Edinburgh Deaf Festival: Stacy’s story

RNID’s STACY WORBOYS writes about her time at the second Edinburgh Deaf Festival (11-20 August 2023) and the community she found there as a deaf person:

“This year was the first year that I have been back to Edinburgh since before the pandemic, so I thought I’d make the most of it and visit during the second Edinburgh Deaf Festival. 

A little bit about me – I have been deaf since birth, diagnosed when I was 4, but grown up in a hearing family, attending mainstream schools with support and equipment and not learning sign language. There was only one other deaf person (that I know of) when I was at secondary school.

I relied entirely on lip reading and my chunky radio aid linked, to my hearing aids, to understand speech. My mum tried to get us enrolled on a family British Sign Language (BSL) course, but they were too expensive, and we couldn’t afford them. 

Starting to sign

When I was 18, I moved from the outskirts of Sheffield to Cardiff for university and, after attending a volunteering fayre, started volunteering with RNID on their information stalls and campaigns.

This is where I started to meet other deaf people and learn more about sign language. It wasn’t until I left university and started working that I started learning BSL.

After passing my Level 1, I felt confident to start signing with other deaf people, so began going to deaf clubs and joined different events in the deaf community to meet new people. In the last eight years, I have worked my way all the way up to Level 6 and now use BSL regularly to communicate with friends and work colleagues. 

Growing up, I used to love going to the cinema and theatre, but I always struggled to understand what was happening. I relied entirely on the visual aspect of film and theatre and the occasional chance to lip read what someone was saying.

I still love going but I cannot manage without captions or BSL interpreters

So, I jumped at the chance to attend a week full of performances and events that were done entirely in BSL, with voiceover provided for any hearing attendees and captions for deaf people who didn’t use BSL. 

For the first time, I was surrounded entirely by BSL users from different walks of life. A truly different experience and one that I will remember for a long time. 

Developing my knowledge and identity

For the last 6 years, I have been developing my knowledge of BSL, deaf culture and deaf identity – including finding my own deaf identity.

I was lucky enough to meet a great group of deaf people, who welcomed me into the local deaf clubs and were patient with me, as I practiced my BSL and learnt about different parts of their culture.

Many people shared their experiences of education, work and social lives with me and made me more aware of the barriers that people with profound deafness have. 

In a normal week, I spend time with deaf friends around three times a week. At work, I rely on lip reading and speech-to-text reporters for catch-ups and meetings.

Going to Edinburgh

An outdoors poster saying "Edinburgh Deaf Festival"

When in Edinburgh, I was surrounded by deaf people every day and it was such a different experience. 

It was so nice to see deaf people all packed into a room chatting away before the show, and then continuing the conversation afterwards.

It has always been said that deaf people are the last to leave, and almost everyone stuck around, so I knew that was true! 

I was fully emerged in the culture for the first time. For one week, I really embraced and accepted my own deaf identity, knowing that there were people in the room who shared similar experiences.

Everyone had a different story to tell, and no-one’s experience was the same. Being deaf doesn’t mean that you cannot hear anything, it is a spectrum. There were people in Edinburgh with similar levels of deafness to myself. This is something that I have struggled with in my local deaf community, because there aren’t many people with my level of deafness. 

At the festival, there was a complete range of performances and events that I was able to attend. This included stand-up comedy shows with John SmithGavin Lilley and Elf Lyons and Duffy, to dance, comedy, magic and drag shows. There were also BSL tours of the Edinburgh Castle and Botanical Gardens, and – my absolute favourite – a good old fashioned pub quiz!  

My personal highlight was just getting to spend time with like-minded individuals and loving life in a different city for seven days. 

I really am glad that I made the decision to go to Edinburgh’s Deaf Festival and I am already looking forward to going back in 2024.” 

Letters: Protect your hearing this Summer

Dear Editor,

Summer is well and truly on its way, which means more opportunities to be outside with friends and family and listen to live music.

In all of the fun, we sometimes forget to look after our hearing health and how loud sounds are. A live concert or festival can often reach levels of 110 decibels. Repeated or long exposure to sounds at 85 decibels or above can cause hearing loss so it is important that whilst you are sipping that overpriced beer and singing along to your favourite artist you take care of your ears.

The good news is that there are some easy ways you can still enjoy yourself and keep your hearing protected: Carry earplugs with you and use them, the reusable kind designed for clubbers and musicians don’t muffle sound, just make it a bit quieter and can protect your ears.

Stay away from the speakers – the closer you are, the greater the risk of hearing damage. And take regular breaks from the loudest areas to give your ears a rest. We want everyone to have a great summer – and at the same time keep your hearing healthy for the future.

It is important to check your hearing regularly so join over 250,000 people and take the free, online Hearing Check by visiting rnid.org.uk

Crystal Rolfe

Associate Director for Health at RNID

Letter: Volunteers needed to support people with hearing loss

Dear Editor

RNID, the charity supporting people who are deaf, have hearing loss or tinnitus is looking for volunteers to support our vital work across the UK.

Volunteers Week (1-7 June) is a fantastic opportunity to celebrate the amazing impact our volunteers have. Last year, they gave more than 7,740 hours of their time to support people in their communities with practical information and support with hearing aids. This year, we need you to help us reach our goals and ensure that everyone in the UK can benefit from support.

Volunteering for RNID could involve providing information to local organisations and community groups, helping people get the most out of their hearing aids, or giving a friendly welcome to everyone who passes through the door at one of our support sessions.

Many of our volunteers have hearing loss themselves or in their family, and volunteering with us is a great way to meet new people, gain new skills and experience, try something new and help people in your community.

What are you waiting for?

For more information, visit www.rnid.org.uk/volunteering or contact us at 0808 808 0123. You can also text us at 07360 268 988.

Yours sincerely,

Jackie White, Director at RNID

Letter: E.A.R – Be Deaf Aware!

Dear Sir/Madam, 

It is Deaf Awareness Week (1-7 May 2023) and RNID, the charity supporting people who are deaf, have hearing loss or tinnitus are calling on everyone to be deaf aware! 

People who are deaf or have hearing loss have individual communication needs and you should ask how best you can communicate with them. RNID is encouraging people to use E.A.R. to help them remember simple tips they can use to make communication easier: 

·        Environment – reduce background noise or move to a quieter area. And make sure the room is well lit if the person relies on lipreading.  

·        Attention – use simple gestures such as pointing, waving or a light tap on the shoulder to get someone’s attention. Face the person you’re speaking to so they can lipread, and speak to them, not their interpreter or anyone else with them. 

·        Repeat and rephrase – if someone doesn’t understand you, try repeating what you said or rephrasing it in a different way. If this doesn’t work, you could write it down, or speak to a friend or relative if they ask you to. 

Following E.A.R. can make the difference between your friend, family or colleague being part of the conversation or left struggling on the side-lines. 

For support or information, please visit rnid.org.uk 

Yours sincerely, 

Teri Devine 

Director for Inclusion at RNID 

Letters: Tinnitus Week

Dear Sir/ Madam,

This week is Tinnitus Week (6-12 February 2023), and latest research suggests that 1 in 7 adults have tinnitus.

Everyone’s tinnitus is different, but it’s usually described as a ringing, hissing, buzzing, roaring or humming sound. There may be one or more sounds and the noise may be there all the time or come and go. 

The causes of tinnitus can be linked to different things, including hearing loss, exposure to loud noise, certain medications, ear or head injuries, some ear conditions and emotional stress. Sometimes, there’s no recognisable link at all. Many people get tinnitus for a short time – for example, after being exposed to loud music, or when they have congestion because of a cold. But for some people, it doesn’t go away, and it can have a significant impact on their daily life.

The good news is, RNID is here to help. Our free Tinnitus Guide contains information on ways to manage tinnitus, from professional support to self-help options. It also includes information on useful apps and technology, how to support a loved one with tinnitus, and what to do if tinnitus is affecting your sleep.

RNID is committed to funding research to silence tinnitus, and our guide contains the latest information on our work to identify the causes of tinnitus and develop strategies to treat it. You can find all this and more by downloading our free tinnitus guide at rnid.org.uk/tinnitus

Yours sincerely,

Crystal Rolfe, Director of Health at RNID

Royal National Institute for Deaf People

‘Tis the season to be deaf aware

Five ways to be deaf aware this Christmas 

‘Tis the season to be deaf aware 

With less than two weeks to go until Christmas day, there is a lot to get ready – from buying last minute gifts and wrapping presents, to picking up a turkey. 

If you will be spending time over Christmas with family or friends who are deaf or have hearing loss, it’s important to consider how to make sure the seasonal celebrations are enjoyable for them too. 

RNID, the national charity for deaf people and people with hearing loss, asked their supporters for their top tips of how family and friends can make communication easier at Christmas.  

They are: 

1.         Ask how you can help 

Everyone is different, so ask the person who is deaf or has hearing loss what you can do to make communication easier. For example, they might need to see your face when you’re talking, or they might need the subtitles on if you’re watching a film together. 

2.        Make lipreading easier 

Make sure the room you are in for your Christmas get together is well lit – candles and fairy lights alone won’t be much use to people who lipread. Don’t cover your mouth when you’re speaking, and face the person who is lipreading. Try not to speak with your mouth full as this will make it harder for them to lipread you. 

3.        Take it in turns to speak 

Try not to speak over each other – it’s impossible to lipread more than one person at a time and your family member will quickly get lost in the conversation. Speak clearly and not too slowly, and don’t shout as this can be uncomfortable for hearing aid users. If someone doesn’t understand what you said, try repeating or explaining it a different way. 

4.       Keep background noise low 

If you’re playing festive music or if there is background noise, keep the volume low. This will make it much easier for people to hear, and it will help anyone who lipreads to focus on what you are saying.   

5.        Help people follow the conversation 

If the topic of conversation suddenly changes, make sure everyone is aware – maybe ask them a question to check. 

And crucially, if someone who is deaf or has hearing loss asks you to repeat something, never say “it doesn’t matter”. If you do that, you’re taking away their opportunity to be part of the conversation, and you might make them feel like they don’t matter.  

Harriet Oppenheimer, Deputy Chief Executive at RNID, said: “For lots of us, Christmas is a time of big family get togethers, noisy work Christmas dos and catching up with old friends. But we also know that Christmas can be an isolating time if you are deaf or have hearing loss or tinnitus, and our supporters have told us that they can feel left out of the festive fun going on around them.  

“Being deaf aware at Christmas doesn’t have to mean making big changes; there are small things you can do which will make the day a lot more enjoyable for your deaf family member or friend and allow them to be part of the celebrations.”  

The 12 Signs of Christmas  

RNID have made a video to help everyone learn some festive phrases in British Sign Language (BSL). 

From learning how to sign ‘Happy Christmas’ to asking someone to ‘meet me under the mistletoe’ or ‘pass the chocolates’, the charity’s 12 signs of Christmas will help to get everyone in the family signing and having fun together, whilst taking an important step to be more deaf aware. 

For more information on how you can be deaf aware at Christmas, visit RNID’s website.

British Sign Language Bill set to clear final hurdle before becoming law

Tens of thousands of British Sign Language (BSL) users are anticipating a momentous day today as a Bill that will see BSL become a recognised language in Britain is expected to clear its final hurdle on the way to becoming law.

The British Sign Language Bill, a Private Member’s Bill introduced by Rosie Cooper MP last year and backed by the government, will receive its third reading in the House of Lords today before it passes into law following Royal Assent.

The BSL Act will recognise BSL as a language of England, Wales and Scotland in its own right. It is also supported by a duty on the Secretary of State for the Department for Work and Pensions (DWP) to regularly report on what each relevant government department has done to promote or facilitate the use of British Sign Language in its communications with the public.

The Act further places a requirement on the DWP Secretary of State to issue guidance to departments on the promotion and facilitation of BSL. The guidance will be developed together with D/deaf BSL signers.

Minister for Disabled People, Health and Work Chloe Smith MP said: “Today is a momentous day and I truly hope it will transform the lives of D/deaf people across the country.

“The BSL Bill will help remove barriers faced by the D/deaf community in daily life and is a further welcome step towards a more inclusive and accessible society.

“I am so grateful to the efforts of Rosie Cooper MP and the wonderful campaigners who have brought the BSL Bill to the point of passing into law and I’m proud to have played a small part in its journey.”

Rosie Cooper MP said: “At long last, the Deaf community will be able to say that their language is legally recognised.

“Working across party lines and with the Deaf community, I really believe we have made history by creating a mechanism for Deaf people to achieve equal access to public services. Their voices will be heard loud and clear and there will be no excuse for failing to respect BSL as a language.

“The hard work doesn’t stop here however, but the door is now open for the Deaf community make real progress fixing the injustices that they continue to face.”

David Buxton, Chair of the British Deaf Association, said: “We are extremely pleased to see the UK Parliament finally vote to recognise British Sign Language as a language of Great Britain in law today, after 19 long years of campaigning.

“Today is a historic day for the Deaf community in the UK, and an inspiration for other countries around the world where the national sign language has not yet been recognised in law.

“The British Deaf Association looks forward to working hand in hand with the government and civil servants to implement and monitor the progress of the BSL Act 2022.

“While today is a day to celebrate, we are aware that this marks the first step on a long path towards providing truly equal access to public services, information and opportunities for Deaf BSL users in Great Britain.”

Mark Atkinson, Chief Executive at RNID, said: “RNID and our supporters join with the Deaf community today to celebrate this historic moment as British Sign Language passes the final hurdle before it is legally recognised in England, Wales and Scotland.

“We’re immensely proud to have worked alongside other deaf organisations and parliamentarians to support this campaign. We look forward to the BSL Bill getting Royal Assent soon and to working with the government to make sure the BSL Act makes a real difference to the lives of Deaf people in the UK.”

The Third Reading of the BSL Bill takes place today in the House of Lords and following this it will receive Royal Assent.

The BSL Bill was first introduced on 16 June 2021 and passed through the House of Commons on 17 March 2022, receiving unanimous cross-party support.

The Minister for Disabled People, Health and Work has worked closely with Labour MP Rosie Cooper and D/deaf people’s charities and organisations, such as the Royal National Institute for Deaf People (RNID) and the British Deaf Association (BDA), to ensure the Bill effectively meets the needs of those who will benefit most.

Figures from the British Deaf Association suggest that 151,000 people use BSL in the UK, 87,000 of whom are D/deaf.