Veronica Murphy, 70, from Wishaw in North Lanarkshire, is calling for every stroke survivor to get the chance of recovery that she did. Veronica received life-changing rehabilitation treatment after a serious brain haemorrhage in December last year.
Veronica’s call for action comes as the Stroke Association’s ‘Thriving after stroke’ report, published today, urges Health Boards to urgently deliver on government plans to enhance recovery after stroke.
Veronica said: “It was my birthday party on the day I had my stroke. My daughter noticed that there was something wrong with my speech so dialled 999, whereupon I was taken to the Queen Elizabeth hospital in Glasgow.
“At this point, I couldn’t swallow or move the right side of my body. I was very poorly, and don’t remember much. The doctors couldn’t say what kind of recovery I was going to make, and it must have been hard for my family.”
Veronica was transferred to University Hospital Wishaw, where she was put on a clinical trial and spent 10 weeks undergoing intensive physiotherapy.
She continued: “At first my family couldn’t see any improvement. But then one of my fingers moved, and it gave them a glimmer of hope.
“From then on there was no stopping me. I learnt how to stand, took my first step then gradually more with the support of a rail. My physios were amazing and put so much work into helping me.
“On leaving hospital I was given a plan detailing my goals for returning home. I was assigned a community nurse who checked up on me, noted my progress, and left her phone number asking me to call with any questions, at any time. I continued to get regular home visits from the physiotherapist and occupational therapist, and have achieved my goals of climbing the stairs, making a meal, and walking outside with help from my physio if needed.”
John Watson, Associate Director for Scotland the Stroke Association said: “Life after stroke support is a crucial, but under-provided, part of a stroke survivor’s recovery, helping them to regain independence, communicate, return to work, and deal with the emotional trauma that comes from stroke.
“Core rehabilitation therapies, such as physiotherapy, occupational therapy and speech and language therapy, are complemented by other forms of support to address longer-term practical, social and emotional needs that many stroke survivors have.
“Veronica’s experience shows how access to good stroke rehabilitation can be life changing. Unfortunately, we hear too many stories of stroke survivors leaving hospital not knowing what happens next, or where to turn.
Stroke is a leading cause of disability in Scotland, and there are over 130,000 stroke survivors living with the effects of stroke, many with ongoing support needs.
John continued: “Crucially this investment in people’s recovery saves money by helping stroke survivors regain their independence and reducing ongoing support needs.
“It has never been more important than now, to get life after stroke support right.”
The Stroke Association want to ensure every stroke survivor should:
- Leave hospital with a personalised rehabilitation plan.
- To maximise the benefit of post-hospital support, every stroke survivor should have their own rehabilitation plan. This should be agreed with the patient and their family or carers and issued before leaving hospital.
- Have contact information for ongoing support from stroke services.
- Every stroke survivor should have continuity of contact for their recovery from an experienced stroke professional who is familiar with them.
- Receive a review of their progress and needs six months after their stroke.
- Almost two thirds of stroke survivors leave hospital with a disability, with their needs evolving throughout their recovery. It is therefore vital they receive post-stroke reviews to identify these changes and plan further support or intervention.
Scotland’s Stroke Improvement Plan (2023) points to key pillars of holistic rehabilitation incorporating life after stroke support, including:
- Personalised care and support
- Patients and practitioners work jointly towards agreed goals
- Support to overcome communication and other difficulties affecting patient capacity for decision-making
- Psychological and emotional support
- Six-month reviews carried out by a healthcare professional knowledgeable and experienced in stroke and familiar with the patient
- Consideration of those with caring responsibilities.
Dr Matt Lambert, National Clinical Lead for Stroke and Specialty Advisor to the Chief Medical Officer: “What distinguishes stroke from other neurological conditions is the capacity for recovery. We know that getting the right support, in the right amounts, for as long as it is needed, makes all the difference.
“I want to see every stroke survivor resume their life with enhanced capacity, and with reduced need for ongoing support.
“This clearly benefits those who have had a stroke but also reduces their longer-term dependency on relatives, carers and health and social care services which benefits society more widely.”
Veronica concluded:“More recently, I am thrilled to report that I am now able to walk and pick up my four-year-old grandson, Nathan, from nursery!
“My family means everything to me. Without their support, and the specialist support from NHS Lanarkshire, I don’t know if I would be as well as I am today.
“If there was more investment in stroke rehabilitation, there would be less people requiring support, enabling them to work and be part of their community. It’s a win-win situation. I hope health boards can get on with meeting the commitments in the stroke plan and look forward to seeing Scotland leading in this area.”
