Help for people living with dementia

Extra £1 million will help people shape the services they need

A £1 million investment over two years will fund work with people with dementia and their families to design and shape the support they need following diagnosis.

The funding, part of the £120 million Mental Health Recovery and Renewal fund, will see the Scottish Government working with Age Scotland to enhance support giving people a bigger say in what works for them.

COVID-19 has had a disproportionate impact on people with dementia. Through this partnership with Age Scotland, the Scottish Government will grow the community support that have been so critical to people and their families during the pandemic.

Early investment will be focused on building community capacity with a small grant programme, with a broader community grant programme to follow in the second year.

Social Care Minister Kevin Stewart said: “During the latest phase of the pandemic I have listened to people with dementia and their families about the need for additional flexible support and investment to help address some of the particular challenges they are facing.

“COVID-19 has impacted all of us but I know just how challenging it has been for people living with dementia, their families and carers.

“Trying to reduce this impact is the basis of our Dementia and Covid Action Plan, which we have worked with a wide range of partners to implement, since its publication in December 2020.

“There is a lot of positive work to point to, and the pandemic has particularly highlighted the importance of community-led work, responding to local need. I want to build on this work and enable more local people and communities to design and shape the support they need.

“Through this partnership with Age Scotland we will invest an extra £1 million over two years to support local communities to do that.”

Brian Sloan, Chief Executive of Age Scotland, said: “We’re delighted to be working with the Scottish Government to deliver this funding, which will support the development of dementia-friendly communities across Scotland.

“The pandemic has compounded challenges faced by people living with dementia and their unpaid carers. This funding will help address some of these challenges by shaping communities that work for those who have lived experience of dementia.

“Our role is to bring the voices of carers and people living with dementia to the forefront as plans are developed, ensuring those voices are heard at every stage of the design and delivery process. By doing so, we can build communities that truly support and empower people living with dementia and those who care for them.”

Dementia and COVID-19: Action Plan

Unpaid carers to receive double additional payment

Tens of thousands of unpaid carers will receive a double payment of the Carer’s Allowance Supplement this winter under legislation passed unanimously by the Scottish Parliament last night.

Recognising the additional pressures unpaid carers face as a result of the pandemic, the December payment of the Carer’s Allowance Supplement will be doubled to £462.80, benefitting more than 91,000 people.

This extra investment, forecast to be £21 million, will be the second time the Scottish Government has doubled a Carer’s Allowance Supplement payment.

The Carer’s Allowance Supplement (Scotland) Bill will also give Ministers powers to provide eligible carers with additional financial support in future if the need arises.

Social Security Minister Ben Macpherson said: “We introduced the Carer’s Allowance Supplement in September 2018 to address the fact that Carer’s Allowance was the lowest of all working age benefits. The £230 payment is in addition to the Carers Allowance in recognition of the role carers play in society.

“In recognition of the additional pressures caused by the pandemic, tens of thousands of unpaid carers will now receive another additional payment of more than £230 through our Carer’s Allowance Supplement this winter. This additional payment means that this year carers in Scotland will get £694.20 more in support than carers in the rest of the UK.

“We also made a double payment last year, so over the past two years we have invested over £120 million from our own budget to support around 91,000 unpaid carers. The Carer’s Allowance Supplement is unique in the UK and is one of seven new benefits we have introduced.

“The Scottish Government will always consider if additional payments are needed in the future, bearing in mind the broad range of support we provide across society and taking account of our limited tax and borrowing powers.

Sebastian Fischer, Chief Executive of VOCAL, which supports and empowers unpaid carers in Edinburgh said:  “As we emerge from the pandemic, the Coronavirus Carers’ Allowance Supplement is a welcome measure and we are delighted that the Bill has passed. This will support carers who have faced, and continue to face, enormous challenges due to Covid-19.

“Unpaid carers have propped up the health and social care sector, and it is vital that they are recognised in ways that deliver real positive impact. We look forward to seeing further measures from our new government which value the role of carers as equal partners.”

Young People’s Mental Health: Peer support for parents

A new Peer Support group for parents caring for a young person (11-25years) experiencing mental health issues is available.

The group will be run as part of the new Parents Carewell Partnership meeting online, fortnightly on a Friday from 10-11am.

The group aims to –
• Provide parents/carers with a safe space to share their experiences and hear from other carers in similar situations
• Help improve wellbeing
• Support parents/carers with ways they can help their child
• Navigate complex systems such as social work assessments and welfare benefits
• Help parents/carers find out more about their rights as a carer

If you’d like to find out more or to wish to attend a session, email Megan, VOCAL’s Parent Carer Support Practitioner at mcopley@vocal.org.uk

The Carewell Partnerships are Edinburgh-wide initiatives which support carers

VOCAL’s Carer Survey now open

The Edinburgh and Midlothian 2021 Carer Survey is now open!

This survey will ask you about your current or past caring role, and taking a break from caring, work, money, and your health and wellbeing. It will also cover the support and services you have accessed. You don’t need to be registered with VOCAL to take part.

As a thank you for your time, you can enter a prize draw. There are two prizes up for grabs:

  • a one-week free holiday to VOCAL’s new carer cottage in Blair Atholl, plus £150 to spend
  • a £50 eVoucher for a retailer of your choice

All responses are anonymous and you can provide as much information as you feel comfortable with. Your support will help develop the future of carer support in Edinburgh  and Midlothian and we would really appreciate your time.

The survey will take approximately 20 minutes to complete and you can save your progress and come back at a later time. VOCAL’s Carer Support Teams in Edinburgh (0131 622 6666) and Midlothian (0131 663 6869) can also support you in completing the survey, simply call them for advice.

Have your say and complete the survey.

The survey will close on Friday 10 September and if you have any questions, please email social@vocal.org.uk

Have your say! https://wh1.snapsurveys.com/s.asp?k=162506936253

The Treasure We Seek

New partnership launches new website for carers of people with dementia

This week a partnership between Edinburgh charity Hearts & Minds, Designed by Society, Wee Culture and Edel Roddy launched a new website with valuable resources for unpaid and professional carers of people with dementia and anyone who has an interest in care for people in the later stages of dementia.

All of the partners have direct experience of working in the area of later stage dementia and developing resources. The project was funded by Dementia Series Development Trust.

The Treasure We Seek Project is based on the principles of the work of Hearts & Minds Elderflowers who use the art of therapeutic clowning to encourage moments of engagement, communication and movement with ladies and gents with dementia. The project took those principles and developed two sets of resources ‘Valuables’ and ‘Treasure Hunt’ 

Project Lead Edel Roddy explained: “The Treasure We Seek website was launched this week offering two free resources for people to feel connected to people living with later stage dementia.

“The resources have been developed with the hope they will be useful across a range of settings including schools, community groups, carers organisations and care settings, and we were thrilled with people’s responses. 

“Initial feedback highlighted that people have started to develop ideas about how they will try out the resources, and potentially make them their own, with friends, family and in work settings. Attendees at the launch even helped us think about other contexts in which these resources could be used, the possibilities of which feel exciting. 

“If you missed the launch you can find the resources on www.thetreasureweseek.net  and we’d like to hear from anybody who tests them out or has thoughts or ideas about this work they’d like to share.”

These resources will help relatives and professionals to cope and care and also to evaluate how they feel and take notice of their own wellbeing so they don’t feel stressed or isolated.

The Treasure We Seek website: www.thetreasureweseek.net

ABOUT THE PARTNERS:

Hearts & Minds

Hearts & Minds is an award winning Scottish charity that works in collaboration with paediatric healthcare units, respite centres, schools for learners with complex additional support needs and Dementia units to deliver laughter, friendship and support to those who need it most.

Our Clowndoctors Programme supports children and young people to cope with life in a hospital, hospice or respite care setting and in schools for learners with complex additional support needs.

Our Elderflowers Programme helps people living with dementia or dementia-related conditions in hospitals and residential care homes.

Through playfulness, smiles and laughter, we help all of these vulnerable people to deal with the anxiety, fear, confusion and sadness that their situations and conditions may bring.

https://www.heartsminds.org.uk/

Designed by Society

Dr Gayle Rice is an experience researcher and designer for Designed by Society. Her research background is qualitative and creative and focuses on people’s current and desired experiences. Her design practice involves designing to enable improvements in people’s experiences of social interactions.

Wee Culture

Belinda Dewar is a registered nurse, researcher, educator and practice developer with a career spanning over 30 years. She is currently Director of Wee Culture which aims to support people to explore and enhance culture.

She previously held the position of Professor of Practice Improvement at the University of the West of Scotland and the Lead for My Home Life Scotland.

The Dementia Series Development Trust 

Dementia Series Development Trust is a charity with a vision to improve the lives of those living with dementia through the funding of activities which support this aim.

The Principles which guide the work of the DSDT are:

  • Proactive 
  • Pump priming 
  • Partnership

The Disruption Award funds projects which strive to disrupt some of the old ways that people think about dementia, and communicate new ideas that reframe it.

Committee considers plans for additional payment for Scotland’s unpaid carers

Plans for an additional payment for some unpaid carers are being considered by the Scottish Parliament’s Social Justice and Social Security Committee.

The Carer’s Allowance Supplement (Scotland) Bill will double the Carer’s Allowance Supplement (CAS) to be paid in December. It will also give the Scottish Government power to increase the allowance in the future.

According to the Scottish Government, this change will help ease some of the economic harm which has affected the estimated 83,000 carers who currently receive the allowance.

Now the Committee wants to hear from carers support groups and others about whether this change will have the impact it is hoped.

Committee Convener, Neil Gray MSP said: “The devastation caused by Covid has been felt throughout our towns and communities. It has been hard for people in so many ways, and it is important that those most affected are recognised and offered the support they need. 

“This Bill wants to address some of the extra burden unpaid carers have taken on by increasing the level of the Carer’s Support Allowance. But what impact would this have on those facing unimaginable hardship as a result of Covid? 

“We want to hear from those working closely with carers about what this will mean in practice and whether the additional payment is the most appropriate way to support unpaid carers. We also want to learn whether people think the Scottish Government should have more flexibility to change this payment in the future.” 

Carer’s Support Allowance is targeted at those who have an intensive caring role and lower financial resistance. Although there are estimated to be around 690,000 unpaid carers, only an estimated 83,000 carers are eligible for the allowance.

Paid twice a year, the current payment is £231.40. The Bill would double the December 2021 payment. 

To submit your views:

  https://yourviews.parliament.scot/ssc/carers-allowance-supplement by 12 August.

Double payment for unpaid carers

Thousands of unpaid carers will receive a double payment this winter under legislation recognising the additional pressure they face as a result of the pandemic. 

If approved by Parliament, the Bill, published today, will mean more than 91,000 carers in receipt of Carer’s Allowance Supplement will receive an extra £231.40, doubling their December payment to £462.80.

This extra investment, forecast to be £21 million, will be the second time the Scottish Government has doubled the Carer’s Allowance Supplement.

The Carer’s Allowance Supplement (Scotland) Bill, a priority for action within the first 100 days of this government, will also give Ministers powers to provide eligible carers with additional financial support in future if the need arises.

Social Security Minister Ben Macpherson said: “Unpaid carers provide essential support to family, friends and neighbours. Their roles have been even more important during the pandemic, with many taking on additional tasks and facing higher costs of looking after people staying at home to prevent the spread of Coronavirus (COVID-19).

“The Scottish Government is grateful to all carers for their dedication during this most difficult of times.

“We introduced the Carer’s Allowance Supplement in 2018 in recognition of the vital role unpaid carers play in our society, and because the UK Government’s Carer’s Allowance is the lowest of all working age benefits. The supplement, paid twice a year, is only available in Scotland and has already helped thousands of carers in recent years.

“Like we did last year, this December we want to provide a double supplement of £462.80 to support unpaid carers with the additional pressures they’ve experienced because of the pandemic. This will benefit carers on low incomes who already have some of the most intense caring roles. This financial assistance adds to the other ways we are helping unpaid carers, who can also access support through their local carer centres, such as information, advice, counselling and advocacy services.”

Paul Traynor, Head of External Affairs at Carers Trust Scotland, said: “There is significant evidence that unpaid caring impacts upon physical and mental health and this has been exacerbated by COVID-19, resulting in many unpaid carers having to significantly increase the hours of care they provide.

“This additional payment of Carer’s Allowance Supplement, which will provide additional financial support, has the potential to reduce some financial pressure and goes some way in continuing to recognise the immense contribution of unpaid carers in Scotland.”

Sebastian Fischer, VOCAL Chief Executive, said: “Unpaid carers have faced enormous challenges during the pandemic. They continue to prop up the health and social care sector and shoulder the impact of additional caring responsibilities through this difficult period.

“Creating measures of support which deliver real impact to carers’ daily lives is much needed. We believe the Carer’s Allowance Supplement is a positive step towards valuing the role of carers as equal partners in care and recognising their crucial contribution to Scotland’s economy.”

£250,000 recovery fund for Capital’s carers

The City of Edinburgh Council and VOCAL, Voice of Carers Across Lothian, have announced a new Carers Recovery Fund.

Recognising the impact of the COVID-19 pandemic on unpaid carers, the City of Edinburgh Council has committed to an investment of £250,000 to support unpaid carers. VOCAL will serve as the lead partner, managing the delivery of the fund.

Prior to the pandemic, 65,084 people in Edinburgh had caring responsibilities, 13.7% of the population. For many their caring role increased massively and it is estimated that across Scotland nearly 400,000 additional citizens took on caring responsibilities.

Research released for Carers Week by the Carers Week charities found that 71% of unpaid carers in Scotland have not had any breaks from their caring role during the pandemic.

Of those who got a break, over a third (36%) used the time to complete practical tasks or housework, and almost a quarter (24%) to attend their own medical appointments.

Three quarters (77%) reported being exhausted as a result of caring during the pandemic.

More than a third (36%) said they feel unable to manage their unpaid caring role.

The Carers Recovery Fund is an important step towards further investment in carers as the largest providers of care in our communities. The Fund will be allocated as a one-off payment to individual carers, and can be used to support carer health and wellbeing, enable carers to take a short break and to improve the financial wellbeing of carers.

Cllr Joan Griffiths, Carers Champion for the City of Edinburgh Council, said: “I’m so pleased we’re investing £250k in this Carers Recovery Fund in recognition of the extra challenges and additional pressures they have faced during the pandemic.

“Many carers have been unable to get a break from their role and have suffered a loss of support networks so this one off investment recognises the dedicated, unheralded and unpaid work they do.

“This funding is really important in the current climate especially for young carers who have been badly affected by not being able to meet their friends through lost school time. Anything we can do to support them is welcome news and we look forward to working with VOCAL on this project.

“The Carers Recovery Fund is part of a wider £21m package boosting our work for core ambitions of the Council – tackling poverty and inequality, boosting sustainability and enhancing wellbeing for everyone here in Edinburgh.”

Sebastian Fischer, Chief Executive of VOCAL said: “We look forward to working with the City of Edinburgh Council to administer the new Carers Recovery Fund for unpaid carers across the city.

“As the Carers Week report has shown, many carers have not been able to access a break due to the pandemic. Now, more than ever, the health and social care system relies on unpaid carers.

“It is vital that their right to regular breaks is recognised. This investment is a statement of intent and will have a positive impact on the lives of individual carers across different caring roles.”

New report finds one third of carers are struggling to cope

Our new research finds that 72% of carers have not had any breaks from their caring role during the pandemic

Our report Breaks or breakdown, released for Carers Week, found that the COVID-19 pandemic has had a significant impact on carers’ ability to access breaks. More than a third (35%) of people caring unpaid for family members or friends feel unable to manage their caring role, and three quarters (74%) reported being exhausted as a result of caring during the pandemic.

https://technology-trust-news.org/15AY-7EFBE-259UKT-4GQ2KM-1/c.aspx

The report also found that carers lost, on average, 25 hours of support a month they previously had from services or family and friends before the pandemic and that fewer than one in five (14%) are confident that the support they relied on before the pandemic will continue in the future.

Read the report

This Carers Week, we’re campaigning to increase funding for carers’ breaks. Nearly 900 people have now written to their MP asking them to raise the need for better breaks support in Parliament.

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