Remember families who receive care at home, urges charity

A social care charity is appealing to the Scottish Government to remember families who receive care in their own homes, and the carers who provide that care, during the Coronavirus pandemic.

In a letter to Jeanne Freeman, the Cabinet Secretary for Health and Sport, the chief executive of the Scottish Personal Assistant Employers Network (SPAEN), Colin Millar (pictured), calls for action to urgently address what he describes as a “crisis”.

He writes: “We are writing on behalf of SPAEN’s 500 Direct Payment employers and the 1,500 or so others throughout Scotland who have chosen to use a Direct Payment or Option 1 to meet their social care needs.

“We are receiving frequent requests for information, advice, support and calls for SPAEN to raise these continued concerns and matters with the Scottish Government, Scottish Parliament and CoSLA as the body representing the local authority councils distributing these funds to PA employers.

“The experience of Direct Payment users in Scotland is harrowing and deeply concerning.

“They continue to report that they have little or no access to PPE and they are getting no information or updates on when or how this will be resolved.

“They continue to be fearful for themselves, their families and loved ones and their employees, their employees’ families and loved ones, all of whom risk their own health and welfare on a daily basis to provide key social care services to people in their own homes and who are placed at unnecessary risk of transmission of this virus due to a lack of PPE.

“Direct Payment employers want to follow, fully, the Scottish Government’s published guidelines on the use of PPE but they cannot do so without being given access to the vital equipment they need.

“Some callers to local authority councils are being advised to use their ‘current supply chain’ to access this. Many Direct Payment employers will not have a ‘supply chain’, they will be purchasing PPE on an ad hoc basis as and when required and permitted through the Direct Payment agreement.

“The normal suppliers are not able to meet the demand as commissioning is done at a strategic level either through the HSCP or the Scottish Government, resulting in a scarcity of PPE for people who are not supplied via these statutory bodies.

“We are aware that a number of other charities and organisations have made similar representations to the Scottish Government.

“While we do not represent unpaid carers, we have seen a huge increase in contact from these groups who are also deeply concerned that they are unable to access support or PPE.

“While we are in a period of crisis, and this is without doubt such a period, we are calling for a fundamental review into how Direct Payment recipients in Scotland are represented and supported at national and regional level at the earliest opportunity.

“After 20 years’ of representing Personal Assistant Employers across the length and breadth of Scotland, thanks to the support of the Scottish Parliament and contemporary Scottish Governments, this year SPAEN’s services are being retracted, due to funding cuts. This outbreak calls into question the logic behind such a decision and we are calling on the Health & Sport Committee to review this decision at its earliest convenience.

“Without a national body representing PA employers, these and many similar issues will simply not be raised and people electing to exercise their right to use a Direct Payment, as per the current legislation, will be further eroded.

“Ironically, it is in times like these that many people assessed as requiring social care support are seeking Direct Payments as care agencies and local authority run home care services are withdrawn or re-assessed with little or no notice or consultation.

“We’ve had repeated requests from people affected by decisions to remove their existing social care support either through care agencies or local authority home and support services where staff absenteeism has presented significant logistical challenges.

“We have requested and continue to lobby for Direct Payments to be made available to anyone and everyone who has an assessed social care need and specifically as a direct alternative where existing social care arrangements are being withdrawn as a result of Covid-19 or related resource issues.

“Peoples’ social care needs cannot, unfortunately, be abated to accomodate resourcing issues and there has already been assurance from the Cabinet Secretary that no-one should lose the support they’re already assessed as requiring.

“SPAEN represents over 500 individual employers who have equal concerns and responsibilities.

“SPAEN would welcome any invitation to join the discussions being held by the Scottish Government to discuss the current challenges facing all of social care to ensure our membership and the many hundreds of others using Direct Payments are fully and properly represented.”

Count Me In!

Young carers call for educational equality and an end to isolation

Thousands of children and young people across the UK will take part in activities today to highlight the need for far more support for young carers from government, schools and local authorities.

The call comes on Young Carers Awareness Day, an annual event led and organised by Carers Trust. The day aims to raise awareness of the pressures experienced by young carers – children who need to look after someone in their family, or a friend, who is ill, disabled or misuses drugs or alcohol.

Count Me In! Young carers call for educational equality in UK schools

Scottish Government figures estimate the number of young carers in Scotland to be around 29,000. However, further research by Carers Trust shows that as many as one in five secondary school children may be a young carer. For many, the caring journey begins long before they reach secondary school.

But whatever their age, the need to provide care can have a negative impact on the wellbeing, education and future prospects of young carers. Caring responsibilities all too often lead to an inability to complete homework, late arrival at school or even non-attendance.

Research indicates that young carers on average receive lower grade in their public exams than their peers who do not have caring responsibilities at home.

But despite the challenges faced by young carers, far too many remain unidentified and hidden away from support. These problems are less likely to build up if young carers are proactively identified as early as possible.

Once identified, young carers’ circumstances at home can be better understood. This will help schools ensure that young carers are receiving the additional support they need to address their vulnerability to lower than average educational attainment.

This is why Carers Trust has made Count Me In! the theme for this year’s Young Carers Awareness Day.

To ensure as many young carers as possible are identified in future, Carers Trust and young carers are calling on:

  • compulsory education providers to acknowledge their unique position to identify young carers at an early stage so appropriate support can start as soon as possible; and to recognise young carers as a vulnerable group of learners who require additional support so they can engage in their education and go on to lead enjoyable, fulfilled lives.
  • The Scottish Government to monitor implementation of legislation relating to young carers, including how many young carers are identified and supported; and to ensure that local authorities receive appropriate funding so they are able to fulfil their statutory duties to provide young carers and their families with the support they need; and collect attendance and attainment data on all identified young carers in education.

Gareth Howells, Carers Trust CEO, said: ““I know as a former young carer myself that it’s hard enough for young carers to have to juggle all the pressures of school and exams with caring for family members.

“They are often dealing with complex problems which many adults would struggle to deal with – from disability and terminal illness to mental health problems, alcoholism and substance misuse.

“The need to support hundreds of thousands of young carers right across the UK could not be clearer. But far too often the needs of young carers are ignored, leaving them unnoticed and unsupported.

“Our colleagues in local authorities, education and government need to be doing far more to identify young carers at as early a stage as possible so they can achieve their potential at school and lead happy, fulfilled lives.”

Scottish Tories launch drive to ‘revolutionise’ help for carers

The Scottish Conservatives have launched a review group to help develop ideas to help the country’s hundreds of thousands of carers.

The organisation, which was unveiled at an event in Angus yesterday, will be co-chaired by high-profile dementia campaigner Amanda Kopel, whose husband Frank’s Law is named after. Continue reading Scottish Tories launch drive to ‘revolutionise’ help for carers

New benefit for teenage carers to launch in autumn

Young carers in Scotland aged 16 to 18 could benefit from a new £300 social security payment.

The Young Carer Grant is the first of its kind in the UK. It will be available to 16, 17 and 18 year olds who help care for someone in receipt of a certain type of disability benefit. The payment will be introduced this autumn.

Following feedback from young carers, eligiblity is being widened to include all 18-year-olds, not just those in education.

In a further another extension of the policy, young carers will now also be able to combine the hours they spend caring for more than one eligible person in order to reach the 16 hours a week requirement.

Young carers will also be able to take respite weeks without this impacting upon their application.

Social Security Secretary Shirley-Anne Somerville said: “We are using our new social security powers to recognise the extraordinary contribution young carers make to the lives of those they care for.

“This is the first time young carers aged 16 to 18 will be given a cash benefit to spend as they choose. We will be making these payments at what could be a pivotal stage in their lives – when they may be finishing school, looking for employment or starting further education or training.

“Young carers make an invaluable contribution to society but many have difficulty participating in the normal activities their peers can enjoy. The Young Carer Grant will help ensure they are treated with the dignity, fairness and respect they deserve.”

The Scottish Government is investing £600,000 to support nearly 2000 young carers in 2019/20.

The Young Carer Grant will open for applications in autumn this year and applications can be made online, over the phone or by post.