Scottish carers urged to access respite funding

HALF OF UNPAID CARERS HAVE NEVER TAKEN A BREAK

The UK’s largest community of unpaid carers is urging hundreds of thousands of Scots providing unpaid care for loved ones to access vital respite funding, following research which reveals that almost half of unpaid carers have never taken a break.

This comes as the Scottish Government considers making breaks from unpaid caring roles the legal right of all Scots who look after loved ones – as many as 800,000 people.

The research, carried out by the carer-led community Mobilise, shows that 47% of unpaid carers living in the UK have never had a break. A further 1 in 5 (19%) said that their last break was over six months ago, and less than a third (29%) had taken a break in the past 12 weeks. 

Many survey respondents cited a lack of available support as their reason for being unable to take a break from their caring responsibilities. 

In response, experts at Mobilise are calling for greater awareness of funding for replacement care services and holiday accommodation which can give unpaid carers desperately needed breaks, as well as new developments around Scottish carers’ rights to breaks. 

What rights do unpaid carers have to take breaks? 

Local Authorities have a duty, under the Carers (Scotland) Act 2016, to provide services for unpaid carers which help prevent burnout. Plus, anyone in a caring role has the right to be assessed for an ‘Adult Carer Support Plan’ (or Young Carer Statement, if you’re caring for a child).

This can lead to free respite care services, or funding for breaks and activities that offer time away from caring responsibilities – ranging from regular time off to a short holiday.

In addition, Scottish politicians are currently proposing more direct routes to respite. All unpaid carers living in Scotland would be legally entitled to take a break under the National Care Service Bill, which is being debated in Parliament on 25th February

What respite care funding is available? 

Adult Carer Support Plans aren’t the only way to access replacement care services. A number of different funding options are available to give Scottish carers respite breaks (sometimes known as ‘carers breaks’ or ‘short breaks’), depending on the level of care you provide and the needs of the person you are caring for. 

Respite care costs can also be covered by:  

  • Local council funding via Social Care Assessments – Depending on where you live, respite care funding may fall under the care plan of the person you care for, which is put in place following what’s known as a Social Care or Community Care Assessment. You can ask your local council’s social care department for help with this. 
  • NHS Continuing Healthcare funding – This funding can provide professional care services for the person you look after, whilst you take a break. Eligibility is based on the health care needs and circumstances of the care recipient. The NHS has more information about this criteria, and your GP can also advise and help you apply.
  • Local Carers’ Centre funding – Your local Carers’ Centre may have their own respite scheme, offer grants, or be able to offer details of other funding available in your area. Find out more here.
  • Charitable funds & grants – Other organisations that provide free respite care include:
  • Turn2Us – This charity offers grants for respite care 
  • The Respite Association – Specialist respite care for disabled, sick, elderly and terminally ill people is available through this charity
  • HRH Princess Royal’s Respite Fund for Carers – This fund offers grants for replacement care costs as well as group activities, which may offer a short break and/or time to socialise with other carers

Where can carers get free respite accommodation?

Even with respite care services in place, holiday accommodation costs can be prohibitive for carers who often face additional expenses, and may have to drop out of paid roles or reduce their hours. To help break down this barrier to breaks, a number of organisations offer free accommodation for carers. Some also offer support for your cared-for person to join you.

Free respite accommodation options include:

  • Take A Break Scotland – Scottish carers who look after disabled children and young people can apply for cash grants towards short breaks via this charity
  • Shared Care Scotland – From accessible hotels that host carers and their loved ones, to home-based respite services and holiday accommodation for carers, this charity helps carers find and fund regular short breaks
  • Carefree – This charity offers 1-2 night hotel stays, which you can have a companion join you for (someone other than the person you look after, to give you a break from caring)
  • After Umbrage – Free 4-day cottage breaks are available through this charity for those caring for loved ones with life-limiting and terminal conditions
  • The Respite Association – As well as free respite care, if you look after someone with a disability or additional health needs, this charity offers week-long seaside holidays
  • Disability Grants – If you look after a disabled person, this organisation lists holiday grants, with a ‘supported holiday’ option to make breaks more accessible for you both

To get more help finding and applying for respite care funding and support, you can visit Mobilise’s detailed Guide to Respite.

Care support experts are also on hand to help via the Mobilise website.

Thousands of Scotland’s unpaid carers set to be paid energy bill support

Millions of people who provide care for loved ones or relatives could get payments to help with their energy bills when icy blasts hit parts of the country this week.

The UK’s largest online community of unpaid carers is advising those living in relevant postcodes to check they receive any Cold Weather Payments which are triggered when temperatures plunge.

What are Cold Weather Payments?

Cold Weather Payments are made for every seven-day period of weather which is either forecast to be or recorded as zero degrees Celsius or below, and come in at £25 each time. These payments are made automatically by the DWP.

With the support lasting until 31st March, and another cold snap predicted to take place towards the end of this week, the experts at Mobilise (a community of 90,000 unpaid carers) are warning unpaid carers to check whether they could be eligible for the payments. 

Who is eligible?

Payments are made to eligible Brits living in areas affected by very cold weather. Postcodes beginning with CA have already triggered the highest number of payments this winter, totalling up to £75 so far, and are amongst those set to be affected again

According to the latest forecast, by Friday, the following areas are set to see temperatures plummet to the zero (or sub-zero) temperatures required to trigger Cold Weather Payments:

  • Scotland 
  • Wales
  • The south west of England
  • Cumbria

As well as living in an affected area, individuals must be entitled to certain financial support to qualify for Cold Weather Payments. Many unpaid carers have to reduce paid work in order to look after their loved ones, and are already eligible for the qualifying support as a result. You could get Cold Weather Payments if you are entitled to any of the following benefits:

  • Pension Credit
  • Income Support
  • Income-based Jobseeker’s Allowance
  • Income-related Employment and Support Allowance
  • Universal Credit
  • Support for Mortgage Interest

Full eligibility criteria can be found on the Government’s website.

What additional energy bill support is available?

Following recent changes, Winter Fuel Payments are also now limited to those who are eligible for certain means-tested benefits, and the December deadline to apply has now passed. However, carers who are not able to claim Cold Weather Payments or Winter Fuel Payments may still be entitled to other forms of support to help with their energy bills.

Additional cold weather support on offer includes: 

  • Warm Home Discount Scheme – This one-off payment of £150 is automatically paid directly to participating energy suppliers, to help with the costs of eligible Brits’ bills. To be eligible, you must either get the Guarantee Credit portion of Pension Credit, or have high energy costs and receive a different qualifying benefit – see the Government’s website for full details. Payments are available until March. But eligible carers who have not yet received a payment or letter should contact the Scheme’s helpline on 0800 731 0214 by the beginning of February. In Scotland, the criteria is different and requires carers to apply through their energy supplier (see here for more information).
  • The Household Support Fund – This funding is aimed at anyone who is vulnerable or struggling to afford essentials in England, Wales or Northern Ireland, and can help with grants or vouchers towards energy bills. You can find out if you’re eligible and how to apply (if you need to) through your local council’s website.
  • The Scottish Welfare Fund – This is the Scottish equivalent of the Household Support Fund. Crisis Grants are offered as one-off payments as part of this funding to people in “emergency” situations, and can help if you are living in Scotland and struggling with energy bills. To be eligible for a grant you must receive a qualifying benefit, and apply through your local council. See the Scottish Government’s website for more details. 
  • Grants to help with energy bill debts – Some providers offer grants and advice to help customers pay off energy bill debts. You can find a list of energy suppliers who offer these grants via Citizens Advice. For carers living in England, Wales or Northern Ireland, see more details here. For carers living in Scotland, more details can be found here
  • Gas checks – If the person you care for is disabled, vulnerable or elderly, they may also be entitled to a free annual gas safety check. Providers such as British Gas offer this if you sign up to their Priority Service Register.
  • Disability energy support – Scope offers free advice and support for anyone caring for someone who is disabled, to help with things like energy bill debts, accessing benefits and grants, and signing up for the Priority Services Register. Visit the charity’s website for more information.

For more advice and guidance on the energy bill support available to unpaid carers, you can find detailed information or speak to a carer support expert via the Mobilise website.

Look after a loved one? £288 should hit your bank account tomorrow

There are around 80,000 unpaid carers in Scotland. Tomorrow, many of these Scots will see £288.60 deposited into their bank accounts. This payment is part of the Carer’s Allowance Supplement, and up to 30,000 carers who were not previously eligible could now be amongst those entitled to the support, thanks to crucial changes to the Scottish system which took place just last month.

To help carers navigate the complex system correctly, Suzanne Bourne – Head of Carer Support at the UK’s largest community of unpaid carers, Mobilise – explains more. Her advice below covers what the Carer’s Allowance Supplement is, how to check if you’re eligible and what to do if you think you’ve missed out on support you’re entitled to: 

What is Carer’s Allowance Supplement?

Carer’s Allowance Supplement is worth £577.20 in total, and is split into two twice-yearly payments of £288.60. Eligible carers should have received the first of these payments on 7 June 2024. The second payment is due on Friday 6 December 2024.

The supplement isn’t new. But rules surrounding a different benefit, which determines whether or not people receive the supplement, changed just last month. 

In November, the Carer Support Payment was introduced to replace Carer’s Allowance for carers living in Scotland. Carers who receive the Carer Support Payment are automatically paid the £288.60 Carer’s Allowance Supplement.

And, thanks to the recent rule changes, both forms of financial support are now available to many more of Scotland’s 30,000 young carers

Who is eligible? 

Carers who received either Carer’s Allowance or Carer Support Payment on 7th October should automatically get the £288.60 supplement on 6th December. 

To be eligible for the Carer Support Payment you must be:

  • Aged 16 or over
  • Providing care for over 35 hours per week to someone who receives disability benefits
  • Earning less than £151 a week 
  • Living in Scotland
  • Students must be in full-time education, and meet additional criteria (find out more here)

If you’re due to receive the supplement, you’ll get a letter from Social Security Scotland before the payment is made. If you do not get a letter or payment by 16 December 2024 but believe you are eligible, contact Social Security Scotland.

Who needs to be careful?

In particular, given the recent rule changes, young carers should seek help from Social Security Scotland if they believe they are missing out on vital financial support which they are entitled to.

All carers should also be aware of the upper earnings limit trip hazards. The threshold for Carer’s Allowance – which is still in place for carers in England and Wales – increased to £181 a week following the recent Budget. For Scottish carers, the earnings limit is still £151 a week. 

So make sure your earnings are within the limit where you live, and update Social Security Scotland if your situation changes. Especially since this threshold is the source of the ongoing ‘overpayments’ scandal, whereby hardworking carers are having to pay back their benefits. 

How can I check if I’m eligible?

If you’re unsure whether you meet the criteria for Carer Support Payment – and, in-turn, the  Carer’s Allowance Supplement – you can check using the government’s free eligibility checker tool.

How can I apply?

Applications for Carer Support Payment are now open Scotland-wide. If you’re eligible you can apply online, by phone, by post, or in-person. See the government’s website for full details. 

Receiving Carer Support Payment Carer’s Allowance Supplement may affect any other benefits you receive, or the benefits of the person you look after. So it’s important to be aware and seek additional guidance from Social Security Scotland before you apply if you are concerned. 

What additional support is available? 

There are a number of other forms of financial support on offer for those who look after loved ones. Some of these benefits can be claimed instead of the Carer Support Payment and supplement, for those not eligible, and some can be claimed in addition. These benefits include: 

  • Young Carer Grant – Scottish carers aged 16, 17 or 18 can apply for this yearly payment of £383.75 if they provide care for an average of 16 hours per week. Find more details and apply via the Scottish government’s website 
  • Carer’s Credit – Anyone that provides 20 hours of unpaid care a week is eligible for this National Insurance credit, which helps individuals qualify for state pensions later on. Check whether you’re eligible using this credit checker tool
  • Carer’s Element – If you’re on a low income and receiving Universal Credit, you may be entitled to an additional £185.86 a month. The Universal Credit team can advise you on this
  • Carer’s Support Plan – By requesting an assessment from your local council, you can find out if you’re eligible for any additional, one-off, direct payments to help you manage the impact of caregiving. Find out more here
  • Pension Credit – The Carer Addition (or ‘Carer Premium’) – If you’re aged 65 or over, and on a low income, you may also be entitled to credit which is separate from your State Pension to help with living costs. Find out more via the government’s website
  • Grants from local councils – Grants to help with caring costs can also be made by councils. Check what support is available to you using this grant search tool
  • Council tax discounts – If you’re on a low income and claiming a benefit, you may be eligible for reduced council tax. Apply via the government’s website 
  • Heating benefits – It’s also worth checking if you’re eligible for the Warm Home Discount, Winter Fuel Payment, or the Cold Weather Payment. Find out more here
  • Discounts – There are a number of discounts available exclusively to people who look after loved ones, including discounted train tickets, days out (see a list of attractions that apply here), and even free cinema tickets (with a CEA card)

For more advice and guidance on the financial support available to unpaid carers, you can find detailed information or speak to a carer support expert via the Mobilise website.