The National Deaf Children’s Society is delighted the Scottish Labour Party yesterday unanimously passed a motion pledging crucial support to deaf children during their early years.
If deafness is not identified early enough, deaf children may miss out on vital early language development, the opportunity to learn British Sign Language (BSL) from a young age or the chance to have a hearing aid or implant fitted. This can have a lifelong impact on the ability of deaf children to communicate.
The National Deaf Children’s Society wants to ensure no deaf child in Scotland waits more than six weeks from referral to audiology to getting a hearing test, as set out in the current Scottish Quality standards for Paediatric Audiology. However, in some parts of Scotland the average wait time can be a year.
Welcoming the support of the Scottish Labour Party, Mark Ballard, the National Deaf Children’s Society’s Head of Policy and Influencing for Scotland, said: “If we fail to get paediatric audiology services right for deaf children when deafness is first identified we then risk failing deaf children for life.
“Because of the delays some families face, we can end up with the shocking scenario where children who might have benefited from using hearing aids from the very earliest years miss out simply because of delays in testing and treatment.
“Unfortunately, opportunities to learn language in this vital period of development once missed cannot be reversed.”
Scottish Labour councillor Ben Smith (Paisley Northwest, Renfrewshire), who put forward the motion, said: “We were all shocked learn how deaf children were failed by audiology services at NHS Lothian.
“This cannot be allowed to happen again. Waiting times for deaf children to access audiology testing and treatment are still too long. Early support is crucial to help deaf children thrive.
“Scottish Labour is proud to support deaf children and young people in Scotland.”
Mr Ballard added: “Every deaf child should get the high-quality support they need from the earliest years. We need robust quality assurance mechanism to make sure there can be no more scandals like NHS Lothian.
“With the right support deaf children can get best opportunities to develop language skills and should be able to make informed choices around hearing aids, implants and learning BSL.”
Teachers of the Deaf numbers in Scotland have fallen by 40% in a decade The fall in numbers is twice that of other parts of the UK
Almost half (45%) are due to retire in the next 10 years
Deaf young people in Scotland are twice as likely as their hearing classmates to leave school with no qualifications and half as likely to go on to university
Thousands of deaf children across Scotland are not getting the support they need in school after a 40% fall in the number of specialist support teachers for deaf children over the last decade, the National Deaf Children’s Society is warning.
A new report published by the Consortium for Research into Deaf Education (CRIDE), also shows that Teachers of the Deaf numbers in Scotland have fallen at twice the rate compared to other parts of the UK. In addition, around 45% of Teachers of the Deaf in Scotland plan to retire over the next 10 years – so unless action is taken urgently things will only get worse.
Teachers of the Deaf play a vital role in supporting the language and communication development of deaf children. They give advice to families of newly identified deaf children, visit deaf children at school or college – to give them any extra help they need – and provide guidance to mainstream teachers and schools on deaf awareness and inclusion.
However, as the number of fully qualified Teachers of the Deaf in Scotland has fallen, increasing numbers of deaf children are missing out on this support.
Families of deaf children have told the National Deaf Children’s Society that in some areas their local Teachers of the Deaf have too big a caseload to work with deaf learners on a one-to-one basis.
The charity is calling on local authorities across Scotland to commit to returning qualified Teacher of the Deaf numbers to 2011 levels over the next decade.
The National Deaf Children’s Society also wants the Scottish Government to develop and deliver a Scotland-wide workforce strategy for Teachers of the Deaf, and to ensure they are properly paid for the extra responsibilities they take on, in recognition that their specialist expertise is valued.
Such a workforce strategy will involve fully funded places being available for teachers wanting to study for the mandatory qualifications, so a new generation of Teachers of the Deaf can be trained to replace those who are leaving.
Without this, the charity warns deaf children will continue to fall behind and the gap between them and their hearing classmates’ risks becoming wider.
Gemma, from Fife, whose 13-year-old daughter Megan is deaf, described her Teacher of the Deaf asan “absolute necessity” who quickly solves any issues.
She said: “We are a hearing family and although my daughter’s hearing needs are not as big as other young people’s, the Teacher of the Deaf has helped validate my daughter’s past experiences, educate myself on my daughter’s needs and empower her to be confident in the school.”
Mark Ballard, Head of Policy and Influencing for Scotland with the National Deaf Children’s Society, said: “Every deaf child in Scotland should, as a fundamental right, be able to get the support they need from a fully qualified Teacher of the Deaf to help them reach their full potential. We are very concerned that these new figures show a 40% fall in the numbers of qualified Teachers of the Deaf in Scotland, twice the decline in other parts of the UK.
“With the right support in place, deaf children can achieve anything their peers can, but sadly, this simply isn’t happening. The latest Scottish Government statistics show they’re twice as likely to leave school with no qualifications and half as likely to go to university.
“That’s why we want to see a commitment from local authorities and the Scottish Government to work together to return the number of fully qualified Teachers of the Deaf employed across Scotland to the 2011 level, over the next ten years.”
Mr Ballard pointed out that a lack of funding means many teachers in Scotland who want to become a qualified Teacher of the Deaf must often cover the costs themselves.
He added: “There are great courses available to give teachers the extra skills and knowledge they need to become qualified Teachers of the Deaf, but we must make sure the funding and incentives are in place to support teachers to undertake the training.”
The 999 BSL UK emergency video relay service for deaf British Sign Language (BSL) users has been launched today, Friday 17 June.
The service gives deaf BSL users the option of calling the emergency services using BSL, via the 999 BSL website and app.
Susan Daniels OBE, Chief Executive of the National Deaf Children’s Society, said: “Calling for help quickly is vital in an emergency and no one should ever have to worry about communication when they do so. 999 BSL should remove these barriers, so we strongly welcome its launch.
“It’s now crucial that the developers do everything they can to make sure that every BSL user in the country knows it exists.
“We’d urge every deaf child and young person who uses BSL to download the app without delay. Having the option to get help so quickly, in their first language, could one day prove to be a life-saver.”
An extensive expert review has found failings in the standard of hearing tests carried out for children in NHS Lothian’s Paediatric Audiology service.
The review, conducted independently by the British Academy of Audiology (BAA), identifies significant concerns about hearing tests that were not carried out to the required professional standard, with consequences for children and their families. In some cases, diagnosis of hearing loss or impairment may have been missed or delayed.
Early identification of hearing loss or impairment from birth is important because the earlier it is picked up, the more successfully it can be treated with hearing aids or cochlear implants and the better the outcomes for the child.
Tracey Gillies, Medical Director NHS Lothian said; “We are very sorry and saddened to learn that there are some children whose conditions were not diagnosed correctly, or as early as possible, as a result of testing that was not up to standard.
“Due to these failings, the diagnosis of hearing loss or impairment in six children was missed. Diagnosis of a further six children was significantly delayed with long term consequences for these children. Their long-term development of speech and language will be affected and these children will require specialist support.”
Ms Gillies continued “Delayed diagnosis of hearing loss in a further 48 children is also likely to have resulted in some harm, though the longer-term impact of this will depend on the individual circumstances of each child. Some children may require to be retested.
“We have already written to the most severely-affected families individually to offer support and a face-to-face meeting to discuss their child’s condition. We have also arranged appointments for those children whom the review recommends should be tested again.
“In addition, measures have been put in place to identify young children currently in the system whose cases may require clinical review. If any concerns are found, the families will be contacted immediately.
“We apologise sincerely to all affected children and their families for these failings and for the worry and distress caused. We would encourage families who may have concerns to contact our helpline for information on 0131 465 5457. Lines will be open on Monday to Friday from 9am to 4pm.
“We have been engaging closely with the National Deaf Children’s Society and would like to thank them for the support they are able to provide families via their own helpline, which can be contacted on 0808 800 8880.”
NHS Lothian commissioned the full, external review of the service following criticism in May about the diagnosis and care of a child with hearing difficulties. The review is part of the Health Board’s response to the recommendations made by the Scottish Public Services Ombudsman who investigated that case.
Other actions already taken include the appointment of an additional senior expert to provide support in Paediatric Audiology, a comprehensive training programme for service staff and support from NHS Ayrshire and Arran and NHS Greater Glasgow and Clyde with testing in the interim.
The review consisted of an audit of cases from 2009 -2018, an appraisal of the clinical governance structures in place as well as a week’s residential visit by external experts to observe working practices in the service.
NHS Lothian Chief Executive, Calum Campbell said: “The thoroughness of the review reflects our determination to improve the service and outcomes for the children in our care.
“We note that the report was positive about some aspects of the care of the audiology team who are committed to working hard to improve the quality of testing provided by the service.
“A number of improvements have already been made and a detailed action plan has been developed to implement all the recommendations of the BAA in full.
“We continue to work closely with the BAA and would like to thank them for their diligence and support in conducting the review.
“I apologise to the affected families and give them my assurance that lessons have been learned and that the recommendations from the review are being implemented in full.”
The National Deaf Children’s Society has called for a sweeping review of children’s audiology services in Scotland after almost a decade of failures by NHS Lothian.
At least 887 children are known to have been affected during the nine-year period, 155 significantly, but the actual number could potentially include thousands more and the problems have continued.
The charity has spoken out after a new report, published yesterday, uncovered repeated mistakes by NHS Lothian’s audiology service, with at least 100 deaf children among those affected.
The report reveals cases of deaf children being wrongly deprived of crucial technology, incorrectly discharged or identified years later than they should have been. Some have been left with life-changing consequences as a result.
In response, the charity has today written to the Cabinet Secretary for Health and Social Care, Humza Yousaf MSP. The letter calls for an assurance that such catastrophic errors will never happen again and asks for urgent Government action to improve audiology services across the country.
The failures were revealed in a new audit report, carried out by the British Academy of Audiology to examine NHS Lothian’s children’s audiology caseload of 22,900 from 2009-2018.
It sampled 1,007 cases and found there were concerns about assessment and care in 887 of them (88%). Of those, 155 had “significant concerns”.
The specific findings of the report include:
The average age of children identified as deaf under NHS Lothian was 1,653 days (4.53 years old), compared to 109 days in England. The report says this appeared to have gone “unreported and un-noticed.”
12 children were eligible for cochlear implantation, but this was significantly delayed, to the extent where some missed out on getting them altogether.
There was no evidence that nine of the children were offered a hearing aid, even though it would likely have helped them.
49 children had a delayed identification of hearing loss or the fitting of their hearing aid was delayed.
30 were not offered the right hearing aids.
The remainder of the 155 were wrongly discharged or mismanaged.
As a result, the National Deaf Children’s Society is calling for a review of children’s audiology services across Scotland. It wants to see the Scottish Government introduce national leadership for services, robust data collection and a mandatory program setting out clear standards for care.
Without urgent action, the charity says there’s a real danger that many more deaf children risk not getting the quality of care they need.
Locally, it wants NHS Lothian to commit to following the recommendations made by the report, review its past caseload to avoid repeating the same mistakes and announce a clear plan on how it will catch up and deliver for deaf children and their families.
The charity is also strongly advising all affected families to seek independent specialist legal advice. It is already offering support to families affected and says that anyone who is worried about the report should contact its helpline.
Susan Daniels, Chief Executive at the National Deaf Children’s Society, said:“The horrendous findings in this report represent a real-life nightmare for the families involved.
“They placed their trust in a service that was supposed to help, only to be completely let down. Some will be left with life-changing consequences, while many others across Scotland will now be facing the very real fear that the same thing could happen to them.
“Early identification and the right care are vital in helping deaf children develop language and communication at a crucial age, so this must never be allowed to happen again.
“This means we need urgent action from the Scottish Government, starting with a thorough review of children’s audiology services across the country. Until we have national leadership, better data collection and mandatory standards that services must comply with, thousands more deaf children could be at risk and families won’t be able to rest.
“We’re already in touch with several families affected and we’ve provided them with support and guidance. Anyone else who’s been affected, or feels worried about this issue, can contact our helpline or visit our website at www.ndcs.org.uk.”
Lothian MSP, Miles Briggs said: ““These findings by the British Academy of Audiology are extremely concerning and families in NHS Lothian have been totally failed.
“It is crucial that all 36 recommendations for the paediatric audiology service are implemented as soon as possible.
“The average age for diagnosing hearing loss in NHS Lothian is far too late and measures must be put into place to ensure that children with hearing loss are diagnosed much sooner.
“I have written to the Health Secretary to request a meeting about why it takes four and half years in NHS Lothian for a child to be diagnosed with hearing loss, compared to 109 days in England.”
Charlotte Hinton, 10, from Loanhead, has skipped 1,000 times a day for ten days – 10,000 skips in total – to raise funds for the National Deaf Children’s Society.
Charlotte, a member of 1st Loanhead Brownies, devised the challenge to earn her Charities Badge and because it gave her a focus during a period of isolation from school. She was inspired to raise funds for the National Deaf Children’s Society because her cousin Ellen was born deaf and her family has been receiving ongoing support from the charity.
She has smashed her fundraising target of £50, with £275 raised so far. All the funds raised go directly to the National Deaf Children’s Society, which supports the UK’s 50,000 deaf children and their families.
Charlotte lives in Loanhead with her parents, Karen, a teacher, and Colin, and her little brother Ross, 7.
Charlotte said:“I want to thank everyone for their donations. Some days were hard, especially skipping with hair down – not the best idea. Sometimes my legs were sore but I kept going.
“I really enjoyed skipping and was shocked at how much I raised. I even managed to do 1,000 skips in under ten minutes on my last day, which I really wanted to achieve.”
Karen added:“Charlotte was inspired by her PE teacher who had been teaching her class skipping. Charlotte immediately knew she wanted to skip to raise money. I knew this would give her a purpose and focus during isolation and was happy to support her.
“I’m so proud of Charlotte. She has the most caring heart and I know that her care and worries will one day change the world. She transformed a pretty rubbish time into something amazing – some adults could learn a lot from that.”
Elle Billinge,who supports fundraisers for the National Deaf Children’s Society, said:“I want to say a huge thank you to Charlotte for taking on such an original challenge for us. It was a lovely thing to do, and we’re so grateful.
“The National Deaf Children’s Society is dedicated to supporting the UK’s 50,000 deaf children and their families. The efforts of energetic fundraisers like Charlotte will help us to keep on doing our vital work, now and into the future.”
A team of friends from the Lothians conquered the Great Glencoe Challenge to raise funds for the National Deaf Children’s Society on 3 July.
The four friends were Sarah Johnson from Dunbar, Rachel McWilliams from Bonnyrigg, and Louise Strutt and Susan Thomson, both from Musselburgh.
The quartet conquered the 26.2-mile challenge, from the heart of Glencoe, over the infamous Devils Staircase on the West Highland Way and finishing at the foot of Ben Nevis, in a time of 10 hours, 54 minutes.
The women, who became firm friends through attending the same gym class, were inspired to take on the challenge for the National Deaf Children’s Society by Louise’s son Harry, 11, who has been deaf from an early age and wears hearing aids.
The family received support from the National Deaf Children’s Society during Harry’s early years.
The team has raised over £3,000 for the National Deaf Children’s Society, which supports the UK’s 50,000 deaf children and their families.
Louise said: “We decided that we’d do this for the National Deaf Children’s Society a couple of years ago. It’s called ‘Scotland’s toughest trekathon.’ It was hard work but great fun.
“Thankfully the weather held out for us, we took our time and had plenty of pit stops and celebrated with a glass or two of prosecco afterwards. We’ve been waiting well over a year to do this after all.
“We all met at our local gym and have been friends ever since. I suggested we should fundraise for the National Deaf Children’s Society because of the incredible support they gave me and Harry when he was younger. Not to mention the guidance they gave his school to support his education.
“The challenge was a tough one but nothing like the challenge deaf children face up and down the country every day.
“The girls were all immediately on board with the idea. We all hope the money we raised makes a difference to more families like mine.”
Elle Billinge, of the National Deaf Children’s Society’s fundraising team, added:“I want to say a huge thank you and congratulations to Sarah, Rachel, Louise and Susan for their incredible determination in taking on the Great Glencoe Challenge. It was a truly awesome challenge and you’re all heroes!
“The National Deaf Children’s Society is dedicated to supporting the UK’s 50,000 deaf children and their families. The efforts of selfless fundraisers like these four women will help us to keep on doing our vital work, now and into the future.”
