Social Shielding already saving lives

Asthma UK & British Lung Foundation, the UK’s leading respiratory charity, has reiterated the need for everyone who meets the government’s ‘extremely vulnerable’ criteria to follow social shielding guidelines.

Those who have still not received an official ‘shielding’ letter but do meet the criteria are urged to contact their GP or hospital doctor as soon as possible. Social shielding involves staying indoors and avoiding face-to-face contact, utilising government voluntary support services to get the supplies they need.

A recent survey by the charity has revealed that 97% of those with chronic lung conditions in Scotland, who had received an official shielding letter, have said they were taking the measures seriously.

Of the 1188 Scots surveyed, just under 18% of respondents had received a letter to shield from the Scottish Government.

Other interesting findings from the survey include:

  • Anxiety among those with lung conditions is high, with almost 70% of respondents reporting their COVID-19 related a score of 8/10 or above.
  • 58% of smokers have said they are planning to quit due to COVID-19
  • 46% of people with lung conditions reported a disruption to their usual care due to COVID-19.

Joseph Carter, Head of Asthma UK & British Lung Foundation Scotland, said“It is crucial that everyone who is entitled to a shielding letter, even at this late stage, receives one. The evidence shows they work, and people do take the advice seriously.

“This is a marathon, not a sprint and there’s still a long way to go. Receiving these letters enables people to access the various resources and support available to them, to enable them to shield effectively and keep themselves safe.”

Andrew Whittamore, Clinical Lead for Asthma UK and the British Lung Foundation and a practicing GP, said: “Everyone with a chronic lung condition, including asthma and COPD, has been classified as being ‘high risk’.

“Everyone in this group should be strict about following the social distancing advice from the government. This group may not get a letter and do not necessarily need to shield but may choose to do so.

“We know that shielding isn’t as easy as it sounds, so it’s important that people only go through it if they’re in these ‘extremely vulnerable’ groups. A smaller group of people who are classed as ‘extremely vulnerable’ do need to go further and follow the shielding advice.

“It’s vital that anyone who is in these groups, but have not yet received a letter, contact their GP immediately. This will enable them to access all the Government support which is being provided to help them shield. Further advice can be found on the Asthma UK & British Lung Foundation websites.”

Further Advice:

  • For the latest Covid-19 health and shielding advice for people with asthma, visit the Asthma UK website at: asthma.org.uk/coronavirus
  • For the latest Covid-19 advice for people with all other lung conditions, visit the British Lung Foundation website: blf.org.uk/support-for-you/coronavirus
  • VIDEO: For anyone who has a lung condition and is still unsure if they should be shielding or not, the British Lung Foundation’s Medical Director Nick Hopkinson has produced this helpful video: https://www.youtube.com/watch?v=3xUmuf1wcLk

The NHS Is Open campaign launched

New campaign urges people to contact a doctor

A national media campaign has been launched to encourage people to seek medical help for urgent health issues which are not related to coronavirus (COVID-19).

Figures indicate patients are delaying seeing their GP during the pandemic and there has been a drop in urgent suspected cancer referrals, and a reduction in families bringing children for immunisation.

Reasons may include wishing to reduce the strain on the NHS, or concerns over becoming infected with COVID-19 as well as the misconception that doctors do not want to see patients.

The NHS is Open campaign urges people to contact their GP or local hospital if they have urgent health worries.

Health Secretary Jeane Freeman said: “It is vital for people to know that GP surgeries and hospitals are still there for them if needed.

“While we appreciate the public doing all they can to reduce the strain on our NHS at this challenging time, if people have serious health concerns or symptoms, it’s just as important as ever to seek immediate medical assistance.

“This pandemic does not mean we’ve stopped the fight against cancer, heart attacks or other serious health conditions. It is vital people continue to raise any health worries with their doctor at the earliest possible time and continue to attend regular check-ups and appointments when they are invited to do so.”

https://twitter.com/i/status/1253753235166441472

Dr Carey Lunan, a working GP and Chair of the Royal College of General Practitioners in Scotland, will feature in TV adverts as part of the campaign. She said: “The NHS is open and it is safe. Appointments may feel a little different – they might happen on the phone or even by videolink. If people need to be seen face-to-face, we can arrange that too.

“Accident and Emergency units are also still open and able to help. We are here for patients and we want to hear from anyone if they have an urgent medical problem.”

The marketing campaign will run on TV, radio and digital channels for an initial three weeks.

The campaign will encourage people to call their GP surgery, or 111 out of hours, if they have urgent health concerns. In emergencies, they should still dial 999.

Attendance at A&E and Paediatrics in Scotland has halved during COVID-19.

Attendance at A&E in week commencing 29 March was 11,020 and in week commencing 5 April 11,263 compared to normal average attendance of 25,000 per week. Paediatrics attendance is down 50 per cent in Scotland, with late presentation becoming an issue.

There has been a significant drop (72 per cent) in urgent suspected cancer referrals, as fewer people are presenting their symptoms to their GP practice.

Charity tackles ‘lockdown’ isolation facing autistic people

National Autistic Society Scotland is working to tackle the social isolation faced by autistic people across the country by launching a programme of online Social Groups. 

The disruption of daily life and routine resulting from the pandemic and the ‘lock down’ has been very challenging for autistic people and their families many of whom are struggling with mental health and intense anxiety. 

Research from the charity has also shown that two thirds of autistic people in Scotland feel socially isolated and this was before social distancing was introduced in light of the Coronavirus pandemic. 

Social distancing has meant the charity has had to cease face-to-face Social Groups and ‘coffee clubs’ for 200 autistic people, a lifeline for many which allow for people to meet up, develop communication skills and confidence, make friends and live more independently. 

The charity is now launching its Social Groups programme online providing opportunities for autistic people to connect and chat about whatever they wish to – from film & TV, to cooking and other hobbies.

They also provide a safe and supported space where people can share their thoughts and gain confidence from each other as well as hearing from staff who can share information on staying safe and healthy. 

Nick Ward, Director of the National Autistic Society Scotland said: “Our Social Groups are a lifeline for autistic people across Scotland and we’ve worked hard to get these up and running online so we can play a role supporting people through this difficult time by giving them an online space to come together and socialise. 

“This is an extremely challenging time for the charity but we want to expand the reach of our social groups programme to as many autistic people across Scotland so no one has to feel alone. We are busy applying for emergency funding to do this.”

 Rory McGill is 25, from Cumbernauld and has been attending one of National Autistic Society’s Social Groups for 2 years. Rory says: “In the past I’ve struggled to talk to people and found it difficult to make friends.

“Going to the NAS social group has really helped build my confidence and has meant I’ve made some good friends. We do interesting stuff like go-karting and laser quest which we obviously can’t do right now which is frustrating. 

“The pandemic has been quite emotional for me and it can make me quite anxious so I’m really looking forward to social groups starting up online so I can chat to others, I think it will really help.”

Routine immunisations continue, says NHS Lothian

Immunisation appointments for children and pregnant women are continuing during the coronavirus (COVID-19) outbreak, says NHS Lothian.

Scheduled immunisations are an important and legitimate medical reason to leave your house, and people who have an immunisation appointment should attend as planned.

If an individual with an upcoming immunisation appointment – or a member of their household – is showing symptoms of COVID-19, then they must NOT attend, but should call the number on their invitation to rearrange the appointment.

Professor Alison McCallum, Director of Public Health & Health Policy, NHS Lothian, said: “All scheduled immunisation appointments in Lothian are continuing and we would encourage all children and pregnant women to attend.

“If you cannot attend because you or your family are showing symptoms of coronavirus, please call the phone number on your appointment letter or contact your health care practitioner to rearrange.”

Dr Gregor Smith, Interim Chief Medical Officer, said: “We’re grateful to everyone for heeding our Stay Home Save Lives message during the COVID-19 pandemic. However, the NHS is still open, and the routine vaccination programme is an important way to protect you and your family’s health.

“It is important we continue to protect children and other vulnerable groups against serious vaccine-preventable diseases. Routine immunisations for children and pregnant women are a crucial way we can help keep people safe and healthy at this time.

“We know members of the public will have protecting their family’s health from coronavirus, by following guidance on social distancing and not travelling unnecessarily, at the forefront of their minds. But receiving an immunisation is one of the important medical reasons for which you should leave your house, and it will help protect you or your child from other serious diseases.”

Emergency Fund to provide a lifeline for unpaid carers struggling to cope with Coronavirus

  • There are an estimated 7 million unpaid carers in the UK providing care to family members and friends with long-term illnesses, disabilities, poor mental health or substance addictions.
  • Hundreds of thousands of carers are providing care round-the-clock, experiencing isolation and poor physical and mental health as a result.
  • Huge upsurge in queries from carers regarding concerns caused by Coronavirus.

Carers Trust is launching today an emergency appeal to help unpaid carers who are struggling to cope with the enormous impact of Coronavirus and self-isolation while still providing care and support to family members and friends.

All donations made online by the public will go straight into Carers Trust’s Carers Emergency Fund. The Fund will be used to ramp up Carers Trust’s existing grants programme, providing more small grants more quickly to those carers who need them most. It will provide grants of any amount up to £300 directly to carers, helping them overcome the hurdles that Coronavirus is throwing up on a daily basis.

Carers Trust has been receiving a huge upsurge in communications through its Network from carerslooking after people, young and old, whose lives have been made extremely challenging as a result of the Coronavirus lockdown. 

One Carers Trust Network Partner has reported a 100% increase in the number of emails it is receiving from carers since the outbreak of Coronavirus. The same Network Partner reports a 177% increase in people visiting its website (an average of 466 visitors per day). All communications from carers, whether calls or emails, are prompted by concerns about Coronavirus.

Examples of problems described by carers

These problems will be addressed through grants made available by Carers Trust to carers in need:

  • Lack of money for petrol from a carer whose 98 year-old father was released from hospital after 28 days battling Coronavirus. The carer did not want paid care workers coming into the house and risking re-infection. With her only income being Carers Allowance of £67.25 per week, however, she could not afford to make the 18 mile round-trip three times a day to care for him properly.
  • The lack of money to meet the cost of purchasing a small tablet so that an unpaid carer can keep in regular contact with the person they care for, reducing their loneliness and isolation and ensuring their health doesn’t deteriorate.
  • A carer had no money to buy a cooker after ordering one from Bright House just before they went into administration. She had no further funds to get one in any other way. The carer has three children with disabilities who need very particular foods.

Launching Carers Trust’s emergency appeal, CEO Gareth Howells said: “Unpaid carers are the backbone of our society, providing huge levels of care to family members that are some of the most vulnerable people in our society. But all too often the commitment and sacrifices they make go unnoticed.

“At Carers Trust we are constantly hearing about the daily struggles of unpaid carers and how their lives have now been thrown into turmoil as a result of Coronavirus.

“Some unpaid carers simply cannot find food because food banks have closed. Others are spending considerable amounts of money caring for their family members because it’s not safe for the social care workforce to do so.

“That’s why we are launching the Carers Emergency Fund. It will increase the number of grants we are able to make and ensure this happens as quickly as possible to ease the pressures on unpaid carers.”

“This Fund also shows Carers Trust’s determination to stand by these heroes, keeping them afloat so they can continue to care for their loved ones. I’d urge anyone able to do so to visit the Carers Trust website to donate and show their support for unpaid carers who really are the backbone of our social care system.”

Sir Trevor Pears CMG, Executive Chair, Pears Foundation, added: “The Coronavirus crisis has made an already difficult situation for carers far, far worse.

“That’s why we think it is so important to support the Carers Emergency Fund which will significantly increase funds that can speedily be turned into grants for carers. These grants will serve as a real lifeline at this time of crisis, getting financial support swiftly to vulnerable unpaid carers.”

Emergency Free Meals: More food deliveries through £70m Food Fund

More community food projects will receive funding to provide emergency free meals to those most in need during the coronavirus (COVID-19) pandemic.

Around £700,000 has been allocated from the £70 million Scottish Food Fund to 19 projects, including a £350,000 grant to the Wheatley Group to provide 8,500 emergency food deliveries to people most in need in 17 local authority areas as part of its own EatWell service over the next three months.

A further 18 schemes will share £400,000 to provide emergency food through a range of projects working with minority ethnic households, family support groups or mental health teams.

The Food Fund comprises £30 million for food deliveries for the ‘shielded’ groups at highest clinical risk, and a further £30 million to local authorities for free school meals and food support for older people, those with long-term health conditions and pregnant women.

The remaining £10 million is for critical third sector and community response organisations, which includes funding so far of £500,000 each for Social Bite, FareShare and Cash for Kids.

Communities Secretary Aileen Campbell said: “As part of Scotland’s £70 million Food Fund, we’re making an initial £10 million available to help support community food projects, and these latest grants will help ensure people are not only fed but treated with dignity.

“I am very grateful to be working alongside the Trussell Trust, FareShare and other members of the Independent Food Network to provide people at risk in our communities with the basic essentials their families need. I’m particularly pleased that FareShare is now working closely with many councils to strengthen local responses.

“The existing close partnership working we already had with these leading food charities has significantly stepped up to ensure people who are in the greatest financial risk as a result of the impact of the pandemic have access to food and basic essentials.

“Uniquely among the countries of the UK, the ‘cash-first’ elements of approach mean that where people can safely get out to buy food, we make sure they have access to the cash to do so.

“This is the most dignified way we can provide food support and we will continue to do all we can to help people overcome any barriers in their way. I am pleased that these charities have welcomed this approach as the most dignified way of supporting people with food insecurity.”

Martin Armstrong, Chief Executive Officer of Wheatley Group, said: “We are delighted the Scottish Government has agreed to help fund our EatWell emergency food delivery service over the next three months.

“This support will be very much appreciated by the thousands of individuals and families in Wheatley homes across the country relying on this vital service. I am confident that by continuing to work well together, we will be able to tackle the considerable challenges posed by the coronavirus crisis.”

Emma Revie, CEO of the Trussell Trust, said: “We all deserve the dignity of having enough money to buy the essentials we need for ourselves and our families, so we welcome the cash-first approach from the Scottish Government that aims to get money to people who are financially vulnerable due to this crisis.

“Despite these efforts, we know that there will still be households across Scotland that will be unable to afford basics such as food.

“In response, we have been working closely with independent food banks, FareShare and the Scottish Government to overcome significant challenges in the supply chain and ensure food will be available to those most in need of help.”

Sabine Goodwin, Coordinator, Independent Food Network, said: “While supporting independent food bank teams working tirelessly to cope with increasing need across Scotland, the Independent Food Aid Network has appreciated being able to work collaboratively with the Scottish Government, FareShare and the Trussell Trust. 

“However challenging it is to distribute emergency food parcels to people who cannot afford food, we are trying to keep one eye firmly on the future and our joint vision of a Scotland without the need for charitable food aid.

“We very much welcome the Scottish Government’s support of communities at this time and particularly its prioritisation of cash first solutions and investment in the Scottish Welfare Fund.”

Gillian Kynoch from FareShare said: “The Scottish Government has worked hard to ensure we are integrated into the Local Authority response in each area to coordinate support for the self-isolating, over 70’s, and those experiencing – and at risk of – food insecurity.

“Many community food organisations that normally provide cooked meals to support vulnerable or low income people, older people lunch clubs, after school clubs, community cafes, have had to close their doors.

“These same groups and many others have adapted quickly and swung into action providing food parcels and hot meals delivered to people at home.  The scale of this challenge has been significant but our collective ramp-up has been helped by a big response to our call for volunteers. So many that we are now operating reserve lists – which is fantastic.”

Latest Info from North Edinburgh’s COVID-19 FoodShare Group

North Edinburgh’s COVID-19 Foodshare Group has updated their information factsheet to include more useful teleohone numbers.

The network of community groups expects hear to about funding to help meet demand in the local area later today.  The fund is being administered locally by the city council and EVOC.

Final, Final! North Edinburgh Food Network Info UPDATED 17 APRIL 2020

Coronavirus: 140,000 children and young people provided with free school meals

Around 140,000 children and young people across Scotland are being supported with the provision of a free school meal as part of efforts to support the most vulnerable children during the coronavirus (COVID-19) outbreak.

Local authorities are providing the majority of meals through vouchers, direct payments or home deliveries, according to the latest monitoring data.

Meals are also provided at some education-early years hubs, around 400 of which are open across Scotland to ensure continuity of education and pastoral care for vulnerable young people including those with additional support needs, as well as children of key workers.

New guidance to support continuity of learning at the start of term 4, which for the vast majority of children and young people will be experienced at home, will be published in the coming days as Easter school break ends. The Parent Club Scotland website also continues to be updated with a range of advice and support through the COVID-19 outbreak.

The Scottish Government is working with a range of partners to support children and families and mitigate the impact of the outbreak and the necessary social distancing measures on education and other vital services to support health and wellbeing.

Funding has been provided for a range of local and national projects, including through the £350 million Communities support package announced last month to help those most affected by the COVID-19 pandemic. This includes extra support for care-experienced young people, providing updated advice and IT support for families, and responding to a rising demand for counselling from children and young people.

Deputy First Minister John Swinney said: “In the midst of this terrible pandemic, with the harm and potential harm to our loved-ones and communities, Ministers remain steadfast in our determination to support children and families, both for their health and wellbeing and to help everyone continue their learning, whether through the education hubs or with home learning.

“Free school meals are a key measure for families, children and young people who need some extra help and I am pleased that so many are receiving them. We have worked closely with local authority partners to ensure they are able to put in place provision that meets local needs and circumstances.

“As schools term 4 starts in the next few days, we will be publishing guidance from Education Scotland, both for teachers/practitioners and for families, to support continued learning. This will provide information about curriculum, teaching and learning at home, including digital learning, and include sources of further advice and support.

“I am grateful for the commitment of all those working in Scotland’s education system in their efforts to support families and learners during this difficult time. Parents and young people too must be commended for how they have responded to the disruption caused by COVID-19 and by the very necessary closure of schools.

“The Scottish Government will continue to review the available advice and guidance to ensure parents, carers and learners get the support they need, when they need it. That includes work with key partners to provide and adapt a range of support for those children and families facing particular disadvantages or additional vulnerabilities during this crisis.”

Cllr Stephen McCabe, COSLA Spokesperson for Children and Young People, added: “In the face of the massive challenge posed to our communities by the coronavirus, Local Government has moved quickly to support those most in need.

“With the closure of schools and early learning and childcare settings councils have rapidly set up bespoke methods to ensure that eligible children continue to receive free school meals, whether that is through vouchers, direct payments, home deliveries or providing food through community hubs.

“Councils will continue to work at the front lines to make sure that the most vulnerable in Scotland’s communities are supported as we respond to COVID-19.

An estimated 122,000 children and young people are eligible for free school meals because their families are in receipt of qualifying benefits.

The Scottish Government provided local authority partners with £30 million of new investment to support families unable to access food as a result of COVID-19, with £15 million specifically for free school meals.

Information about free school meals can be found on the MyGov website.

Charity urges Police Scotland to be sensitive to new guidance for autistic people

National Autistic Society Scotland has welcomed changes to the ‘Stay at Home’ rules from Scottish Government which allow for autistic people who need to leave home more than once a day to exercise or travel beyond their local area should they need to for health reasons.

However, a number of autistic people and families with autistic children have contacted the charity reporting that they have been told to go home by Police, or threatened with fines.

While we have heard some positive stories of the police responding appropriately, we have also heard from families reporting that Police seem either unaware of the change in guidance or are insensitive to it. 

National Autistic Society Scotland has written to the Chief Constable of Police Scotland, Iain Livingstone, asking that police officers across Scotland are made aware of the changes to the ‘Stay at home’ guidance. 

Amended Guidance issued from the Scottish Government makes it clear that, if you’re autistic or have a learning disability, you can leave your home more than once a day and travel beyond your local area if this is important to your health.

If you need carers with you, they don’t have to stay the two metres apart from you that is usually required by social distancing. However, it is still important to be careful and only go out when you really need to, to reduce the chance of getting ill or infecting other people. 

Nick Ward, Director of the National Autistic Society Scotland said: “The lock down has fundamentally changed life and this can be very challenging for Scotland’s 58,000 autistic people, where for many, exercising in a safe way is very important to their physical and mental health and wellbeing. 

“We welcome the amended rules from the Scottish Government but are extremely concerned not all police officers are aware of the changes or are interpreting them correctly. We have today written to Police Scotland and have urged Government to promote the new guidance appropriately so all are aware.”   

Caroline, a mother with an autistic child, said: “The lock down has been really difficult for my son and the stress can lead to some very challenging behaviour when he gets frustrated and upset.

“It’s great the rules and changed for autistic people and driving to the nearby park – it’s unsafe for him to walk along the road – where he can feed the ducks and play safely is an absolute life line for us and I can see the difference it makes to his mental health – it calms him.

“I was really upset when recently the Police told us to turn around otherwise they would fine me. They said they needed to see a GP letter. I offered our social worker’s phone number but they refused.

“Our GP can’t provide a letter as understandably they are busy and to be honest it seems like a waste of medical professionals’ time during this pandemic.

“I know other parents who were planning on finally getting out as the rules had been changed but are now too scared so are still stuck at home, often with very distressed children. Even just the possibility of being stopped by Police and not managing to follow through with a plan will put off many families with autistic members.”

Briggs: Plan now for coronavirus rehabilitation

Lothian MSP Miles Briggs says health boards must start planning now for rehabilitation support for people who have had severe cases of Coronavirus.

Covid-19 is expected to lead to a dramatic increase in the numbers of people managing what will possibly be long-term lung conditions and needing support for rehab and recovery.

The number of people who have Chronic Obstructive Pulmonary disease in NHS Lothian has increased by 70% since 2011/12, to 19,167 people, a higher increase than any other region in Scotland.

Chest Heart & Stroke Scotland are working with health boards, including NHS Lothian, to reform the way people with lung conditions access rehabilitation and support.

Vital support, such as Pulmonary Rehabilitation, could benefit thousands of people in Lothian, as well as allowing the health board to make significant savings in the long term.

The charity have a number of initiatives in place to support those living with chest, heart and stroke conditions during the Coronavirus epidemic, including their freephone advice line Nurses: 0808 801 0899

Miles Briggs, Scottish Conservative Health Spokesperon, said: “It is right that health boards are focusing their efforts on maximising the number of intensive care beds, increasing ventilator capacity and continuing to treat those who are most sick.

“A high number of people in Edinburgh and the Lothian’s, who have breathing difficulties and are in the high risk category during the Coronavirus outbreak, would benefit from this treatment.

“NHS Lothian must start putting plans in place now for breathing rehabilitation, so that patients who have had Coronavirus can access this treatment and start their recovery.”

Jane-Claire Judson, Chief Executive at Chest Heart & Stroke Scotland, said: “The devastating impact of coronavirus will see many survivors living with poor lung health, perhaps for the rest of their lives. They could be left dealing with breathlessness which can cause worry and anxiety, but there are rehabilitation programmes which can help.

“Physical activity is hugely important to recovery and it is key to living well with chest conditions. At the moment our local support groups which normally provide group exercise can’t meet up.

“We’re making sure that people can still keep active at home by sending out short videos and information on activities everyone can do. We’re also busy working with health boards across Scotland to make sure our services alleviate some of the pressures on the NHS.

“No-one fully understands what long-term effects coronavirus will have on people’s health – but we do know that support for rehab and recovery is going to be more important than ever.

“Chest Heart & Stroke Scotland is urgently making plans and adapting our services to make sure we’re there for everyone who needs us, now and in the future.”