Heartbroken mum’s plea: Discuss organ donation with loved ones

A mother who made the brave decision to save the lives of three other people and give another the gift of sight has urged more people to discuss organ donation with their families.

Debbie Young, 53, from Edinburgh, made the courageous decision to donate her daughter’s organs when she died two years ago.

Her daughter, Raechel Waterston was just six days away from her 21st birthday when she suffered a fatal seizure.

Debbie’s decision in the moments that followed saved and transformed the lives of four other people.

Now, as part of Organ and Tissue Donation Week, Debbie is encouraging others to decide which organs they would donate and speak to their loved ones about their decision.

Debbie, a support worker and mum of four, said: “I wish Raechel was here beside me every single day, but it’s a comfort that I could honour her love of helping others even at the end of her life.

“Raechel had learning difficulties and autism and she was sunshine in human form and she thought everyone was her best friend. She loved bowling, films, wearing costumes and interpretative dance. If everyone was like my daughter, the world would be an amazing place.”

Raechel was rushed to the Royal Infirmary of Edinburgh Hospital after the seizure, but the medical teams confirmed that there was no brain activity.

Despite facing the overwhelming loss of her daughter, Debbie bravely asked doctors whether Raechel could become an organ donor.

The specialist nurses in organ donation supported Raechel and her family while transplant teams scanned patient waiting lists across the country to find matching recipients and located three patients who were in desperate need of a transplant.

Raechel’s heart and kidneys saved three people’s lives and her eyes were given to another to help restore their sight. Her lungs were also donated to medical research.

Debbie said: “Raechel would usually sit on my bed while I was getting ready for work. She hadn’t come in which was unusual, so I went into her room and she was lying on the ground unresponsive and her lips and fingers had a blue tinge to them.

“Her favourite film character was Wednesday Addams, so my family and I chose to say goodbye to her on Wednesday at 10pm which was her bedtime. We wished her goodnight and told her we loved her like we usually did. I was the last one to leave the room and it was the hardest thing I ever had to do – to walk away while she was still breathing.”

Two years on, Debbie is still struggling to come to terms with the death of her daughter, but recently wrote a letter to all of Raechel’s organ recipients.

Debbie said: “I wrote a letter to tell them a little about my daughter and I warned them that they might start liking High School Musical because she was obsessed with it! I’ve heard from one recipient, and it’s been such a relief knowing that Raechel saved someone’s life.”

Debbie is urging others to consider what organs they would be happy to donate and to ensure that this decision is recorded on the organ donor register and shared with their family.

“I would really encourage everyone to register their organ donor selections online and to speak to their loved ones about this decision. If your death can help someone else to live, why wouldn’t you want to do that?

“My daughter’s life wasn’t a waste because she saved so many others and I think that’s an incredible feat.”

An NHS Lothian spokesperson said:“It is hugely important that people make the decision to sign up to the organ donor register and then discuss it with their families. Debbie knew right away that her daughter would want to make a difference in her death, just as she had throughout her whole life.

“Although Scotland now has an opt-out policy, it’s still really important to outline what organs you would be happy to donate on the organ donor register. You could help up to nine people if you decide to donate all your organs but having those conversations with your family is crucial.”

For details about organ donation, visit organdonationscotland.org

Edinburgh marks Organ and Tissue Donation Week 2023

EDINBURGH is gearing up to celebrate Organ and Tissue Donation Week 2023 which runs from September 18-24.

This annual campaign is all about raising awareness for the ongoing need for organ donation, encouraging people to make a decision about whether they wish to opt in or out of donation, and making sure these wishes are discussed with family members.

Here in the Capital, in line with the UK wide campaign, we are hoping to light up the City Chambers in pink to show our support. Our colleagues at the Edinburgh International Conference Centre (EICC), will also be lighting up their building on Morrison Street.

We are also running an external social media campaign in consultation with the Scottish Government’s national campaign and the local work of NHS Lothian.

Yesterday (September 17) the ‘Transplant Tour’ began in Edinburgh. This is a charity cycle travelling down the UK to raise funds and awareness for the charity Give a Kidney. It will stop at Newcastle, Leeds, Sheffield, Manchester, Birmingham, and finish in Oxford. We have provided an official letter of support from the Lord Provost to the organisers and are supporting them and the charity with promotion.

On Friday (September 22), some Race for Recipients participants will set off from Murrayfield in Edinburgh and finish at the Kelpies in Falkirk.

The race is taking place across the country, with individuals and teams racking up the kilometres through walking, wheeling, running, swimming, and other ways, to raise awareness of the importance of making a donation decision and to recognise those whose lives have been touched by organ and tissue donation.

Depute Lord Provost Lezley Marion Cameron will be at Murrayfield to meet them and wish them well as they depart. Currently there are over 800 participants registered for the Race across Scotland. 

Council Leader Cammy Day said: “As we celebrate Organ and Tissue Donation Week 2023, we must be mindful of the fact that more than 7,000 people in the UK are currently waiting for a life-saving transplant.

“Only around one per cent of people die in a way that makes organ donation possible, which means every donation opportunity is precious. There are thousands of people who could be given a new lease of life by a donor, however in order to help as many people as possible we all need to play our part by registering our decisions to be a donor or opt out.

“These are conversations that need to be had amongst families, friends, colleagues, and communities as we go forward. We know that families are more likely to support donation when they already know it was what their loved one wanted.

“I’m encouraged by the fact that over half of people in Scotland have now registered their organ and tissue donation decision however there is still a lot of work to be done. Whatever your choice may be, the important thing is to make it and discuss it. I would urge anyone who is 16 or over and yet to join me and many others who have recorded their decision by visiting the official website. 

“Another great way to get involved is the Race for Recipients challenge. Our Depute Lord Provost Lezley Marion Cameron will be meeting some of the participants on Friday (September 22) as they head off cycling towards the Kelpies in Falkirk. Find out more and join online at their website.

“I’m proud of everything that we’re doing to mark this important week here in Edinburgh. From lighting up buildings around the city, to supporting our colleagues in government and the NHS, to lending a hand to fundraisers I’m sure this will be a week to remember.”

Record your organ and tissue donation decision

This Organ and Tissue Donation Week marks six months since Scotland moved to an opt out system of organ and tissue donation.

New figures show over half of people (54%) in Scotland have now registered their donation decision – 51.5% to be a donor and 2.8% choosing to opt out.

The opt out system was introduced on 26 March to save and improve lives. If people aged 16 and over haven’t opted out of donation, they will be considered a possible donor if they die in circumstances in which they could donate.

Under the opt out system everyone has a choice – to be a donor, or opt out of donation – but it’s important to make that decision known.

In Scotland, there are an average of around 500 people currently waiting on an organ transplant, however only around one per cent of people die in a way that makes organ donation possible.

Public Health Minister Maree Todd said: “Over half of adults have now recorded their donation decision – the highest percentage in the UK.

“Donation remains a personal decision and everyone has a choice.  We are committed to continuing to raise awareness of the choices people have under the opt out system and the importance of making their donation decision known.

“I would encourage people to make a decision about donation, record their decision on the NHS Organ Donor Register and tell their family and friends, so they know what you would want to happen.

“We have made tremendous progress in increasing donation and transplantation in Scotland over the last decade, with the move to opt out part of a package of measures to reduce the number of people in Scotland waiting for a transplant at any one time.”

You can record your donation decision or change your decision at any time.

To record a donation decision go online at www.organdonationscotland.org or call 0300 123 23 23.