SCONe project to revolutionise AMD research

The SCONe project, run by optometrists, ophthalmologists, and researchers from the University of Edinburgh, and funded by Sight Scotland, is appealing for participants to take part in a Patient and Public Involvement (PPI) group focused on revolutionising the detection and management of Age-Related Macular Degeneration (AMD).​

AMD is the most common vision impairment in the older population and impacts an estimated 60,000 people in Scotland. SCONe research is seeking to find the early signs of AMD, so people can receive support earlier and adjust to living with AMD sooner.

SCONe is inviting anybody with lived experience of AMD, caregivers, friends or family of people with AMD, and regular visitors to optometry practices, to come along to take part in its PPI group.

Participants could help transform how AMD is detected and make a real difference for future generations.​

SCONe, the Scottish Collaborative Optometry-Ophthalmology Network e-research, is a new collaborative venture aiming to build a Scotland-wide retinal image resource for innovation in eye research, healthcare, and education.

SCONe is taking two complementary approaches to try and speed up the detection of AMD at an early stage. Firstly, the team is meticulously analysing the SCONe dataset to extract crucial structural information about the retina.

This involves quantifying various parameters, including the total area of drusen, fatty deposits beneath the retina that can sometimes indicate an elevated risk of AMD.​

Furthermore, the team is harnessing the power of modern machine learning and artificial intelligence (AI) to develop a groundbreaking predictive model.

Unlike traditional methods that rely on manual measurements, this AI-driven approach uses raw retinal images to assess a patient’s risk of developing AMD. By automating the analysis process, this model promises to streamline screening procedures and facilitate early intervention.​

Professor Baljean Dhillon, Professor of Clinical Ophthalmology, Centre for Clinical Brain Sciences, The University of Edinburgh, explains: “The PPI group offers a unique opportunity for participants to contribute directly to the development of new strategies and technologies aimed at combating AMD.

“Our research represents a significant step forward in the fight against AMD. By combining cutting-edge technology with comprehensive data analysis, we aim to transform how we detect and manage this debilitating condition.”​

Craig Spalding, Chief Executive of Sight Scotland, and Sight Scotland Veterans, adds: “”As advocates for the visually impaired, we understand the profound impact that AMD can have on individuals and their families.

“By investing in research focused on early detection, we aim to empower healthcare professionals with the tools and knowledge needed to intervene swiftly so hopefully less people have to suffer.”​

SCONe’s Patient and Public Involvement group focused on AMD and the impacts of AMD is taking place on 03 May 2024 at Surgeons Hall in Edinburgh.

For more information or to register to join please contact arubio@ed.ac.uk or call 07876647083. Participants in the group will be compensated for their time.​

SCONe is funded by Sight Scotland, RS MacDonald Trust and the Royal College of Surgeons Edinburgh.​

For more information on SCONe please visit: https://www.ed.ac.uk/clinical-sciences/ophthalmology/scone

For more information on Sight Scotland please visit: sightscotland.org.uk

Patients with glaucoma in Edinburgh to access care in the community

PEOPLE living with glaucoma in Edinburgh will soon be able to access support within the community rather than travel to hospital, thanks to a ‘revolutionary’ NHS healthcare policy.

NHS Scotland’s Community Glaucoma Service, which was piloted in Glasgow last year, will soon be rolled out in the capital after a city-centre optician was selected to deliver the scheme.

Michael O’Kane, clinical director of Specsavers in Cameron Toll and Morningside, is one of a handful of opticians across the country who has successfully completed an SQA qualification in Glaucoma Management.

The certificate will allow him to treat people with lower risk glaucoma or treated ocular hypertension in his practices in the city, rather than in hospital as soon as NHS Lothian rolls out the scheme.

It’s hoped the initiative will help alleviate pressure on NHS services in the long-term.

Michael says: ‘After 300 hours of training, clinical placements and studying, I’m delighted to have gained this qualification which will allow me to deliver this revolutionary eyecare service to patients in our community.

‘This qualification means I’ll be able to manage patient’s medications and continue to provide hospital-level care to people in Morningside, Cameron Toll and beyond.

‘This scheme will be of huge benefit to hundreds – if not thousands – of people right across Edinburgh, giving them faster and easier access to treatments and check-ups. I’m delighted to be a part of that.’

The flagship healthcare policy is expected to support around 20,000 patients across Scotland as it is rolled out over the next year.

Speaking at the time of its launch, public health minister, Jenni Minto, said: ‘Scotland is regarded as a world leader in community eye care service provision.

‘We are the only country in the UK to provide free universal NHS-funded eye examinations, and our investment in community optometry services has helped reduce the burden on GPs and secondary care services.’

Michael’s qualification follows the recent relocation of his Morningside practice to 85 Morningside Road.

The new store has seen investment in the region of £750,000 and includes seven new testing rooms, including a fully wheelchair-accessible test room and diagnostics area, and two Optical Coherence Tomography (OCT) machines, which allows optometrists to take a 3D image of the back of the eye to help spot serious eye conditions – including glaucoma – up to four years earlier.

The store also features two digital slit lamps and a host of state-of-the-art technology which allows opticians to identify the type of glaucoma a patient is living with.

Michael adds: ‘Timely diagnosis and treatment are essential and so our increased testing capacity and state-of-the-art diagnostic machines will allow our expert team to quickly identify any problems that may be detected.’

Specsavers Morningside, located at 85 Morningside Road, is open from 9am – 6:30pm Monday to Thursday, 9am – 6pm Friday and Saturday and 10am – 6pm every Sunday.

To book an appointment, call the store directly on 0131 446 9960 or visit: 

www.specsavers.co.uk/stores/morningside.

Specsavers Cameron toll, located within Cameron Toll Shopping Centre, is open from 9am – 6pm every Monday to Wednesday and Friday to Saturday, 9am – 6:30pm every Thursday and 10am – 6pm every Sunday.

To book an appointment, call the store directly on 0131 672 9210 or visit: 

www.specsavers.co.uk/stores/camerontoll

Tens of thousands of Scots wait more than four months for vital eye care, campaign group tells MSPs

  • Approximately 29,000 people wait more than 16 weeks for eye care services in Scotland after initial referral1
  • The situation has worsened following dramatic falls in outpatient activity during the COVID-19 pandemic2
  • National partnership, The Eyes Have It, call on Scottish government to prioritise eye care services as part of NHS post-COVID recovery plans

Nearly 30,000 patients are waiting more than 16 weeks on NHS waiting lists for specialist ophthalmology treatment in Scotland, Members of the Scottish Parliament have been told during a reception at Holyrood.

And, according to NHS figures, these patients make up more than 50% of the entire ophthalmology waiting list.

Scottish parliamentarians from across the political spectrum who attended the event in the Scottish Parliament on 1st June learnt about the challenges patients with deteriorating eye health face in Scotland. The event was sponsored by Stuart McMillan MSP and hosted by the The Eyes Have It (TEHI) partnership with Sight Scotland.

Sight loss, the complete or partial loss of vision not correctable by usual means such as glasses, affects 200,000 people in Scotland3, more than the number affected by dementia4. Ophthalmology is now the third busiest outpatient specialty in the Scottish NHS and accounts for 10% of new outpatient appointments in Scotland2.

Cathy Yelf, CEO of the Macular Society, speaking on behalf of TEHI, which is made up of The Royal College of Ophthalmologists, the Macular Society, Fight for Sight, the Association of Optometrists and Roche Products Ltd, said: “Capacity shortages can have very serious implications for patients, with delayed follow up (both at the time of diagnosis and during ongoing care) found to be a factor in sight loss.

“The progressive nature of conditions such as wet age-related macular degeneration means that delays to treatment can result in poorer outcomes for patients with sight loss.”

Craig Spalding, CEO of Sight Scotland, one of Scotland’s oldest charities, said: “Eye conditions are estimated to cost the Scottish economy £2bn annually3, and despite the introduction, in 2006, of free primary eye exams in Scotland and strategies to identify priority areas for action to improve eye care services, Scotland continues to face challenges.

“The situation has worsened due to the Covid-19 pandemic which led to a dramatic fall in outpatient activity, but there is now an opportunity to improve efficiency, effectiveness and patient experience as the healthcare system looks towards COVID-19 recovery. Reducing waiting lists must be a key priority.”

Stuart McMillan MSP, Convenor of the Cross-Party Group in the Scottish Parliament on Visual Impairment, said: “Sight loss can have a devastating effect on a person’s quality of life and emotional well-being.

“The implementation of free primary care eye examinations by the Scottish Government in 2006 helped to reduce pressures on secondary care but the Covid-19 pandemic has created new challenges meaning there is still more to do to improve patient access and expand capacity.

“It has been a pleasure to host this event with The Eyes Have It partnership to raise awareness of this important issue”

The Eyes Have It partnership, with Sight Scotland, has drawn up a series of recommendations calling on the Scottish government to prioritise eye health within NHS service recovery.

Children across the UK are missing eye tests, charity warns

Those in low-income countries most at risk of sight loss

New findings released today reveal the impact of the pandemic on children’s eyesight in Scotland and Britain.

Seven in 10 adults in Britain are not aware that children should have an eye test at 4-5 years of age, as recommended by the NHS. In Scotland, two in three (66 per cent) of adults are unaware of this.

With children going back to school and spending more time on digital devices than ever before, the international eye care charity, Orbis is urging parents to book eye tests for their children as soon as possible.

The YouGov poll of 2,025 adults across Britain, 373 of them parents with children under 18 years of age, was commissioned by Orbis UK – the international eye health charity. Over half (54%) of parents in Britain admit they have not attempted to book an appointment for their children since the pandemic, while almost a quarter of parents (24%) are not sure if their child’s eyesight has got worse in this time.

The poll marks the two-year anniversary of its See My Future UK Aid Match appeal which works to fight avoidable blindness amongst children in Nepal.

While the findings reveal a need for action on eye health in Great Britain, the situation is especially stark for those living in parts of the world where there is little access to eye healthcare.

Globally 1.1 billion people experience vision loss and 90% of it is avoidable. Most of these people live in low-to-middle income countries such as Nepal, where avoidable vision loss means children are dropping out of school – either because their own eye health is poor, or to care for a blind or visually impaired family member.

The Orbis REACH (Refractive Error Among Children) initiative, partially funded by the UK government through UK Aid Match, works in the remote areas of Parsa and Siraha in Southeast Nepal.

Eye health workers screen and treat children with vision loss, enabling them to continue to attend school and look forward to a brighter future.

Children like 12-year-old Sneha* who struggled to read the blackboard and resorted to copying her friends’ notes so she could keep up in class. Orbis supported her with a screening including an eye test and glasses. She can now see properly and hopes to become a bank manager when she is older.

Larry Benjamin, Orbis medical volunteer and retired Consultant Ophthalmologist says: “The pandemic has been a challenge for all of us and it’s understandable parents have avoided health visits. But with so many children in Britain not seeing an optician, it is important that parents try to book eye tests for their children where possible.

“And for children living in parts of the world with little or no access to eye care, the challenges brought about by the pandemic are particularly worrying. Globally, children and adults have missed routine eye exams, and people are avoiding visits to eye health centers as they fear contracting the virus. It’s vital that Orbis reaches as many people as possible to ensure more children and families can hope for a better future.”

Rebecca Cronin, Chief Executive of Orbis UK, says: “Like NHS and high street eye-care teams, our eye health partners around the world have risen to the challenges brought about by the pandemic, delivering eye care in remote parts of the world and adhering to local guidelines to ensure patient safety.”

“But millions of people, especially children, are not getting the timely treatment they need. In many areas of the world where Orbis works, undiagnosed sight loss can have devastating consequences, plunging families into poverty.

“Even before the pandemic, the need for specialist eye doctors was already outpacing the numbers of trained experts in ophthalmic care. With 50% of people in Britain expressing concern about this, it’s clear the work of Orbis is more vital than ever and your support critical to the fight against avoidable blindness”.

The See My Future Appeal in 2019 raised almost £1.4 million pounds for the REACH project, this included over £650,000 of match funding from the UK Government. The funds have enabled over 71,639 children to have eye screenings, reached 213 schools and delivered treatments and training for eye health workers so they can identify vision issues.

With schools closed for much of 2020 the project adapted, working with local female community health volunteers to deliver house to house screenings. As a result, 1,000 more children, who do not normally attend school and would otherwise not be screened, had their eyes tested for the first time.

Orbis is now calling on its supporters to help raise money so it can help more people who are at risk of avoidable blindness. 

To find out more about Orbis and how to donate, visit www.orbis.org

Your sight could be lost if you don’t attend eye-screenings, charity warns diabetics

As the covid crisis hopefully eases, concerns are being focused on the impact of lockdown on other health conditions. With health centres forced to postpone routine screenings last year, there are fears some conditions may have worsened in the absence of early diagnosis and treatment.

During Diabetes Week this week [June 14-20th], the national sight loss charity RNIB Scotland is emphasising it is more important than ever that people with diabetes attend their regular check-up appointments, now that these have resumed.

RNIB director James Adams said: “Diabetic retinopathy, a complication of diabetes, can affect the small blood vessels at the back of the eye and is a major cause of sight loss among working-age adults. But damage to vision can be arrested if detected early enough.

“While it’s possible that diabetes won’t cause any changes to your sight, the most effective thing you can do to prevent this is to go to your retinal screening appointments and eye examinations, where safety measures are in place.”

The message is also being emphasised by NHS Scotland. Dr Mike Gavin, clinical lead for the national Scottish Diabetic Eye Screening Programme said: “We are working hard to see patients for screening, after the service was temporarily paused during the first lockdown in 2020. Patients should always attend screening whenever they are invited to prevent avoidable loss of sight.”

Each year, 5,500 patients with diabetes in Scotland need to undergo further imaging or see an NHS eye specialist for the first time due to worsening in their retinopathy.

There are 3.5 million people in the UK who have been diagnosed diabetes, and an estimated 500,000 people living with undiagnosed diabetes. Within 20 years of diagnosis, nearly all people with type 1 diabetes and almost two-thirds of people with type 2 diabetes will have developed some form of diabetic retinopathy. People with diabetes are also at increased risk of glaucoma and cataracts.

People from a South Asian or African-Caribbean background are two to four times more likely to get type 2 diabetes. They tend to develop it at a younger age which means they live with the condition for longer.

The risk of complications increases with the length of time people have the condition. It is not known why this is the case, but it is likely to be a mixture of genetics, lifestyle, and environmental factors.

RNIB Scotland is on the steering committee of a five-year study that is following 1,100 retinopathy patients from across Scotland.

The LENS (Lowering Events in Non-proliferative retinopathy in Scotland) trial is testing whether a cholesterol-lowering medicine, fenofibrate, can slow the progression of retinopathy.

LENS is being co-ordinated by the Universities of Oxford and Glasgow in partnership with Aberdeen, Dundee and Edinburgh, and with NHS Scotland’s Retinal Screening Service. More information about the trial is available at: www.ctsu.ox.ac.uk/lens.

* If you’re worried about your vision, contact RNIB’s Sight Loss Advice Service on 0303 123 9999 or visit www.rnib.org.uk/eyehealth

For more information on the NHS Scotland eye-screening service, visit  https://www.nhsinform.scot/illnesses-and-conditions/diabetes/diabetic-retinopathy.

More than 300,000 Scottish adults have never had their eyes tested

  • More than 300,000 Scottish adults have never had their eyes tested
  • More than three quarters (78 per cent) of Scottish adults say their eye health is very important to them
  • Worryingly, a fifth (19 per cent) believe no diseases can be spotted during eye exams
  • Scottish adults are willing to pay more for the most advanced technology in their eye exams
  • Survey commissioned by Dunfermline-based retinal imaging tech experts, Optos

Thousands of adults (355,840[1]) in Scotland have never had their eyes tested by an optician – potentially putting their vision at risk.

The survey of Scottish adults was commissioned by retinal imaging technology experts, Optos. It revealed that more than three quarters (78 per cent) of people in Scotland considered their eye health as very important to them. In Edinburgh, this increased to more than 80 per cent while in Glasgow, this figure dropped to 74 per cent.

Despite caring about the health of their eyes, the pandemic had prevented two-fifths (40 per cent) from attending appointments. Half (50 per cent) of those surveyed said it was because they worried about how safe it was to attend, while 24 per cent said there were no appointments available and 15 per cent were shielding or self-isolating.

Gareth Steer, VP of European Sales at Optos said: “Over the past year, we’ve all been spending more time at home and in front of screens. From working at a laptop or sitting watching TV, there are increasing concerns around eye health and a rise in cases of eye strain.

“Sight loss prevention charity, Fight for Sight, recently found that more than a third[2] of people felt their eyesight had worsened since the start of the pandemic. 

“We want people across Scotland to know that opticians using advanced retinal imaging technology are able to carry out their appointments in a safe way and will be able to identify any potential problems early, reducing the risk of eye disease and protecting eyesight.”

Encouragingly, people in Scotland do see the value in having the best eye exam possible and value expert advice. More than two thirds (64 per cent) state that they want the reassurance that potential issues are found early.

Opticians were considered the number one authority on eye health. Almost three quarters (72 per cent) said that they always follow the advice of their optician, above GPs (57 per cent), nurses (40 per cent) and pharmacists (35 per cent).

Six in 10 (63 per cent) said they would pay more for an eye exam that uses more advanced imaging technology because their eye health is so important to them.

Despite this, more than half (54 per cent) do not realise signs of diabetes are visible in a retinal eye exam, 49 per cent do not realise certain cancers can be detected, while 19 per cent don’t believe any eye diseases can be found in a retinal eye exam at all.

Gareth Steer added: “Advanced imaging technology is proven to support opticians in spotting potential vision and life-altering issues early. This includes diabetes, certain cancers, high blood pressure and detached retinas.

“A big part of this is education. We need to be more aware of the importance of eye care and attending eye appointments, even if you don’t think you have any issues. Advanced retinal imaging technology means opticians can carry out a very detailed exam quickly and from a safe distance.

“At Optos, we’re doing all we can to help raise awareness around the benefits of regular eye care examinations. The survey clearly shows that eye health is very important to people across Scotland so it’s essential we all make our vision a priority and ensure we find problems and treat them early.”

Children’s Eyesight: Can’t See Through The Looking Glass

Beloved British children’s book Alice’s Adventures in Wonderland has been re-released with entirely BLURRED text and illustrations to highlight the importance of children’s eyesight

  • The College of Optometrists has re-released one of the best known and most popular works of English literature fiction – Alice’s Adventures in Wonderland – with entirely blurred text and illustrations
  • The Blurred Edition has been commissioned as part of a public awareness campaign, after research1 revealed that up to 23% of parents don’t take their children to get their eyes tested
  • The out of focus novel can be downloaded from College-optometrists.org/Alice

The classic 1865 novel by Lewis Carroll has been re-released by The College of Optometrists in entirely blurred text, to raise awareness of the importance of children’s eye health.

The new release named ‘Alice’s Adventures in Wonderland: The Blurred Edition’ has been launched after new research reveals that up to a fifth (23%) of parents have never taken their children to get their eyes tested.

Every single word of Carrolls’ classic, including the original illustrations by John Tenniel are out of focus in this newly released blurred edition.

As Alice herself thinks: “what is the use of a book without pictures or conversations?” – in this case, while the book cannot be read, its use is to reflect the deteriorating eyesight of many of our children and how the much-loved book could appear in their eyes.

Indeed, where iconic characters like the Cheshire Cat, Queen of Hearts and the White Rabbit have lingered in sharp focus in the memories of millions, in this blurred edition these friends and foes in Wonderland appear on the page as little more than fuzzy shapes.

For parents that do get their children’s eyes tested, the most common reasons for visiting the optometrist are due to children commenting on things being blurry, not being able to see the board at school, and sitting too close to the television (18%).

Noticing that their children don’t enjoy reading is also a reason for taking a trip to the optometrists for 9% of parents. When it comes to their own eyesight, almost one third (31%) of adults have noticed their vision get worse during lockdown, and 40% believe their eyesight has markedly deteriorated in the past two years.

Daniel Hardiman-McCartney FCOptom, Clinical Adviser for The College of Optometrists comments: “Alice’s Adventures in Wonderland: The Blurred Edition hasn’t been published for people to read, but instead for the public to consider what it could be like for a child living with deteriorating eyesight.

“Reading is so important for a child’s development, but to read well, you need to be able to see clearly. We’re committed to encouraging people to get their sight checked regularly and we hope this blurred classic will help illustrate what it’s like to not be able to see everything in focus. We need to alert people to the importance of taking care of their children’s eye health as well as their own.

“Things to look out for in toddlers and young children include having one eye turned in or out, rubbing their eyes a lot, watery eyes, clumsiness and poor hand-to-eye co-ordination, avoiding reading, writing or drawing, screwing up their eyes when they read or watch TV, sitting very close to the TV, or holding books or objects close to their face.

“Having behaviour or concentration problems at school, blurred or double vision, or unexplained headaches are also factors to look out for. If you notice any of these symptoms, make sure to book an appointment with an optometrist for your child.”

Alice’s Adventures in Wonderland: The Blurred Edition’ will be displayed in the College Museum. Although the museum is currently closed, when it re-opens, visitors can look through the illegible pages of blurred text themselves to understand the importance of eye health and eye examinations.

The online version can be downloaded from College-optometrists.org/Alice

All optometric practices are following government guidance and optometrists wearing PPE, to ensure each patient visit is safe. If you have any concerns about your vision, book an appointment with your local optometrist, you can find a directory of College members on our patient website: www.lookafteryoureyes.org.

The College has created a series of patient-focused videos related to COVID-19 and eye care:

People at risk of losing sight due to fear of hospital during coronavirus pandemic

Up to 50 per cent of people with acute or urgent eye conditions may not have been attending scheduled eye-healthcare appointments because of concerns over coronavirus.

The Royal National Institute of Blind People Scotland is urging people to continue treatment which, in some cases, may be vital to prevent permanent sight loss.

According to the UK Ophthalmology Alliance, ophthalmic professionals across the UK have found that up to 30 to 50 per cent of people with acute or urgent eye conditions, including age-related macular degeneration, the most common cause of sight loss, have missed appointments during the peak of lockdown.

James Adams, director of RNIB Scotland, said: “It is very concerning if people are not attending appointments or seeking advice for any sudden changes in their vision. Some treatments being missed can stabilise conditions and keep people from losing their sight unnecessarily.

“The precautions currently put in place by NHS Scotland are there to help patients and medical staff keep safe during the ongoing pandemic. We strongly advise people to attend their appointments or to discuss any concerns they have with hospital eyecare staff.”

RNIB Scotland is highlighting the provisions in place to reduce the spread of coronavirus.

Some of the precautions include having fewer people attending at one time in order to adhere to social distancing guidelines, reducing the amount of time patients and consultants spend together, and reducing waiting times.

Andrew Ferguson, chair of Eye Health Scotland and a consultant ophthalmologist in NHS Forth Valley, said: “Hospital Eye Services in Scotland are re-starting clinical work, albeit in a limited way due to distancing and safety requirements in order to keep the risk of Covid transmission at very low levels.

“Where possible we are using alternative methods of communicating remotely, but in many cases a face-to face visit to the eye clinic remains essential to avoid sight loss; and in that regard I would empathise the importance of attending if a hospital appointment is offered.

“However, I want to reassure patients that eye units are taking every possible precaution and the risk of catching Covid-19 in an hospital eye clinic is extremely low.”

For more information on what to do if you have concerns about your sight during the coronavirus pandemic, call the RNIB Helpline on 0303 123 9999 or visit rnib.org.uk/eyehealth.