Investment to help children and families access support
Children, young people and their families will benefit from £7.6 million funding to strengthen and expand local neurodevelopmental support.
The Scottish Government funding, which will be distributed to local councils, will mean more flexible support is provided to children, young people and their families to get the help they need, when they need it, informed by local circumstances.
It is part of wider work by the Scottish Government, local authority body COSLA and partners to improve neurodevelopmental support for young people across health, education, local government and the third sector, as set out in the new Programme for Government.
This includes the work of the Children and Young People’s Neurodevelopment Taskforce, alongside other action to improve support and services.
Announcing the funding on a visit to Windygoul Primary School in East Lothian, Minister for Mental Wellbeing Maree Todd said: “Demand for neurodevelopmental support has increased significantly in recent years and I want families to access the help they need, when they need it.
“This £7.6 million investment will help local areas build on existing services and further invest in the support that works for their communities.
“There is no single action that will solve all the challenges people face in getting timely and consistent support. This investment is just one part of the wider work to improve neurodevelopmental support.
“Through our continued partnership with local government, health services and the third sector, we will ensure a more joined-up, sustainable system of support for neurodivergent children, young people and their families.”
COSLA Spokesperson for Children and Young People, Councillor Tony Buchanan said: “Along with our wider partners, Local Government has seen rising demand for support for children and young people’s neurodevelopmental needs both pre, post and regardless of diagnosis.
“We very much recognise the value of early, neuro-affirming support for children, young people and their families in preventing the negative impacts caused where children’s needs are not met and helping them achieve their full potential.
“A whole system response is essential to support children and young people with neurodevelopmental needs and their families . We look forward to continuing to work with our cross sector partners to deliver improved outcomes as this work progresses.”
Neurodevelopmental conditions include autism and ADHD.
The Health, Social Care and Sport Committee published its report today into Attention Deficit and Hyperactivity Disorder (ADHD) and autism pathways and support.
The Committee calls for urgent action to deliver a national plan that ensures autistic people and people with ADHD can access clear, consistent pathways to support across every health board in Scotland.
The Committee welcomes the Scottish Government’s commitment to accept the recommendations in the National Autism Implementation Team (NAIT) Adult Neurodevelopmental Pathways report.
It also notes the Scottish Government’s intention to review implementation of the National Neurodevelopmental Specification for Children and Young People through its new task force.
The Committee expresses concern that many people wait years for neurodevelopmental assessments and that some health board areas have closed waiting lists. It emphasises that long waits harm individuals and may prevent people from making a full contribution to society.
The unprecedented demand for neurodevelopmental assessment is recognised by the Committee and the need to put certain thresholds in place before a referral is made. But the Committee warns that this approach can be seen as gatekeeping and can cause delays to accessing assessments and support.
The report further highlights evidence that long waiting times can push people into crisis, which can increase complexity of the support needed and put additional pressure on services. It calls on the Scottish Government to work with health boards to deliver a shift towards early, progressive support, in line with the principles of the Population Health Framework.
The Committee also heard evidence that long NHS waiting times can push people towards private diagnosis at significant cost, risking a two-tier system.
The Committee calls for a comprehensive review of assessment processes across all areas, leading to a National Standard that guarantees consistency, responsiveness and support across Scotland.
Given current waiting times, the Committee calls for consistent high-quality communication with people on waiting lists, including accurate, supportive, up-to-date and neuro-affirming information that meets the needs of each individual.
Countering claims that neurodevelopmental conditions are subject to over-diagnosis, the report instead notes evidence that rising demand for assessments reflects historic under-diagnosis and improved understanding of these conditions. The report recognises that diagnosis can validate lived experience and help people access adjustments, support and medication if needed.
While the Committee welcomes the Scottish Government’s commitment that diagnosis should not be a prerequisite for support, it remains concerned that, for many individuals, the lack of a formal diagnosis can create a barrier to accessing support. The Committee calls on the Scottish Government to set out actions to prevent diagnosis status becoming an artificial barrier to receiving support.
To improve fairness and consistency, the Committee calls for a plan to deliver mandatory training for everyone involved in making referrals to neurodevelopmental pathways and all health and social care staff in patient-facing roles.
The Committee supports a whole systems approach across health, social care, education and other sectors to improve awareness, reduce stigma and strengthen support for those with neurodevelopmental conditions.
It calls on the Scottish Government to set out what it is doing to advance whole society action, including workforce planning, funding distribution that supports integration, inclusive education, support for families with multiple neurodivergent members, and stronger collaboration across public services.
On publication of the report, Clare Haughey MSP, Convener of the Health, Social Care and Sport Committee said:“Our inquiry has shone a light on the myriad issues those with neurodevelopmental conditions face in accessing and receiving support from Scotland’s NHS.
“We acknowledge the huge rise in demand for assessment and diagnosis and the huge pressure this places on services. But we are concerned that inconsistent care pathways and a lack of support can leave some feeling isolated and unable to access the support they need.
“We are concerned to have heard evidence of long waits for assessments or closed waiting lists, meaning some individuals are unable to access support due to where they live or because they haven’t been diagnosed with a neurodevelopmental condition. It’s clear things need to improve.
“We’re calling for urgent delivery of a national plan so that autistic people and/or people with ADHD are able to access clear, consistent pathways to support regardless of where they live in Scotland.
“We’re also calling on the Scottish Government and health boards to work together to undertake a comprehensive review of the assessment process in order to introduce a National Standard for assessments that guarantees consistency and quality of access throughout Scotland.
“Our Committee wants to see a whole systems and whole society approach to ensure autistic people and/or people with ADHD can access equitable and timely pathways to assessment, treatment and support across Scotland.
“Thank you to all of the individuals who shared their personal experiences of ADHD and autism with us and helped inform our inquiry.”
Other findings in the report:
The report also stresses the need for consistent national data on referrals and waiting times. The Committee calls for steps to enable routine quarterly reporting of data on referrals and waiting times for autism and ADHD, underpinned by national guidance, and for longer-term work to culminate in a comprehensive dashboard.
The Committee pays tribute to third sector organisations that support people who have not received, or are waiting for, diagnosis. It welcomes ongoing commitments such as the Autistic Adult Support Fund and calls for clearer plans to place third sector funding on a sustainable long-term footing.
Both ADHD and autism are neurodevelopmental conditions.
ADHD is characterised by a group of symptoms that includes difficulty in concentrating, hyperactivity and impulsive behaviour. It affects around 5% of school-aged children, and between 2.5% and 4% of adults.
Autism Spectrum Disorder (ASD) is a lifelong developmental condition that affects the way a person communicates, interacts and processes information.
It is often characterised by social and communication difficulties and by repetitive behaviours. Current estimates indicate about 1 in 34 people are autistic, just under 3% of the population.
Increased funding to support children and families
Children, young people and their families will benefit from £3.4 million of additional investment to improve access to neurodevelopmental support.
This brings investment in neurodevelopmental supports and services this year to more than £5 million, providing earlier help for families and ensuring people can access support that meets their needs.
More than £1 million is intended to directly support families, including providing access to digital support on neurodevelopmental conditions – including autism and ADHD. A successful hub model developed in Edinburgh will also be expanded to Tayside, bringing together health, education and third sector support for families in one place.
The investment will also help improve services, including testing new approaches to neurodevelopmental assessment and ADHD support for young adults.
Minister for Social Care and Mental Wellbeing Tom Arthur said: “I am determined to drive real, meaningful improvements and deliver the best possible outcomes for neurodivergent people. Demand for neurodevelopmental support and diagnosis has increased significantly in recent years, both in Scotland and globally.
“This additional £3.4 million will improve the help available to families – providing better information, practical support and access to services in their communities. This funding will create the groundwork for additional investment in the future – as proposed in our Budget for next year.
“We want to ensure that children, young people and their families can access the support they need, regardless of where they are on their neurodevelopmental journey.
“A diagnosis is just one part of someone’s experience. What matters most is that people get the right support at the right time, and this funding will help make that happen.”
The investment builds on the additional £500,000 funding announced in June 2025, bringing the total additional investment to £3.9 million in 2025-26.
Funding is being made available for a range of projects, including:
supplementing health board assessment capacity, particularly for young people approaching transition to adult services
providing digital support to 1,000 families through the EPIC Think Learn platform
extending the Yard’s Edinburgh Disability and Neurodevelopment Hub model to Tayside, bringing together support from health, education and third sector services
testing holistic approaches to assessment and support with a new neurodevelopmental research clinic with the University of Glasgow
work to develop and test digital support tools for ADHD for young adults
continuing the Fife children and young people’s neurodevelopmental test of change
and work to better understand support needs of children and young people on health board waiting lists and assist connection of families with local support
Neurodevelopmental conditions include autism and ADHD.
Paracetamol should be taken as directed in the patient information leaflet
Following publication of a new systematic review and meta-analysis in The Lancet Obstetrics, Gynaecology, & Women’s Health which found no evidence that paracetamol use during pregnancy increases the risk of autism spectrum disorder, ADHD or intellectual disability among children, the MHRA has reaffirmed that paracetamol continues to be the safest option for managing pain and fever during pregnancy.
Dr Alison Cave, Chief Safety Officer at the MHRA, said: “Paracetamol remains safe to use during pregnancy. This large-scale analysis of the evidence found no link between taking paracetamol during pregnancy and autism, ADHD, or disability in children.
“Paracetamol has been used for many years and is the recommended first choice for treating pain or fever during pregnancy. When taken as directed, it is safe and effective.
“As with all medicines, pregnant women should speak to their doctor, pharmacist or midwife if they have any questions, and follow the guidance provided with the medicine.”
Paracetamol is recommended as the first-choice painkiller for pregnant women, used at the lowest dose and for the shortest duration.
If pain does not resolve, then patients are advised to seek advice from their healthcare professional.
HealthCare in Mind, a new dedicated service offering private autism, ADHD and mental health assessment treatments and therapies, has launched in Edinburgh to improve access to high quality mental health diagnoses and address the growing wait times for critical mental health support.
With average NHS wait times for autism and ADHD assessments reaching one to two years across the country, HealthCare In Mind provides a much-needed alternative for families and individuals seeking answers and support. The service is now live in Edinburgh and will allow patients to access care instantly through both remote and in-person appointments to suit their needs.
HealthCare in Mind offers a range of mental health services, including fully comprehensive diagnostic assessments for both children and adults, and therapy treatments to manage mental health conditions, including depression, anxiety, post-traumatic stress disorder, obsessive compulsive disorder and mood disorders.
HealthCare In Mind is led by Dr Simon Le Clerc MStJ, and Dr Kate Higham, alongside an expert team of psychiatrists, psychologists and therapists to provide instant access to the highest quality care to those in need.
Dr Simon Le Clerc commented: “Cases of adults and children seeking answers about their mental health, and the way they experience the world have risen dramatically in Edinburgh, and NHS waiting lists are struggling to keep up.
“It is not uncommon for wait times of up to a year for a first appointment for ADHD, autism and mental health assessments, and after assessment there are further waiting lists for accessing therapy treatments to help people manage their conditions.
“By offering private, tailored neurodiversity assessments, we can offer an option to families and individuals in need of a quicker solution. Our ambition for the future is to work with the NHS to support with clearing the waiting lists, but our service is also available for those in need today.”
BUT ALMOST ONE IN THREE PUPILS NOW HAS ADDITIONAL SUPPORT NEEDS
Primary school teacher numbers are at their highest level since 1980 and total teacher numbers have risen by 288, new statistics have shown. The overall number of teachers rose to 52,247, an increase of 1,530 since 2015 and the highest level since 2009.
However a campaign group has expressed concern over support for record numbers of pupils with Additional Support Needs.Continue reading Teacher numbers rise …
An informal parents and carers support group for children with ADHD and Autistic spectrum disorders (it doesn’t matter whether your child is diagnosed or not)
