Improving palliative care

Consultation on reaching best possible standards

Views are being sought on a new strategy Palliative Care Matters for All.

Palliative care is holistic care that prevents and relieves suffering through the early identification, assessment and management of pain and other problems – whether physical, mental, social or spiritual.

An ageing population that is living longer, with more complex needs, means more people will need access to palliative care in the future. The draft strategy has been developed in collaboration with the palliative care community and people who have experience of palliative care.

The aim is to deliver the best possible standards of palliative care for adults and children, families, and carers wherever and whenever it is needed.

Public Health Minister Jenni Minto said: “Talking ­more openly about palliative care is the first step to understanding how and when it can benefit us – often at a much earlier stage and for longer than most people realise.

“We want to make sure that everyone who needs it can access well-coordinated, timely and high-quality palliative care along with care around dying and bereavement support.

“This consultation is important as many of us at some point in our lives will need to have conversations with people close to us about serious illness, death and loss.  We’re asking the public to share their views with us to help shape our new strategy, because palliative care matters to us all.”   

Scottish Government Palliative Care Clinical Lead and Chair of the Palliative Care Strategic Steering Group Dr Kirsty Boyd said: “I have seen first hand how timely, high quality palliative care can really make a difference to people and their families in supporting them to live their life to the full.

“Palliative care focuses on what matters to each adult or child and how we help them live as well as possible for however long that is. What counts when someone is dying is that they are well cared for, comfortable and with the people closest to them wherever they are.”

Palliative Care Strategy: Palliative Care Matters for All – gov.scot (www.gov.scot)

Palliative Care Matters for All: strategy consultation – Scottish Government consultations – Citizen Space

Medical equipment for Ukraine

£800,000 donation of surplus supplies

Medical equipment and supplies will be sent from Scotland to Ukraine.

The shipment of over 500 items includes oxygen concentrators, electric height-adjustable beds with replacement batteries and mattresses, and ICU ventilators identified by NHS Scotland as surplus to operational requirements

The donation will not impact on services to patients using the healthcare services in Scotland.

It brings the total value of medical supplies donated from Scotland to Ukraine to £3.8 million.

First Minister John Swinney confirmed the latest donation during a meeting with the Ukrainian Ambassador to the UK General Valerii Zaluzhnyi in London. It follows a request from the Ukrainian Consulate in Edinburgh in May 2024 to contribute medical equipment on a humanitarian basis.

The First Minister said: “The people of Ukraine are suffering as a consequence of the illegal invasion of their country, and it is vital we do all we can to support them.

“These supplies, identified by NHS Scotland as being surplus to requirements, will provide direct humanitarian support to Ukraine at a critical time.

“Scotland stands in solidarity with Ukraine and offers unqualified support for its independence, sovereignty and territorial integrity.”

Ambassador of Ukraine to the United Kingdom General Valerii Zaluzhnyi said: “The act of generosity and solidarity demonstrated by NHS Scotland in extending a helping hand to Ukraine in its time of need exemplifies the true spirit of humanity and compassion.

“It serves as a powerful reminder that, in the face of adversity, solidarity and cooperation can transcend borders and make a meaningful impact on the lives of those in war. The Ukrainian people are deeply grateful for the support and assistance provided by NHS Scotland, knowing that these supplies will make a difference between life and death for many.

“The bonds of friendship and solidarity forged through this act of kindness will not be forgotten and will serve as a beacon of hope for a brighter future beyond the shadows of Russia’s war against Ukraine.”

Transfer of benefits reaches major milestone

Over 200,000 disabled people newly benefitting from Scottish social security system  

Over 200,000 disabled adults have now had their benefit award transferred to Social Security Scotland from the Department for Work and Pensions, new figures show.

Almost two thirds (63%) of adults in Scotland who were previously getting Personal Independence Payment are now receiving Adult Disability Payment.

This marks a milestone in the ambitious project to safely and securely transfer the disability and carers benefit awards of everyone in Scotland, allowing them to benefit from a new system based on dignity, fairness and respect.

Adult Disability Payment was designed in partnership with disabled people to be better than the benefit it is replacing.

A significant improvement was ending the time-consuming and demanding re-assessments carried out by the DWP to decide if someone’s support should continue.  

In Scotland these have been replaced with light touch reviews that ensure people are getting the right support without requiring them to provide unnecessary information or face a private sector assessment.

All disability and carer benefits are expected to be transferred to Social Security Scotland by the end of 2025, with benefit awards for disabled children already fully transferred.

A recent survey found almost 90% of people who had their disability benefit moved to Social Security Scotland said they were informed about the process and the communication was clear.

Shirley-Anne Somerville, Cabinet Secretary for Social Justice said: “This is an important milestone in the devolution of benefits to Scotland.

“People who received DWP benefits talked about the system being inhumane. They had experienced a system which did not get the decision right first time and which involved degrading assessments run by private providers.

“That worry is over for many now as we have moved the awards of hundreds of thousands of people to our new system, where they can benefit from its founding principles of dignity, fairness and respect.

“Adult Disability Payment was designed in partnership with disabled people to be better, fairer and easier to access.

“We are continuing to transfer the awards of disabled people from the DWP to our new system.

“If you are waiting to have your award transferred, please be assured that you do not need to do anything. The move will begin automatically and there will not be any gaps or changes to your payments.”

Sylvia Paton who is registered blind, said: “A lot of people have been put through an assessment process where it feels as though staff are trying to trip you up and implying you are lying about your disability.

“The DWP made me go for a medical assessment. We went into a room with a window facing the door and it was an instant white out for me.

“The lady said, ‘Take a seat,’ but I couldn’t see one and she didn’t tell me where it was. It was just awful and humiliating. It was all about ticking boxes with no understanding of my medical condition.

“I didn’t experience anything like that going from PIP to Adult Disability Payment. It was very automatic and painless.”

James Kyle, 41, delayed telling the DWP about his deteriorating eyesight due to his “traumatic” experiences with them. James, from Cumbernauld, said: “My condition impacts on anything which requires me to see fine detail.

“Reading is particularly challenging and using the cooker and the washing machine can be a problem.

“Recognising people and threatening situations are also difficult and I try not to travel at night or go places I’m not familiar with. I stick to fixed routes I know very well and rely a lot on taxis.

“My eyesight had deteriorated but I didn’t want to put myself through a review, even if it meant I would get more money, because of the emotional trauma I’d been put through. There was also the fear of losing what I was already getting.  

“I heard Adult Disability Payment wasn’t as bad so I decided to report a change in circumstances which I knew would trigger my transfer from DLA.

“There was a long form to complete but when I asked for help a gentleman went through the form with me on a video conference call. I couldn’t have asked for a better service and my payment was uprated.”

Kirstie Henderson, Policy Officer at RNIB Scotland said: “We are delighted the Cabinet Secretary has visited, as it is vitally important that we listen to the experiences of blind and partially sighted people about social security benefits.

“Overall the experiences of people we’ve spoken to about their transfer to Adult Disability Payment has been positive, however there is always room for improvement.

“They have told us about the importance of receiving information in an accessible format, and being made aware of the support available to help claim what they’re entitled to.

“Access to information in accessible formats is a key principle – it allows people to take control of their own decisions. 

“RNIB Scotland will continue to work closely with those delivering social security, ensuring the needs of blind and partially sighted people continue to be met.”

Increasing funding for affordable housing

New bonds issued to support delivery of homes

A £22 million investment has been made into a scheme to increase investment in affordable homes and deliver more housing.

As part of Scotland’s Charitable Bond Programme, the Scottish Government has provided funding to issue two new bonds via finance intermediary Allia to housing providers Link and Cairn Housing Association to provide support for more than 150 new homes.

The programme, which has been running since 2014, provides loans to social landlords to construct new affordable homes, with the interest being reinvested by the Scottish Government into the affordable housing budget to support more homes for social rent.

This latest extension will see the total number of bonds issued increased to 40 and a total investment of more than £482 million.

Housing Minister Paul McLennan said: “Tackling the housing emergency requires bold thinking and investment in Charitable Bonds is another tool we can use to increase investment in our affordable housing budget while also allowing social landlords to access vital funding to build new homes.

“This has been a successful model in the past but is reliant on Financial Transaction funding from the UK Government. This funding, which is vital in housebuilding, has been cut by 62% since 2022.

“While we are demonstrating what we can do with the devolved powers and levers we have, it is vital that the UK Government reverses that cut so we can increase investment in the affordable housebuilding sector.

“We have a strong track record in affordable housing with 133,000 homes delivered since 2007, 93,000 of which are for social rent. However, tackling the housing emergency requires joint working from the Scottish and UK Governments and local authorities.”

Peter Freer Director of Debt Capital Markets and Head of Allia C&C’s Scottish Office said: “These two bond issues demonstrate the ongoing success of the Charitable Bond programme.

“With the Scottish Government’s investment in the bonds, Allia has been able to provide Link with additional funding to support its significant development programme and make our first loan to Cairn Housing Association.

“Both organisations are providing much-needed new affordable homes, and we look forward to continuing our work with the Scottish Government to create more positive impact across Scotland.”

The charitable bonds programme was created in response to demand from housing associations for better access to appropriate finance.  It provides unsecured loans for up to 15 years. Charitable bonds are an ethical investment product where the margin usually paid as interest to the bond holder, tax, or profit to shareholders, is released as grant funding.

  • Link – bond value of £16,006,385
  • Cairn Housing Association – bond value of £6,019,085

18,000 flu-related deaths in past two winters as jab uptake falls

UKHSA with DHSC and NHS to launch Get Winter Strong campaign to remind those at risk to get their vaccinations to fight off the onslaught of winter viruses

Latest UK Health Security Agency (UKHSA) data shows that over the past 2 winters (October to May, 2022 to 2023 and 2023 to 2024) at least 18,000 deaths were associated with flu, despite last winter being a relatively mild flu season.

While pandemic restrictions and social behaviours saw flu levels fall dramatically for a few years, these latest mortality figures are a stark reminder that flu is a deadly virus, particularly for older people and other groups at greatest risk.

Of real concern is the drop in the flu vaccine uptake rates last winter across all eligibility groups in England compared with the previous year (1).

While uptake in older people last year remained high, only 4 in 10 (41%) people with long-term health conditions, just over 4 in 10 (44%) 2- and 3-year-olds, and just 1 in 3 pregnant women received the flu vaccine.

Evidence shows the significant impact from last year’s flu vaccine with a 30% reduction in the number of those aged 65 and over being hospitalised and a 74% reduction in those between 2 and 17 years of age.

In the same two-year winter period the estimated number of deaths associated with COVID-19 was just over 19,500.

To help reduce the impact of winter viruses on those most at risk, as well as ease NHS winter pressures, UKHSA – with Department for Health and Social Care and NHS England – is set to launch a scaled-up Get Winter Strong campaign on the 7 October.

The campaign will urge those eligible to get their flu and COVID-19 vaccination when invited, ahead of winter, targeting those at greatest risk and for the first time will encourage pregnant women to also get their respiratory syncytial virus (RSV) and whooping cough vaccination.

Last year saw a sudden increase in the number of people having to be hospitalised, due to a flu peak in the week leading up to Christmas and then again at the end of January.

Pregnant women and older people aged 75 to 79 are also eligible for a RSV vaccination for the first time this year, with the maternal vaccine providing strong protection for newborns in their first few months, when they are most at risk of severe illness from RSV.

Dr Gayatri Amirthalingam, UKHSA Deputy Director of Immunisation: “As winter approaches we see many dangerous viruses circulating in our communities including flu, which tragically can kill thousands of people every year. Getting vaccinated ahead of winter is by far your best defence.

“If you’re pregnant or have certain long-term health conditions, you are at greater risk of getting seriously ill. Older people and young infants with flu are also much more likely to get hospitalised.

“So if you or your child are offered the flu, COVID-19 or RSV vaccines, don’t delay in getting them. Please speak to your nurse or doctor if you have any concerns.”

Maryam Sheiakh, a mother from Manchester, recounts the fear and anxiety she went through 2 years ago, when her then 4-year-old daughter, Saffy, spent more than a week at Royal Manchester Children’s Hospital after being admitted with flu, suffering with a severe cough and high temperature.

She was transferred to a High Dependency Unit as she was struggling to breathe and needed oxygen.

Maryam said: “I was seriously concerned we might lose Saffy. I honestly thought she might die from this. I was so distraught watching her struggling to breathe day after day, worried about her breathing difficulties and getting oxygen to the brain – would she be the same little girl before she got ill?

Thanks to the NHS staff, Saffy made a full recovery and, now aged 6, is thriving. Maryam, a nursery teacher, is now urging all parents to vaccinate their children to ensure they have the best protection against flu: “Just go and get it, don’t take the risk. No parent wants to watch their child suffer like we did with Saffy.

As of last week, millions of eligible people in England can now book their flu and COVID-19 vaccines through the NHS, with appointments starting from 3 October. For their RSV jab, pregnant women and older adults should speak to their maternity service or GP practice to arrange it, as the NHS rolls out additional protection for those most at risk ahead of winter.

Steve Russell, NHS National Director for Vaccinations and Screening: “Today’s data showing there were almost 20,000 deaths associated to flu over the past 2 winters is a shocking reminder that this is a seriously dangerous virus, and I urge those who are eligible to book their vaccine appointment as soon as they can as it is our best way of protecting those who are vulnerable as winter approaches.

“Thanks to the hard work of our NHS staff, life-saving flu, COVID-19 and RSV vaccines are being rolled out across the country in places that are as convenient as possible for people who need them. Flu and COVID-19 jab appointments are now available to book via the NHS website, the NHS App, or by calling 119 for free – making it as easy as possible for people to get vaccinated.”

Minister for Public Health and Prevention, Andrew Gwynne said: “I encourage everyone who is eligible to get their flu, COVID-19 and RSV vaccinations as soon as possible. They are without doubt the best way to protect yourself from these viruses that can cause serious harm.

Every year the World Health Organization recommends which strains should be included in the flu vaccine, with the UKHSA contributing to this work. Vaccines are then developed to help fight off the types of flu viruses expected to be circulating in the coming season. As the viruses can change every year, and protection from the vaccine reduces over time, it is important those eligible get a vaccine every year.

The Get Winter Strong campaign will run for 10 weeks and will appear on broadcast TV, on demand and community TV, as well as radio channels, outdoor poster sites across England and on social media channels.

AND IN SCOTLAND …

💉 Vaccination will be offered to those at high risk of serious illness from flu and COVID-19. If you’re eligible, you’ll be contacted with information about your appointment.

For more information about the vaccine and eligibility, visit:

https://www.nhsinform.scot/wintervaccines

#WinterVaccinesScot

Alcohol: 15p rise in Minimum Unit Price

The minimum price per unit of alcohol will increase by 15 pence from today.

MSPs previously voted to continue the public health measure which had been scheduled to end automatically on 30 April as part of a ‘sunset clause’ when Minimum Unit Pricing (MUP) legislation was introduced in 2018.

They also voted to introduce a price increase, with a rise to 65p per unit chosen as the Scottish Government seeks to increase the positive effects of the policy and to take account of inflation.

Health Secretary Neil Gray said: “Research commended by internationally-renowned public health experts estimated that our world-leading policy has saved hundreds of lives, likely averted hundreds of alcohol-attributable hospital admissions and contributed to reducing health inequalities.

“Experts wrote to The Lancet, describing Public Health Scotland’s evaluation of minimum unit pricing as ‘high-quality’ and ‘comprehensive’, and expressing confidence that there are several hundred people with low income in Scotland who are alive today as a result of this policy.

“However, the Scottish Government is determined to do all it can to reduce alcohol-related harm and as part of that, I am working to ensure people with problematic alcohol use receive the same quality of care and support as those dealing with problematic drugs use.

“We have also made a record £112 million available to Alcohol and Drug Partnerships to deliver or commission treatment and support services locally, as well as investing £100 million in residential rehabilitation.

“I have also asked that Public Health Scotland is commissioned to review evidence and options for reducing exposure to alcohol marketing.”

Councils Withdraw Support for National Care Service Proposals

Council Leaders have withdrawn support for the Scottish Government’s revised National Care Service Bill.

The Bill is currently being considered by the Scottish Parliament.

Though continuing to back key areas of reform, including enhanced support for unpaid carers, care home visitation rights and efforts to improve the experience of the social work and social care workforce, Council Leaders have expressed concern that the amended Bill currently does not reflect a model which Local Government can support.

The decision of Local Government Leaders today comes as several organisations
have expressed doubt on the legislative approach adopted by Scottish Government, including those working across the care sector. Experts have also questioned the evidence for including, within the National Care Service, services which support children and young people.

Commenting, COSLA’s Health & Social Care Spokesperson, Councillor Paul Kelly said: “Local Government cannot support the amended National Care Service Bill brought forward by Scottish Government.

“Local Government has been committed to working in partnership with the Scottish Government to develop proposals to deliver a National Care Service, but unfortunately the revised legislation does not effectively represent that partnership.

“Local Government is committed to continuing our engagement with key areas of reform which can deliver improved outcomes for people, unpaid carers and our workforce. We cannot, however, offer our support for the legislation brought forward at this stage”

“It is important that the views of people accessing, working in and planning front-line support services are listened to, both with regards to the NCS legislation and also the improvements needed to overcome the sustained financial and workforce pressures being experienced across Scotland.”

The National Care Service Bill was introduced to the Scottish Parliament on June 20th 2022, and allows for the transfer of a range of social care, social work and community health functions from local authorities to a new centralised body under the direction of Scottish Ministers.

On July 12 2023, Local Government and Scottish Government announced a shared accountability partnership for delivering the National Care Service in an alternative way, with enhanced national strategic direction through the creation of a national NCS Board, but with a continued role for local decision-making and Local Government.

Parliament’s Health Social Care and Sport Committee has sought views on the revised National Care Service Bill. Responses include those from UNISONChildren and Young People’s Commissioner Scotland,  Social Work ScotlandThe Promise Scotland. COSLA’s Health and Social Care Spokesperson wrote to Parliament’s Health, Social Care and Sport Committee on 17th September 2024, accompanying COSLA’s full evidence submission on the draft, revised NCS Bill.

Improving the lives of Scotland’s Gypsy/Travellers

Plan to tackle discrimination and social exclusion

Improved access to housing, education and health services and tackling discrimination are at the heart of a new Gypsy/Traveller Action Plan agreed between the Scottish Government and COSLA.

The voices of Gypsy/Travellers have helped shape the Plan, which acknowledges improvements in many of these areas, but recognises further progress needs to be made.  

The Scottish Government and COSLA will work with stakeholders to take forward measures in the Plan.

Key actions in the plan include:

  • Supporting Local Authorities to provide more and better accommodation, by taking steps for funding to be accessed under the Affordable Housing Supply Programme from 2026-27, and ensuring planners understand the needs of Gypsy/Traveller communities
  • Measures to remove barriers to education and improve educational outcomes for Gypsy/Traveller children and young people
  • Improving Gypsy/Travellers’ access to and experience of healthcare
  • Working to remove barriers to accessing benefits and build understanding among employers of the inequalities faced by Gypsy/Travellers, with practical tools to support recruitment and retention.
  • Challenging prejudice and discrimination and helping communities to influence decision-making

Equalities Minister Kaukab Stewart said: “Improving the lives of Scotland’s Gypsy/Traveller communities is a significant human rights commitment and is crucial in helping us deliver the fairer Scotland we want to see.

“The voices of Gypsy/Travellers across Scotland are at the centre of this second national joint action plan, and it is a testimony to the collaborative work of national and local government, third sector organisations, and most of all, the determination of Gypsy/Travellers to ensure better futures for their communities.

“We know current initiatives are having a positive impact on the lives of Gypsy/Traveller communities across Scotland, like the Gypsy/Traveller Accommodation Fund and the success of the Community Health Worker project in overcoming barriers to accessing health and other statutory services.

“However, there is still work to do. Through the actions in this plan we will build on the successes we have had to date and make further progress in many areas such as accommodation, health, education and combating discrimination.”

Improving the Lives of Scotland’s Gypsy/Travellers Action Plan 2024-2026

Scottish Government investing £100 million in mid-market rent housing

Supporting the delivery of 2,800 homes

The construction of 2,800 mid-market rent homes will be supported by £100 million of investment from the Scottish Government.

As announced as part of the 2024-25 Programme for Government, funding will be used alongside institutional investment – such as pension funds – to grow to at least £500 million.

This commitment forms part of the Government’s approach to leverage in more private investment to deliver housing, making public funds go further.

It will build on the success of the Thriving Investments model which has grown an initial £47.5 million investment from the Scottish Government to £222.5 million to deliver up to 1,200 mid-market homes across Scotland.

Mid-market rent is a type of affordable housing aimed at assisting households on low to moderate incomes to access affordable rented accommodation and helps those who have difficulty accessing social rented housing, buying their own home or renting privately.

Housing Minister Paul McLennan said: “Tackling the housing emergency requires a collective effort and bold decisions. We already have a strong track record in housebuilding in Scotland and this commitment will ensure public funds are used more efficiently.

“Since 2007, we have supported the delivery of more than 133,000 affordable homes, including more than 94,000 social rented homes. However, we know we can do more to tackle the housing emergency and encouraging more private investment into the sector is one key aspect of that.

“This new model will encourage more private investment into the mid-market sector that we know is willing and able to invest and it will deliver affordable homes that people need.”

  • Thriving Investments, (formerly Places for People Capital) was the successful bidder to the MMR Invitation launched in February 2016 to support the continued expansion of MMR in Scotland. A £47.5m loan agreement between SG and PfP was agreed in June 2018. Since then they have grown their fund to £222.5m.
  • Thriving Investments has delivered 736 affordable homes with an additional 335 properties due for completion by early 2025. It is anticipated that the fund will deliver around 1,200 MMR homes across Scotland.
  • Scottish Government will commission a fund manager to deliver the new fund.

Making Scotland a global green finance hub

Taskforce identifies four areas for action

Deputy First Minister Kate Forbes will collaborate with financial institutions to ensure Scotland becomes a global centre for green and sustainable finance and investment. 

A new report from the Scottish Taskforce for Green and Sustainable Financial Services makes 31 recommendations on how the public and private sectors can encourage and fund green investments and tackle the climate emergency.

It stresses the Scottish finance industry is particularly well placed to reap “profound benefits” from becoming a global hub and identifies four areas for action – policy, promotion, investment and skills.

Suggested initiatives include:

  • work to ensure Edinburgh and Glasgow sustain and improve their rankings in the Global Green Finance Index
  • new initiatives to attract more financial institutions to build their sustainable businesses in Scotland
  • collaboration across sectors and academia to improve the skills of Scotland’s workforce in sustainable finance

Deputy First Minister Kate Forbes, who addressed the Ethical Finance Global Summit in Edinburgh yesterday , welcomed the findings. Ms Forbes said: “This report is a decisive action plan as we progress towards making Scotland the natural home for green and sustainable finance.

“The financial services sector is key to delivering the benefits of the transition to net zero and we will use this route map to work together and ensure that Scotland – one of the world’s oldest financial centres – is able to maximise the opportunities ahead of us.

“This report, complementing our Green Industrial Strategy and the action we are taking such as developing a series of investment opportunities and launching an online investment portal in 2025, will make Scotland more attractive for investment.”

Taskforce Chair David Pitt-Watson said: “Climate may be the greatest challenge facing humankind. Addressing it will require a huge investment and the services of the finance industry.

“Finance is a jewel in Scotland’s industrial crown. So not only should there be many opportunities for green investment in Scotland, from wind to housing, there is also a huge opportunity for its financial services industry to serve the world.

“The Taskforce has already stimulated a considerable amount of action. And there is so much more to do. This report is a strategy for Scottish finance to play its proper role in addressing the climate challenge.”

Chief Executive of Scottish Financial Enterprise (SFE) Sandy Begbie said: “The work of the taskforce is a great example of collaboration between government and industry to enhance Scotland’s reputation as a global green and sustainable finance centre.  

“There are significant recommendations in the report and I am pleased that today marks the start of a formal partnership between the Global Ethical Finance Initiative (GEFI) and SFE to take them forward. GEFI will leverage its considerable global footprint while SFE will use its leadership position here in Scotland and our key relationships in London.”

The Scottish Taskforce for Green and Sustainable Financial Services report.