Patient reveals critical issues with current Edinburgh Eye Pavilion

A patient at the Princess Alexandra Eye Pavilion, has come forward to offer their insight into the shocking failings in the hospital.

Peter Scobie has been attending the Eye Pavilion for 18 years, after being diagnosed with Lebers hereditary optic neuropathy (LHON).

He lost his sight just before the pandemic and has been blind for 4 years now.

Peter has revealed the absence of specialists in the hospital, as his specialist is a paediatric doctor from the sick kids, who only comes to the Pavilion on Tuesdays.

A further issue with the hospital comes down to geographic issues, as he has previously been sent to Newcastle for an appointment while the closest specialist is even further south in Cambridge. 

He has also highlighted the absurd situation of those needing to receive sight loss assessments must go to the most inaccessible part of the building to receive the check.

Campaigners for a new Eye Pavilion, based at the Royal Infirmary were disappointed when the Scottish Government made no mention of the project in the budget late last year.

This is despite Michael Matheson telling campaigners that a decision would be made around the budget.

Health boards then discovered that there would be a two-year freeze on all capital spending and projects. They are also required to make 6.8% savings.

If this stays in place, there is no way that the Eye Pavilion will be built in the near future. This will force Peter, and other patients like him, to rely on services that the NHS themselves deemed not fit for purpose 10 years ago.

Commenting on Peter’s case, Labour Lothians MSP Sarah Boyack said: “Peter has helped to highlight the unacceptable condition of the current Princess Alexandra Eye Pavilion.

“Patients should have facilities that support them through their difficulties, not hinder them further.

“Eye Pavilion staff do their best but without a new building and facilities they have one hand tied behind their back.

“The Scottish Government needs to listen to patients like Peter and realise that maintaining the current building is bad for patients, bad for NHS Lothian, and bad for Edinburgh.”

Sight Scotland added: “In Peter’s case, an absence of specialist doctors that are trained in his condition means it is difficult for him to get the correct treatment he needs.

“With the closest specialist for his condition based in Cambridge, a new eye hospital could be an opportunity to provide a training ground for ophthalmologists.

“The hospital’s inaccessible layout means that Peter and many others seeking essential services, such as collecting prescriptions and visiting patient support on the top floor, struggle to do so.

“More needs to be done to ensure accessible access to quality eye healthcare.”

Boyack accuses Health Secretary of misleading patients over New Eye Pavilion decision

Lothian Labour MSP, Sarah Boyack has written to Cabinet Secretary for Health, to ask him for clarity over when the decision will be made over the New Edinburgh Eye Pavilion.

In a November meeting organised by Ms Boyack between patients and Michael Matheson, the Cabinet Secretary assured patients that any decision over the Eye Pavilion would be made in December, in line with the budget.

However, a Scottish Government spokesperson has now claimed that the decision will not be made until the Spring.

Delaying this decision will force patients to rely on outdated services and face further cancelled appointments.

Campaigners were hoping that the current budget would provide long awaited clarity for whether the new facility would get the go-ahead.

Sarah Boyack MSP said: “Michael Matheson has fundamentally misled patients.

“To tell patients that the decision would be made in December, only for it to be pushed back to the Spring is a slap in the face for all those who need a new facility.

“Michael Matheson needs to confirm on the record when the capital spending will be announced and apologise for misleading patients.

“Every day the Scottish Government delays, the project becomes more expensive, and the current Eye Pavilion deteriorates further.

“If Michael Matheson does not provide clarity now, we are heading towards a crisis for eyecare services in Edinburgh.”

Craig Spalding, Chief Executive of Sight Scotland, added: “We’re concerned the Scottish Government’s plans to review this project again in the spring is too little too late.

“It’s now 10 years on since the current hospital was declared unfit for purpose and by delaying the decision again is ignoring the critical need of patients and staff attending the current hospital.

“As time goes on, the building deteriorates further and the risk to people’s safety increases. People with visual impairment and eye conditions deserve better.”

Keeping an eye on health promises

Lothian MSP, Miles Briggs, has called for clarity over upcoming NHS Lothian infrastructure projects.

Last month (w/c 14th December) it was announced that the Scottish Government was withdrawing £45 million funding for a new Princess Alexandra Eye Pavilion hospital. An initial agreement for the new hospital had already been agreed and a business case submitted in May 2019.

In a Written Answer from the Scottish Government this month, Lothian MSP Miles Briggs, was informed that an Initial Agreement, IA, had been submitted from NHS Lothian for a new Edinburgh Cancer Centre and a decision would be made this month (December) by the Capital Investment Group, CIG, based on the strategic case.

The new Edinburgh Cancer Centre would provide services for Cancer patients across the South East of Scotland.

At the start of this year, prior to Covid-19, it was announced that plans for a new Edinburgh Cancer Centre would be delayed to 2030 from the original planned date of 2025. The Scottish Government committed to investing £20 million in the current Edinburgh Cancer Centre to keep it going until the new Centre is ready.

Lothian MSP, Miles Briggs, said: “The confusion around new NHS Lothian infrastructure projects is extremely concerning and clarity is urgently needed on what projects are being funded.

“We are in desperate need of a replacement Edinburgh Cancer Centre, which will benefit the whole of the South East of Scotland, and is expected to be another decade before it is ready.

“The wait for routine eye treatments, such as for Glaucoma, are already incredibly long in NHS Lothian and patients deserve better than being short changed by SNP Ministers.

“I will hold SNP Ministers to their word to get these essential projects in NHS Lothian funded.

“SNP Ministers have underfunded NHS Lothian for the last 10 years. We need to see the health board receive their fair share of health funding in the upcoming budget.”