Bereaved participants wanted for world’s first study into how funerals aid the grieving process

A national study, which is a world first, is aiming to find out whether it’s possible to measure the importance of a funeral in the grieving process – and anyone who has organised or attended a funeral at any time is being urged to participate. Continue reading Bereaved participants wanted for world’s first study into how funerals aid the grieving process

Support for bereaved families: funding for new homicide service

A new service led by Victim Support Scotland (VSS) will provide free, practical and emotional support to victims of crime across the country. The charity has been awarded £13.8 million over three years, part of which will provide for a new homicide service giving families of murder victims access to a dedicated case worker and continuous support. Continue reading Support for bereaved families: funding for new homicide service

Bereavement project receives £2,000 from STV Children’s Appeal

Children’s bereavement project Richmond’s Hope in Niddrie has received £2,000 from the STV Children’s Appeal. STV2 presenter and producer Zara Janjua visited the project to present the cheque and meet some of the staff who will benefit from the funding. Continue reading Bereavement project receives £2,000 from STV Children’s Appeal

Scots at risk of being unprepared for death

 

  • Half (50%) of adults in Scotland with important financial information online haven’t told their next of kin about their online financial accounts
  • Whereas one in eight (13%) in the region have thought about their Facebook account when they die
  • Almost two thirds (63%) of Scottish people don’t have a will
  • Nearly half (47%) of Scotland’s parents with children aged 18 and under don’t have plans for their children in the event of their death

Continue reading Scots at risk of being unprepared for death

Life, Death and Lilies

Memorial garden puts research project in the public eye

Members of the public are being invited to place an illuminated lily in memory of a loved one as part of an exploration of death and bereavement. The project will see 1500 individual notes of remembrance displayed at an art installation in the form of a temporary memorial garden in Edinburgh’s Grassmarket. Continue reading Life, Death and Lilies

Charities call for end to postcode lottery of care for bereaved parents

A coalition of more than 40 charities working to prevent baby deaths and pregnancy loss is today urging an end to the postcode lottery in bereavement care for parents.

Pregnancy and baby loss affects thousands of families each year across the UK and it is vital to offer bereavement care and support to anyone who has lost a child or pregnancy. However, the care offered to parents in hospital is worryingly inconsistent. It can depend on where parents live, at what stage of pregnancy or birth the loss occurs, and whether individual healthcare professionals know how to respond.

Currently, fewer than half (46%) of maternity units in the UK provide mandatory bereavement care training, while one in three Health Trusts and Boards have no dedicated bereavement rooms in each maternity unit they cover. And in neonatal units, 41% of services have no access to a trained mental health worker. 

The charities are now calling for:

  1. All UK hospitals to be required to offer excellent bereavement care to parents.
  2. A member of staff appointed to lead on bereavement care in every hospital department where pregnancy loss and baby death occurs.
  3. Bereavement rooms to be available and accessible in all hospitals.
  4. All health and social care professionals to receive the highest standard of bereavement care training.5

The call is timed to coincide with the start of Baby Loss Awareness Week (9-15 October) when bereaved parents, their families and friends, unite across the world to commemorate their babies’ lives.

Dr Clea Harmer, Chief Executive of Sands (Stillbirth and neonatal death charity), said: “It is long overdue that NHS Scotland makes the provision of excellent bereavement care mandatory across the country.

“Despite claims that it is a priority, there is still a shortage of dedicated bereavement rooms and too few health care professionals are getting the essential training they need to sensitively support grieving parents.

“Good bereavement care is rooted in simple acts of kindness and respect, giving a family whose world has fallen apart the time they need with their baby, and minimising anything that could add to their suffering. So it is very worrying that parents have told us they can hear the sounds of crying babies, and mothers and fathers congratulating each other on the birth of their healthy babies, while they grieve.

“We believe every parent should be offered the bereavement support they need, when they need it, for as long as they need it. In Scotland, one way to make this happen is for a National Bereavement Care Pathway6 to be mandated and monitored through a new set of guidelines, and to ensure a similar approach is taken across the UK. I urge all those responsible to make sure no parent is left to cope with the death of their baby alone.” 

Baby Loss Awareness Week helps raise awareness of how pregnancy and baby loss affects thousands of families each year across the UK. It is a unique opportunity to help families remember their babies, whether it be in public or private, and feel less isolated and alone by giving them the opportunity to join with others.

The Week culminates in a global Wave of Light at 7pm on 15 October when candles will be lit across the world to remember all those babies who have died too soon. Landmark buildings will be lit up pink and blue – the colours of Baby Loss Awareness Week.

For further information on Baby Loss Awareness Week 2017 visit: www.babyloss-awareness.org

Mortonhall baby ashes: compensation scheme approved

mortonhallThe City of Edinburgh Council has approved proposals for a settlement scheme developed with the solicitors representing 129 parents who have raised legal claims in relation to past practices at Mortonhall Crematorium.

The scheme reached with Thompsons Solicitors, who are representing those parents, was put to councillors at a meeting of the City of Edinburgh Council yesterday. It provides for payments of £1,000 and £4,000 depending on circumstances, together with payment of legal expenses.

Sue Bruce, Chief Executive of the City of Edinburgh Council, said: “The agreement reached today allows us to settle the claims from parents represented by Thompsons, and means they do not need to pursue their cases through the courts.

“The issues that have emerged in relation to practices at Mortonhall have understandably been distressing for affected families. I want to reiterate my apology on behalf of the City of Edinburgh Council and give reassurance that we are taking forward all of the recommendations made by Dame Elish Angiolini in her report to ensure nothing like this ever happens again.

“We have been working closely with parent representatives on the Mortonhall Multi-Agency Working Group which is progressing well. Designs have now been produced for potential memorials which are available to view on the Council website.” (see below)

Mortonhall: Memorials

Designs for potential Mortonhall memorials have been revealed in a new report by the City of Edinburgh Council.

Mortonhall memorial

In line with parents’ wishes two memorials are being proposed, one at Mortonhall Crematorium and another at a location still to be identified in the city.

The draft designs are detailed in theMortonhall Action Plan: Update report which was discussed by city councillors yesterday.

The report also outlines the progress made by the Mortonhall Multi-Agency Working Group which was set up by the Council to take forward the recommendations set out in Dame Elish Angiolini’s Mortonhall Investigation Report.

That report was commissioned by City of Edinburgh Council to investigate practices involving infant cremations at Mortonhall Crematorium, and findings were published in April 2014. A further report by Lord Bonomy on behalf of the Scottish Government, was published in June 2014 and made national recommendations on these issues.

The multi-agency working group, chaired by Sue Bruce, Chief Executive of the City of Edinburgh Council, has met six times and made positive progress on all of the recommendations.

These include: immediate improvements in record keeping including adopting the nationally agreed definition of what constitutes ashes, consistent use of cremation trays and positive dialogue with affected parents around memorials.

The Council has been working with SANDS Lothian, SiMBA, MACC and affected parents since the summer of 2014 on suitable ideas for a memorial. Parents have been consulted over potential sites and a number of those affected selected Mortonhall as the preferred option.

However, the group also acknowledged that some families expressed strongly that that they did not wish to return to Mortonhall so it has been agreed an additional site would be identified elsewhere in the city.

The Mortonhall Multi-Agency Working Group has been working closely with independent garden landscape designers to develop a range of initial design options, on which parents are being asked to give their views. The designers have waived their initial consultation fees in support of this project.

Sue Bruce said: “I am personally very encouraged with the progress made by the working group in dealing with both Dame Elish and Lord Bonomy’s recommendations. I would like to pay tribute to the willingness of all the participants, especially the parent representatives, for all their efforts.

“I’d also like to acknowledge my appreciation of the ongoing contribution in various forms from all affected parents. This continuing dialogue will ensure that we continue to focus on their needs.

“We now have potential memorial designs and we are asking the parents to consider which ones they would like us to take forward. We want to make sure the designs reflect their wishes and I would ask families to let us know their thoughts.

“The families’ dedicated campaigning has made a major contribution to the Council’s action plan and the Infant Cremation Commission report by Lord Bonomy which will result in legislative change across Scotland.

“We will continue our work on the group to ensure that nothing like this can happen again and that the highest possible standards are adhered to at Mortonhall.”

Sara Fitzsimmons, Executive Charity Director of SiMBA, has been a member of the multi-agency group since it first met last year.

She said: “Sitting on the group has reassured me that parents’ views and considerations are first and foremost throughout all discussions. You can see the progress being made implementing Dame Elish’s recommendations, one of those being the memorials. It was the parents’ decision that there should be one at Mortonhall and a second one away from the grounds.

“A sub group was set up so the voices of parents who chose to be involved at this time could be heard and their suggestions have been included in the proposed garden designs. It’s really good to see this progressing and for the first memorial to be completed this year – a tangible place for parents and their families.”

The multi-agency group consists of representatives from the Scottish Government, NHS Lothian, SANDS Lothian, Sands UK, SiMBA, Mortonhall Ashes Action Committee, funeral directors, Edinburgh Crematorium Ltd and council officials.

The Mortonhall Investigation report was commissioned by Sue Bruce on behalf of the City of Edinburgh Council in January 2013 after concerns were raised about practices at the crematorium. The remit was to establish the facts regarding practices relating to the cremation of babies at Mortonhall Crematorium and to learn lessons that will ensure best practice for the future.

Dame Elish interviewed bereaved families, current and former members of crematorium staff, representatives from funeral directors, staff from other crematoria, support groups and health professionals and took opinion from experts in the field of human anthropology, law and forensic accountancy. The report, with annexes, extends to over 600 pages in total.

Mortonhall tragedy: ‘a lifetime of uncertainty’ as questions remain unanswered

“The great tragedy of these events over many years is that many parents will now be left with a lifetime of uncertainty about their baby’s final resting place.”

mortonhall

An independent report into practices at Mortonhall Crematorium was published yesterday (Wednesday 30 April), but for bereaved parents the 600 page document leaves key questions unanswered – in particular, the final resting place of their child.

The families of more than 250 dead children are affected by the scandal and they are now calling for a full public inquiry. One angry and upset parent said: “”The report is damning of City of Edinburgh Council and of the practices at Mortonhall. What they have done to the families is an outrage and a scandal. There needs to be answers over what has been done.”

The Mortonhall Investigation report was commissioned by the City of Edinburgh Council in January 2013 after concerns were raised about practices at the crematorium and has been authored by the former Lord Advocate of Scotland, the Rt Hon Dame Elish Angiolini QC DBE.

The remit of the report was to establish the facts regarding practices relating to the cremation of babies at Mortonhall Crematorium and to learn lessons that will ensure best practice for the future.

Dame Elish interviewed bereaved families, current and former members of crematorium staff, representatives from funeral directors, staff from other crematoria, support groups and health professionals and took opinion from experts in the field of human anthropology, law and forensic accountancy. The report, with annexes, extends to over 600 pages in total.

The report contains 22 recommendations which will now be taken forward by the Council and other relevant agencies.

Sue Bruce, Chief Executive of City of Edinburgh Council, said: “On behalf of the Council, I would like to offer my sincere apologies to the bereaved families for the distress they have suffered as a result of the practices at Mortonhall Crematorium. I realise that the past year-and-a-half has been very difficult for the families involved and wish to thank them all for their co-operation with the investigation and their contribution to the report.

“I would also like to thank Dame Elish Angiolini and her team for their hard work on this important and sensitive investigation. Dame Elish has made many important recommendations, some of which relate directly to working practices at Mortonhall. I will be working with Council colleagues and elected members to take these forward.

“It is also clear from the recommendations that there are far-reaching implications regarding cremation practices and the legislative framework not just for Edinburgh but across Scotland and the United Kingdom and I will be working with the Scottish Government and other relevant bodies to address these concerns.

“We will now consult with families and relevant organisations regarding their views on a suitable memorial. It is vital that we learn from this and look to the future. We must ensure that the highest possible standards are adhered to at Mortonhall and that nothing like this can happen again.”

All families involved received a copy of the report by courier along with an individual case summary containing details of their case, but some remain unhappy with the findings and are calling for a full public inquiry.

Dorothy Maitland is operations manager at the charity SANDS Lothians, which she set up to support bereaved parents. Her daughter Kaelen was one of the infants whose ashes were interred at Mortonhall, and it was Dorothy’s questions about her daughter’s ashes that initiated the initial investigation.

Commenting on the report, she said: “Some of it I’m not surprised by. In my own case I’ve been told that it would appear my own daughter’s ashes are buried in the garden of remembrance but it doesn’t actually confirm it. I just think babies have been treated so differently from adults – but why?”

She went on:  “Things have moved forward but why didn’t someone think ‘no, we have to do this in a different way’? This has caused so much distress to families. Every baby’s parents should get the ashes for their baby. Staff should be trained and shown how to achieve this.”

Patrick McGuire, a partner at Thompsons Solicitors, which is representing the families, said: “The families only ever wanted the truth and answers. The families care that lessons are learned from this so that nobody has to go through what they have had to go through. By the time all the truth has come out there won’t be a single community that has not been affected by this”.

The Scottish Government is taking action to ensure this can never happen again. 

Public Health Minister Michael Matheson said: “I am clear that no parent should ever have to go through a similar experience to those affected by practices like this, at any crematorium in Scotland.

“We are absolutely committed to changing the law and a wide-ranging bill is already planned. On that basis we established the independent commission, chaired by Lord Bonomy, to examine current infant cremation policy, practice and legislation.

“He has advised he expects to deliver their national recommendations to ministers by the end of May. These recommendations will shape and inform the work of our planned legislation.”

 

NHS inform launches bereavement zone

images[1]Christmas is, for many people, a time of family get-togethers and when friends can come together to exchange gifts and enjoy one another’s  company.

But for some the Festive season is a reminder of the absence of those who have died and is a time when grief can be particularly difficult whether the death is recent or not. For people who have been bereaved there is a myriad of legal and practical issues that need to be dealt with, in addition to the emotional impact of death which can sometimes be felt for many years to come.

NHS inform now offers help and support to people experiencing these difficulties with a new ‘Bereavement Zone’ which can be found at www.nhsinform.co.uk/bereavement.

The zone gives both practical advice and help with finding further sources of support to enable people to cope with the emotional aspects of grief. Developed in partnership with the Scottish Grief and Bereavement Hub it hosts links to a variety of resources  The Convener of the Scottish Grief and Bereavement Hub John Birrell says: “The new Bereavement Zone is a useful online resource for people dealing with the aftermath of a loved ones death.  We know that grief is very personal and people respond to it in very different ways but the Zone offers general advice and lots of signposting for further help.”

Lynne Huckerby, Head of Health Information Services at NHS 24 says the Zone will complement other services offered to people who may be experiencing emotional difficulties: “The Zone is designed to be a starting point to enable people to find the help they need for their own particular circumstances. It includes information about death and bereavement specific to certain groups such as younger people, or bereavement following a long term condition such as Dementia. In addition to the Zone, NHS 24 also offers the Breathing Space service where people can receive confidential support and advice over the telephone and the advisors are trained to help people in emotionally challenging times such as bereavement.”