Almost 1000 people sit on waiting list for ‘life changing’ diabetes technology in NHS Lothian

New figures have revealed that almost 1000 people within the NHS Lothian region are waiting for life changing hybrid closed loop (HCL) system.

This is a devastating blow for diabetic patients who face extensive wait times to receive the technology.

Hybrid closed loop systems work to automatically adjust glucose levels depending on a patient’s blood sugar.

This is in stark contrast to the current system where the patient must manually adjust and administer the insulin themselves.

Paul Hughes, who works for Edinburgh Council and has had diabetes for 24 years, finds himself stuck on the waiting list for a HCL system.

Mr Hughes originally requested to be added to the waiting list in 2021 but found out, after inquiry, that he had not been added until 2023.

He is concerned that the ‘postcode lottery’ will mean he is not able to access an HCL system for the foreseeable future.

Mr Hughes has previously suffered a broken cheek and elbow from collapsing due to his blood sugar levels dropping too low.

He believes an HCL system is critical to improving his diabetes control and avoiding similar incidents in the future.

These figures were first revealed via FOI, by Labour MSP for Lothian, Sarah Boyack.

Ms Boyack has written an open letter (above) to Cabinet Secretary for Health, Neil Gray to ask what actions the Scottish Government is taking to urgently reduce these waiting lists.

Earlier this year, Ms Boyack hosted a roundtable of diabetic constituents who raised access to diabetes technology as a critical issue.

Commenting on these figures, Ms Boyack said: “The size of the waiting list is extremely alarming. This is life changing technology and patients across Lothian are in limbo waiting to receive it.

“I have had many constituents contact me, anxious about the lack of clarity for when they will receive an HCL system.

“The Scottish Government have announced funding to expand the HCL rollout, but it means nothing if it is not reaching people on the ground. That is why I have written to Neil Gray to ensure that type 1s across NHS Lothian are not left out in the cold when it comes to getting a HCL system”.

Paul Hughes added: “This technology would be life changing for me. I would no longer have to worry about my blood sugar dropping during the night, which currently keeps me awake.

“I am incredibly concerned about the long waiting list for those in NHS Lothian.

“I have sustained serious injury from collapsing due to low blood sugar so this technology cannot come soon enough.”

Support for Boyack’s Wellbeing and Sustainable Development Bill


Over 130 organisations, including NGOs, social justice charities, think tanks and economists, have come together to urge First Minister John Swinney to give the government’s backing to Sarah Boyack MSP’s Member’s Bill.

In a letter organised by WEAll Scotland, they tell Mr Swinney that “this is a key opportunity for the Scottish Parliament to work together to pass world leading legislation that delivers for the people of Scotland”.

Ms Boyack’s Member’s Bill aims to create better outcomes for future generations by placing new definitions of sustainable development and wellbeing into legislation.

It also seeks to establish a Wellbeing and Sustainable Development Commissioner to end short-term thinking in policy decisions.

The bill received cross party support but has not yet been formally endorsed by the SNP.

In the SNP’s 2021 manifesto they committed to bringing forward a Wellbeing and Sustainability Bill, however only put a consultation forward after Ms Boyack published her bill.

In the open letter, signatories highlighted the benefits of this bill and urged Mr Swinney to support Sarah Boyack in bringing it into law

Commenting on the support, Ms Boyack said: “It is great to have such a wide range of support from stakeholders across sectors, for my bill.

“There is clearly a deep recognition of the benefits that this bill can bring Scotland.

“This gives us in Scotland the opportunity to be a real leader in this field.

“I hope the First Minister listens to these stakeholders and supports my bill to ensure that we can finally embed wellbeing into the heart of Scotland’s politics.”

WEAll Director Aileen McCleod added: “In a just and compassionate Scotland, everyone should have the opportunity to live a good and dignified life.

“We know that people are struggling as we face multiple crises for people and planet. It doesn’t have to be this way.

“Right now, the Scottish Government is not utilising the full extent of their devolved powers. The recent Programme for Government was a missed opportunity to deliver lasting change.”

Sarah Davidson, Chief Executive of Carnegie UK also commented: “New wellbeing legislation could help Scotland make headway with the biggest challenges of our time by forcing more long-term thinking.

“The Scottish Parliament should get behind Sarah Boyack’s Bill because the only way we’re going to tackle issues like climate change or child poverty is through thoughtful action, co-ordinated across government and the wider public sector.”

Campaigners call on Scottish Government to back world-leading legislation

A broad group of campaigners have united to call for wellbeing and sustainable development to be at the heart of policy making in Scotland

Over 130 social and environmental justice NGOs, grassroots community groups, faith groups, service providers, funders, economists, academics, think tanks and business leaders have again joined forces in an open letter to the First Minister.

The group is united in their support of the Wellbeing and Sustainable Development Bill proposed by Sarah Boyack MSP.

The letter, led by the Wellbeing Economy Alliance Scotland (WEAll Scotland), is signed by One Parent Families Scotland, Stop Climate Chaos Scotland, The Poverty Alliance, Scotland’s International Development Alliance, Independent Food Aid Network, Quakers in Scotland and many others.

The group, who previously wrote to the First Minister in June, express their disappointment and concern that the Scottish Government failed to deliver on their long-promised Bill in the Programme for Government.

In the letter campaigners proclaim: “We believe this Bill is a vital step towards building a Wellbeing Economy by ending short term, sticking plaster solutions that fail to tackle today’s challenges at their source.”

WEAll Scotland Director, Aileen McLeod, said: “In a just and compassionate Scotland, everyone should have the opportunity to live a good and dignified life. We know that people are struggling as we face multiple crises for people and planet.

“It doesn’t have to be this way. Right now, the Scottish Government is not utilising the full extent of their devolved powers. The recent Programme for Government was a missed opportunity to deliver lasting change.”

The letter, sent to the First Minister John Swinney today, sets out how a Wellbeing and Sustainable Development Bill would create a step change in policy making: “It would create a clear and shared narrative of progress for Scotland; establish wellbeing and sustainable development as the drivers of policy and practice; help tackle the nature and climate crises; and contribute to global justice.

Sarah Davidson, Chief Executive at Carnegie UK, said: “New wellbeing legislation could help Scotland make headway with the biggest challenges of our time by forcing more long-term thinking.

“The Scottish Parliament should get behind Sarah Boyack’s Bill because the only way we’re going to tackle issues like climate change or child poverty is through thoughtful action, co-ordinated across government and the wider public sector.”

Tejesh Mistry, Chief Executive of Voluntary Health Scotland, said: “This Bill should provide a vital pathway for addressing the increasing poverty and inequality in Scotland at a time when a forward-thinking Wellbeing Economy driven vision is key to providing hope for people and services that are suffering.”

David Kelly, Head of Scotland for Community Transport Association, said: “Too many of Scotland’s cities, towns and villages have been designed with car dependency built in.

“Bigger roads, more drive-thrus and new neighbourhoods without buses, cycle lanes or even pavements have only driven up congestion, emissions and ill-health. We need a clear and rigorous definition of sustainable development in law to prevent bad planning decisions, build more accessible places and end transport poverty.

“We hope that the Scottish Parliament can unite behind Sarah Boyack’s Members Bill to help develop a sustainable transport system which works for everyone.”

Aileen McLeod continues: “Now is the time for action, it is essential that the First Minister gives his full support to Sarah Boyack’s Wellbeing and Sustainable Development Bill.

“There is already cross party support and our letter demonstrates the breadth and depth of support across Scotland. This is a key opportunity for the Scottish Parliament to work together to pass world leading legislation that delivers for the people of Scotland.”

The letter reads:

Edinburgh patient forced to go private following year-long wait

Edinburgh resident John Rowan (68) has had to go private for hearing aids after waiting over a year for his regular hearing aid check, despite the Scottish Government setting a waiting time target of 18 weeks.

Mr Rowan’s hearing loss originated from contracting measles as a child and the legacy of contracting measles is now affecting his hearing in later life.

Despite being retired, Mr Rowan is heavily involved in the charity sector and until recently, sat on the board of a Scottish-wide charity and he volunteers with several others.

In May 2023, Mr Rowan self-referred himself for a new hearing test and was added to the waiting list. Despite assurances his appointment would be in May 2024, he was not invited to an appointment.

The further deterioration in his hearing has left him struggling to hear basic conversations.

Due to this, Mr Rowan took the decision to go private to receive hearing aids.

Labour MSP for Lothian, Sarah Boyack, has been pursuing this issue on Mr Rowan’s behalf.

However, the NHS confirmed to Ms Boyack in May 2024, that due to pressure there was no confirmation for when Mr Rowan would receive his appointment.

Only after Mr Rowan had paid out of pocket for his hearing aids did the NHS get back in touch to confirm an appointment for August 2024.

Mr Rowan said: “My hearing test was due in May, however, unfortunately it was pushed back with no date given to me for when I might be tested.

“Due to the ongoing delay, I had to resort to going private to ensure I got the hearing aids I desperately needed.

“My loss of hearing affects me in day-to-day life, as I struggle to listen to conversations which I need to hear in the roles that I do with the voluntary sector.

“I am incredibly concerned if more is not done to tackle these waiting times then my hearing will only deteriorate further.”

Sarah Boyack MSP added: “Mr Rowan’s case illustrates the dire state that the Scottish Government have left NHS Lothian in.

“These delays and missed targets dramatically affect patients’ lives.

“It is unacceptable that Mr Rowan is facing further deterioration of his hearing due to delays.

“The Scottish Government must address the crisis in NHS Lothian as an immediate priority.

“No one should be having to pay out of pocket simply to be able to hear conversations with friends and family.

“If they don’t I fear cases such as Mr Rowan’s will only become more common.”

Diabetic patient denied health technology she tested due to health funding cuts

An Edinburgh based diabetic patient has been told she will be not given the new closed loop diabetic pump technology, despite the fact that she has been testing the system, for the NHS since last year.

Megan Ormond, who has had diabetes for all her teenage and adult life, contacted Labour MSP, Sarah Boyack to raise her situation.

Ms Ormond was taking part in a study of the closed loop system and was told partaking in this study would likely secure her the technology faster.

However, at her last meeting, she was told, due to budget cuts, the closed loop system would not be made available to her after the study.

While using this closed loop system, her HBA1C which is used by doctors to test a patient’s glucose levels over the last 3 months, has been the lowest it has been for her entire time with diabetes.

The Scottish Government’s Diabetic Improvement Plan cites rolling out the closed loop system, as quickly as possible as a key target.

However, due to budget cuts and required savings, NHS Lothian is unable to carry out their rollout of the system at their expected rate.

NHS England began rolling out the closed loop system on the 1st April 2024.

Commenting on Megan’s case, Lothians MSP Sarah Boyack, said: “Megan’s case shows the absolutely shocking state the SNP Government has allowed NHS Lothian to fall into.

“Life changing technology and treatment are being denied to patients due to a lack of funding. That is unacceptable anywhere in Scotland, never mind our nation’s capital.

“The Scottish Government must act to ensure Megan and other diabetics are able to access this ground-breaking treatment as they were promised.

“There is real opportunity to improve the quality of life for diabetes patients in Edinburgh, but that opportunity isn’t just being denied to my constituents its being snatched away.”

Megan said: “When I got told that there is potential no funding for me to remain on the system, I felt let down and upset.

“It’s like dangling a sweet in front of a child and then taking it away.

“I was informed a few months back that it was highly likely that I would remain on the system but that’s clearly not the case.

Part of my job of being a nurse is advocating for the most vulnerable in society but who is advocating for us type 1 diabetics?”

Information on a closed loop system can be found here:

https://www.diabetes.org.uk/guide-to-diabetes/diabetes-technology/closed-loop-systems

Violence and threatening behaviour ‘skyrocketing’ in Edinburgh schools

A dramatic increase in the number of violent and threatening incidents in Edinburgh’s schools has been revealed by figures from the city council.

In the 2014-15 academic year, there were 111 violent or threatening behaviour incidents across Edinburgh’s primaries and secondary schools. In the 2022-23 academic year this had skyrocketed to 618.

These figures come after the Scottish Government’s latest Research Report into school behaviour showed that almost 2/3rds of Scottish teachers have experienced verbal abuse and 59% have encountered physical aggression.

The number of incidents is higher in Edinburgh’s primary schools, which saw a leap from 242 for the academic year 2021/22 to 487 in 22/23.

High schools have seen a similarly dramatic jump but from a lower base, seeing an increase from 44 incidents in 21/22 to 131 in 22/23.

Commenting on these figures, Lothians MSP Sarah Boyack said: “The dramatic increase in violent and threatening behaviour in schools is extremely distressing.

“No teacher deserves to face violence or abuse in their classroom.

“The Council and school staff are doing a great job with the resources they have, but its clear more is needed to tackle this issue.

“Investing in pupil support will help us to tackle many of the root issues that cause disruption. We must also ensure that schools equip teachers with the necessary support if they are facing violent behaviour.

“Violence and threatening behaviour are not part of a teacher’s job, and it must be the Education Secretary’s top priority to tackle it.”

The data, acquired by FOI from City of Edinburgh Council is below:

Academic YearPrimary SchoolsSecondary SchoolsTotal number
01/08/2014 to 30/06/20151047111
01/08/2015 to 30/06/20161127119
01/08/2016 to 30/06/20171997206
01/08/2017 to 30/06/201817815193
01/08/2018 to 30/06/201929237329
01/08/2019 to 30/06/2020172441
01/08/2020 to 30/06/20211294133
01/08/2021 to 30/06/202224244286
01/08/2022 to 30/06/2023487131618

The Scottish Government Behaviour in Schools Research Report can be found here:

https://www.gov.scot/publications/behaviour-scottish-schools-research-report-2023

Boyack: SNP government’s ‘neglect’ of Edinburgh’s housing emergency

Labour Lothian MSP Sarah Boyack has today challenged the Scottish Government to finally intervene in Edinburgh’s housing emergency.

This comes after recent ONS figures illustrated the scale of Edinburgh’s crisis.

The figures revealed that the average rent in Edinburgh had an annual increase of 14.9%, almost 5% higher than the 10.9% increase across the whole of Scotland.

This is despite the Scottish Government having introduced a rent cap.

The average house price has also risen faster in Edinburgh, compared to the country as a whole.

The average price jumped 5.4% compared to last year, whereas it only rose 4.8% across all of Scotland.

These figures come after Edinburgh Council unanimously declared a housing emergency at the tail end of last year.

However, the Scottish Government refused to follow suit and voted down plans to declare a nationwide housing emergency.

Commenting on the ONS figures, Ms Boyack said: “These latest ONS figures have merely illustrate what we in Edinburgh have known all along – there is a serious housing emergency.

“The only Edinburgh resident who doesn’t recognise this crisis is the one living in Bute House.

“The decision by the SNP, not to intervene to alleviate this situation shows their neglect for our capital city.

“Myself and other Scottish Labour MSPs will continue to push the Scottish Government to act.

“It is vital that Edinburgh gets the help it urgently needs, before this emergency escalates any further.”

Boyack: Scottish Government leaving Edinburgh less safe by slashing police officer numbers

Labour, Lothians MSP, Sarah Boyack has slammed the Scottish Government over cuts to Edinburgh’s police officer numbers.

From the end of 2020 to the end of 2023, the number of police officers in Edinburgh plummeted by over 300 from 3894 to 3556.

This comes as the Scottish Government has finished consultations on closing multiple Edinburgh Police Stations, including Balerno and Portobello.

Over the same period, Edinburgh has also seen a rise of over a 1,000 crimes or offences recorded, rising from 12,987 in 2020/21 to 14,017 in 2022/23.

Commenting on the figures, Ms Boyack said: “This fall in police officers is deeply distressing and leaving Edinburgh’s streets less safe.

“Edinburgh’s police force does a great job to keep us safe, but the Scottish Government is making them do it with one hand tied behind their back.

“Closing police stations and cutting officers are not going to help us lower Edinburgh’s crime rate.

“The Scottish Government need to reassess their plans and ensure that Edinburgh’s police force has the resources to do its job.”

Quarter of Scotland’s sight loss population rely on Edinburgh’s ‘not fit for purpose’ Eye Hospital

Labour Lothians MSP, Sarah Boyack, highlighted new research from Sight Scotland, which reveals that a quarter of all Scotland’s sight loss population, live within council areas served by Edinburgh’s Princess Alexandra Eye Pavilion.

Edinburgh’s Eye Pavilion was deemed not fit for purpose, by the NHS, in 2014 and has been the subject of a long running campaign to have it replaced.

In this time, waiting times have skyrocketed, with research from Sight Scotland highlighting that the number of ongoing waits has increased by over 10,000 since 2014.

With reports of appointments cancelled or delayed due to maintenance issues, it is likely this will only increase as the facility deteriorates further.

These numbers illustrate the extent of the crisis hitting eye care on the East coast of Scotland.

All this comes as the Scottish Government has backtracked on their election commitment to replace the current Eye Pavilion.

The Scottish Government’s recent budget froze capital spending for a minimum of two years, ensuring the new Eye Hospital could not go ahead and throwing its long-term future into doubt.

Sight Scotland have identified safety risks for both patients and staff due to the dilapidated state of the current facilities.

There is also a lack of clarity regarding what actions will be taken in the interim to ensure that the 45,000 people with sight loss, in the Pavilion’s remit, are able to receive the adequate care they require.

Commenting on the figures, Ms Boyack said: “We knew there was a crisis in eyecare, but now we know the full extent of it.

“The fact that a quarter of all those with sight loss are having to rely on not fit for purpose facilities is a national disgrace.

“And now the Scottish Government is subjecting them to unknown delays due to SNP budget cuts.

“Patients don’t just deserve a new hospital, they need one.

“If the Scottish Government does not act soon, there will be dire long-term consequences for Edinburgh’s sight loss population.”

Peter Scobbie, a long-time patient of the Eye Pavilion, added: “I’ve been going to the Princess Alexandra Eye Pavilion for 18 years now and the building is in shocking condition.

“The layout is completely inaccessible with the patient support services on the top floor and the pharmacy on the bottom next to the waiting area.

“Half the time the lifts are out of order, so I’m forced to use the stairs which I don’t feel safe doing as the handrail is very low and a straight drop down to the ground.

“I’d go as far to say it’s dangerous, especially for people with no to low sight.

“The decision not to fund a new hospital is therefore incredibly disappointing and I’m worried for other patients and the growing number of people who will need specialist eye care soon – what will they do?”

Boyack slams Scottish Government over ‘disgraceful’ treatment of Lothians heart patients

Labour Lothians MSP, Sarah Boyack today slammed the Scottish Government for failing patients suffering with heart and circulatory disease.

Stats given to Ms Boyack by British Heart Foundation Scotland revealed there has been a 71% increase in people in the Lothians, waiting for an echocardiogram since 2021.

This is compared to an increase in 16% for Scotland as a whole.

Seven individuals have been revealed to be waiting over a year for the scan.

The concerning figures also stretch to outpatient cardiology appointments, where it was revealed in September 2023, that 55% of people were wating longer than the 12-week Scottish Government target.

These statistics come as it was revealed by NHS Lothian Board papers that NHS Lothian must make savings of 7%.

The papers also highlighted that the Scottish Budget also provided “no additional resource to cover inflationary costs and other new and emerging cost pressures”

Commenting on these statistics, SARAH BOYACK said: “These figures highlight the Scottish Government’s disgraceful failures in regard to heart and circulatory disease patients.

“It is even more troubling that while the situation is getting worse, the Scottish Government will not provide any additional resource to NHS Lothian.

“This is particularly worrying given Lothian’s population growth.

“If the Scottish Government does not act urgently, then this situation will continue to spiral into an emergency.

“People suffering heart and circulatory diseases deserve the top notch care our NHS is supposed to deliver.

“Instead, they are forced to endure unacceptable delays due to the Scottish Government’s lack of investment.

“If the Scottish Government doesn’t deliver additional funding soon, they will be letting down heart condition patients across the Lothians.”