Tag: Health and wellbeing

From MND patients to the Prime Minister: We need your help NOW


MND letter relays the country in bid for £50 million from UK Government

Doddie Weir OBE and Euan MacDonald MBE have kickstarted a nationwide ‘MND letter relay’ from Scotland to 10 Downing Street. The letter, which has already been signed by hundreds of motor neurone disease (MND) patients from across the country, calls for the UK Government to invest in MND research.

United to End MND – a campaign led by charities MND Scotland, the My Name’5 Doddie Foundation and MND Association, as well neurologists and people living with MND – calls for £50 million of UK Government funding over five years to target MND research.

To catapult the campaign, patients throughout the UK have now written and signed a personal letter to the Prime Minister Boris Johnson, which will be presented at 10 Downing Street on Tuesday 21st September, by rugby legends Doddie Weir and Rob Burrow.

Speaking to BBC Breakfast to launch activities on Thursday, Doddie said: “We are continuing to fight to try and make a difference, and to try and find a cure for this horrific issue of MND. The UK has the best researchers in the world and at the moment we’re nearly there to find a stoppage or a cure.

“So this letter, and the money from the Government, will make a massive difference. This will give a lot of hope to people with MND. We need to take it to the next level and with that we need the Government’s help.”

Before his departure to London, Doddie is leading the charge by sending the patient letter on a relay across the nation, to encourage more people living with MND to sign it, starting with fellow MND campaigner, Euan MacDonald in Edinburgh.

Euan, who has MND, is the co-founder of the Euan MacDonald Centre for MND Research. He was joined there by Dr Suvankar Pal, Consultant Neurologist from the University of Edinburgh and Rachel Maitland, MND Scotland’s Chief Executive, who are showing their support for the letter.

The letter states ‘MND is a death sentence’ but that ‘research has now reached a point where a cure or life-saving treatments can be found’. It continues ‘The current piecemeal and protracted approach of funding individual projects will not deliver the life-saving treatments we need …we urgently appeal for action and investment now’.

Euan said: “I very much believe the goal of finding treatments for MND is achievable. The letter and supporting statements highlight the personal impact this disease has had on families like mine and others up and down the country. 

“We are trying to ensure other people’s children, spouses, parents and siblings don’t have to go through what ours have. I’d like to appeal to the Prime Minister to back MND patients and have confidence in UK Science achieving what may have previously seemed impossible – a cure for MND.”

Currently the UK Government’s funding for targeted MND research stands at less than £5 million a year, which the campaign coalition says is not enough. £50 million from the UK Government over five years would fund a virtual institute for MND Research, providing the infrastructure needed for accelerating treatments for MND.

The funding bid has already been debated in the UK Parliament after a petition to garner public support gathered more than 100,000 signatures in just three weeks. Members of the campaign coalition have met with key politicians to explain the desperate need for the cash, to shore up the investment made by charities and industry.

With the support of MND charities and neurologists, campaigners are now taking the call directly to Downing Street and people living with MND still have the opportunity to add their signature here: patientsunited2endmnd.org.

Dr Suvankar Pal, the Co-Lead Investigator of MND-SMART, the UK’s biggest drug trial for MND, said: “This is an exciting time for MND research with many centres across the UK working on important areas ranging from drug discovery to delivery of treatment trials.

“We fully support this initiative which promotes collaborative working and much needed investment in research with the aim of delivering new treatments for MND in a timely way.”

Rachel Maitland, MND Scotland’s Chief Executive, said: “We are united here today to ensure the voices of those living with MND are heard by the UK Government.

“The average life expectancy for someone with MND is just 18 months from diagnosis. People like Doddie and Euan do not have time to wait, and neither does our search for a cure.

“MND Scotland’s vision is a world without MND. But we are only able to fund the pioneering research taking place at the Euan MacDonald Centre, and other institutes across the UK, because of the generosity of our supporters. MND isn’t incurable, it’s just under-funded. Together, we will beat MND, but we cannot do it without the UK Government’s support.”

To find out more about the campaign visit www.mndscotland.org.uk/united or tweet your support @MNDScotland @MNDAssoc and @MNDoddie5 using #United2EndMND.

The Penny rolls on: End’s in sight for coast challenge walker Karen

Long-distance charity walker Karen Penny ends 11,000 mile coastal challenge in Scotland next week

Alzheimer’s Research UK champion Karen Penny is set to complete her amazing 11,000 mile coastal walk around the UK and Ireland on World Alzheimer’s Day, 21 September, in the Shetland Islands.

Karen, 54, had been travelling since January 2019 on foot from her home in the Gower, South Wales around the entire coastline of the UK and Ireland, only returning home when forced to by the COVID-19 pandemic.

She had reached the small island of Muckle Flugga in the Shetlands (one of 110 islands that she has walked around as part of her journey), where she planted a flag before returning to her South Wales home for lockdown.

Inspired to support the UK’s leading dementia charity after both of her in-laws were affected by different forms of dementia, Karen has raised nearly £100,000 to fund vital research.

Karen says: “I can’t believe that my walk is coming to an end. I was so sad to have to leave the beautiful Shetland Islands last March because of COVID-19 restrictions, and I am now really excited to be returning to Muckle Flugga. I wonder if my Alzheimer’s Research UK flag is still where I left it!

“The last two and a half years have been wonderful. Although it has sometimes been hard going, I have met so many great people, and heard so many heart-rending stories of the impact of Alzheimer’s disease and the other diseases that cause dementia on families.

“It has made me all the more determined to do whatever I can to raise awareness and raise money for Alzheimer’s Research UK, so that in future families can be spared the fear, harm and heartbreak that so many are currently experiencing.”

Hilary Evans, Chief Executive of Alzheimer’s Research UK, said: “We are so grateful to Karen for the amazing fundraising and awareness-raising that she has done, with such commitment, since the beginning of 2019.

“As Karen has found with all the people who have shared their experiences with her on her journey, one in two people know someone affected by dementia. Through research, we can keep people connected to their families, their worlds and themselves for longer.

“Research has the power to make breakthroughs possible and Alzheimer’s Research UK is at the forefront of these efforts. We rely on public donations to fund our crucial research and it’s thanks to the commitment of people like Karen that we are able to increase the profile of dementia research and continue our important work.”

To sponsor Karen, go to https://www.justgiving.com/fundraising/thepennyrollson  

For further information about Alzheimer’s Research UK call 0300 111 5555 or visit www.alzheimersresearchuk.org

Thousands to benefit from life-saving COVID-19 treatment

Thousands of vulnerable NHS patients in hospital due to COVID-19 are set to benefit from a ground-breaking new antibody treatment, the UK government has announced.

Ronapreve, a combination of two monoclonal antibodies, will be targeted initially at those in hospital who have not mounted an antibody response against COVID-19.

This includes people who are immunocompromised, for example those with certain cancers or autoimmune diseases, and therefore have difficulty building up an antibody response to the virus, either through being exposed to COVID-19 or from vaccination.

The government has taken action to secure supply of the new therapeutic for NHS patients across the four nations, buying enough to treat eligible patients in hospital from next week. Guidance will shortly be going out to clinicians so they can begin prescribing the treatment as soon as possible.

Health and Social Care Secretary Sajid Javid said: “We have secured a brand new treatment for our most vulnerable patients in hospitals across the UK and I am thrilled it will be saving lives from as early as next week.

“The UK is leading the world in identifying and rolling out life-saving medicines, particularly for COVID-19, and we will continue our vital work to find the best treatments available to save lives and protect the NHS.”

Ronapreve is the first neutralising antibody medicine specifically designed to treat COVID-19 to be authorised by the Medicines and Healthcare products Regulatory Agency (MHRA) for use in the UK.

It will be used to treat patients without antibodies to SARS CoV-2 who are either aged 50 and over, or are aged 12 to 49 and are considered to be immunocompromised.

Antibody testing will first be used to determine whether patients are seronegative, meaning those who do not have an adequate existing antibody response, and will therefore receive the treatment. The treatment antibodies – casirivimab and imdevimab – will then be administered to patients through a drip and work by binding to the virus’ spike protein, stopping it from being able to infect the body’s cells.

The UK’s world-renowned vaccination programme also continues to provide protection to tens of millions of people across the country, and has so far saved 112,300 lives, prevented 230,800 hospitalisations and stopped over 24 million infections in England alone.

Since the beginning of the pandemic, the UK has proven itself to be a world-leader in identifying and rolling out effective treatments for COVID-19 – including the world’s first treatment dexamethasone, which has since saved at least 22,000 lives in the UK so far and an estimated million worldwide.

The NHS has also rolled out monoclonal immunomodulatory antibody treatments tocilizumab and sarilumab, following clinical trial results from the government-funded REMAP-CAP trial. The treatments were found to reduce the relative risk of death by 24%, when administered to patients within 24 hours of entering intensive care.

Earlier this year, the government also brought together a new Antivirals Taskforce to supercharge the search for new treatments for patients who are exposed to COVID-19 to stop the infection spreading and speed up recovery time.

The UK’s leading research infrastructure and life sciences sector makes it the ideal base for the brightest of global innovators to research and progress cutting-edge treatments for COVID-19 through the clinical trials process here in the UK.

Paul McManus, COVID-19 Lead at Roche Products Ltd, said: “Over the last 18 months, our goal has been to do everything we can to minimise the impact of the pandemic on those affected and the brilliant people who work tirelessly to treat and care for them.

“Ronapreve is the first dedicated medicine developed for COVID-19 to receive marketing authorisation from the MHRA, representing a significant milestone in how the NHS is able to fight this disease.

“This is just another step in our journey to overcome COVID-19, and we will continue to collaborate with partners to identify and investigate multiple options that may help different groups of patients.

“Together with Regeneron, we’re grateful for the collaboration of the vaccine taskforce and NHS England in helping to bring this important antibody cocktail to treat and prevent acute COVID-19 across the UK.”

From Digital Disasters to Face Masks: Research reveals the biggest communication barriers

  • A new study has revealed the biggest modern communication barriers for Scots
  • The survey, conducted by modern hearing specialist Hidden Hearing, revealed that conversing digitally can be a huge barrier, with just under a fifth of Edinburgh adults having fallen out with someone after misreading a text message
  • But communication barriers can occur in-person too, with the biggest barriers revealed to be several people talking at once, background noise, struggling with face masks, people talking too quietly or fast – all of which are linked to your ability to hear
  • 36 per cent of those from Edinburgh are currently worried about a family member’s hearing, and worry their relationship would suffer if left untreated
  • One in ten local adults put off making a call to family members as they are worried about their own, or the other person’s hearing
  • GP and medical broadcaster Dr Hilary Jones said, “People want to communicate better, but they aren’t recognising that some of the biggest barriers are linked to hearing loss. When you struggle to hear, communication can become challenging, and feelings of frustration may arise, which is why getting regular hearing tests is so important.”

New research by high street hearing specialist Hidden Hearing has revealed the biggest modern communication barriers – from digital disasters to face masks.  

The research revealed that a fifth (18 per cent) of those from Edinburgh have fallen out with someone after misreading text messages, with just one in five also admitting they can spend ‘hours’ puzzling over someone’s wording or tone in a text trying to work out if they are actually annoyed or joking.

Nationally, undetected sarcasm (42 per cent) was revealed as the most common miscommunication, followed by jokes being taken the wrong way (41 per cent) and misunderstanding the tone of the message (36 per cent), leading to one fifth wrongly assuming someone was in a mood with them.

Adults are most likely to over analyse texts and emails from work colleagues (35 per cent), followed by a partner (20 per cent) or a love interest (13 per cent).

Hear this: The biggest communication barriers revealed

But communication barriers don’t just happen digitally, they can occur in-person too, with the biggest barriers being several people talking at once (39 per cent), background noise (39 per cent), face masks (38 per cent), people talking too quietly (37 per cent) or fast (32 per cent) – all of which are linked to hearing loss. 

“People want to communicate better, but they aren’t recognising that some of the biggest barriers are linked to hearing loss,” said GP and medical broadcaster Dr Hilary Jones.

 “When you struggle to hear, communication can become challenging, and feelings of frustration may arise, which is why being proactive and getting regular hearing tests is so important.”

Additionally, mumbling was revealed to be the most frustrating communication habit (41 per cent) – however thinking someone is mumbling is common sign of hearing loss – so the issue is likely to be with the listener rather than the ‘mumbler’. 

The survey revealed that men struggle to hear more than women, with the average male struggling to hear nearly once a day, in comparison to women who have difficulty hearing 273 times a year.

One in three people believe hearing is critical for a conversation to flow, however over 50 per cent of those who experience hearing loss choose not to have their ears tested, highlighting that the issue is being ignored.

Hearing loss: It’s a family matter

More than 2 in 5 (41 per cent) adults put off calling people as they are worried about their own, or the other person’s hearing, with 17 per cent revealing that they have experienced a communication breakdown with a friend or family member because of a hearing loss. Shockingly, 45 per cent of adults’ struggle to hear someone speaking at least four times in a week.

Over one third (35 per cent) of people feel untreated hearing loss is frustrating for everyone involved in the conversation.

When it comes to the best place for conversation to flow – sitting around the family dinner table came up tops, as chosen by a third.

Dr Hilary Jones said, “If you, or a family member, are finding it hard to keep up with conversations when socialising, it may be a sign of hearing loss.

“Taking a hearing test and wearing hearing aids can help you listen better, feel connected and tune into conversations. Hidden Hearing’s 5-minute online hearing test can provide an immediate insight into how well you, or a family member, can hear.”

Time to embrace face-to-face

Nearly one third (31 per cent) of Brits reported feeling frustrated as a result of digital miscommunication, as well as anxious (27 per cent) and stressed (25 per cent). Feelings of anxiety were especially apparent in the younger generation, with 41 per cent of 18- to 24-year-olds stressing over a text or email, in comparison to 1 in 10 over 55s.

Nearly one quarter (23 per cent) have waited to say something to someone in person to avoid it being misunderstood over text – even if it meant waiting weeks to have the conversation.

The OnePoll nationwide study of 2,000 adults found that a huge 79 per cent believe face-to-face is the best way to talk to someone, rather than through a gadget, with 41 per cent of adults believing that ‘people these days have lost the art of communication and rely too much on technology.’

The top phrases Brits would most like to hear in person rather than over a phone were ‘I love you’ and ‘Will you marry me?’ – both selected by 44 per cent of respondents. Nearly one third would also much rather be broken up with face-to-face, rather than over the phone.

The main benefits adults find in having conversations in person include being able to look someone in the eyes (51 per cent), paying attention to body language (47 per cent) and finding it easier to note tone (46 per cent).

Dr Hilary Jones explained: “Spending time with your loved ones or friends, especially in-person as opposed to digitally, has a profound positive impact on our mental health and wellbeing, wellbeing”.

“In person communication enables us to understand tone, pay attention to body language, and feel better connected, reducing feelings of frustration, depression and anxiety, shown to be the most common feelings from miscommunication. These feelings can be heightened even more for those who struggle to hear.”

Visit www.hiddenhearing.co.uk to find your nearest clinic or take Hidden Hearing’s free online hearing test.

The biggest communication barriers

Several people talking at once
Background noise
Face masks
People talking too quietly
People talking too fast
Language barriers
Zoning out of the conversation
Difference of opinions
Misunderstanding or misinterpreting a written message (e.g. email or text)
Not understanding jargon or vocabulary
Not understanding the tone of voice or intention behind a written message
Multi-tasking
Hearing problems
Fear of how the other person would react
Social distancing 
The best places to communicate

At home
Around a family dinner table
On holiday
Outside in nature
In a restaurant or café
On the sofa
On a walk or bike ride
Over a shared hobby
In bed
While drunk
Via phone calls
While driving
At work
Via text message
In a meeting room

‘World class’ child cancer care strategy launched

A strategy to deliver world class cancer care for children and young people has been published by the Scottish Government.

Collaborative and Compassionate Cancer Care, the Cancer Strategy for Children and Young People in Scotland 2021-2026, was launched by Health Secretary Humza Yousaf during an online event yesterday.

The strategy highlights 10 priorities for the next five years, supported by almost £6 million investment, which include:

  • working towards funding genetic testing to provide personally targeted treatment
  • expanding Chimeric Antigen Receptor T-Cell therapy (CAR-T) to teenagers and young adults
  • setting up a national molecular radiotherapy service for children
  • funding a dedicated health workforce to care for teenagers and young adults 
  • raising the profile of supported care services and holistic care
  • developing a single centre of excellence to provide radiotherapy treatment to improve survival among children with cancer

Mr Yousaf said: “Receiving a cancer diagnosis is never easy, but receiving one at such a young age is especially difficult.

“We know that diagnosis has come a long way, with survival rates remaining stable for children and young people. However there is still more we can do to support this age group to live long, healthy and happy lives.

“This strategy, backed by almost £6 million, marks an exciting time for children and young people’s cancer services as the first strategy for this age group. It outlines our 10 ambitions to build on previous successes so that, by 2026, we will see improved and enhanced outcomes for patients and ensure equal access to care across Scotland.”

Medical Director of NHS Forth Valley Andrew Murray said: “I am delighted to see the launch of Collaborative and Compassionate Cancer Care, after such a challenging period in the NHS Scotland’s history, and I look forward to working with our clinicians and families to deliver its ambitious objectives over the next five years, improving experiences and outcomes.”

The strategy can be read in full here.

The launch was somewhat overshadowed by news that the Scottish Government is calling in the army to help tackle a crisis in the ambulance service – and a Twitter post of a film of Health Minister Humza Yousaf’s unfortunate accident on a scooter.

Cyrenians’ Keeping Families Together project advisory board holds first meeting

Cyrenians Keeping Families Together with Cashback for Communities project works alongside Scotland’s secure centres to support children to escape the cycle of homelessness and residential care. The first cross-sector advisory board meeting was held yesterday.  

The Promise Scotland, published in February 2020, is responsible for driving the work of change demanded by the findings of the Independent Care Review and sets out an ambition for Scotland ‘to be the best place in the world to grow up’ so that children are ‘loved, safe and respected, able to realise their full potential’. 

However, at any one time in Scotland, up to 84 children can be in secure accommodation. The aim of such secure care centres is ‘to provide intensive support and safe boundaries to help these highly vulnerable children re-engage and move forward positively in their communities’. 

Yesterday, experts from across the sector, including Cyrenians, The Centre for Youth and Criminal Justice, Scottish Government, Aid and Abet, Police Scotland Violence Reduction Unit, University of Strathclyde, East Lothian Council, the Care Inspectorate and Good Shepherd Centre joined the first ever Keeping Families Together Advisory Board meeting to share best practice and ensure whole family support for those currently residing in Scotland’s secure centres, to help #KeepThePromise. 

The focus of the ‘Keeping Families Together’ Project is to support children and their families to rebuild relationships and return to the family home where possible.

Family contact has been highlighted as a specific area where more attention is needed for those in secure care and without support, the issues affecting families and children – whether the impact of earlier ACEs (adverse childhood experiences), low income and related stresses – can be left unchecked.

Communication can break down, and relationships can fracture, with devastating consequences for the child and the wider community.  

Kerry Watson, Service Manager at Cyrenians, said “At what can only be an enormously stressful and difficult period in a child’s life, it is only right that both the child and the rest of the family receive the support they need to maintain those relationships, and for the child, where possible, to return home with a positive route forward. 

“Bringing together experts from across the sector ensures that we are able to provide whole family support, meaning that any decisions made are in the best interest of the child, including returning home.”  

Dr Cara Jardine Chair of Keeping Families Together Advisory Group added: “The past year has added additional pressures with COVID impacting on family’s ability to visit and stay connected.

“It is imperative that as restrictions ease we focus on providing meaningful support that ensures the rights of the children we support are upheld and advocated for. By putting the child’s needs at the centre of any decision making process we will be able to break the cycle of inter-generational trauma, homelessness and disadvantage, ensuring more positive outcomes for all.”  

To find out more about Keeping Families Together, visit www.cyrenians.scot 

Named visitors now permitted to visit care home residents during Covid-19 outbreaks

New guidance will allow care home residents to choose a friend or relative as a ‘named visitor’ who will be able to visit them, even during a managed Covid-19 outbreak.

This is a change to current practice where most homes suspend routine visiting until outbreaks are over. It will allow those living in care homes to continue to have meaningful contact with loved ones, and balance the need for continuing infection prevention and control measures in care homes with the wider wellbeing of residents.

The change will apply to one named visitor when a care home is in a controlled Covid-19 outbreak, and a guidance note has been issued to support care homes to plan for this in consultation with their local Health Protection team.

Revised guidance from Public Health Scotland issued last week has already set out that residents should be able to receive visits from a nominated person even while they are self-isolating as a precaution (i.e. after hospital stays; after being close contacts of a COVID-19 case if fully vaccinated).

Meanwhile Social Care Minister Kevin Stewart has reaffirmed the government’s commitment to introducing ‘Anne’s Law’, to enable people who live in care homes to choose a person or persons to support them in their health and wellbeing, as called for by Care Home Relatives Scotland. A consultation on how best to implement this will be published shortly.

Minister for Mental Wellbeing and Social Care Kevin Stewart said: “Throughout the pandemic, our overriding priority in care homes has been to safeguard and protect staff and residents from infection – but at times that meant that residents were cut off from their loved ones, which we know has caused anguish and distress for many.

“The proposal for a named visitor will provide continuity of meaningful contact for care home residents in managed COVID-19 outbreak situations, helping to protect residents’ wellbeing in parallel by allowing visiting in a safer way, rather than automatically suspending routine visiting during an outbreak.

“We will further strengthen residents’ rights in adult residential settings through the introduction of ‘Anne’s Law’ and a consultation setting out our aspirations for Anne’s Law and seeking views on how best we might make it work in practice will be published shortly.”

Our pandemic accommodation was unsafe, asylum seekers tell research team

Study suggests relocations took place with little consideration of people’s needs and adversely affected their health and wellbeing

Asylum seekers who were moved to temporary accommodation during the Covid-19 pandemic have faced unsafe conditions, mobility restrictions and a lack of communication from service providers, according to a new study.

Edinburgh Napier researchers said the asylum seekers’ accounts – in which they likened their hotel-type accommodation to detention centres – “pointed to a provision that was inattentive towards their needs, vulnerability and wellbeing.”

The study, which focuses on accommodation in Glasgow, is particularly critical of a “mothers and baby” unit in the south of the city, which was opened last October.  Mothers, who were moved there by Home Office accommodation contractor Mears Group who run the facilities, criticised the cramped and noisy living conditions, unsuitable furniture and inadequate washing facilities.

The report authors call for an independent assessment of the facility to be carried out as a matter of urgency, and say no more families should be moved there until this has taken place.

Other recommendations in the interim report include calls for risk assessments for individuals in advance of any relocation, the minimising of stays in hotel-type accommodation, a review of limits on travel luggage, and the lifting of restrictions requiring residents to stay ‘on-site overnight’.

Edinburgh Napier researchers carried out the study, funded by the Economic and Social Research Council, as part of UK Research and Innovation’s response to Covid-19. They worked with migrant-led grassroots organisation Migrants Organising for Rights and Empowerment (MORE) to explore the impact of the pandemic on those placed in temporary accommodation in Glasgow.

Around 350 asylum seekers were moved from their settled flats into various hotels in the city centre following the outbreak of Covid-19 in March last year, which Mears Group claimed was an attempt to curb the spread of the virus. 

Researchers spoke to more than 50 asylum seekers and followed closely the lives of 14 participants of varied ages and backgrounds from December 2020 to June 2021, during the ‘second wave’ of the virus in the UK, through weekly online meetings. 

Accommodation for asylum seekers during the pandemic has long been a controversial topic. A mass outbreak of Covid at the repurposed Napier military barracks in Kent last winter and a mass stabbing at the Park Inn Hotel in Glasgow the previous June sparked debate and criticism of the government’s handling of asylum housing from parliamentary select committees.

The interim findings of the new Edinburgh Napier study suggest relocating asylum seekers to hotel-type accommodation had a negative impact on their health and wellbeing, and that they found social distancing almost impossible in their new environment.

Individuals living in hotels also faced a number of restrictions. They were unable to cook their own food or have visitors, had their weekly allowance withdrawn, and were told they could not spend nights away from the accommodation. The food served was said to be of poor quality, and it did not reflect their religious or cultural backgrounds.

The Glasgow-based mother and baby unit, the only such facility in the whole of Scotland, was reportedly noisy – with doors frequently banging and staff knocking, and had small beds, insufficient room ventilation and furniture which was unsuitable for breastfeeding. One mum told of her humiliation when the driver taking her to the unit told her she had too many belongings for a “destitute” asylum seeker.

The report said relocations to temporary accommodation took place with little consideration of people’s needs and with no consultation with asylum seekers themselves. There were cases of people being given less than 15 minutes to get ready for their move, and of individuals being threatened with deportation if they resisted.

Dr Taulant Guma, Principal Investigator and lecturer in Edinburgh Napier’s School of Applied Sciences, said: “While issues around asylum accommodation have received a significant amount of media and public attention since the start of the Covid-19 outbreak, little attention has been paid to the experiences and perspectives of asylum seekers themselves, who are directly and mostly affected by these housing arrangements.

“As a collaboration with a grassroots organisation, our study offers a unique and in-depth insight and understanding into the day-to-day realities of asylum seekers’ housing experiences during the pandemic.

“In the context of the current Afghan crisis and discourses of ‘warm welcome’, our findings offer a timely reminder of the cold realities that may await Afghan asylum seekers and refugees once they are relocated to their accommodation across the country.”

Robert Makutsa, Community Researcher with MORE, said: “The asylum accommodation system is broken because the level of duty of care that is required does not need to be met. Think about it; what legal action can an asylum seeker raise against Mears or the Home Office in their failure to adhere to the accommodation provision? None. 

“Their lives are defined and controlled by their agents and often it is us, migrant led organisations and grassroots groups, who put pressure on Mears when asylum seekers make complaints.”

Broadcasters unite to support The Daily Mile campaign

ITV, STV, Sky, and Channel 4 have joined together in a national campaign to encourage millions of children to get back to being fit and active with The Daily Mile. 

Launching today, the TV advertising campaign highlights the powerful impact that The Daily Mile has on children’s physical and mental wellbeing. This campaign is part of a £10m commitment from broadcasters, and INEOS’ ongoing support to improve children’s physical and mental health. 

The fast-growing initiative for primary schools has been a huge success with children, parents and teachers worldwide. It has been particularly effective in getting children moving again after the disruption caused by Covid and school closures.

The Daily Mile recently reported that the number of children running a mile a day has skyrocketed to more than 3 million (3,175,461) in over 13,000 schools and nurseries, spanning 85 countries now taking part. 

The Daily Mile is inclusive and accessible to all. It encourages children to run, jog, wheel or walk at their own pace outdoors for 15 minutes every day, and has also been proven to improve concentration and attainment in class. 

The Daily Mile was first developed in 2012 by Scottish headteacher Elaine Wyllie MBE. Since 2016 it has been supported by INEOS, who funded the creation of the advert.

ITV formed a partnership with The Daily Mile in 2018, helping the campaign to generate over 7,000 additional schools sign ups and nearly 2 million more children participating since the partnership began. 

ITV’s Senior Manager of Social Purpose, Annabel Barratt, said: “We’re incredibly proud of the success of our partnership with the Daily Mile so far. After the last school year was so difficult, ITV wants to use our platform and reach to encourage more healthy choices, and we’re so pleased Sky and Channel 4 are on board too.

“We know The Daily Mile boosts children’s mental wellbeing, concentration and self-esteem as well as their physical health so we’re excited to be helping as many schools as possible take part” 

Verica Djurdjevic, Chief Revenue Officer, Channel 4 said: “The past school year has been really tough and means this initiative is more important than ever for the growing number of children benefiting from the boost to both their physical and mental health.

“It’s a great example of the positive impact broadcaster collaboration is delivering.” 

Fiona Ball, Group Director, Bigger Picture, Sky said: “We’re delighted to partner with ITV, STV and Channel 4 once again to support The Daily Mile’s work to encourage children across the country to make choices that will support their physical and mental health.

“At Sky, we believe in using our reach for good and want to provide young people of all backgrounds a voice and support a better future for themselves and society.” 

Founder of The Daily Mile, Elaine Wyllie MBE, said: “Thank you to ITV, STV, Sky, Channel 4. Their help to raise awareness of the benefits of The Daily Mile is so important. It’s been brilliant to see children returning to school and back to The Daily Mile.

“They are all having fun together outdoors and staying fit in a way that comes naturally to them. We want to help schools as they do a great job of supporting children to be happier and more physically active – this has never been as important as it is now.” 

Teachers and parents are encouraged to visit www.thedailymile.co.uk for further information on how they can participate in The Daily Mile safely and in accordance with the latest Government guidelines. 

ITV’s investment in the importance of children’s mental and physical health extends across other initiatives including Britain Get Talking and Eat Them To Defeat Them.

Memorial Music Garden unveiled at Edinburgh’s Children’s Hospital

Children and young people at Edinburgh’s Children’s Hospital are to benefit from a new multisensory musical garden which has been created in loving memory of East Lothian teenager Jess Mackie.

Thought to be the only one of its kind in a UK children’s hospital setting, The Jess Mackie Music Garden is a vibrant, interactive outdoor space which ensures children don’t miss out on the joy of creative play and music-making while in hospital.

Featuring five large, free-standing musical instruments – the Congas, Tembos, Rainbow Trio Chimes, Harmony Bells and Marimba – the garden pays tribute to Jess’ love of music and encourages children and young people to have fun making melodies together in a relaxing, non-clinical setting away from the wards.

The sensory space has been fully funded by the Jess Mackie Memorial Fund (JMMF), a tribute fund of Edinburgh Children’s Hospital Charity (ECHC).

The fund was set up by the Mackie family to support therapeutic music projects within the hospital in loving memory of their daughter Jess who passed away in 2018 aged 14.

Jess was a member of the National Youth Choir of Scotland and sang with Aberlady and Gullane Parish Churches, at care homes and for charities, and at school concerts.

Parents Michael and Jackie said: “Jess was a caring and compassionate girl who always sought to help others. At only 14, she had a sense of how powerful music could be in helping people when they were in need.

“Many children and young people in hospital feel vulnerable because they lack control over what’s happening to them. Music can have an enormous and positive impact, helping ignite a spark and give back a sense of control.

“It also gives children and young people a means of expressing themselves, making friends and building confidence. Jess knew this and would have loved to know she was a part of making this happen.

“We are absolutely thrilled with the wonderful music garden which is such a fitting tribute to our beautiful daughter. We hope lots of children, young people, families and hospital staff will enjoy it for many years to come.”

When Covid restrictions allow, the music garden will also be used as an outdoor performance space, where ECHC’s visiting musicians – also funded by JMMF – and artists will perform and do music making activities with children and young people all year round.

Rachel Baxter, Director of Fundraising at ECHC, said: “Music-making is a large part of the ECHC Arts Programme as it has such a positive impact on children and young people’s wellbeing. It’s fantastic to now have this brand new space in which we can do even more music, performance and arts activities and ensure children don’t miss out on the magic of music while in hospital.

“The Mackie family are incredible and we are enormously grateful to them and their family, friends and supporters for funding the wonderful Jess Mackie Music Garden and all music-making activities within the hospital. Thanks to their support, we can bring Jess’ passion for music and singing to so many more children and young people on the wards.”

To make a donation to the Jess Mackie Memorial Fund, visit: https://www.justgiving.com/campaign/JessMackieMemorialFund

Edinburgh Children’s Hospital Charity supports the Royal Hospital for Children and Young People, as well as other children’s healthcare settings across the Lothians.

To donate, visit www.echcharity.org/donate