What Do I Need?: Carers Voices

Hearts & Minds charity launched their short film What Do I Need?: Carers Voices online yesterday. 

This is the culmination of their PLAY COPE CARE Workshop Project for carers at home, which they developed developed with carers organisations across Scotland, and with funding from BUPA UK Foundation.  

Speakers at the event were Kaye Ramage, Glasgow East End Community Carers, Claire Baker-Mosley, Head ofCommunity at BUPA UK Foundation and Rachel Colles, Project Lead for Hearts & Minds.  

Hearts & Minds shared their new short film created with carers from Glasgow East End Community Carers who talked about their own personal experiences and thoughts of being a carer at home for a person living with dementia or chronic illness.  

Hearts & Minds also shared the outcomes from the Play Cope Care project and discussed their programmes for people living with dementia and their carers. 

Carers have had to face unimaginable adversity over the last year. Isolation, loneliness, lack of support and vital services as well as feelings of feeling forgotten by society have been acute during the pandemic.

Through conversations with carers groups, Hearts & Minds realised that they wanted to make something to make carers feel seen and heard, for their feelings to be validated, for their resilience and playfulness in the face of extreme adversity to be celebrated, and for their huge contribution to society to be recognised. 

The film is based on Hearts & Minds Play Cope Care workshops for unpaid carers and features the voices of the carers.

The film is available to carers organisations to share and provide 6 minutes of respite to carers who might be feeling alone, at a loss or invisible and act as a reminder they are connected to a huge network of remarkable people who know exactly what they are going through. 

The launch of this film is timely as we approach Carers Week 2021, 7 – 13 June.

Link to Play Cope Care Workshop info:

https://www.heartsminds.org.uk/carers/

Edinburgh charities unite to help local carers

EMMS International and VOCAL (Voice of Carers across Lothian) have announced an exciting new partnership to support Edinburgh families to access much-needed breaks from caring routines.

EMMS International is donating its Hawthorn Brae Fund to VOCAL to purchase a property to provide short breaks for unpaid carers and people with life-limiting conditions, and of limited means, living in Edinburgh.

Funding for the Hawthorn Brae breaks project originally came from Margaret Sanson (nee Laing), who left her house – Hawthorn Brae in Duddingston – in her will to the Edinburgh Medical Missionary Society (later to become EMMS International).

After the house was donated it became a place of care and respite. After selling it in 1998, EMMS International used income from the fund to provide respite holidays for people with life limiting conditions living in Edinburgh.

By donating this fund to VOCAL, EMMS International will double the number of people benefiting and ensure carers and those they care for can enjoy a high-quality short break in Scotland. The donation enhances VOCAL’s existing short breaks offer to carers which includes support to create, fund and take regular short breaks.

Sebastian Fischer, Chief Executive of VOCAL said: “EMMS International and VOCAL share a vision to work globally and locally for better health and wellbeing for people with care needs and their carers. This is a great partnership to help those in greatest need and builds on the best of our traditions in Scotland.

“A big thank you to EMMS International for their generous investment which will provide more families with an opportunity to take time out, recharge their energy and support their physical and mental wellbeing.”

Dr Cathy Ratcliff, CEO of EMMS said: “We’re delighted to gift this historic Hawthorn Brae fund to VOCAL as we embark on a new partnership which will double the number of people who will benefit from much needed short breaks.”

National action plan needed to protect young carers’ futures

·       71% of young carers and 85% of young adult carers are more worried about the future since Coronavirus.

·       45% of young carers and 68% of young adult carers say their mental health is worse since Coronavirus.

·       40% of young carers and 56% of young adult carers feel overwhelmed by the pressures they are now facing

Today, on Young Carers Action Day (March 16 2021), Carers Trust Scotland is calling on Scottish Government to commit to developing a new cross-cutting National Action Plan to protect the futures of children and young people with caring responsibilities.

These plans are urgently needed to address a downward spiral in the mental health of young carers across Scotland, and the adverse impact this is having on their hopes for the future.

A recent Carers Trust Scotland survey revealed high levels of anxiety and stress among young carers. The survey found over two thirds (71%) of young carers aged 12 to 17, and 85% of young adult carers aged 18 to 25 were experiencing increased concern for their futures since Coronavirus.

To address these challenges, Scottish Government’s National Action Plan should include clear actions that can be delivered at pace. They should address education, employability and health and wellbeing prospects among young people with caring responsibilities.

Louise Morgan, Director of Carers Trust Scotland comments: “It is important on Young Carer Action Day to highlight the additional challenges young carers have experienced as result of the pandemic and think about their futures.

“It is vital that Scottish Government introduces a new National Action Plan which is ambitious and ensures young carers in Scotland have the support that they need and are given a fair chance to reach their full potential in all aspects of their lives.”

To Protect Young Carers’ Futures and help make a National Action Plan for young carers a reality, Carers Trust Scotland is working with young carers across Scotland to ask statutory bodies to make meaningful commitments to deliver young carers’ rights across health, social care, education and employment. 

Speaking about her hopes for Young Carers Action Day, Ilse Cuthbertson a young carer and Member of the Scottish Youth Parliament for Carers Trust Scotland, (above, right) said: “The Young Carers Action Day Steering Group chose to focus on protecting young carers futures.

“This theme fits in perfectly with this year, as due to the pandemic it is now more important than ever that we protect the futures of young people with caring responsibilities.”

Welcoming the call for a National Action Plan to protect young carers’ futures, world-leading researcher on young carers’ rights and Carers Trust Ambassador, Dr Saul Becker, said: “During the pandemic, we have seen millions of people, rightly, furloughed to stay at home, paid by the government and told they must NOT work.

“On the other hand, carers of all ages, and especially carers under the age of 25, have been forced to stay at home because schools have closed, health and social care services have been cancelled, and young carers have taken on many of the responsibilities of statutory and other service providers, often on a full-time basis.

“It’s young carers’ turn for recognition and support. We desperately need national and local action plans to make sure that young carers are not left behind; that they are no longer ignored and invisible. We must safeguard their futures – and see this as a sound investment not a cost.”

Employers called on to protect young carers’ futures

Carers Trust is also urging employers to protect young carers’ futures by acknowledging the unique skills and attributes young carers develop from an early age, such as time-management skills, resilience, empathy and a sense of responsibility for others.

We are already working with our corporate supporters to develop resources and provide experience to facilitate young carers’ pathways into employment:

  • with funding from the People’s Postcode Lottery we are building an internship training programme for young people with caring responsibilities.
  • the financial services group, Quilter, have supported us in setting up a Steering Group for young carers and young adult carers to come together to plan.
  • with support from the leading online florist Bloom and Wild we are developing a series of workshops for young carers to gain invaluable workplace experience and insights.

Health charities back vaccines drive for those at risk

  • Charities write open letter to encourage those with underlying health conditions to come forward for the jab
  • More than half of cohort 6 have already been vaccinated
  • Vaccine drive includes NHS text alert sent to more than 2 million people in this group

People with underlying conditions including cancer, diabetes and heart disease are being encouraged to come forward for a Covid-19 vaccine by leading UK health charities.

Frontline charities, including Mencap, Diabetes UK and Lupus UK, have asked those with underlying medical conditions, their carers, and those with learning disabilities on their GP register, to book a vaccination to protect themselves and those around them from coronavirus.

People in cohort 6 have been prioritised for the vaccine because they have conditions that mean they are more likely to become seriously unwell from coronavirus.

More than half of those in cohort 6 have already received their first dose of the vaccine and it’s hoped that the charities’ letter – alongside text messages from the NHS – will help to increase take up further among those in this at-risk group.

The charities who signed the open letter are among 22 who have joined together in partnership to reassure those they support about the safety and effectiveness of the vaccine.

GP services already have been contacting this cohort but those who have not yet received a letter can get a quick and convenient appointment at a vaccination centre or community pharmacy by using the national booking system or calling 119. The NHS have sent text messages to people in this group with a link so they can book their appointment.

The vaccine is safe and effective and very few people are advised not to have it. However, if you have any concerns, you can discuss these if you book over the phone, or with a health professional at your appointment.

Health and Social Care Secretary Matt Hancock said: “The backing of the charities who work every day to support those who are entitled to a jab as part of cohort 6 is a great boost for the vaccine rollout and shows what we can achieve when we pull together.

“This open letter is a hugely important way to reassure those with underlying health conditions, and their carers, about the safety and effectiveness of the vaccine.

“The charities’ support for this national vaccine effort is invaluable in encouraging more people to come forward and helping us to save lives.”

These vital charities support those included in priority vaccination categories, including cohort 6 which covers individuals aged 16 to 64 with certain long-term conditions identified by the Joint Committee on Vaccination and Immunisation as being at higher clinical risk from Covid-19.

Underlying health conditions faced by people in cohort 6 include chronic respiratory, heart, kidney, liver disease and neurological conditions, including multiple sclerosis (MS) and epilepsy, stroke, vascular disease, diabetes mellitus, immunosuppression due to a health condition or treatment, asplenia or dysfunction of the spleen, morbid obesity, severe mental illness, as well as sickle cell, lupus and those on GP learning disability registers.

Cohort 6 also includes carers who are eligible for a carer’s allowance, or those who are the sole or primary carer of an elderly or disabled person who is at increased risk of Covid-19 mortality and therefore clinically vulnerable.

Minister for Vaccines Nadhim Zahawi said: “We have already given a first dose of the vaccine to more than half of those in cohort 6 and I am grateful to the charities who are encouraging more people in that group to come forward.

“The vaccine is our way out of this pandemic and offers the chance to protect yourself and others – that’s why it’s vital that people get their jab.

“This open letter should help to reassure those with any concerns the vaccine is safe and supported by more than twenty of our most trusted charities.

“I would like to thank them all for backing this life-saving campaign and offering their expertise and assistance to support the largest medical deployment in British history.”

Open letter

We are writing today to encourage people living with an underlying health condition in cohort 6 to come forward for a Covid-19 vaccine.

People with these conditions, including their carers, and those with learning disabilities on the learning disability register, have been prioritised by the Joint Committee on Vaccination and Immunisation because they are more likely to become seriously unwell from Covid-19.

The vast majority of you should already have been invited for vaccination and more than half of you have already received your first dose.

Some of you may still be waiting for a letter from your GP.

But the good news is, even if you have not received your letter yet, you can now get an appointment at a vaccination centre or community pharmacy, quickly and easily, by using the national booking system or calling 119 in England.

We are proud to support the vaccination roll-out and are here to support you.

The vaccine is safe and effective and very few people are advised not to have it. However, if you have any concerns, you can discuss these when you book, or with a health professional at your appointment.

Over 20 million people in the UK have had their first dose and great progress has been made by the NHS.

We are very pleased to see the Covid-19 vaccination roll-out providing protection for people, like you, who are most at risk from the virus.

Underlying health conditions in cohort 6 include chronic respiratory, heart, kidney, liver disease and neurological conditions, including multiple sclerosis (MS) and epilepsy, stroke, vascular disease, diabetes mellitus, immunosuppression, due to a health condition or treatment, asplenia or dysfunction of the spleen, morbid obesity, severe mental illness, as well as sickle cell, lupus and those on GP learning disability registers.

Cohort 6 also includes carers who are eligible for a carer’s allowance, or those who are the sole or primary carer of an elderly or disabled person who is at increased risk of Covid-19 mortality and therefore clinically vulnerable.

The vaccines that have been approved for use in the UK have met the strict safety standards set by the medicines regulator on safety, quality and effectiveness.

To protect yourself and your family, friends and colleagues, you still need to follow the current government guidance on social contact after receiving your vaccine.

Please come forward to have the jab. It will help save lives and offers the best form of protection from this terrible virus.

The organisations within the partnership, 18 of which have also signed the letter, are:

  • ACLT (African Caribbean Leukaemia Trust)
  • Anthony Nolan
  • Asthma UK
  • British Heart Foundation
  • British Liver Trust
  • British Lung Foundation
  • Cancer Research UK
  • Carers UK
  • Diabetes UK
  • Epilepsy Action
  • Kidney Care UK
  • Kidney Research UK
  • Lupus UK
  • Macmillan Cancer Support
  • Mencap
  • MS Society
  • National Kidney Federation
  • Rethink Mental Illness
  • Sickle Cell Society
  • Stroke Association
  • Terrence Higgins Trust
  • Versus Arthritis

Unpaid carers are included in cohort 6 providing they:

  • are eligible for a carer’s allowance
  • are identified as a primary carer by their GP
  • are receiving support following a carer’s assessment by their local council or from a local carer’s organisation
  • are the sole or primary carer who provides close personal care or face to face support for an elderly or disabled person who is clinically vulnerable to COVID-19

Scotland’s invisible heroes to be celebrated during Kinship Care Week

Scotland’s kinship carers are often overlooked and undervalued by society despite making huge sacrifices to provide stable homes for vulnerable young people, according to the Kinship Care Advice Service for Scotland (KCASS).

Kinship Care Week (15-21 March) aims to provide these unsung, and sometimes invisible, heroes with the recognition they deserve and to encourage support agencies to work together to provide families with timely and appropriate support.

Research* suggests the vast majority of kinship carers experience some form of hardship after taking over the care of a child of a family member or close friend. Many have to reduce their working hours, or give up work altogether, and they often find themselves in need of emergency financial and emotional support.

Recent Scottish Government statistics revealed there were 4,175 children living in kinship care in Scotland in 2019. However, it is estimated the true number could be as high as 11,000 when taking into account informal and private arrangements. Many of these families are not known to their local authority, meaning thousands of kinship carers could be missing out on vital support.

KCASS helps families in a range of ways, offering practical support and advice to families about finances, housing, education, dealing with trauma, mental health, legal matters, and more. Between September 2020 and February 2021, KCASS responded to 693 calls to its free helpline – more than 100 every month.

Susan Hunter, KCASS Project Coordinator, said: “It is our service’s role, in addition to providing kinship carers with financial, practical and emotional advice, to ensure their voices are heard when decisions are made which affect their lives, when legislation is introduced which impacts on their children’s futures, and when consultations are undertaken which explore the difficulties and struggles experienced by kinship families.”

Kinship Care Week features a range of webinars, training sessions and activities for carers, children and professionals. This year is the first time that KCASS has hosted the week since the service was taken over by Adoption UK in Scotland and the Adoption and Fostering Alliance (AFA) Scotland in September 2020, after previously being provided by Citizens Advice Scotland.

Fiona Aitken, Adoption UK’s Director in Scotland, said: “Kinship Care Week is an opportunity to highlight the amazing job that kinship carers do, along with the challenges that they face. 

“We’re proud to work together with our partners to support kinship carers and their families. We hope this week puts kinship care families in the spotlight that they deserve.”

KCASS is funded by the Scottish Government and is committed to keeping The Promise, which pledges that children living in kinship care must receive the support they need to thrive.

Children’s Minister Maree Todd, who is taking part in an online Q&A session as part of the week, said: “Kinship Care Week is a wonderful opportunity to celebrate the vital role kinship carers play in providing secure, stable and nurturing homes for children and young people who can no longer live with their parents. 

“I’d like to thank all the carers, professionals and partner charities who have supported children and young people in kinship care during this difficult year.

“We are determined to improve the life chances of young people in kinship care through implementing the commitments made in The Promise, so they enjoy safe, fulfilling and loving childhoods. As part of that, the Scottish Government will work with partners, including KCASS, through the Kinship Care Collaborative to better support carers, children and professionals working with kinship families.”

Kinship carers experiencing difficulties or in need of advice are urged to call the free KCASS helpline on 0808 800 0006 from 10am – 2.30pm, Monday to Friday.

Time off from caring!

Recognising the impact of the pandemic and the challenges unpaid carers face in lockdown, Scottish Government allocated additional funds to help carers to access breaks from caring.

#Carers in Edinburgh can apply to VOCAL for one-off grants to fund activities, devices or services that support them getting a break from their caring role, despite current restrictions.

To find out more call VOCAL on 0131 622 6666, email centre@vocal.org.uk or visit https://weebreaks.com/wee-breaks-edinburgh/

VOCAL Edinburgh

New online module for Scottish universities supports student carers

Carers Trust Scotland and The Open University in Scotland have joined forces to help improve support to thousands of student carers in Scotland, who are studying alongside providing unpaid care for a family member or friend who is ill, frail, disabled or has mental health or addiction problems.

Carer Aware is a new online training module which has been developed by Carers Trust Scotland and The Open University in Scotland with funding from The Scottish Funding Council. The module will help university staff to better understand the challenges faced by many student carers and provides guidance on how to improve support for these students at university.

Research by Carers Trust found that:

  • Student carers are four times more likely to drop out of college and university than those who are not carers;
  • 84% of student carers find keeping good mental health while studying to be a challenge;
  • 87% of student carers can find concentrating on assignments and work at home challenging.

Together, Carers Trust Scotland and The Open University in Scotland are calling on all Scottish universities to use this free resource to help their staff better identify, support and report on their student carers.

Scott Lafferty, Development Manager for Carers Trust Scotland, said: “Carers Trust Scotland is delighted to have worked with The Open University in Scotland to launch Carer Aware at University, an online module for university professionals.

“It aims to raise awareness to the challenges that many student carers face and offers guidance on how universities in Scotland can provide improved support to student carers, so that they have a fair chance to be successful in their own education and achieve their true potential in all aspects of their lives.”

Student carers can greatly benefit from dedicated support from their university and the Carer Aware at University online module should help improve outcomes for student carers after study.

Shona Littlejohn, Depute Director, Student Experience & Widening Access, at The Open University in Scotland, said: “Carer Aware at University is built around the stories of student carers as they share their experience of caring for a family member or friend, and the impact that has on their university studies.

“Huge thanks go to the many student carers who contributed to the course. This makes it a very compelling resource and really helps university staff better understand the challenges student carers face in juggling their unpaid care role alongside studying.”

This new resource complements existing work being undertaken by both organisations to raise awareness, improve identification and ensure adequate support is in place to give student carers a fair chance to be successful in their own education.

Since 2017, Carers Trust Scotland has been rolling out Going Higher for Student Carers Recognition Award, a scheme to assist and encourage all 19 of Scotland’s universities to develop their policies and practices to improve support for student carers, and award good practice. The Open University in Scotland achieved the award in 2020 demonstrating their commitment to improving their support for student carers.

Many student carers remain unidentified and unsupported at university and continue to be a hidden group.

There are student carers in every university trying to successfully complete their course to the best of their ability just like their peers. Yet, they often experience additional challenges because of their unpaid caring responsibilities and do not always receive the support they need to successfully complete university.

This prevents students with caring responsibilities from reaching their full potential, maintaining good health and wellbeing, and having equal access to the opportunities open to other students. 

Additionally, due to the impact of the current Coronavirus pandemic, we know that many student carers are taking on additional caring responsibilities, therefore increasing the need for support at university.

The Carer Aware at University module was developed with partners in the University of Stirling, Heriot-Watt University, Glasgow Caledonian University and the College Development Network.

Social Care Reform: Listen to carers, says Holyrood Committee

A Health and Sport Committee report into the future of social care has said those delivering and receiving care must be at the heart of social care reform with the current model described as unsustainable.

The Committee say a national conversation on the future of social care is needed and that the myriad issues facing staff must be addressed in the development of any new system. The Committee’s report says the problems faced by the care sector have been compounded by the COVID-19 pandemic.

The Committee express concern over the lack of value placed on social care and social care staff, in stark contrast to NHS staff. The report emphasises the ongoing difficulty the sector faces in attracting and retaining staff; citing a lack of training and staff development opportunities, alongside low pay as the key reasons for this.

A number of problems with the current care model are highlighted by the Committee including the continued lack of progress on health and social care integration. They also recommend the Scottish Government seek alternative models of commissioning and procurement with the current ones described as ‘counter-intuitive’.

The Committee describe the current model of crisis driven, reactive care as unsustainable and say more must be done to shift the focus to a preventative model, involving local communities in the future planning of health and social care services.


Lewis Macdonald MSP, Convener of the Health and Sport Committee, said: 
“Throughout this inquiry the message we have been given from those receiving care, and from paid and unpaid carers, is that they have not felt listened to and have been undervalued. That’s why it is essential that they are at the centre of much needed reform of the social care system.

“There is no doubt the current model of care is unsustainable, with some of the issues facing the sector exposed by the pandemic. We want to see a nationwide conversation held into the future of social care and we hope that the findings of our report, and the independent review, can help in shaping this future.

“We are grateful to all of those from across the care sector who provided evidence to our inquiry and gave their keen insight into how it is experienced in Scotland.

“I’d like to put on record our thanks to the tireless and passionate workforce, both paid and unpaid, who undoubtedly deserve better.”

Extra funding to support unpaid carers

An investment of £750,000 in local carer centres will increase support for unpaid carers of all ages, helping them to take a break from caring and access other much-needed help.

This recognises some of the challenges faced by unpaid carers, with many regular sources of support having stopped or moved online due to the pandemic.

It also comes in response to concerns about increasing pressure on carers – particularly while many traditional respite breaks are restricted or unavailable.

The funding will allow local carer centres to react flexibly to the needs of carers in their areas. Feedback from national and local carer representatives suggests there is a demand for extending existing services such as befriending, counselling or online support groups, as well as offering additional grants for carers which can be used for expenditure such as leisure equipment, hobbies or entertainment subscriptions.

Health Secretary Jeane Freeman said: “Unpaid carers play a vital role in society but without the right support, caring relationships can break down, which can result additional health or social care support being needed for the cared for person, their carer, or both.

“This funding will enable carer centres to decide how best to promptly meet local need. It is designed to ensure more unpaid carers – including young carers – can benefit from a much-needed break and emotional support.”

On behalf of Scotland’s National Carer Organisations, Don Williamson, Chief Executive of Shared Care Scotland, said: “COVID-19 has made life hugely challenging for unpaid carers, many of whom are struggling on with little or no opportunity to have any breaks from their caring. We therefore very much welcome this additional funding from Scottish Government which will go towards increasing the capacity of local carer services so they can provide support to more carers, including with accessing breaks, to help them over the particularly difficult winter months.”