Click on the post below and their link to register your interest. Please share with any unpaid carers you know.
Caring for someone and juggling multiple roles can be stressful.
VOCAL’s stress management course on Wednesday 21 June at Pilton Community Health Project can help you to develop techniques to plan for and manage symptoms:
LifeCare Edinburgh launches new dementia-friendly hairdressing service helping local older people “feel like themselves again”
COVID restrictions taught us all how much we value a visit to our local hairdresser to help us feel like ourselves, boost our self-esteem and to simply enjoy a chat and a catch-up with a friendly face.
Sadly, for people living with dementia this lockdown experience can be a permanent feature in life as visiting an everyday salon can be inaccessible, overwhelming, and without the right training, difficult for a hairdresser to deliver well.
However, things are changing in the capital as local charity LifeCare has launched the city’s first dedicated dementia-friendly hairdressing service providing essential haircare services for people living with dementia and their unpaid carers.
LifeCare’s new ‘Forget-Me-Not’ hair service involves an experienced, caring and dementia-trained mobile hairdresser visiting people in their homes so that they can continue to experience the joy of a haircut.
The benefits of a hairdressing experience for a person living with dementia can be significant. Haircare helps people to maintain their appearance but also impacts how they feel, their personal identity, and their overall self-esteem.
For a person living with dementia, hairdressing can be a unique multi-sensory experience providing a valuable opportunity for touch and physical contact which is often missing outside of practical interactions.
Regular visits and time for conversation can reduce feelings of isolation and loneliness. Feelings of self-worth and positive self-image are boosted and this increased confidence can mean people are more likely to be motivated to attend other activities and stay engaged with their community.
Evidence shows haircare services support reminiscence activities as scents and experiences involved can be incredibly evocative and personal appearance can relate to people’s life stories and relationships.
James Wells, Chief Executive of LifeCare said“It’s sad and unfair that people living with dementia struggle to access ordinary haircare services that many of us take for granted.
“The typical busy, hot and noisy hair salon environment can just be too overwhelming for some and a lack of understanding amongst hairdressers can make the experience really difficult for everyone. Mobility issues and transport concerns also create problems.
“At Lifecare, we have a proud 80-year history of providing essential care services for local older people, ensuring no-one is left alone or isolated and that everyone can continue to enjoy the joy in their lives. So, we’re absolutely delighted that we are now able to launch this dedicated service which will make an immediate positive and life-changing difference to our older clients and their carers.
“We are already hearing from clients how they “feel like themselves again” and “can’t wait for their next appointment”. I’m looking forward to hearing more of these stories as the service continues to grow.”
Audrey McDonald, LifeCare’s dementia-friendly hairdresser said: “It is an absolute pleasure to be helping to deliver this fantastic service. From my own personal experience, I understand how frustrating it can be for a person to be shut-out of these important pleasurable activities.
“Even a small trim can cheer a person up for the day. In just a few short weeks, I have already seen how much joy the service is bringing for local people.
“Together we are enjoying a giggle, a chat about old times and everyone is left feeling a million dollars.”
The charity relies on support from its funders to deliver all of its essential services. The Forget-Me-Not Salon has been made possible thanks to financial support from Age Scotland’s About Dementia project in partnership with the Scottish Government.
Head of Dementia at Age Scotland, Dr Kainde Manji said “We are excited to support LifeCare in their delivery of a dedicated haircare service for people with lived experience of dementia, and we recognise the importance of this type of community-based support in enabling ordinary activities that make a big difference to individual wellbeing.
“We know that increasing wellbeing and tackling social isolation can empower people with lived experience of dementia to take a more active role in their communities.”
The “Forget-Me-Not” hair service has been initially set up as pilot project offering the service to clients for free to ensure that it is accessible to all.
Carers Trust Scotland today is releasing research about the lived experiences of older adult unpaid carers in Scotland. Over 450 participants shared their experiences and the unique challenges they face as an unpaid carer.
The impact of caring unpaid on one’s health and wellbeing was highlighted in the report, with 80% of participants stating that their physical health, and 87% of respondents stating their mental health and wellbeing, had been affected by their caring role.
65% of respondents said that they experience feelings of loneliness some of the time, and a further 19% said they often felt lonely.
“My health is deteriorating quite rapidly and I am afraid as to what may happen to loved ones should I die.”
The report also explores the support available for older adult unpaid carers.18% of respondents feel as though they have no time for themselves.
Furthermore, a quarter of respondents (25%) reported having difficulty being able to find the support they need as an unpaid carer. By not having the adequate support in place to support their caring role, it prevents many from being able to have break. Our research found that in the past 12 months, 18% reported that they had tried to take a break but had not been able to.
As well as an impact on health, many older adult unpaid carers experience financial difficulty, with 82% of respondents feeling as though their caring role has financially impacted them.
Challenges in retaining employment and developing a career alongside a caring role were highlighted by unpaid carers. Also, older adult unpaid carers with an underlying entitlement to Carer’s Allowance but no longer in receipt of the benefit due to receiving a full State Pension expressed their anger and frustration, with many feeling they are financially penalised due to their age whilst maintaining a substantial caring role.
“Not getting Carer’s Allowance is shocking. I care 24/7 non-stop. I would get State Pension anyway caring or not. Pension is not a benefit. When one needs the funds for caring, it stops. State Pension is there for me, not to supplement the caring role. I have not had Carer’s Allowance in 15 years.”
The report also explores the impact of the ongoing cost-of-living crisis, with many older adult unpaid carers sharing ways in which they have tried to save money over the past 12 months.
37% have used less gas/electricity in their homes.
35% have cut back on essentials.
19% have skipped meals, and 16% have used a food bank.
27% have used their pension pot for everyday expenses.
In addition to publishing the lived experiences of older adult unpaid carers in Scotland, the research report also puts forward recommendations for support for unpaid carers and carer services and staff.
Among its recommendations, Carers Trust Scotland is calling for:
Scottish Government extend Carer Support Payment to older adult unpaid carers with underlying entitlement who are receiving State Pension.
Health and Social Care Partnerships and local authorities provide ringfenced funding to local carer organisations dedicated to providing physical and mental health support for older adult unpaid carers. Additionally, develop specific programmes aimed at combatting social isolation and loneliness amongst older adult unpaid carers.
Scottish Government creates a dedicated section in the Older Adult Framework on older adult unpaid carers.
Scottish Government ensures there is a dedicated section on unpaid carers in the upcoming Dementia Strategy, with particular focus on where to turn to for support.
Jim Guyan, an unpaid carer from Shetland, said: “This report highlights the continuing lack of recognition and support given to elderly unpaid carers by the establishment.
“It also makes recommendations that require action immediately.”
Becky Duff, Director of Carers Trust Scotland, comments: “The changes in demographic trends in Scotland has seen our population begin to age over recent decades. It is therefore vital that we understand the challenges facing unpaid carers aged 65 and above which will be key in helping us support them.
“The research report highlights that older adult unpaid carers across Scotland experience numerous impacts to their everyday lives, including in health, finances and support in their caring role.
“Many older unpaid carers have also faced challenges with employment, whether that is throughout their career and not having the same opportunities as those who don’t have caring roles, or in having to give up employment early due to their caring role.
“We are pleased to publish this report and believe every effort should be made to support the implementation of the report’s recommendations, which we believe will support older adult unpaid carers across Scotland.”
“All general bills are a worry. It’s crushing to not even be able to afford the most basics in life due to being an unpaid carer.” (unpaid carer responding to the Carers Trust survey)
Almost three quarters (74%) of unpaid carers in Scotland are worried about being able to afford energy bills.
Almost two thirds (58%) of unpaid carers in Scotland have either had to give up work altogether or reduce their paid hours because of their caring role.
One in eight (12%) unpaid carers in Scotland have had to use a food bank.
Carers Trust is urging the Scottish Government and the UK Government to provide additional cost-of-living support to unpaid carers now and to develop long-term solution for funding of social care.
A new survey of unpaid carers in Scotland provides a stark assessment of how many of Scotland’s 800,000 unpaid family carers have been plunged even further into financial misery by the cost-of-living crisis.
The research, undertaken by Carers Trust, the UK infrastructure charity for local carer organisations, revealed that 38% of all unpaid carers have had to give up paid work altogether to provide the dedicated care at home that a sick or disabled relative needs. A further 20% of respondents reported having reduced the number of paid hours they work because of their caring role.
The research, which was responded to by 531 family carers, uncovered the shocking fact that one in eight (12%) unpaid family carers are now using food banks as a result of soaring living costs. In addition:
28% have had to cut back on food
7% have either sold their home or released home equity to pay for essential items
17% have not been able to pay household bills on time
38% have had to cut back on other household items
27% have had to use a credit card to pay for essential household items.
25% have had to borrow money from a friend or a relative
17% have had to take out a loan
One survey respondent said: “I am terrified that I won’t be able to pay the bills this winter”.
Responding to a survey question about what essential costs they would no longer be able to afford, almost half (48%) said transport, almost three quarters (74%) said energy bills and over one third (34%) said rent or mortgage costs.
Carer’s Allowance failing to prevent poverty among unpaid carers
The survey also starkly highlighted the inadequacy of Carer’s Allowance, the principal state benefit for unpaid carers.
Currently set at £69.70 per week, providing this is the lowest level benefit of its kind, despite more than one third (34%) of unpaid carers spending 50 hours or more a week caring for a sick or disabled relative.
The Scottish Government does provide a Carer’s Allowance Supplement of £245.70 twice per year to provide additional support to unpaid carers in Scotland.
However, eligibility criteria for Carer’s Allowance benefit are strict: claimants must earn £132 a week or less after tax and must be spending a minimum of 35 hours a week caring for someone.
Over half of all survey respondents said that they do not receive the allowance and, of those who did, 56% of respondents in Scotland said it was not enough to meet their needs as an unpaid carer.
The survey also found that, instead of preventing poverty among recipients, Carer’s Allowance recipients were more likely to be experiencing financial hardship.
58% of respondents receiving Carer’s Allowance said they were struggling to make ends meet, compared to 38% of respondents who don’t receive Carer’s Allowance.
More support needed for local carer organisations supporting unpaid carers
A parallel survey of Carer’s Trust’s UK network of over 120 local carer organisations, who provide services to unpaid carers, has also highlighted the impact of recruitment challenges and funding shortages on their ability to support unpaid family carers.
48% of services cited fundraising and sustainability as the principal challenge to work supporting unpaid carers, whilst 40% of respondents cited staff recruitment and retention as a challenge – almost twice the level (23%) reported the year before.
Carers Trust Scotland’s Director Louise Morgan said: “Scotland’s health and social care system relies on the hard work of millions of unpaid family carers. However, the double whammy of lack of financial support and struggling local services means that thousands of unpaid family carers are being pushed into dire poverty.
‘With little ability to work, unpaid carers simply cannot boost their earnings to meet the cost-of-living crisis. Yet they need to keep the heating on and equipment running to keep their sick and disabled relatives warm and safe.
“The recent Autumn Statement simply did not recognise the extra cost of being an unpaid carer. We therefore need to raise Carer’s Allowance urgently, provide and to add it to the list of benefits qualifying for the additional £900 cost-of-living support payment and provide double payments of Carer’s Allowance Supplement payments to help unpaid carers to pay their rising bills during the cost-of-living crisis.
“As a country we’re relying on unpaid carers to keep the health and care system afloat. The least we can do in return is ensure they get a fair deal in return”.
4.68 million unpaid carers concerned for physical and mental health
2.2 million carers worried about ability to cope financially
More care is being provided than ever before – even more than during the height of the pandemic
Overwhelming public support for more Government action to help unpaid carers
Carers Week charities are calling for an urgent 12-month plan of targeted support for unpaid carers, as many struggle with the ongoing impact, as well as the legacy, of the pandemic, together with the strain of the social care and cost of living crises.
For the first time, the impact of caring on their own physical and mental health has topped carer’s concerns, closely followed by money worries.
The research, released for Carers Week 2022 (6-12 June), reveals that 84% of the general public think that the UK governments should provide additional support to unpaid carers including increased financial support and investment in care and support services so that unpaid carers can have a break. Only 3% disagreed.
The report also shows that the number of unpaid carers remains higher than before the pandemic with one in five of the UK’s adults (approximately 10.58 million people) now supporting a relative, close friend or neighbour because of chronic illness, including mental ill-health, dementia, disability, or older age.
The intensity of care they are providing has grown since earlier in the pandemic, with several factors possibly having an impact: Many services remain reduced or closed, vulnerable people continue to shield, pressures on primary health care and the chronic shortage of social care. The numbers of people providing over 50 hours per week has risen by 30%.
At the same time, carers with lower household incomes were much more likely to be providing significant amounts of care (i.e, over 20 hours per week). Providing more care also reduces the chance to cope financially as carers are less likely to be able to juggle work and care.
The seven charities supporting Carers Week 2022; Carers UK, Age UK, Carers Trust, MND Association, Rethink Mental Illness, Oxfam GB and The Lewy Body Society are calling for a recovery and respite plan dedicated to the needs of carers including: specific investment in their mental health support, carers leave a priority, help with food and energy costs and ahead of the winter, prioritisation in the vaccination programme.
Commenting on behalf of Carers Week charities, Helen Walker, Chief Executive of Carers UK said: “Clearly, whilst society has opened up for many people, it’s a very different picture for significant numbers of carers.
“So many have sacrificed their physical and mental health caring for their loved ones over the last two years and as this report clearly shows, it is absolutely essential that carers get the support they need to stay well to be able to continue to care for their loved ones, that working carers are helped to stay in employment and that all carers can feel visible, valued and supported.”
@scotgov has introduced 2 new and unique benefits, Young Carer Grant and Carer’s Allowance Supplement – additional support of over £42 million to more than 90,000 carers this year.
Shared Care Scotland is the national carer organisation focused on improving short breaks for all of Scotland’s unpaid carers.
Research is an essential part of this work: it helps ensure that short breaks policy and provision is better informed by the experience of carers and cared-for people and that those responsible for the commissioning and delivery of short breaks have access to the current best evidence on ‘what works’.
Shared Care Scotland recently worked with Iriss to hear directly from carers about the impact that the Short Breaks Fund ‘Time to Live’ grant scheme had on their lives during the Covid-19 pandemic.
The report shows that taking a person-centred approach – supporting carers to have choice and control in short breaks – brings sustainable benefits and can improve their financial, physical and mental wellbeing as well as providing similar benefits to those they care for.
What also emerges from the report is that it is not just the break itself that can lead to positive outcomes, but the process of accessing support can also achieve additional benefits. This includes reducing isolation, helping carers feel valued, and providing that essential preventative support that can help to sustain the caring role.
It is hoped that the report provides important evidence to help reinforce good practice. Above all, it is to show that supporting carers to embed pockets of respite throughout their days can be fundamental in helping them have ‘Time to Live’.
We are undertaking this survey because we want to understand carer’s experiences of adult social work and social care services and how they are supported in the following areas:
Knowing and understanding their rights;
Maintaining or improving their health and wellbeing and quality of life; and
Being supported to continue in their caring role, or to move on from their caring role where this is the best option.
From this we aim to learn how the future support of carers can be developed and improved. The findings from this inquiry will be a key resource for organisations both locally and nationally in doing this work.
We would like to hear from you if you are an adult currently caring for a spouse/partner, relative over the age of 18 years, a neighbour, friend, or someone else. We would be grateful if you could take some time to tell us about your experience by completing this survey. This survey closes on 3rd June 2022.
It should take about 10-15 minutes to complete.
You will be able to save it and go back to it at a later time, so you do not have to complete it in one go.
A £4million funding package will help provide support to unpaid carers, in recognition of the enormous role they play in looking after loved ones, and the added pressure many have faced during the pandemic.
Over the next few weeks, the additional winter funding will allow organisations working with unpaid carers to expand the services they provide to all groups of adult and young carers, including those looking after disabled children and young people and those caring for a friend or relative with dementia.
To help reach as wide a range of carers as possible, the funds will be shared between organisations who are already working with different groups of carers:
£3million for local carer centres across Scotland to expand their vital support for adult and young carers
£200,000 to expand the Young Carers Package delivered by Young Scot to provide additional break opportunities, support and activities for young carers
£377,000 to expand Family Fund support with breaks for parents and families looking after disabled children and young people
£590,000 to expand wellbeing support and services for unpaid carers looking after a family member with Dementia, including grants for short breaks
Minister for Mental Wellbeing and Social Care Kevin Stewart said: “Unpaid carers play a vital role in society and I know the pandemic has placed many additional pressures on Scotland’s carers.
“The Scottish Government has always been committed to improving carers’ rights and providing them with the support and extra help they deserve.
“The local services and third sector organisations that have been supporting carers during the pandemic have been exceptional. I am pleased to be able to announce this additional funding to allow them to continue their essential work.
“This support for carers comes on top of the Carer’s Allowance Supplement, the first payment made by Social Security Scotland, which increased Carer’s Allowance for eligible Scottish carers by around 13% compared to carers in the rest of the UK.
“In addition to this uplift to Carer’s Allowance, we made extra Coronavirus Carer’s Allowance Supplement payments in June 2020 and in December 2021 to support eligible carers.”
Tens of thousands of unpaid carers will receive a double payment of the Carer’s Allowance Supplement this winter under legislation passed unanimously by the Scottish Parliament last night.
Recognising the additional pressures unpaid carers face as a result of the pandemic, the December payment of the Carer’s Allowance Supplement will be doubled to £462.80, benefitting more than 91,000 people.
This extra investment, forecast to be £21 million, will be the second time the Scottish Government has doubled a Carer’s Allowance Supplement payment.
The Carer’s Allowance Supplement (Scotland) Bill will also give Ministers powers to provide eligible carers with additional financial support in future if the need arises.
Social Security Minister Ben Macpherson said: “We introduced the Carer’s Allowance Supplement in September 2018 to address the fact that Carer’s Allowance was the lowest of all working age benefits. The £230 payment is in addition to the Carers Allowance in recognition of the role carers play in society.
“In recognition of the additional pressures caused by the pandemic, tens of thousands of unpaid carers will now receive another additional payment of more than £230 through our Carer’s Allowance Supplement this winter. This additional payment means that this year carers in Scotland will get £694.20 more in support than carers in the rest of the UK.
“We also made a double payment last year, so over the past two years we have invested over £120 million from our own budget to support around 91,000 unpaid carers. The Carer’s Allowance Supplement is unique in the UK and is one of seven new benefits we have introduced.
“The Scottish Government will always consider if additional payments are needed in the future, bearing in mind the broad range of support we provide across society and taking account of our limited tax and borrowing powers.
Sebastian Fischer, Chief Executive of VOCAL, which supports and empowers unpaid carers in Edinburgh said: “As we emerge from the pandemic, the Coronavirus Carers’ Allowance Supplement is a welcome measure and we are delighted that the Bill has passed. This will support carers who have faced, and continue to face, enormous challenges due to Covid-19.
“Unpaid carers have propped up the health and social care sector, and it is vital that they are recognised in ways that deliver real positive impact. We look forward to seeing further measures from our new government which value the role of carers as equal partners.”