‘World class’ child cancer care strategy launched

A strategy to deliver world class cancer care for children and young people has been published by the Scottish Government.

Collaborative and Compassionate Cancer Care, the Cancer Strategy for Children and Young People in Scotland 2021-2026, was launched by Health Secretary Humza Yousaf during an online event yesterday.

The strategy highlights 10 priorities for the next five years, supported by almost £6 million investment, which include:

  • working towards funding genetic testing to provide personally targeted treatment
  • expanding Chimeric Antigen Receptor T-Cell therapy (CAR-T) to teenagers and young adults
  • setting up a national molecular radiotherapy service for children
  • funding a dedicated health workforce to care for teenagers and young adults 
  • raising the profile of supported care services and holistic care
  • developing a single centre of excellence to provide radiotherapy treatment to improve survival among children with cancer

Mr Yousaf said: “Receiving a cancer diagnosis is never easy, but receiving one at such a young age is especially difficult.

“We know that diagnosis has come a long way, with survival rates remaining stable for children and young people. However there is still more we can do to support this age group to live long, healthy and happy lives.

“This strategy, backed by almost £6 million, marks an exciting time for children and young people’s cancer services as the first strategy for this age group. It outlines our 10 ambitions to build on previous successes so that, by 2026, we will see improved and enhanced outcomes for patients and ensure equal access to care across Scotland.”

Medical Director of NHS Forth Valley Andrew Murray said: “I am delighted to see the launch of Collaborative and Compassionate Cancer Care, after such a challenging period in the NHS Scotland’s history, and I look forward to working with our clinicians and families to deliver its ambitious objectives over the next five years, improving experiences and outcomes.”

The strategy can be read in full here.

The launch was somewhat overshadowed by news that the Scottish Government is calling in the army to help tackle a crisis in the ambulance service – and a Twitter post of a film of Health Minister Humza Yousaf’s unfortunate accident on a scooter.

New Shackleton exhibition shines a light on explorer’s final voyage to island of South Georgia

100th anniversary of Shackleton’s ‘Quest Expedition’ sparks new exhibition showcasing his remarkable career and leadership to a new audience

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Today, a brand new exhibition that celebrates the remarkable life and achievements of renowned explorer Sir Ernest Shackleton (1874-1922) will be unveiled by the South Georgia Museum.

The exhibition ‘Shackleton’s Last Quest’ is launching on 17 September, 100 years after Shackleton’s last voyage, the Quest Expedition, set sail from London.

The new exhibition focuses on Shackleton’s untimely death and his final resting place at Grytviken on the sub-Antarctic island of South Georgia, and showcases the significance this small British Overseas Territory played in his story. It will also look at his life and the personal qualities that made him so extraordinary, resulting in him still being revered around the world today, a century after his death.

As part of the exhibition, some key objects never before seen outside South Georgia have been brought together for the first time and include the original Hope Cross – the wooden cross that topped the memorial cairn built by the men of the expedition at Hope Point, King Edward Point in 1922.

Shackleton’s grave in summer (L) and in midwinter (R).

It is fitting that Shackleton was in South Georgia when he died. His final diary entry reads: ‘A wonderful evening. In the darkening twilight I saw a lone star hover, gem-like above the bay.

Image credits Julie Shaughnessy (L) and Deirdre Mitchell (R)

As well as being online at https://sgmuseum.gs/shackletonslastquest the exhibition will be mirrored at the South Georgia Museum at Grytviken, for visitors to the island to see.

It was Shackleton’s wife who decided that South Georgia would be his final resting place and many people make the pilgrimage to his grave to pay their respects, in non-Covid times.

When visitors are able to return to the Museum (which has been closed since March 2020 due to the pandemic), they will also be able to discover more about his life and final voyage through this exhibition.

The Shackleton-Rowett Antarctic Expedition (known as the Quest Expedition) was Shackleton’s fourth and final expedition, aiming to circumnavigate the Antarctic continent.

Large crowds gathered as the ship, Quest, left St Katherine Docks in London on 17 September 1921, with a crew comprising eight shipmates from the famous Endurance Expedition, who were keen to return to southern waters.

However, this was to be Shackleton’s last journey and after arriving at the quiet waters of King Edward Cove in South Georgia on 4 January 1922, he unexpectedly died in the early hours of the following morning.

His untimely death saw an outpouring of grief across the world and came to be seen as the end of the heroic era of polar exploration. Shackleton was buried on 5 March, two months after his death, at the whaling station Grytviken, South Georgia.

The original crow’s nest, which along with the cabin is one of the last vestiges from Quest, will also be making the journey to South Georgia where it will be the centrepiece of the exhibition at the Museum.

This is the first time it will leave its current home in All Hallows Church by the Tower of London to travel back to South Georgia to mark this significant anniversary. Before it heads south to the Antarctic, the Quest Barrel – as it is also known – will be on display at Shackleton’s birthplace in Ireland, at the Shackleton Museum, Athy. In spring 2022 it will continue to South Georgia to take its place in the exhibition.

Alison Neil, Chief Executive of the South Georgia Heritage Trust (SGHT), the UK charity which manages the Museum (above) on behalf of the Government of South Georgia & the South Sandwich Islands (GSGSSI) said: “South Georgia is synonymous with Shackleton, as the island played host to the beginning and the conclusion of the ill-fated Endurance Expedition (1914-1917) and is also Shackleton’s final resting place.

“As a guardian of the island’s fascinating heritage, the South Georgia Museum is delighted to have developed this new exhibition. Given Shackleton’s deep associations with South Georgia, it is fitting we will be marking the centenary of the launch of the Quest Expedition and Shackleton’s untimely death in this way.

“The exhibition will mark what is considered the end of the heroic era of polar exploration, focusing on Shackleton’s final resting place and the significance South Georgia played in the story. It will consider his life and those enduring qualities that made him such a revered figure in polar world history and bring him to a new audience.”

Visitors to the exhibition, both online and at South Georgia Museum will learn more about the details of the voyage, hear about how Shackleton came to be buried on the island, and explore objects and images that are being exhibited for the first time.

These include items from Shackleton’s funeral such as the banner that led the procession from the Grytviken church to the cemetery – a Norwegian tradition brought to the island by the whalers.

The exhibition also makes connections to other institutions with collections and links to Shackleton and polar exploration, through virtual ‘loans’. These digital loans include Shackleton’s diary, his Quest cabin clock and a full replica model of Quest.

The online exhibition can be found at https://sgmuseum.gs/shackletonslastquest

It is hoped that the exhibition at South Georgia Museum will be open from this coming season or the next, depending on travel restrictions.

Council welcomes Scottish Government’s support for capital’s poorest families

City of Edinburgh Council finance leaders have welcomed yesterday’s Scottish Government announcement that around 8,000 Edinburgh children from low-income families will benefit from a £320 uplift before Christmas.

As part of the Scottish Government’s commitment to tackling child poverty, children that are entitled to free school meals will receive payments of £160 per child in October and December.

This follows three payments that were made late in 2020 and early this year to eligible families by the Council, taking the total to £620 received by each child.

In Edinburgh, these were:

a Winter Support Fund payment of £100 per child in December 2020;

a Spring Hardship Payment of £100 per child in March 2021; and

a Summer Family Pandemic Payment of £100 per child in June 2021. This was issued along with the Summer holiday Free School Meals Payment of £92.50 per child.

This will take the total money distributed to children in low-income families by the end of 2021, over these five payments, to around £4.8 million.

In 2022, the Council also will deliver £520 payments per child in 4 instalments on behalf of the Scottish Government.

As detailed by the Scottish Government, this cash is equivalent to the Scottish Child Payment (SCP), a £10-a-week benefit which provides regular, additional financial support for families in receipt of qualifying benefits to assist with the costs of caring for a child aged under six years old.

Finance Convener Councillor Rob Munn said: “Many families are still feeling the effects of the pandemic and it’s more important than ever that we continue to support those most in need, particularly at a time of year when household bills are increasing. So we welcome this additional money from the Scottish Government, that will be administered through the Council, to give some added relief.

“As a Council we are committed to ending poverty and supporting the wellbeing of our residents and through building a better foundation for our young people we hope that we can create a better future for all.”

Finance Vice Convener Councillor Joan Griffiths said: “Direct support must go hand in hand with the ongoing financial support to ensure that no child is left behind as a result of these unprecedented times.

“Our teams from across Children’s Services have worked tirelessly to put in place a series of measures across the city to continue to support and monitor the effects the pandemic is having on our children. Thanks must go to all our hard-working staff and third sector partners who are providing these vital services.”

Gas Safety Week: Research reveals millions of homes could be a Ticking Timebomb

  • 40% of Brits skipped their annual boiler check-up in the last 12 months
  • 54% cited ‘cost’ as the main reason they don’t book a service
  • 18–29-year-olds were the biggest offenders, with more than half failing to book their boiler service
  • Despite this, 91% would get their boiler looked at within a week if it stopped working

With gas leaks, house fires or carbon monoxide poisoning all potential risks of a faulty boiler, many homes could be a ticking timebomb, as more than 40% of Brits admit they have failed to have their annual boiler check-up in the last 12 months.

In a poll of UK households ahead of Gas Safety Week (13th – 19th September), Millennials were the biggest offenders, with 54% choosing to skip their boiler service this year, compared with just 25% of people aged 60 and over. 

More than half of those who said they don’t get their boiler serviced on a regular basis – including a minority who have never had their boiler serviced – admitted it is because it simply costs too much (the average cost of a boiler service is £80*, the equivalent of a new pair of trainers or a family day out).

Furthermore, only 32% of respondents said they would spend any surplus home improvement budget on ensuring they get their boiler serviced, preferring instead to give a room a fresh lick of paint, the carpets cleaned or the gutters cleared.

This compares with an overwhelming 91% of us who would get our boiler looked at within a week or sooner if it stopped working, suggesting home safety has dropped to the bottom of our priority lists.

Indeed, when it comes to carrying out our own safety checks around the home, as a nation we’ve become pretty lax. Only 35% said they carry out a visual inspection of their boiler, while 53% of respondents fail to check and replace the batteries in their smoke alarm, and a worrying 63% do not check and replace batteries in their home carbon monoxide detector.

Darran Smith, Technical Manager for home heating expert, Alpha Heating Innovation, comments: “Our research shows a worrying number of homeowners in the UK are turning a blind eye when it comes to the safety of appliances in their home.

“Of particular concern to us is the number of people missing their annual boiler service. While we all enjoy the comfort and convenience that boilers bring in our homes, we should also appreciate the importance of ensuring their proper maintenance and be aware of the risks of unsafe appliances.

“Daily use of your household’s heating system can take its toll on the various components that make up your boiler. As such, making sure it is serviced annually is important so it can continue to function as intended. One of the most important reasons that you should have your boiler regularly checked is to ensure the safety of your household. When you’re watching TV together on the sofa or the kids are tucked up in bed, you want to know that your family is safe.

“A faulty or incorrectly fitted boiler can cause severe health problems such as carbon monoxide poisoning which, due to its odourless properties, can be a silent killer. Alternatively, you could also experience a gas leak without realising it, which in the most severe cases, can potentially cause a house fire.

“One of the most important steps you can take to ensure gas safety in your property is to have your appliance regularly checked by a qualified Gas Safe registered engineer. Although modern boilers are highly reliable; the better they are looked after, the better they will perform in the long term.”

https://www.checkatrade.com/blog/cost-guides/boiler-service-cost/

Warning signs your gas boiler isn’t working properly:

·      Lazy yellow flame rather than crisp blue one

·      Pilot light that frequently blows out

·      Excessive condensation on windows

·      Unusual dark marks or staining around or on gas appliances

Signs that may indicate carbon monoxide poisoning:

·      Headaches

·      Dizziness

·      Nausea and vomiting

·      Tiredness and confusion

·      Stomach pain

·      Shortness of breath and difficulty breathing

·      A fast and irregular heartbeat

·      Seizures

Downloadable ‘Home Safety Checklist’:

To help homeowners make the necessary home safety checks this autumn/winter, Alpha Heating Innovation has created a comprehensive Home Safety Checklist which is free to download from their website now.

Gas emergencies:

If you smell gas or suspect a problem with any gas fired appliance, don’t wait. Call the National Gas Emergency helpline free on 0800 111 999.

For further information, about Alpha Heating Innovation, visit:

 www.alpha-innovation.co.uk 

or for more on Gas Safety Week, visit 

www.gassaferegister.co.uk/gassafetyweek/

Climate Week ‘to put people at the heart of net zero journey’

Scotland’s Climate Week runs from Monday 13 September to Sunday 19 September

A week-long programme of events and initiatives launches across the country today to engage businesses, organisations and communities in Scotland’s response to the global climate emergency ahead of COP26.

Scotland’s Climate Week 2021 will turn the spotlight on the November summit by highlighting Scotland’s national and international actions on climate change while building awareness, generating conversations and encouraging commitment to further climate action.

Climate Week will include the launch of a series of Climate Festival events, part of a new engagement programme designed to empower local communities in the climate debate and ensure an inclusive approach which leaves no-one behind.   

Businesses, organisations and individual groups are being encouraged to take to social media to make a pledge they will commit to during COP26 to tackle climate change.

Net Zero Secretary Michael Matheson said: “COP26 coming to Scotland is a unique opportunity to advance the society-wide transformation required for us to become a net zero nation.

“I am determined to make sure the conference reaches out far beyond the negotiations in Glasgow. It must reach every community and deliver a lasting legacy that accelerates our emissions reduction whilst making absolutely sure we do that in a way that’s fair and leaves no-one behind.

“Becoming a net zero nation will require a huge national effort with all of us embracing the significant changes and the chance to secure a better future for us all. It’s crucial that everyone takes this opportunity to get involved. Only by taking action together will we succeed in creating a fairer, greener and climate resilient society.

“In addition to being part of the events taking place up and down the country this week, businesses, organisations, community groups, and individuals can be part of the COP26 Call to Action by making a pledge on social media to commit to climate action for the two weeks of the summit and beyond.”

More details can be found at netzeronation.scot

Centre for Cities: Recovery gathers pace as UK emerges from Covid-19 pandemic restrictions

Centre for Cities has published the latest data on its High Streets Recovery Tracker, up to the end of August.

The data suggests that footfall in all of the UK’s largest cities and towns is now recovering as the UK emerges from pandemic restrictions.

Some key findings from the latest data:

  • By the end of August, average footfall in the centre of the UK’s largest cities and towns reached 64% of pre-Covid levels – up from 53% at the end of July.
  • Footfall was highest in seaside resorts and other tourist destinations. It exceeded pre-Covid levels in Blackpool, Bournemouth and Southend and came close in Brighton, York and Edinburgh.
  • Reading saw a 41 percentage point increase in footfall between the end of July and the end of August – the biggest increase in the country. This is likely to do be due to Reading Festival.
  • The increase in footfall that places saw in August was driven by evening and weekend leisure visitors rather than workers. Worker footfall remained low throughout the summer
  • Overall footfall in central London and the centres of other large cities also remained low throughout the summer – both compared to other cities and compared to pre-pandemic. In central London overall footfall at the end of August was just 43% of pre-pandemic levels. On the weekend it was higher, at 67%, but still trailing smaller cities.
Where did city centre footfall increase the most in August?
Increased the mostIncreased the least
RankCityAugust footfall increase (percentage point)Last week of August footfall level (% of pre-Covid)RankCityAugust footfall increaseLast week of August footfall level (% of pre-Covid)
1Reading41951Mansfield177
2Blackpool401602Portsmouth268
3Southend301233Sheffield357
4Edinburgh27944Northampton364
5Bournemouth241235Slough362

You can explore the all the data for the 63 largest cities and towns on our interactive tracker.

Centre for Cities publishes footfall and spending data on a monthly basis. The next release will be published in mid-October and cover the full month of September.

Christmas at the Botanics unveils more surprises for festive trail

The winter spectacle, Christmas at the Botanics, has confirmed more installations for this year’s trail when it opens on 25th November, including a new festive finale.  

Running for 32 nights at the Royal Botanic Garden Edinburgh, friends and family will be able to come together to explore 15 dazzling installations along the one-mile route and experience the outdoor twilight trail.   

The latest installations confirmed for this year include Digital Rain, Fireflies in the Wood and the cascading Sea of Light (above) which will feature as the festive finale:  

  • Digital Rain – is an immersive installation by Bespoke Lighting and Video, featuring LED pixels that ‘rain down’ on those below to create a shimmering shower of light.  
  • Fireflies in the Woods – is an enchanting installation from Electric Foundry, containing 100 points of light that twist through the tress to create a magical woodland wonderland.  
  • Sea of Light – brings an enthralling mix of sound and light technology, from award-winning company ITHACA, that flows across the landscape in spectacular, glittering waves.  

To meet current Scottish Government guidelines, reduced capacities and a one-way system will be in place for the comfort of visitors coming together to celebrate the festive season. Health and safety measures, in place to protect visitors, will be monitored throughout the run. 

Simon Milne, Regius Keeper of the Royal Botanic Garden Edinburgh, said: “This year’s trail promises the arrival of new, exciting and atmospheric installations enabling visitors to enjoy the Garden landscape in a completely different way.   

“As we begin our landmark restoration programme, Edinburgh Biomes, we greatly appreciate the contribution that the trail makes to funding our plant research and conservation projects. By coming to the trail, visitors help to support our important work in Scotland and around the world. 

“I look forward to welcoming visitors from within the capital, Scotland, the UK and overseas to the Garden to experience this magical moment in Edinburgh’s festive calendar.” 

Jonathan Marks, Chief Development Director at Raymond Gubbay, a division of Sony Music, which promotes the event, added: “This year’s easing of restrictions will allow more people within Edinburgh and beyond to safely visit this enchanting spectacle.

“We are excited to welcome new artists and a brand-new festive finale that is bound to impress. There is so much to look forward to and we can’t wait for people to visit this magical winter experience.”  

Tickets for this year’s show are on sale now. For further ticket information, pricing and timings, please visit www.rbge.org.uk/christmas.

A timed entry system will remain for the trail this year with visitors encouraged to book now to avoid disappointment.  

Christmas at the Botanics is one of 15 illuminated trails staged across the UK by leading events promoter Raymond Gubbay Limited, a division of Sony Music. Christmas at the Botanics is presented in partnership with the Royal Botanic Garden Edinburgh and the trail is created by Culture Creative.   

For more details visit https://mychristmastrails.co.uk/ and follow @mychristmastrails on Facebook and Instagram. 

Thousands of teenagers missing out on Child Trust Fund cash

HM Revenue and Customs (HMRC) is today urging young people to check if they have a hidden pot of gold – in the shape of a Child Trust Fund (CTF).  

It is now one year since the first account holders started turning 18 and around 55,000 CTFs mature every month. This means their owners can withdraw funds or transfer savings into an adult ISA. Hundreds of thousands of accounts have been claimed so far, but many have not. 

CTFs were set up for all children born between 1 September 2002 and 2 January 2011 with a live Child Benefit claim. 

Parents or guardians set up these accounts with Child Trust Fund Providers – usually banks, building societies or investment managers – using vouchers provided by the government. If an account was not opened by the child’s parent, HMRC set one up on the child’s behalf. 

Between 2002 and early 2011, about six million CTFs were opened by parents or guardians, with a further million set up by HMRC. 

Economic Secretary to the Treasury, John Glen, said: “It’s fantastic that so many young people have been able to access the money saved for them in Child Trust Funds but we want to make sure that nobody misses out on the chance to invest in their future. 

“If you’re unsure if you have an account or where it may be, it’s easy to get help from HMRC to track down your provider online.” 

Some young people may not know they have a CTF – or some parents or guardians may have forgotten who they set the account up with. To help them find their accounts, HMRC created a simple online tool.  

Any young people unsure about whether or not they have a CTF should first ask a parent or guardian if they remember setting one up. Once they know who their provider is, they should contact them directly – and either request to withdraw the money or transfer the funds into an adult ISA or other savings account. 

For those who cannot access the tool, HMRC will provide alternative, non-digital routes to finding a CTF provider upon request. HMRC will send details of the provider by post within three weeks of receiving their request.  

The accounts were set up to encourage positive financial habits and a saving culture among the young account holders. HMRC is working with the Money and Pension Service (MaPS) and the CTF providers to continue to provide financial education to the beneficiariescation to the beneficiaries.  

At 16 years, a child can choose to operate their CTF account or have their parent or guardian continue to look after it, but they cannot withdraw the funds. At 18 years of age, the CTF account matures and the child is able to withdraw money from the fund or move it to a different savings account.

Police events to mark World Suicide Prevention Day

Yesterday saw the first of Police Scotland’s events to mark World Suicide Prevention Day which is on Friday (10th September).

We are grateful to Veterans First Point Lothian and Ithrive Edinburgh who joined us at Whitefoord House and also at the Gyle Shopping Centre to raise awareness of the support available to people affected by suicide.

Police are holding two events today, both of which run from 11am until 2pm:

They will be at Ocean Terminal along with Projekt 42PenumbraChris’s House and The Edinburgh Crisis Centre.

A team will also be at the Veteran’s Cafe in The Stafford Centre with Veterans First Point Lothian and Ithrive Edinburgh

Leading with Kindness: Carnegie UK urges organisations to put kindness at their heart

Nearly two years ago, Carnegie UK first convened a Kindness Leadership Network (KiLN), made up of members from different sectors spread across England, Scotland and Wales, with the stated aim of supporting and challenging organisations to move kindness ‘off the page’ and into practice.

As with many things, COVID-19 changed the nature and timetable of this programme of work, but it also presented opportunities for embedding kindness in organisational responses to the pandemic.

Today, we are delighted to launch a set of materials that tells the story of KiLN which we hope will inspire and support other organisations to join this growing movement in seeking to put kindness at the heart of their practice.

1.       Our main report, Leading with kindness, narrates the journey we’ve been on since 2019: how KiLN members adapted to COVID-19, and what we learnt about what is possible when kindness becomes an operating principle.

2.       The report culminates with a Commitment to Kindness, which distils the collective experience of KiLN members into six goals designed to enable organisations of all kinds and in all places to sustain and deepen their focus on kindness.

3.      Alongside this, we worked with Simon Anderson and Julie Brownlie to produce Getting the measure of kindness – a guide that aims to support organisations to develop their approach to the persistent challenge of measurement.

4.      Finally, over the next week we’ll be releasing a number of digital stories that aim to communicate the value and importance of kindness in a new way for people within organisations, and people interacting with organisations (look out for these on social media).

However, we don’t just want to share this learning; we want it to lead to action that improves wellbeing.

Therefore, if these reports resonate with the journey that you and your organisation are on, we invite you to endorse the Commitment to Kindness, to use it as a framework to enhance your organisation’s approach to implementing kindness, and to join a growing movement of ‘kind organisations’.

Finally, we would love to hear your thoughts and reactions, which you can share with the team via ben.thurman@carnegieuk.org and with others at @CarnegieUKTrust

#CommitmentToKindness.

With best wishes

SARAH DAVIDSON

Chief Executive, Carnegie UK

Twitter: @CarnegieUKTrust

www.carnegieuk.org