Tag: public health

‘HELP IS ON IT’S WAY’

Green light for coronavirus vaccine rollout

Vaccinations to start next Tuesday in Scotland

The UK has become the first country in the world to approve a coronavirus vaccine for widespread use.

It’s understood that a public vaccination programme, using the Pfizer/BioNTech vaccine, could be under way as early as NEXT WEEK.

Health Secretary Matt Hancock said this morning: “2020 has been just awful but 2021 now looks so much better. I can now say with certainty that help is on it’s way. This will take time to roll out but I am confident now, that from Spring, from Easter onwards, things are going to be better and we wll have a summer that everybody can enjoy.

“We still face a difficult winter – but dawn is on the horizon.”

British regulator, the MHRA, says the jab, which offers up to 95% protection against Covid-19 illness, is safe for roll out next week.

A Department of Health and Social Care spokesperson said his morning: “The Government has today accepted the recommendation from the independent  Medicines and Healthcare products Regulatory Agency (MHRA) to approve Pfizer-BioNTech’s COVID-19 vaccine for use.

“This follows months of rigorous clinical trials and a thorough analysis of the data by experts at the MHRA who have concluded that the vaccine has met its strict standards of safety, quality and effectiveness.

“The Joint Committee on Vaccinations and Immunisations (JCVI) will shortly publish its final advice for the priority groups to receive the vaccine, including care home residents, health and care staff, the elderly and the clinically extremely vulnerable.

“The vaccine will be made available across the UK from next week. The NHS has decades of experience in delivering large scale vaccination programmes and will begin putting their extensive preparations into action to provide care and support to all those eligible for vaccination.

“To aid the success of the vaccination programme it is vital everyone continues to play their part and abide by the necessary restrictions in their area so we can further suppress the virus and allow the NHS to do its work without being overwhelmed.

“Further details will be set out shortly.”

TUESDAY START FOR VACCINATIONS IN SCOTLAND

Deliveries of the first coronavirus (COVID-19) vaccine to Scotland are expected to be made next week with injections being given from Tuesday 8 December.

The Medicines and Healthcare Products Regulatory Agency has confirmed that the vaccine developed by Pfizer and BioNTech has been authorised for use in the UK.

The vaccine, which must be stored at well below freezing, will be transported to 23 locations around the country in temperature controlled lorries.

Everyone being vaccinated will need two vaccines, between 21 and 28 days apart.

Those giving the vaccination to others will receive the injection first. The programme will then follow the independent advice received from the Joint Committee on Vaccination and Immunisation (JCVI), which recommends prioritising those with the greatest clinical need – including those aged over 80, and health and social care workers. The storage requirements mean logistics around delivery to care homes are more challenging and they are currently under consideration.

Health Secretary Jeane Freeman said: “Today’s announcement confirming that a safe and effective vaccine can now be used is the best news than any of us have heard about the virus since the pandemic began.

“As long as we receive the first doses of vaccine when we expect to, we will begin vaccinating from Tuesday next week.

“It is of course worth remembering that everyone will require two vaccines, with the second vaccine between 21 and 28 days after the first,  so even for those who are among the first, there will be very few completed until early next year.

“We intend to vaccinate the vaccinators first, followed by the priority groups recommended by the JCVI, however we also need to take account of  the conditions attached to the authorisation to supply the vaccine which will present challenges around transporting the vaccine to care homes and individual homes.

“We are therefore in the process of working through how we can ensure people in priority groups in those settings can be vaccinated.

“For all the difficulties that lie ahead, it should give us all real hope that the end of the pandemic is in sight.”

Over sixties invited for vaccine

Second phase of flu vaccine begins today

People aged 60 – 64 will be invited to receive the seasonal flu vaccine from 1 December as part of the largest flu immunisation program ever delivered in Scotland.

The most effective way to protect against flu this winter is continuing to prioritise those who are most at risk, especially in light of the coronavirus (COVID-19) pandemic.

With vaccination for the first phase of the flu programme well under way, eligibility is being extended next to those aged 60-64.

Those entitled to the flu vaccine will receive an invitation letter by post from their health board letting them know where they can receive the vaccine and how to book an appointment.

Deputy Chief Medical Officer Dr Nicola Steedman said: “Flu is serious in itself, but with COVID-19 also circulating in the community, getting a flu jab is more important than ever.

“For those who may be concerned about going to get the flu vaccine, we can assure you that there will be strict infection and prevention control measures in place at delivery sites to protect you.

“The vaccine is safe, and the best protection we have against flu. This year more than ever it is important that those invited for vaccination take up the offer to protect themselves, their family and, where possible, the NHS. I’ve had my vaccine already, and would urge all of those who are eligible, including the new group of 60-64 year olds, to get one too.

“We will continue to adapt our approach to any changes that occur throughout flu season, always prioritising those most at risk from flu, as well as seeking to protect the NHS.”

NHS Inform is the best source of information for finding out more about how you will be invited to book a flu vaccine appointment 

A Cautious Christmas: Joint agreement on festive period

Have a Happy Christmas – but hang back at Hogmanay

The Scottish Government has agreed a cautious and limited relaxation of the rules on household meetings to support people over the Christmas period.

A maximum of three households are to be able to meet in a “bubble” during a short window of time across the festive period.

Households will be able to travel between local authorities and between the four nations during December 23 and 27 to form a bubble, and must only join one bubble.

The five-day period provides time for travel, and for those who may have to work over Christmas. Households are not required to use all five days and should keep visits to no more than one or two days if possible.

Confirming the plans, First Minister Nicola Sturgeon said it is clear that there is a risk inherent in any relaxation of the restrictions and asked everyone to consider very carefully whether the opportunity to mix for a few days is necessary given the risk of spreading the virus.

She said: “We know that for some, contact with friends and family is crucial during this time as isolation and loneliness can hit people especially hard over the Christmas period. The “bubble” approach aims to reduce this impact.

“But we must be clear, there cannot be any further relaxation of measures for Hogmanay.  Even this short relaxation will give the virus a chance to spread. Our priority is to suppress transmission of COVID-19 and reduce the risk to the vulnerable and those who have spent so long shielding – and that involves abiding by the rules.

“Just because you can mix with others indoors over this time, that doesn’t mean you have to. If you choose to stick with the rules as they are, then you will be continuing the hard work to beat this virus and prevent its spread.”

The approach states:

  • a “bubble” should be formed household to household only (i.e. different people in a household should not pick their own bubble)
  • between 23 and 27 December, people can meet in an exclusive “bubble” composed of three households
  • you should stay with your “bubble” where they are hosting you and you should follow the travel advice for the level you are in (e.g. people being hosted in a level 3 area cannot go on an outing to a level 2 area)
  • within your “bubble”, you can gather in a home, an outdoor place or a place of worship
  • in all other settings – eg. hospitality, entertainment venues – those who have formed a bubble must only socialise with members of their own household
  • households deciding to form a bubble will be advised to limit social contact before and after the period of relaxation

Further detailed guidance will be published shortly.

The UK Government and the Devolved Administrations agreed on joint arrangements for an easing of social restrictions that will allow friends and loved ones to reunite over the Christmas period.

All four parts of the UK have signed off an aligned approach allowing up to three households to form a ‘Christmas bubble’ from December 23 to 27.

Individuals will also be able to travel between tiers and across the whole of the UK without restriction within the five-day period, for the purposes of meeting with their bubble. Those travelling to and from Northern Ireland will be permitted to travel an additional day either side.

The approach was agreed by Chancellor of the Duchy of Lancaster, Michael Gove, and the First Ministers of Northern Ireland, Scotland and Wales and the deputy First Minister of Northern Ireland during a COBR meeting he chaired yesterday afternoon.

Speaking following the meeting, Mr Gove said: “The UK-wide agreement reached today will offer hope for families and friends who have made many sacrifices over this difficult year.

“We know that the Christmas period this year will not be normal, but following constructive discussions between the UK Government and the Devolved Administrations, families and friends will now have the option to meet up in a limited and cautious way across the UK should they wish.

“In coming to this agreement, we have listened to scientific and clinical advice on how best to minimise the risk and reach a balanced and workable set of rules that we hope will allow people to spend time together at this important time of year.”

Each administration will clarify their own rules on support bubbles and extended households in due course.

In England, support bubbles will continue to be counted as one household.

Christmas bubbles will be able to gather in private homes, attend places of worship together and meet in outdoor public places. Beyond this, people should continue to follow all other local restrictions in the area. Guidance is being published on Gov.uk.

As part of the agreement, each administration will be reminding households that they should remain alert to the risks still posed by the virus and consider how, where possible, they can celebrate and support more isolated friends and loved ones through alternative approaches such as video calls and meeting outdoors.

When following these new rules, people are reminded to continue to take personal responsibility to limit the spread of the virus and protect loved ones, particularly if they are vulnerable. Forming a bubble for those who are vulnerable or clinically extremely vulnerable carries additional risks.

The four parts of the UK will work together to communicate these new measures across the country and ensure that communities are aware of any variations in approaches.

Details of the new measures can be found in the joint statement, agreed yesterday.

New clinical trial launched for early treatment of COVID-19

A potential treatment for COVID-19, which has shown early promise in China and Japan, will be trialled in NHS Greater Glasgow and Clyde.

Glasgow is the first area in Scotland to have access to the drug, which can be taken at home when patients are in the early stages of disease as well as by hospitalised patients.

Over 300 eligible patients with COVID-19 will be invited to join the new research study into the effectiveness of the antiviral drug, favipiravir.

The trial will target early treatment of the virus for those who test positive and must be taken within four days of a COVID-19 swab test. This treatment is intended for people with milder symptoms.

The ground-breaking research is a collaboration between NHS Greater Glasgow and Clyde and the University of Glasgow, funded by the Chief Scientist Office of the Scottish Government. 

The study, Glasgow Early Treatment Arm Favipiravir (GETAFIX), will assess the effectiveness of the drug to help with symptoms and reduce the time it takes to recover from COVID-19.

Favipiravir has been developed by Fujifilm Toyama Chemicals in Japan and an early study on its effectiveness has shown it to alleviate some symptoms.

Three hospitals are taking part including Queen Elizabeth University Hospital, Glasgow Royal Infirmary and Royal Alexandra Hospital. Patients may receive treatment in hospital or as outpatients.

The antiviral treatment is taken in tablet form. Half the patients involved will receive the drug twice a day for 10 days alongside standard treatment, with the other half receiving standard treatment for comparison.

The study is organised by the Cancer Research UK Clinical Trials Unit in Glasgow and supported by the Glasgow Clinical Research Facility.

Prof Rob Jones, Director of the CRUK Clinical Trials Unit, Glasgow, and Chief Investigator of the study commented: “COVID-19 was a disease few of us had even heard of before the spring. Although hopes are high ongoing vaccine trials will help prevent infection, this trial aims to improve current treatment for those unlucky enough to contract it.

“With the GETAFIX trial, we will be rapidly looking at whether this antiviral treatment may help kill off the virus in those affected and prevent more serious complications.”

Dr Janet Scott (MRC-University of Glasgow Centre for Virus Research) said: “This drug is active against many viruses, it is used already for influenza in Japan. We are able to offer it not just to patients in hospital but also for home use.

“Our hope is that it will stop mild symptoms developing into serious ones. We are targeting volunteers who are at higher risk of progressing to serious COVID19 such as those over 60 years old or with underlying health problems.”

COVID vaccinations from next month?

The first coronavirus (COVID-19) vaccinations could be given to health and social care staff, older care home residents and those over 80 years old who live in the community from as early as next month – December 2020.

Updating Parliament on the safe delivery of COVID-19 vaccines, Health Secretary Jeane Freeman outlined that the first groups to be prioritised for vaccination have been identified based on current independent clinical advice.

Once these initial priority groups have been vaccinated, those over 65 will be offered the vaccination along with those under 65 who are at additional clinical risk, before moving on to the wider population over the age of 18. 

An agreement has also been reached with the British Medical Association on the terms and conditions of GPs’ involvement in the programme.

Health Secretary Jeane Freeman said: “I want to be clear that safety is paramount in our approach to the COVID-19 vaccination programme.

“The global scientific, research and pharmaceutical community has come together and worked as never before. That is why we are seeing the front running vaccines delivered in months rather than years, but it is not at the expense of safety.

“Any COVID-19 vaccines deployed in Scotland will be used on the basis of compelling public health grounds, and only when the regulatory bodies and those charged with providing independent clinical advice are satisfied in terms of vaccine safety and effectiveness. The groups we vaccinate first will also be those most at risk from COVID-19.

“Scotland has a strong track record of delivering immunisation programmes, but this programme will be the largest of its kind ever undertaken and we will need more than 2,000 vaccinators and support staff by the end of January for the first phase.

“This is a national vaccination programme which will set out clearly the parameters within which NHS Boards will lead local delivery.

“NHS Boards will identify acceptable and accessible locations, both for mass vaccination and for local access.

“Taking account of local population and geography, they will undertake recruitment and deployment of staff, and the management of local vaccination clinics.

“We will be getting in touch with the first priority groups in the coming weeks and I urge people to take up the vaccine when they are offered it.  It offers additional protection that we don’t have by other means.

“I also want to thank those who are not in the first priority groups for their patience as we protect the most vulnerable people in our communities first, in line with the scientific and clinical evidence. 

“The most important thing you can do to protect yourself and others from the virus in addition is to continue to check and follow the Scottish Government’s guidance for your area and above all to follow FACTS.”

Full statement to Parliament

Visit nhsinform.scot/coronavirus for more information

Botanics Light trail now set to open on 2 December

Botanics calls for support from Edinburgh residents

The organisers of Christmas at the Botanics have announced a rescheduled opening date of Edinburgh’s festive illuminated trail.  Due to begin on 26 November, the trail will now start on 2 December 2020 and continue for 28 nights on selected evenings until 3 January 2021.

The decision to delay the opening of Christmas at the Botanics has been made to enable additional refinements to the trail’s health and safety guidance in line with Scotland’s new Covid-19 local protection levels which are being regularly reviewed and updated by the Scottish Government.

Jonathan Marks, Chief Development Director at Raymond Gubbay, a division of Sony Music, which promotes the trail, commented: “The health and safety of visitors and our trail staff remain a top priority and we will continue to monitor and respond to Scottish Government guidelines as they are reviewed and amended. 

“In this ever-changing situation, delays have been inevitable.  This has impacted on the time required to build the trail.  It takes hours of precision and expertise to install, and for the artists and production team to create an amazing light experience.  The teams are working tremendously hard to facilitate the opening of the trail without further delay, created with safety in mind.”

This year, now more than ever before, the trail’s success is dependent on support from the residents of the City of Edinburgh local authority area.  

Simon Milne MBE, Regius Keeper of Royal Botanic Garden Edinburgh said: “We are calling on the people of Edinburgh to show their support by visiting Christmas at the Botanics.

“By coming to the trail not only will visitors enjoy a wonderful festive experience but also help us and our work enormously.  Profits from the trail go to help finance our important and innovative plant research and conservation programmes in Scotland and around the world.  Never has our work been more crucial as we face the interrelated challenges of the COVID-19 pandemic, biodiversity loss and climate change.

“This has been a hugely difficult year for us all.  At the Botanics, we want to end the year by creating something very special for the City and we hope everyone will come and enjoy some festive fun.”

More information on the trail can be found at rbge.org.uk/christmas.

The website also contains information for those people who held tickets between 26 November and 1 December with an option to transfer a ticket to another date, request a refund or option to donate the cost of the ticket to the Botanics which will help to support the vital research and conservation that the charity provides.

New Covid testing site opened

The UK Government yesterday opened a new walk-through coronavirus testing centre at Thimblerow Car Park (PH1 5QT), in Perth. The centre is easily accessible for people without a car.

The new facility is being provided by the UK Government as part of a UK-wide drive to continue to improve the accessibility of coronavirus testing for local communities. It is operated by Mitie on behalf of the UK Government.

The test centre is part of the largest network of diagnostic testing facilities created in British history. In Scotland, this comprises of 6 drive through sites, 13 walk through sites, 21 mobile units, plus the Glasgow Lighthouse Lab which is working round the clock to process samples.

A new Scottish megalab has also been announced – this will provide capacity to process an extra 300,000 tests a day, create thousands of jobs and play a key part of the UK’s national infrastructure response.

In Scotland, the UK Government is providing all Covid testing and test processing outside of the NHS. Around two thirds of all daily tests are provided by the UK Government, in support of Scotland’s health services.

Tests must be booked in advance at NHS Inform or by calling 0800 028 2816. People should only book at test if they have coronavirus symptoms (a high temperature, a new and continuous cough, or a loss or change to their sense of smell or taste).

Health Minister Lord Bethell said: “To respond to the coronavirus, we have built a major testing and tracing system from scratch. We are constantly working to expand and improve it with new technologies and innovations so everyone with symptoms can get a test.

“New walk-in sites like this one makes it even easier to get a test no matter where you live. If you have symptoms of coronavirus, I urge you to book a test today and follow the advice of NHS Test and Protect if you are contacted to protect others and stop the spread of the virus.”

Baroness Dido Harding, Interim Executive Chair of the National Institute for Health Protection, said: “Walk through sites offer communities better access to coronavirus testing, so everyone with symptoms can get a test.

“This new site is part of our ongoing work to expand our testing network across the UK which is now has the capacity to process more than 500,000 tests a day. We will continue to expand capacity to improve test turnaround times and push forward testing innovations to make sure anyone who needs a test can get one.

Please book a test if you have coronavirus symptoms: a new continuous cough, a high temperature and a loss or change in sense of smell or taste, and follow the advice of NHS Test and Protect if you are contacted.”

UK Government Minister for Scotland, Iain Stewart, said: The UK Government is helping all parts of the UK fight the coronavirus pandemic.

“Testing is vital, helping to manage local outbreaks and protecting people’s livelihoods. The UK Government is providing the bulk of Covid testing in Scotland, and this new walk-through centre is just the latest in our extensive testing network.

“We are pleased to be working with local and commercial partners. These sites are not possible without the hard work of many people. I would like to thank everyone involved for their incredible efforts for the good of the country at this difficult time.”

Dr Emma Fletcher, Director of Public Health for NHS Tayside said: “This new walk through testing centre is very welcome and provides an additional opportunity for people to access testing in the Tayside area.

“People are reminded that if they show any symptoms of COVID-19 they should isolate, along with their household, and seek testing immediately.

Simon Venn, Mitie Chief Government & Strategy Officer, said: Our priority during the pandemic is to support the nation’s efforts to fight COVID-19 and help keep the country running.

“Testing is a critical part of the UK’s strategy to combat coronavirus and we’re proud to support the UK Government with this vital task. A big thank you to all the NHS staff, Mitie employees and other frontline heroes in Perth, who are working tirelessly to keep us all safe.”

Drive-through testing sites

Testing under the UK programme in Scotland is currently conducted in drive-through sites operating at:

  • Glasgow Airport
  • Edinburgh Airport
  • Aberdeen Airport
  • Prestwick Airport
  • Inverness – University of the Highlands and Islands campus
  • Dundee – Dudhope Castle

There are also a number of mobile testing units which will be located in towns across Scotland for short periods each time. 

Walk-through testing sites

You may be able to access testing via a walk-through testing site. You should walk or cycle to this site and avoid travelling by public transport or taxi.

You can book an appointment via the usual booking process. We have walk-through test sites in:

  • Aberdeen (Roy Strathdee Building)
  • Dundee (Park Place car park)
  • west Edinburgh (Gate 55, Sighthill)
  • north Edinburgh (Leith Library)
  • Edinburgh city centre (Usher Hall)
  • west Glasgow (Riverside Museum car park)
  • Glasgow city centre (Glasgow Caledonian ARC)
  • Inverclyde (Crawfurds Burn Community Centre)
  • Inverness (Highland Council HQ rear car park)
  • Perth (Thimblerow car park)
  • St Andrews (Victoria Memorial Hall)
  • Stirling (Forthside Way, next to The Engine Shed)
  • West Dunbartonshire (Napier Hall)

UK Government secures 5 million doses of Moderna vaccine

  • UK Government concludes negotiations with Moderna to secure access to 5 million doses of its promising coronavirus vaccine
  • vaccine could be delivered to the UK from Spring 2021, if approved by the medicines regulator
  • deal increases total number of doses secured by the UK to 355 million, as part of the government’s strategy to build a diverse portfolio of promising vaccines

The UK government has completed negotiations with biotech company Moderna to secure access to 5 million doses of its promising vaccine, enough for around 2.5 million people, the Business Secretary announced last night.

If it meets robust standards of safety and effectiveness and approved by the medicines regulator, the vaccine could be delivered to the UK and Europe as early as Spring 2021 with the potential for the government to procure more doses next year.

This would follow the first deliveries of the Pfizer/BioNTech and the Oxford University/AstraZenece vaccines which, once final data from their phase 3 clinical trials has been published and if they receive regulatory approval, could be available before the end of the year.

The agreement is part of the government’s strategy to develop a diverse portfolio of vaccines, increasing the UK’s chances of securing access to a promising vaccine. Today’s deal means the government has put in place agreements with 7 different developers and has secured 355 million vaccine doses, giving the UK the best possible chance of protecting the public from coronavirus as soon as possible.

The news comes as Moderna today publishes initial data showing that its candidate is nearly 95% effective in protecting against COVID-19, with no safety issues identified to date. The safety data is still to be released by Moderna to show whether the vaccine is both safe and effective.

Until a vaccine is found to meet robust standards of safety and effectiveness, the public must continue to take necessary actions to keep themselves and their loved ones safe, including following the Hands, Face, Space guidance and other public health advice.

Business Secretary Alok Sharma (top) said: “Today’s announcement is on top of the 350 million doses the UK has already secured from a range of other vaccine developers, putting us towards the front of the international pack on a per capita basis.

“The speed at which scientists around the world have worked on a vaccine has been incredible, and it is thanks to their ingenuity that we are on the cusp of one of the biggest scientific breakthroughs in recent years.

“While this is exciting news, I urge the public to not be complacent – we are at a critical point in the pandemic and in order to save lives we must continue to follow guidance by maintaining social distancing, wearing face masks and washing our hands regularly.”

Health Secretary Matt Hancock said: “Today’s announcement is excellent news and an encouraging step forward in our fight against COVID-19.

“We have moved swiftly to secure 5 million doses of this hugely promising vaccine meaning we are even better placed to vaccinate everyone who will benefit should the rigorous safety standards be met.

“But we are not there yet. Until science can make us safe, we must remain vigilant and keep following the rules that we know can keep this virus under control.”

Moderna is currently conducting phase 3 clinical trials of its vaccine and is using mRNA vaccine technology.

The Medicines and Healthcare products Regulatory Agency (MHRA) has started a rolling review of Moderna’s vaccine. MHRA will carefully and scientifically review the safety, quality and effectiveness data once it has all been submitted to determine how it protects people from COVID-19 and the level of protection it provides.

The data must include results from the lab and clinical trials; manufacturing and quality controls, product sampling, and testing of the final product.

Once they have thoroughly reviewed the data, the MHRA will seek advice from the government’s independent advisory body, the Commission on Human Medicines. They will critically assess the data too before advising the government on the safety, quality and effectiveness of any potential vaccine.

The MHRA is globally recognised for requiring the highest standards of safety, quality and effectiveness for any vaccine.

Chair of the government’s Vaccine Taskforce Kate Bingham said: “Today’s news from Moderna is very encouraging. The Moderna mRNA vaccine has posted excellent efficacy data to date from its initial phase 3 readout. The vaccine uses mRNA technology demonstrating that these novel vaccines are showing early promise in being effective against COVID-19.

“The government has now signed agreements with seven vaccine developers to secure the most promising vaccines for the UK. The government’s Vaccine Taskforce are pursuing a portfolio approach to obtaining vaccines for the UK across different vaccine formats, to maximise the chances of finding safe and effective vaccines.

“We will continue to monitor the field of promising vaccines, and are very encouraged by the effectiveness shown by these early frontrunners, but we must remain vigilant to the fact that no vaccine is yet approved for use by regulators.”

Covid-19 vaccine: Charity urges priority for parents of children with life limiting conditions

A leading charity is urging the Scottish Government to include parents of children with complex disabilities and life limiting conditions to be amongst the first to receive the promising COVID-19 vaccine.

The plea comes from Kindred, an advocacy organisation supporting parents of children with complex needs, which has warned of the impact on these children if their parents contract the virus and are unable to provide care.

The charity has released a report today (16th November) highlighting the “devastating” impact of the pandemic lockdown on families of children with exceptional health needs.

Kindred is calling for public acknowledgement of the extraordinary efforts of these parents, many of whom had started shielding weeks before lockdown, and has asked for a letter from the Scottish Government to families.  Such a letter would enable parents to feel that their efforts had not gone unnoticed and, in some way, help them come to terms with the trauma experienced over this period.

The charity conducted a survey of parents from 17 local authorities to better understand the ramifications of the lockdown months on these vulnerable families in August 2020 as schools prepared to reopen.1

The results show that:

  • 93 percent of these families experienced an impact on their ability to meet their children’s medical and care needs due to the pandemic; 63 percent said that the impact of the pandemic on their ability to provide care was ‘big’ or ‘severe’.
  • Two out of every three parents who took part in the survey said sleep deprivation was one of the main factors that impacted their ability to care for their children.  It was the norm for these parents to get an average of five hours of broken sleep per night.  Kindred has called for an urgent need to investigate the provision of overnight respite care across Scotland.
  • Over a third of parents received no respite care before the pandemic and this dropped to 60 per cent after the start of the pandemic.  This highlights the importance of schools in supporting parents and giving them a break from caring.  Almost all the children attended special school with access to therapy, and the expertise of Additional Support for Learning staff.  There is no doubt that schools are preventing crisis and family breakdown where a child has high care needs.  

The charity has written to the Cabinet Secretary for Health and Sport, Jeane Freeman MSP, and to Deputy First Minister and Cabinet Secretary for Education and Skills, John Swinney MSP, urging that these parents be given priority when distributing the recently announced vaccine. 

The report provides evidence that parents were left caring entirely alone in the home environment.  There was an even greater impact on single parents.  Despite the high level of need of all the children, some parents did not even get a phone call from professionals during the pandemic.  These parents fear falling sick and being unable to look after their vulnerable children.

This is the case for Alex Davey from East Lothian and her six-year-old son, Benjamin, who has complex medical needs including tube-feeding, epilepsy and overnight ventilation.

Alex received a letter instructing her that Benjamin met the criteria for shielding in March.  For his safety all respite and at-home care services received were brought to a halt, leaving Alex and her husband to be the only people providing care for Benjamin and his two sisters. Since March, Benjamin has been hospitalised six times, often involving full-time ventilation in critical care.

Alex’s main concern is that she and her husband will themselves contract Covid-19, rendering them incapable of meeting Benjamin’s complex care needs, potentially for a long period of time.

Early access to the vaccine is therefore imperative according to Kindred to ensure that families like Alex’s can be sure that they can continue to care for their child.

Further recommendations to the Scottish Government:

  • The report shows a disparity between the experience of those families who received the support and advice from health professionals, particularly on shielding, compared to those who didn’t.  On this evidence, Scottish Government is being urged to ensure that professionals contact parents and charities should be funded to provide peer support.
  • Siblings play a vital role in the care and support of a disabled brother or sister and Kindred is urging that Self-Directed Support is available for adult siblings to be paid as carers within the home in the event of another lockdown. (see case study of Dr Gael Gordon in Notes to Editors and image attached)
  • The needs of families for respite should be taken into consideration with regards to special schools, with consideration given to keeping them open in the event of a second lockdown and providing the resources to do this.

Sophie Pilgrim, Director of Kindred, commented: “Our report provides evidence that the Covid-19 pandemic had a devastating impact on families of children with complex needs and life limiting conditions. 

“Anyone reading this report will be moved by their plight.  Many families started shielding before schools closed with the loss of all care and support.  Some of these children require two to one support in school and other care settings, and yet parents had to cope from March to August, many with no help at all.

“As the vaccine becomes available, we must prioritise parents who are providing medical care for their children and cannot afford to get sick themselves.

“Many parents received no respite care before the pandemic, and those that did lost their care with lockdown.  Serious sleep deprivation puts parents at risk of depression, accidents and long-term conditions.  One of the parents told us ‘I feel like I am drunk’.  We found that many parents have to cope on five hours of broken sleep a night, well below the NHS recommendation of a minimum seven hours a night.

“We need to recognise the long-term exhaustion of these families.  Special schools are all the more important and need to be supported to carry on their excellent work and to keep their doors open. 

“Parents put their children first.  And we must work together and ensure they are amongst the first to get the vaccine.“

Ambulances struggling to offload patients into hospitals as corridor care returns

Dangerous crowding and corridor care has returned to Emergency Departments in England.

NHS England Performance figures for October 2020 show that patients waiting for treatment on trollies has increased by 50%, with patients waiting longer than 12 hours from decision to admission having quadrupled from September 2020.

The data also shows:

  • patients waiting longer than 12 hours (from decision to admit) has nearly doubled from the same month last year
  • the proportion of patients attending A&E who require admission is up by 3 percentage points on last year
  • the number of ambulances dispatched by NHS111 is higher than last month
  • ambulances response times are up on last month and the same month last year
  • Performance of the four-hour target is down by 4.1 percentage points in type 1 Emergency Departments from last month, with nearly 1 in 4 patients waiting longer than four hours to be seen

Dr Katherine Henderson, President of the Royal College of Emergency Medicine, said: “I am appalled and alarmed; the data is massively worrying.

“Despite our repeated calls for action, crowding and corridor care is back and it has to stop. It is a dangerous and unsafe situation that puts enormous pressure on staff and departments and now increases the risk of hospital acquired infection to patients.

“We simply cannot leave patients for hours in crowded corridors without social distancing, making infection prevention control measures impossible; potentially exposing them to infections.

“Hospitals and trusts must, as a necessity, implement and follow strict IPC guidance ensuring staff are using the right PPE and are trained in how to fit it correctly to maximise safety for themselves and their patients. We welcome the news that there will be regular staff tests and look forward to hear how this will be operationalised. We need patients to be confident they are not being seen by staff who might be carrying the virus.

“But this only tackles part of the problem. To function as it should and provide the best care possible for patients, the Emergency Care system must have good flow. Without it ambulances are stuck waiting to offload patients and paramedics are unable to return to the community; waiting times increase across the board and patients suffer.

“The recent rise in covid infections in the community and a rise in general hospital admissions means there has been an increase in the number of patients in hospital. We already had a bed base far smaller than required, and the consequence of too few staffed beds is that patients are becoming stranded in EDs, putting them unnecessarily at risk. Hospitals need to be given guidance about how to prioritise the multiple demands they are trying to balance.

“Winter has only just begun and with the rise in community covid transmission it is only likely to get worse. We must stop crowding and corridor care now, we must ensure patients and staff are safe, we must ensure there is good flow so ambulances can admit patients into EDs quickly and waiting times are reduced. If these practices continue and we do not act I dread to think of the suffering this winter will bring.”