Funding boost to support autistic people

Two specialist organisations will receive additional funding to support 47,000 autistic people across Scotland during the coronavirus (COVID-19) pandemic.

Health Secretary Jeane Freeman has confirmed:

  • £160,000 to increase capacity in the Scottish Autism Helpline
  • £45,000 for the National Autistic Society to help people keep in touch online during lockdown

The Health Secretary said: “Autistic people find the extreme change in their daily lives more difficult to deal with, which is why we have fast-tracked this funding to improve the consistency and availability of support. These are unprecedented times and it is important autistic people know this support is there to help them and how to access it.

“This funding will help organisations provide autistic people and their families with a source of up-to-date information to manage their physical and mental health and wellbeing, as well as reduce social isolation by helping them forge sustainable and meaningful relationships.”

Charlene Tait, Deputy CEO at Scottish Autism, said: “During these uncertain and challenging times, our aim is to provide reassurance, guidance and support to autistic people and their families across Scotland. 

“These extra funds will allow us to extend our Autism Advice Line offering, enabling us to increase our operating capacity to seven days a week, 8am to 8pm.  We are all too aware of the impact this crisis is having on the emotional, physical and mental wellbeing of autistic people and their families. This funding will enable us to reach out and support people at this difficult and stressful time.”

Nick Ward, Director at the National Autistic Society Scotland, said: “We are very grateful to the Scottish Government for their work throughout this crisis to support autistic people and their families.

“With this funding we can drastically increase the number of online Social Groups, where people can meet and talk about the things that are important to them, form meaningful relationships and feel more connected. Our staff will also be on hand to offer support and tips around managing mental health and well being and importantly staying safe.”

Blair Spence, 19, of Maxwell Park, Glasgow, said: “I’ve been going to the Social Groups for about 9 months, they’ve really helped my confidence and conversation skills as well as make new friends. 

“The new online groups have been really fun. There are about 10 of us in the group and it works really well. It’s good to stay in touch with other people and we’ve done some exciting things with the group leaders like a virtual tour of an Aquarium and around San Francisco including going across the Golden Gate Bridge! 

“I really look forward to the weekly online groups and I would recommend to other autistic people to give them a go.”

Additional funding of £159,920 over a four-month period will allow the Scottish Autism Helpline to open 8am-8pm, seven days a week on 01259 222022.

National Autistic Society Scotland will use £45,057 to fully redesign face-to-face services onto an online platform, NAS Connect, to provide support during the COVID-19 pandemic.

The website will bring people together through interests such as film, books, arts, cooking, quizzes and computer games by facilitating social groups, coffee clubs and branch meet-ups that are unable to meet face to face at this time.

I-am-autistic-A5-PRINT

The A Word: Series three returns on Tuesday

Two years on and things have changed for our A Word family. Joe is 10 years old and living in two places at once, processing the seismic change in his life through the filter of his autism.

His parents Alison and Paul are divorced and live 100 miles apart. Nicola has moved to London, Eddie lives with his dad. Only Maurice is holding it together. And if Maurice is the one holding it together, you know you are in trouble.

A family is always a puzzle and this one needs piecing back together, albeit in a different shape.

New faces joining this series include Julie Hesmondhalgh, Sarah Gordy and David Gyasi.

Filming for the new series of The A Word took place in the Lake District and Manchester.

The A Word series three returns on Tuesday 5 May at 9pm on BBC One and the full boxset will be available on BBC iPlayer.

You can catch up on series one and two on BBC iPlayer right now.

Council support for young people at home

Advice and support for young people and their families in Edinburgh who may be struggling at home during the pandemic is available from thr city council’s team of educational psychologists.

We understand that this is a worrying time for everyone and that with the current school closures, children and young people may feel particularly unsettled.

Although we’ve all had a few weeks to make some adjustments and try to cope with the changes in our lives there will be young people and families who are struggling.

Our team from Psychological Services are offering advice and support to:

  • parents and carers
  • school staff and other professionals who would like support or advice in supporting the learning and wellbeing of our children and young people
  • older children and young people who would like advice on how they manage their home learning and wellbeing

They have produced a guide which provides key messages and recommended resources which you might find helpful.

Some of the key ways to help you cope with the situation include: talk to each other, create routines, keep learning, keep active and plan regular movement time, stay connected virtually with friends and families and take care of yourself the best you can.

The advice from Psychological Services is part of a package of support measures for families in lockdown that we have published on our website. Other online resources focus on parents/carers, early learning and childcare, school age children, digital learning and our own set of handy activities for families to do at home.

In addition the Council – along with third sector partners, wider community and voluntary sector – has been supporting vulnerable families across the city with deliveries of emergency food parcels, overnight respite care for children with special needs, specialist day services and opening two special school hubs for key worker children.

Council Leader Adam McVey said: “These are very unusual and uncertain times for everyone especially for our young people whose regular daily routines that they are so familiar with have changed dramatically.

“There might be times when they are feeling safe and happy, or other times when they feel overwhelmed, anxious or low. For many of us feelings can change from day to day, hour to hour, or minute to minute. So it’s important we do all we can to support young people and their families when they are staying safe at home so they can cope with this unprecedented situation.

Depute Leader Cammy Day said: “There’s lots of information out there just now so it can all feel a bit overwhelming knowing what’s the best advice for you to follow. The most important thing is to look after yourself, and those around you, and support each other through these uncertain times.

“Whether you’re a young person, or an adult providing support, our team of educational psychologists are happy to speak to you if you want support or advice – please don’t hesitate to contact them if you need help.”

There are a range of ways you can contact our Psychological Services team:

  • Call 0131 469 2800 (Monday to Friday 9am-5pm) and leave a message with your name, number and child’s school and one of our educational psychologists will call you back as soon as they can
  • Email us at psychologicalservices@ea.edin.sch.uk and include your name and child’s school. One of the team will email you back as soon as they can
  • Follow us on Twitter @CEC_EPS where we are sharing advice and resources that you may find helpful
  • Visit our website where you can access guides to help young people and parents/carers cope with home learning and being at home

New online support hub launched for people with post-COVID breathlessness

Asthma UK & British Lung Foundation have launched an online Post-COVID HUB and dedicated helpline to support people affected by breathing difficulties after COVID-19.

While evidence on the long-term health effects of COVID-19 is still emerging, a range of early studies have suggested that people hospitalised with severe symptoms from the virus are developing chronic respiratory symptoms.[1]

Post-Covid.org.uk, is a site for patients, healthcare professionals and researchers. It aims to bring experts together to lead ground-breaking research, to better understand the long-term effects of COVID-19 on respiratory health and provide a central point for health information and advice for patients.

Joseph, Head of Asthma UK & British Lung Foundation Scotland, said: “As a respiratory charity, we support the thousands of people across Scotland who have breathing difficulties. We understand the toll it can have on people’s lives and the concern many have about the long-term effects COVID-19 will have on their lung health.

“At a time when the NHS is under immense pressure, we want to ensure anyone who’s respiratory health is affected post-COVID can get the help and support they need. That is why we are proud to be launching our Post-COVID HUB.

“The HUB is the first of its kind in the UK. It brings together patients, researchers, and healthcare professionals to provide the latest information on the impact of COVID-19.  We also want to ensure that research and clinical services develop so we can effectively treat any new chronic breathlessness emerging from this crisis.”

The hub is also supported by academics, professional bodies, and respiratory experts:

Professor Jon Bennett, Chair of the Board of Trustees at the British Thoracic Society, said: “We support the launch of the Post-COVID HUB, which will be critical in assessing what care people need post-COVID. Many people are suffering an acute severe lung injury with some ending up in intensive care, and we know that this can have an impact on people long term. 

“We urgently need post-COVID care research and guidelines, to ensure we know what the best treatments are ongoing, and that people can access appropriate support and maximise their recovery.”

Carol Stonham MBE, Chair of the Primary Care Respiratory Society & Senior NHS Nurse Practitioner (respiratory) said: “We welcome the introduction of the Post-COVID HUB. These are times of rapid change with many people recovering from sudden episodes of severe illness requiring critical care, then returning to community or primary care for ongoing management.

“Some will sustain ongoing lung damage, others psychological trauma. The sharing of resources allows clinicians to care for people safely and effectively wherever care needs to be delivered.”

Greens raise concerns around home-care support

Lothian MSP Alison Johnstone has called on the region’s Health and Social Care Partnerships to urgently address concerns around the reduction in provision of home-care support, which has left many disabled people in an extremely difficult position.

Reports suggest that the Lothian region’s Health and Social Care Partnerships have reduced their visits by 356 in total, leaving many vulnerable people struggling to cope – a matter the Scottish Greens raised in parliament this week.

Alison Johnstone MSP said: “The figures published this week raise major concerns, There is huge disparity around the country, with the City of Edinburgh Health and Social Care Partnership reducing their clients by 240, East Lothian by 44, Midlothian by 24, and West Lothian by 48, while at the same time Angus increased its by 80.

“The Scottish Government confirmed that extra support is available and that if more is needed it will be provided, so our Health and Social Care Partnerships must confirm that they will immediately access this support and restore home care visits.

“I’m extremely concerned about the impact of these changes, which result in some people having their support packages dramatically reduced, and others losing support entirely, with many then forced to rely on family members for personal care, meals and medication.

“The impact on the mental wellbeing of disabled people, particularly in terms of social isolation which can disproportionately affect disabled people, is a huge concern. While its vital that care is restored as quickly as possible, the immediate roll-out of online or remote mental health resources would be really valuable right now.”

 https://www.bbc.co.uk/news/uk-scotland-52415302

First Minister urged to put wellbeing at the heart of economic recovery

Poverty Alliance and Wellbeing Economy Alliance have written to the First Minister to urge her to task the recently appointed Advisory Group on Economic Recovery with putting social justice at the heart of their work.

Their letter says:

Dear First Minister,

Economic Recovery and Covid-19

Since the start of the Covid-19 crisis, we have witnessed in action the values that we all share. We have seen the compassion, kindness and solidarity that will be required to make it through this crisis.

But we have also seen that our economy is failing to live up to these values. Our social security system and labour market have failed to protect too many of us: particularly women, disabled people and people from black and minority ethnic communities.

It is clear that as we move through and beyond the current phase of the crisis, we must commit to redesigning our economy and systems to better reflect our shared values of compassion and justice. Instead of returning to the economy we had going into the Covid-19 crisis, we must build back better by creating a wellbeing economy that puts our collective wellbeing first.

We therefore welcome that the Scottish Government’s Covid-19: framework for decision making recognises the need to look at the “social and economic reforms necessary to achieve the best future for Scotland” and commits not to repeat the mistakes of austerity.

This commitment is most welcome but must be made real.

In the months ahead we urge you to maintain your ambitious climate agenda to ensure the post-Covid-19 economy is a sustainable one, and to ensure it is socially just we urge you to prioritise:

  • Building a labour market that works for everyone: Too many people, particularly women and younger people, are trapped in poverty by low-paid and insecure work. Fair Work has been central to the Scottish Government’s approach to labour market policy, but more must be done to make it a reality for workers in Scotland.
  • Designing a more just taxation system: While this crisis is impacting every person across the country, the disproportionate impact on people on low incomes has highlighted the very real consequences of our deeply unequal society. It cannot be right that the wealthiest 1% of households in Scotland own more wealth than the poorest 50% at a time when almost 1 in 4 children are living in poverty. We must inject justice and fairness into our taxation system.
  • Securing adequate incomes for all: We have seen positive steps taken by the Scottish Government as it has started to deliver social security assistance. However, Covid-19 has highlighted that this support must not only be dignified, but should help deliver an adequate income too. The Scottish Government must use its powers creatively and to their fullest extent to ensure that our social security system can keep any one of us afloat during difficult times.

Even at this moment of crisis we must begin the task of investing in a better future, to ‘build back better’, with every policy decision we make helping us move towards a just society that’s in step with our values.

We must not return to the pre-Covid 19 economy that locked so many people into poverty.

The Advisory Group on Economic Recovery must not, therefore, simply seek to replicate the unsustainable and unjust economy that went before.

Instead, it must focus on the steps we can take to create an environmentally sustainable economy that ensures a just distribution of income and wealth.

We urge you to task the recently appointed Advisory Group on Economic Recovery with putting social justice at the heart of their work. In doing so the Advisory Group should liaise with the Poverty and Inequality Commission and the Just Transition Commission and collaborate with existing Wellbeing Economy Governments (WEGo) partners to show leadership in creating a wellbeing economy.

This time calls on us to reflect on the kind of country we want to live in. We believe in a Scotland in which wealth is justly distributed, our life chances are not determined by how much we earn, where our labour market guarantees Fair Work for every worker, and where everyone has enough money to get by.

We hope you share this vision and will take the decisions in the weeks and months ahead to make it a reality.

We would welcome an early discussion with you regarding the role of the Advisory Group, as well as the broader concerns of our members regarding the long-term social and economic reforms we require.

Yours sincerely,

Peter Kelly, The Poverty Alliance
Dr Katherine Trebeck, Wellbeing Economy Alliance

Remembering the workers who lost their lives to Covid-19 at work

Today is International Workers’ Memorial Day, when trade unions around the world remember workers who lost their lives and commit to keep the living safe.

This is the story of Peter, Mary, Cheryl, Zeeshan and Emeka – five UK workers who were taken by Covid-19.

Today is International Workers’ Memorial Day, when trade unions around the world remember workers who lost their lives and commit to keep the living safe.

This year we especially remember the frontline workers who lost their lives to Covid-19 while looking after our loved ones and keeping our country running.

We will be forever in debt to the workers who have died during this pandemic – our nurses, doctors, care staff and other essential workers.

Remember the dead, fight for the living.

Minute’s silence

At 11am today – Tuesday 28th April – take part in the minute’s silence.

It will be a moment to pay tribute to the sacrifice made of so many workers during the pandemic, to remember those who’ve sadly lost their lives, and to thank all those who continue to do vital work at great risk.

The initiative is supported by the government, and reps may wish to request employers mark it, by asking the workforce to cease work for one minute at 11am.

Help spread the word about the minute’s silence, by encouraging as many friends and colleagues to take part, whether in their workplace of at home.

You can quickly spread the word by posting this tweetsharing this Facebook status or asking your contacts on WhatsApp to join you in taking part in the silence.

UNISON general secretary Dave Prentis said: “For every minute this pandemic continues, people are making extraordinary sacrifices to keep us safe and run our vital services.

“The least we can all do is spare a moment to pay our respects and show our gratitude to all the key workers who have lost their lives.”

The silence is also an opportunity to think about all those workers who are continuing to keep the country safe and functioning, says UNISON.

Society of Occupational Medicine calls for a goal of zero workplace deaths due to COVID-19

As the COVID-19 pandemic continues, The Society of Occupational Medicine (SOM) is today renewing its call for the UK government to prevent any further work-related deaths.

Scores of UK healthcare workers have already died from COVID-19 infections and their deaths will be marked today at 11am with a moment’s silence. But at SOM, we do not believe that work-related fatalities due to COVID-19 exposure are inevitable. In fact, we believe a goal of zero work-caused fatalities is achievable.

Today is the World Day for Safety and Health at Work, an initiative supported by the United Nations. SOM backs the aim of raising awareness on the adoption of safe practices in workplaces and the role that occupational safety and health (OSH) services play.

As politicians discuss the end of the lockdown and people plan their return to work, we believe it is essential that all employers conduct risk assessments to ensure the safety of all employees.

With the proper application of safe systems of work and the use of a hierarchy of control, no worker should die of work-acquired COVID-19.

Concern has been raised about the shortcomings of and lack of personal protective equipment (PPE), but PPE should be considered the lowest form of protection. Employers must consider a range of controllable factors in the work environment and this includes the use of design, engineering and administrative controls.

SOM is calling for robust and increasing access to occupational health (OH). The need for advice from occupational health doctors, nurses, physiotherapists, psychologists, hygienists, ergonomists etc. is required. The need to protect our workers has never been greater and is the core role of OSH.

SOM is also supporting a multidisciplinary drive across sectors to raise awareness, share knowledge and engage employees in solutions. It is encouraging workplaces to design-in exposure prevention measures as advised by the Health and Safety Executive – helping employees take the opportunity to better understand the risks and demonstrate good practice in their work.

Dr Will Ponsonby, Society of Occupational Medicine President said: “The UK could and should have aimed for a target of zero work-caused fatalities in this pandemic. The need to protect our workers has never been greater, and that goal must be put in place as the foundation for all future planning.”

Perfect plants for relieving stress

Stressed out Scots are being offered advice on the best plants to have in their home and garden. Gardening experts at GardeningExpress.co.uk have put together their top plants for creating a less stressful environment.

Well known stress relievers all make the list including Lavender, Chamomile, Jasmine and Evening Primrose. Other less well known but just as effective include Peppermint, Areca Palm, and even Aloe Vera, which is more commonly used for its soothing and healing properties.

A spokesperson for GardeningExpress.co.uk said: “Life is stressful enough, so anything natural we can add to our gardens or inside our home to alleviate some of that has to be a good thing.

“Plants like Lavender and Chamomile are very easy to grow in the garden and require very little care. As well as having great stress relieving properties, they look and smell amazing too.”

Here are GardeningExpress.co.uk top ten stress relieving plants:

1. Lavender

Just the smell and sight of lavender is enough to calm some people. Lavender oil is great for treating anxiety and depression. They’re also very easy to grow in the garden and picked up for pennies.

2. Peppermint

Peppermint lowers frustration and helps boost alertness. It’s also great at relieving tired or overworked muscles.

3. Chamomile

Drink as a tea and Chamomile will help reduce inflammation. It’s also very well known for easing anxiety and aiding a good night’s sleep.

4. Aloe Vera

Aloe Vera has many medicinal and soothing properties and it’s also one of the most powerful plant air purifiers around. The plant is great to have around if you suffer from anxiety and helps relieve worry and stress.

5. Rosemary

Often using in cooking, Rosemary improves air quality, memory function, reduces stress and alleviate anxiety.

6. Areca Palm

This air purifying palm removes any unwanted toxins and adds moisture to the air. Breathing in cleaner air helps to lower anxiety and blood pressure, with positive effects on our mental health and wellbeing.

7. Chrysanthemum

As well as adding a splash of colour to your home, Chrysanthemums are said to purify the air and lessen the symptoms of worry and stress. It also has lots of medicinal properties including the treatment of high blood pressure, colds, headaches and dizziness.

8. Jasmine

Sweet smelling Jasmine helps promote sleep, meaning you feel fresh and alert and much less anxious.

9. Evening Primrose

This yellow wildflower is said to balance hormones. When your hormones are balanced, you should experience less depression and irritability.

10. Sunflowers

The bright yellow head of a beautiful Sunflower is enough to make everyone smile. The seeds also contain tryptophan, an amino acid that produces serotonin, also known as the happy hormone, which helps improve mood.

New fund for perinatal mental health

poverty family JRF

Mums, dads and families at risk of poor mental health during pregnancy and the early years will be able to access enhanced peer support, parenting support and perinatal counselling services, with new annual funding of up to £1 million.

The Perinatal and Infant Mental Health fund will provide crucial help by supporting third sector organisations to deliver key services and address gaps in provision.

Inspiring Scotland will run the fund – which will open to charities from August – and will work with the Scottish Government to achieve the goals of the Perinatal and Infant Mental Health Programme Board.

Minister for Mental Health Clare Haughey said: “The third sector provides an invaluable source of support for the mental health of women, babies and their families during pregnancy and early parenthood.

“Last year, the Scottish Government provided funding to support the work of third sector organisations in this area and I am delighted that we are able to build on this with the new Perinatal and Infant Mental Health Fund.

“The fund will allow one-to-one support for organisations to help provide the services that women and their families need across Scotland.”

Inspiring Scotland Chief Executive Celia Tennant said: “We are delighted to be supporting the Scottish Government with this important new third sector fund for Perinatal and Infant Mental Health charities.

“We know how vital the perinatal period is for families and how crucial the early years are for infant development. Charities across Scotland are doing essential work, and with the uncertainty caused by coronavirus (COVID-19), their work is more important now than ever.

“We look forward to continuing our support of the third sector and their support for infants and families at this crucial stage of life.”

The application process for the Perinatal and Infant Mental Health Fund will open on 5 May 2020.

The fund will run for three years, from August 2020 – March 2023.

Third sector organisations interested in applying to this fund, should register online. 

Heart Research UK: Healthy Heart Tips

Heart Research UK Healthy Heart Tip, by Dr Helen Flaherty, Head of Health Promotion at Heart Research UK

Physical activity for adults while staying at home

At a time when gyms are closed and the population is being asked to stay at home, finding ways to keep active can be challenging. Regular physical activity is strongly associated with a reduced risk of chronic conditions, such as cardiovascular disease, obesity and type 2 diabetes as well as improving mental health.

Even small increases in physical activity can positively impact on health. Heart Research UK have some tips to help you meet the recommended amount of physical activity while staying at home.

How much physical activity is recommended?

The Government recommends at least 150 minutes of moderate intensity or 75 minutes of vigorous intensity activity each week.

It is also recommended that adults engage in strengthening activities on two days each week, such as lifting weights or press ups. If you are not yet in the habit of doing this amount of physical activity, you can start small and build up to the recommended amount over time.

Moderate Intensity Activities

(150 minutes weekly)

Your heart will beat faster, you will breathe harder, you will get warmer and you can probably maintain a conversation

E.g. Brisk Walking or cycling

Vigorous Intensity Activities

(75 minutes weekly)

Your heart will beat rapidly, you will breathe much harder, you will get warmer and it will be difficult to have a conversation

E.g. Running or football

Replace your daily commute with physical activity

If you are working at home, you may be saving time that would normally be spent on commuting to and from work. Why not put this time to good use by scheduling in some physical activity. For example, you could go for a brisk walk, jog or cycle outdoors or walk briskly around the house, including going up and down flights of stairs.

Find a range of exercises you can do inside your home

Find exercises that you can do in short bursts of ten minutes or more, at regular intervals throughout the day. For example, you could try some gentle weight-lifting, using cans of baked beans. The NHS provide tips for exercising without gym equipment on their Website

Don’t be a couch potato

Rather than spending your evenings sitting on the sofa without moving much, why not try a few gentle exercises, such as leg raises, while watching your favourite TV show.

Examples of some exercises you can do from your sofa can be found on the NHS website, and you can find lots more healthy tips, advice and recipes at heartresearch.org.uk.