Salvesen Mindroom Centre, a charity championing all forms of neurodiversity, is marking ADHD Awareness Month by presenting in-depth research on female Attention Deficit Hyperactivity Disorder.
“The neurodevelopmental condition affects approximately 2-7% of people worldwide but is less likely to be identified, diagnosed and treated in women and girls”, says pioneering global expert on the subject, Lotta Borg Skoglund.
The distinguished Swedish psychiatrist will deliver her findings at the annual Salvesen Lecture in Edinburgh this month (October 30). She believes symptoms are being misinterpreted and that a better understanding of the underlying mechanisms is required to reduce stigma, relieve suffering and improve the lives of females with ADHD.
She will present her inspiring research challenging outdated views on female ADHD and highlight the knowledge gaps in ADHD for women and girls – reflecting the theme of this year’s ADHD Awareness Month “Awareness is the Key!”
Lotta Borg Skoglundsays: “Most of what is known about the challenges of living with a neurodivergent brain comes from research conducted around boys and men. Neurodevelopmental conditions such as ADHD, ADD and autism are less likely to be diagnosed and treated in females, due to a difference in symptom display, co-occurrence, and societal gender expectations.
“Girls and young women with these conditions mask their difficulties and compensate with energy-consuming strategies. They are not invisible if we know what to ask for and listen to.”
Alan Thornburrow, CEO of Salvesen Mindroom Centre said: “We are dealing year-round with unprecedented levels of people seeking help for neurodivergent conditions, including ADHD. In the Edinburgh region alone, ten adults are being referred for diagnosis every day.
“ADHD Awareness Month provides a vital opportunity to raise the profile of these conditions – and the support available – across wider society. Anyone with undiagnosed ADHD can face significant difficulties in various aspects of their lives yet it can also enormously validate and enable understanding more about how we are “wired”, our inherent strengths and our ability to contribute. That’s why it is so vital to raise awareness to move from a deficit model which is all about what’s difficult or challenging towards a more positive and hopeful message about strengths.
“Lotta is an internationally acknowledged expert in her field and we’re delighted she has agreed to share her expertise. This is an important opportunity to learn about the neuroscience and epidemiology behind female ADHD and to discover how we can address the gaps in knowledge to improve life for women and girls experiencing this condition which can impact lives so significantly.”
A senior consultant physician trained in general medicine and psychiatry, Lotta Borg Skoglund is also an associate professor in psychiatry at the Department of Women’s and Children’s Health at Uppsala University and the Department of Clinical Neuroscience at Karolinska Institutet.
The free-to-attend event is being hosted by the Salvesen Mindroom Centre in collaboration with the Salvesen Mindroom Research Centre at Edinburgh University, a longstanding partnership that seeks to combine research and practical approaches to improve the lives of neurodivergent people and their families.
In addition to this, research conducted by Salvesen Mindroom Centre also highlighted that, while ADHD comes with its challenges, it may confer certain strengths that make life more enjoyable.
Some individuals with ADHD – male and female -have the ability to achieve intense, immersive, and long-lasting states of concentration when doing things that they particularly enjoy. In the ADHD community, this mental state is known as hyperfocus.
Researchers are only starting to look into the cognitive and neural underpinnings of this phenomenon, but those who have discussed their personal experiences with hyperfocus have emphasised the cognitive energy and boost in creativity that tend to accompany this state.
Many people with ADHD explain that they use these periodic states of intense focus to cope with the demands of modern working life and compensate for their general difficulties with attention.
The Salvesen Lecture is open to the public both in person and online and will be followed by a Q&A moderated by Salvesen Mindroom Centre’s CEO, Alan Thornburrow. It takes place between 6pm and 8pm on Wednesday, October 30, 2024, at The Larch Lecture Theatre, The Nucleus Building, University of Edinburgh.
For more information and to book a place in-person visit:
Neurodiversity charity Salvesen Mindroom Centre collaborates with local creative organisations to create opportunities and support the transition to life beyond school
Free-to-attend workshops will take place between 16 – 31 July
Salvesen Mindroom Centre, a charity that champions all forms of neurodiversity and supports all kinds of minds, has launched a series of creative workshops to support neurodivergent young people across Edinburgh this Summer.
The sessions, delivered through collaboration with local creative organisations Artlink Edinburgh and Out of the Blueprint, will encourage neurodivergent young people approaching the end of their school careers in Edinburgh and surrounding areas, to explore their hopes and dreams for the future and showcase often-hidden talent in the creative arts.
Kicking off with an afternoon of clay sculpture on Tuesday, July 16, the series will include ground-based circus skills on July 18, a 4-day series of eco-friendly comic art Riso printing workshops (from July 22 to July 25), an afternoon creating special effects make-up on July 29 and, to conclude, an afternoon of green screen video production on Wednesday, July 31.
Alan Thornburrow, CEO of Salvesen Mindroom Centre, said: “It’s clear to our dedicated team that the uncertainty around significant change to their well-known environment and the thought of meeting an array of new people when transitioning to life beyond school give rise to a high level of anxiety for neurodivergent young people who have reached the end of their scholastic careers.
“There is also, very often, a natural amount of creative talent, without the opportunity to explore how this might make the transition easier, and that’s why we decided to reach out to a range of incredible creative organisations in Edinburgh to ask if they might like to work with us to help facilitate this transition.”
Those qualifying for the free spaces available (14 to 18 years old, care experienced or on the edges of care and neurodivergent) will have the opportunity to apply for their preferred workshop using a dedicated booking form, or they can contact the team at Mindroom directly.
For bookings and full details around the different workshops, please use this link.
Salvesen Mindroom Centre sees 18% surge in enquiries
The soaring need for support with neurodiversity has signalled a huge jump in demand for the services of Salvesen Mindroom Centre.
The charity, which champions all forms of neurodiversity, has experienced an 18% rise in enquiries over the last year.
Access to education and assessment and diagnosis were key issues raised by parents and carers, along with communication, rights and responsibilities and mental health.
Data shows that children and young people were particularly concerned with challenges including post-diagnosis support, mental health and the transition from leaving school to moving into adulthood.
The latest statistics from the Edinburgh-based charity, which supports children and young people under the age of 25 with all forms of neurodiversity, show that over 1,393 people have been helped in the first three quarters of 2023, an increase of 19% against the entirety of 2022. The most common condition, affecting 82% of clients, was autism.
The enquiries came from within Scotland, predominantly from Edinburgh, Glasgow, and East Lothian, with the vast majority coming directly from potential service users and a third via professionals.
Salvesen Mindroom Centre’s Chief Executive Officer Alan Thornburrow says: “Raising awareness is one of the key goals of Mindroom. Our vision is a world where no mind is left behind. And while we’re delighted to have been able to help so many people this year, the story behind the statistics is one of huge need.
“It’s encouraging that so many more people are now aware of the help and support we can offer but the big rise in demand demonstrates an ever-growing desire among parents, carers, professionals and the young people themselves to help them lead the best life they can. We’re committed to doing everything we can to facilitate that.”
The charity’s latest initiative is a three-year specialist outreach service, financed by a grant from the National Lottery Community Fund, to deliver a dedicated one-to-one support service for children and young people who have neurodevelopmental conditions and neurodiverse families in North and South Lanarkshire.
Alan Thornburrow says: “We saw a rising demand in this area and have responded because we know just what an enormous difference receiving the appropriate help can make.
“The latest rise in figures is a challenge for us but one we are longing to overcome to help people achieve their true potential.”
Salvesen Mindroom Centre has confirmed that they have been awarded a £116,000 grant from the Scottish Government partner, The Promise.
This transformative funding, effective from October 2023 for 18 months, will revolutionise their transition service, amplifying its impact in Scotland and supporting neurodivergent care-experienced young people.
The core focus of this initiative is to provide individualised in-school support, guiding young people through their transition into adulthood, and nurturing the realisation of their full potential. This grant marks a pivotal moment in Mindroom’s planned expansion of the much-needed service.
Commenting on the grant award, Kelly McFadden, Project Manager of The Promise Partnership, said, “We are delighted to be able to support Salvesen Mindroom Centre with this funding.
“It represents a significant step towards creating a more inclusive and supportive environment for neurodivergent care-experienced young people across Scotland.”
Salvesen Mindroom Centre’s CEO, Alan Thornburrow, added: “This grant is a testament to the dedication and expertise of our team. We are immensely proud to embark on this journey, empowering young individuals to shape their own futures.”
Salvesen Mindroom Centre will be working closely with school students, offering personalised one-on-one guidance, using Mindroom’s distinctive “Future Me” resource.
This tool focuses on identifying strengths, aspirations, and dreams of the young person, while also addressing any necessary support they may require to turn these aspirations into reality.
The charity’s approach is rooted in its profound expertise in working with individuals who may have diverse communication needs, ensuring that every person has a voice in shaping their own future and achieving their full potential.
Alan Thornburrowcontinues: “Neurodivergent young people who are care-experienced, are all too often overlooked and it’s our unwavering commitment to ensure they are equipped with the same opportunities as their peers.
“We are dedicated to providing them with the tools, resources, and support needed to thrive and this funding will go a long way to supporting that.”
To extend their reach and impact, the charity is excited to announce plans to recruit and train a dedicated cohort of volunteers. This expansion represents a clear intention to build on their existing successful transition work within schools.
For more information on Salvesen Mindroom Centre go to:
Business leader, educator and entrepreneur Judy Wagner has been appointed Vice Chair of neurodiversity champions Salvesen Mindroom Centre.
Ms Wagner, a strong advocate for diversity in the workplace for three decades, has been a trustee of the Edinburgh-based charity for the past three years during which time her influential business network has helped to expand the charity’s reach and impact.
She has also enabled the charity to broaden its scope of service delivery and attracted new clients and opportunities to extend its services.
An Edinburgh University graduate and Fellow of the Royal Society of Edinburgh, she has been heavily involved in championing diversity issues since co-founding international executive search business FWB Park Brown in 1993 and has also worked with Scottish Enterprise to establish the Balancing the Boardroom project, the first of its kind in Scotland for women on boards.
Last year she was part of an independent review on Women in Entrepreneurship commissioned by the Scottish Government. She focused on the education sector, liaising with key leaders across the whole sector, examining how enterprise and diversity, including neurodiversity, could be embedded in our education system.
“There is no doubt that the best teams embrace diversity of all forms,” she says. “And the benefits of embracing neurodiversity in the workplace are well proven in ensuring success, attracting and retaining key talent and creating a welcoming environment.”
Ms Wagner, who is also passionate about Salvesen Mindroom’s role as a key partner in the Salvesen Mindroom Research Centre, part of the Centre for Clinical Brain Sciences at The University of Edinburgh, is committed to helping establish the charity as a centre of excellence for Neurodiversity, supporting children, young people and those in the workplace with leading research, advice and practical resources.
Salvesen Mindroom Centre’s Chair Sandy Manson, who has long argued for diversity to become a key business priority, says: “Judy’s ethos and enthusiasm are a perfect fit for us.
“She embraces everything we are trying to achieve and has already proved an impressive force for good on various fronts, including using her networks to publicise and attract delegates for the global It Takes All Kinds Of Minds conference we held in the city in March. We look forward to enhancing our offering further with her guidance as Vice Chair.”
Salvesen Mindroom Centre is a charity that champions all forms of neurodiversity and supports all kinds of minds. Their mission is to be a leading centre for change, in how we live, work and learn. They will achieve this through support, education, advocacy, and research. Visit their website for more information on the charity’s work.
Charities and community groups across Edinburgh are today sharing in the latest round of funding from The National Lottery Community Fund.
Thanks to National Lottery players, they are amongst 453 projects sharing in £11, 824,401 for a range of activities, helping to empower and connect people in communities across Scotland.
West Pilton’s FRESH START is among the big winners, receiving £180,000. The local charity will use the funding to continue to support people moving on from homelessness across Northwest Edinburgh.
Across the three years of the project, the group will support approximately 5,800 people with 450 volunteers. Volunteers will be individuals with lived experience of homelessness.
Fresh Start said: “We are delighted to announce that we have been successful in our fundraising application to the National Lottery Community Fund.
“This award will allow us to continue to run our services, helping people with lived experience of homelessness, providing support through starter packs, the community pantry, community meals, empowering people with new skills, growing produce, cooking skills and having access to specialised advice.”
The National Lottery Community Fund, Scotland Chair, Kate Still, said: “National Lottery funding can make amazing things happen in local communities across the country.
“This project delivered by Fresh Start (Scotland), is a great example of community activity in action, showing just what can be achieved when people come together for a common cause or to help others.
“National Lottery players can be proud to know that the money they raise is helping to support this vital work which is making a real difference to so many.”
Edinburgh College received over £136,000 to continue delivery of their counselling service for students. The counselling is delivered by trained staff, either in person or online, and is flexible to suit the schedule and needs of the individual in need of support.
There was over £82,000 for Edinburgh Women’s Aid, who will use their funding to build an integrated mental health programme for women and children who have experienced domestic abuse.
As well as supporting hands on mental health delivery, this project will look to improve internal evaluation processes and engage with other services across Edinburgh to make their services more effective. The project will work with 555 people over the three year delivery period.
Dads Rock received £67,391. The project will continue to match trained peer support volunteers with new dads during the perinatal period who are experiencing anxiety, depression, difficulties in bonding with their new baby.
Passion4Fusionoffer a range of programmes for the diverse needs of minority ethnic families in Edinburgh and the Lothians. Thanks to an award of £41,500 they will be able to offer a range of support services for black, African people dealing with long term conditions.
One service user Nala* (*not her real name) a 57-year-old African woman with a range of long-term health conditions who moved to Edinburgh to seek asylum.
Nala was missing important appointments as she struggled to read and interpret her medical letters in English. A worker from the project supported her to understand the health systems in Scotland, linked her with African groups and supported her at hospital appointments.
Nala said: “I am very happy I found people like me who can understand my situation. I was feeling very lonely and isolated but now I have my new African family I belong to.
“I am now able to do things that I haven’t been able to do in a while for instance, I really love going to the gym and I wouldn’t have done it without the support.”
Commenting on the project Huruma Health worker Lucrecia said “There is nothing more rewarding than helping others.
“As you can imagine, being alone in this country can be challenging and most of our service users have no immediate family members. The Huruma project creates culturally appropriate family support and a sense of belonging.”
Jonathan Ssentamu, Founder and CEO, Passion4Fusion, said “The Huruma Project continues to address the disproportionate impact of health inequalities affecting Africans in our community who are finding it difficult to access mainstream services.
“This contribution is enabling us to support our service users, we’re so grateful for the continued support for our work.”
An award of £30,000 means that the Scottish Book Trust will run their ‘Reading is Caring’ programme for the next three years.
The programme uses shared reading to support people living with dementia and anyone who cares for them and is designed to ease daily challenges of dementia by creating special moments of connection, sparking positive memories and relieving stress.
Martha and her husband Sandy took part in the project while caring for Martha’s mother Susan, who was living with dementia at the time.
Martha said: “Thank you again for your wonderful course – it added new skills and confidence to the way I read with Mum for her last few months and that was something very special.”
Commenting on the latest funding, Koren Calder, Project Manager, Scottish Book Trust, said: “This funding from The National Lottery Community Fund will allow us to reach more people living with dementia and the people who care for them, by creating new, flexible ways to access the benefits of the Reading is Caring programme.”
A neurodiversity charity is to launch a three-year specialist service for children and young people in Lanarkshire living with the challenges of neurodiversity thanks to Lottery funding.
Edinburgh-based Salvesen Mindroom Centre has been awarded £109,343 from The National Lottery Community Fund, made possible by National Lottery players, to deliver a dedicated one-to-one support service for children and young people who have neurodevelopmental conditions and neurodiverse families in North and South Lanarkshire.
The initiative will be led by two highly-skilled outreach specialists within the communities and address issues including problems surrounding the assessment and diagnosis of neurodevelopment conditions; securing appropriate help at school or in further and higher education; and dealing with complex correspondence and multiple agencies.
Support will be tailored to individuals and families and is aimed at achieving positive changes on a practical level and, through advocacy, ensuring the voices of children and young people are heard.
Between 15 and 20% of the population are estimated to be neurodivergent and Mindroom has witnessed a 137% rise in people using their services in Lanarkshire since 2018.
Chief Executive Officer Alan Thornburrow says: “We have seen at first hand the difference that receiving appropriate resources can make to neurodivergent children, young people and neurodiverse families in crisis.
“Over a number of years, we have steadily increased our caseload in Lanarkshire in response to a growing demand for our services and we’ve had some amazing feedback from clients whose lives have improved.
“This award from the National Lottery will help us ensure that many more people are helped and their lives transformed. We put the needs of the client at the very heart of our rights-based approach and aim to empower individuals, families and carers to become more confident and active participants in whatever they choose to do.
“We already have valuable, established relationships with a range of agencies and organisations in Lanarkshire including the NHS, Love Autism, schools and social work departments. This longer-term funding will enable us to build on these vital connections and increase our provision so that more neurodivergent children and young people and neurodiverse families can receive personalised help and benefit from opportunities for enhanced support.”
The National Lottery Community Fund, Scotland Chair, Kate Still: said: “National Lottery funding can make amazing things happen in local communities across the country.
“This project delivered by The Salvesen Mindroom Centre (SMC), is a great example of community activity in action, showing just what can be achieved when people come together for a common cause or to help others.
“National Lottery players can be proud to know that the money they raise is helping to support this vital work which is making a real difference to so many.”
The Lanarkshire initiative, funded under the National Lottery’s Improving Lives scheme, will run from September 1 this year to the end of August 2026.
For more information on the Salveson Mindroom Centre go to:
Commenting on the latest grant round of funding The National Lottery Community Fund, Scotland Chair, Kate Still: said: “National Lottery funding continues to make extraordinary things happen in communities across Scotland.
“I am delighted that this funding will be used to support projects across Edinburgh which have been developed by and for local people which will allow communities to come together to make life better for everyone.
National Lottery player players can be proud to know that that money they raise is helping to support this vital work in Edinburgh.”
The National Lottery Community Fund distributes funding on behalf of National Lottery players who raise more than £30 million each week for good causes throughout the UK.
Funded places to ensure inclusivity and support for a society where all forms of neurodiversity are embraced, and no mind is left behind
The organisers of It Takes All Kinds Of Minds – ITAKOM, the global conference advancing insights into neurodiversity, have announced a special bursary scheme aimed at making the event accessible to all those who wish to attend, regardless of financial constraints
Salvesen Mindroom Centre, the Edinburgh charity behind the conference, is offering up to 65 places, either fully or partially funded, for the international event set to take place in the Edinburgh International Conference Centre at the heart of the Scottish capital (13-14 March 2023).
Alan Thornburrow, Chief Executive Officer of Salvesen Mindroom Centre said: “Inclusion is hard-wired into how we think, act and convene. And in these difficult times, we’re acutely aware of the impact of the cost of living crisis and we’re determined to do everything that we can to make sure that this spirit of inclusion, which we hold so dear, applies to our global conference.
“We’re delighted to launch a bursary fund to make attendance affordable to potential delegates who would otherwise not be able to attend ITAKOM – and we’d encourage anyone interested to apply.”
The two-day event will bring together different perspectives, enabling us to better understand neurodiversity and work together towards our vision of a society where all forms of neurodiversity are embraced, and no mind is left behind.
The conference will draw together HR workplace professionals, practitioners, academics, the care sector—and of course, parents, siblings and families and will present the latest knowledge and visions for the future of embracing neurodiversity.
More than 50 speakers from around the world, including experts on neurodiversity in the workplace, neuroscientists, clinicians, educators and comedians, among them Edinburgh’s satirical impressionist Rory Bremner, a neurodiversity advocate after being diagnosed with ADHD – will address delegates.
The It Takes All Kinds Of Minds conference will be held both in-person and virtually and assistance is available as a bursary for complimentary registration or as discounted registration at a reduced rate. Awards will be made on an individual’s circumstances and availability within the fund.
To apply email ITAKOM@integrity-events.com stating the reasons for the application. Group discounts are also available with one free delegate place offered for every five conference passes purchased. To apply for a group discount email ITAKOM@integrity-events.com.
