Tag: carers

The Treasure We Seek

New partnership launches new website for carers of people with dementia

This week a partnership between Edinburgh charity Hearts & Minds, Designed by Society, Wee Culture and Edel Roddy launched a new website with valuable resources for unpaid and professional carers of people with dementia and anyone who has an interest in care for people in the later stages of dementia.

All of the partners have direct experience of working in the area of later stage dementia and developing resources. The project was funded by Dementia Series Development Trust.

The Treasure We Seek Project is based on the principles of the work of Hearts & Minds Elderflowers who use the art of therapeutic clowning to encourage moments of engagement, communication and movement with ladies and gents with dementia. The project took those principles and developed two sets of resources ‘Valuables’ and ‘Treasure Hunt’ 

Project Lead Edel Roddy explained: “The Treasure We Seek website was launched this week offering two free resources for people to feel connected to people living with later stage dementia.

“The resources have been developed with the hope they will be useful across a range of settings including schools, community groups, carers organisations and care settings, and we were thrilled with people’s responses. 

“Initial feedback highlighted that people have started to develop ideas about how they will try out the resources, and potentially make them their own, with friends, family and in work settings. Attendees at the launch even helped us think about other contexts in which these resources could be used, the possibilities of which feel exciting. 

“If you missed the launch you can find the resources on www.thetreasureweseek.net  and we’d like to hear from anybody who tests them out or has thoughts or ideas about this work they’d like to share.”

These resources will help relatives and professionals to cope and care and also to evaluate how they feel and take notice of their own wellbeing so they don’t feel stressed or isolated.

The Treasure We Seek website: www.thetreasureweseek.net

ABOUT THE PARTNERS:

Hearts & Minds

Hearts & Minds is an award winning Scottish charity that works in collaboration with paediatric healthcare units, respite centres, schools for learners with complex additional support needs and Dementia units to deliver laughter, friendship and support to those who need it most.

Our Clowndoctors Programme supports children and young people to cope with life in a hospital, hospice or respite care setting and in schools for learners with complex additional support needs.

Our Elderflowers Programme helps people living with dementia or dementia-related conditions in hospitals and residential care homes.

Through playfulness, smiles and laughter, we help all of these vulnerable people to deal with the anxiety, fear, confusion and sadness that their situations and conditions may bring.

https://www.heartsminds.org.uk/

Designed by Society

Dr Gayle Rice is an experience researcher and designer for Designed by Society. Her research background is qualitative and creative and focuses on people’s current and desired experiences. Her design practice involves designing to enable improvements in people’s experiences of social interactions.

Wee Culture

Belinda Dewar is a registered nurse, researcher, educator and practice developer with a career spanning over 30 years. She is currently Director of Wee Culture which aims to support people to explore and enhance culture.

She previously held the position of Professor of Practice Improvement at the University of the West of Scotland and the Lead for My Home Life Scotland.

The Dementia Series Development Trust 

Dementia Series Development Trust is a charity with a vision to improve the lives of those living with dementia through the funding of activities which support this aim.

The Principles which guide the work of the DSDT are:

  • Proactive 
  • Pump priming 
  • Partnership

The Disruption Award funds projects which strive to disrupt some of the old ways that people think about dementia, and communicate new ideas that reframe it.

Committee considers plans for additional payment for Scotland’s unpaid carers

Plans for an additional payment for some unpaid carers are being considered by the Scottish Parliament’s Social Justice and Social Security Committee.

The Carer’s Allowance Supplement (Scotland) Bill will double the Carer’s Allowance Supplement (CAS) to be paid in December. It will also give the Scottish Government power to increase the allowance in the future.

According to the Scottish Government, this change will help ease some of the economic harm which has affected the estimated 83,000 carers who currently receive the allowance.

Now the Committee wants to hear from carers support groups and others about whether this change will have the impact it is hoped.

Committee Convener, Neil Gray MSP said: “The devastation caused by Covid has been felt throughout our towns and communities. It has been hard for people in so many ways, and it is important that those most affected are recognised and offered the support they need. 

“This Bill wants to address some of the extra burden unpaid carers have taken on by increasing the level of the Carer’s Support Allowance. But what impact would this have on those facing unimaginable hardship as a result of Covid? 

“We want to hear from those working closely with carers about what this will mean in practice and whether the additional payment is the most appropriate way to support unpaid carers. We also want to learn whether people think the Scottish Government should have more flexibility to change this payment in the future.” 

Carer’s Support Allowance is targeted at those who have an intensive caring role and lower financial resistance. Although there are estimated to be around 690,000 unpaid carers, only an estimated 83,000 carers are eligible for the allowance.

Paid twice a year, the current payment is £231.40. The Bill would double the December 2021 payment. 

To submit your views:

  https://yourviews.parliament.scot/ssc/carers-allowance-supplement by 12 August.

Double payment for unpaid carers

Thousands of unpaid carers will receive a double payment this winter under legislation recognising the additional pressure they face as a result of the pandemic. 

If approved by Parliament, the Bill, published today, will mean more than 91,000 carers in receipt of Carer’s Allowance Supplement will receive an extra £231.40, doubling their December payment to £462.80.

This extra investment, forecast to be £21 million, will be the second time the Scottish Government has doubled the Carer’s Allowance Supplement.

The Carer’s Allowance Supplement (Scotland) Bill, a priority for action within the first 100 days of this government, will also give Ministers powers to provide eligible carers with additional financial support in future if the need arises.

Social Security Minister Ben Macpherson said: “Unpaid carers provide essential support to family, friends and neighbours. Their roles have been even more important during the pandemic, with many taking on additional tasks and facing higher costs of looking after people staying at home to prevent the spread of Coronavirus (COVID-19).

“The Scottish Government is grateful to all carers for their dedication during this most difficult of times.

“We introduced the Carer’s Allowance Supplement in 2018 in recognition of the vital role unpaid carers play in our society, and because the UK Government’s Carer’s Allowance is the lowest of all working age benefits. The supplement, paid twice a year, is only available in Scotland and has already helped thousands of carers in recent years.

“Like we did last year, this December we want to provide a double supplement of £462.80 to support unpaid carers with the additional pressures they’ve experienced because of the pandemic. This will benefit carers on low incomes who already have some of the most intense caring roles. This financial assistance adds to the other ways we are helping unpaid carers, who can also access support through their local carer centres, such as information, advice, counselling and advocacy services.”

Paul Traynor, Head of External Affairs at Carers Trust Scotland, said: “There is significant evidence that unpaid caring impacts upon physical and mental health and this has been exacerbated by COVID-19, resulting in many unpaid carers having to significantly increase the hours of care they provide.

“This additional payment of Carer’s Allowance Supplement, which will provide additional financial support, has the potential to reduce some financial pressure and goes some way in continuing to recognise the immense contribution of unpaid carers in Scotland.”

Sebastian Fischer, VOCAL Chief Executive, said: “Unpaid carers have faced enormous challenges during the pandemic. They continue to prop up the health and social care sector and shoulder the impact of additional caring responsibilities through this difficult period.

“Creating measures of support which deliver real impact to carers’ daily lives is much needed. We believe the Carer’s Allowance Supplement is a positive step towards valuing the role of carers as equal partners in care and recognising their crucial contribution to Scotland’s economy.”

£250,000 recovery fund for Capital’s carers

The City of Edinburgh Council and VOCAL, Voice of Carers Across Lothian, have announced a new Carers Recovery Fund.

Recognising the impact of the COVID-19 pandemic on unpaid carers, the City of Edinburgh Council has committed to an investment of £250,000 to support unpaid carers. VOCAL will serve as the lead partner, managing the delivery of the fund.

Prior to the pandemic, 65,084 people in Edinburgh had caring responsibilities, 13.7% of the population. For many their caring role increased massively and it is estimated that across Scotland nearly 400,000 additional citizens took on caring responsibilities.

Research released for Carers Week by the Carers Week charities found that 71% of unpaid carers in Scotland have not had any breaks from their caring role during the pandemic.

Of those who got a break, over a third (36%) used the time to complete practical tasks or housework, and almost a quarter (24%) to attend their own medical appointments.

Three quarters (77%) reported being exhausted as a result of caring during the pandemic.

More than a third (36%) said they feel unable to manage their unpaid caring role.

The Carers Recovery Fund is an important step towards further investment in carers as the largest providers of care in our communities. The Fund will be allocated as a one-off payment to individual carers, and can be used to support carer health and wellbeing, enable carers to take a short break and to improve the financial wellbeing of carers.

Cllr Joan Griffiths, Carers Champion for the City of Edinburgh Council, said: “I’m so pleased we’re investing £250k in this Carers Recovery Fund in recognition of the extra challenges and additional pressures they have faced during the pandemic.

“Many carers have been unable to get a break from their role and have suffered a loss of support networks so this one off investment recognises the dedicated, unheralded and unpaid work they do.

“This funding is really important in the current climate especially for young carers who have been badly affected by not being able to meet their friends through lost school time. Anything we can do to support them is welcome news and we look forward to working with VOCAL on this project.

“The Carers Recovery Fund is part of a wider £21m package boosting our work for core ambitions of the Council – tackling poverty and inequality, boosting sustainability and enhancing wellbeing for everyone here in Edinburgh.”

Sebastian Fischer, Chief Executive of VOCAL said: “We look forward to working with the City of Edinburgh Council to administer the new Carers Recovery Fund for unpaid carers across the city.

“As the Carers Week report has shown, many carers have not been able to access a break due to the pandemic. Now, more than ever, the health and social care system relies on unpaid carers.

“It is vital that their right to regular breaks is recognised. This investment is a statement of intent and will have a positive impact on the lives of individual carers across different caring roles.”

New report finds one third of carers are struggling to cope

Our new research finds that 72% of carers have not had any breaks from their caring role during the pandemic

Our report Breaks or breakdown, released for Carers Week, found that the COVID-19 pandemic has had a significant impact on carers’ ability to access breaks. More than a third (35%) of people caring unpaid for family members or friends feel unable to manage their caring role, and three quarters (74%) reported being exhausted as a result of caring during the pandemic.

https://technology-trust-news.org/15AY-7EFBE-259UKT-4GQ2KM-1/c.aspx

The report also found that carers lost, on average, 25 hours of support a month they previously had from services or family and friends before the pandemic and that fewer than one in five (14%) are confident that the support they relied on before the pandemic will continue in the future.

Read the report

This Carers Week, we’re campaigning to increase funding for carers’ breaks. Nearly 900 people have now written to their MP asking them to raise the need for better breaks support in Parliament.

If you’ve not yet joined our campaign, click the button below:

Join the campaign

What Do I Need?: Carers Voices

Hearts & Minds charity launched their short film What Do I Need?: Carers Voices online yesterday. 

This is the culmination of their PLAY COPE CARE Workshop Project for carers at home, which they developed developed with carers organisations across Scotland, and with funding from BUPA UK Foundation.  

Speakers at the event were Kaye Ramage, Glasgow East End Community Carers, Claire Baker-Mosley, Head ofCommunity at BUPA UK Foundation and Rachel Colles, Project Lead for Hearts & Minds.  

Hearts & Minds shared their new short film created with carers from Glasgow East End Community Carers who talked about their own personal experiences and thoughts of being a carer at home for a person living with dementia or chronic illness.  

Hearts & Minds also shared the outcomes from the Play Cope Care project and discussed their programmes for people living with dementia and their carers. 

Carers have had to face unimaginable adversity over the last year. Isolation, loneliness, lack of support and vital services as well as feelings of feeling forgotten by society have been acute during the pandemic.

Through conversations with carers groups, Hearts & Minds realised that they wanted to make something to make carers feel seen and heard, for their feelings to be validated, for their resilience and playfulness in the face of extreme adversity to be celebrated, and for their huge contribution to society to be recognised. 

The film is based on Hearts & Minds Play Cope Care workshops for unpaid carers and features the voices of the carers.

The film is available to carers organisations to share and provide 6 minutes of respite to carers who might be feeling alone, at a loss or invisible and act as a reminder they are connected to a huge network of remarkable people who know exactly what they are going through. 

The launch of this film is timely as we approach Carers Week 2021, 7 – 13 June.

Link to Play Cope Care Workshop info:

https://www.heartsminds.org.uk/carers/

Edinburgh charities unite to help local carers

EMMS International and VOCAL (Voice of Carers across Lothian) have announced an exciting new partnership to support Edinburgh families to access much-needed breaks from caring routines.

EMMS International is donating its Hawthorn Brae Fund to VOCAL to purchase a property to provide short breaks for unpaid carers and people with life-limiting conditions, and of limited means, living in Edinburgh.

Funding for the Hawthorn Brae breaks project originally came from Margaret Sanson (nee Laing), who left her house – Hawthorn Brae in Duddingston – in her will to the Edinburgh Medical Missionary Society (later to become EMMS International).

After the house was donated it became a place of care and respite. After selling it in 1998, EMMS International used income from the fund to provide respite holidays for people with life limiting conditions living in Edinburgh.

By donating this fund to VOCAL, EMMS International will double the number of people benefiting and ensure carers and those they care for can enjoy a high-quality short break in Scotland. The donation enhances VOCAL’s existing short breaks offer to carers which includes support to create, fund and take regular short breaks.

Sebastian Fischer, Chief Executive of VOCAL said: “EMMS International and VOCAL share a vision to work globally and locally for better health and wellbeing for people with care needs and their carers. This is a great partnership to help those in greatest need and builds on the best of our traditions in Scotland.

“A big thank you to EMMS International for their generous investment which will provide more families with an opportunity to take time out, recharge their energy and support their physical and mental wellbeing.”

Dr Cathy Ratcliff, CEO of EMMS said: “We’re delighted to gift this historic Hawthorn Brae fund to VOCAL as we embark on a new partnership which will double the number of people who will benefit from much needed short breaks.”

National action plan needed to protect young carers’ futures

·       71% of young carers and 85% of young adult carers are more worried about the future since Coronavirus.

·       45% of young carers and 68% of young adult carers say their mental health is worse since Coronavirus.

·       40% of young carers and 56% of young adult carers feel overwhelmed by the pressures they are now facing

Today, on Young Carers Action Day (March 16 2021), Carers Trust Scotland is calling on Scottish Government to commit to developing a new cross-cutting National Action Plan to protect the futures of children and young people with caring responsibilities.

These plans are urgently needed to address a downward spiral in the mental health of young carers across Scotland, and the adverse impact this is having on their hopes for the future.

A recent Carers Trust Scotland survey revealed high levels of anxiety and stress among young carers. The survey found over two thirds (71%) of young carers aged 12 to 17, and 85% of young adult carers aged 18 to 25 were experiencing increased concern for their futures since Coronavirus.

To address these challenges, Scottish Government’s National Action Plan should include clear actions that can be delivered at pace. They should address education, employability and health and wellbeing prospects among young people with caring responsibilities.

Louise Morgan, Director of Carers Trust Scotland comments: “It is important on Young Carer Action Day to highlight the additional challenges young carers have experienced as result of the pandemic and think about their futures.

“It is vital that Scottish Government introduces a new National Action Plan which is ambitious and ensures young carers in Scotland have the support that they need and are given a fair chance to reach their full potential in all aspects of their lives.”

To Protect Young Carers’ Futures and help make a National Action Plan for young carers a reality, Carers Trust Scotland is working with young carers across Scotland to ask statutory bodies to make meaningful commitments to deliver young carers’ rights across health, social care, education and employment. 

Speaking about her hopes for Young Carers Action Day, Ilse Cuthbertson a young carer and Member of the Scottish Youth Parliament for Carers Trust Scotland, (above, right) said: “The Young Carers Action Day Steering Group chose to focus on protecting young carers futures.

“This theme fits in perfectly with this year, as due to the pandemic it is now more important than ever that we protect the futures of young people with caring responsibilities.”

Welcoming the call for a National Action Plan to protect young carers’ futures, world-leading researcher on young carers’ rights and Carers Trust Ambassador, Dr Saul Becker, said: “During the pandemic, we have seen millions of people, rightly, furloughed to stay at home, paid by the government and told they must NOT work.

“On the other hand, carers of all ages, and especially carers under the age of 25, have been forced to stay at home because schools have closed, health and social care services have been cancelled, and young carers have taken on many of the responsibilities of statutory and other service providers, often on a full-time basis.

“It’s young carers’ turn for recognition and support. We desperately need national and local action plans to make sure that young carers are not left behind; that they are no longer ignored and invisible. We must safeguard their futures – and see this as a sound investment not a cost.”

Employers called on to protect young carers’ futures

Carers Trust is also urging employers to protect young carers’ futures by acknowledging the unique skills and attributes young carers develop from an early age, such as time-management skills, resilience, empathy and a sense of responsibility for others.

We are already working with our corporate supporters to develop resources and provide experience to facilitate young carers’ pathways into employment:

  • with funding from the People’s Postcode Lottery we are building an internship training programme for young people with caring responsibilities.
  • the financial services group, Quilter, have supported us in setting up a Steering Group for young carers and young adult carers to come together to plan.
  • with support from the leading online florist Bloom and Wild we are developing a series of workshops for young carers to gain invaluable workplace experience and insights.

Health charities back vaccines drive for those at risk

  • Charities write open letter to encourage those with underlying health conditions to come forward for the jab
  • More than half of cohort 6 have already been vaccinated
  • Vaccine drive includes NHS text alert sent to more than 2 million people in this group

People with underlying conditions including cancer, diabetes and heart disease are being encouraged to come forward for a Covid-19 vaccine by leading UK health charities.

Frontline charities, including Mencap, Diabetes UK and Lupus UK, have asked those with underlying medical conditions, their carers, and those with learning disabilities on their GP register, to book a vaccination to protect themselves and those around them from coronavirus.

People in cohort 6 have been prioritised for the vaccine because they have conditions that mean they are more likely to become seriously unwell from coronavirus.

More than half of those in cohort 6 have already received their first dose of the vaccine and it’s hoped that the charities’ letter – alongside text messages from the NHS – will help to increase take up further among those in this at-risk group.

The charities who signed the open letter are among 22 who have joined together in partnership to reassure those they support about the safety and effectiveness of the vaccine.

GP services already have been contacting this cohort but those who have not yet received a letter can get a quick and convenient appointment at a vaccination centre or community pharmacy by using the national booking system or calling 119. The NHS have sent text messages to people in this group with a link so they can book their appointment.

The vaccine is safe and effective and very few people are advised not to have it. However, if you have any concerns, you can discuss these if you book over the phone, or with a health professional at your appointment.

Health and Social Care Secretary Matt Hancock said: “The backing of the charities who work every day to support those who are entitled to a jab as part of cohort 6 is a great boost for the vaccine rollout and shows what we can achieve when we pull together.

“This open letter is a hugely important way to reassure those with underlying health conditions, and their carers, about the safety and effectiveness of the vaccine.

“The charities’ support for this national vaccine effort is invaluable in encouraging more people to come forward and helping us to save lives.”

These vital charities support those included in priority vaccination categories, including cohort 6 which covers individuals aged 16 to 64 with certain long-term conditions identified by the Joint Committee on Vaccination and Immunisation as being at higher clinical risk from Covid-19.

Underlying health conditions faced by people in cohort 6 include chronic respiratory, heart, kidney, liver disease and neurological conditions, including multiple sclerosis (MS) and epilepsy, stroke, vascular disease, diabetes mellitus, immunosuppression due to a health condition or treatment, asplenia or dysfunction of the spleen, morbid obesity, severe mental illness, as well as sickle cell, lupus and those on GP learning disability registers.

Cohort 6 also includes carers who are eligible for a carer’s allowance, or those who are the sole or primary carer of an elderly or disabled person who is at increased risk of Covid-19 mortality and therefore clinically vulnerable.

Minister for Vaccines Nadhim Zahawi said: “We have already given a first dose of the vaccine to more than half of those in cohort 6 and I am grateful to the charities who are encouraging more people in that group to come forward.

“The vaccine is our way out of this pandemic and offers the chance to protect yourself and others – that’s why it’s vital that people get their jab.

“This open letter should help to reassure those with any concerns the vaccine is safe and supported by more than twenty of our most trusted charities.

“I would like to thank them all for backing this life-saving campaign and offering their expertise and assistance to support the largest medical deployment in British history.”

Open letter

We are writing today to encourage people living with an underlying health condition in cohort 6 to come forward for a Covid-19 vaccine.

People with these conditions, including their carers, and those with learning disabilities on the learning disability register, have been prioritised by the Joint Committee on Vaccination and Immunisation because they are more likely to become seriously unwell from Covid-19.

The vast majority of you should already have been invited for vaccination and more than half of you have already received your first dose.

Some of you may still be waiting for a letter from your GP.

But the good news is, even if you have not received your letter yet, you can now get an appointment at a vaccination centre or community pharmacy, quickly and easily, by using the national booking system or calling 119 in England.

We are proud to support the vaccination roll-out and are here to support you.

The vaccine is safe and effective and very few people are advised not to have it. However, if you have any concerns, you can discuss these when you book, or with a health professional at your appointment.

Over 20 million people in the UK have had their first dose and great progress has been made by the NHS.

We are very pleased to see the Covid-19 vaccination roll-out providing protection for people, like you, who are most at risk from the virus.

Underlying health conditions in cohort 6 include chronic respiratory, heart, kidney, liver disease and neurological conditions, including multiple sclerosis (MS) and epilepsy, stroke, vascular disease, diabetes mellitus, immunosuppression, due to a health condition or treatment, asplenia or dysfunction of the spleen, morbid obesity, severe mental illness, as well as sickle cell, lupus and those on GP learning disability registers.

Cohort 6 also includes carers who are eligible for a carer’s allowance, or those who are the sole or primary carer of an elderly or disabled person who is at increased risk of Covid-19 mortality and therefore clinically vulnerable.

The vaccines that have been approved for use in the UK have met the strict safety standards set by the medicines regulator on safety, quality and effectiveness.

To protect yourself and your family, friends and colleagues, you still need to follow the current government guidance on social contact after receiving your vaccine.

Please come forward to have the jab. It will help save lives and offers the best form of protection from this terrible virus.

The organisations within the partnership, 18 of which have also signed the letter, are:

  • ACLT (African Caribbean Leukaemia Trust)
  • Anthony Nolan
  • Asthma UK
  • British Heart Foundation
  • British Liver Trust
  • British Lung Foundation
  • Cancer Research UK
  • Carers UK
  • Diabetes UK
  • Epilepsy Action
  • Kidney Care UK
  • Kidney Research UK
  • Lupus UK
  • Macmillan Cancer Support
  • Mencap
  • MS Society
  • National Kidney Federation
  • Rethink Mental Illness
  • Sickle Cell Society
  • Stroke Association
  • Terrence Higgins Trust
  • Versus Arthritis

Unpaid carers are included in cohort 6 providing they:

  • are eligible for a carer’s allowance
  • are identified as a primary carer by their GP
  • are receiving support following a carer’s assessment by their local council or from a local carer’s organisation
  • are the sole or primary carer who provides close personal care or face to face support for an elderly or disabled person who is clinically vulnerable to COVID-19