mental health wouldn’t be enough to qualify for PIP. The government says it will ensure people with ‘genuine need’ aren’t affected, but we’re really concerned that these new reforms will take us further back to the days when people with mental health problems were treated as less worthy of help than those with physical health issues.

“The new ‘right to try’ a job without losing the benefits is welcome, as is the funding for personalised employment support for people with disabilities or health conditions. But introducing these measures alongside cuts to PIP and stopping young people from getting incapacity benefits will do more harm than good.

“It is a short sighted approach that will have a devastating impact on many people’s finances and mental health, and we urge the government to rethink these plans.”

Mikey Erhardt, Policy Officer at Disability Rights UK, said: “The minister stood up today and made clear that, after months of rumours, media speculation and spin, these reforms are not about supporting Disabled people into work, but making brutal and reckless cuts of £5 billion. That is up from £3 billion just a few weeks ago.

“The rise in claims is driven by the increase in the retirement age, record NHS waiting lists, inadequate education and mental health support for young Disabled people and a complete failure to tackle the disability employment and pay gaps. Yet  the government has decided to create a rhetorical smokescreen around the depth of cuts it’s going to make.

“The government intends to bar young Disabled people from receiving the Universal Credit health component until they are 22. That is alongside their promise to significantly increase assessments at scale without making the assessment process safer for those going through the system right now.

“These measures mark dangerous cuts for all Disabled people. Furthermore, altering the PIP award criteria will make it harder for those who need support to qualify.

“The minister’s assertion that 1000s more face-to-face assessments will be more accurate is laughable; we know that in-person assessment causes more stress and worry and often leads to inaccurate findings from assessors.

“Let’s be clear: there is nothing ambitious about cutting support from those who need it and that’s what today’s announcements were really about. Rising claims for personal independence payment reflect not a problem with Disabled people but rather reflect successive government’s failure to do even the bare minimum to create a more equitable society.”

Mental Health Foundation responded:

Responding to the Government’s proposed changes to welfare and work announced today, Carers Trust’s CEO, Kirsty McHugh, said: “In the midst of today’s announcements on welfare reform, we cannot lose sight of the nation’s carers. Two-thirds of carers have been forced to give up work or cut back on hours because of their caring role.

“Many would like to work if they were able to access flexible jobs and the right employment support – sadly this is rarely on offer. But for many carers, work isn’t an option – either because of the toll of their caring role or their own ill health.

“Proposals to tighten eligibility criteria for benefits will strike fear into the heart of many carers. Around half a million carers look after someone receiving Personal Independence Payments (PIP), and nearly 150,000 people rely on both PIP and Carer’s Allowance.

“Disabled people and their carers are already among the most vulnerable in our society and more likely to live in poverty. Reducing their access to a financial safety net could push them over the edge.

“Carers already prop up our ailing health and social care system and we cannot introduce welfare changes that leave carers again picking up the pieces. We therefore welcome the commitment in the Green Paper to consider the impact of these changes on carers.”

More than half of young carers aren’t getting the breaks they need, alarming survey finds

Young carers take open top bus to Westminster on Young Carers Action Day to call on MPs and decision-makers for more support

  • Almost a quarter of young carers say no one else can provide the care they do
  • Two-fifths worry too much about the person they care for to take a break
  • 72% miss out on the school holidays, nearly half miss out on friendships and almost one in five say they’re missing time out of their education

More than half of young carers can’t get a regular break from caring, while almost a quarter say there’s no one else to provide the care they do, an alarming survey has found.

The findings have been released by Carers Trust for Young Carers Action Day on 12 March. The time young carers spend on their caring role mean young carers often miss out on education, friendships, holidays and many other things their classmates take for granted, the survey showed.

The survey of 423 young and young adult carers found nearly one in five rarely or never get a break (17%), while 40% said they got one only some of the time. Just 15% said they could take a break whenever they wanted.

Asked what stopped them getting a break, almost a quarter (23%) said there was no one else to provide the care they give. Two-fifths (40%) said they worried too much about the person they care for to take time out from looking after them.

One young carer said: “I feel bad for taking breaks and when I have time for myself I’m always thinking that I could be doing something else to help out. It’s isolating because I can’t meet up with friends. I can text but it’s just not the same. Everyone’s planning their holidays and trips but I know I can’t go on holiday.”

Almost three-quarters of young carers (72%) said they miss out on the holidays because they provide care, the survey showed.

Many also felt they were shut out of a lot of the things most other children get to do. Nearly half (49%) miss out on friendships, and 46% on hobbies. Almost two-thirds (65%) said they lacked time to themselves and nearly one in five (19%) felt they were missing their education.

Young Carers Action Day is an annual campaign organised by Carers Trust with its network of local carer organisations.

It aims to highlight the challenges faced by the UK’s one million young carers (under-18s) and the hundreds of thousands of young adult carers aged 18-25. At least 16,000 young carers in the UK, some just five years old, are caring for 50 hours a week or more, according to the most recent census data.

This year the theme of Young Carers Action Day is “Give Me A Break”. It was chosen by young carers themselves to show their need for respite but also to be given a chance in life by schools, employers and politicians.

Carers Trust is calling on the UK Government to ensure all young carers have access to a properly funded break from their caring role. Politicians, education providers, employers and other organisations are also being asked to sign the Young Carers Covenant, a pledge to help young carers improve their lives.

Kirsty McHugh, Carers Trust’s CEO, said: “Across the UK, children as young as five are spending huge amounts of their free time caring for others. We know this can have a devastating effect on their education, wellbeing and future prospects. It is simply wrong that, as a country, we are asking so many children to take on so much.

“Those in power need to give young carers a break. If we want young people to thrive, as well as those for which they care, we need to give these young people the chance to take time out from their caring duties.”

The Children’s Commissioner Dame Rachel de Souza said: “As Children’s Commissioner, I know from speaking to young carers that they provide essential support to their family members and take on extra responsibilities to look after their loved ones, sometimes at a cost to their own education.

“Young carers often have to navigate extremely challenging circumstances alone without extra support, which can have a big impact on their lives and wellbeing.”

“I am collecting evidence from schools and colleges about how they support young carers in their own settings, to build a national picture of how these children’s extra responsibilities are being recognised. We should be no less ambitious for young carers than we are for all children.”

On Young Carers Action Day, Carers Trust will be giving a group of young carers a break by taking them on an open top bus tour in London. The bus will be stopping at Westminster where politicians are being invited to hop aboard, meet the children and hear their concerns directly.

The day before, young carers from Hartlepool Carers Centre will hand in a letter to 10 Downing Street. It will ask for the Prime Minister’s support for the Young Carers Covenant and cross-government action to improve opportunities for young and young adult carers.

In Scotland, there will be a mass gathering of young carers at Holyrood where they will meet MSPs, share their experiences and call for more support.

There will also be a roundtable discussion with decision-makers about better access to breaks for young carers. A Young Carer Action Day Parliamentary Debate will take place in the Scottish Parliament Chamber with over 100 young carers in attendance.

In Wales, Carers Trust’s Youth Council of young carers supported by local carer organisations across the country will join together at the Senedd.

They’ll be quizzing MSs about how they can work towards a country where young carers are supported to access the short breaks they need and they’ll have a chance to hear from former young carers about the breaks they’ve had in life in their careers and education. 

For the fifth year in a row, creative arts charity Create and Carers Trust are partnering for a special showcase of artwork made by young carers during four Young Carers Action Day 2025 projects. These have taken place across the four nations of the UK.

The online showcase is on the “Give Me a Break” theme and highlights the importance of giving young carers time off from their caring responsibilities to look after their own wellbeing.

This year’s showcase will feature puppetry, photography, prints and collages specifically created for the day by young people in England, Northern Ireland, Scotland and Wales.

Scottish teenagers are missing out on carers benefit

Young people may be missing out on help because they don’t realise they’re carers

On Young Carers Action Day (13 March) teenagers who look after others are being urged find out if they’re eligible for a grant available only in Scotland. 

Since being introduced in 2019 by the Scottish Government, Young Carer Grant has delivered over £3 million to over 6,600 teenage carers.    

However a leading carers charity says many young people who look after others do not recognise themselves as carers, as they see the support they give as just part of family life. As a result, they do not know they’re entitled to benefits. 

Scottish Government figures suggest around 25% of those eligible for Young Carer Grant in 2022-23 did not apply.  

The Carers Trust has joined Cabinet Secretary for Social Justice Shirley-Anne Somerville to urge teenagers who look after others to recognise their vital caring role and to apply for the support available to them. 

Young Carers Grant, paid by Social Security Scotland, is available to those aged 16-18 who spend 16 or more hours a week looking after someone who gets a disability benefit. 

The grant was introduced in October 2019 by the Scottish Government to help young people with caring responsibilities and is part of a wider package of support for young carers funded by the Scottish Government. 

Paul Traynor, Head of External Affairs (Scotland) at Carers Trust, said: “There are lots of young people caring for a relative, friend or member of their community who don’t realise they’re young carers and could be eligible for financial support.

“They might help someone get dressed in the morning, help with shopping or provide emotional support, for example. The person they look after could have a disability, illness or addiction.  

“Young carers often view this as ‘just helping out’ or ‘part of family life’. It could even be expected as part of their culture. It is vital that all young carers know about their rights, what support they are entitled to, are able to have a life alongside caring and are helped to reach their full potential in all aspects of their lives.” 

Cabinet Secretary for Social Justice Shirley-Anne Somerville said: “I’m pleased that the grant we introduced has been able to deliver over £3 million to young carers in Scotland who are balancing their vital caring role with study or work.  

“However, we know many young people who look after others see the amazing work they do as part of life and do not recognise themselves as carers and so do not realise they can get financial support. 

“I urge any young person aged 16, 17 or 18 who looks after someone else to check if they’re eligible for Young Carer Grant and to apply if they are. It’s money they’re entitled to. 

“The payment is designed to recognise the important role of unpaid young carers and allow them to take part in the same activities as their peers, whether that’s driving lessons, going on a weekend away or buying new clothes.

“The money can be spent on whatever the young person wants.” 

Zainab, who is a young carer said: “I spent my grant on a piano keyboard. I’ve loved to do piano for a very long time but I didn’t have enough funds to buy one as they’re very expensive.

“So I used my Young Carer Grant to buy one and I love it!” 

Young carers may also be eligible for Carer Support Payment from Social Security Scotland or Carer’s Allowance from the Department for Work and Pensions. 

Carer’s Allowance Supplement is also available as an extra payment for people in Scotland who get Carer Support Payment or Carer’s Allowance on a particular date each year.

These dates are available on mygov.scot/carers-allowance-supplement.  

Over 90% of unpaid carers ‘ignored’ 

  • 91% of unpaid family carers feel ignored by the Government.
  • Almost nine out of ten (86%) unpaid carers either agree, or agree strongly, that successive governments have ignored the needs of unpaid carers for a long time.
  • 84% of survey respondents disagreed, or disagreed strongly, with the statement ‘I have confidence in the Government’s ability to improve the lives of unpaid carers’.
  • 49% of survey respondents said they’d had to use their personal savings because of their caring role.
  • 51% of survey respondents said they’d had to give up on hobbies or personal interests because of their caring role.

Findings from a new Carers Trust survey provide alarming evidence of a deep-rooted failure by successive governments to understand and meet the basic support needs of millions of people struggling to provide unpaid care for a family member or friend.

There is a near total sense among survey respondents of feeling abandoned by Government over a long time. Almost nine out of ten (86%) of unpaid carers agreed, or strongly agreed, that ‘successive governments have ignored the needs of unpaid carers for a long time’.

And only 1% of respondents (just 12 out of more than 1,500 unpaid carers who completed the survey) felt that politicians understand unpaid carers.

A separate poll of the UK public by research company Opinium for Carers Trust found that UK adults support the need for unpaid carers to receive more support from the Government.

According to the Opinium poll:

  • Four in five UK adults (80%) agreed that the Government needs to do more to support unpaid carers.
  • More than two thirds (68%) of UK adults agreed that all unpaid carers should receive financial support from the Government.
  • Almost half (46%) of UK adults did not agree that Carer’s Allowance is a fair level of support for an unpaid carer looking after a family member or friend for a minimum of 35 hours a week.

Unpaid carers being driven into acute financial hardship

Carers Trust’s survey results also demonstrated how many unpaid carers are being driven into acute financial hardship because of their caring role, with inadequate financial support from successive governments widely cited by survey respondents in their written responses.

Of those unpaid carers responding to a question on whether they had had to give up paid work because of their caring role, almost half (48%) said they had.

Financial pressures arising from giving up paid work are further exacerbated for many unpaid carers unable to claim Carer’s Allowance. The survey found that, of those responding to a question on whether they were receiving Carer’s Allowance, more than half (51%) said they were not.

A common complaint from survey respondents was how family carers of pensionable age stopped receiving Carer’s Allowance because they were receiving pensionable income, even though they were caring for a family member round the clock:

“I did [receive Carer’s Allowance] until I reached my state pension age, but as they class a pension as a benefit and you cannot get two “benefits” it was taken away. I have an underlying right to it though…Caring gets harder as you get older.”

Many unpaid carers receiving Carer’s Allowance complained that payment of £67.60 a week inadequately recognised the number of hours they spent on their caring role. They also felt the payment was not enough, given the complexity of needs many carers have to deal with. One carer commented that, after adding up all the hours he spent caring for his wife, he was earning just 50p an hour from Carer’s Allowance.

Responding to the survey findings, Carers Trust’s Executive Director of Policy and External Affairs, Joe Levenson, said: “Day in day out millions of unpaid carers play a crucial role, caring for family and friends and propping up our creaking social care system. But it’s clear from our survey that this is at great personal cost, and that unpaid carers are struggling to cope and feel marginalised and ignored by government.

“Reading the anguished responses from unpaid carers you get an overwhelming sense of how so many have been brought to breaking point. Unpaid carers are united in saying that they feel ignored and let down by the failure of successive governments to improve their lives, including through wide-reaching social care reform that could ease the responsibilities of care placed so heavily on family carers.

“That’s why the all too familiar practice of paying lip service to supporting carers while looking the other way must stop now. We welcome the UK Government’s recognition of the importance of unpaid carers in the recent adult social care white paper and are committed to working together to improve carers lives, but unpaid carers need ambitious and transformational change and they need it now.

“The Government could let carers know they have been heard straight away by introducing a national strategy for unpaid carers, to ensure their needs are a priority across government.

“And they should act on what unpaid carers have told us, putting them at the heart of this strategy so it’s able to deliver the transformational change that’s desperately needed – such as boosting Carer’s Allowance and making it easier to claim and funding regular breaks and respite for carers.”

In response to the survey findings, and on behalf of the carers who told us what was needed, Carers Trust is calling on Government to develop a new UK Government Strategy for Carers. ;

The strategy should include: improved availability of statutory care and support for people with care and support needs of all ages, so that unpaid carers’ caring roles are sustainable; improved support for unpaid carers themselves, including regular breaks and respite so unpaid carers can live a meaningful life alongside caring; a reform of Carer’s Allowance so that unpaid carers are better protected against financial hardship.

Carers Trust’s full set of recommendations for Government, as well as comprehensive findings from the survey, are available in its report, Pushed to the Edge:

pushed-to-the-edgeDownload

Emergency Fund to provide a lifeline for unpaid carers struggling to cope with Coronavirus

  • There are an estimated 7 million unpaid carers in the UK providing care to family members and friends with long-term illnesses, disabilities, poor mental health or substance addictions.
  • Hundreds of thousands of carers are providing care round-the-clock, experiencing isolation and poor physical and mental health as a result.
  • Huge upsurge in queries from carers regarding concerns caused by Coronavirus.

Carers Trust is launching today an emergency appeal to help unpaid carers who are struggling to cope with the enormous impact of Coronavirus and self-isolation while still providing care and support to family members and friends.

All donations made online by the public will go straight into Carers Trust’s Carers Emergency Fund. The Fund will be used to ramp up Carers Trust’s existing grants programme, providing more small grants more quickly to those carers who need them most. It will provide grants of any amount up to £300 directly to carers, helping them overcome the hurdles that Coronavirus is throwing up on a daily basis.

Carers Trust has been receiving a huge upsurge in communications through its Network from carerslooking after people, young and old, whose lives have been made extremely challenging as a result of the Coronavirus lockdown. 

One Carers Trust Network Partner has reported a 100% increase in the number of emails it is receiving from carers since the outbreak of Coronavirus. The same Network Partner reports a 177% increase in people visiting its website (an average of 466 visitors per day). All communications from carers, whether calls or emails, are prompted by concerns about Coronavirus.

Examples of problems described by carers

These problems will be addressed through grants made available by Carers Trust to carers in need:

  • Lack of money for petrol from a carer whose 98 year-old father was released from hospital after 28 days battling Coronavirus. The carer did not want paid care workers coming into the house and risking re-infection. With her only income being Carers Allowance of £67.25 per week, however, she could not afford to make the 18 mile round-trip three times a day to care for him properly.
  • The lack of money to meet the cost of purchasing a small tablet so that an unpaid carer can keep in regular contact with the person they care for, reducing their loneliness and isolation and ensuring their health doesn’t deteriorate.
  • A carer had no money to buy a cooker after ordering one from Bright House just before they went into administration. She had no further funds to get one in any other way. The carer has three children with disabilities who need very particular foods.

Launching Carers Trust’s emergency appeal, CEO Gareth Howells said: “Unpaid carers are the backbone of our society, providing huge levels of care to family members that are some of the most vulnerable people in our society. But all too often the commitment and sacrifices they make go unnoticed.

“At Carers Trust we are constantly hearing about the daily struggles of unpaid carers and how their lives have now been thrown into turmoil as a result of Coronavirus.

“Some unpaid carers simply cannot find food because food banks have closed. Others are spending considerable amounts of money caring for their family members because it’s not safe for the social care workforce to do so.

“That’s why we are launching the Carers Emergency Fund. It will increase the number of grants we are able to make and ensure this happens as quickly as possible to ease the pressures on unpaid carers.”

“This Fund also shows Carers Trust’s determination to stand by these heroes, keeping them afloat so they can continue to care for their loved ones. I’d urge anyone able to do so to visit the Carers Trust website to donate and show their support for unpaid carers who really are the backbone of our social care system.”

Sir Trevor Pears CMG, Executive Chair, Pears Foundation, added: “The Coronavirus crisis has made an already difficult situation for carers far, far worse.

“That’s why we think it is so important to support the Carers Emergency Fund which will significantly increase funds that can speedily be turned into grants for carers. These grants will serve as a real lifeline at this time of crisis, getting financial support swiftly to vulnerable unpaid carers.”

Count Me In!

Young carers call for educational equality and an end to isolation

Thousands of children and young people across the UK will take part in activities today to highlight the need for far more support for young carers from government, schools and local authorities.

The call comes on Young Carers Awareness Day, an annual event led and organised by Carers Trust. The day aims to raise awareness of the pressures experienced by young carers – children who need to look after someone in their family, or a friend, who is ill, disabled or misuses drugs or alcohol.

Count Me In! Young carers call for educational equality in UK schools

Scottish Government figures estimate the number of young carers in Scotland to be around 29,000. However, further research by Carers Trust shows that as many as one in five secondary school children may be a young carer. For many, the caring journey begins long before they reach secondary school.

But whatever their age, the need to provide care can have a negative impact on the wellbeing, education and future prospects of young carers. Caring responsibilities all too often lead to an inability to complete homework, late arrival at school or even non-attendance.

Research indicates that young carers on average receive lower grade in their public exams than their peers who do not have caring responsibilities at home.

But despite the challenges faced by young carers, far too many remain unidentified and hidden away from support. These problems are less likely to build up if young carers are proactively identified as early as possible.

Once identified, young carers’ circumstances at home can be better understood. This will help schools ensure that young carers are receiving the additional support they need to address their vulnerability to lower than average educational attainment.

This is why Carers Trust has made Count Me In! the theme for this year’s Young Carers Awareness Day.

To ensure as many young carers as possible are identified in future, Carers Trust and young carers are calling on:

  • compulsory education providers to acknowledge their unique position to identify young carers at an early stage so appropriate support can start as soon as possible; and to recognise young carers as a vulnerable group of learners who require additional support so they can engage in their education and go on to lead enjoyable, fulfilled lives.
  • The Scottish Government to monitor implementation of legislation relating to young carers, including how many young carers are identified and supported; and to ensure that local authorities receive appropriate funding so they are able to fulfil their statutory duties to provide young carers and their families with the support they need; and collect attendance and attainment data on all identified young carers in education.

Gareth Howells, Carers Trust CEO, said: ““I know as a former young carer myself that it’s hard enough for young carers to have to juggle all the pressures of school and exams with caring for family members.

“They are often dealing with complex problems which many adults would struggle to deal with – from disability and terminal illness to mental health problems, alcoholism and substance misuse.

“The need to support hundreds of thousands of young carers right across the UK could not be clearer. But far too often the needs of young carers are ignored, leaving them unnoticed and unsupported.

“Our colleagues in local authorities, education and government need to be doing far more to identify young carers at as early a stage as possible so they can achieve their potential at school and lead happy, fulfilled lives.”