Tag: #HopeAfterStroke

Hope ‘critical to recovery’ after a stroke

Hope after a stroke: Nearly a quarter of stroke survivors lost their job after their stroke with some even losing their home or partner – but having ‘hope’ is critical to recovery 

  • 23% of stroke survivors in Scotland say having a stroke cost them their job, with almost one in five saying it impacted their relationship and 5% even lost their home
  • Across the UK, over half of younger stroke survivors under the age of 50 say they have never emotionally recovered from their stoke 
  • Whilst 15% felt their first signs of hope after a month since having a stroke –a quarter did not feel any hope in over a year.
  • The Stroke Association calls for those who can to donate to give more survivors hope after a stroke

The practical, emotional and physical impact of having a stroke has been laid bare by a new survey of over 3,500 stroke survivors across the UK (220 respondents from Scotland), released today.

The research, conducted by the Stroke Association ahead of World Stroke Day (29 October), is part of a renewed call for vital funds to help the charity give more survivors hope after their stroke and help them to rebuild their lives. 

The impact on survivors in Scotland

The research reveals that 23% of those in Scotland who survived a stroke say it directly led to them losing their job whilst 5% say it led to them losing their home. 

Furthermore, almost one in five (19%) say it had a negative impact on their relationship.  It is not only relationships with partners that are affected – over one in ten (12%) say they lost friends as a result of having a stroke.  

Younger survivors more severely impacted

Looking at stroke survivors across the UK, the research reveals that the emotional impact of a stroke can impact younger survivors more severely. Amongst those under the age of 50, six in ten (60%) say that they’ve never emotionally recovered from the impact of their stroke. This compares to 44% for those over the age of 50. 

This is despite a similar number of younger stroke survivors under the age of 50 (52%) and over the age of 50 (50%) saying they have not physically recovered from their stroke. 

The importance of hope 

The research shows the importance and transformative power of feeling hope after having a stroke. Over three quarters of those surveyed in Scotland (77%) say that hope played an important or critical part in their recovery. 

But for many, it was not a quick process. Whilst 15% say they began to feel hope after a month since their stroke, a quarter (25%) say it took more than a year to experience what they felt was the first sign of hope. Meanwhile one in ten (11%) say they have never felt hopeful since they had their stroke – demonstrating how strokes can impact survivors differently. 

The Stroke Association helps people to find the hope they need to rebuild their lives through specialist services, including a Helpline, peer support service, support groups and Support Coordinators.

Louise Copland, 36 from Glasgow, had her stroke six years ago.  The effects of her stroke were dramatic.  She couldn’t walk or talk.   

She said: “At the time I was terrified, I had no idea what was going on, but I got the impression it was a big deal, which made me very anxious.

My family and the physiotherapists were marvellous.  I’ll never forget standing up for the first time.  It felt weird and I was dizzy, but it was exhilarating. I had to call my parents to give them this fantastic news and they immediately got in the car to go to the hospital and share my happiness and excitement.  This was my first moment of hope that there might be light at the end of the tunnel.

I was due to get married two months later and was determined to walk down the aisle with Dad. I focused all my attention on being able to walk again. I did it.  This was the biggest moment of hope I’ve had since my stroke and it gave me the impetus to carry on.

But Louise knows she probably won’t ever recover emotionally after her stroke.

“I wake up every morning with an arm and leg that don’t work like the way they did.  I fear the challenges in forming new relationships – my confidence has been dashed and people do judge you for having a disability which is demeaning.

Louise continues to find moments of hope and lives her life to the full.  She would have been lost without the support of friends and family.  She now attends a stroke club where she gets to meet others in a similar situation to herself.

“The people I meet at the café are so welcoming.  They understand the issues I’m dealing with, because they are dealing with them too.  It’s important to find hope in others.  It’s important to ask for help when you need it and it is out there.  There is hope after stroke.”

Big and small moments of hope

The research found that it can be both big and small moments of hope that are important. When asked what gave them their first moment of hope after a stroke, nearly one in five, (19%) said it was being able to use their affected side for the first time and 11% said it was being able to speak again. However, one in ten (10%) said it was being able to complete a small every day task such as making a cup of tea.  

Reevaluating what is important after a stroke 

The impact of a stroke leads many to reevaluate what is important in life. Over half (54%) say having a stroke made them appreciate their life more, 43% say it made them appreciate their family more and 42% say it made them appreciate the importance of looking after their health.  

John Watson, Associate Director Scotland at the Stroke Association said: “Every five minutes, someone in the UK will have a stroke and, in a flash, their life is changed.

“There are more than 128,000 stroke survivors living in Scotland and two thirds of people who survive a stroke find themselves living with a disability. The physical impact of a stroke is severe, but for many, the emotional aspects of coming to terms with having a stroke are just as significant.

“As the research makes clear, finding hope is a crucial part of the recovery process. Without it, recovery can seem impossible. 

“At the Stroke Association, we support and help people to find this hope, and rebuild their lives. But with 1.3m people and rising in the UK now living with the effects of a stroke, our services have never been more stretched. We urgently require the support of the public to help us continue to support stroke survivors to rebuild their lives.”

The Stroke Association is asking those who can to donate today so that it can reach more stroke survivors and give them the specialist support they need to find hope and move forward with their recovery. Visit stroke.org.uk/hopeafterstroke  

Scottish carer shares their first glimmer of hope after Mum’s stroke

Glimmer of Hope after Stroke this Christmas

Stacey Miller from Paisley is supporting the Stroke Association’s ‘Hope After Stroke’ Christmas appeal, after her Mum, Andrea, had a stroke at the age of 45. 

Thanks to the Stroke Association in Scotland, both Andrea and Stacey have been attending a Stroke Café that has been a life saver for both.  It’s given them the opportunity to meet others who have been through a similar experience.   The social interaction and peer support has given both them a belief that lives can be rebuilt again– that there is a glimmer of hope after stroke.

Andrea spent hours, days, and months undergoing intensive rehabilitation in hospital uncertain as to what the future may hold.  But when Andrea left hospital six months later, Stacey was amazed with how far she’d come.

Although Andrea still relies on care, she is in her own home and that means the world to her. Having her two daughters and sister come in and look after her care needs is so much easier than being in hospital.   And although Andrea’s communication difficulties have been challenging, she and her family have found new ways to communicate.

And now Christmas is upon us, Stacey is making preparations with her Mum.

Stacey says: “Mum loved Christmas, it was always a big thing for her.  The stroke took away her freedom to make plans for Christmas and go out and about purchasing all the things that gave her and everyone else joy.

“We knew after the stroke Christmas would be a very different affair, but as Mum’s confidence has grown, she is now more involved.  She participates in decisions over plans, presents etc., even if she can’t physically carry them out.  Christmas is always more magical with kids around and Mum is loving the idea of being involved with  my two year-old  putting up the Christmas tree and looking at all the baubles and decorations together.

“It brings a tear to my eye, watching her with Noah John.  It’s as if nothing has changed and her love of life is still there.

“But I’m aware of her ongoing needs.  The Stroke Association in Scotland has been invaluable in offering a sense of purpose both to Mum and me, that life can be normal again.”

Stacey is asking people to make a donation to the Stroke Association’s work supporting people affected by stroke, as they rebuild their lives this Christmas.

Andrea Cail, Director Scotland of the Stroke Association said: “When someone’s life has been shattered by stroke, they may feel all hope is gone. But we also know that people cling onto even the smallest glimmer of hope. This is what powers them on to achieve what many thought would be impossible.”

The charity estimates that there are over 120,000 people living with the effects of stroke in Scotland, while around 15,000 people have a stroke every year.

“This pandemic has had a serious impact on our ability to raise funds through our usual community events and activities. Many people have praised the support they received from the Stroke Association, to help with that first glimmer of hope to rebuild their lives again.

“That support may be found in a call to our Helpline; through the friendship and support of our online community; or the ongoing support of a phone call from one of our lived experience volunteers. It takes time and money and people to provide this help. And that’s why we’re asking everyone across Scotland to donate to the Stroke Association and help give someone the gift of hope this Christmas.”

To donate or for more information about stroke and the vital role that hope plays in stroke recovery and rebuilding lives, please visit www.stroke.org.uk/hope