New report shows patients value NHS diagnostic services but face barriers to access

UK patients want better access to early and accurate diagnosis of health problems, according to new survey data from the Patients Association.

Many patients would consider paying to get tests done privately if they faced a long wait for NHS tests.

  • Nine in ten (90%) of UK patients say it should be more straightforward to get the diagnostic tests they need
  • Three in five (60%) said they would be willing to pay to get a test done if they faced a long wait, or the test they needed was not available
  • More than three in five (61%) believed being able to test at home could help speed up diagnosis
  • Patients want to know how to get the tests they need, why they are having them, and when they can expect results.

The survey, undertaken in partnership with Roche Diagnostics UK and Ireland, represents the views of more than 1,000 patients from across the UK, who had received diagnostic support from the NHS in the preceding six months.

Nine out of ten (90%) of the people who completed the survey said it should be easier to obtain access to the diagnostic tests they need. They also wanted:

  • Better understanding of why they were being sent for a test
  • Increased speed and urgency
  • Improved access
  • A greater sense of empowerment when it comes to diagnostic tests, results, and subsequent treatment and care.

Access challenges

The findings demonstrated several challenges experienced by patients in gaining access to diagnostic tests.

  • One-third of respondents (33%) said when they tried to get a test, they found there were no appointments available locally. This reflects national data on the large numbers of patients unable to access diagnostic tests and services, even before consideration is given to any waiting lists for any treatment they may need.
  • Almost four in five (78%) patients felt testing facilities should be provided closer to patients’ homes to make access easier
  • Seven in ten (70%) wanted a clearer understanding of how to access tests. Some respondents highlighted that services are sometimes not available as advertised.

Speed and urgency of access to testing was another significant problem identified by survey. Only one in ten (11%) of respondent said they have never had any issues getting either a test or their results, or faced no consequences if they did.

For those living with long-term conditions, delays and difficulties in accessing diagnosis have had significant consequences. Nearly one in five (17%) respondents said their long-term recovery was set back significantly.

Many more reported consequences for their mental and physical health, and their wider work and family life.

Respondents were also unhappy about a lack of access to, and clear explanation of, test results. Almost nine in ten (88%) patients wanted a realistic timeline for their test results to come through and a similar number (87%) called for a better explanation of what those results meant for them and their treatment.

Patient-created solutions

The survey discovered patients are finding ways around the challenges they faced. For example, when asked whether they would be willing to pay to get a test done privately if they faced a long wait or if the test they needed was not available on the NHS, three in five (60%) of respondents said they would. This included patients who did not consider themselves to be ‘rich’.

The finding that so many patients would consider paying for tests shows the importance they place on getting a timely and accurate diagnosis, even if they had to pay.

Sustainable solutions

The survey’s results show many patients have a clear view on how diagnostic services in the UK could be improved.

Being able to test at home was seen as one way to make services more accessible. Nearly two thirds (61%) of respondents believed expanding opportunities to test at home could help speed up diagnosis.

When asked about specific examples, the numbers were even higher, perhaps building on our collective experience of testing at home during the COVID-19 pandemic. More than three quarters (77%) said they would be happy to test themselves at home.

Investing in diagnostics and new technology was supported by most respondents. For example, more than half (57%) the respondents felt the use of new technology such as artificial intelligence could speed up diagnosis and reduce pressures on the NHS – an important factor since nearly one-third (29%) said they delayed seeking tests to avoid wasting NHS time and resources.

Looking to the future

Almost nine in ten (86%) felt testing and diagnosing conditions more quickly would help reduce the NHS backlog. While patients want to feel more empowered in taking charge of their own health, they are also keen that solutions are sought to support NHS efficiency and sustainability in the longer-term.

Rachel Power, Chief Executive of the Patient Association, says: “Patients value diagnostic services – that’s very clear from the survey. Frustrations about access to tests came over loud and clear.

“Those taking the survey clearly value being partners in their care. And to partner with the professionals sending them for tests, patients need and want clear communication on how to get tests, why they need a test, and when they’ll get results. Healthcare professionals can improve patient-centred care when ordering diagnostic tests by explaining how, why and when.”

Geoff Twist, Managing Director, Roche Diagnostics, UK & Ireland says: “Tests that detect or diagnose disease early, or in some cases prevent it altogether, can play a vital role in the patient journey, and in helping the health system work efficiently.

“This report shows that patients themselves see and understand the importance of diagnostic tests, and that they will proactively seek them out to find the answers they need about their health.

“The message is clear. But to realise this we need a renewed policy focus, setting out how we can speed up getting existing diagnostic tests and innovations to the people who need them. Prioritising diagnostic services can help to relieve some of the pressure on our NHS today and protect it for generations to come.”

Download Patient Experience of Diagnostics Report

Weathering the Storm: Poverty Alliance publishes Get Heard Scotland summary report

The Poverty Alliance have launched Weathering the Storm, a summary report from the Get Heard Scotland (GHS) programme in 2020/21.

GHS is a programme coordinated by the Poverty Alliance and funded by the Scottish Government as part of Every Child Every Chance, the Scottish Government’s Tackling Child Poverty Delivery Plan.

GHS is designed to help people on low incomes get their voices heard on the policies and decisions that most impact their lives and their communities.

Get Heard Scotland gathers evidence on the experience of poverty, from people who are living on low incomes, as well as from organisations and groups working on the ground to help address poverty. Crucially, it focuses on the solutions needed to loosen the grip of poverty on people’s lives.

The report that has been published today covers GHS engagement in 2020/21, which focused primarily on the local authority areas of Inverclyde and Renfrewshire. Covering issues like mental health, employment, food insecurity, digital access, debt, and social security, it provides an overview of the experiences of people living on low incomes – as well as of organisations working with people on low incomes – during the Covid-19 pandemic.

Peter Kelly, Director, Poverty Alliance, said: “Over the last 18 months, the grip of poverty has tightened on the lives of people across Scotland. But it is important to remember that, even before the pandemic, over one million people in Scotland were living in that grip.

“We know that not just listening to – but acting on – the voices and experiences of people living in poverty is key to ending poverty in Scotland. So we are pleased to publish this report today, that focuses primarily on Inverclyde and Renfrewshire but which has relevance for every part of the country.

“In both local authorities, there has been a genuine desire to find more effective ways of meaningfully involving people with experience of poverty in shaping local anti-poverty policy. We hope that the work as part of Get Heard Scotland will have contributed towards making participatory policy making the norm in the future.”

The full report can be read here.

Stagecoach offers public transport ‘one stop shop’

  • Societal changes seen during pandemic lead to options for more flexible public transport
  • Range of products on offer to help businesses easily find the right transport solution
  • Dedicated education buses, simple corporate ticketing packages, demand responsive services, business shuttles and event travel support all available
  • Provides a more sustainable alternative to single use car trips
  • Building on success of tailored solutions introduced during Covid-19 pandemic
  • Additional options to run alongside regular bus, coach and tram services
  • Dedicated website can be found at www.stagecoachsolutions.com

Stagecoach is helping businesses, the education sector and event organisers to bounce back from Covid-19 with a range of tailored solutions through a ‘one stop shop’ approach to help employers, pupils and customers.

As the UK comes out of lockdown, public transport continues to play a vital role in the country’s recovery ahead. As well as helping to restart the economy, it is vital in bringing normality back to many areas of people’s daily lives.

Covid-19 has brought about many societal changes such as home working, more targeted travel and more flexible working. A recent survey carried out by transport and research consultancy SYSTRA suggests that 55% of UK employees would like to change the times that they work, including their start/finish times or working their hours across fewer days.

As a result, Stagecoach has created a new product (Stagecoach Solutions) through which it has developed a range of sustainable options as an alternative to its traditional bus services to help organisations and their people continue their more flexible public transport commute. This includes tailored shuttle buses, education bus services, on demand services and simple corporate travel to support the growing desire of companies to put sustainability at the heart of their business. These options will be offered in addition to its regular scheduled bus, coach and tram services.

As the UK’s biggest bus and coach operator, Stagecoach has 40 years of experience of operating public transport services, and has helped to keep people on the move throughout the pandemic. Stagecoach has recently worked with the NHS and other organisations to introduce tailored services to support employee travel, including “Stagecoach Connect”; offering three new demand responsive bus services for the NHS in the East Midlands.

When larger gatherings are permitted as part of the lockdown easing, Stagecoach will also be able to offer travel support for major events and festivals.

It has extensive experience of managing event travel and has been at the heart of every large sporting event for the last decade. This includes global events such as the London Olympics, the Formula 1 British Grand Prix at Silverstone, the Solheim Cup in Scotland, the Commonwealth Games in Manchester and Glasgow, the Ryder Cup and many major music festivals and other events.

A dedicated new website, www.stagecoachsolutions.com, will clearly demonstrate the full range of options available with the facility to speak to somebody about their specific needs or complete an easy web form. The relevant local team will then identify which travel solution can fit the organisation’s needs.

Neil Micklethwaite, Business Development Director for Stagecoach, said: “We have seen many changes in society during lockdown, with more home working, more targeted travel and potentially more flexible working ahead.

“We want to give companies and educational establishments a range of different ways of helping their employees, pupils and students return safely and with confidence to their work and learning place, without having to rely upon the car.

“Covid-19 has demonstrated the positive impact that tailored solutions can have, such as the launch of our Stagecoach Connect service for the NHS. The extra products we are offering will provide a range of options that enable employees, pupils and students to return to work and school safely and to help companies and educational establishments put sustainability at the heart of their business.

“As Britain’s original and most successful transport start-up, we’re well known for championing new ideas and our new range of transport solutions can support the public and private sector in getting back on its feet, and helping communities across the country recover.”

The options are designed to provide a more sustainable solution to unnecessary single use polluting car trips and the dedicated website provides:

  • Corporate tickets; offering businesses tailored tickets for employees who regularly use the bus to travel to work
  • Customised demand responsive services; on demand services available at a time and place that suits businesses and their employees
  • Education bus services; dedicated bus services for better control of social distancing for schools, colleges and universities
  • Business shuttle services; helping employees get to work safely with a dedicated eco-friendly service
  • Rail replacement services; ground transport solutions to help minimise rail disruption
  • Travel support for major events and festivals when larger gatherings are permitted under lockdown easing plans

For more information, visit www.stagecoachsolutions.com

Living Lab: a new approach to finding solutions

Among the delegates at last night’s Inverleith Community Conference was a group of Edinburgh University students – yes, those enthusiastic young guys in the bright red tops!

DSCF2192The students are working with Inverleith Neighbourhood Partnership on a project to look at more innovative ways to encourage walking and cycling – and they want to hear from you! Let them explain:

Edinburgh Living Lab is a new partnership involving the City of Edinburgh Council and students and staff from the University of Edinburgh.

The goal of the Living Lab is to encourage innovation in the development of services, processes and products in the city. What makes the Living Lab different is not so much it’s aims as it’s methods.

Developing new solutions should always involve users from the start, and as far as possible should take place in real world contexts: on the street, in parks, cafes, community centres, homes and offices rather than in contrived laboratory settings.

As well as designing in collaboration with users there is an emphasis on rapidly implementing project ideas, testing and measuring their effectiveness, refining them or throwing them away as required.

We are currently involbed in a ten week pilot project with Inverleith Neighbourhood Partnership, where teams of Masters students from the University’s Design Informatics degree are experimenting with novel ideas for increasing the uptake of active travel in Inverleith. Data plays a central role in their projects: some of this will be existing data sets such as those produced by the Council, but some will be freshly collected during the course of the projects, using surveys, observation and digital techniques.

Edinburgh Living Lab is currently at an experimental stage and we welcome contributions from participants at the conference and of course from the residents of Inverleith.

Interested? To find out more visit www.edinburghlivinglab.org/

BRAINS ON BIKES

Do you want to help improve cycling in Inverleith? Want to take part in a short study where you will get to wear Google Glass and a high tech EEH headset?

Intrigued? Contact Kim Taylor on 0754 161 0222 or email kimritaylor@gmail.com for more information!

To sign up for the study go to:  http://goo.gl/forms/9vXJCxE4y2