This May we celebrate Deaf Awareness Week (6-12 May).
Did you know that nine out of ten deaf children are born to hearing parents? A great many parents tell us they knew very little or even nothing at all about deafness before they had a deaf child.
So it’s hardly surprising that many such parents find themselves feeling confused, unprepared and worried about what the future might hold.
The National Deaf Children’s Society is here to help you give your deaf child the very best start in life. With the right support, there’s absolutely no reason why they shouldn’t grow up confident, happy and fulfilled.
We’re here for you. We can provide support for all of you who are new to the journey, through our extensive resources – from our Helpline, 0808 800 8880, and our wealth of expertise, right through to the friendship and reassurance of our fantastic community.
The Scottish Government has responded to the report and recommendations of the Independent Review of audiology in Scotland, established following the NHS Lothian audiology scandal.
In response to a parliamentary question from Evelyn Tweed, MSP, the Scottish Government has committed to accept all of the recommendations of the review in principle, and to now establish a National Implementation Group to examine how best to implement the recommendations.
The Scottish Government response also stated that “this Implementation Group will be formed with partners from the third sector, as well as the health service, which will allow us to ensure the voices of those with lived experience are front and centre as changes are made.”
The National Deaf Children’s Society has welcomed the Scottish Government’s commitment to accept all of the recommendations, and looks forward to working with Government to ensure the recommendations are swiftly and effectively delivered.
Mark Ballard, Head of Policy and Influencing for Scotland at the National Deaf Children’s Society, said: “Deaf children and their families will welcome the publication of the Scottish Government response to the Independent Review of Audiology. The review identified multiple, systemic problems within audiology services in NHS Scotland.
“We have called for the Scottish Government to grasp this opportunity for transformative change to make sure audiology is safe and fit for purpose. Parents will be relieved that the Scottish Government has committed to accept all of the review’s recommendations in principle – although we all recognise there is much work to be done to deliver on them.
“The independent review raised significant concerns about how well the results of the specialist tests carried out on children where hearing loss is suspected were being assessed. Issues with the assessment of the results of these tests, known as Auditory Brainstem Response (ABR) tests, were identified in every Scottish health board area. So, we’re delighted the Scottish Government has committed to act on the various recommendations made in the review to improve ABR testing.
“However, these concerns were flagged to the Scottish government eight months ago, so it is absolutely vital that we act at pace to deliver these recommendations.
“One of the key findings in the report was that there has been a long term lack of investment and prioritisation of audiology services in Scotland. In order to achieve the shared ambition of making sure audiology services are safe and fit for purpose, appropriate funding will need to be found as part of implementation.
“It is therefore great that the Scottish Government has committed to ensuring that the voices of those with lived experience are front and centre of the new National Implementation Group.
“While we welcome this commitment to implement the recommendations of the review, the we look to the Scottish Government to provide more detail and expand on their current commitments, so that deaf children and their families can be sure that will be no repeat of the NHS Lothian scandal.
“We’ll continue to campaign tirelessly until we’re satisfied plans are in place to ensure hearing services across the country are fully staffed and operating at a consistent quality, with monitoring and data collection in place – all of which are crucial if we’re to fix a broken system.
“We know deaf children can achieve anything that hearing children can when they get the right support, but for this to happen their deafness must be identified at the earliest opportunity. This is why it is vitally important that children always receive high-quality and effective testing and long-term support.”
Edinburgh boy Alasdair MacDonald, 10, achieved his ambition of climbing 100 Munros before his 11th birthday for the National Deaf Children’s Society.
He scaled the final two, the twin peaks of Mayar and Driesh in the Cairngorms, on Saturday 23 September, accompanied by around 20 friends and family, meaning he’s climbed 50 Munros this year alone.
He set himself the challenge out of love for his little sister Heather, 8, who was born deaf, and to raise funds for the charity, who supported Heather and the family.
Ally’s family marked the occasion with a celebration on the summit of Driesh, followed by a party at their home to say thank you for all the support they’d received.
He’s smashed his target of £500, with £1,530 raised so far for the National Deaf Children’s Society, which supports the UK’s 50,000 deaf children.
Ally lives with Heather and their parents Sara and Ranald in Edinburgh.
Ally said:“It was an amazing feeling to complete the challenge and to get to the top of my 100th Munro. We had a lovely day on Saturday and I was very happy that so many of my friends could join me on the final walk.
“I never thought we’d raise as much money as we have for the National Deaf Children’s Society and I’d like to say a huge thank you to everyone who came and supported me.”
Sara, Ally’s mum, added:“We were so proud when Alasdair completed his 100th Munro on Saturday at Glen Clova with 20 of his friends and family. We were really lucky and the sun was shining as we set off.
“All the kids and adults were fantastic supporters throughout the day and it was a really emotional end to the challenge.
“When we got back home we treated everyone to pizza and drinks, to say thanks for the overwhelming support they gave Ally.”
Melissa Jones,who supports fundraisers for the National Deaf Children’s Society, said:“I want to say a huge thank you to Ally for taking on this brilliant challenge for us. 100 Munros, with the final 50 this year alone, and all before your 11th birthday, is a truly towering achievement. We’re so proud of you.
“The National Deaf Children’s Society is dedicated to supporting the UK’s 50,000 deaf children and their families. The efforts of fantastic fundraisers like Ally will help us to keep on doing our vital work, now and into the future.”
There are over 3,300 deaf children in Scotland, with around 200 in Edinburgh.
Those wishing to make a donation can still do so by visiting:
Recommendations to improve audiology services have been made to the Scottish Government, Health Boards and third sector partners.
An Independent Review of Audiology Services in Scotland sets out 55 recommendations for improving governance and structure, education and leadership.
Professor Jacqueline Taylor MBE conducted the review for Ministers following failures identified in audiology treatment for children.
Public Health Minister Jenni Minto said: “I would like to thank Professor Taylor and her team this thorough report that sets out clear options for improving audiology care across the country.
“We must recognise that many families were badly let down by these services in the past and this report’s recommendations will help ensure that is not allowed to happen again.
“The report is clear in its call for better leadership, structure and governance at all levels. Some of the recommendations are in areas where we are already taking action, such as increased funding for staff training.
“What is abundantly clear in their findings is that good audiology care can be life changing, and patients recognise and value the expertise and compassion of staff. We will fully consider the findings and set out the next steps to Parliament in the coming months.”
Professor Taylor said: “The wide-ranging recommendations in this report provide the foundation for improvements which will ensure high-quality, joined-up, patient-centred services.
“Audiology staff are working incredibly hard, often in challenging circumstances and during the course of the Review process we have seen many examples of good practice.
“We have also identified a range of issues which need to be resolved. I am extremely grateful to the patients, parents, audiology staff and stakeholders who helped to shape this Review. We have listened carefully, and I believe that by working together, we have a real opportunity to develop excellent services across Scotland.
“The Review Report is not an end in itself: it is the first step in a process of change which will require time, resources and national leadership to deliver. We hope that the Scottish Government will respond positively to the recommendations and will ensure that the words in this report, are turned into actions.”
Following the publication of the final report and recommendations of the Independent Review of Audiology Services in Scotland, Mark Ballard, Head of Policy and Influencing for Scotland at the National Deaf Children’s Society, said: “This report paints a deeply concerning picture of the state of audiology in Scotland.
“Parents who rely on audiology services for their children will be shocked to learn there has been an absence of national leadership, strategic planning and workforce planning at audiology departments across Scotland and that there has been no quality assurance of services in recent years.”
The most urgent recommendations in the review are around the quality of auditory brainstem response (ABR) testing, which is carried out to identify deafness in very young children.
Mr Ballard said: “It is alarming that issues were identified in the quality of ABR testing at every single health board across Scotland.
“We know deaf children can achieve anything that hearing children can when they get the right support, but for this to happen their deafness must be identified at the earliest opportunity. This is why it is vitally important that children always receive high quality and effective testing and long-term support.
“Parents need reassurance that issues with the quality of services will be swiftly addressed. This report was commissioned after significant failures were uncovered at NHS Lothian involving more than 150 children over nine years. Some of those children experienced life-changing consequences, because their deafness was identified too late for them to get the surgery or communication support they needed. There must be no more similar failures.”
The report also found there is a lack of consistent data collection, meaning it is difficult to monitor quality and compare how health boards in Scotland are performing. This makes it impossible to know if other deaf children are being failed in the same way as those in Lothian.
Mr Ballard continued: “Parents told the review about the difference a good audiologist can make and it is clear from this report we need to make sure they always have the resources, training and leadership required to deliver effective support.
“It is now crystal clear to the Scottish Government and NHS health boards what they must do to make sure every child gets the testing and support they need,” Mr Ballard added.
Did your readers know that deaf children often fall behind in their development, because they’re not getting the right support in their early years? It’s an especially critical time for deaf children, because of the impact their deafness can have on language development, communication and social skills.
Without good communication skills learned early on, a deaf child could face lifelong challenges. For instance, when they start school they may come up against many barriers, like struggling to understand instructions in the classroom and conversations with their peers, all leading to feelings of isolation and a sense of ‘missing out’.
To make matters worse, Teachers of the Deaf, who provide specialist support and make such a difference to a deaf child’s life, are in decline in Scotland. Their numbers have fallen by 40% in a decade – twice that of other parts of the UK. It’s a scandal.
Here at the National Deaf Children’s Society, we’re determined to do something about it. That’s why we’ve just launched our new five-year plan, Every Moment Counts, which calls for more support, more quickly, for deaf children during those vital early years. We won’t rest until every deaf child receives the right support as early as possible.
For more information about Every Moment counts, visit:
The National Deaf Children’s Society supports the UK’s 50,000 deaf children and young people. For anyone needing advice, support or information about deafness, please call our free Helpline on 0808 800 8880 or visit our website, www.ndcs.org.uk
Debbie Talbot,
Chief Strategy Officer, the National Deaf Children’s Society
The National Deaf Children’s Society has backed calls in the Scottish Parliament for more support for deaf children affected by the NHS Lothian audiology scandal.
A motion proposed by Jeremy Balfour, Conservative MSP for Lothians, on the current lack of support, has received cross party backing and will be debated in Parliament tomorrow (Thursday 8th June).
The debate follows a roundtable which Mr Balfour organised with families whose children were affected by the scandal earlier in the year.
The motion highlights that the failure of NHS Lothian to identify children’s deafness early will mean some children permanently miss out on opportunities to develop language and communication.
An independent report published in 2021, found that NHS Lothian was identifying children’s deafness when they were on average 4.5 years old, while the average age of identification as deaf in England was three months. The report was commissioned after the National Deaf Children’s Society raised concerns about the quality of children’s audiology at NHS Lothian.
Mark Ballard, Head of Policy for Scotland for the National Deaf Children’s Society, welcomed the debate saying: “It’s vital that NHS Lothian and local authorities work together to ensure every child affected by the failings of NHS Lothian’s paediatric audiology service get the support that they need to thrive.
“We must not fail these children twice – first by failing to identify their deafness and then by failing to give them the support they need, especially as their needs may be more complex due to late identification.”
The National Deaf Children’s Society is calling for a specialist resource provision to be set up within a school in Lothian and the Borders, similar to those in Glasgow, Falkirk and Dundee.
The charity wants NHS Lothian and local authorities to work together on an individual plan for support for every deaf child involved.
The National Deaf Children’s Society also calls for the recruitment of additional specialist staff to address the more complex language and communications needs of children whose deafness was missed in the early years, who may struggle to catch up with their hearing classmates.
The National Deaf Children’s Society has launched a new five-year strategy, Every Moment Counts, which aims to ensure all deaf children across Scotland receive the support they need during their early years (0-5), or as soon as their deafness is identified.
The charity is shifting the focus of its campaigning to early years as it strongly believes that families need first class support during this crucial period, so they feel empowered to make informed decisions and champion their deaf child.
For all children the early years is a crucial time, but the National Deaf Children’s Society says this is even more so for deaf children, given the impact deafness can have on language development, communication, and social skills.
Missed opportunities to spot deafness and provide the support deaf children need can lead to lifelong impacts, according to the charity.
It says a deaf child without good language and communication development in the early years, be it spoken, sign, or a mixture of both, can experience ongoing challenges. They may struggle to listen and follow instructions in the classroom, or miss conversations with their peers, leading to feelings of isolation and a sense of ‘missing out’.
Kirsten Abioye’s son was not diagnosed as deaf until he was almost three due to failures at their local heath board’s paediatric audiology service.
Kirsten said: “Our experience of early years was really hard. The audiology department was unhelpful and dismissed me as an anxious mum. We experienced delays and a general lack of communication which left us in a difficult position. We knew something was going on with our son but did not know how to support him. His diagnosis brought overwhelming relief.”
Teachers of the Deaf can help bridge this gap, by providing specialist support to deaf children of all ages once their deafness is identified. They play a vital role in deaf children’s lives, particularly during the critical early years – helping to reduce their chances of them falling behind developmentally, socially and educationally.
But a report published by the Consortium for Research into Deaf Education (CRIDE), shows Teachers of the Deaf numbers across Scotland have fallen by 40% in a decade and almost half (45%) are due to retire in the next 10 years. The fall in numbers is twice that of other parts of the UK.
This means thousands of deaf children across Scotland are not getting the support they need in school. Deaf young people in Scotland are already twice as likely as their hearing classmates to leave school with no qualifications and half as likely to go on to university.
Against this backdrop it comes as no surprise that some parents of deaf children in Scotland are concerned that their deaf child does not have enough support from health and education services. Having access to information and advice is crucial in helping families make tricky decisions about how their child will communicate, which technology they’ll use and what type of school they’ll attend.
Kirsten describes her family’s Teacher of the Deaf as an “advocate, support system, teacher, encourager, source of information – all in one woman!”
She said: “Her support has been a lifeline, and she works closely with our son’s nursery who also provide excellent support.”
But even with a great Teacher of the Deaf and nursery, Kirsten’s family still struggled, as the specialist support their family urgently required was simply not available to them.
Kirsten continued: “It was a very isolating, stressful time because we just wanted to be able to support our child. I contacted the National Deaf Children’s Society and had a chat with a member of staff, who was really understanding. She listened and understood my panic that we had missed the opportunity for language learning and were really behind.
“She helped me fill in an application for a family learning course, funded and run by the charity, which kick started our British Sign Language (BSL) learning. She’s been with us through various different parts of life since, most recently our difficulty finding accessible swimming lessons.”
The National Deaf Children’s Society warns that unless action is taken urgently things will only get worse. It is calling on local authorities across Scotland to commit to returning qualified Teacher of the Deaf numbers to 2011 levels over the next decade.
At their annual congress in May, The Scottish Secondary Teachers Association (SSTA), Scotland’s second largest teaching union, unanimously agreed a motion backing the charity’s call on the Scottish Government to address the dramatic drop in the number of qualified Teachers of the Deaf, as “matter of urgency”.
The charity also calls on the Scottish Government to develop and deliver a Scotland-wide workforce strategy for Teachers of the Deaf, and to ensure they are properly paid for the extra responsibilities they take on, in recognition that their specialist expertise is valued.
Mark Ballard, Head of Policy and Influencing for Scotland with the National Deaf Children’s Society, said: “Deaf children are just as capable as their peers when they have right support in place, ideally from the very beginning. But many families in Scotland are struggling to access this support.
“It means that deaf children just aren’t being given the opportunity to thrive in those crucial formative years. Once they fall behind, it can be incredibly hard to catch up and this can have a lasting impact that affects them throughout their lives.
“Every moment counts, from the time a child’s deafness is identified, to their first day at school and beyond. We owe it to deaf children to give them the best start in life.”
For more information about Every Moment counts, visit:
The first week in May is Deaf Awareness Week, when we celebrate Deaf culture and raise awareness about what we can do to make society more deaf-friendly.
Did your readers know that a GCSE in British Sign Language (BSL) is being developed, so young people can learn it in school? Here at the National Deaf Children’s Society we’re working hard to make that happen as soon as possible – we expect students to be able to study it from 2025.
BSL is a fantastic language and great fun to learn, but there are many other ways you can become more deaf-aware too. Here are just a few really simple deaf awareness tips that anyone can do anywhere right now (there are more on our website):
1. Speak clearly and naturally, it makes lip-reading much easier
2. Don’t cover your mouth or turn away and make sure your face is fully visible, and avoid eating or chewing. All these things can make understanding very difficult
3. Be visual. Try pointing, using gesture, writing things down or typing on your phone – there are even apps now
4. Never give up and say “It doesn’t matter” – because it does!
The National Deaf Children’s Society supports the UK’s 50,000 deaf children and young people. For anyone needing advice, support or information about deafness, please call our free Helpline on 0808 800 8880 or visit our website, www.ndcs.org.uk
The National Deaf Children’s Society is delighted the Scottish Labour Party yesterday unanimously passed a motion pledging crucial support to deaf children during their early years.
If deafness is not identified early enough, deaf children may miss out on vital early language development, the opportunity to learn British Sign Language (BSL) from a young age or the chance to have a hearing aid or implant fitted. This can have a lifelong impact on the ability of deaf children to communicate.
The National Deaf Children’s Society wants to ensure no deaf child in Scotland waits more than six weeks from referral to audiology to getting a hearing test, as set out in the current Scottish Quality standards for Paediatric Audiology. However, in some parts of Scotland the average wait time can be a year.
Welcoming the support of the Scottish Labour Party, Mark Ballard, the National Deaf Children’s Society’s Head of Policy and Influencing for Scotland, said: “If we fail to get paediatric audiology services right for deaf children when deafness is first identified we then risk failing deaf children for life.
“Because of the delays some families face, we can end up with the shocking scenario where children who might have benefited from using hearing aids from the very earliest years miss out simply because of delays in testing and treatment.
“Unfortunately, opportunities to learn language in this vital period of development once missed cannot be reversed.”
Scottish Labour councillor Ben Smith (Paisley Northwest, Renfrewshire), who put forward the motion, said: “We were all shocked learn how deaf children were failed by audiology services at NHS Lothian.
“This cannot be allowed to happen again. Waiting times for deaf children to access audiology testing and treatment are still too long. Early support is crucial to help deaf children thrive.
“Scottish Labour is proud to support deaf children and young people in Scotland.”
Mr Ballard added: “Every deaf child should get the high-quality support they need from the earliest years. We need robust quality assurance mechanism to make sure there can be no more scandals like NHS Lothian.
“With the right support deaf children can get best opportunities to develop language skills and should be able to make informed choices around hearing aids, implants and learning BSL.”
Teachers of the Deaf numbers in Scotland have fallen by 40% in a decade The fall in numbers is twice that of other parts of the UK
Almost half (45%) are due to retire in the next 10 years
Deaf young people in Scotland are twice as likely as their hearing classmates to leave school with no qualifications and half as likely to go on to university
Thousands of deaf children across Scotland are not getting the support they need in school after a 40% fall in the number of specialist support teachers for deaf children over the last decade, the National Deaf Children’s Society is warning.
A new report published by the Consortium for Research into Deaf Education (CRIDE), also shows that Teachers of the Deaf numbers in Scotland have fallen at twice the rate compared to other parts of the UK. In addition, around 45% of Teachers of the Deaf in Scotland plan to retire over the next 10 years – so unless action is taken urgently things will only get worse.
Teachers of the Deaf play a vital role in supporting the language and communication development of deaf children. They give advice to families of newly identified deaf children, visit deaf children at school or college – to give them any extra help they need – and provide guidance to mainstream teachers and schools on deaf awareness and inclusion.
However, as the number of fully qualified Teachers of the Deaf in Scotland has fallen, increasing numbers of deaf children are missing out on this support.
Families of deaf children have told the National Deaf Children’s Society that in some areas their local Teachers of the Deaf have too big a caseload to work with deaf learners on a one-to-one basis.
The charity is calling on local authorities across Scotland to commit to returning qualified Teacher of the Deaf numbers to 2011 levels over the next decade.
The National Deaf Children’s Society also wants the Scottish Government to develop and deliver a Scotland-wide workforce strategy for Teachers of the Deaf, and to ensure they are properly paid for the extra responsibilities they take on, in recognition that their specialist expertise is valued.
Such a workforce strategy will involve fully funded places being available for teachers wanting to study for the mandatory qualifications, so a new generation of Teachers of the Deaf can be trained to replace those who are leaving.
Without this, the charity warns deaf children will continue to fall behind and the gap between them and their hearing classmates’ risks becoming wider.
Gemma, from Fife, whose 13-year-old daughter Megan is deaf, described her Teacher of the Deaf asan “absolute necessity” who quickly solves any issues.
She said: “We are a hearing family and although my daughter’s hearing needs are not as big as other young people’s, the Teacher of the Deaf has helped validate my daughter’s past experiences, educate myself on my daughter’s needs and empower her to be confident in the school.”
Mark Ballard, Head of Policy and Influencing for Scotland with the National Deaf Children’s Society, said: “Every deaf child in Scotland should, as a fundamental right, be able to get the support they need from a fully qualified Teacher of the Deaf to help them reach their full potential. We are very concerned that these new figures show a 40% fall in the numbers of qualified Teachers of the Deaf in Scotland, twice the decline in other parts of the UK.
“With the right support in place, deaf children can achieve anything their peers can, but sadly, this simply isn’t happening. The latest Scottish Government statistics show they’re twice as likely to leave school with no qualifications and half as likely to go to university.
“That’s why we want to see a commitment from local authorities and the Scottish Government to work together to return the number of fully qualified Teachers of the Deaf employed across Scotland to the 2011 level, over the next ten years.”
Mr Ballard pointed out that a lack of funding means many teachers in Scotland who want to become a qualified Teacher of the Deaf must often cover the costs themselves.
He added: “There are great courses available to give teachers the extra skills and knowledge they need to become qualified Teachers of the Deaf, but we must make sure the funding and incentives are in place to support teachers to undertake the training.”
