World Cancer Day is chance for NHS to be ‘United by Unique’ innovation for more people-centred care

World Cancer Day is an opportunity to inspire Scotland’s diverse healthcare innovators to unite for patient equity in the fight against the country’s leading cause of death, says an NHS partner.

Taking place today on Saturday 4 February, the theme of World Cancer Day 2025 is ‘United by Unique’ with organisers, the Union for International Cancer Control (UICC), believing that the day’s focus on a people-centred, tailored approach to cancer care is a vital one.

With around 16,000 people in Scotland dying from cancer every year, UICC say that everyone’s experience of it is unique and are encouraging the sharing of personal stories and help in shaping the call to action. 

Formal NHS Scotland partner InnoScot Health insists that health service innovators must also be ‘United by Unique’ in putting forward their ideas to improve cancer care, highlighting the diverse skillsets that the country’s workforce can draw on in finding new ways to identify and treat cancer.

Executive Chair of InnoScot Health, Graham Watson said: “The World Cancer Day 2025 campaign explores different dimensions of people-centred cancer care and new ways of making a difference. That represents real opportunity for positive change.

“Healthcare innovators here in Scotland can reach out, answer that call with their unique perspectives, and make real progress in reducing the global impact of cancer, in turn helping to realise equity of access to innovative treatments.

“It is paramount that NHS Scotland patients get the care they need, and innovation holds the potential to offer more equal access to new treatments and technologies, while empowering patients to actively participate in the decision-making process.

“Scotland is also uniquely placed to contribute to such patient-centred, innovation-driven endeavours by bringing together the NHS, industry, and academia thanks to its history of effective collaboration, and lack of geographical barriers.”

UICC is dedicated to taking a lead in uniting the cancer community to reduce the disease’s global burden and integrating cancer control into the world health and development agenda.

World Cancer Day 2025 is the start of a three-year journey – from raising awareness to taking action, according to UICC.

Mr Watson added: “This important date will be marked by hundreds of events happening across the globe, all envisioning a future for cancer care where the needs of people and communities come first.

“The World Cancer Day ethos of ‘United by Unique’ is something that touches us all – and it can be a meaningful call to action for NHS Scotland innovators who can feel inspired in the knowledge that their unique thinking is more welcome than ever in tackling challenges.

“This includes sustaining the significant progress made in the fight against cancer in recent years.

“InnoScot Health believes that fresh ideas have the power to significantly improve health and social care, while supporting an ambitious, forward-thinking NHS.”

On World Cancer Day, InnoScot Health is encouraging healthcare staff to make a difference to NHS Scotland by submitting new ideas with innovative potential.

Incredible, life-changing projects are already underway across the country, including artificial intelligence (AI) being leveraged for the development of a 25-minute skin cancer diagnosis testanalysis of chest X-rays in near real time, and a new screening method that combines laser analysis with AI to identify patients in the earlier stage of breast cancer.

It is all part of collective efforts to use technology to drive forward cancer diagnosis, treatment and care with Scotland’s Chief Scientist for Health Professor Dame Anna Dominiczak recently highlighting that AI innovation in cancer was continuing to develop apace in Scotland.

She commented: “These programmes are developing and progressing and will be perhaps gaining momentum as we go forward.”

Candlelighters recognise World Cancer Day

Candlelighters, the children’s cancer charity, is marking World Cancer Day on February 4th by recognising the first year’s work of the Candlelighters Supportive Care Research Centre (CSCRC), at The University of York.

Supportive care is an emerging area of research which looks at improving the care surrounding cancer treatment, rather than finding cures. It includes treating side effects, managing pain and reducing infection.

Initial investment from Candlelighters enabled the opening of the groundbreaking centre – the first to focus on improving care for children with cancer. The CSCRC is led by Professor Bob Phillips, one of the world’s leading experts in childhood cancer research.

Almost 400,000 people are diagnosed with cancer in the UK each year, including over 2,400 children and teenagers. An often-overlooked issue is the impact of treatment and management of side effects which can be debilitating and, at times, deadly.

Emily Wragg, CEO of Candlelighters says: “Amazing progress has been made in understanding and treating childhood cancers. Today, around 80% of children or young people diagnosed with cancer will survive.

“This is an incredibly encouraging statistic, but despite advances in curative medicine, little has been done to improve the experience of living through and beyond cancer. Children and young people often receive cancer treatments designed for adults and the impact on their smaller bodies can be severe. They suffer horrible side effects which can be traumatic, permanent, and even deadly.”

Emily explains that of all children who sadly die with cancer, one in three die not because of the cancer itself, but because of the side effects of their treatment. Worse still, research into reducing these side effects for children is under-resourced, sparse, and inadequate.

She adds: “A significant part of the first year’s work for the Candlelighters Supportive Care Research Centre has been on the physical side effects of cancer, including the prevention of mucositis – the ulcerated mouth, sore stomach and diarrhoea that can happen after cancer treatment.”

Professor Bob Phillips explains: “Mucositis is a side effect that’s not well known about. It’s when chemotherapy or radiotherapy causes ulcers, anywhere in the guts, from the mouth down to the bottom.

“It can be extremely painful, so much that children can’t eat or drink, and need to be in hospital, on strong painkillers and intravenous fluids. Young people who have this tell us it’s extremely distressing as it chains them to the hospital and makes even communicating difficult.”

Bob adds: “There are things we can do to reduce the chance of this happening or try to make it heal better, using ‘photobiomodulation’ or PBM.

“This is a light therapy which can prevent or treat ulcers and is mainly used in the mouth and throat area.  We’re working with The Leeds Dental Institute to help more children access this therapy at hospitals around the country. We’re also looking to develop more techniques to use this in other areas of the body affected by ulcers.”

Jorden’s story:

Jorden Slack, a childhood cancer survivor, now 34, was diagnosed with rare acute promyelocytic leukaemia, aged 11. She endured a gruelling six rounds of chemotherapy, across more than six months in hospital.

Jorden says: “For me, a big impact of the chemotherapy was the mouth ulcers – it’s not just a single ulcer, it’s an entire mouth of ulcers, from your mouth down your throat and digestive system.

“The treatment makes you prolifically sick, which then aggravates the ulcers that you’re trying to heal. You get all these cravings for food, but you can’t physically eat. It’s a horrendous cycle and it’s miserable.”

Commenting on the research work on mucositis, Jorden says: “The chemotherapy treatment is hard enough as it is, without then having that extra pain and discomfort on top.

“If there’s a way to make children a bit more comfortable during a scary, horrible time, that’s what we need to do. And for parents to not have to see their child so poorly is a bonus; I couldn’t communicate at points because I was that poorly with the side effects.”

Learn more about what Candlelighters do, and how you can make a difference for children: https://www.candlelighters.org.uk/howyoucanhelp/

Edinburgh Zoo coming to Muirhouse!

We’re so excited to announce that we will be having EDINBURGH ZOO come to Muirhouse Library on the first Saturday of every month!

They will be talking about their animals, answering questions about the animals, and running an animal-themed craft session.

This will be at 11am on Saturday 1st March.

A *must* for animal lovers! This event is suitable for children aged 5 to 11, but if your slightly younger or older child is interested in animals, the event is likely to be suitable for them too.

Ward 14 Question Time

Monday 10th February at 6.30pm

On Monday 10th February at 6:30pm, members of The Ripple project and residents of Ward 14 will get the chance to speak to their local councillors.

Have you ever seen Question Time or even better Debate Night? If the answer is yes, then you know how important a local event like this can be.

If not, then read the quick explainer on the event below.

Members of The Ripple project and the wider community of Ward 14 will have the opportunity to put questions to our local representatives. After a question-and-answer session each councillor will have the opportunity to detail their priorities for the upcoming year or make any other address they deem appropriate.

Tristan Green, The Ripple Community Action Worker who will be chairing the evening said: “‘I am delighted that all four of our local councillors committed to this event with such enthusiasm.

“Events like this can help reduce the barriers that make it so hard for regular people to engage with politics at a local level. It is a groundbreaking evening for this ward and I am looking forward to some healthy debate’.

Rachel Green, Director added: ‘Genuine engagement by elected members is becoming essential at a time when more and more is being asked of the third sector and local communities. 

” Only by knowing what is important to local people can our councillors serve the communities who elected them”.

Local people can submit any questions they would like to ask on the night using this form https://forms.office.com/e/FBVRMy2wFi

Four councillors currently represent the Craigentinny/Duddingston Ward:

  • Danny Aston, Scottish National Party (SNP)
  • Joan Griffiths, Scottish Labour
  • Alex Staniforth, Scottish Green Party
  • Iain Whyte, Scottish Conservatives 

This meeting is taking place ahead of the City of Edinburgh Councils budget announcement for 2025/26.

It’s now or never for public agencies to support the Edinburgh Festival Fringe

Open Letter from SHONA McCARTHY, Chief Executive, Edinburgh Festival Fringe Society

What a fantastic week for the cultural sector of Scotland.  All the lobbying, advocacy and effort from so many, for so long, has resulted in some desperately needed stability and longer-term security; and Culture Counts did a sterling job in leading the charge. 

It has been uplifting and joyful to see so many brilliant theatres, companies, community art centres, creatives and festivals across Scotland, invested in, and supported to make new work and do ambitious things. 

A special nod to the success of our sister festivals – the Film, Children’s, Art, Book and Jazz festivals; and with over £5million in public sector support per year, the Edinburgh International festival will be enabled to undertake some truly wonderful commissions and programming. Perhaps this will be the moment for some shared resource into a collaboration of all six summer festivals to create a spectacular, free-to-access opening and closing of the whole season for Edinburgh’s residents. Exciting times and I look forward to the imaginative programming to come.

It is also wonderful to see Hidden Door secure some core support – its devolved curatorial approach and fusions of genre and imagination have brought something new to the whole festivals landscape.  Congratulations are due all-round and hats off to the Scottish Government for recognising the value of the arts to the heart and soul of the nation, to job creation, well-being and the economy.  All of this in the same week that the Fringe Society has had its own news to share, with the announcement of our new Chief Executive coming in to post in April this year.

However, I hope support can also be found for those who didn’t make the list this time.

The Fringe is a different beast.  It is complex, but only if you want it to be.  However, its complexity should not be a reason not to support the very event that gives Edinburgh’s festivals their global brand, economic success and enormous impact for the performing arts across Scotland, the UK and the world.  It truly is an access point for so many artists and audiences alike, into the arts.

Here’s where we are:

The Edinburgh Festival Fringe is made up of thousands of moving parts.  All of those are important and are what make it unique.  The Fringe is not a funded, curated arts festival, it is a platform and a marketplace that is open to anyone.  Every artist or show that comes to Edinburgh does so at their own financial risk, and with their own set of objectives for what they want from participating in the Fringe. There are many producers who will annually develop and support a selection of shows to present at the Edinburgh Fringe, who share the risk with their artists. The venues that host them are all different models, but many of them also take significant risk, or share risk with producers and artists.

Then there is the Fringe Society – the small charity that is made up of Fringe members and provides core services to the festival: artist support, box office, marketing, promotion, and audience navigational tools.  Income generated from participants through registration fees and box office commission pays for these services.  The Fringe Society delivers a whole programme of added value that is designed to remove barriers to participants and audiences and ensure inclusion.  This work isn’t financed by income from the Fringe, but is supported by donations, fundraising and ring-fenced public funds for projects. In keeping costs to participants low or frozen for 18 years, the income generated from registration fees and tickets, has long-since come far short of covering the costs of services to the Fringe.

Once upon a time the Fringe was a self-financing ecosystem with a collective effort from all the fringe-makers on keeping it affordable for artists and audiences. However, the well-documented economic context of recent years changed that.  In this moment, if Edinburgh, Scotland and the UK wants to keep the Edinburgh Festival Fringe, then the whole thing needs support, and that has to come from multiple sources and has to support both the Fringe and the Fringe Society.

The Fringe Society needs core annual public sector support if it is to continue to provide services to the Fringe at an affordable level.  It also needs to be able to adjust its fees to meet some of the rising costs too. A stable Fringe Society can continue to play a positive convening role for the wider Fringe community and in recent recovery years we have been able to redistribute some £6.3million out through the Fringe ecology in funds for artists, producing venues and support for Scottish work, to help it survive and stabilise.

The Fringe Society will continue to use its convening role to raise funds to support artists through the Keep it Fringe fund and Made in Scotland. We must also ensure that the essential digital infrastructure that supports festival systems – online tools and wayfinding, are future-proofed, and will seek support and donations to retain our 32 community partnerships across the city so that they can continue to experience their Fringe their way, both during August and year-round.

What could a whole Fringe support strategy look like.

For a stable, healthy Fringe we need a joined-up investment strategy that includes the Scottish Government, the City of Edinburgh Council and the UK Government.  We have continuously made the case and both UK and Scottish Governments have recognised the unique place that the Fringe occupies as a platform, a showcase, a marketplace and global expo. There is nothing else like it on these islands, and it offers something unique in the world as an annual global meeting place to celebrate the performing arts in all their glory and for the business of the performing arts to be done.

We of course need a stable Fringe community with companies, producers and theatres able to produce work, and the investment from the Scottish Government last week goes a long way towards this.  We will continue to lobby until Scotland is on a par with the best of Europe.

The Fringe Society’s new year-round Fringe Central secured a capital grant that will create new affordable rehearsal spaces for artists, and also unlocked £1million in Keep it Fringe funds for direct bursaries to 360 artists over 2024 and 2025. The Fringe Society are aiming to sustain the Keep it Fringe fund in some form, and producer James Seabright, has already committed the first £25,000.

Investment in the Fringe Society from the Scottish Government is needed to ensure the charity can continue to provide core services to this vital event. 

The Scottish Government have recognised that this organisation falls between the cracks and have made the commitment to support, and this is a work in progress.  Scottish artists, companies and many local producing theatres and venues are supported through the multi-year funding programme, the Open Fund, and the Made In Scotland showcase at the Fringe and this helps. Yet there is still a gap in support for the whole Fringe operation, and there is a continuing disparity between the infrastructural needs and financial support made available for major sport events as opposed to the investment in sustained, annual arts events with longitudinal impact, like the Edinburgh Fringe.

For the UK Government – the Edinburgh Fringe hosts artists from all over the UK, with over 2,000 shows coming from England alone every year; with producers and promoters bringing work to be showcased and booked for onward opportunities.  The Fringe ecosystem needs support to host all of this. 

The UK Government have so far provided a Capital Grant to the Fringe Society to create a year-round Fringe Central space, and we have been making the case to build on this investment for the whole ecology. This could happen in several ways:

  • Theatre Tax Relief could be extended to support the venue infrastructure set up at the Fringe that is undoubtedly part of the production process
  • The Fringe should be supported by UK Government for its role as a driver of the Creative industries – Industrial strategy, and well-positioned for support from the £65 million recently announced by Secretary of State Lisa Nandy
  • It should be recognised as a Major Event for the UK, and its operating structures supported as would so readily be done with a sporting event of this scale and reach, such as an Olympic or Commonwealth Games
  • Arts Councils across UK should be investing in their artists to support them coming to the Fringe, as international showcases already do

The City of Edinburgh Council is crucial in providing a supportive operating context:

  • The Fringe will generate over £1million in Visitor Levy – this money should be ring-fenced to be redistributed in supporting the event
  • Affordable accommodation is the single biggest barrier to making the Fringe truly inclusive for creatives, workers and audiences.  There are three ways this could be alleviated
    • Exemptions on home-letting and home-sharing being real, effective and immediate
    • A mechanism for HMOs (houses of multiple occupancy) privately run student accommodation to be made available to artists during the summer months
    • A map of accommodation capacity within a one-hour commute of Edinburgh and the supporting transport routes to make that underused capacity viable

New structures have already been set up to create this joined up approach through a National Festivals Partnership and a Festival City Infrastructure group. Let’s hope these structures can finally bring a strategic and supportive approach, to enable the Fringe to sit comfortably within Scotland’s national cultural asset base whilst also being properly enabled to welcome the emerging performing artists and breakthrough work from across the UK and the world.

The Edinburgh Fringe is unlike any other cultural event in the world, in that it is largely self-financed by those who take the risk to make and show work. It is made up of hundreds of parts, all of which are important.  It is a wonderful balance of ticketed venues, street performance, free shows and pay what you want shows; from new discoveries to world-class and established artists.

It is the sum of these parts that makes it distinctive, inclusive, extraordinary and with something to say in the world.  The stability of the Fringe is dependent on a recognition by everyone involved in it; that it is not owned by anyone – no organisation, group, or collective. It has no super league or participant base that is any more important than any other. It is a platform for freedom of expression like no other – ever evolving, growing, contracting and contorting.

It is not stuck in any one period of time, and should never allow any single interest group or sense of entitlement to derail its beautiful, messy and joyful mission for inclusion and cultural democracy

Its mantra is to give anyone a stage and everyone a seat – and that’s a mantra worth protecting and championing. That’s the Fringe.  What a welcome it would be for the incoming CEO of the Fringe Society, if this extraordinary event was set on a new foundation stone where both the Fringe itself and the charity that supports it are validated and supported.  With that support and validation, the whole Fringe community can move forward together collaboratively to secure the future of this vital event.

The cultural sector review will perhaps take a closer look at why the Edinburgh Fringe doesn’t sit comfortably within the established mechanisms of investment in the cultural sector, and a new way may be found to give it investment and support. Edinburgh is a city that has given huge recognition to new infrastructure and investment in classical music and the classic artforms. 

It would be wonderful to see some validation of the forms of creative expression, such as comedy and street performance, which allow a significant point of access into the arts, and anyone to step into the opportunity to perform. 

Often all that is required is space, a microphone and a story to tell. 

Shona McCarthy, Chief Executive, Edinburgh Festival Fringe Society

Celebrating Edinburgh’s rich history through storytelling

As part of National Storytelling Week, Edinburgh 900 invites people and communities to share their connection with the capital city.

As part of National Storytelling Week, the Edinburgh 900 programme invites individuals, communities, and historians to share and explore their unique connections to the city’s fascinating past.

The Edinburgh and Scottish Collection at Central Library boasts one of the world’s largest and most unique collections of materials on Edinburgh, including rare books, maps, prints, photographs, and more.

Through a dedicated website users can access images and maps from the collection online. Our Town Stories features curated stories across various themes and partners with organisations to highlight Edinburgh’s rich and diverse past.

As part of the Edinburgh 900 celebrations, Our Town Stories offers an engaging and interactive journey through the city’s heritage with dynamic maps and timelines. These tools highlight significant objects, photographs, and people from the collections of Libraries, Archives, Archaeology Services, and Museums and Galleries. Over the coming months, more Edinburgh 900 themed captivating stories will be unveiled that span the centuries, offering new insights into Edinburgh’s evolution from the 1100s to the modern-day.

Some highlights already published include:

Lord Provost Robert Aldridge, said: “These stories delve into the pivotal moments in Edinburgh’s history, shedding light on the people, places, and events that have helped shape our extraordinary city.

“Our Town Stories makes exploring Edinburgh’s past easy—its interactive map brings the city’s rich history to life with images and maps from our collections. Whether you’re zooming in on a familiar street or discovering hidden corners of the city, this tool connects you with Edinburgh’s heritage in an accessible way.

“If you’re inspired and have a personal, historical, or cultural story to share that could enhance our understanding of Edinburgh’s past, we’d love to hear from you. Your contribution could become part of our ongoing narrative, helping to celebrate the city’s identity, creativity, and resilience, ensuring that Edinburgh’s 900-year story is preserved for future generations.”

For more information or to contribute your story, please get in touch at informationdigital@edinburgh.gov.uk 

You can also join the Edinburgh Collected community archive and contribute your pictures and memories to help shape the city’s collective history.

JRF report shows ‘shockingly high’ number of children in poverty living in working families, says TUC

The latest Joseph Rountree Foundation (2025) UK Poverty 2025 Report clearly shows that work doesn’t protect families from poverty.  

In particular, the report highlights the “shockingly high” number of children living in poverty in working families:   

  • 50% of children in families where at least one adult is (but not all adults are) in work live in poverty.  

Working-age adults are also impacted: 

  • Two-thirds (68%) of working-age adults living in poverty are in a household where at least one adult works.  

Responding to these figures, TUC General Secretary Paul Nowak said: “Every worker deserves to earn a decent living. But many working households are struggling to keep their heads above water.  

“This is unacceptable. Working people should be able to put food on the table for their families and keep their children warm during the winter.   

“After 14 years of Tory chaos and stagnation, we urgently need to boost living standards.   

“That’s why this government’s Make Work Pay agenda is so crucial for millions of families up and down the country. 

“More money in working people’s pockets means more spend on our high streets – that’s good for workers and good for local economies.  

“And the Employment Rights Bill will mean more good and secure jobs – boosting productivity for businesses and giving workers more control over their lives and better chances to progress.  

“Better work is crucial for ending child poverty, but decent social security matters too. The Government must remove the two-child benefit cap which is keeping too many children in working households in poverty.” 

11.5 million file Self Assessment by 31 January deadline

11.5 million file Self Assessment by 31 January deadline

  • More than 11.5 million taxpayers filed their Self Assessment tax return by midnight on 31 January.
  • 97.36% of tax returns were filed online.
  • 90.53% of expected filers filed their Self Assessment.

More than 11.5 million taxpayers beat the Self Assessment deadline to file their tax return for the 2023 to 2024 tax year by 31 January and avoid a £100 late filing penalty, HM Revenue and Customs (HMRC) can reveal.

The number of people who filed their return on deadline day was 732,498, with the most common time being 16:00 to 16:59 when 58,517 people filed. Thousands left submitting their return until the very last minute when 31,442 filed between 23:00 and 23:59.

HMRC is urging anyone who has missed the deadline to file their tax return now and pay any tax owed. One of the quickest ways to pay is via the free and secure HMRC app. Time to Pay arrangements are available for those who cannot pay their tax bill in full. Late filing and late payment penalties are charged for failure to meet the deadline.

Myrtle Lloyd, HMRC’s Director General for Customer Services, said: “Thank you to the millions of people and agents who filed their Self Assessment tax return and paid any tax owed by 31 January.

“I’m urging anyone who missed the deadline, to submit their return as soon as possible to avoid any further penalties. Search ‘Self Assessment’ on GOV.UK to find out more.”

The penalties for filing a tax return late are:

  • an initial £100 fixed penalty, which applies even if there is no tax to pay, or if the tax due is paid on time
  • after 3 months, additional daily penalties of £10 per day, up to a maximum of £900
  • after 6 months, a further penalty of 5% of the tax due or £300, whichever is greater
  • after 12 months, another 5% or £300 charge, whichever is greater

There are also additional penalties for paying late – 5% of the tax unpaid at 30 days, 6 months and 12 months. Interest will also be charged on any tax paid late.

If someone regularly sells goods or provides services through an online platform, they may need to pay tax on their income.

Customers can find out more about selling online and paying taxes on GOV.UK by searching ‘online platform income’ or by downloading the HMRC app.

The guidance will help them decide if their activity should be treated as a trade and if they need to complete a Self Assessment tax return.

Lord Provost Celebrates Gracemount’s National Award-Winning Success

Edinburgh’s Gracemount Leisure Centre, recently named Scotland’s Centre of the Year at the prestigious ukactive awards, welcomed the Rt Hon Lord Provost and Lord Lieutenant of the City of Edinburgh, Robert Aldridge last week to recognise their outstanding achievement in community fitness and wellbeing.

The Edinburgh Leisure centre which has seen a remarkable 14% increase in visits between 2022 and 2023, received the distinguished visitor for a comprehensive tour led by Managers Craig Cassidy and Jen Murray. The visit highlighted the facility’s exceptional contribution to community health and inclusion.

“We’re so much more than just a gym or a swimming pool – it’s a friendly and bustling community hub at the heart of the local area,” said Craig Cassidy, Manager at Gracemount Leisure Centre.

“With staff who go out of their way to make customers feel at home, it’s somewhere people feel inspired and empowered to live happy, healthy and active lives.”

The centre’s recent success is attributed to several key initiatives:

  • A major gym refurbishment featuring new Life Fitness equipment, leading to a dramatic increase in class participation from 226 to 706 customers monthly
  • Development of an extensive Additional Support Needs (ASN) programme, including multi-sports activities, and specialised family swimming sessions which supports over 100 families, giving parents and children the opportunity to get active together in a supportive environment.
  • Implementation of their Active Communities programme, providing access to hundreds of people affected by health conditions, disabilities, inequality, and poverty. Working alongside community partners, such as health professionals and social workers, projects such as Steady Steps for people at risk of a fall; Open All Hours, which gives local young people free access to fun diversionary activities on a Friday night; and Looked After & Active for care experienced children and young people make an active life more accessible for local people who face barriers to participation.
  • Investment in staff development and wellbeing, resulting in exceptional customer service scores of 9.5/10

The ukactive awards, open to all UK fitness facilities from independent studios to national chains and leisure trusts, recognised Gracemount’s outstanding commitment to meeting community needs through a rigorous assessment process including written submissions, customer surveys, mystery shopping, and digital reviews.

Gracemount’s success is further evidenced by its above-industry-average member retention rate of 14.4 months, demonstrating its vital role in promoting sustained community health and wellness.

Edinburgh part of major cancer study

PROJECT TO INVESTIGATE LONG-STANDING CANCER MYSTERY

Scientists are seeking participants in Edinburgh and the Lothians to help solve one of the longest standing mysteries in cancer – how and why it can take decades for mesothelioma to develop after exposure to asbestos. 

The Cancer Research UK-funded project, Meso-ORIGINS led by Professor Kevin Blyth at the University of Glasgow, aims to find a way to detect and treat mesothelioma earlier and investigate if the disease can be prevented in the first place.

Mesothelioma is a cancer which develops in the pleural space, the lining of the lung, and is caused by exposure to asbestos. Only a small proportion of patients with inflammation of the pleural space go on to develop mesothelioma. Asbestos fibres can embed themselves in different parts of the lungs so the disease can develop at different rates in different parts of the pleural space.

Only around 4 in 10 (44.3%) people diagnosed with mesothelioma in Scotland survive their disease for one year or more making new ways to detect it and treat it earlier vital.*

The research team are keen to recruit people in Edinburgh and the Lothians already diagnosed with benign (non-cancerous) inflammation in the lungs, who may have been exposed to asbestos.

The Western General in Edinburgh is among 28 hospitals across the UK currently recruiting patients, with the project extending over the next two years. Eligible patients who attend these hospitals will be offered the chance to take part in the study and contribute to mesothelioma research.

Vital data and tissue samples from participants will help build a picture of who is at most risk of developing mesothelioma and identify any genetic differences or biological markers which indicate a predisposition to the disease.

Dr Alexandrea MacPherson, Meso-ORIGINS Project Manager at the University of Glasgow, said: “Mesothelioma is a disease of time and space – after initial exposure to asbestos it can evolve over decades at different times and different places within the pleural space.

“We want to understand why mesothelioma takes so long to develop and to discover new ways of predicting the disease so it can be caught early.

“Once diagnosed there are very few effective treatments so discovering the signs before it begins, and finding a way to prevent it developing, is key.”

Mesothelioma currently has a very poor survival rate and can take more than 40 years to develop. Early symptoms such as chest pain, fatigue and constant coughing can be overlooked because they resemble other illnesses.

According to Cancer Research UK, the UK currently endures the highest incidence of mesothelioma worldwide, with the disease more prevalent in men due to occupation-related exposure, and around 200 new cases in Scotland each year.**

There was widespread industrial use of asbestos between 1950 and 1980, particularly in Glasgow and surrounding areas as the material was manufactured in nearby towns such as Clydebank and used in heavy industry like ship building, which the River Clyde was famed for.

Research funded by Cancer Research UK revealed there are no safe levels of working with asbestos. This led to health and safety policies to protect future generations from mesothelioma and the charity continues to invest in finding new ways to beat the devastating disease. 

While asbestos has been illegal to use in the UK since the early 1990s, mesothelioma cases have increased in recent years due to the long period of time it can take to develop, and asbestos remains legal in other countries.

Dr Catherine Elliott, Cancer Research UK Director of Research, said: “Mesothelioma, despite asbestos being outlawed decades ago, is increasingly being diagnosed and is in desperate need of more effective treatments.

“Cancer Research UK is delighted to support this research project which aims to shed a light on why it can take years to develop after someone is exposed to asbestos.

“Long-term in-depth research projects like this are essential to developing our understanding of cancer and helping us find ways to stop it in its tracks.”

For information on how to join the project please speak to your clinician. To find out more go to: https://www.cancerresearchuk.org/about-cancer/find-a-clinical-trial/a-study-to-find-out-more-about-mesothelioma-meso-origins.