Patient reveals critical issues with current Edinburgh Eye Pavilion

A patient at the Princess Alexandra Eye Pavilion, has come forward to offer their insight into the shocking failings in the hospital.

Peter Scobie has been attending the Eye Pavilion for 18 years, after being diagnosed with Lebers hereditary optic neuropathy (LHON).

He lost his sight just before the pandemic and has been blind for 4 years now.

Peter has revealed the absence of specialists in the hospital, as his specialist is a paediatric doctor from the sick kids, who only comes to the Pavilion on Tuesdays.

A further issue with the hospital comes down to geographic issues, as he has previously been sent to Newcastle for an appointment while the closest specialist is even further south in Cambridge. 

He has also highlighted the absurd situation of those needing to receive sight loss assessments must go to the most inaccessible part of the building to receive the check.

Campaigners for a new Eye Pavilion, based at the Royal Infirmary were disappointed when the Scottish Government made no mention of the project in the budget late last year.

This is despite Michael Matheson telling campaigners that a decision would be made around the budget.

Health boards then discovered that there would be a two-year freeze on all capital spending and projects. They are also required to make 6.8% savings.

If this stays in place, there is no way that the Eye Pavilion will be built in the near future. This will force Peter, and other patients like him, to rely on services that the NHS themselves deemed not fit for purpose 10 years ago.

Commenting on Peter’s case, Labour Lothians MSP Sarah Boyack said: “Peter has helped to highlight the unacceptable condition of the current Princess Alexandra Eye Pavilion.

“Patients should have facilities that support them through their difficulties, not hinder them further.

“Eye Pavilion staff do their best but without a new building and facilities they have one hand tied behind their back.

“The Scottish Government needs to listen to patients like Peter and realise that maintaining the current building is bad for patients, bad for NHS Lothian, and bad for Edinburgh.”

Sight Scotland added: “In Peter’s case, an absence of specialist doctors that are trained in his condition means it is difficult for him to get the correct treatment he needs.

“With the closest specialist for his condition based in Cambridge, a new eye hospital could be an opportunity to provide a training ground for ophthalmologists.

“The hospital’s inaccessible layout means that Peter and many others seeking essential services, such as collecting prescriptions and visiting patient support on the top floor, struggle to do so.

“More needs to be done to ensure accessible access to quality eye healthcare.”

Police appeal as drugs drone crashes near Saughton prison

POLICE are appealing for information after a drone crashed near HMP Edinburgh. The incident was reported to police around 1.05am yesterday (Wednesday, 17 January).

We are working with partners in the Scottish Prison Service to establish the full circumstances, but enquiries so far indicate the drone was carrying a package of drugs.

Sergeant Mark Coull said: “It is believed the drone operator was in the Longstone Road area. Residents may have CCTV or even a passing motorist could have dash-cam footage that could assist us. We are keen to speak to anyone with information that could trace those responsible. 

“Drugs bring nothing but misery and harm. We depend on the support from our partners and members of the public, and will continue to use every tool and tactic at our disposal to remove illegal substances from our communities.”

Anyone who can assist with our enquiries can contact Police Scotland on 101, quoting reference 0123 of Wednesday, 17 January, 2024. Alternatively, Crimestoppers can be contacted anonymously on 0800 555 111.

Choudhury: Third sector community organisations crying out for support

A Labour MSP for Lothian has rung alarm bells about the barriers to funding for small, community-based organisations.  

Foysol Choudhury yesterday (17th January) hosted a roundtable at the Scottish Parliament for third-sector community organisations to discuss the current funding model, barriers to access for smaller organisations, and what lessons could be learnt. 

 The roundtable attendees and MSPs heard from Citadel Youth Centre, Edinburgh and Lothians Regional Equality Council (ELREC), EVOC, North Edinburgh Arts and The Larder.  

Mr Choudhury is Chairperson of ELREC and will be well aware of the challenges faced by third sector organisations.

Following the roundtable, Foysol Choudhury praised the work of these third-sector organisations in working so closely with, and to benefit of, local communities. He said, however, that more could be done to support these vital organisations to be more included in the funding process: 

The third sector in Scotland is a vital contributor to both the economy and society as a whole.   

“The recent Scottish Budget announcements have left many organisations in the third sector unable to be sure of secure funding for the year ahead, directly impacting on their ability to provide vital services to communities when they need it the most post-pandemic and during the cost-of-living crisis.   

It was made clear from today’s discussion that sustained, long-term and fair funding is needed for the sector. 

“Some third sector organisations may be smaller, but they have a big impact and they must be consulted with and represented in the Scottish budget. 

“This is especially true where they cater to minority communities and exclusion from the budget may increase inequalities for those communities.” 

Mr Choudhury says that the conversation at the table today was positive and collaborative but that the organisations were also “crying out for more support and recognition of their vital work”.  

Organisations at the roundtable raised how many smaller organisations were in competition with each other for grants and core funding, so the system should facilitate more collaboration.

Other groups also raised how smaller organisations are missing out on funding because they don’t meet criteria, or don’t have the experience and funds to hire fundraisers to make applications like many bigger organisations do.

Mr Choudhury says he will continue to build on this constructive conversation and represent small third-sector community organisations in the Scottish Parliament, pressing for more funding and consultation wherever possible.

Budgets are about spending priorities, and Labour trails both the SNP and the Conservatives at Holyrood. Elections to the Scottish Parliament will not take place until May 2026.

Of more immediate concern for voluntary sector organisations is the current budget process. The city council (a Labour-led coalition with Lib-Dems and Conservatives) is looking at further cuts as it sets it’s budget for 2024 – 25.

Councils blame the Scottish Government for funding cuts while Holyrood in turn blames the UK Government at Westminster. It’s a blame game that’s gone on for as long as I can remember, and while the politicians bicker, the poorest communities – and the charities and voluntary sector projects that support them – bear the brunt and feel the pain of service cuts.

That’s got to change – but sadly change, if it comes, will come too late for many – Ed.

Police continue to search for missing mum Khasha Smith

POLICE enquiries are continuing to locate 35-year-old Khasha Smith, missing from Calder Grove in Edinburgh. Officers have been distributing and pinning up posters in the local area.

Khasha’s family is extremely concerned for her and are hoping the posters remind people she’s still missing and that we are still looking for information which could help us find her.

As enquiries have progressed, police have established that the last known, confirmed sighting of Khasha was Tuesday, 10 October, 2023.

Khasha is around 5ft tall, with a slim build. She has blue eyes and long, blonde hair. She also has tattoos, one which is visible on her right wrist and says ‘Forever’.

She often visits the Gorgie, Broomhouse and Wester Hailes areas.

If anyone has seen Khasha or has any information on where she may have gone, please call Police Scotland on 101, quoting reference 3915 of 5 January.

Letters: 60 second test could save you from having a stroke

STROKE PREVENTION DAY – THURSDAY 25th JANUARY

In Scotland, over 70,000 people have a ‘silent killer’ which is one of the leading causes of serious strokes – and many more may be unaware that they have it.

Atrial fibrillation – or AF – is a cause in around one in five strokes and these are often more severe, with higher mortality and greater disability. 

AF is when your heart beats with an irregular rhythm. When this happens, your heart won’t empty all of the blood out of its chambers with every beat. Then, if your heart chambers aren’t empty, the leftover blood can form clots which travel from your heart into the brain, blocking off blood flow and causing a stroke.

AF sometimes has symptoms including palpitations – feeling as if your heart is fluttering, thumping or skipping a beat – fatigue, feeling breathless or having chest pain. But often it’s symptomless, which is why it often goes undiagnosed, until it’s too late. 

The good news is that AF can be picked up and treated after a simple check.

So, on Stroke Prevention Day, Thursday 25 January, we are encouraging the public to check their own pulse at home.

A video on our website shows how you can quickly and easily test yourself by placing two fingers on your wrist or neck www.stroke.org.uk/spd24.  

Normal heart rate: your pulse should feel regular. Most people have a resting heart rate between 60 and 100 beats per minute (bpm).

Abnormal heart rate: your pulse may feel uneven or skip a beat. Your resting heart rate could be over 120 bpm.

If your pulse is irregular, or very fast when you are at rest, you should contact your GP.

This 60-second test could save your life.

John Watson

Associate Director Scotland,

The Stroke Association

Over half of Scots feel anxious or nervous about making friends, new research finds

New research commissioned by Beavertown Brewery has shone a light on the challenges adults in Scotland face in making new friends, revealing that over a third (39%) would love to make new friendships, but over half (61%) feel either anxious or nervous about it. 

The study, which surveyed 2,000 participants, found that adults typically stop making new friends around the age of 30 to 34, with 1 in 10 (10%) of those in Scotland not having formed a new friendship since then.

According to the OnePoll.com data, over half (55%) of Scots think it’s harder to make friends or meet new people as you get older, with a third admitting they’d be nervous at the prospect.

The study also found that out of those who feel most lonely in January, 29% put it down to people not wanting to socialise after Christmas, 57% say it’s due to the weather, and 71% blame it on the fact that it’s too dark to go out anywhere. 

According to the survey, nearly half (47%) of all adults in Scotland would be unlikely to admit feelings of loneliness to someone else, with over half (62%) believing there is a societal taboo around adult loneliness.

Despite this, 40% of Scots would take a class to learn a new skill in a bid to make new friendships, while 16% would give meet-up apps a go. 

Tom Rainsford, Marketing Director of Beavertown Brewery, said: “Let’s be honest, January can feel like a month of Mondays, and with people out and about, it can also be a month when feelings of loneliness surface.

“At Beavertown we’re all about creating moments that bring people together, which is why, with our charity partner CALM – we’ve launched our series of community events in a month where going out and meeting mates might normally feel like a challenge.

“Why not give it a try – and join us in our shout to crush loneliness this January.” 

Matt Jennings, CMO at Campaign Against Living Miserably said: “Let’s face it, with the festive fun over, getting through January can feel like a mountain to climb. And with millions of people reporting that they feel lonely some or most of the time, finding ways to bring people together couldn’t be more important.

“That’s why we’re excited to team up with Beavertown to help make this notorious month feel less miserable with a series of free climbing events to hopefully spark new friendships and hobbies – and show that we’re not alone.”

This January, Beavertown Brewery and CALM invite everyone to Crush Loneliness together and take a proactive step toward building meaningful connections.

New Edinburgh steakhouse announces opening date

RIO Brazilian Steakhouse announces opening date of Edinburgh restaurant

The first Scottish venue opens Friday 9th February 2024

Edinburgh food lovers can now mark their calendars as RIO Brazilian Steakhouse announces its arrival to the capital for Friday 9th February.

The popular Brazilian Steakhouse offering an authentic Brazilian Churrasco dining experience will open its doors on George Street, within the historic Assembly Rooms building in a 150-cover space formerly home to Jamie’s Italian.

From early February, RIO will welcome guests to enjoy exquisite cuts of meat carved tableside in a traditional Rodizio style, while watching skilled chefs prepare authentic dishes from a stunning central sushi bar, with an unlimited gourmet salad bar lining the walls with an array of imported cheeses, meats and Brazilian flavours for diners to choose from.

The opening will be the restaurant’s first venue north of the border, bringing its non-stop meats concept to Scotland with a set price boasting a competitive alternative to other steakhouses in the city.

The expansion follows RIO’s success in England, marking the 8th location since the brand was established. Founded in Jesmond in November 2019, the Edinburgh site adds to its current locations in Jesmond, Newcastle’s Quayside, Middlesbrough, Durham City Centre, Warrington, Chester and York.

Rodrigo Grassi, Co-owner of RIO Brazilian Steakhouse, said: “It’s an exciting moment for us to announce RIO’s arrival into Edinburgh on the 9th of February, bringing our unique concept to Scotland for the first time.

“We look forward to welcoming our first guests through the doors in a month’s time in true Brazilian fashion, with plenty of good food, drink, and celebration!”

RIO Brazilian Steakhouse’s expansion into Edinburgh will also bring a range of employment opportunities, with recruitment underway for roles throughout the restaurant.

Interested applicants are encouraged to get in touch with their CVs by contacting careers@rio-steakhouse.co.uk, or apply online at https://harri.com/RioEdinburgh.

RIO opens from 5pm, Friday 9th February. Bookings are now open here.

NFU Mutual pledges £3.25m charitable support during 2024

In response to the ongoing challenges faced by communities across the country, NFU Mutual has announced £3.25m of funding for local and national charities during 2024.

The leading UK rural insurer is pledging this support to help tackle the ongoing effects of the pandemic and assist with the impact of the rising cost of living.

NFU Mutual will be donating £1.92m to local front-line charities through its Agency Giving Fund. First launched in 2020 in response to the pandemic, the insurer is keeping this annual fund going into 2024 to further help local charities and communities across the UK.

Once again, NFU Mutual Agency and branch offices, covering more than 280 locations nationwide, will be invited to nominate front-line charities to receive a share of the fund. This will ensure that donations reach all corners of the UK and are directed where they are needed most.

To support national and regional charities, NFU Mutual is pledging £1m to the NFU Mutual Charitable Trust.

The Trust is an independent charity the insurer set up in 1998 to support other charities and organisations working in the interests of agriculture, rural communities and the countryside. Since it was founded, the Trust has distributed donations totalling more than £8.6m and made a positive difference to education, research, social welfare and poverty relief. 

Alongside this, NFU Mutual has also committed £30,000 to its Community Champions scheme, to support causes close to the heart of its people, by donating to staff fundraising events and initiatives.

The £3.25m funding is completed with a £300,000 donation to the Farm Safety Foundation (Yellow Wellies), an independent registered charity founded and funded by NFU Mutual.

As it celebrates its tenth anniversary, the 2024 support will help the Foundation to carry on delivering their education programme, award-winning campaigns, research and engagement throughout the UK, so they can continue raising awareness of, and addressing the attitudes and behaviours around, risk-taking and poor mental health in the industry.

Nick Turner, Group Chief Executive of NFU Mutual, said: “We’re proud to be maintaining significant levels of charitable giving in 2024. We recognise these are challenging times, and our initiatives will support national and local charities right across the UK who are delivering vital services to those in need.”

XL Bully Ban: PDSA outlines looming deadlines

With the start of the New Year also being the introduction of the XL Bully ban in England and Wales, the countdown is now officially on for owners to comply with the new legislation before time runs out.

In the latest news from the Scottish Government, there are now plans for an XL Bully ban to come into force in Scotland as well, with little known detail just yet, but it was shared the ban will mirror the measures that have been introduced in England and Wales. 

PDSA Vet Lynne James shares a breakdown of the timeline impacting owners in England and Wales, plus some key information, as well as some of the charity’s concerns.

Timeline of the ban

“The timeline of the ban is one of the most important factors, especially now, as owners in England and Wales do not have very long to ensure they comply with the new rules soon to come into force.”

  • Right now, all XL Bully type dogs must be wearing a muzzle and kept on a lead when in public. It is also now illegal to breed, sell, advertise, exchange, gift, rehome, abandon or allow an XL Bully type dog to stray.
  • Owners can no longer apply for a Certificate of Exemption by email or by post (deadline was 15 Jan) – the only way to now apply is through the government website.
  • The deadline to apply for an Exemption through the Government website is by midday on 31 January.
  • From 1 February, XL Bully type dogs must have a Certificate of Exemption.
  • By 30 June 2024, all XL Bully type dogs over 1 year old on 31 January 2024 must be neutered. 
  • By 31 December 2024, all XL Bully dogs under 1 year old on 31 January 2024, must be neutered.

What we know

“Although there is now a ban in England and Wales, the current population of XL Bully type dogs is going to be around for years to come, and this will likely be the same in Scotland too. With the average lifespan being around 10-12 years, the ban does not mean these dogs will suddenly disappear.

“The government has determined the physical characteristics which will decide if a dog fits the ‘breed type’ of the XL Bully. They have shared DNA or simply what owners were told their dog was when they were bought or rehomed will not count as evidence of breed.

“However, they have confirmed that other established breeds, such as those recognised by the UK Kennel Club, who may meet some of the characteristics of the XL Bully breed type, are not covered by the ban.

“The Government has also stated that owners are responsible for determining themselves if their dog is classified as an XL Bully type or not, and whether that means they should apply for an Exemption.

“We also know, regardless of personal thoughts about the ban, all owners of dogs deemed to fit the XL Bully type will now need to follow the guidance. Owners found not complying with the legislation may face a criminal record and an unlimited fine if they are found to be in possession of an XL Bully type without a Certificate of Exemption, and their dog could be seized, or in some cases, dogs may even be put to sleep by the authorities.

“We’re aware this a worrying time for many, in England, Wales and now Scotland, and we maintain our position that Breed Specific Legislation is not the right course of action to protect the public.

PDSA’s concerns

“In addition to our concerns about this rushed through legislation, the timeline of the ban in England and Wales is adding unnecessary pressure on owners who are already in a stressful situation.

“We know recent years have been financially tough for many, with PDSA seeing an increase in demand for our low-cost services. Finding the funds in a short space of time to cover the cost of an Exemption, as well as what is needed to comply, including neutering, may not be easy for many, and may have long-term impacts. With no help to cover these costs announced from the Government, it leaves animal charities like PDSA left to pick up the pieces.

“We’re also concerned that the potential stigma of owning a ‘banned breed’ could sadly lead to owners feeling unable to walk or socialise their dogs. This will no doubt have a severe negative impact upon the welfare of these dogs, whose health and welfare must remain an upmost priority.

“We know the announcement in Scotland may not be the news many want to hear, but we will continue to support owners across England, Wales and Scotland however we can. PDSA’s main focus remains supporting owners with our aim being to keep people and pets together.”

As the weeks go by, and the deadlines get closer in England and Wales, and more information is shared about the upcoming ban in Scotland, PDSA will continue to update their website to ensure all of the information is up to date and relevant for owners.

Head to PDSA’s website to find out more: pdsa.org.uk/XLbully

Letters: RNIB invites youngsters with a vision impairment to enter writing competition

Dear Editor,

Gearing up for the celebrations of this year’s World Book Day on 7 March 2024, the Royal National Institute of Blind People (RNIB) is inviting children with a vision impairment to submit a piece of creative writing for its World Book Day writing competition.

The final competition winners will be judged by multi- award-winning children’s writer Sir Michael Morpurgo – author of books including War Horse and Private Peaceful. The overall winner will receive ten signed copies of Michael Morpurgo’s books.

Writing submissions must be on the theme of ‘adventure’. Taking the lead from RNIB’s motto, ‘See differently’, the charity wants to celebrate different ways of seeing, sensing and taking part in an adventure that children have been on, or that they can imagine.

No previous experience of creative writing is required and RNIB is keen to receive submissions from as many young people aged 5-12 as possible.

Writing and being creative is hugely beneficial and enjoyable for everyone, especially when going through big life-changes such as growing up.

Hearing the unique perspectives of young writers who have a vision impairment will be a real privilege and I can’t wait to read the fabulous work that I’m sure will be created. We are delighted that Michael Morpurgo has agreed to pick the winner for us as part of his support for RNIB’s World Book Day celebrations.

Competition Rules

  • The competition is open to any child or young person between the ages of 5-12 years with a vision impairment in the UK. 
  • The competition runs from 9am on 1 January 2024, to midnight 18 February 2024. 
  • Send in an original piece of writing up to 500 words in a Word document, MP3 audio or MP4 video, via email. 
  • The piece of writing must be based on the theme ‘Adventure’. 
  • Submissions must be in English. 
  • The use of AI, such as ChatGPT is not permitted. 
  • One submission per author: this will be the first entry emailed to us. 
  • Email all entries with the subject of “WBD competition” to lara.marshall@rnib.org.uk. 
  • The top three entries will be sent to award-winning author Michael Morpurgo for him to choose the final winner. 
  • All entries submitted will be read and shortlisted by RNIB’s library team.

Prizes

  • The winner will receive a signed set of ten of Michael Morpurgo’s books, in their preferred format.

Some suggestions to inspire you, but please feel free to come up with your own ideas too:

  • Travelling somewhere new on holiday.
  • Having a crazy dream.
  • Encountering a strange individual.
  • Finding an interesting artefact. Going on a quest to find mysterious treasure.
  • Finding yourself lost in a place you’ve never been before.
  • Having to save a friend in peril.

Good luck!

Lara Marshall,

Library Engagement Manager, RNIB