Diabetic patient denied health technology she tested due to health funding cuts

An Edinburgh based diabetic patient has been told she will be not given the new closed loop diabetic pump technology, despite the fact that she has been testing the system, for the NHS since last year.

Megan Ormond, who has had diabetes for all her teenage and adult life, contacted Labour MSP, Sarah Boyack to raise her situation.

Ms Ormond was taking part in a study of the closed loop system and was told partaking in this study would likely secure her the technology faster.

However, at her last meeting, she was told, due to budget cuts, the closed loop system would not be made available to her after the study.

While using this closed loop system, her HBA1C which is used by doctors to test a patient’s glucose levels over the last 3 months, has been the lowest it has been for her entire time with diabetes.

The Scottish Government’s Diabetic Improvement Plan cites rolling out the closed loop system, as quickly as possible as a key target.

However, due to budget cuts and required savings, NHS Lothian is unable to carry out their rollout of the system at their expected rate.

NHS England began rolling out the closed loop system on the 1st April 2024.

Commenting on Megan’s case, Lothians MSP Sarah Boyack, said: “Megan’s case shows the absolutely shocking state the SNP Government has allowed NHS Lothian to fall into.

“Life changing technology and treatment are being denied to patients due to a lack of funding. That is unacceptable anywhere in Scotland, never mind our nation’s capital.

“The Scottish Government must act to ensure Megan and other diabetics are able to access this ground-breaking treatment as they were promised.

“There is real opportunity to improve the quality of life for diabetes patients in Edinburgh, but that opportunity isn’t just being denied to my constituents its being snatched away.”

Megan said: “When I got told that there is potential no funding for me to remain on the system, I felt let down and upset.

“It’s like dangling a sweet in front of a child and then taking it away.

“I was informed a few months back that it was highly likely that I would remain on the system but that’s clearly not the case.

Part of my job of being a nurse is advocating for the most vulnerable in society but who is advocating for us type 1 diabetics?”

Information on a closed loop system can be found here:

https://www.diabetes.org.uk/guide-to-diabetes/diabetes-technology/closed-loop-systems

NHS Lothian nurses recognised in RCN Scotland Nurse of the Year Awards

Four NHS Lothian nurses, along with a Lothian nursing team, have been announced as finalists in the prestigious RCN Scotland Nurse of the Year Awards 2024.

The awards showcase the very best of nursing across Scotland, highlighting, and celebrating the unwavering commitment and remarkable professional care provided by nursing staff.

Elaine Wilson, Community Staff Nurse, has been shortlisted for the Children’s Nursing & Midwifery Award for her exceptional leadership and dedication in delivering high-quality vaccination services in Midlothian.

In her job, Elaine has innovatively addressed the challenges faced by vaccination teams, including declining vaccination rates, often thinking creatively. She has organised flexible clinics in unique locations, increasing vaccination rates.

She has also overcome barriers to reach underserved communities, like the travelling community. Additionally, she has also secured funding for child-friendly resources to improve the vaccination experience for children and their families.

Fiona Hunt, Team Lead for Organ Perfusion and Preservation, has been named as one of the finalists for the Clinical Leadership Award.

Fiona’s leadership has led to remarkable improvements in transplant outcomes, evidenced by increased liver transplant graft survival rates and reduced complications.

Fiona also contributes to the development of innovative transplantation protocols and technologies and plays a key role in education and research, directing masterclasses and actively participating in clinical studies.

Professor Juliet MacArthur, Chief Nurse Research and Development, has made the shortlist for the Inspiring Excellence – Nursing innovation and Research Award.

In partnership with colleagues, Juliet has been nominated for being instrumental in advancing clinical academic careers and research partnerships in various health care disciplines across Edinburgh and the Lothians.

One of Juliet’s projects focuses on nursing and midwifery candidates in the Lothian Clinical Academic Research Gateway Awards scheme.

The scheme aims to build research capacity across clinical teams by providing funding for NHS professionals to participate in research development opportunities.

Frances Aitken, Dementia Nurse Specialist, has been named as a finalist for the Mental Health Nursing Award.

Frances was nominated for her work to improve the care experience for patients with cognitive decline in St John’s Hospital. Frances has led the implementation of the Stress and Distress programme and run’s training for staff which has helped reduce the need for one-to-one nursing, sedation, emergency calls, and has improved pain management for patients.

NHS Lothian’s Strathaird team are shortlisted for the Learning Disability Nursing Award.

The team have been nominated for their exceptional dedication, courage, and compassion in their work for patients in a challenging behaviour unit.

The team managed to successfully transition a complex patient journey to a personalised, nurturing environment, improving both patient and staff safety.

The teams innovative approaches and commitment to positive interaction with patients has garnered impressive results, including increased patient trust and engagement.

Alison Macdonald, Executive Nurse Director, NHS Lothian, said: “I would like to congratulate to all our staff that have been shortlisted for an award.

“Being a finalist is a huge achievement and it really highlights the high quality care and compassion our nurses are giving to patients day in, day out.

“I would like to wish them all good luck.”

NHS Lothian: East Lothian Mental Health and Wellbeing Hub

A hub is available for people in East Lothian to access information, advice and practical support about mental health and wellbeing. Set up in East Lothian Community Hospital, it aims to help people find out about the wide range of services that are available in the local community.

Any adult who is concerned about their own mental health and wellbeing, or supporting someone else’s, can drop in to pick up information or speak to an advisor.

The Hub is run by a team of psychologists at the hospital who are regularly joined by representatives from the Citizen’s Advice Bureau, East Lothian Works, Changes East Lothian, and Community Link Workers from Penumbra.

Dr Alison Wells, Consultant Clinical Psychologist for NHS Lothian, explains: “We started this hub to help signpost patients and visitors to the wide range of therapeutic, wellbeing, practical or social support available.

“Anyone can struggle with their mental health and wellbeing, feel anxious, low or down, particularly during these challenging times. There’s an abundance of services which can help so we encourage anyone who is worried to pop along for a private chat or just to pick up some information.”

The Hub runs every Wednesday between 12noon and 2pm in the foyer just off the main entrance to East Lothian Community Hospital.

It provides access to a range of materials including those from the East Lothian Health and Social Care Partnership and local third-party organisations. 

NHS clinicians are on hand to help direct people to the information and support available. A Citizen’s Advice Bureau Adviser is also available to help with queries about housing, finances and benefits and other questions.

Fiona Wilson, Chief Officer and Joint Director of East Lothian Health and Social Care Partnership, added: “We are really pleased to be able to offer this open-door mental health support to the people of East Lothian.

“Taking the first step and seeking advice can often be the hardest.  We hope this resource will encourage people to come forward, no matter how big or small they think the problem may be, and look after their mental health, just as they would their physical health.”

People can also access information about mental health and wellbeing advice and support online at wellbeinglothian.scot and nhsinform.scot

Worried and Waiting: Record waiting times for children in NHS Lothian

NHS Lothian has the longest patients waiting times for treatment, with 69.1% of total patients waiting over 12 weeks. 2382 out of 3448 paediatric patients in NHS Lothian waited over 12 weeks for treatment.

In NHS Highland 48.9% of patients were waiting over 12 weeks at that time. This is in comparison to NHS Greater Glasgow and Clyde where over 12 week waits made up only 19.2%, and NHS Grampian which stood at 12.9%.

The report by the Royal College of Paediatrics and Child Health, Worried and waiting: A review of paediatric waiting times in Scotland 2024, stated that –

It is worrying that children and young people are waiting longer than 12 weeks to be seen in paediatrics. However, what is the most concerning is that in September 2023, 13 out of 14 health boards in Scotland were experiencing very high waits over 12 weeks, with only NHS Western Isles achieving the national standard rate.

Lothian MSP, Miles Briggs, said: “It is extremely concerning that young people in Lothian are waiting over 12 weeks for treatment.

“Over two thirds of young people are now waiting over the 12 week waiting target which is unacceptable.

“SNP mismanagement of our NHS means that hundreds of children are not being seen a quickly as they should be, nowhere more so than in NHS Lothian.

“We urgently need to see our health service properly run. 

“It is also important that NHS Lothian receives funding parity with other health boards.

“This tired SNP Government has had no answers for years.”

SILENT SLAUGHTER: £60 MILLION slashed from Edinburgh’s health and social care services

  • TWO CITY CARE HOMES TO CLOSE
  • THIRD SECTOR PROJECTS HIT WITH £1.4 MILLION CUT

TWO council-run care homes – Clovenstone and Ford’s Road – will close and third sector projects will see their funding cut by 10 per cent – £1.4 million – following yesterday’s Edinburgh Integration Joint Board meeting.

Board members were faced with a stark choice – accept the swingeing package of cuts tabled or leave the officers to do it themselves. The meeting heard there was no realistic alternative – no Plan B.

UNISON City of Edinburgh branch secretary David Harrold told EIJB board members: “Each and every one of you is presiding over the silent slaughter of Edinburgh’s essential care services. Yet each and every one of you has the ability to stop this by speaking out.”

But despite impassioned pleas from a succession of delegations urging a rethink, board members voted without dissent to accept officer recommendations to slash costs by almost £60 MILLION in an attempt to balance their books.

As ever, it’s the most vulnerable that will suffer most – the poorest communities, carers, older people … all will feel the effects of cuts of this magnitude.

The cuts will see projects cutting back the services they currently provide and in some cases will make redundancies inevitable.

Cuts to core funding will also limit match funding opportunities, and voluntary boards and management committees now face some dreadful decisions with the start of the new financial year less than two weeks away.

Other health and social care partnerships across the country are facing the same financial challenges:

NHS Lothian launches campaign to Stub Out Smoking on Hospital Sites

NHS Lothian has launched a striking new campaign to stub out smoking on hospital sites. Staff members across NHS Lothian hospitals have teamed up to urge patients, visitors and other members of staff not to light-up near hospitals.

They aim to create a healthier environment for patients, visitors, and employees and help protect those most at risk as they receive urgent care in hospitals across Lothian, including the Royal Infirmary of Edinburgh, the Western General Hospital, St John’s Hospital and the Royal Hospital for Children and Young People and Department of Clinical Neurosciences.

The campaign, titled “All Areas Are Smoke Free”, uses life size pop-up banners which feature seven members of staff asking people not to smoke on hospital premises.

The banners, which are strategically placed in high-traffic areas where the most smoking takes place, serve as a visual reminder of the importance of maintaining clean air and smoke-free environments.

Healthcare staff, who help deliver lifesaving care every day, are some of the most trusted and valued people in society and it is hoped that their direct appeal will make a difference.

Dona Milne, Director of Public Health and Health Policy, NHS Lothian, said: “Smoke Free Hospitals are about ensuring that our patients, staff and visitors can come to our hospitals and breathe clean air.

“Unfortunately, there are still areas on our hospital grounds where we know people are smoking. This is why we’re pleased to launch this campaign as part of our ongoing commitment to promoting health and well-being on our hospital sites.

“We hope to create a cultural shift towards smoke-free environments that prioritises the health of everyone who walks through our doors.”

All hospital grounds have been designated as smoke free areas since 2015. This was further enhanced in 2022 by the introduction of a £50 fixed penalty notice to those who smoke within the 15 metres of a hospital building.

NHS Lothian aims to amplify the reach and impact of the campaign and has been running Smoke Free information sessions with staff members to foster a supportive network committed to reducing smoking prevalence on NHS Lothian hospital sites.

Kate Thomas, a Radiologist at the Royal Hospital for Children and Young People who features in the campaign, said: “Children come to our hospital to be treated for asthma and cancer.

“We need them to breathe clean air. “Please do not smoke on our hospital grounds.”

Joanna Mackenzie, Consultant Clinical Oncologist, Edinburgh Cancer Centre, was also featured in the campaign and said: “I ask my patients to do the difficult job of stopping smoking before their head and neck cancer treatment.

“Please support our cancer patients by not smoking on our hospital grounds.”

Stephen Gallacher, Advanced Nurse Practitioner, A&E, St John’s Hospital, said: “Patients are being treated in A&E for serious, life-threatening and life changing conditions.

“It is not acceptable for our patients to be met with smoke when they come into hospital. Please do not smoke on our hospital grounds.”

Support for anyone who wants to stop smoking is available from the Quit Your Way service.

Dad’s Gift of Life: Father Donates Kidney to Save His Son

A loving dad has given his son an amazing second chance by donating his kidney to save him from an incurable disease.

James MacDonald, 57, gave his son the gift of life after Craig, 28, developed chronic kidney failure.

The disease had reduced Craig’s kidney function by a staggering 92% and his mum, dad, older sister and several extended family members stepped forward to save him from a future on dialysis.

James emerged as the most compatible match and the pair, from Livingston, West Lothian, underwent the lifesaving transplant operation at the Royal Infirmary of Edinburgh in February last year.

Now in time to celebrate World Kidney Day, Craig has made a full recovery, returned to work with his dad and the golfing buddies are closer than ever before.

James, a Manufacturer at a packaging company, said: “Craig and I are really close. We have worked together for many years, and I just wanted to give Craig his life back.

“I didn’t think twice about it and I think any father would want to do that for their child.”

Craig added: “I’m so thankful to my family, to my dad and to the transplant team for saving my life. The transplant experience has brought me and my dad even closer together.”

Craig’s journey with kidney issues began in childhood, but it wasn’t until a family holiday in 2021 that his symptoms became clearer. His mum noticed his ankles were swollen and insisted he see a doctor.

After visiting his GP, Craig was swiftly admitted to St John’s Hospital in Livingston with extremely high blood pressure as he was at risk of having a stroke.

Craig went on to be diagnosed with IgA nephropathyin November 2021 and was put on dialysis in October 2022. He said: “It was really scary being admitted to hospital so quickly and then being told that my kidney function was declining rapidly. I didn’t feel unwell which made it even more disconcerting.

“I felt way too young for this to happen and there was so much more I wanted to achieve in my life.”

James was identified as the optimal donor and in 2023, Craig and his dad underwent the lifesaving kidney transplant.

Craig’s mother, Carol, said: “I felt so helpless having my husband and my son in surgery. I was pacing up and down the hospital corridors just waiting to hear whether they were both okay.”

The operation was a success and within days, the transplant began making a visible difference to Craig.

James said: “He looked significantly healthier after the surgery – his face just lit up. “Before the operation, his kidneys were functioning at 8% and after one day post-surgery, his kidneys were up at 21%, it was amazing.

“Seeing him healthy and happy was the greatest reward any father could ask for.”

Since the operation, Craig has returned to work with his dad at the packaging company the pair go golfing regularly.

Craig said: “I’m now able to do what I want and I can finally lead a normal life. I’m just back from a golfing holiday with my dad and the experience has ignited an excitement within me for exploring the world more.

“I’ve been given a second chance and I want to enjoy every minute.”

Nina Kunkel-Howden, Live Donor Transplant Coordinator, NHS Lothian, said: “Craig’s journey is a powerful testament to the transformative impact of living kidney donation. Living donors really do change lives.

“We wish him and his family the very best.”

For details about organ donation, visit (opens a new window):

www.livingdonationscotland.org

NHS Lothian Announces New Chief Executive

Caroline Hiscox has been appointed to the post of Chief Executive of NHS Lothian, a position she will take up later this year following the retirement of the Board’s current Chief Executive, Calum Campbell, after 40 years’ service in the NHS.

With an exceptional career history in Nursing, Professor Hiscox has over 30 years’ experience in corporate and public sector clinical and senior leadership roles.  She is currently seconded to the role of Interim Chief Executive at NHS Tayside from her substantive role as Chief Executive at NHS Grampian, a post she has held for 3 years.

During her time at NHS Grampian, Professor Hiscox placed great importance on improving patient care, creating a healthy working culture and collaborating with other public partners in the region towards common goals.

Commenting on her appointment Professor Hiscox said: “These are challenging times for the NHS but I believe that by working together we achieve great things. I am delighted to be joining NHS Lothian whose teams already deliver the highest quality treatment and care.

“I look forward to working with them to explore new ways to transform services against a backdrop of rising demand. Our goal is to ensure that quality is maintained sustainably as we strive to further reduce health inequalities, improve outcome for patients and maintain joy in our work.”

Welcoming Professor Hiscox, NHS Lothian Chair John Connaghan said, ‘On behalf of the Board, I wish to congratulate Prof Hiscox on her appointment. 

“Caroline is a highly respected Board Chief Executive in NHS Scotland, with an impressive track-record in strategic and system leadership and a real focus on improving experiences for patients and staff. We look forward to working with her to build on the existing great work of our teams.”

Calum Campbell retires from his role as Chief Executive at the end of May and Jim Crombie, Deputy Chief Executive will lead as Interim Chief Executive until Professor Hiscox takes up her new role later in the summer.

Preventing childhood obesity

Scottish Government funding to help families

Projects that work with children and families to prevent childhood obesity and reduce health inequalities are benefitting from more than half a million pounds of investment.

Ten projects across Scotland will share £538,141. The funding is allocated to initiatives such as Little n Lively – run by NHS Lanarkshire – which provides families and young children in the area with practical skills and information on nutrition and cooking and increased opportunities for physical activity and expanding social networks.

This year a number of health boards, including NHS Orkney and NHS Shetland, are continuing or implementing the ‘HENRY – Healthy Families Right from the Start’ programme which helps parents and carers with children up to five years old to provide a healthier, happier start in life.

The internationally adopted, evidence-based package provides support with family emotional wellbeing and information about nutrition, physical activity and oral health.

The funding is part of the Scottish Government’s commitment to ensure all children have the best start in life and the projects support the ambition to halve childhood obesity in Scotland by 2030.

Speaking on World Obesity Day (Monday), Public Health Minister Jenni Minto said: “Preventing the causes of ill health is an important part of our efforts to make the health service sustainable in the years to come. That includes addressing obesity, particularly as we know good nutrition and physical activity is crucial for children’s health and development.

“We want Scotland to be the best place in the world for a child to grow up, and these early years projects are crucial to our bold ambition of halving childhood obesity by 2030.

“These ambitious and effective projects will also help tackle inequalities by working with families and communities to encourage healthy eating and offering support for those experiencing food insecurity.”

Health Improvement Adviser for NHS Shetland, Fern Jamieson said: “The continued early years funding from Scottish Government has enabled NHS Shetland and partners to continue delivery of the HENRY ‘Healthy Families Right from the Start’ programme to more families across Shetland.

“Healthy Families Right from the Start is an 8-week programme to support parents and carers with children between 0-5 years to provide a healthier, happier start in life. Parents and carers have the opportunity to join online or face-to-face groups, providing improved access across Shetland.

“We have had reports that the programme is very interesting, enjoyable and a good opportunity to share ideas with others which has helped in making healthy changes across the whole family.

“With over 20 groups across Shetland, we are engaging with communities to deliver our standalone HENRY workshops. Feedback has been very positive and parents and carers feel more confident at mealtimes, understanding behaviours and cooking cost effectively.”

Projects receiving funding in 2023/24 are:

NHS Ayrshire & Arran: JumpStart Tots – £76,828

NHS Dumfries & Galloway: A whole systems approach with a focus on Early Years – £11,400

NHS Grampian: Training and support for a group of multi-agency professionals across Aberdeenshire to deliver the HENRY approach – £15,000

NHS Grampian: Upskill relevant teaching staff to deliver the Grow Well Choices Early Years programme – £15,000

NHS Greater Glasgow & Clyde: ‘Thrive Under Five’ programme – £66,000

NHS Lanarkshire: ‘Little n Lively’ programme in partnership with Healthy Valleys – £141,492

NHS Lothian and NHS Fife:  Continued delivery of HENRY core training to early years workforce  – £115,700 (£96,400 for Lothian, £19,300 for Fife)

NHS Orkney: Training and support for practitioners to deliver the HENRY approach – £24,058

NHS Shetland: Training and support for practitioners to deliver the HENRY approach – £23,400

NHS Tayside: Refreshing the Eat Well Play Well programme – £49,263

The Scottish Government published the Diet and Healthy Weight Delivery Plan in July 2018.

Boyack slams Scottish Government over ‘disgraceful’ treatment of Lothians heart patients

Labour Lothians MSP, Sarah Boyack today slammed the Scottish Government for failing patients suffering with heart and circulatory disease.

Stats given to Ms Boyack by British Heart Foundation Scotland revealed there has been a 71% increase in people in the Lothians, waiting for an echocardiogram since 2021.

This is compared to an increase in 16% for Scotland as a whole.

Seven individuals have been revealed to be waiting over a year for the scan.

The concerning figures also stretch to outpatient cardiology appointments, where it was revealed in September 2023, that 55% of people were wating longer than the 12-week Scottish Government target.

These statistics come as it was revealed by NHS Lothian Board papers that NHS Lothian must make savings of 7%.

The papers also highlighted that the Scottish Budget also provided “no additional resource to cover inflationary costs and other new and emerging cost pressures”

Commenting on these statistics, SARAH BOYACK said: “These figures highlight the Scottish Government’s disgraceful failures in regard to heart and circulatory disease patients.

“It is even more troubling that while the situation is getting worse, the Scottish Government will not provide any additional resource to NHS Lothian.

“This is particularly worrying given Lothian’s population growth.

“If the Scottish Government does not act urgently, then this situation will continue to spiral into an emergency.

“People suffering heart and circulatory diseases deserve the top notch care our NHS is supposed to deliver.

“Instead, they are forced to endure unacceptable delays due to the Scottish Government’s lack of investment.

“If the Scottish Government doesn’t deliver additional funding soon, they will be letting down heart condition patients across the Lothians.”