The NEN – North Edinburgh News

• New Scottish Government campaign encourages people to make their own organ and tissue donation decision and ‘Have the Chat’ with those close to them
• Organ and Tissue Donation Week runs from 23rd-29th September, with 2024 marking 30 life-saving years of the NHS Organ Donor Register
• Campaign reminds people of the choices they have under Scotland’s opt out system of organ and tissue donation

The Scottish Government has launched a new campaign to mark Organ and Tissue Donation Week (23rd-29th September 2024), encouraging more people to make a choice about their organ donor decision and, importantly, ‘Have the Chat’ with their loved ones about their choice.

The new ‘Have the Chat’ campaign comes as research[1] reveals that while more people in Scotland know if their family and friends prefer tomato or brown sauce – fewer know their organ and tissue donation decision.

When polled, members of the public were more likely to say they knew their loved ones’ coffee order or whether they’re a dog or a cat person, rather than if they’d want to donate their organs and tissue.

Findings also revealed that while more than three quarters (77%) of respondents know their loved ones religious or spiritual beliefs, only half (51%) are aware of their organ and tissue donation decision.

To launch the campaign, former Miss Scotland and radio presenter, Keryn Matthew took to the streets of the capital to encourage members of the public to ‘Have the Chat’ with their own family and friends.

This year also marks the 30th anniversary of the NHS Organ Donor Register and celebrates the thousands of lives that have been saved thanks to people agreeing to the gift of organ donation. With many still awaiting transplants, it remains vital for people to confirm their organ and tissue donation decision.

Under Scotland’s opt out system of organ and tissue donation, Organ and Tissue Donation Week serves as a reminder for people to make their choices known and not leave their loved ones in doubt.

Nobody understands the importance of the gift of donation more than 29-year-old Martin Dillet, who underwent four liver transplants before the age of 30. The father of two has shared his story to highlight the life-saving impact it had for him.

Martin said: “I was diagnosed with a rare liver disease as a baby and had my first transplant at just three years old. Things went back to normal after that – I had a great childhood and went on to meet my wife, Danielle in 2012 before welcoming our first daughter in 2021.

“I always thought of my donor over the years. It wasn’t a conscious thought process – more a constant sense of being grateful for a second chance a life. However, in 2023, my health started to deteriorate rapidly and doctors discovered that the liver that had kept me alive for 25 years was failing.

“Things moved pretty quickly after that and I ended up going into full liver failure and was placed back on the transplant list at the same time as we were preparing for the birth of our second child. What should have been one of our happiest times as a family became one of the most anxious as we waited to hear that a liver had become available.

“Thankfully, we received a phone call and I received my transplant in September 2023. Everything went well with the operation, but unfortunately by the next day it became clear that my new liver wasn’t working. It’s an extremely rare complication and the only option was for me to go back on the list.

“We got the news that a new liver was available and I went back into surgery. This time it became immediately clear that the new liver wasn’t working properly. Doctors made the difficult decision to remove my liver entirely and I was added to the transplant list for a fourth time.

“We were nearly out of hope, but after 36 hours with no liver, I received my third liver transplant all within the space of five days.

“This time, everything went well and after being in a coma for 18 days I finally woke up and was reunited with my family. Danielle and I are so sincerely thankful to all my donors and their families.

“It’s so unfortunate that two of my transplants didn’t take, but it doesn’t change what my donors did for me and there are no words to describe how much it means to us.

“They gave me a chance to be here for my girls, Georgia and Amber, to see them both grow up.”

People in Scotland can choose to be a donor, or to opt out. If people aged 16 and over choose to do nothing, it may be assumed that they agree to be a donor if they die in circumstances where donation is possible, unless they are in a group for whom the opt out system does not apply or it would be against their views.

Data shows that 90% of families would support organ and tissue donation if their loved one had confirmed their decision on the NHS Organ Donor Register[4]; however, over two in five (43%) are yet to register their choice[5].

James Powell, Associate Medical Director, Surgical Services, Royal Infirmary of Edinburgh and Consultant Transplant Surgeon, NHS Lothian, said: “Martin’s story is incredibly inspiring and we wish him and his family all the very best.

“If you participate in any part of transplantation, you know that every transplant takes a full team including doctors, nurses, allied health professionals, donor services and family members, all working together.

“Most important though is the generosity of organ donors who have given the ultimate gift of life. With their gift, and the support of family members in achieving their loved one’s wishes, the Scottish Liver Transplant Unit has been able to help many patients.”

The NHS Organ Donor Register was set up to promote organ donation and allow people to record their decision to donate.

It was the result of a five-year campaign by John Cox and his daughter Christine after their son and brother, Peter, died in 1989. He had asked for his organs to be used to help others.

To find out more and register your decision, visit the NHS Organ Donor Register at www.organdonation.scot.