Today: BLAST Boxing at West Pilton Neighbourhood Centre

TUESDAY SESSIONS

9.30 -11.30 BOX N’ BLETHER

5 – 5:45 youth boxing and fitness session

6 – 7pm BLAST BOXfit!

All sessions are aimed at mental aswell as physical well-being.

Delivered in a friendly fun but challenging manner focused on having a laugh and building positive relationships within the groups.

BLAST, it’s more than just boxing! 👌🏻💪🏻❤️🥊

Government works with TikTok to help safety for treatments abroad

Patients who use social media to plan cosmetic procedures will now access more reliable information thanks to a ‘landmark new initiative’

  • New online campaign to give people clear, reliable advice before travelling overseas for cosmetic or medical treatments. 
  • It aims to raise awareness of the risks, protect patients and reduce costs for the NHS of fixing botched procedures. 
  • Part of wider government initiative to improve safety of cosmetic treatments. 

Patients who use social media to help plan cosmetic procedures will now be able to access more reliable trustworthy information thanks to a landmark new initiative between the government and TikTok. 

More people are using social media apps like TikTok to research potentially risky operations – like hair transplants and dental work – abroad as they are often cheaper or more readily available than in the UK but are often presented with slick marketing campaigns that do not highlight the dangers of the surgery.  

To help keep these patients informed, TikTok and the government have partnered with medical influencers, like Midwife Marley and Doc Tally to create content to show the risks, help carry out thorough research and provides advice on how to make trips as safe as possible.

The Foreign Office will also provide more detailed travel advice for those seeking to travel abroad for ‘tweakments.’

Health Minister Karin Smyth said: “Too many people are being left with life-altering injuries after going abroad for medical procedures, without access to proper advice or safeguards.  

“Often drawn in by deals too good to be true and promoted by influencers – some of whom have never been to the practice in question.

“By partnering with TikTok, we’re helping people make safer, more informed choices before they go under the knife – wherever that may be.  

“Through our Plan for Change, we’re determined to protect patients, ease pressure on the NHS and make sure taxpayers are not left paying the price when things go wrong.”

The campaign warns that when it comes to cosmetic surgery abroad, the lowest price can come at the highest cost.

It urges people to think beyond the slick brochures and marketing, and to consider clinical standards, complication risks, and language barriers.

It will urge potential patients to speak to a UK doctor, take out travel insurance, and steer clear of package holidays that bundle in procedures. The medics will provide a check list to go through before considering booking a procedure abroad: research thoroughly, check the clinic’s regulation and the surgeon’s credentials, know the full cost, understand the aftercare, and ask the vital question – if it goes wrong, who will fix it?

The online campaign is part of wider government efforts to curb medical tourism. Work is underway to stop events in the UK that promote procedures abroad and the government is working with other countries to improve patient care from initial consultations to post-surgery recovery.

The government is looking at additional ways of protecting patients who go abroad for these types of procedures, while ensuring the NHS is not left to pick up the tab of botched or harmful work.

The move follows the announcement last week to crack down on dodgy cosmetic practitioners in England. The new regulations will mean the highest risk procedures, such as non-surgical Brazilian Butt Lifts (BBLs), can only be carried out by qualified, specialised healthcare professionals, registered with the Care Quality Commission.  The measures also include developing a licensing scheme for lower risk procedures like Botox and fillers, alongside introducing minimum age restrictions.  

Minister Doughty, Minister of State for Europe, North America and Overseas Territories: “Our aim is to explain the risks and help British people understand the actions they can take to keep themselves safe when abroad.

“If you choose to travel abroad for medical treatment, it is vital you do your research and are fully aware of the risks involved.

“We urge anyone considering a medical procedure abroad to review our travel advice, relevant guidance from the NHS and other professional bodies, and research foreign providers thoroughly to ensure they meet the highest standard of care.

“Informed choices today can help avoid serious complications tomorrow.”

Ali Law, Director of Public Policy, Northern Europe said: “At TikTok we are committed to providing our community with information from trusted sources when searching for topics related to physical and mental health. 

“We’re pleased to work with the government on this new initiative to improve the safety of people going abroad for treatment and we will continue to promote credible content through our Clinician Creator Council made of NHS practitioners.”

The Foreign, Commonwealth and Development office has also updated its online travel advice advising people on how to stay safe when traveling abroad for medical or cosmetic reasons.  

This work will help improve patient safety and reduce costs for the NHS by reducing the number of people needing medical support when things go wrong, providing greater value for the taxpayer and reducing pressure on staff.

‘Shocking and shameful’

51,400 older people endured dangerous 12 hour waits in Scotland’s A&Es last year

Extreme long waits in Emergency Departments across Scotland are a political responsibility that can no longer be ignored as more than 51,400 older patients endured stays of 12 hours or more last year – the worst on record.  

New analysis from the Royal College of Emergency (RCEM) reveals in major EDs, one in every eight patients (51,423) aged 60 or over waited more than 12 hours to be transferred, admitted or discharged in 2024.  

That’s 14,407 more patients than the year before (2023). 

And is over 16 times more people than in 2019 when just 3,135 older people endured waits of this length.    

The figures, obtained by RCEM via Freedom of Information requests to Public Health Scotland, also reveal that, concerningly, the older a patient is the longer they are likely to wait in A&E. 

People aged 70-79 have a 12% chance of waiting 12 hours or more – almost 16 times higher than it was in 2019.  

Meanwhile, people aged 80-89 have a 16% chance of enduring extreme waits, and the likelihood rises to 19% for those aged 90 and above.  

Compare that to patients aged 18-29, whose average likelihood of experiencing a 12-hour wait last year was just 2.2%. 

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Older patients often arrive to the Emergency Department with more complicated or multiple health issues.  

This, when combined with the inability to admit them onto a ward due to the lack of available in-patient beds, means older people can become stuck in Emergency Departments – enduring extreme long waits, often on trolleys in corridors.  

And when patients do finally get admitted, they often find themselves stranded in hospital, unable to go home when they are well enough to leave, frequently due to a lack of available social care support.  

Public Health Scotland recently revealed that in 2024/25, there was a record 720,119 days spent in hospital by patients whose discharge was delayed – 474,153 of which were experienced by people aged 75 or over. This accounted for two out of every three (66%) delayed discharge bed days. 

Dr Fiona Hunter, Vice President of RCEM Scotland, said, “This data is both shocking and shameful, and it is abundantly clear that older people are bearing the brunt of a system in crisis.  

“Hundreds of thousands of dearly loved people – great-grandparents, grandmas, grandads, parents – forced to experience extreme long stays in our Emergency Departments every year mainly because we don’t have enough in-patient beds to admit them to when they need one.  

“Often enduring these waits on trolleys in areas that aren’t designed to deliver care in – corridors or even cupboards. 

“It’s a failure of the system. It’s unacceptable, it’s dangerous and it’s putting lives at risk.  

“Enough is enough. The government can’t ignore the ongoing crisis our Emergency Departments – the workforce and patients – continue to face day in, day out.  

“We all deserve an Urgent and Emergency Care system that works as it should and not letting people, our most vulnerable, down when they need it most.” 

Dr Bob Caslake, Chair of the BGS Scotland Council, said, “This report highlights the urgent attention that is needed across the health and social care system to allow older people to access the care they need at the time they need it.

“The current waiting times faced by older people in Emergency Departments are unacceptable, and reducing these delays is a matter of equity, dignity, and patient safety.” 

Professor Andrew Elder, President of the Royal College of Physicians of Edinburgh said, “It is disappointing that this information is not routinely collected, analysed and published and it is unacceptable to see so many older people waiting hours — sometimes days — in A&E wards for the care they need.

“These older people are often living with frailty, dementia, and multiple other health conditions. They deserve to be treated with dignity and compassion.

“Long waits for care are neither dignified nor compassionate and can also lead to serious harm. This is not the standard of care we should accept for our parents, grandparents, or neighbours.

“With the numbers of older people in Scotland in need of care expected to increase dramatically, we urgently need a system that prioritises timely treatment and supports frontline staff in delivering the respect and care our older population deserves.” 

The figures come after the Royal College of Emergency Medicine published a report earlier this year looking at the care older people, aged 75 and over, receive in Emergency Departments across the UK.   

Titled ‘Care of Older People 2023-24’, the research found there was insufficient screening for three common conditions which primarily affect this age group, including delirium and for general frailty. 

RCEM also released analysis in February which found the number of people experiencing stays of longer than 12hrs in Scotland’s ED last year was a staggering 99 times higher than 2011 when records began. 

New figures show ongoing failure to deliver life-changing stroke treatment

Scot suffers life-changing disability after missing out on stroke treatment

John Watson, Associate Director for the Stroke Association in Scotland, said: “Stroke is the third biggest killer in Scotland, and the leading cause of complex adult disability. But the latest official figures show the ongoing failure of health boards to make stroke the priority it needs to be.

“The failure is most striking in thrombectomy, a life-saving, life-changing treatment that should be a normal part of any modern healthcare system. Thrombectomy also saves the health and care system £47,000 per patient over five years2, potentially providing part of the solution to the current NHS and social care crisis.

“A Scotland-wide, round-the-clock thrombectomy service was promised years ago, yet less than a fifth of eligible patients get the intervention1 that could transform their lives. The thrombectomy rate elsewhere in the UK3 is more than double that in Scotland.

“Today we highlight the harrowing story of one man who was unable to get treatment because he had his stroke in the wrong place, at the wrong time of day (see Graham’s story below). Last year over 1,000 people were similarly let down by health board’s who offer thrombectomy in some places, at restricted times.

“We work closely with stroke teams and recognise the tremendous efforts made by staff on the ground. But they can’t sort this on their own. It is political decisions, from the Scottish Government and health board leadership, that determine the resources, equipment and staff available to them.

“Small sums of money, such as investing in new operating suites to perform thrombectomies, would remove an existing bottleneck, save lives and quickly pay for themselves.

“But more than anything this requires political leadership.

“Oversight of the thrombectomy programme has now been passed to the NHS Planning and Delivery Board – it needs to own this problem and make it the priority it should have been all along.”

Graham McGowan, 53, from Aboyne, Aberdeenshire, suffered left-sided paralysis when he was unable to have a thrombectomy, for a stroke he had in 2022, due to restricted availability of the procedure.

The former performance improvement consultant, trail runner and skier was rushed to Aberdeen Royal Infirmary on the evening of 20 May 2022 with a brain scan revealing a blood clot, which doctors advised should be treated with a thrombectomy.

Thrombectomy is a medical procedure that removes blood clots in a large artery, which can otherwise cause disabilities such as paralysis, blindness and communication problems.

However, Graham was told he couldn’t be transferred for the procedure because he arrived at hospital outside “office hours” at around 9pm. Otherwise, he would have been air lifted to Ninewells Hospital in Dundee, which is one of Scotland’s three specialist thrombectomy hubs.

Ninewells is only able to perform thrombectomies from 9am-7pm, Monday to Friday. The Stroke Association is calling for a 24/7 Scotland-wide thrombectomy service, which it says has been a Scottish Government commitment for years.

Instead, Graham had thrombolysis, a drug which is used to try to disperse clots and help restore the blood supply to the brain.

Three years later, Graham lives with life-limiting disability including total immobility on his left side, and is keen to raise awareness of the importance of 24/7 access to a national thrombectomy service to prevent future stroke patients in Scotland missing out on the procedure and all the positive outcomes it can bring.

He said: “I don’t want to dwell too much on the ‘what ifs’ and the cost of me not getting a thrombectomy, as it doesn’t help me mentally.

“But if you take me as an example, I was working and had an active, healthy lifestyle before I had a stroke. Now, I can’t live independently. I can’t work. I can’t drive, ski, run or mountain bike. My wife is now also my carer and there has been a dramatic change in our circumstances.”

Graham’s stroke was caused by a carotid arterial dissection – a tear in the carotid artery, which leads to a blockage or formation of a blood clot. The clot had broken up and travelled to Graham’s brain, causing the stroke. He stresses: “I’d been running the day before I had my stroke. I was fit and healthy – there were no signs that I could have a stroke, I had no risk factors.”

The immediate effect was paralysis down the left hand side of his body, leaving him unable to sit up, stand or walk, which Graham describes as, “disturbing”.

He continues: “It was difficult to deal with, but even then I thought it was temporary. I thought I would be treated and I’d be OK again.”

His rehabilitation and life since have proved otherwise. After four days of constant sleep and “unbelievable pain in my head”, Graham’s four months of hospital recovery and intensive physiotherapy began.

He returned home to his wife, Heather, and their two dogs in September 2022.

He says the support he received at Woodend Rehabilitation Hospital in Aberdeen was invaluable.

“The physio team helped me take my first, single step and taught me to walk again. But there were significant challenges at home. Heather has always been so upbeat and supportive but I can’t really do anything around the house anymore. It puts a lot of responsibility on her.” 

Initially, Graham relied on a wheelchair, with Heather or a retired neighbour pushing him around the village or the woods to experience a little of the outdoors he loves so much. With perseverance and patient support he is now able to walk around the same places.

Graham now aims to walk 50km every month and is applying the same determination to volunteering with the Stroke Association’s Deeside Stroke Group.

Graham found the group online and was delighted to find it had an exercise focus. He says: “Heather pushed me in my wheelchair along to my first group session that autumn and I walked the few steps into the hall where it was held.”

In March 2024, Graham was appointed chair of the group and has found a renewed sense of purpose in using the knowledge and skills he gained in his 26 years of work to help the group thrive and welcome new members.

Deeside Stroke Support Group currently has around twenty five members, meeting weekly in Aboyne and Banchory for exercise sessions and monthly for social get-togethers. For more information, contact engagementteamscotland@stroke.org.uk.

John Watson, Associate Director for the Stroke Association in Scotland, said: “Graham’s story pulls the need for a 24/7 Scotland-wide thrombectomy service into sharp focus. Getting the best stroke care shouldn’t depend on where or when your stroke happens.

“We are enormously grateful to Graham for sharing his story to help us campaign for better stroke treatment and remain indebted for the wonderful job he is doing at the Deeside Stroke Group.” 

Scottish children’s Wonders of the World revealed for the first time – from Sunflowers and Seashells to Caterpillars and Diggers

  • Sunflowers, seashells and caterpillars are ranked the top ‘wonders of the world’ according to Scottish children.
  • But around 1 in 5 children under the age of 10 in Scotland have sight conditions that can get in the way of all that wonder.
  • Specsavers launch museum-style exhibit in Edinburgh showcasing these everyday wonders to highlight the importance of childhood eye checks.

FOR ADULTS, there are seven wonders of the world, but in children’s eyes, there are seven million. Sunflowers (60%), seashells (54%) and rocks (40%) top the list of Scottish children’s ‘wonders of the world’ according to a new study.

Other everyday wonders which stop Scots children in their tracks include caterpillars (37%), puddles (29%), and diggers (9%).

To highlight just how crucial good eyesight is for children to experience all this wonder, Specsavers has created a Wonders film and launched museum-style exhibits across the UK.

Each installation in Edinburgh, London, Manchester, Belfast and Cardiff features a ‘wonder’ chosen by a local child.

These include a life-sized digger, a perfectly imperfect rock, a carefully collected seashell, a curly caterpillar and a colourful sunflower.

The first Children’s ‘Wonders of the World’ exhibitions celebrate children’s natural curiosity and remind parents how important good eyesight is for kids to keep exploring the everyday wonders around them.

“Children see the world in a way adults often forget – full of magic, mystery and wonder,” says Professor Sam Wass, a child psychologist and neuroscientist.

“Good vision is essential to this journey of discovery. It helps children explore, ask questions and learn through play, all of which are essential to children’s development.”

Research among over 380 six and seven-year-olds reveals the places where children are most likely to spot their top wonders – with the beach (71%), the garden (44%), the park (29%) and even the journey to school (41%) ranking highest.

More than a quarter(26%) of the 600 parents surveyed said this happens on average five times a day, totalling 1,825 moments of wonder per year. Nearly a quarter (24%) report often being late because their child is busy inspecting an object. That’s 156 million times annually that parents are delayed because of their children discovering wonders.

Nonetheless, over two thirds (70%) of parents said they would be concerned if their child stopped pointing out these everyday wonders.

As a result, a quarter (25%) said this would be among the reasons they would book an eye test for their child, as well as if they were struggling to read or write (43%) or rubbing their eyes frequently (38%).

Sarah Joyce, Director of Optometry at Specsavers, says: “Being able to see clearly is vital to children as they learn about the world – around 80% of learning in school is visual.

“But around one in five children under the age of 10 have sight conditions that can get in the way of all that wonder[1].

“Conditions such as long- or short-sightedness, astigmatism or a squint can often be treated more effectively if they are picked up early, so regular eye tests from the age of around four are essential or sooner if you think they are having any problems.

“The great news is, for children under 16, the NHS will cover the full cost of the eye test.”

To find out more or to book an eye check for your child visit: 

www.specsavers.co.uk/eye-test/childrens-eye-test

GHF-run food distributions in Gaza are sites of “orchestrated killing”

A REPORT BY MEDECINS SANS FRONTIERES

  • The GHF-run food distributions in Gaza, Palestine, have become sites of “orchestrated killing and dehumanisation”, not humanitarian aid.
  • A new MSF report documents the horrors witnessed by MSF staff at two clinics that regularly received mass influxes of casualties following violence at sites run by the GHF.
  • MSF calls for the immediate dismantling of the GHF scheme and the restoration of the UN-coordinated aid delivery mechanism.

An analysis of Médecins Sans Frontières (MSF) medical data, patients’ testimonies, and first-hand medical witnessing at two MSF clinics in Gaza, Palestine, point to both targeted and indiscriminate violence by Israeli forces and private American contractors against starved Palestinians at food distribution sites run by the so-called Gaza Humanitarian Foundation (GHF). 

MSF calls for the immediate dismantling of the GHF scheme; the restoration of the UN-coordinated aid delivery mechanism; and calls on governments, especially the United States, as well as private donors to suspend all financial and political support for the GHF, whose sites are essentially death traps.

A new MSF report, This is not aid. This is orchestrated killing, documents the horrors witnessed by MSF staff at two clinics that regularly received mass influxes of casualties following violence at sites run by the GHF, an Israeli-US proxy that has militarised food distribution.

Between 7 June and 24 July 2025, 1,380 casualties, including 28 dead, were received at MSF’s Al-Mawasi and Al-Attar clinics in southern Gaza, located near the GHF-run distribution sites. 

During those seven weeks, our teams treated 71 children for gunshot wounds, 25 of whom were under the age of 15. Faced with no alternatives to find food, starved families frequently send teenage boys into this lethal environment, as they are often the only males in the household physically able to make the journey.

In May 2025, the genocide in GazaPalestine, took a further disturbing turn as Israeli authorities sought to dismantle the UN-led humanitarian response and replace it with a militarised food distribution scheme run by a previously unknown entity — the Gaza Humanitarian Foundation (GHF). All four distribution sites operated by the GHF are located in areas under full Israeli military control and “secured” by private American armed contractors.

MSF’s report ‘This is not aid. This is orchestrated killing’ draws on medical data, patient testimonies and first-hand medical witnessing to demonstrate that what has been branded as “aid distribution” is in fact a system of institutionalised starvation and dehumanisation.

MSF calls for an immediate cessation of the GHF distribution mechanism and urges states and private donors to refrain from funding what is essentially a death trap.

This is not aid. This is orchestrated killing.pdf — 2.63 MBDownload

MSF operates two primary healthcare centres in southern Gaza located in close proximity to the GHF distribution sites. Between 7 June and 24 July 2025, these health centres received 1,380 injured people, including 28 dead bodies from the GHF sites.

This represents only a fraction of the total number of people killed and injured at the distribution sites. MSF’s two health centres — due to their sheer proximity to the GHF sites — now place biweekly orders for body bags.

Over a seven-week period in June and July 2025, MSF staff treated 174 people for gunshot wounds originating from the GHF sites. The vast majority of those injured — 96 per cent — were young men. This reflects a grim survival strategy: families are sending the youngest and fittest to retrieve food.

The injured who arrive in our clinics are normally covered in sand and dust from time spent lying on the ground while taking cover from bullets.

A significant number of injured patients coming from the Khan Younis distribution centre (SDS3) had gunshot wounds to the lower limbs. The anatomical precision of these injuries strongly suggests intentional targeting of people within the distribution sites, rather than accidental or indiscriminate fire.

Of the 28 dead bodies received in our health centres, all but one were young men (aged 20–30 approximately) with gunshot wounds to the upper body.

Helping to identify cancer earlier

NEW REFERRAL GUIDELINES FOR SUSPECTED GUIDELINES PUBLISHED

Clinicians will be able to refer patients with symptoms which might indicate cancer for tests more quickly following the introduction of new revised guidelines, the Scottish government has announced.

For the first time, the guidelines include referral criteria for people with non-specific but concerning symptoms such as unexplained fatigue, nausea or weight loss – helping ensure more patients can be assessed earlier, even when their symptoms don’t point clearly to a single type of cancer.

The updated Scottish Referral Guidelines (SRGs) for Suspected Cancer provide primary care clinicians with the most up-to-date, evidence-based guidance to help identify patients with signs and symptoms suspicious of cancer who require urgent referral for specialist assessment.

Visiting the Forth Valley Royal Hospital’s recently opened Rapid Cancer Diagnostic Service (RCDS), Health Secretary Neil Gray said: “We are treating more cancer patients now than ever before, and these guidelines are a vital tool in helping GPs and primary care teams identify symptoms that may indicate cancer and make swift referrals to specialist services.

“For the first time, we now have nationally agreed guidance to support clinicians in referring patients with non-specific symptoms, which is a significant step forward in our mission to detect cancer earlier.

“I’m particularly pleased to mark this milestone at NHS Forth Valley, where Scotland’s newest Rapid Cancer Diagnostic Service is already delivering faster answers for patients. This is a clear example of our ongoing commitment to ensuring the right person is on the right pathway at the right time.”

Dr Phil Hodkinson, Co-Clinical Lead of the Centre for Sustainable Delivery’s Cancer Improvement and Earlier Diagnosis Team and Chair of the SRG Review, said: “The clinical review of the Scottish Referral Guidelines (SRG) for Suspected Cancer was a collective effort from the clinical community across NHS Scotland.

“We all want to find cancer as early as possible for our patients when it’s easier to treat and even cure. These guidelines, based on latest available evidence, will help support these endeavours by ensuring the right patient is put on the right pathway at the right time.”

Cancer Research UK’s head of strategic evidence, Samantha Harrison, said: “We put people affected by cancer at the heart of everything we do so welcomed the opportunity to support this key part of the Cancer Action plan for Scotland.

“By reviewing and sharing insights, we’ve helped ensure health care professionals have the evidence they need to spot cancer earlier and refer patients quickly. Early diagnosis of cancer is vital. The earlier a cancer is diagnosed, the more options there are for treating it, and the better people’s outcomes are likely to be.”

The review of the guidelines was led by the Centre for Sustainable Delivery (CfSD), in partnership with Healthcare Improvement Scotland and Cancer Research UK. It involved extensive clinical engagement and a detailed assessment of the latest international evidence and Scottish cancer data.

The updated SRGs are now available to all healthcare professionals and supported by educational materials, with the aim of ensuring consistent use across the country.

MMR vaccination clinic at Pennywell All Care Centre tomorrow

THURSDAY 7th AUGUST 10am – 3pm

Has your child missed an MMR vaccine? Our vaccination team will be at Pennywell All Care Centre on tomorrow (Thursday 7 August).

For more information check:

http://nhslothian.scot/vaccinations

or call the vaccination enquiries helpline on 0300 7906 296

Free children’s book launched for families living with multiple sclerosis

Edinburgh parents helped develop the book, which supports adults to discuss MS with their children

A free children’s book aimed at supporting families to discuss multiple sclerosis (MS) has been launched by the UK’s leading charity for people affected by the condition.

The MS Society’s ‘What is MS to me?’ book features Tingo, a nerve cell, who helps young children understand MS with kindness, curiosity, and play.

The national charity created the book alongside a group of people living with MS and healthcare professionals including Dr Alison Thomson from Queen Mary University of London. Playful illustrations are provided by Margie Sturton.

There are around 150,000 people living with MS in the UK, more than 17,000 of whom live in Scotland, and 135 people are diagnosed each week. Many of these will have children or go on to have children in the future.

The MS Society found that outside of medical outreach programmes like Digesting Science, there’s was little available for children in the UK to help them understand and accept an MS diagnosis in their family.

Tingo guides readers through what they know about MS and encourages them to ask questions and make notes and drawings. A limited-edition Tingo toy was given away with some of the first books sold after its launch on Monday 28 July. The Tingo soft toy is a safe haven for children to return to during conversations about MS. Readers can pick Tingo up and keep them close for comfort and reassurance.

Robert Oldham, 45, from Greenbank, Edinburgh, was diagnosed with MS in 2005. He was part of the group of people who helped create ‘What is MS to me?’

Robert says: “As the father of three kids I know how important it is to explain MS to children in a simple, non-scary way so that is why I wanted to help create something that fitted this.

“I’ve had MS for 20 years and our eldest is 15, so all the children have grown up knowing that daddy has MS, but that’s just a badge. They don’t necessarily understand what that means. They know that I get tired, and can’t walk that far so being kids, they just accept that.

“The book has been great for my youngest who’s nine. We read it together and then I ask her if she has any questions she wants to ask. She loves to read and found the book engaging and helpful.”

Sian McSorley, 57, from Corstorphine, Edinburgh, was also involved in the production of the new book. She was diagnosed with MS in 2017 and her symptoms include fatigue, pain and cognition issues.

She says: “From my own experience I wasn’t sure how to explain MS to my daughter without frightening the life out of her. I couldn’t find anything that could help me with that.

“Being part of the group was a great opportunity to get Cara-Maria involved too. She was able to help with the information and designs, and it really helped to normalise MS for her a little.

“We talk about MS quite top level, that it’s something that makes me tired and she accepts that. But this book will be great to explain what else can happen in MS. It’s great that we can also share this resource with other people.”

The MS Society is the UK’s leading charity for people affected by MS. For 70 years it has been at the forefront of support, research, and campaigning to improve the lives of people with MS. 

Gavin Atkins, Executive Director of Services and Support at MS Society, says: “We worked with an amazing group of people living with MS to create this book. We found that there was a need for families experiencing MS to have something tactile to help explain and explore the condition.

“Most people are diagnosed with MS in their 30s or 40s and many of those will already have children or be thinking about starting a family.

“We’re proud to have created this free resource to help adults have what can be difficult conversations with the children in their life. We hope this book and Tingo will be something families can come back to time and again to learn more about MS and make it easier to talk about.”

You can order your free copy of ‘What is MS to me?’ at :

www.mssociety.org.uk/tingo