Every Moment Counts: Deaf children in Scotland need better support in early years

The National Deaf Children’s Society has launched a new five-year strategy, Every Moment Counts, which aims to ensure all deaf children across Scotland receive the support they need during their early years (0-5), or as soon as their deafness is identified.  

The charity is shifting the focus of its campaigning to early years as it strongly believes that families need first class support during this crucial period, so they feel empowered to make informed decisions and champion their deaf child.  

For all children the early years is a crucial time, but the National Deaf Children’s Society says this is even more so for deaf children, given the impact deafness can have on language development, communication, and social skills.   

Missed opportunities to spot deafness and provide the support deaf children need can lead to lifelong impacts, according to the charity. 

It says a deaf child without good language and communication development in the early years, be it spoken, sign, or a mixture of both, can experience ongoing challenges. They may struggle to listen and follow instructions in the classroom, or miss conversations with their peers, leading to feelings of isolation and a sense of ‘missing out’.

Kirsten Abioye’s son was not diagnosed as deaf until he was almost three due to failures at their local heath board’s paediatric audiology service.

Kirsten said: “Our experience of early years was really hard. The audiology department was unhelpful and dismissed me as an anxious mum. We experienced delays and a general lack of communication which left us in a difficult position. We knew something was going on with our son but did not know how to support him. His diagnosis brought overwhelming relief.”

Teachers of the Deaf can help bridge this gap, by providing specialist support to deaf children of all ages once their deafness is identified. They play a vital role in deaf children’s lives, particularly during the critical early years – helping to reduce their chances of them falling behind developmentally, socially and educationally.  

But a report published by the Consortium for Research into Deaf Education (CRIDE), shows Teachers of the Deaf numbers across Scotland have fallen by 40% in a decade and almost half (45%) are due to retire in the next 10 years. The fall in numbers is twice that of other parts of the UK.  

This means thousands of deaf children across Scotland are not getting the support they need in school. Deaf young people in Scotland are already twice as likely as their hearing classmates to leave school with no qualifications and half as likely to go on to university.  

Against this backdrop it comes as no surprise that some parents of deaf children in Scotland are concerned that their deaf child does not have enough support from health and education services. Having access to information and advice is crucial in helping families make tricky decisions about how their child will communicate, which technology they’ll use and what type of school they’ll attend.  

Kirsten describes her family’s Teacher of the Deaf as an “advocate, support system, teacher, encourager, source of information – all in one woman!”

She said: “Her support has been a lifeline, and she works closely with our son’s nursery who also provide excellent support.”  

But even with a great Teacher of the Deaf and nursery, Kirsten’s family still struggled, as the specialist support their family urgently required was simply not available to them.  

Kirsten continued: “It was a very isolating, stressful time because we just wanted to be able to support our child. I contacted the National Deaf Children’s Society and had a chat with a member of staff, who was really understanding. She listened and understood my panic that we had missed the opportunity for language learning and were really behind.  

“She helped me fill in an application for a family learning course, funded and run by the charity, which kick started our British Sign Language (BSL) learning. She’s been with us through various different parts of life since, most recently our difficulty finding accessible swimming lessons.” 

The National Deaf Children’s Society warns that unless action is taken urgently things will only get worse. It is calling on local authorities across Scotland to commit to returning qualified Teacher of the Deaf numbers to 2011 levels over the next decade. 

At their annual congress in May, The Scottish Secondary Teachers Association (SSTA), Scotland’s second largest teaching union, unanimously agreed a motion backing the charity’s call on the Scottish Government to address the dramatic drop in the number of qualified Teachers of the Deaf, as “matter of urgency”.  

The charity also calls on the Scottish Government to develop and deliver a Scotland-wide workforce strategy for Teachers of the Deaf, and to ensure they are properly paid for the extra responsibilities they take on, in recognition that their specialist expertise is valued. 

Mark Ballard, Head of Policy and Influencing for Scotland with the National Deaf Children’s Society, said: “Deaf children are just as capable as their peers when they have right support in place, ideally from the very beginning. But many families in Scotland are struggling to access this support.   

“It means that deaf children just aren’t being given the opportunity to thrive in those crucial formative years. Once they fall behind, it can be incredibly hard to catch up and this can have a lasting impact that affects them throughout their lives.

“Every moment counts, from the time a child’s deafness is identified, to their first day at school and beyond. We owe it to deaf children to give them the best start in life.”

For more information about Every Moment counts, visit:

ndcs.org.uk/everymomentcounts

To learn more about the support available for deaf children in their early years visit the National Deaf Children’s Society website. 

I Care! Join Carers Week campaign

Ask your MP to support carers this Carers Week

Dear supporter,

This Carers Week, we’re calling for greater UK Government support for unpaid carers.

To raise awareness of Carers Week and our campaign, please click the button below and take a couple of minutes to write to your local MP to ask them to support our campaign for greater cross-Government action in support of carers.

We have provided a template letter and ask that you add your own personal experience of caring to this, before sending it. Please forward any response you receive from your MP to policy@carersuk.org so that we can follow up with them, if you are happy to do so.

Click here to write to your MP:

https://technology-trust-news.org/15AY-8B1GO-9R7IOT-55U34F-1/c.aspx

Thank you in advance for your support and for taking part in Carers Week 2023!

Best wishes,

The Carers Week team

19 million people in the UK have provided unpaid care – but haven’t identified as a carer

  • Polling shows nearly three quarters of people (73 per cent) who currently provide unpaid care, or have provided care in the past, have never identified as or called themselves a carer
  • Eight million people who have provided unpaid care have also seen their health and wellbeing suffer
  • Seven charities supporting Carers Week call for cross-Government action and a funded National Carers Strategy

Carers UK, along with six charities, carried out the polling of the general public to coincide with the start of Carers Week. They found that 73% of people in the UK who are providing, or have provided, unpaid care in their lifetime – roughly 19 million people – have not identified themselves as a carer.

The polling also suggests eight million people (31 per cent) in the UK with experience of providing care have seen their health and wellbeing suffer.

The findings demonstrate the need for Government and all areas of society to play a role in supporting millions of people to identify their caring role and get help.

The polling reveals that the vast majority of carers could be missing out on important information, support or advice that could make a real difference to their day-to-day lives.

Nearly half of those who took longer to identify themselves as a carer (46%) said they missed out on financial support as a result of not knowing they were a carer, and 35% missed out on practical support.

This lack of support can leave unpaid carers isolated; unable to take breaks from caring, struggling to look after their physical and mental health, stay in work or education, or manage financially.

Helen Walker, Chief Executive of Carers UK commenting on behalf of the Carers Week charities said: “The fact that the large majority of people who have cared for a friend or family member in the UK haven’t identified or called themselves a carer shows that there is so much to be done to raise awareness of unpaid care and its impact on individuals, whether that be to their finances or physical or mental health.

“Eight million people with experience of care seeing their health suffer is concerning and shows the need for targeted action to support carers.

“Healthcare professionals, employers and wider society have an important responsibility to help people with caring responsibilities get the right support when they need it.

“The Government needs to show that it recognises and values unpaid carers by stepping up cross-government action to support them, alongside a funded National Carers Strategy.”

Providing care is a common experience – the polling shows that 50 per cent of the public have at some point in their life provided unpaid care to a family member or friend with a disability, illness, mental health condition or who needs extra help as they grow older.

The YouGov Poll found that women are significantly more likely to be providing unpaid care than men and are more likely to identify as or call themselves a carer.

People providing unpaid care often fail to identify their caring role because they see themselves primarily as a family member or friend, or the process of taking on a caring role is very gradual as the condition of the person being cared for deteriorates over time. Other barriers include carers being too busy to realise the role they’re undertaking, or not feeling like the amount of support being provided is enough to be identified as a carer.

They may be missing out on Carer’s Allowance, the main benefit for those caring 35 hours or more each week and earning under £139, support from their local council to take a break, or practical support from their local carer organisation.

Running from 5 June to 11 June, the charities supporting Carers Week 2023 are Carers UK, Age UK, Carers Trust, MND Association, Rethink Mental Illness, Oxfam GB and The Lewy Body Society.

Together, they are calling on Government for better recognition of unpaid carers across society so that they can access the vital support they need to carry out their caring role.

Healthy Heart Tip: Check your Cheese!

Heart Research UK Healthy Heart Tip, written by the Health Promotion and Education Team at Heart Research UK

Healthy Heart Tip: Check your Cheese

Here in the UK, the 4th of June is National Cheese Day, a day dedicated to celebrating cheese. Cheese can form part of a healthy, balance diet as it is rich in protein and calcium which are both important nutrients to get from our diet. However, cheese is also a source of saturated fat and can be high in salt.

If we consume too much it can contribute to weight gain and poor cholesterol levels which can contribute to heart diseases. In this week’s healthy tip we look at the saturated fat content of cheeses, and suggest heart healthier alternatives for you to try.

How much cheese?

Including some cheese in your diet has health benefits, but it’s worth being mindful about the amount we consume. A 30g portion of cheese provides around 7% of your daily calories.

The trouble is we can very easily eat much more than this in one sitting. It’s a good idea to weigh your portions to make sure you don’t consume too much, particularly if you are consuming full fat varieties or are trying to lose weight. Try not to consume more than three 30g portions each day.

Low fat & fat free cheeses

Choosing low fat and fat free cheese options is a great way to reduce our saturated fat consumption whilst still enjoying the flavour and benefiting from the protein and calcium cheese has to offer.

Opt for fat free cottage cheese and reduced fat soft cheeses and hard cheeses like cheddar. Quark is a great option as its high in protein and much lower in fat than other soft cheeses.

Watch out for the salt

Some cheeses such as halloumi and feta can be very high in salt. It’s fine to consume these in moderation but try to find lower salt versions if possible, some supermarkets sell them.

Try to limit your consumption of these saltier cheeses to maybe one or two times a week.

For more tips on how to stay healthy, sign up for weekly healthy tips at:

www.heartresearch.org.uk/health-tips.

Edinburgh-based VPZ to launch UK-wide public vape recycling service

VPZ, the UK’s largest vaping retailer, has teamed up with WasteCare to launch a nationwide recycling service for vaping devices and e-cigarettes.

Vapes contain lithium batteries and plastic and when littered they can cause harm to the local environment.

VPZ in partnership with WasteCare is committed to tackling the problem head-on and has announced ambitions to responsibly recycle all kinds of vaping devices during 2023.

Doug Mutter, VPZ Director, said: “We believe this innovative service and intervention is vital in responding to an emerging environmental problem whilst educating vapers on the benefits of using reusable and more sustainable products.”

VPZ, the UK’s largest vaping retailer, has teamed up with the leading waste management provider, WasteCare, to launch a nationwide recycling service for vapes and e-cigarettes.

Vapes contain lithium batteries and plastic and when littered they can cause harm to the local environment.

Now, VPZ in partnership with WasteCare has announced ambitions to responsibly recycle all kinds of vaping devices during 2023.

The service is now live in the whole VPZ’s network of over 150 stores throughout the UK. The service is open to all vapers, as anyone can visit a store and dispose safely of their vaping devices or e-cigarettes. All recycling processes will be handled by WasteCare which will be responsible for safely collecting, treating, and recovering disposable vapes and reusable hardware devices from within its plant in Elland, West Yorkshire.

VPZ is the UK’s largest vaping specialist with over 150 stores throughout the country. The Edinburgh-based retailer and manufacturer has already helped over 700k smokers in the UK quit since it was established in 2012.

Director, Doug Mutter, believes the innovative recycling service will help clean up local environments throughout the country whilst educating vapers on being responsible and using more sustainable vaping products.

He said: “We are excited to be launching this ground-breaking service with WasteCare to respond to an emerging environmental issue.

“Any form of littering is unacceptable however the proliferation of disposable vape use has led to single-use devices being discarded in local environments.

“Our partnership with WasteCare responds to this challenge head on and vapers can come into our network of over 150 stores throughout the
country to recycle their vape devices, both disposable and reusable, in a safe and responsible way.

“Our service will also help us engage with adult smokers and vapers to educate them on the sustainable and environmental benefits of using
reusable products,” he added.

The WasteCare Group was established in 1980.  Employing over 500 personnel across 17 regional Service Centres, the company is the UK’s largest independent recycling company specialising in recovering value from hazardous and challenging waste streams.

“With the growing demand for vapes and e-cigarettes, we are delighted that VPZ is leading the way in providing a safe and environmentally sound way to tackle what is becoming a major challenge,” explains Peter Hunt, Managing Director of Wastecare.

“WasteCare is the UK’s only permitted recycler of portable batteries.Every vape contains a lithium battery and our plant is designed to safely recover the precious material from the vaping device, as well as the metal and plastic components in it.”

VPZ continues to call on both the UK and Scottish Governments to introduce tighter controls and licensing for selling vaping products.

Director, Doug Mutter, said: “At the moment we have a challenge in the industry where many imported, unregulated, disposable vaping products are readily available from local convenience stores, supermarkets and several other general retailers with no age verification checks or control in place.

“This is an emerging problem that threatens the huge progress of vaping in transforming the health of the nation and helping the country meet it’s smoke-free targets.

“We are urging the UK Government to act now and follow best practices from countries like New Zealand, where flavoured products can only be sold from specialist licensed vaping stores. Thus, ensuring that an appropriate challenge 25 policy is in place and consultation is aimed towards adult smokers and vapers.”

Lothian MSPs opens up about father’s alcohol use as part of new campaign 

Miles Briggs MSP has opened up for the first time about his father’s alcohol use, as he backs a campaign to alcohol and drugs.

In a candid and moving letter to his father as part of the See Beyond – See the Lives – Scotland campaign, Miles shares his experiences as the son of a single parent who drank; he lost his mother to breast cancer at an early age.

The Lothians MSP also talks of the loss and pain he feels due to his deceased father missing spending time with his children and grandchildren.

“We all miss you but also know the pain watching you try to deal with and hide your drink problem from family and friends – from bottles hidden in the garden and around the house, the difficulty in holding down a job and for the family the worry and concerns we all felt over what would come next,” writes Miles, Scottish Conservative and Unionist Party MSP for Lothian.

He continues: “We probably don’t speak enough about you as a family – that’s partly because it can often return to what was a difficult few final years of your life. Dad, you know you weren’t perfect, but then which one of us is?”

Also backing See Beyond – See the Lives – Scotland is Monica Lennon, Scottish Labour MSP for Central Scotland. A long-time campaigner against the stigma surrounding substance use, Monica lost her father to alcohol in 2015.

Miles’ and Monica’s letters to their fathers are included with 14 others who share letters to their loved ones on the campaign’s website.

The two MSPs will front a Scottish Parliament reception this week in Holyrood where those who helped to create the website campaign will talk about their experiences. They will stress the importance of showing kindness and offering support to everyone affected.

‘Everyone knows someone’ is the message behind See Beyond – See the Lives – Scotland, launched last month by the University of Stirling, Scottish Families Affected by Alcohol and Drugs, Scottish Health Action on Alcohol Problems (SHAAP), and The Salvation Army.

As well as hard-hitting stories and videos from family members and friends of people who have died, the website includes resources and advice for those harmed by substance use, whether for themselves or a family member or friend.

Since its launch, the campaign has gained national attention and support for its mission to shatter myths surrounding drug and alcohol use and deaths, and to encourage the public to showcompassion for those experiencing problems with substance useand the people left behind when a loved one dies.

Lothian MSP, Miles Briggs, said: “The important message with See Beyond – See the Lives – Scotland is that there is still stigma attached to alcohol and drug use, from how people talk about it to the judgements they bring to it. 

“Each of these letters is a rallying cry to make a change. 

“Everyone knows someone, and we can all help steer each other towards more of an understanding of substance use and its effects on people’s lives.”

‘National Emergency’: Boyack demands action as waiting lists soar

Scottish Labour MSP Sarah Boyack has branded Humza Yousaf’s time as Health Secretary “catastrophic” as new figures reveal NHS waiting lists in Lothian soaring on his watch.

At the end of March, as Humza Yousaf departed as Health Secretary, there were 123,481 people in Lothian on an NHS waiting list.

This is a shocking 25 per cent increase since the same point in 2021, shortly after Humza Yousaf took over the role.

Across Scotland waiting lists are at a record high, with around 1 in every 7 Scots currently on an NHS waiting list.

Scottish Labour branded this a “national emergency” and called for the Scottish Government to support NHS Lothian and implement a real NHS catch-up plan.

Commenting, Scottish Labour MSP Sarah Boyack said “People in Lothian have been badly let down by this incompetent SNP government and their disastrous stewardship of our NHS.

“It should worry us all that First Minister Humza Yousaf left behind such a catastrophic legacy as Health Secretary.

“Despite the tireless efforts of NHS staff, record numbers of Scots are stuck languishing on NHS waiting list, including more than 120,000 people in Lothian.  

“Blame for this national emergency lies squarely with Humza Yousaf and his failed NHS recovery plan, which saw waiting lists in NHS Lothian spiral by 25% after the pandemic.   

“The SNP government must support NHS Lothian and deliver a real catch-up plan to help it recover from the damage inflicted by both the pandemic and by this disastrous government.”

One Year to Go: Capital counts down to LEZ introduction

As Glasgow introduces Scotland’s first LEZ today, Edinburgh is counting down to the introduction of our own Low Emission Zone, which will restrict the most polluting vehicles from driving in the city centre, benefiting everyone’s health.

The City of Edinburgh Council and NHS Lothian have joined together to highlight the positive impact clean air can have on health and wellbeing.

Restricting the most polluting vehicles will significantly reduce harmful emissions of nitrogen oxides (NOx) from vehicles by up to 50% within the LEZ. Further air quality improvements are expected beyond the boundary, improving public health around the city.

While Edinburgh is moving closer to consistently meeting the minimum air quality standard set by the Scottish Government, it has some way to go before it meets the World Health Organisation’s targets.

Reducing air pollution is especially important for those most vulnerable to the impacts of air pollution, including children, older people and those with underlying health conditions.

Councillor Scott Arthur, Transport and Environment Convener, said:As Glasgow begins to enforce its LEZ, and with one year to go until our own LEZ comes into force, it’s a chance to reflect on the reasons for introducing an LEZ in Edinburgh.

“Research has shown that air pollution negatively affects everyone’s health and we have a responsibility to address this. In two weeks, we’ll mark Clean Air Day, which this year focuses on the fact that poor air quality not only affects our physical health, but our mental health too.

“By restricting the most polluting vehicles in the city centre the LEZ will create a healthier, more welcoming place to be – and we’re expecting benefits to spread across the wider city. I’m encouraged by the fact that compliance with our emissions standards continues to increase, and I’d like to thank people making the switch to cleaner modes of transport.

“However, there’s still work to be done, and over the next year we’ll be supporting even more people to consider greener, more sustainable ways to travel. I want to use the extra year Edinburgh has to get ready for this change, and ensure residents and businesses are fully prepared.”

Dona Milne, Director of Public Health, NHS Lothian, said:The links between transport and health are clear and the LEZ will help to improve health and wellbeing and reduce inequalities for the people of Edinburgh.

“Tackling air quality, alongside commitments in the City Mobility Plan and associated draft Action Plans, will have multiple benefits. Health and wellbeing will be improved as a result of reduced levels of air and noise pollution; improved road safety; more inclusive opportunities for people to travel by walking, wheeling, cycling and public transport; and the increased vibrancy of local communities and economies.”

Earlier this year, data analysed by the Scottish Environment Protection Agency (SEPA) revealed that overall compliance with Edinburgh’s LEZ emissions standards had increased from 48% to 78% over the last six years. Compliance is particularly high amongst buses (97% – Lothian Buses is 100% compliant), petrol cars (95%) and Heavy Goods Vehicles (86%).

However, more than half of diesel cars and a third of light goods vehicles (including vans) travelling on the main routes into Edinburgh don’t comply with the requirements of the LEZ.

A city centre LEZ was introduced in Edinburgh on 31 May 2022, along with LEZs in Glasgow, Aberdeen and Dundee. In Edinburgh, a two-year grace period is in place, meaning no penalty charges will be issued during this time. 

LEZ restrictions will apply to motor vehicles, except motorcycles and mopeds. Vehicles must meet the minimum emissions standards to drive within the zone, though national exemptions apply including for blue badge holders and emergency vehicles.

A consultation is currently underway on suite of action plans designed to support the delivery of the City Mobility Plan to 2030, addressing everything from air quality to road safety, public transport to active travel. 

Environmental campaigners have welcomed the start of Glasgow’s low emission zone.

Gracie Bradley, director at Friends of the Earth Scotland, said: “The beginning of Glasgow’s low emission zone is a moment to celebrate real progress in the city. Glasgow has persistent air pollution problems caused by transport, and people who live and work here have been breathing toxic air for many years. Finally, after years of promises, the council is taking action.

“We know that low emission zones work because they’ve been successful in hundreds of places across Europe. Glasgow’s zone has already had a positive impact since it began restricting the most polluting buses, but there is no safe level of air pollution.

“Changing the way we get around the city needs to remain a priority – we want to see better public transport, the end of developments that require cars, and safer cycling routes to tackle toxic air, reduce our impact on the planet and make Glasgow a better place to live.”

Find out more about the LEZ. 

Clean Air Day takes place on 15 June.

Taking action on dementia

New plan to improve quality of life

Improving the lives of people with dementia is at the heart of a new 10 year strategy announced by the Scottish Government yesterday.

The strategy, Everyone’s Story, outlines a vision for dementia policy over the next decade and identifies a number of priorities which would improve the lives of people living with dementia, their families and carers.

These include support pre and post diagnosis, actions to enable more people to live well in their communities, involving those affected in the design and delivery of their own support and access to care from a skilled and trauma-informed workforce when appropriate

The strategy commits to tackling stigma as a priority and aims to do this by making sure two-year delivery plans will be agreed to ensure progress is made. The first plan is to be published at the end of this year. 

The strategy, launched during Dementia Awareness Week, is a joint publication by the Scottish Government and the Convention of Scottish Local Authorities (COSLA).

Mental Wellbeing Minister Maree Todd said: “Dementia is a brain health condition which impacts at least 90,000 people across Scotland, as well as their families and their communities. This strategy sets out what we want to achieve and the difference we want to make to people’s lives.

“Diagnosis can bring significant mental health and wellbeing challenges that need to be acknowledged and addressed to ensure a person’s rights are upheld. That’s why the strategy was developed in collaboration with the National Dementia Lived Experience Panel. We want everyone affected to be involved in its delivery.”

COSLA Health and Social Care spokesperson Councillor Paul Kelly said: “We welcome this strategy as it rightly challenges us to do more and go even further, to continue to improve the care and support for people living with dementia and their care partners.

“Delivering it will require us all to continue to work collaboratively in a positive and proactive manner, while respecting each other’s different experiences of dementia.”

Everyone’s Story  

Stockbridge charity’s services are a cut above!

LifeCare Edinburgh launches new dementia-friendly hairdressing service helping local older people “feel like themselves again”  

COVID restrictions taught us all how much we value a visit to our local hairdresser to help us feel like ourselves, boost our self-esteem and to simply enjoy a chat and a catch-up with a friendly face.  

Sadly, for people living with dementia this lockdown experience can be a permanent feature in life as visiting an everyday salon can be inaccessible, overwhelming, and without the right training, difficult for a hairdresser to deliver well.  

However, things are changing in the capital as local charity LifeCare has launched the city’s first dedicated dementia-friendly hairdressing service providing essential haircare services for people living with dementia and their unpaid carers.

LifeCare’s new ‘Forget-Me-Not’ hair service involves an experienced, caring and dementia-trained mobile hairdresser visiting people in their homes so that they can continue to experience the joy of a haircut.  

The benefits of a hairdressing experience for a person living with dementia can be significant.  Haircare helps people to maintain their appearance but also impacts how they feel, their personal identity, and their overall self-esteem.

For a person living with dementia, hairdressing can be a unique multi-sensory experience providing a valuable opportunity for touch and physical contact which is often missing outside of practical interactions.

Regular visits and time for conversation can reduce feelings of isolation and loneliness. Feelings of self-worth and positive self-image are boosted and this increased confidence can mean people are more likely to be motivated to attend other activities and stay engaged with their community.

Evidence shows haircare services support reminiscence activities as scents and experiences involved can be incredibly evocative and personal appearance can relate to people’s life stories and relationships. 

James Wells, Chief Executive of LifeCare said “It’s sad and unfair that people living with dementia struggle to access ordinary haircare services that many of us take for granted.  

“The typical busy, hot and noisy hair salon environment can just be too overwhelming for some and a lack of understanding amongst hairdressers can make the experience really difficult for everyone. Mobility issues and transport concerns also create problems.   

“At Lifecare, we have a proud 80-year history of providing essential care services for local older people, ensuring no-one is left alone or isolated and that everyone can continue to enjoy the joy in their lives.  So, we’re absolutely delighted that we are now able to launch this dedicated service which will make an immediate positive and life-changing difference to our older clients and their carers.

“We are already hearing from clients how they “feel like themselves again” and “can’t wait for their next appointment”. I’m looking forward to hearing more of these stories as the service continues to grow.” 

Audrey McDonald, LifeCare’s dementia-friendly hairdresser said“It is an absolute pleasure to be helping to deliver this fantastic service. From my own personal experience, I understand how frustrating it can be for a person to be shut-out of these important pleasurable activities.

“Even a small trim can cheer a person up for the day. In just a few short weeks, I have already seen how much joy the service is bringing for local people.  

“Together we are enjoying a giggle, a chat about old times and everyone is left feeling a million dollars. 

The charity relies on support from its funders to deliver all of its essential services.  The Forget-Me-Not Salon has been made possible thanks to financial support from Age Scotland’s About Dementia project in partnership with the Scottish Government.   

Head of Dementia at Age Scotland, Dr Kainde Manji said “We are excited to support LifeCare in their delivery of a dedicated haircare service for people with lived experience of dementia, and we recognise the importance of this type of community-based support in enabling ordinary activities that make a big difference to individual wellbeing.

“We know that increasing wellbeing and tackling social isolation can empower people with lived experience of dementia to take a more active role in their communities.” 

The “Forget-Me-Not” hair service has been initially set up as pilot project offering the service to clients for free to ensure that it is accessible to all.

If you know of someone living in the north of Edinburgh who could benefit from the service contact 0131 343 0940 or visit www.lifecare-edinburgh.org.uk/services/home-salon.  

To donate or find out other ways to help visit https://www.lifecare-edinburgh.org.uk/  

‘When the Words Away Went’

STROKE ASSOCIATION talks APHASIA

Nearly half Scots have never heard of aphasia, despite 350,000 people living with the condition in the UK.

  • New research from the Stroke Association reveals a huge lack of public awareness and knowledge of aphasia – a language and communication disorder most commonly caused by stroke
  • Of the Scots who have heard of aphasia nearly one in two (46%) are unclear as to what it is
  • Almost two thirds (68%) of Scots lack confidence in spotting the common effects of aphasia. 
  • To address this and raise awareness of aphasia, the charity has produced a documentary ‘When the Words Away Went’ available to watch on
    stroke.org.uk/film or stream on Channel 4 from Friday 26th May

New research from the Stroke Association reveals nearly half of the Scottish  public (45%) have never heard of aphasia*, despite it affecting over 350,000 people in the UK.

Aphasia is a language and communication disorder – with stroke being the biggest cause. The condition often has a profound effect on someone’s ability to speak, read, write and/or use numbers.  There are 128,000 stroke survivors living in Scotland and over a third (40%) will experience aphasia after their stroke. 

The new research* from the UK’s leading stroke charity highlights that most Brits don’t know about the disorder, and the huge impact it has on people’s lives. Moreover, nearly half (46%) of those who have heard of aphasia are unclear as to what it is.  

To help raise awareness of aphasia, the Stroke Association has launched ‘When the Words Away Went’, a documentary about three stroke survivors living with aphasia embarking on their journey to find their voice and rebuild their lives. 

The documentary aims to equip people with the knowledge, understanding and confidence to support those living with aphasia. Currently, most people (72%) lack confidence in recognising its symptoms and less than half of people (42%) would feel confident in communicating with someone with the disorder.

Whilst aphasia does not affect intelligence, the majority of Scots (68%) think being able to speak or communicate well is a sign of intellect, which can create huge barriers for those with aphasia. In fact, a fifth of adults (20%) also admit that, if they met someone who had problems communicating, they would assume that person had a learning difficulty. 

John Watson, Associate Director Scotland of the Stroke Association said: “Aphasia is very common, affecting over a third of stroke survivors, so it’s disheartening to see such low awareness and knowledge of aphasia amongst the general public. 

“Most of us can’t imagine living with aphasia, but it makes everyday tasks like getting on the bus or talking to a friend daunting, made worse by misconceptions that people with aphasia lack intelligence. This can often lead to anxiety and depression, feeling excluded from society and difficulties with personal relationships.

“We want to encourage everyone to watch our new documentary ‘When the Words Away Went’, featuring stories from three inspiring stroke survivors impacted by aphasia, so the public can better understand the condition and become an ally to those affected. Together we can help make the lives of those living with aphasia a little bit easier.” 

The research also highlights other common misconceptions around aphasia including, over a fifth (25%) of Scots Brits believing that aphasia only affects someone’s ability to talk and one in ten people mistakenly thinking that aphasia can’t improve.

Tom Middlemass, 59, from Edinburgh – featuring in the documentary said:When you have aphasia, you find people shout at you when they talk to you. You get that all the time.  

“People need to know that those with aphasia are not dumb. There’s a person behind that voice who is struggling. It’s very hard to get these words out. It exhausts you.”

“The Stroke Association is here for everyone affected by aphasia, providing support and an important reminder that there is hope. Aphasia can and does improve, and with the right help people with aphasia can live normal lives.”

Watch the ‘When the Words Away Went’ online at stroke.org.uk/film or stream on Channel 4 now.

To find out more about aphasia and how you can support those affected, visit https://www.stroke.org.uk/aphasia.