Parents of neurodivergent children forced to sacrifice careers because of failing support systems, new national survey finds

New findings from neurodiversity charity Salvesen Mindroom Centre (Mindroom) highlight 88% say caring responsibilities have limited their career progression, while more than half provide the equivalent of a full-time working week of unpaid care.

Leading neurodiversity charity Salvesen Mindroom Centre (Mindroom) has published a pioneering national survey examining the workplace experiences of parents and carers of neurodivergent children, revealing thousands are being forced to reduce hours, turn down career opportunities or leave work altogether because of gaps in health, education and family support.

Based on responses from over 250 parents and carers surveyed across Scotland and the UK in Autumn 2025, Holding It All Together: Workplace Experiences of Parents and Carers of Neurodivergent Children (supported by Baillie Gifford’s Neurodiversity Network) suggests the biggest barriers to employment are not caring responsibilities alone, but delays in diagnosis, fragmented services and inconsistent support.

The full findings will be unveiled at an online launch event on 4 August, where Mindroom will present the research for the first time, explore what it means for families, employers and policymakers, and outline the action needed to tackle the issues identified. Registration is now open.

The report paints a stark picture of parents trying to balance employment with caring responsibilities:

  • 88% said caring responsibilities had limited their career progression
  • 80% reported a negative impact on household income.
  • 98% said the experience had negatively impacted their mental health.
  • 55% provide 30 hours or more of unpaid care each week.
  • 74% have changed their working patterns, and 58% have reduced their hours.
  • Despite this, 69% continue to balance professional or management roles and 44% work in hybrid roles. 

Mindroom’s report’s central message is that the difficulties experienced by parents and carers are not caused by neurodivergent children themselves, but by systems that fail to provide timely and coordinated support. The report is launched alongside Mindroom’s 2025 Impact Report, which highlights rising demand across Scotland.

In 2025 alone, the charity supported 2,172 children, young people and families, received 1,801 new enquiries, and has seen demand increase by 309% since 2020. *

Aileen Shrimpton, Mindroom’s Director of Development, says: “Supporting parents and carers is not a niche issue.

“When support is delayed or inconsistent, families carry the consequences, and so do workplaces. This report provides a baseline for action.”

Gill Christie, Baillie Gifford, Chair of employee-led Neurodiversity Network, on behalf of the project team, continues: “Parents and carers of neurodivergent children are still holding work, family life and overstretched systems together, often invisibly.

The challenges described in this report arise not from them or their children, but from the fallout of systemic pressures outwith their control.”

Alan Thornburrow, CEO of Mindroom, concludes: “This research exposes an invisible workforce issue that has been hiding in plain sight.

“Parents and carers of neurodivergent children are not stepping back from work because they lack ambition or ability. They are doing so because they are carrying the consequences of delayed diagnoses, fragmented services and inadequate support systems.

“When skilled people reduce hours, turn down progression opportunities or leave employment altogether, families lose income, employers lose experienced staff, and the economy loses valuable talent. Supporting these families isn’t simply a welfare issue, it’s an economic one.”

To register for the official online launch event for Holding It All Together and discover the full extent of the findings, please visit: ‘Holding It All Together’ Launch**

To learn more about Mindroom’s work, please visit: Mindroom’s official website