Patient reveals critical issues with current Edinburgh Eye Pavilion

A patient at the Princess Alexandra Eye Pavilion, has come forward to offer their insight into the shocking failings in the hospital.

Peter Scobie has been attending the Eye Pavilion for 18 years, after being diagnosed with Lebers hereditary optic neuropathy (LHON).

He lost his sight just before the pandemic and has been blind for 4 years now.

Peter has revealed the absence of specialists in the hospital, as his specialist is a paediatric doctor from the sick kids, who only comes to the Pavilion on Tuesdays.

A further issue with the hospital comes down to geographic issues, as he has previously been sent to Newcastle for an appointment while the closest specialist is even further south in Cambridge. 

He has also highlighted the absurd situation of those needing to receive sight loss assessments must go to the most inaccessible part of the building to receive the check.

Campaigners for a new Eye Pavilion, based at the Royal Infirmary were disappointed when the Scottish Government made no mention of the project in the budget late last year.

This is despite Michael Matheson telling campaigners that a decision would be made around the budget.

Health boards then discovered that there would be a two-year freeze on all capital spending and projects. They are also required to make 6.8% savings.

If this stays in place, there is no way that the Eye Pavilion will be built in the near future. This will force Peter, and other patients like him, to rely on services that the NHS themselves deemed not fit for purpose 10 years ago.

Commenting on Peter’s case, Labour Lothians MSP Sarah Boyack said: “Peter has helped to highlight the unacceptable condition of the current Princess Alexandra Eye Pavilion.

“Patients should have facilities that support them through their difficulties, not hinder them further.

“Eye Pavilion staff do their best but without a new building and facilities they have one hand tied behind their back.

“The Scottish Government needs to listen to patients like Peter and realise that maintaining the current building is bad for patients, bad for NHS Lothian, and bad for Edinburgh.”

Sight Scotland added: “In Peter’s case, an absence of specialist doctors that are trained in his condition means it is difficult for him to get the correct treatment he needs.

“With the closest specialist for his condition based in Cambridge, a new eye hospital could be an opportunity to provide a training ground for ophthalmologists.

“The hospital’s inaccessible layout means that Peter and many others seeking essential services, such as collecting prescriptions and visiting patient support on the top floor, struggle to do so.

“More needs to be done to ensure accessible access to quality eye healthcare.”

Boyack slams Government over Eye Pavilion ‘flip-flop’

A meeting organised by Sarah Boyack MSP with the Cabinet Secretary for Health, Michael Matheson, to discuss the delayed Edinburgh Eye Pavilion has left patients and campaigners even more concerned about its future.

At the meeting it was confirmed that all previous work on designing and building the Edinburgh Eye Pavilion will be wasted as a new full business case will have to be written, costing many more millions of pounds.

Michael Matheson also failed to provide clarity on the timescales expected for the new building, confirming it may not even come in this funding cycle.

Commenting Scottish Labour MSP Sarah Boyack said, “This flip flopping has been going on for too long. One minute the Scottish Government are committed to a new Eye Pavilion, next they are not.

“Michael Matheson’s failure to provide clarity today will leave patients worried, confused and angry.

“It did not have to be this way, if it had been built on time we would have saved many millions of pounds and patients would not be left in the dark.”

Also commenting Sylvia Paton, chair of KEEP said, “While Mr Matheson assured us that a new Eye Hospital would be built at some point, we are very disappointed about the lack of clarity over when.

“The prospect of further delays raise serious concerns about the Scottish Government’s future commitment to the project.”

Next steps for new Eye Pavilion

Health Secretary Humza Yousaf has confirmed that the outline business case for the new Edinburgh Eye Pavilion has been approved by the Scottish Government. NHS Lothian has now been invited to submit a full business case.

This will be part of a £10 billion investment in the NHS estate over the next 10 years, bringing about the renewal and replacement of health facilities across Scotland.

Mr Yousaf said: “I am delighted that we are a step closer to delivering improved specialised eye services for the city of Edinburgh and the wider region.

“The Scottish Government is committed to working closely with NHS Lothian to meet the demand for eye care, with improvements for patients and a more modernised service.”

Earlier this year, the Scottish Government asked NHS Lothian to carry out a review of eye care services, including redesigning pathways to enable patients to access care closer to home.