First Minister confirms Baby Loss Memorial Book to launch in summer

A Memorial Book for those who have experienced a pregnancy or baby loss prior to 24 weeks will be available this summer, First Minister Nicola Sturgeon has confirmed.

Along with an entry in the book, those who have experienced a loss will be able to apply for a commemorative certificate which is intended to give recognition and comfort to those who want to record their loss. The service will be free of charge and completely voluntary.

Applications to have an entry included in the book, produced jointly by the Scottish Government and National Records of Scotland, will go live this summer. 

Making the announcement, First Minister Nicola Sturgeon said: “The loss of a pregnancy or a baby is always painful. I have spoken in the past about my personal experience of miscarriage, and I know the sense of grief will stay with me and my husband forever.

“I also know that we would have drawn comfort at the time if there had been a way for us to mark the loss and formally recognise the child we were grieving.

“Launching this Memorial Book with the National Records of Scotland will give parents an opportunity – if they wish it – to commemorate their loss with a physical record, and to have their child recognised.

“I am very proud to support the Memorial Book and hope that it will bring comfort to those experiencing the pain of baby loss. I also hope that might also help break the silence and stigma around the loss of a pregnancy or a baby that sadly still exists in our society”.

“We warmly welcome the development of Scotland’s new Memorial Book and optional certificate for those who have experienced a loss before 24 weeks of pregnancy. 

Ruth Bender Atik from the Baby Loss Awareness Alliance said: “Even the earliest of pregnancy losses can be deeply upsetting and the lack of any formal acknowledgement can add to that distress. 

“We believe that for many people, the Memorial Book and certificate will provide great comfort and a validation that these tiny lives mattered.”

  • Applications to record a pre 24 week loss in the Memorial Book will go live following the launch in Summer 2023.
  • There is no statutory requirement to register the loss, and all information given is voluntarily.
  • The loss must have taken place in Scotland, or applicants must reside in Scotland at the time of application.
  • There is no requirement for applicants to submit medical evidence of the loss with the application and historical applications will be welcomed.
  • More than one loss can be recorded by an applicant, with each one requiring a separate application.

Nurse who had two ‘pandemic’ babies urges mums-to-be to get vaccinated 

A Glasgow nurse who has had two babies during the pandemic, is urging other mums-to-be to follow her lead and get their COVID vaccinations.
 
Ali Hair, who is a nurse on a surgical ward at the Queen Elizabeth University Hospital is mum to Solomon (17 months) and three-month-old Iris.

When she was pregnant with her son there were no vaccines available but Ali jumped at the chance to get one in January 2021. She had her second in March when she was a few weeks pregnant with Iris, followed by her booster in September.
 
Ali said: “Pregnancy is a very worrying time, but even more so in a pandemic. But I had no hesitation in getting my vaccinations, to protect me, my baby, my family and of course my patients. It’s not new technology; we have had flu jags for years. It’s just a different vaccine and there is strong evidence behind it.
 
“Pregnant women are at risk of becoming sicker with the virus than other women of the same age and many have been hospitalised. Some have even had to be delivered early and that’s never something you want.
 
Baby Iris was born on 4 November and Ali started tandem breastfeeding her two babies.
 
Ali said: “I’m not sure if that was the reason but myself and the babies managed to escape catching COVID at Christmas when our whole family got together. My partner Christopher also escaped it. Twelve out of sixteen people got it, but we were fine.
 
“I do understand why some women may have reservations as pregnancy is a worrying time, but it was the right decision for me and my family and made me feel protected.”
 
NHSGGC Director of Public Health, Linda de Caestecker said: “We encourage all pregnant women to get their vaccinations – it’s the best protection you can get for you and your baby.  

“The vaccine is safe for women at any stage of pregnancy or breastfeeding so please come forward for jabs if not already protected.”

Unvaccinated mothers urge pregnant women to get jabbed

Powerful new video shows their experiences of severe COVID-19 during pregnancy

  • Pregnant women are being urged to get the vaccine by unvaccinated mothers
  • Powerful new video shows their experiences of severe COVID-19 during pregnancy
  • 98% of pregnant women in hospital with symptomatic COVID-19 are unvaccinated
  • Vaccines continue to provide tens of thousands of pregnant women and their babies with vital protection from the virus

Unvaccinated women who suffered with COVID-19 during their pregnancies have told their harrowing stories of battling the virus, from being hospitalised to having emergency c-sections, as part of a new campaign encouraging expectant mothers to get the vaccine.

The video features three women who experienced serious complications after contracting COVID-19 before they’d been vaccinated, as well as the doctors and frontline staff who treated them, to warn of the dangers of the virus for pregnant women and their babies.

Medical expert Professor Asma Khalil from Royal College of Obstetricians and Gynaecologists (RCOG) is also interviewed as part of the powerful new film and provides further reassurance on the importance of the vaccine.

Data published last week by the UK Health Security Agency (UKHSA) shows the vaccines are safe for mothers and their babies, with good birth outcomes for vaccinated women who had their babies up to August this year. There were no consistent differences between vaccinated women and all women in the figures for stillbirths, low baby birthweights and premature births.

Nearly 1 in 5 COVID-19 patients who are most critically ill are pregnant women who have not been vaccinated. Of those pregnant women in hospital with symptomatic COVID-19, 98% are unvaccinated, and no fully vaccinated pregnant women were admitted to intensive care with COVID-19 in England between February and the end of September 2021. Around 1 in 5 women who are hospitalised with the virus need to be delivered preterm to help them recover and 1 in 5 of their babies need care in the neonatal unit.

The women who feature in the new, short film have issued an urgent plea calling on expectant mothers to take up the vaccine as soon as possible to protect themselves and their babies.

Christina, a mental health therapist from Guildford who was hospitalised with COVID-19 in her third trimester and had to give birth via emergency c-section, said: “I went into hospital in my third trimester, and I thought I was going to deliver a baby but the next thing I know, I was being told I had COVID-19.

“Symptoms started to arise and I quickly deteriorated. I was rushed in for a CT scan because the doctors feared I was having a pulmonary embolism.

“I had to give birth via emergency c-section because there was concern that I could have a stillbirth. It was terrifying.

“I don’t know what the future holds for me and my baby; I’m still suffering with symptoms now along with the anxiety of not knowing how or when I’ll recover. I would urge pregnant women to get vaccinated because I don’t want anyone to experience what I went through.”

Tanviha, who works in anaesthesiology and research in Manchester, spent two months in hospital with COVID-19 following an emergency c-section, said: “I caught COVID-19 during my second pregnancy in February earlier this year.

“At the time, the vaccine wasn’t available to me and I quickly took a turn for the worse. I was rushed into hospital and went straight into intensive care where my condition deteriorated and my son was delivered by emergency c-section.

“I was put to sleep and intubated, and my family were told it was unlikely I’d survive and to prepare for the worst. The day after I was intubated, the nurse told them they were going to switch the machine off, but instead I was transferred to an Extracorporeal membrane oxygenation (ECMO) machine, which is a last resort for patients with severe heart and lung failure, and it saved my life.

“The first time I saw my son he was two months old. It’s the scariest experience of mine and my family’s life but I’m just grateful that me and my son are alive. If you’re unsure about getting vaccinated please come forward and get your jab, not everyone’s as lucky as I am.”

Joanne, a makeup advisor from Lincolnshire suffered complications with her pregnancy after catching COVID-19. She said: “I had been unsure what was the right thing to do about getting vaccinated while pregnant. I was planning on having the jab after my daughter was born but I caught COVID-19 when I was 35 weeks pregnant and became seriously ill, I couldn’t get out of bed for a week.

“I had nearly recovered but something just didn’t feel right. I couldn’t feel my baby kicking so I made an urgent appointment to see my midwife. The team at the hospital quickly spotted the baby’s growth had dropped and her fluid was low.

“Her heartbeat was going down and down so the consultant rushed me off for an emergency caesarean when Mollie-Ann was born. I’m so grateful to the maternity team for keeping me and my baby safe and I just wish I’d been vaccinated sooner.”

The vaccines are safe for pregnant women and have no impact on fertility, which has been made extremely clear by the government, its senior clinicians and a range of independent experts from stakeholder groups such as RCOG, the Royal College of Midwives (RCM) and the British Fertility Society.

Since April 2021, around 84,000 pregnant women have received one dose and over 80,000 have received two doses of the COVID-19 vaccine.

Out of all women between the ages of 16 and 49 on ECMO – a form of life support for the sickest of patients – in intensive care, pregnant women make up almost a third (32%) – up from just 6% at the start of the pandemic in March 2020.

Professor Lucy Chappell, Chief Scientific Adviser at the Department of Health and Social Care and Honorary Consultant Obstetrician, said: “The stories shared as part of this film are heartbreaking and provide invaluable, first-hand insight into why accepting the offer of a COVID-19 vaccine is so important for mothers and their babies.

“Getting the vaccine is one of the most vital ways in which you can protect yourself and your baby from COVID-19, which can be really dangerous for pregnant women – of those pregnant women in hospital with symptomatic COVID-19, 98% are unvaccinated.

“Watch the film, speak to your clinician or midwife if you have any questions or concerns, and book in your vaccine without delay.”

Professor Asma Khalil, spokesperson for Royal College of Obstetricians and Gynaecologists, said: “We are very concerned about the number of pregnant women who haven’t been vaccinated against COVID-19.

“We know that the COVID-19 can cause severe illness in pregnant women with a disproportionate number of unvaccinated pregnant women in intensive care. If a woman contracts COVID-19, evidence shows they are more likely to have a preterm birth or stillbirth.

“Our message is clear, COVID-19 vaccination in pregnancy is safe, it is not linked to an increased risk of miscarriage or stillbirth, and it’s the best way of protecting you and your baby from the virus. We are recommending all pregnant women have their COVID-19 vaccines, including their third dose booster vaccine when they are offered it.’’

The proportion of women who gave birth and were vaccinated during pregnancy has been steadily increasing since 16 April 2021, when the Joint Committee on Vaccination and Immunisation (JCVI) advised all pregnant women should be offered two vaccine doses at the same time as the rest of the population, based on their age and clinical risk group.

Pregnant women aged 40 and over who are health or social care workers, or are in an at-risk group, are now also eligible for booster vaccines three months after their second dose and will soon be able to book an appointment. Younger age groups will be invited by the NHS in order of age in due course.

The UK government is working closely with RCOG, RCM and other key stakeholders on engaging with women who are either pregnant or thinking about pregnancy and providing them with the latest advice and information at every possible opportunity. It’s also working with faith and community leaders to increase vaccine uptake, holding regular meetings to discuss the best ways to provide information to their communities.

The Chief Midwifery Officer for England, Jacqueline Dunkley-Bent, has also written to fellow midwives and GP practices across the country stressing the need to encourage pregnant women to get the jab.

Liz, head of maternity at Epsom and St Hellier Hospital Trust who features in the film, said: “We are treating more and more unvaccinated pregnant women with COVID-19. The vaccine is safe for pregnant women and is the best way to keep you and your baby, safe and out of hospital. Getting vaccinated works: across England, no pregnant woman that has had two vaccinations has been admitted to hospital due to COVID-19.

“You can receive vaccination at any time in pregnancy, but the risks that unvaccinated pregnant women face of becoming severely unwell if they catch COVID-19 show exactly why we advise you to do so as soon as possible. This film is another stark reminder of the devastating impact COVID-19 can have on women and their babies.”

Vaccines Minister Maggie Throup said: “Nearly 1 in 5 COVID-19 patients who are most critically ill are pregnant women who have not been vaccinated, which shows just how important it is that expectant mothers get the vaccine to keep themselves and their babies safe.

“Over 81,000 pregnant women have so far received their first dose, with 65,000 being double-jabbed, which is fantastic, but there’s still more to be done.

“The COVID-19 vaccines are safe and effective for pregnant women and I urge everyone to get their vaccines as soon as they can to secure this significant protection”.

Gill Walton, chief executive of the Royal College of Midwives, said: “Having COVID-19 can double the chance of stillbirth and triples the chance of a preterm birth, which can have long-term health impact for the baby.

“We know that the vaccine is a safe and effective way of preventing this, with hundreds of thousands of pregnant women worldwide having been vaccinated with no adverse effects.”  

You can watch the film here:

The UKHSA safety data can be found here

Chief Medical Officer urges pregnant women to get vaccinated

“By far the best course of action for you and your baby is to get both doses of the vaccine”

Scotland’s Chief Medical Officer is urging pregnant women to get the coronavirus (COVID-19) vaccine to protect them and their baby.

Following a recent study showing evidence of increased hospitalisations, Dr Gregor Smith is encouraging all expectant mothers to discuss the vaccine with their healthcare professionals so they can make a fully informed choice.

The UK Obstetric Service (UKOSS) published research last month which showed the number of pregnant women being admitted to hospital with COVID-19 across the UK is increasing, with many experiencing acute symptoms.

The report also suggests the Delta variant is associated with an increased risk of severe illness among hospitalised pregnant women.

Dr Smith said: “Firstly I want to thank all our healthcare staff for everything they are doing across Scotland not just in relation to the wider vaccination programme but also for their efforts to ensure good outcomes for women, families and babies during the pandemic.

“We have written to heath boards and GPs to ensure they are aware of all the latest evidence-based advice and guidance to enable them to fully discuss the very clear positive benefits of the vaccine with their patients.

“Recent data shows the number of pregnant women being admitted to hospital with COVID-19 has risen, and that is concerning. Evidence suggests that the Delta variant may be associated with an increased risk of severe illness among hospitalised pregnant women.

“We want all pregnant women to have the information they need to make an informed choice, so if you have any concerns or questions, please speak to your midwife, GP, or go along to a drop-in clinic. By far the best course of action for you and your baby is to get both doses of the vaccine.”

UKOSS study

NOTE: 3,613 new cases of COVID-19 were reported in Scotland yesterday. The trend is upwards – this pandemic is far from over.

New study into COVID-19 vaccine dose interval for pregnant women

  • New government-funded clinical trial investigating best COVID-19 vaccine dose interval for pregnant women launched in England
  • Research shows pregnant women more likely to become seriously ill from COVID-19 and 98% of those in hospital due to COVID-19 are unvaccinated

The UK’s largest clinical trial investigating the best gap between first and second COVID-19 vaccine doses for pregnant women is being launched in England today (Tuesday 3 August).

Following 130,000 pregnant women being vaccinated in the US and no safety concerns being raised, the Pfizer/BioNTech and Moderna vaccines were recommended by the independent experts at the Joint Committee on Vaccination and Immunisation (JCVI) for pregnant women in the UK.

Almost 52,000 pregnant women in England have now been vaccinated – again, with no safety concerns reported.

Data published last week by NHS England and the University of Oxford also shows no pregnant women who have had both doses of a vaccine have been admitted to hospital with COVID-19. Only three have been admitted after having their first dose, meaning 98% of those admitted to hospital have not received a jab.

The Preg-CoV study, backed by £7.5 million of government funding and led by St George’s, University of London, will provide vital clinical trial data on the immune response to vaccination at different dose intervals – either four to six weeks or eight to 12 weeks.

This data will help determine the best dosage interval and tell us more about how the vaccine works to protect pregnant mothers and their babies against COVID-19.

Minister for COVID-19 Vaccine Deployment Nadhim Zahawi said: “Pregnant women are more likely to get seriously ill from COVID-19 and we know that vaccines are safe for them and make a huge difference – in fact no pregnant woman with two jabs has required hospitalisation with COVID-19.

“This government-backed trial will provide more data about how we can best protect pregnant women and their babies, and we can use this evidence to inform future vaccination programmes. I encourage anyone who is pregnant and eligible to sign-up and contribute to research that will save lives for years to come.”

Vaccines have been given to pregnant women to protect them and their babies from diseases for years – including for whooping cough and flu.

The trial will involve over 600 pregnant women being vaccinated with either the Pfizer/BioNTech or the Moderna vaccine. They will be closely monitored by health professionals throughout their pregnancy and following the birth, with the safety of the women taking part in the trial the utmost priority.

The Preg-CoV participants will need to be between 18 and 44 years old, have no health conditions and be between 13 and 34 weeks pregnant on the day of vaccination. They will receive two doses of a COVID-19 vaccine – or one dose if they’ve already had their first – at either the shorter interval of four to six weeks, or the longer interval of eight to 12 weeks.

They will be scheduled to attend nine visits in total and will be required to complete an electronic diary between visits on any symptoms. They will also be given a 24-hour mobile number so they can contact one of the trial team at any time if they have concerns.

The scientists behind the trial will analyse blood samples from the participants and one blood sample from their newborn babies, alongside samples from breastmilk. They will use the samples to help understand more about how the vaccines are protecting these individuals from COVID-19, with initial results expected by the end of the year.

The study will open for applications from volunteers today via the study’s website, with vaccinations set to start from mid-August. Participants will also be recruited to the study by invites sent through the NHS COVID-19 Vaccine Research Registry, which allows research teams to speak to suitable volunteers who have signed up to be contacted about taking part in vaccine studies.

Chief Investigator and Professor of Paediatric Infectious Diseases at St George’s, University of London, Professor Paul Heath said: “Tens of thousands of pregnant women have now been vaccinated in both the US and the UK with no safety concerns reported, but we still lack robust, prospective clinical trial data on COVID-19 vaccines in pregnant women. This includes the best schedule to use to maximally protect them against COVID-19.

“We are extremely pleased to commence the Preg-CoV trial, which aims to fill these gaps in our knowledge and will ultimately inform policy recommendations on the optimal use of COVID-19 vaccines in pregnancy.

The trial will be run across 13 National Institute for Health Research (NIHR) sites in England – including in London, Liverpool and Leeds. All the trial sites are working on ways of including participants from a wide variety of backgrounds and individuals from ethnic minorities are encouraged to apply.

The vaccination programme continues its phenomenal progress towards vaccinating the adult population of the UK, with over 85,336,436 vaccines administered in total – 46,872,411 first doses (88.6%) and 38,464,025 second doses (72.7%).

Further analysis from PHE and the University of Cambridge also suggests vaccines have so far prevented over 52,600 hospitalisations, an estimated 22 million infections and more than 60,000 deaths in England alone.

Dr Pat O’Brien, Vice President of the Royal College of Obstetricians and Gynaecologists, said: “We now have robust data of nearly 200,000 women from across the US and the UK, who have received the COVID-19 vaccine with no safety concerns.

“This tells us that both the Moderna and Pfizer vaccines are safe in pregnancy. However, more research is needed to monitor and understand how pregnant women respond to the COVID-19 vaccine.

“We welcome this trial as the next step in further monitoring the protection provided by the vaccine, to understand the risk of any potential adverse side effects, and observe the immune response within those who are pregnant and their babies.

“We encourage all pregnant women to get vaccinated, as the protection that it provides against COVID-19 to both mother and baby outweigh the risks. We are seeing more pregnant women being admitted to hospital with COVID-19, and we know that the Delta variant is causing more pregnant women to have severe illness than previous strains of the virus.

“We hope that this research will help to gain the confidence of pregnant women that the recommendation of vaccination in pregnancy is based on robust evidence.”

Professor Nick Lemoine, Medical Director, NIHR Clinical Research Network, said: “The fact that every participant in this study receives an approved vaccine will give volunteers peace of mind that they are protected from the virus and that they can take confidence in the safety of these vaccines, and the monitoring involved in the study.

“Vaccine studies like this remain crucial for researchers to gain more information on the best intervals and methods to help protect the whole population against COVID-19.

“It is thanks to the continued dedication and commitment of volunteers that we are at this stage of research and the NIHR is very grateful for their efforts.

“The NHS COVID-19 Vaccine Research Registry continues to help us reach out to potential participants and recruit to additional studies as we keep moving forward, and we encourage interested members of the public to sign up to be contacted at nhs.uk/ResearchContact.”

Volunteers can sign up to the trial here

New and expectant mums face increased mental health risks caused by the pandemic

Report raises concerns as services supporting women and babies come under strain

During and after pregnancy, women have faced greater likelihood of poor mental health during the pandemic, including anxiety, depression, loneliness and suicidal thoughts, according to a new report commissioned by a coalition of leading maternal mental health organisations. 

Women of colour and women from poorer economic backgrounds are more likely to experience mental health problems during and after pregnancy, according to the research. 

The rapid review of evidence commissioned by the Maternal Mental Health Alliance (MMHA), and conducted by Centre for Mental Health, for the first time compiles all available evidence into one place.

This shows that access to crucial services reduced for pregnant women, new mums and babies across the UK, especially during the early stages of the pandemic. While health and care staff worked hard to deliver safe care, significant gaps emerged. Women also experienced a reduction in informal support from friends, relatives and networks of other women sharing their experiences.

Extra pressures include anxiety about giving birth during lockdown without partners present, fears of losing jobs, heightened levels of domestic violence, bereavement, worries about catching Covid-19, and concern about new infants catching the disease. 

The MMHA, a network of over 100 national organisations, together with lived experience champions and clinicians, is calling on Ministers to fill the pre-Covid gaps in specialist perinatal mental health.

In addition, the wider system surrounding these services, including health visiting and maternity, needs to be protected and enhanced. Furthermore, up-to-date monitoring and research of maternal mental healthcare should be commissioned.

It also says that without sustained funding, many Voluntary and Community Services will not survive, despite the increased demand from women for their services. 

Luciana Berger, chair of the Maternal Mental Health Alliance (MMHA) said: ‘Today’s report should serve as an ear-splitting warning siren about the dangers to women’s maternal mental health and potential risks to the wellbeing of their babies.

The pandemic has placed additional challenges on new and expectant mums getting the care and support they need, taking many already-stretched services to the point of breaking. Women of colour and women from disadvantaged backgrounds have been particularly impacted, and Ministers must address this injustice with urgency.’ 

Sarah Hughes, chief executive of Centre for Mental Health, which carried out the research, said: ‘The Covid-19 pandemic has been a mental health challenge across society, but it has not affected everyone equally. It has placed especial pressure on women during pregnancy and after they’ve given birth.

“And it has made inequalities that were always there in plain sight even more pronounced. We need to take this opportunity to review and reframe what support women should expect for their mental health during the perinatal period, and to make sure that we prepare for any future crisis to avoid another loss of support at a crucial time in people’s lives.’

Aleema Shivji, Comic Relief Executive Director for Impact and Investment said: ‘The pandemic has put an unprecedented strain on the nation’s mental health and it is sadly no surprise that, as this report proves, pregnant women and new mums who face enormous challenges, have sadly been worst affected. 

“It’s clear that more work is needed urgently to help tackle the shame and stigma attached to maternal mental health for mums to feel recognised, supported and able to ask for help. At Comic Relief we have prioritised funding mental health services for over 25 years, but it is clear this is still needed now more than ever.’

Today’s report Maternal mental health during a pandemic was commissioned by the Maternal Mental Health Alliance and conducted by Centre for Mental Health, and covers all four parts of the UK.

Joanna Barrett, Associate Head of Policy (Nations) at NSPCC Scotland, said: “This report highlights the profound impact the pandemic has had on the mental health of parents during and following pregnancy, particularly in the most deprived communities of the country.

“We have long warned that without the right support at the right time, adult mental health problems during pregnancy and the first year can have serious immediate and long-term consequences for both young children and their families.

That’s why our Fight for a Fair Start campaign is calling on the Scottish Government to invest in universal early years support, to give professionals the ‘time to care’ to develop positive and trusting relationships with infants and their families.

“This will give babies the best possible start in life, the support to recover from the pandemic, and the opportunity to thrive not just survive.”

Maternal mental health: significant gap in service provision

The Maternal Mental Health Alliance (MMHA) has today published maps showing that pregnant women and new mums in a quarter of the UK still cannot access lifesaving specialist perinatal mental health services which meet national guidelines. Continue reading Maternal mental health: significant gap in service provision